iiinova — where your digital self keeps evolving

ifaiarthritis.bsky.social @ifaiarthritis.bsky.social · 01/10/2026

October is full of opportunities to raise awareness & amplify patient voices. From arthritis and psoriasis to mental health, invisible disabilities, employment & occupational therapy - these experiences are all connected to life with AiArthritis diseases. #AiArthritis #Awareness

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ifaiarthritis.bsky.social @ifaiarthritis.bsky.social · 30/09/2026

For many of us with chronic pain, 1–10 doesn't tell the whole story. Sometimes an image, color, sound, or word says more. For #PainAwarenessMonth: How would you describe your pain without using a number?

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ifaiarthritis.bsky.social @ifaiarthritis.bsky.social · 29/09/2026

📣 Advocate for Change. Too many patients spend years being told their symptoms are something else. If that’s where you are, the pattern you’re experiencing is worth recording—and your voice is worth sharing. 💬 Share your experience. #AiArthritis #Autoimmune #Autoinflammatory

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ifaiarthritis.bsky.social @ifaiarthritis.bsky.social · 29/09/2026

Has your AiArthritis disease affected your work, education, career goals, or finances? We want to hear YOUR experience. 💬 Tell us in the replies: What's one impact you wish more people understood? Take our lived experience survey: bit.ly/workandschoo...

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ifaiarthritis.bsky.social @ifaiarthritis.bsky.social · 24/09/2026

September is Pain Awareness Month. AiArthritis pain can be more than joint pain—and its impact can reach every part of life. 💬 Which is harder to explain: your pain or its impact? #AiArthritis #Autoimmune #Autoinflammatory #Arthritis

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ifaiarthritis.bsky.social @ifaiarthritis.bsky.social · 22/09/2026

🧠 Brain fog is more than forgetfulness. Losing your train of thought, struggling for words, or feeling like your brain can’t keep up can be part of living with AiArthritis diseases. 💬 Has your healthcare team ever talked to you about brain fog? bit.ly/aiarthritis-... #AiArthritis #BrainFog

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ifaiarthritis.bsky.social @ifaiarthritis.bsky.social · 22/09/2026

Chronic pain is more than a number. Pain can be shaped by inflammation, fatigue, sleep, stress & more—and can persist even when disease is controlled. 🎧 zurl.co/wTNNo #AiArthritis #Autoimmune #Autoinflammatory #Arthritis

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ifaiarthritis.bsky.social @ifaiarthritis.bsky.social · 21/09/2026

🇨🇦 September is Arthritis Awareness Month in Canada. AiArthritis diseases can affect the whole body—not just the joints. 💬 What do you wish people understood about your symptoms? #AiArthritis #Autoimmune #Autoinflammatory #Arthritis

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ifaiarthritis.bsky.social @ifaiarthritis.bsky.social · 18/09/2026

Health policy can be complicated. Understanding how it affects you shouldn’t have to be. Explore the Knowledge = Empowerment web-based hub for patient-led policy education and ways to take action. No download needed. #Autoimmune #Autoinflammatory #Arthritis zurl.co/XMC9P

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ifaiarthritis.bsky.social @ifaiarthritis.bsky.social · 16/09/2026

🫁 Today is Interstitial Lung Disease (ILD) Day. For people with some AiArthritis diseases, systemic inflammation can affect the lungs—not just the joints. 💬 Has lung health ever been discussed as part of your care? #ILDDay #AiArthritis #Autoimmune #Autoinflammatory #Arthritis #LungHealth

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ifaiarthritis.bsky.social @ifaiarthritis.bsky.social · 14/09/2026

September 14–18 is Rheumatoid Arthritis Awareness Week. RA is more than joint pain. It’s a systemic autoimmune disease that can affect the whole body—with symptoms others may never see. 💬 What do you wish more people understood about RA? #RAAwarenessWeek #AiArthritis #Autoimmune #Arthritis

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ifaiarthritis.bsky.social @ifaiarthritis.bsky.social · 08/09/2026

💜 Thank you to everyone who helped make Still’s Disease visible—and to Novartis + Sobi for supporting Still’s Disease Awareness Day 2026. The 47 hours may be ending. The listening and action continue. #IWontBeStill #StillsDay #MyStills zurl.co/vxdY1

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ifaiarthritis.bsky.social @ifaiarthritis.bsky.social · 08/09/2026

Moving from pediatric to adult care can mean new providers, terminology, insurance and responsibilities. What has been the biggest challenge for you or your loved one? What would have made it easier? All AiArthritis communities can answer. #IWontBeStill

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ifaiarthritis.bsky.social @ifaiarthritis.bsky.social · 07/09/2026

People are talking about Still’s Disease today. We want people living it to lead the conversation. What’s one thing you wish more people understood about life with Still’s? Share with #MyStills #IWontBeStill #StillsDay and tag @ifaiarthritis. zurl.co/vxdY1

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ifaiarthritis.bsky.social @ifaiarthritis.bsky.social · 07/09/2026

AiArthritis diseases affect more than physical health. What area of life has been affected most: emotional well-being, relationships, school, work, finances, family life or something else? What support is still missing? #IWontBeStill

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ifaiarthritis.bsky.social @ifaiarthritis.bsky.social · 07/09/2026

🔥 Today is Still’s Disease Awareness Day. Still’s Disease may be rare. Our experiences shouldn’t be invisible. Share. Listen. Learn. Amplify. 🐉 I Won’t Be Still. #IWontBeStill #StillsDay #MyStills #StillsDisease zurl.co/vxdY1

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ifaiarthritis.bsky.social @ifaiarthritis.bsky.social · 07/09/2026

Distance. Limited specialist knowledge. Delayed referrals. Insurance barriers. What has made it hardest to get appropriate care, and what would have improved your experience? All AiArthritis communities are invited. #IWontBeStill

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ifaiarthritis.bsky.social @ifaiarthritis.bsky.social · 06/09/2026

⚠️ MAS can be a serious complication associated with Still’s Disease. Recognizing the signs and knowing when urgent care may be needed matters. Patient + HCP resources: zurl.co/3dgeH #MAS #StillsDisease #StillsDay www.zurl.co/3dgeH

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ifaiarthritis.bsky.social @ifaiarthritis.bsky.social · 06/09/2026

Diagnosis rarely comes down to one moment. What symptom, event, test result or pattern finally helped lead to yours? Were earlier signs missed or misunderstood? All AiArthritis patients and care partners can answer. #IWontBeStill

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ifaiarthritis.bsky.social @ifaiarthritis.bsky.social · 06/09/2026

🔥 The 47 hours begin now. Across the globe, we’re making Still’s Disease visible through awareness, lived experience, connection & action. 🐉 I Won’t Be Still. Will you? zurl.co/OdeFD #IWontBeStill #StillsDay #MyStills www.zurl.co/OdeFD

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ifaiarthritis.bsky.social @ifaiarthritis.bsky.social · 06/09/2026

For Still’s Disease Awareness Day, we’re showing how differently AiArthritis diseases can affect daily life. Which 3 symptoms or complications affect you most? Share your diagnosis if comfortable. #IWontBeStill #StillsDiseaseAwarenessDay

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ifaiarthritis.bsky.social @ifaiarthritis.bsky.social · 06/09/2026

Still’s Disease Awareness Day is September 7th! Over the next two days, we’ll be discussing experiences shared across the AiArthritis community. All AiArthritis patients and care partners are invited to participate. Your experience matters. Share it.

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ifaiarthritis.bsky.social @ifaiarthritis.bsky.social · 05/09/2026

🔥 Why the dragon? 🐉 Its fire reflects Still’s high-spiking fevers. Its colors echo rashes that can appear & fade. Its strength represents a community determined to be seen and heard. #IWontBeStill #StillsDay #StillsDisease zurl.co/vxdY1

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ifaiarthritis.bsky.social @ifaiarthritis.bsky.social · 04/09/2026

Where does your Still’s Disease donation go? 🐉 Patient-led education. Still’s + MAS resources. Research initiatives. Community support. Help us turn awareness into action. #StillsDay #StillsDisease #AiArthritis

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ifaiarthritis.bsky.social @ifaiarthritis.bsky.social · 03/09/2026

📚 Still’s Disease resources can help patients & care partners explain the disease during hospital visits, specialist appointments or with a new doctor. Now available in French + Spanish. zurl.co/5CmE3 #StillsDisease #MyStills www.zurl.co/5CmE3

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ifaiarthritis.bsky.social @ifaiarthritis.bsky.social · 02/09/2026

📅 September is full of opportunities to raise awareness and amplify patient voices. From Still’s Disease and RA to ILD, chronic pain & more, we’re sharing education and lived experiences—because awareness starts with listening. 💬 Which is most meaningful to you? #AiArthritis #ArthritisAwareness

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ifaiarthritis.bsky.social @ifaiarthritis.bsky.social · 02/09/2026

Living with Still’s? Help make the experience visible. 📸 Share a moment from your life + what “I Won’t Be Still” means to you. Use #IWontBeStill #MyStills #StillsDay and tag @ifaiarthritis so we can amplify it. zurl.co/5msG3 www.zurl.co/5msG3

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ifaiarthritis.bsky.social @ifaiarthritis.bsky.social · 01/09/2026

🐉 Wear the awareness. Start a conversation. Help make Still’s Disease more visible. Still’s Disease awareness shirts: zurl.co/2sko2 #IWontBeStill #StillsDay #StillsDisease www.zurl.co/2sko2

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ifaiarthritis.bsky.social @ifaiarthritis.bsky.social · 01/09/2026

🚨 Vaccine recommendations are changing in the U.S. What could this mean for our community? 👀 Watch for what we know right now. Already having trouble with access or coverage? Tell us. We’re listening. ❤️ #AiArthritis #VaccineAccess #Autoinflammatory #Autoimmune #Arthritis

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ifaiarthritis.bsky.social @ifaiarthritis.bsky.social · 31/08/2026

Still’s Disease may be rare. Our experiences shouldn’t be invisible. For 47 hours across September 6–7, we’re making Still’s Disease visible through lived experience, awareness, connection, and action. 🔥 I Won’t Be Still. Will you? #IWontBeStill #StillsDay #MyStills

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ifaiarthritis.bsky.social @ifaiarthritis.bsky.social · 31/08/2026

Living with CAPS means navigating a rare disease that is often misunderstood. Every conversation helps increase awareness, improve care, and bring hope to those affected. #AiArthritis #Autoimmune #Autoinflammatory #AutoinflammatoryAwareness

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ifaiarthritis.bsky.social @ifaiarthritis.bsky.social · 28/08/2026

🔥 Turn awareness into action this Still’s Disease Awareness Day! Every story makes Still’s Disease more visible. Every donation helps support education, advocacy, resources, and patient voices. 🐉 zurl.co/lkIUR I Won’t Be Still. Will you? #MyStills #StillsDay #StillsDisease #AiArthritis

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ifaiarthritis.bsky.social @ifaiarthritis.bsky.social · 27/08/2026

Living with #VEXASsyndrome means facing a rare and often misunderstood disease. Every conversation helps raise awareness, support research, and improve care for those affected. #AiArthritis #Autoimmune #Autoinflammatory #AutoinflammatoryAwareness

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ifaiarthritis.bsky.social @ifaiarthritis.bsky.social · 26/08/2026

🔥 Still’s Disease Awareness Day 2026 🐉 I Won’t Be Still: Making Still’s Disease Visible Show us a moment from your life with Still’s Disease. 📸 Share a photo/video + what “I Won’t Be Still” means to you. For 47 hours, let’s make Still’s visible. #MyStills #StillsDay #AiArthritis

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ifaiarthritis.bsky.social @ifaiarthritis.bsky.social · 20/08/2026

If you live with Behçet's disease, your story matters. What do you wish others knew about living with this condition? Share your experience and help raise awareness. #AiArthritis #Autoimmune #Autoinflammatory #AutoinflammatoryAwareness #BehcetsDisease #Behcets

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ifaiarthritis.bsky.social @ifaiarthritis.bsky.social · 17/08/2026

#Sarcoidosis symptoms can look different for everyone because different organs may be affected. Knowing the signs can lead to earlier diagnosis and treatment. Awareness saves time - and lives. #AiArthritis #Autoimmune #Autoinflammatory #AutoinflammatoryAwareness

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ifaiarthritis.bsky.social @ifaiarthritis.bsky.social · 17/08/2026

Have you ever had medication copay assistance stop working? Many autoimmune or autoinflammatory arthritis patients rely on it, but copay accumulator policies can prevent it from counting toward out-of-pocket costs, leading to higher bills and possible medical debt.

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ifaiarthritis.bsky.social @ifaiarthritis.bsky.social · 16/08/2026

What is a flare? 💜 A flare is a temporary increase in disease activity that can make pain, stiffness, swelling, fatigue, and other symptoms worse than usual. Every flare is different, and recognizing the signs can help you manage your health and communicate with your care team.

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ifaiarthritis.bsky.social @ifaiarthritis.bsky.social · 15/08/2026

Pain is about more than what’s happening in the body. At EULAR 2026, we heard how sleep, stress, mood, coping, social support, and other life experiences can all affect how pain is experienced. Now we want to hear from you.

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ifaiarthritis.bsky.social @ifaiarthritis.bsky.social · 15/08/2026

What made getting your diagnosis so hard? Years of being dismissed? Misdiagnosis? Not knowing which disease you had? Too much information to take in while you were in pain? Something else?

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ifaiarthritis.bsky.social @ifaiarthritis.bsky.social · 14/08/2026

Your immune system is meant to protect you - not attack you. In autoinflammatory diseases, the innate immune system misfires, causing ongoing inflammation. Understanding starts with awareness. #AiArthritis #Autoimmune #Autoinflammatory #AutoinflammatoryAwareness

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ifaiarthritis.bsky.social @ifaiarthritis.bsky.social · 10/08/2026

August is autoinflammatory awareness month - Did you know most people don't know what autoinflammatory means? Do you know the difference or live with an autoinflammatory arthritis disease? Tell us in the comments. #AiArthritis #Autoimmune #Autoinflammatory #AutoinflammatoryAwareness

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ifaiarthritis.bsky.social @ifaiarthritis.bsky.social · 06/08/2026

We are SO excited to welcome Kyle DuVal, our new Patient-Centered Research Specialist, someone who supports family members living with AiArthritis diseases and knows firsthand why research has to start with the people living it.

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ifaiarthritis.bsky.social @ifaiarthritis.bsky.social · 05/08/2026

Finding the right movement with an AiArthritis disease isn't about pushing harder. It's about finding what works for your body. In this episode, Leila P.L. Valete and Eileen Davidson explore how movement can support both physical and mental health.

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ifaiarthritis.bsky.social @ifaiarthritis.bsky.social · 03/08/2026

Movement looks different for everyone. Living with an AiArthritis disease can make exercise feel overwhelming—but movement doesn't have to mean hours at the gym.

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ifaiarthritis.bsky.social @ifaiarthritis.bsky.social · 03/08/2026

The debate around the 340B program is increasingly centered on transparency, accountability, and patient benefit.

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ifaiarthritis.bsky.social @ifaiarthritis.bsky.social · 01/08/2026

What keeps you from being physically active? Pain? Fatigue? Fear of a flare? Mental health? Something else? After hearing the latest research at EULAR 2026, we want to hear from people living with autoimmune and autoinflammatory arthritis diseases.

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ifaiarthritis.bsky.social @ifaiarthritis.bsky.social · 01/08/2026

Awareness can mean earlier diagnosis, better outcomes. Join the movement and help educate others. Learn more about these awareness dates and others: zurl.co/kOBUh #AiArthritis #Autoinflammatory #AutoinflammatoryAwareness #Psoriasis #PsoriaticArthritis #Awareness

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ifaiarthritis.bsky.social @ifaiarthritis.bsky.social · 30/07/2026

As Congress considers significant changes to the 340B program, the patient perspective must remain at the center of the debate.

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ifaiarthritis.bsky.social @ifaiarthritis.bsky.social · 29/07/2026

It can take years to get an AiArthritis diagnosis. The symptoms get brushed off. The misconception someone may be too young for an AiArthritis disease is a common reason why. What age did your symptoms start? #JuvenileArthritisMonth #AiArthritis #AutoimmuneDisease #AutoinflammatoryDisease

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