iiinova — where your digital self keeps evolving

Autihub.org @autihub.org · 11/09/2026

@autismcrisis.bsky.social According to our calculations, this is your 15,000th post across Twitter/X and Bluesky. Over 15 years of sustained engagement with autism research and thousands of scientific publications discussed along the way. bsky.app/profile/auti...

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Autihub.org @autihub.org · 11/09/2026

8/8 Twitter/X data cover 10 Oct 2009 to 12 Oct 2023. Bluesky data cover 13 Oct 2023 to the present. Current processing prioritizes Bluesky because its open API supports more regular and reproducible synchronization.

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Autihub.org @autihub.org · 11/09/2026

7/8 The tool can therefore support many kinds of analyses: which publications are discussed, which authors or journals recur, how particular topics evolve over time, and how specific areas of autism research are cited, questioned or debated.

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Autihub.org @autihub.org · 11/09/2026

6/8 Searches can also start from the scientific literature: enter an author, words from a title or abstract, a journal/source or publication years to find the corresponding posts and examine how particular studies or authors were discussed.

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Autihub.org @autihub.org · 11/09/2026

5/8 For example, searching for “ABA” can identify posts discussing ABA while restricting results to posts linked to structured scientific references. This makes it possible to explore how a specific research topic has been discussed across many years.

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Autihub.org @autihub.org · 11/09/2026

4/8 The central feature is cross-search: post text, quotations, questions, dates and platform can be combined with reference-level filters such as title, abstract, author, journal/source, publication year and autism-related terms.

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Autihub.org @autihub.org · 11/09/2026

3/8 From links appearing in these posts, AutiHub has identified 9,080 structured scientific references (DOIs) or study registration records, allowing searches to connect posts with the scientific publications and registered studies being discussed.

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Autihub.org @autihub.org · 11/09/2026

2/8 The tool covers more than 15 years of public engagement with autism research. Michelle Dawson has discussed and critically engaged with more than 10,000 scientific publications, providing an unusually large corpus for studying scientific debates over time.

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Autihub.org @autihub.org · 11/09/2026

New on AutiHub: a search tool for exploring and analysing 15,000 public posts by Michelle Dawson (@autismcrisis.bsky.social) on autism science and related debates, across Twitter/X (2009–2023) and Bluesky (2023–present). autihub.org/en/michelle-...

autihub.org

Michelle Dawson posts analysis on Twitter/X and Bluesky (@autismcrisis)

This project documents public posts by Michelle Dawson (@autismcrisis) on autism science, scientific publications, and related debates. Twitter/X is treat…

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Autihub.org @autihub.org · 08/09/2026

Fictional follow-up study: "Teaching Medical Professionals to Cooperate with Autistic Children During Physical Exams" Abstract: Six clinicians were trained to ask for consent, recognize withdrawal of assent, stop when a child moved away or became distressed, and adapt examinations accordingly.

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Autihub.org @autihub.org · 01/09/2026

Launching the Autistic Scholars Project on AutiHub: a free public database of academic publications authored/co-authored by autistic people. 354 autistic authors, 1,799 publications — with daily monitoring for new publications by included authors. autihub.org/en/autistic-...

autihub.org

Autistic Scholars Project

The Autistic Scholars Project is a public, freely accessible database that indexes academic publications authored or co-authored by at least one autistic …

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Autihub.org @autihub.org · 24/08/2026

Ten years later, it seems the 5-day humor training may have worked after all. (I hope this joke isn’t inappropriate.) x.com/autismcrisis...

x.com

Michelle Dawson (@autismcrisis) on X

Humor training for autistics, 5-day workshop? https://t.co/Q7gxK0P6Pz note: paper reads like a bad joke

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Autihub.org @autihub.org · 21/08/2026

Autidacts.org is becoming **Autihub.org**, opening the project to a broader range of initiatives focused on the participation and representation of autistic people in autism research and knowledge production. More information in the coming days: autihub.org #AutismResearch #ActuallyAutistic

autidacts.org

AutiHub

AutiHub brings together citizen-led, open projects focused on autistic participation and representation in autism knowledge production.The site develops t…

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Autihub.org @autihub.org · 11/08/2026

It would also be interesting to know whether the tool is sensitive to the evaluator’s neurotype.

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Autihub.org @autihub.org · 09/08/2026

The very notion of “automatic reinforcement” is not a neutral concept; it is a conceptual metaphor that would benefit from investigation through historical epistemology. (It is worth revisiting some of Esquirol’s descriptions of “idiots,” for instance as “automata.”)

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Autihub.org @autihub.org · 22/07/2026

2/2 At the same time, as participation grows, it will become increasingly important to study empirically whether, how, and under what conditions it influences the quality, relevance, and outcomes of autism research. This should be an empirical question, not an ideological one.

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Autihub.org @autihub.org · 22/07/2026

1/2 I fully support increasing the participation of autistic people in autism research. That is a positive development in itself.

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Autihub.org @autihub.org · 20/07/2026

@autismcrisis.bsky.social I understand your point, but how can autistic participation in research be evaluated if studies are not encouraged to report it? There may be an important distinction between reporting community involvement and requiring individual authors to disclose a diagnosis.

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Autihub.org @autihub.org · 20/07/2026

"a lot of autistic contributions (e.g. mine) get graded poorly, disparaged as non-meaningful, non-genuine, etc" Would you be willing to be more specific? This is a very important point. At the same time, we still lack adequate tools for evaluating autistic people’s participation in autism research.

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Autihub.org @autihub.org · 18/07/2026

“When the source of communication cannot be independently verified, there is a risk that individuals are, in effect, spoken for rather than speaking for themselves.” A principle that might be applied to researchers making recommendations about autistic people without involving them in the research.

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Autihub.org @autihub.org · 13/07/2026

@autismcrisis.bsky.social If you prefer, I can send you a link to the development version of the project so that you can see and test what it looks like in practice.

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Autihub.org @autihub.org · 13/07/2026

7/7 If you have concerns, preferences, or conditions about this project, I would very much welcome them. The aim is to help make an important part of autism research history accessible and usable in a responsible way for the community.

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Autihub.org @autihub.org · 13/07/2026

6/7 Those reconstructed destination URLs would support search and analysis, but the raw archive of posts and URLs would not be exposed as a downloadable dataset. The intention is to build a careful public tool, not to extract your work from its original context.

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Autihub.org @autihub.org · 13/07/2026

5/7 We are also trying to preserve the destination URLs behind links included in the posts, when this is still technically possible. Many old short links or redirected pages are already dead or uncertain, so this is partly a preservation effort.

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Autihub.org @autihub.org · 13/07/2026

4/7 The post texts are integrated into a database so that people can search across them by words, dates, questions, quotations, and related markers. Public reading would rely, whenever possible, on official embeds or links back to the original platforms.

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Autihub.org @autihub.org · 13/07/2026

3/7 Using the X API, we were able to retrieve public posts from your Twitter/X archive, and we also use the open Bluesky API for your current public posts. The goal is NOT to republish your posts as a downloadable archive.

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Autihub.org @autihub.org · 13/07/2026

2/7 As part of a project planned for September, developed as an evolution and extension of Autidacts.org, we have been working on a tool to make your public posts easier to search, contextualize, and use for the autism community and research-related discussion.

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Autihub.org @autihub.org · 13/07/2026

1/7 Dear @autismcrisis.bsky.social , This follows a public call we posted in Nov. 2024 about preserving access to your long-running public commentary on autism research. I’m writing with an update, and to explain clearly what is being prepared.

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Autihub.org @autihub.org · 12/07/2026

I completely understand your decision. But I’m saddened by it, because you are often the only person publicly critical of certain studies published in that journal.

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Autihub.org @autihub.org · 12/07/2026

“The most paywalled—and therefore inaccessible—autism journal.” So true. Thank you @autismcrisis.bsky.social

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Autihub.org @autihub.org · 15/03/2026

“The [EURORDIS] award was granted in recognition of the commitment of AIMS-2-TRIALS leaders to involving autistic people [...] as equal partners in this initiative.” “Equal partners.” Assertions are not evidence. This should be studied empirically. www.aims-2-trials.eu/2026/03/10/r...

aims-2-trials.eu

Roche and AIMS-2-TRIALS Receives EURORDIS Black Pearl Award 2026

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Autihub.org @autihub.org · 21/09/2025

Editorial whose lead author has received AIMS-2-TRIALS funding mentions participatory research once—under “Shaping the future.” In 2025, that’s insufficient: participatory methods must be embedded in current studies, especially on interventions & therapeutic outcomes. doi.org/10.3389/frch...

doi.org

Frontiers | Editorial: Advancing interventions and therapeutic outcomes for autistic youth: a multidisciplinary perspective

Current status of the field Autistic people and their families experience barriers in access to health and social care services (Mendez et al., 2023). Despit...

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Autihub.org @autihub.org · 20/09/2025

5/6 First task: verify whether each publication explicitly reports AIMS-2-TRIALS support (quick, form-based). Even limited help would be fantastic — tracing autistic participation across ~350 studies is a collective effort, and your contribution moves us forward. Discord: discord.gg/3NhpBrxm

discord.gg

Join the Autistic Participatory Metrics Discord Server!

The Autistic Participatory Metrics Discord coordinates the broader Autistic Participatory Metrics project. | 15 members

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Autihub.org @autihub.org · 20/09/2025

5/6 With ~€115M total funding (incl. ~€55M from the EU) and hundreds of papers, plus a stated commitment to involving autistic people and carers across the project, it’s ideal for examining how participation is described and reported.

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Autihub.org @autihub.org · 20/09/2025

4/6 We apply the framework to peer-reviewed outputs that acknowledge AIMS-2-TRIALS funding. Launched 2018–2026, it’s a large European biomedical programme uniting multiple groups to study autism across the lifespan.

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Autihub.org @autihub.org · 20/09/2025

3/6 This evaluation is fully independent of the consortium, organized by volunteers via Discord. A protocol draft and a proposed timeline are available for consultation. Protocol draft: go.cedricdetienne.be/1

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Autihub.org @autihub.org · 20/09/2025

2/6 Our first case study examines peer-reviewed publications supported by AIMS-2-TRIALS (~350+). We’ll assess how participatory practices are reported using a structured GRIPP2-LF–based framework.

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Autihub.org @autihub.org · 20/08/2025

I should clarify that the article would, of course, not be made available on Autidacts. However, it would allow us to build the interactive bibliography, which is one of Autidacts.org 's strengths.

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Autihub.org @autihub.org · 20/08/2025

Hello, Autidacts.org is interested in having a private copy to add your article to its database. (sorry, I can't seem to send a private message)

autidacts.org

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Autihub.org @autihub.org · 09/08/2025

"This suggests that camouflaging is not always responsive to the mechanisms targeted in traditional CBT and emphasizes the importance of contextual, identity-affirming approaches in intervention design." So why persist in applying traditional CBT to autistic people?

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Autihub.org @autihub.org · 07/08/2025

The expression "**person-centered** quantitative phenotypic analysis" sounds impressive but is ultimately rather empty.

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Autihub.org @autihub.org · 24/05/2025

4/5 Of course, this analysis is based on what is reported in the studies. But given how little information is publicly available about the actual participation of autistic people in the consortium, it's probably better than nothing.

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Autihub.org @autihub.org · 24/05/2025

3/5 Rather than relying on institutional branding, this project aims to ground evaluation in actual evidence of co-production and participation.

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Autihub.org @autihub.org · 24/05/2025

2/5 The focus will be on identifying concrete indicators of participation within the studies — to assess whether claims that autistic individuals are “equal partners” in AIMS-2-TRIALS (Loth 2023, doi:10.3389/fpsyt.2023.1085445) hold up under scrutiny.

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Autihub.org @autihub.org · 24/05/2025

1/1 You might find this interesting. A new citizen-led research initiative is launching with the specific goal of analyzing all peer-reviewed publications funded by the AIMS-2-TRIALS consortium.

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