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Kerry L. Wong 🦋 Float Like a Buttahfly

@buttahflyk.bsky.social
660 followers 375 following 818 posts

Writer | Educator | Patient Advocate floatlikeabuttahfly.blogspot.com 🦋 buttahflyk.substack.com 🦋 Kaleidoscope Rare Disease Stories a.co/d/ia0zSim 🦋 Columnist | Sarcoidosis News 🥄🕊️ #BLM #defy🧹#resist #SarcStrong #ZebraStrong🦓 #AlwaysCoordinated😘 she/her

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Reposted by Kerry L. Wong 🦋 Float Like a Buttahfly
Julie S. Lalonde @julieslalonde.bsky.social · 10h
I know the bar is so low it's in hell but these are the moments of healthy masculinity that warm my heart. It's okay to be afraid of needles! It's okay to need some comfort! It's okay to get that comfort from another straight dude! At a time when empathy is seen as a weakness, this is really nice
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Reposted by Kerry L. Wong 🦋 Float Like a Buttahfly
Mayor Zohran Kwame Mamdani @mayor.nyc.gov · 12h
Calling all NYC artists — painters, filmmakers, poets, musicians and more! Did you know our city provides grants to support your work every year? And this year, we're DOUBLING the amount — from $5,000 up to $10,000 per artist! Deadlines are approaching fast — apply today at nyc.gov/artistgrants.
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Kerry L. Wong 🦋 Float Like a Buttahfly @buttahflyk.bsky.social · 15h
Words Matter. 🧵 As an English major, later an English Composition & Literature teacher, and now a writer and public speaker, I've kinda built my life around that. Next week, I'll join Dr. Susan Dorfman, Jameson Fleming, and Marc Minassian at #AWNY26 to discuss how even the most well-intentioned ...
FLaB background with photo of me and text that reads:
I'll be speaking at ADVERTISING
WEEK NEW YORK
Tuesday, October 6
The Penn District, NYC
Words Matter:
How to Communicate with Humanity in a Regulated, Al World
Kerry L. Wong
Writer, Educator, Patient AdvocateFLaB background with description of Advertising Week NY session "Words Matter: How to Communicate with Humanity in a Regulated, AI World"
As marketers we understand that the words we choose to use are important. This is particularly true in healthcare marketing, where audiences are sensitive and communication is critical. Advertising is often packed with buzzwords, clinical jargon, and well-intentioned phrases that can at times actually alienate the very people they try to help. Join a top pharma leader, an agency executive, and a patient advocate as they tear down the industry's most cringeworthy language and rebuild a human-first approach to copy.
Includes headshots of panelists:
Dr. Susan Dorfman, President and CEO, CMI Media Group, a
WPP Company
Jameson Fleming, Editor in Chief, 
MM+M, PRWeek and Campaign
Marc Minassian, Head of Media &
Innovation, Genentech
Kerry Wong, Writer, Educator, Patient Advocate, Float Like a Buttahfly
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Reposted by Kerry L. Wong 🦋 Float Like a Buttahfly
Chronic Illness Humor @chronicillness.bsky.social · 01/10/2026
[icon of someone in a wheelchair] Sometimes, disability takes the choice away from you.

You can want something very much, do everything you can to find a way to make it work, and still discover that there simply isn't a workable way to do it.

Jan Mariet
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Kerry L. Wong 🦋 Float Like a Buttahfly @buttahflyk.bsky.social · 01/10/2026
The @afspnational.bsky.social Out of the Darkness Walk is coming soon. Here’s why it’s so important to me (and a few ways you can help support the cause). 🦋 #StopSuicide #MentalHealthMatters #ChronicIllness #ChronicPain #OutOfTheDarkness buttahflyk.substack.com/p/creating-h...
buttahflyk.substack.com
Creating Hope Out of the Darkness
Supporting the American Foundation for Suicide Prevention
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Kerry L. Wong 🦋 Float Like a Buttahfly @buttahflyk.bsky.social · 01/10/2026
Updated for October! There's always something happening for the #ChronicIllness community. Here, you'll find info about upcoming #webinars, ongoing series, #support groups, and more. 🦋 floatlikeabuttahfly.blogspot.com/p/whats-happ... #arthritis #disability #RareDisease #sarcoidosis #SpoonieSky
Bitmoji of me showing a monthly calendar filled with organization logos. Text above reads "What's on this month's Chronic Calendar?"
Includes Float Like a Buttahfly logo
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Reposted by Kerry L. Wong 🦋 Float Like a Buttahfly
Geneva 🇨🇦 @geneva1111.bsky.social · 01/10/2026
I saw the clip of Judge Judy too. I wanted to punch her through my phone
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Reposted by Kerry L. Wong 🦋 Float Like a Buttahfly
Rare Disease Day Official @rarediseaseday.bsky.social · 01/10/2026
💙 As we count down to #RareDiseaseDay, revisit our Capacity Building video series on enhancing accessibility in physical and digital spaces. Available in 12 languages, it's packed with practical insights to help you build a more inclusive world. 👉 www.rarediseaseday.org/webinars
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nancabell.bsky.social @nancabell.bsky.social · 01/10/2026
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ifaiarthritis.bsky.social @ifaiarthritis.bsky.social · 01/10/2026
October is full of opportunities to raise awareness & amplify patient voices. From arthritis and psoriasis to mental health, invisible disabilities, employment & occupational therapy - these experiences are all connected to life with AiArthritis diseases. #AiArthritis #Awareness
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Kerry L. Wong 🦋 Float Like a Buttahfly @buttahflyk.bsky.social · 01/10/2026
@jpfromli.bsky.social you called it! Yanks in 2! Libs to the Semis Yanks to the ALDS (& let us not forget, Gotham in 1st) Knicks in 5 Go New York!! 🦋 #NYYankees #MLBWildCard #NYLiberty #GothamFC #NYKnicks
static.klipy.com
New York Yankees Jazz Chisholm Jr
Alt: New York Yankees Jazz Chisholm Jr hold up 2 fingers on each hand
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Kerry L. Wong 🦋 Float Like a Buttahfly @buttahflyk.bsky.social · 01/10/2026
Alt text: Post from heatherjevryday > Cornell University: "If the Cornell 7 reminds us of anything, it's that men don't pretend to be trans women in order to assault us. They pretend to be our friends." substack.com/@patchoulipm...
substack.com
Patchouli PMc (@patchoulipmc)
📸
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Reposted by Kerry L. Wong 🦋 Float Like a Buttahfly
Christopher Webb @cwebbonline.com · 01/10/2026
Fellas, we have to talk to our sons while they’re still young. This foundation👇🏽 is the way…
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Reposted by Kerry L. Wong 🦋 Float Like a Buttahfly
Sassy0210 @sassy0210.bsky.social · 30/09/2026
🎯 'A man raped her' instead of 'she was raped.' Have you ever read a headline that reads "A bank was robbed by a suspect?" Nope. It's "A suspect robbed a bank."
Christina Ricci in front of a patterned wall with the text: Maybe we should start talking about how many men out of 3 will sexually assault someone... instead of how many women out of 3 will be assaulted. Lets shift the ownership..
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Reposted by Kerry L. Wong 🦋 Float Like a Buttahfly
Miaganga @miaganga.bsky.social · 30/09/2026
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Kerry L. Wong 🦋 Float Like a Buttahfly @buttahflyk.bsky.social · 30/09/2026
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Big Ellie Ellie The Elephant
Alt: Big Ellie Ellie The Elephant
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Kerry L. Wong 🦋 Float Like a Buttahfly @buttahflyk.bsky.social · 30/09/2026
Yanks win Game 1! Libs win Round 1!! (Knicks in five) Let's go NY!!! 🦋 #Playoffs #MLBWildCard⚾ #NYYankees #WNBA🏀 #NYLiberty #LightItUpNYL🗽
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Frank Sinatra Sings 'New York!' The Big Apple
Alt: Frank Sinatra Sings 'New York!'
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Kerry L. Wong 🦋 Float Like a Buttahfly @buttahflyk.bsky.social · 28/09/2026
I was at a #sarcoidosis conference over the weekend, and a few people actually recognized me from my writing! That is such an amazing feeling!! You know how we say "if it helps just one person, it's worth it?" It's SO worth it! 🦋
Bitmoji of me smiling, with my hands over my heart over a background of hearts and butterflies
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Kerry L. Wong 🦋 Float Like a Buttahfly @buttahflyk.bsky.social · 28/09/2026
Stewie scored 34 points! New York Liberty take Game 1!! And now, back to Brooklyn!!! 🦋 #WNBA🏀 #LightItUpNYL🗽
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Breanna Stewart 'Stewie' Adjusts Sunglasses
Alt: Breanna Stewart 'Stewie' Adjusts Sunglasses
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Reposted by Kerry L. Wong 🦋 Float Like a Buttahfly
Nancy D. Murden @nancydmurden.bsky.social · 27/09/2026
"If there's a book that you want to read, but it hasn t been written yet, then you must write it." - Toni Morrison .
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Kerry L. Wong 🦋 Float Like a Buttahfly @buttahflyk.bsky.social · 24/09/2026
Ok, this New York Liberty game was ugly ... but the bright side is we won't have to face the Valkyries in the first round! 🦋 #WNBA🏀 #SeafoamSZN🗽
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Jonquel Jones Dancing
Alt: Jonquel Jones Dancing
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Kerry L. Wong 🦋 Float Like a Buttahfly @buttahflyk.bsky.social · 23/09/2026
What a game! What a series! What a season! Congratulations to the #LAQueens👑, but really to everyone in the #WPBL and everyone who brought this league to life. So exciting, so much fun! Can't wait for next year! 🦋
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Sato YOU
Alt: WPBL LA Queens' Sato smiles & points to viewer
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Kerry L. Wong 🦋 Float Like a Buttahfly @buttahflyk.bsky.social · 23/09/2026
Come on Firebells! This game is going too quickly! Let's score 2 runs now, so we get some extra innings!! 🦋 #WPBL
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Kerry L. Wong 🦋 Float Like a Buttahfly @buttahflyk.bsky.social · 23/09/2026
#WPBL Championship Game 5!! I don't even know who to root for - my #NYHeights are out, but everyone is so awesome! Let's go Kelsie! Let's go Ashton! Let's go ... Firebells! Let's go ... Queens! 💙🦋
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Reposted by Kerry L. Wong 🦋 Float Like a Buttahfly
Princess in the Tower @apainprincess.bsky.social · 21/09/2026
“Those of us with #ChronicPain wake up every day with pain. This automatically causes a problem with the standard pain scale… Some of us never have a zero… People who don’t have chronic pain often have a hard time understanding that.” buff.ly/DV4J65r #PainAwarenessMonth
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Kerry L. Wong 🦋 Float Like a Buttahfly @buttahflyk.bsky.social · 22/09/2026
Let's go Liberty! 🦋 #WNBA🏀 #LightItUpNYL🗽
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Big Ellie Ellie The Elephant
Alt: Liberty mascot Ellie dancing on the court
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Kerry L. Wong 🦋 Float Like a Buttahfly @buttahflyk.bsky.social · 22/09/2026
Alt text: photo of Masie Williams with quote: "I feel like we should stop calling feminists 'feminists' and just start calling people who aren't feminist 'sexist' and then everyone else is just a human. You are either a normal person or a sexist" 🦋
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Kerry L. Wong 🦋 Float Like a Buttahfly @buttahflyk.bsky.social · 20/09/2026
May the year to come bring peace: … in our hearts. … in our homes. … in our communities, … and around the world. And it should not be controversial to say that includes Palestine. And Ukraine. And trans people. And immigrants. And BIPOC. And the sick and disabled. And all marginalized people. 🦋
FLaB background with Bitmoji of me holding shofar over book that reads "Yom Kippur" on left, with dove within a Jewish star; background includes butterflies, irises, and lillies.
Text reads:
On Rosh Hashana it is written.
On Yom Kippur it is sealed.
May the year to come bring peace:
in our hearts.
in our homes.
in our communities,
and around the world.
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Kerry L. Wong 🦋 Float Like a Buttahfly @buttahflyk.bsky.social · 20/09/2026
Let's go Liberty! #WNBA🏀 #LightItUpNYL🗽
static.klipy.com
Sabrina Ionescu & Jonquel Jones Dancing
Alt: Sabrina Ionescu & Jonquel Jones Dancing
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Kerry L. Wong 🦋 Float Like a Buttahfly @buttahflyk.bsky.social · 20/09/2026
Yay! Firebells win - that means more women's baseball! Let's just hope @espn.com can handle it better than they have been! These "technical difficulties" are infuriating! This wouldn't be acceptable in an MLP preseason game; it's damn sure not OK in the #WPBL championship!!! 🦋
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Kerry L. Wong 🦋 Float Like a Buttahfly @buttahflyk.bsky.social · 19/09/2026
You can vote every day! 🦋
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Kerry L. Wong 🦋 Float Like a Buttahfly @buttahflyk.bsky.social · 19/09/2026
And if not for Jim Abbott, we might not know about Brittany Apgar, who is just one game away from winning the first #WPBL championship! 🦋 www.womensprobaseballleague.com/players/brit...
womensprobaseballleague.com
Brittany Apgar – Women's Pro Baseball League
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Kerry L. Wong 🦋 Float Like a Buttahfly @buttahflyk.bsky.social · 19/09/2026
Thank you, @pftompkins.bsky.social. It couldn't be any clearer. (He posted a thread - I highly recommend reading the full 4-post statement!) 🦋 #TransLivesMatter #TransRightsAreHumanRights
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Kerry L. Wong 🦋 Float Like a Buttahfly @buttahflyk.bsky.social · 19/09/2026
I've added a new page to my site! There's always something happening for the #Chronicillness community. Here, you'll find info about upcoming #webinars, #podcasts, #support groups, and more. 🦋 #arthritis #sarcoidosis #PatientEducation #SpoonieSky floatlikeabuttahfly.blogspot.com/p/whats-happ...
floatlikeabuttahfly.blogspot.com
Events
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Reposted by Kerry L. Wong 🦋 Float Like a Buttahfly
Chronic Illness Humor @chronicillness.bsky.social · 19/09/2026
illustration featuring two dogs standing side-by-side in mud against a light orange background.

On the left, a tall, smiling golden retriever with mud covering only its lower legs asks in a speech bubble, "How deep is the mud?"

On the right, a much smaller grey dog covered in mud up to its chest responds in a speech bubble, "Depends who you ask".

Below the illustration, handwritten orange text reads: "WE ALL GO THROUGH THINGS DIFFERENTLY".
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Kerry L. Wong 🦋 Float Like a Buttahfly @buttahflyk.bsky.social · 18/09/2026
It can seem difficult, even counterintuitive, to express gratitude during difficult times. It doesn’t mean I’m thankful for the hardship, but it's still meaningful. That’s the focus of this week’s #Sarcoidosis News column. 🦋 #ChronicIllness #disability #gratitude sarcoidosisnews.com/columns/refl...
sarcoidosisnews.com
Reflecting with gratitude on what sarcoidosis has brought to my life
Columnist Kerry Wong isn't grateful for her chronic illnesses, but admits they have brought some welcome developments in her life.
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Kerry L. Wong 🦋 Float Like a Buttahfly @buttahflyk.bsky.social · 17/09/2026
"His role is being 'kept under wraps,' we're told, but he's probably not just gonna be a corpse. That was more of Victor Wembanyama's role in the NBA Finals." Well played, @thr.com. Well played. 🦋 #KnicksIn5 Full article: www.hollywoodreporter.com/tv/tv-news/j...
Except from THR article: 
"Brunson, the NBA Champion New York Knicks point guard, will appear on the fifth episode of the upcoming season, NBC says. Brunson's episode will air on Nov. 5 at p.m. ET/PT. His role is being "kept under wraps,' we're told, but he's probably not just gonna be a corpse. That was more of Victor Wembanyama's role in the NBA Finals."
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Reposted by Kerry L. Wong 🦋 Float Like a Buttahfly
Kelly @broadwaybabyto.bsky.social · 15/09/2026
Michael J Fox received the Bob Hope Humanitarian Award and spoke about how he initially hid his Parkinson’s Disease. Even with his fame and fortune, he feared the stigma of disability. He turned that fear into advocacy. He raises money and awareness and reminds us of the importance of compassion.
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Kerry L. Wong 🦋 Float Like a Buttahfly @buttahflyk.bsky.social · 15/09/2026
Really couldn't ask for a more exciting series/season. Can't wait to watch this league grow! 🦋 #WPBL
AAGPBL player Maybelle Blair holding hands with the WPBL mascot based on her
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Kerry L. Wong 🦋 Float Like a Buttahfly @buttahflyk.bsky.social · 15/09/2026
Heartbreaking loss for the Heights, but they should be proud of an incredible and exciting first season. They are officially my favorite baseball team! Congrats to the Queens - they fought hard! Now, bring on the Firebells! 🦋 #WPBL #NYHeights
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Kerry L. Wong 🦋 Float Like a Buttahfly @buttahflyk.bsky.social · 15/09/2026
Like I said ... #WPBL #NYHeights
static.klipy.com
Zettlemoyer Dance
Alt: Zettlemoyer Dance
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Kerry L. Wong 🦋 Float Like a Buttahfly @buttahflyk.bsky.social · 15/09/2026
Jeez! Ok, consoling myself with the oft-repeated repeated refrain: No lead is safe in the #WPBL! Let's go, #NYHeights! (Please?) 🦋
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Kerry L. Wong 🦋 Float Like a Buttahfly @buttahflyk.bsky.social · 15/09/2026
ESPN+ technical difficulties? Now? Wtf am I paying for? #WPBL #NYHeights @espn.com
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ebisback.bsky.social @ebisback.bsky.social · 14/09/2026
Sounds Awesome to me, I'm all in with Tim💙👍🙏🏻
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Reposted by Kerry L. Wong 🦋 Float Like a Buttahfly
Maya Wiley @maya4rights.bsky.social · 11/09/2026
For those mourning the fallen on 9/11, we mourn with you and may we all know peace and safety. For those celebrating Eid Al Adha today, may your sacrifices be accepted and your blessings be abundant. For those who celebrate Rosh Hashanah Shanah Tova. May we all find peace in unity.
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Kerry L. Wong 🦋 Float Like a Buttahfly @buttahflyk.bsky.social · 11/09/2026
"I've had to grow up and spend the past 25 years seeing people use it to hate on our Muslim brothers and sisters, to hate on people who don't look like them, and that's wrong, and that does no honor to the victims here. And I want to use what little platform I have to ask for that to please stop."
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Reposted by Kerry L. Wong 🦋 Float Like a Buttahfly
Mayor Zohran Kwame Mamdani @mayor.nyc.gov · 11/09/2026
25 years ago, terrorists killed nearly 3,000 people, including 2,753 New Yorkers. As we remember that terrible day, let us also remember the first responders, office workers and strangers who ran toward danger to help each other.
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GroguFanboyXX ❌👊🏽❌➕ @grogufanboy.bsky.social · 11/09/2026
There is no greater fuck you to the 9/11 killers or the Saudi financiers that New York City is so great and resilient that on this anniversary the city is enjoying its best leadership ever from its Muslim mayor. Hate lost and love won. New York rose up to mourn and rebuild and enter new life. I ❤️ NY
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Kerry L. Wong 🦋 Float Like a Buttahfly @buttahflyk.bsky.social · 11/09/2026
To those living with #ChronicIllness: What's the worst health/life advice you've been given? (ex: "Just push through the pain" - we know that'll only make things worse) *Answers may be included in my next #Sarcoidosis News column 🦋 #autoimmune #ChronicPain #disability #fatigue #SpoonieSky
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