iiinova — where your digital self keeps evolving

Kerry L. Wong 🦋 Float Like a Buttahfly @buttahflyk.bsky.social · 10/10/2026

Green Minds is looking for U.S. adults with #AcutePain who have received prescription treatment in the past 12 months. ⏱️ 60-minute online interview 💸 $100 For info, contact: urwa.abrar@greenmindsinsights.com To apply, visit: forms.cloud.microsoft/Pages/Respon... 🦋 #AcutePain #PatientExperience

FLaB background with Bitmoji of me showing text from Green Minds:
Green Minds is looking for U.S. adults who have experienced acute pain in the past 12 months and received treatment through a hospital or health system, including those who have used JOURNAVX® or other prescription pain treatments.

Details
60-minute online interview

Compensation
$100

Interested?
Visit the link below to apply
For more information, contact urwa.abrar@greenmindsinsights.com

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Kerry L. Wong 🦋 Float Like a Buttahfly @buttahflyk.bsky.social · 10/10/2026

The @afspnational.bsky.social Out of the Darkness Walk is just one week away, and I'd love to have your support! No donation is too small to make a difference (or too big 😉) Anything you can do would be greatly appreciated! 🦋 #MentalHealthMatters #StopSuicide afspwalks.donordrive.com/participants...

AFSP graphic shows two shaded blue arms holding hands with text "Together we create hope" (& I added butterflies to the background)

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Kerry L. Wong 🦋 Float Like a Buttahfly @buttahflyk.bsky.social · 07/10/2026

Take all the time you need! We love your posts, but need you to take care of YOU first! 🦋

Bitmoji of me holding a box labeled "all my love and support"

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Kerry L. Wong 🦋 Float Like a Buttahfly @buttahflyk.bsky.social · 06/10/2026

Real Patients™ is looking for people with a variety of health conditions. Share your experience with researchers working to imprоvе treatments, products, and care. Get compensated for your time. To apply, visit: apply.savvy.coop/speakers-bur... 🦋 #ChronicIllness #PatientExperience #SpoonieSky

FLaB background w/ promo for Real Patients:
Savvy Cooperative is now Real Patients™
Real Patients™ is looking for people who have experience
with a variety of health conditions and are willing to speak
about their experiences.
Your voice can change healthcare.
Share your experience with researchers working to improve treatments, products, and care. Get compensated for your time.

Details
• Real Patients often works with our partners to help bring the patient voice to a variety of conferences (both virtual and in-person). If you
are interested in being a speaker for us in the future, please fill out
the screener. When we have an opportunity for participation, we will reach out to you.

Purpose
• To informally chat with conference attendees to give them real patient insights

Compensation
• Varies

For more information and to apply for this gig, visit:
share.realpatients.com/speakers-bureau?ref-kerryd91d60dd

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Kerry L. Wong 🦋 Float Like a Buttahfly @buttahflyk.bsky.social · 02/10/2026

Words Matter. 🧵 As an English major, later an English Composition & Literature teacher, and now a writer and public speaker, I've kinda built my life around that. Next week, I'll join Dr. Susan Dorfman, Jameson Fleming, and Marc Minassian at #AWNY26 to discuss how even the most well-intentioned ...

FLaB background with photo of me and text that reads:
I'll be speaking at ADVERTISING
WEEK NEW YORK
Tuesday, October 6
The Penn District, NYC
Words Matter:
How to Communicate with Humanity in a Regulated, Al World
Kerry L. Wong
Writer, Educator, Patient Advocate

FLaB background with description of Advertising Week NY session "Words Matter: How to Communicate with Humanity in a Regulated, AI World"
As marketers we understand that the words we choose to use are important. This is particularly true in healthcare marketing, where audiences are sensitive and communication is critical. Advertising is often packed with buzzwords, clinical jargon, and well-intentioned phrases that can at times actually alienate the very people they try to help. Join a top pharma leader, an agency executive, and a patient advocate as they tear down the industry's most cringeworthy language and rebuild a human-first approach to copy.
Includes headshots of panelists:
Dr. Susan Dorfman, President and CEO, CMI Media Group, a
WPP Company
Jameson Fleming, Editor in Chief,
MM+M, PRWeek and Campaign
Marc Minassian, Head of Media &
Innovation, Genentech
Kerry Wong, Writer, Educator, Patient Advocate, Float Like a Buttahfly

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Kerry L. Wong 🦋 Float Like a Buttahfly @buttahflyk.bsky.social · 01/10/2026

Updated for October! There's always something happening for the #ChronicIllness community. Here, you'll find info about upcoming #webinars, ongoing series, #support groups, and more. 🦋 floatlikeabuttahfly.blogspot.com/p/whats-happ... #arthritis #disability #RareDisease #sarcoidosis #SpoonieSky

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Kerry L. Wong 🦋 Float Like a Buttahfly @buttahflyk.bsky.social · 28/09/2026

I was at a #sarcoidosis conference over the weekend, and a few people actually recognized me from my writing! That is such an amazing feeling!! You know how we say "if it helps just one person, it's worth it?" It's SO worth it! 🦋

Bitmoji of me smiling, with my hands over my heart over a background of hearts and butterflies

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Kerry L. Wong 🦋 Float Like a Buttahfly @buttahflyk.bsky.social · 23/09/2026

The gif wasn't working, but I love this lol ... 😛🏏

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Kerry L. Wong 🦋 Float Like a Buttahfly @buttahflyk.bsky.social · 20/09/2026

May the year to come bring peace: … in our hearts. … in our homes. … in our communities, … and around the world. And it should not be controversial to say that includes Palestine. And Ukraine. And trans people. And immigrants. And BIPOC. And the sick and disabled. And all marginalized people. 🦋

FLaB background with Bitmoji of me holding shofar over book that reads "Yom Kippur" on left, with dove within a Jewish star; background includes butterflies, irises, and lillies.
Text reads:
On Rosh Hashana it is written.
On Yom Kippur it is sealed.
May the year to come bring peace:
in our hearts.
in our homes.
in our communities,
and around the world.

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Kerry L. Wong 🦋 Float Like a Buttahfly @buttahflyk.bsky.social · 17/09/2026

"His role is being 'kept under wraps,' we're told, but he's probably not just gonna be a corpse. That was more of Victor Wembanyama's role in the NBA Finals." Well played, @thr.com. Well played. 🦋 #KnicksIn5 Full article: www.hollywoodreporter.com/tv/tv-news/j...

Except from THR article:
"Brunson, the NBA Champion New York Knicks point guard, will appear on the fifth episode of the upcoming season, NBC says. Brunson's episode will air on Nov. 5 at p.m. ET/PT. His role is being "kept under wraps,' we're told, but he's probably not just gonna be a corpse. That was more of Victor Wembanyama's role in the NBA Finals."

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Kerry L. Wong 🦋 Float Like a Buttahfly @buttahflyk.bsky.social · 15/09/2026

Really couldn't ask for a more exciting series/season. Can't wait to watch this league grow! 🦋 #WPBL

AAGPBL player Maybelle Blair holding hands with the WPBL mascot based on her

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Kerry L. Wong 🦋 Float Like a Buttahfly @buttahflyk.bsky.social · 14/09/2026

Congratulations! Wishing you as much joy as you bring to all of us (that's A LOT)! Happy anniversary! 🦋

bitmoji of me with arms up beneath text: Mazel tov

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Kerry L. Wong 🦋 Float Like a Buttahfly @buttahflyk.bsky.social · 06/09/2026

Why does the #WPBL site list the standings incorrectly? They've announced that the #NYHeights clinched 2nd by winning the season series vs. Queens ... so ... 🤦🏼‍♀️🤔🤷🏼‍♀️

Screenshot from wpbl website showing league standings: #1 SF 9-5.543

#2 LA 8-7.533

#3 NY 8-7.533

#4 BOS 4-10.286

*But NY should be #2 because they won't series vs LA

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Kerry L. Wong 🦋 Float Like a Buttahfly @buttahflyk.bsky.social · 04/09/2026

Yep! "According to the Sky's Fan Code of Conduct - which applies to all ticket holders - the Sky and Wintrust Arena reserve the right to 'eject any patron that poses a threat to themselves or other guests.'" That's exactly what he did when he tried to step to Tash. Case closed. 🦋 #WNBA

According to the Sky's Fan Code of Conduct - which applies to all ticket holders - the Sky and Wintrust Arena reserve the right to "eject any patron that poses a threat to themselves or other guests. This includes, but not limited to, profanity, racial or ethnic comments, intoxication, disorderly conduct, drug use, sexual harassment, or other intimidating actions directed at officials, players, coaches, spectators, or team representatives. These will not be tolerated and are grounds for dismissal from the arena at the ticket holders expense."

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Kerry L. Wong 🦋 Float Like a Buttahfly @buttahflyk.bsky.social · 04/09/2026

Let's go New York Heights!! I love this game. I love this league. 🦋 #WPBL #NYHeights

WPBL NY Heights vs LA Queens
Sep 3 7:30 PM EDT

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Kerry L. Wong 🦋 Float Like a Buttahfly @buttahflyk.bsky.social · 29/08/2026

New York Liberty Player of the Game Han Xu 19 points - season high 5 rebounds 2 blocks 1 assist And she did that off the bench, with only 17 minutes of play!! 🦋 #WNBA🏀 #LightItUpNYL🗽

NY Liberty Player of the Game
Han Xu
19 points - season high
5 rebounds
2 blocks
1 assist

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Kerry L. Wong 🦋 Float Like a Buttahfly @buttahflyk.bsky.social · 29/08/2026

Tash! Tash! Tash! The love this woman is getting here screams louder than all the haters. (Still so mad that New York Liberty let her go!) 🦋 #WNBA #TCloud #Queen

Natasha Cloud posing with Liberty fans at Barclays Center

Natasha Cloud talking to Liberty fans at Barclays Center

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Kerry L. Wong 🦋 Float Like a Buttahfly @buttahflyk.bsky.social · 27/08/2026

Natasha Cloud is #Unrivaled. That's all I needed to know. See who else is coming to season 3 at www.unrivaled.basketball/roster-revea... 🦋

Unrivaled promo announcing that Natasha Cloud is returning for season 3

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Kerry L. Wong 🦋 Float Like a Buttahfly @buttahflyk.bsky.social · 24/08/2026

New York Liberty - Clinched!! Playoffs, here we come!! 🦋 #WNBA🏀 #NYLiberty🗽

NY Liberty players with arms in together; text overlay: 2026 Playoffs CLINCHED

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Kerry L. Wong 🦋 Float Like a Buttahfly @buttahflyk.bsky.social · 23/08/2026

Outside Barclays before the New York Liberty game vs. Fever: "Get up! Get down! We love #trans people in this town!" 🦋 #TransPeopleBelonginSports #NYLiberty🗽#WNBA🏀

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Kerry L. Wong 🦋 Float Like a Buttahfly @buttahflyk.bsky.social · 22/08/2026

Just printed my 🏳️‍⚧️ signs before heading to the #NYLiberty vs. Fever game in BK. Let's show some NYC love to the #trans community! More info at linktree.com/30for30liberty 🦋 #transpeoplebelong #30for30liberty #WNBA🏀 #LightItUpNYL🗽

Trans flag with text overlay "trans people belong in sports"

Trans flag with QR code and text overlay
TRANS PEOPLE BELONG AT LIBERTY GAMES

Pledge $30 for 30 and support trans inclusion! Liberty fans are donating $1 for each WNBA season to the Brooklyn Community Pride Center. From tennis and swimming to basketball and beyond, BCPC creates LGBTQ+ affirming sports spaces where queer and trans Brooklynites can connect, move, and thrive.

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Kerry L. Wong 🦋 Float Like a Buttahfly @buttahflyk.bsky.social · 14/08/2026

Seen today on Substack: "Lettuce has done more harm in bathrooms than trans women." 🦋

Substack post from The Mouthy Renegade Writer: "Now that's an excellent use of window crayons!
features a repost of a Threads post from @oheyitscami: "New pack of window crayons today! Make it a good day 🤘" with photo of car with rear windshield writing: "Lettuce has done more harm in bathrooms than trans women"

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Kerry L. Wong 🦋 Float Like a Buttahfly @buttahflyk.bsky.social · 06/08/2026

I don't know what else was going on behind the scenes, but B has been disrespected all season. I hate to see her go, but I hope she gets picked up by a team that will actually put her on the court. #WNBA🏀 #NYLiberty

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Kerry L. Wong 🦋 Float Like a Buttahfly @buttahflyk.bsky.social · 01/08/2026

Signing up for ESPN+ @espn.com for 2 months just so I can watch the @wpbl.bsky.social season. History begins today. Let's go, Heights! 🦋 #WPBL⚾ #NYHeights #EveryoneWatchesWomensSports

WPBL Women's Pro Baseball League
Saturday, August 1, 2026

Logos for LA Queens @ NY Heights

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Kerry L. Wong 🦋 Float Like a Buttahfly @buttahflyk.bsky.social · 04/07/2026

New York Liberty!!! Awesome game vs Lynx tonight! 36pts for Stewie Double double for JJ And ... oh yeah, DJ Ria stopped by our section! 🦋 #WNBA🏀 #LightItUpNYL🗽

Hubby & I at the Liberty game with DJ Ria

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Kerry L. Wong 🦋 Float Like a Buttahfly @buttahflyk.bsky.social · 01/07/2026

Congratulations 2x Commissioner's Cup Champions New York Liberty!!! & Congrats to Vegas for making us WORK for it. Great game! 🦋 #WNBA #LightItUpNYL🗽

Photo of the jumbotron at Barclays Center showing 2026 Commissioner's Cup Champions NY Liberty

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Kerry L. Wong 🦋 Float Like a Buttahfly @buttahflyk.bsky.social · 30/06/2026

Reposted with Alt text THE BIG BEAUTIFUL DELAY Why You're Not Feeling the Bill - Yet H.R.1 (The "Big Beautiful Bill") was designed to delay the damage until after the 2026 midterms. STAY ALERT. SPREAD THE WORD, KNOW WHAT'S COMING. Watch what's delayed - not just what's announced.

THE BIG BEAUTIFUL DELAY

Why You're Not Feeling the Bill - Yet

H.R.1 (The "Big Beautiful Bill") was designed to delay the damage until after the 2026 midterms.

Medicaid work rules

Dec. 2026

Late 2026

Gradually by 2026

Here's what's coming... but not just yet:

CUTS COMING AFTER THE ELECTION:

Food aid restrictions

Clean energy credits end Mid to late 2026

Student loan changes

Affordable housing cuts Phased in post-2025

Rural hospital funding declines Starts 2026

WHY IT'S DELAYED:

Politicians want your vote before you feel the impact The harshest parts are hidden until after ballots are cast By then, it's harder to stop.

STAY ALERT. SPREAD THE WORD, KNOW WHAT'S COMING. Watch what's delayed - not just what's announced.

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Kerry L. Wong 🦋 Float Like a Buttahfly @buttahflyk.bsky.social · 19/06/2026

Sick of being sick: When #ChronicIllness makes acute illness worse, the results are exhausting That's the focus of this week's #SarcoidosisNews column (and why I haven't written in so long). Read all about it at sarcoidosisnews.com/columns/afte.... 🦋 #bronchitis #fatigue #sarcoidosis #SpoonieSky

FLaB background with screenshot of Sarcoidosis News column:
After unrelenting health setbacks, frankly, I'm sick of being sick
When chronic illness makes a cute illness worse, the results are exhausting
Written by Kerry Wong | June 19, 2026

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Kerry L. Wong 🦋 Float Like a Buttahfly @buttahflyk.bsky.social · 14/06/2026

(Aside from Dolan) it is such pure joy watching this team, this recognition. Seeing them with such love – for each other, for their families, for New York City, and for their fans ... it's beautiful! 🗽🏀🏆 Congratulations, @ny-knicks.bsky.social! 💙🧡💙🧡💙 #NYKnicks #NBAChampions

Screenshot from my tv of the 2026 NBA Champion Knicks with trophy

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Kerry L. Wong 🦋 Float Like a Buttahfly @buttahflyk.bsky.social · 14/06/2026

Ok, boys ... Let's do this! Knicks in 5! #NBAFinals #LetsGoKnicks Go New York go New York GO! 💙🧡💙🧡💙

Blue T-shirt background with orange logos for Jalen Brunson, Karl-Anthony Towns, Josh Hart, OG Anunoby, & Mikal Bridges

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Kerry L. Wong 🦋 Float Like a Buttahfly @buttahflyk.bsky.social · 01/06/2026

To all those celebrating Pride this month: I see you. I celebrate you. 🏳️‍🌈🏳️‍⚧️🏳️‍🌈🏳️‍⚧️🏳️‍🌈 To all those fighting it: I see you, too. YOU are the ones who should feel shame. 🦋

TIME SAVER
TO COMMON BIGOTED REPLIES
Stop LGBTQ+ Hate Online

"MEN'S MENTAL HEALTH MONTH IS IN."
November. (Ever heard of "Movember"?)

"STRAIGHT PRIDE ISN'T A THING."
Nobody has ever been oppressed or killed for being straight. You demand it every time we post about our Pride, so organise it yourself. No one is stopping you.

"WHAT ABOUT VETERANS?"
Veterans and military service people have multiple days/weeks/months all year long.
If you only mention Veterans to argue against Pride, you're not supporting them. You're using them.

"MY TAXES SHOULDN'T PAY FOR THAT."
Taxes fund plenty of things you don't personally attend or support. That's how society works. Queer people pay taxes too.

"PRIDE IS TOO IN YOUR
Pride events are for us, not you. You're welcome to attend but we are not going to conform for your comfort.

DIFFERENT ISN'T WRONG. HATE IS. CHOOSE KINDNESS. CHOOSE RESPECT

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Kerry L. Wong 🦋 Float Like a Buttahfly @buttahflyk.bsky.social · 31/05/2026

"I tell you this story to share how a disease so horrible can be a gift at the same time. Over the years, I learned to turn my grief, frustrations, and fear into motivation." Demeshia Montgomery 1981-2025 "Never Give Up" 🦋 #ArthritisAwarenessMonth #scleroderma #PatientVoice #PatientAdvocacy #spoonie

Kaleidoscope/AAM background with quote:
"I tell you this story to share how a disease so horrible can be a gift at the same time. Over the years, I learned to turn my grief, frustrations, and fear into motivation."
Demeshia Montgomery
"Never Give Up"

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Kerry L. Wong 🦋 Float Like a Buttahfly @buttahflyk.bsky.social · 31/05/2026

Demeshia Montgomery lived with #scleroderma, a rare form of #arthritis, and shared her story in Kaleidoscope #RareDisease Stories. Sadly, she passed away on August 31, 2025, leaving a legacy of advocacy and hope. May her memory be a blessing. 🦋 a.co/d/0bdyweD6 #ArthritisAwarenessMonth #SpoonieSky

Kaleidoscope/AAM background with photo of Demeshia Montgomery, 1981-2025, who lived with scleroderma.

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Kerry L. Wong 🦋 Float Like a Buttahfly @buttahflyk.bsky.social · 29/05/2026

"Kaleidoscope Rare Disease Stories" features stories by 7 #sarcoidosis warriors, who often experience #arthritis: Fabian Bacchus Cheryl Bradford Hanna Curtis Brad DMag Peter Devonald Jim Kuhn & me! + Foreword by Duff, who also lives with #neurosarcoidosis. 🦋 a.co/d/0bdyweD6 #ArthritisAwarenessMonth

Kaleidoscope/AAM background with Bitmoji of me holding copies of the book, and text:
Sarcoidosis patients
often experience sarcoid arthritis
Fabian Bacchus
Cheryl Bradford
Hanna Curtis
Brad DeMaagd
Peter Devonald
Jim Kuhn
Kerry Wong
*with Foreword by Karen
Duffy Lambros

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Kerry L. Wong 🦋 Float Like a Buttahfly @buttahflyk.bsky.social · 27/05/2026

Greta lives with hypermobile Ehlers-Danlos Syndrome #hEDS, a #rare connective tissue disease. She shares her story in Kaleidoscope #RareDisease Stories. Order your copy to read Greta’s story and 59 others. Proceeds donated to NORD. 🦋 a.co/d/0bdyweD6 #ArthritisAwarenessMonth #arthritis #SpoonieSky

Kaleidoscope/AAM background with quote:
“I look back on those early years with wonder. I felt like an absolute alien of a person, dying to be loved and accepted but hating to be touched.”
Greta MacMillan
Hypermobile Ehlers-Danlos Syndrome
“Different”

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Kerry L. Wong 🦋 Float Like a Buttahfly @buttahflyk.bsky.social · 26/05/2026

In 2015, I was diagnosed with #sarcoidosis, a rare #inflammatory disease that can affect any part of the body. Often, that inflammation causes joint pain, swelling, and stiffness, aka sarcoid #arthritis. Learn more at sarcoidosisnews.com. 🦋 #ArthritisAwarenessMonth #ChronicIllness #SpoonieSky

FLaB/AAM background with Bitmoji of me pointing to myself and text:
Sarcoid Arthritis
In 2015, I was finally diagnosed with sarcoidosis, a rare inflammatory disease that can affect any part of the body. For me, it affects my lungs, skin, joints, and
autonomic nervous system.
In many cases (including mine), that inflammation causes joint pain, swelling, and stiffness. This is known as sarcoid arthritis or sarcoid arthropathy.
Sarcoidosis also causes systemic
symptoms including fatigue and brain
fog.
Learn more at sarcoidosisnews.com.

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Kerry L. Wong 🦋 Float Like a Buttahfly @buttahflyk.bsky.social · 25/05/2026

Lynn learned about her #RareDisease after the Boston Marathon bombing. She shares her #hEDS story in Kaleidoscope Rare Disease Stories. Order your copy to read her story and 59 others. Proceeds donated to NORD. 🦋 a.co/d/0bdyweD6 #ArthritisAwarenessMonth #HypermobileEhlersDanlosSyndrome #arthritis

Kaleidoscope/AAM background with photo of Lynn Julian, Hypermobile Ehlers-Danlos Dyndrome

Kaleidoscope/AAM background with quote:
"Dr. Smallz affords me a higher level of independence than I've ever had as a person with a disability. My service dog has been a huge part of my resiliency and recovery."
Lynn Julian, Hypermobile Ehlers-Danlos Dyndrome
"My Rare Disease Was Not Diagnosed … Until I Survived a Terrorist Attack”

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Kerry L. Wong 🦋 Float Like a Buttahfly @buttahflyk.bsky.social · 22/05/2026

Did you know #KidsGetArthritisToo? Abby lives with a #rare form of #JIA. She shares her #arthritis #uveitis story in Kaleidoscope Rare Disease Stories. Order your copy to read Abby's story — and 59 others. Proceeds donated to NORD. 🦋 a.co/d/0bdyweD6 #ArthritisAwarenessMonth #KGAT

Kaleidoscope/AAM background with photo of Abby Ferraro, who lives with
Enthesitis-Related Juvenile Idiopathic Arthritis

Kaleidoscope/AAM background with quote:
"I'm not happy about having uveitis or my list of other diseases, but I'm grateful for what I've learned and gained from those diseases. thrive, as a rare disease patient."
Abby Ferraro
"Everyone Has Something: My Uveitis
Journey"

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Kerry L. Wong 🦋 Float Like a Buttahfly @buttahflyk.bsky.social · 20/05/2026

@ifaiarthritis.bsky.social presents: World #Autoimmune & Autoinflammatory #Arthritis Day Don't miss the #WorldAiArthritisDay Livestream! 5:00 - 9:00 PM ET @IFAiArthritis on FB & YT Drive Awareness. Learn more at aiarthritisday.org. 🦋 #ArthritisAwarenessMonth #AiArthritis #MyAiArthritisDisease

FLaB/AAM background with Bitmoji of me driving down a windy road with text:

World AiArthritis Day
World Autoimmune & Autoinflammatory Arthritis Day
Don't miss the Livestream!
5:00 - 9:00 PM ET
@IFAiArthritis on FB & YouTube
* AiArthritis Voices 360 LIVE Talk Show
* Telling Your AiArthritis Story to Create Change
* Patient Voice Panel: Being Heard Isn't Simple
* Patient Story Spotlights
* #AiArthritisDay Jeopardy
Learn more at aiarthritis.org.
Drive Awareness

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Kerry L. Wong 🦋 Float Like a Buttahfly @buttahflyk.bsky.social · 20/05/2026

In 2011, they said, “some kind of #arthritis, probably #autoimmune.” It took 4 more years to get an accurate diagnosis. #sarcoidosis #RA #Sjogrens What’s your #AiArthritis story? 🦋 #ArthritisAwarenessMonth #WorldAiArthritisDay #MyAiArthritisDisease @ifaiarthritis.bsky.social aiarthritisday.org

FLaB/AAM background with Bitmoji of me and text:
#MyAiArthritisDisease
World Autoimmune & Autoinflammatory Arthritis Day

In 2011, after 4 years of being dismissed, a doctor finally said “You have some kind of arthritis, probably autoimmune.”

I spent the next four years with rotating misdiagnoses and failed treatments before finally getting accurate diagnoses.

In the years since, I’ve accumulated a few diagnoses that fit the category:
Sarcoidosis
Rheumatoid Arthritis
Sjögren’s Disease

The inflammation causes more than joint pain:
fatigue, swelling, fevers & chills, brain fog, full body aches, weakness, dizziness, and more.
... and it can affect other organs, too.

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Kerry L. Wong 🦋 Float Like a Buttahfly @buttahflyk.bsky.social · 14/05/2026

Make your voice heard! Tell your legislators to Ensure All #Copays Count with #HELPCopaysAct. Visit the arthritis.org/advocate/action-center to quickly & easily ask your legislators to support this important bill. 🦋 #ArthritisAwarenessMonth #arthritis #advocacy #ChronicIllness #SpoonieSky

FLaB/AAM background with text:

Ensure All Copays Count!
Help Ensure Lower Patient (HELP) Copays Act

Many insurance plans currently use accumulator adjustment programs, which apply any copay assistance (such as manufacturer copay cards) before a deductible, forcing patients to pay higher out-of-pocket costs.

The bipartisan HELP Copays Act (S. 864) aims to curb this practice, instead allowing any financial assistance to count toward the deductibles. That directs the savings where it belongs: with the patients.

Visit the Arthritis Foundation Action Center to quickly & easily ask your legislators to support this important bill.

Learn more at arthritis.org/advocate/action-center.

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