iiinova — where your digital self keeps evolving

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Monica Verduzco-Gutierrez @mvgutierrezmd.bsky.social · 15/03/2026

As a physician, Long COVID taught me humility. As a patient, it showed me how harmful dismissal can be.  To those living with Long COVID: you are my inspiration to listen better, believe sooner, and advocate harder. #LongCovidAwarenessDay #LongCovid #Physiatry

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jencurtinmd.bsky.social @jencurtinmd.bsky.social · 11/03/2026

So excited the #LongCOVID Treatment Guide is live! This has been over a year in the making working with the incredible team at @patientled.bsky.social! Thanks to everyone who reviewed & gave feedback on the guide! We really hope it helps the #IACC community!

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rthm_health @rthm.bsky.social · 29/01/2026

A recap of key Long COVID and ME/CFS studies from 2025. These findings continue to challenge outdated explanations and underscore the urgency of better care, better tools, and continued research. Swipe through to see the studies shaping what comes next.

Title:

2025 End of Year Research

Swipe to see the top research on Long COVID and ME/CFS

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rthm_health @rthm.bsky.social · 30/01/2026

RTHM is now accepting patients in Georgia and Ohio, expanding access to care for people managing Long COVID, ME/CFS, POTS, and other infection associated chronic conditions. Explore RTHM Clinic → www.rthm.com/clinic

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rthm_health @rthm.bsky.social · 02/02/2026

Dr. Jennifer Curtin recently joined host Jill Brook in an episode of The POTScast to speak about RTHM’s innovative HIPAA-compliant AI platform, which equips people with infection-associated chronic conditions with practical guidance and tools. 🎙️Listen now-https://ow.ly/ji4Z50Y7T2f

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Patient-Led Research Collaborative @patientled.bsky.social · 12/02/2026

One of the best sites running a wide variety of clinical trials for #LongCovid and other IACCs is @coresinai.bsky.social, via @putrinolab.bsky.social ! At least 5 trials are currently recruiting - see links below for eligibility!

cheery pink background with white and green pills in the foreground

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Tom Kindlon @tomkindlon.bsky.social · 12/02/2026

"we observed sustained negative impacts of PCC on health outcomes 2.5 years after initial COVID-19 in non-hospitalised individuals, despite minor improvements over time." link.springer.com/article/10.1... Screenshot from latest Science for ME weekly update #LongCovid #postCOVID19condition

Long-term health outcomes and risk factors for low self-rated health in non-hospitalised adults with post-COVID-19 condition: a 2.5-year cohort study — Törnberg et al.
"we observed sustained negative impacts of PCC on health outcomes 2.5 years after initial COVID-19 in non-hospitalised individuals, despite minor improvements over time."

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It's ME(Jaime) @exceedhergrasp1.bsky.social · 05/09/2025

OK, that's it for the introductions! Now I'm going to create threads for each talk and attach each thread here... let's see how that works out for shareability. I've been disappointed by Bsky making longer threads cut off, b/c responses drop off past the cut, always. Let's see if this helps.

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Binita Kane @binitakane.bsky.social · 21/05/2025

Our evidence-based rebuttal to *that* BMJ opinion piece published last week. This has been authored by a coalition of 19 doctors, scientists and patient advocates from around the world, with now 80+ signatures of support from the scientific community. www.bmj.com/content/389/...

bmj.com

Patients with severe ME/CFS need hope in the form of evidence-based interventions, not opinions.

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Eric Topol @erictopol.bsky.social · 28/04/2025

NIH DOGE'd..... Scientists fear Trump administration cuts to NIH could impact the health of Americans for generations 60 Minutes @cbsnews.com w/transcript www.cbsnews.com/news/nih-lay...

cbsnews.com

How cuts at the National Institutes of Health could impact Americans' health

Cuts and layoffs to the National Institutes of Health threaten medical research around the U.S., agency insiders warn.

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Michael Sieverts @yogafogie.bsky.social · 05/12/2024

This 2021 paper focuses on where compression matters most. www.jacc.org/doi/10.1016/...

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Michael Sieverts @yogafogie.bsky.social · 05/12/2024

Some VERY interesting research from the CDC #MECFS call today. Shows the benefits of compression garments for #POTS and similar conditions. One key finding: high waisted delivers the biggest boost. #LONGCOVID www.sciencedirect.com/science/arti...

sciencedirect.com

A Community-Based Trial of Commercially Available Compression Tights in Patients With Postural Orthostatic Tachycardia Syndrome

Compression garments reduce heart rate and symptoms in patients with postural orthostatic tachycardia syndrome in an acute laboratory setting. Patient…

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