iiinova — where your digital self keeps evolving

Alana @alanasaltz.bsky.social · 14/08/2026

Thanks to the couple people who have engaged with me a bit and I wish you well but I can't keep doing this. I'm stepping away indefinitely again. The silence is too painful.

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Alana @alanasaltz.bsky.social · 14/08/2026

You know what maybe I shouldn't even bother with the poetry memoir. I know nobody owes me anything but I used to get engagement and I was part of a community and since I've gotten sicker I feel completely alienated online and offline and I don't want to keep fighting if nobody gives a shit.

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Alana @alanasaltz.bsky.social · 14/08/2026

I made the mistake of trying to find a little support and community for my treatment resistant autoimmune disease in a group for the disease. All I got was unsolicited advice and people invalidating my decision to potentially stop treatment. I don't know what I expected but wtf is wrong with people.

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Alana @alanasaltz.bsky.social · 13/08/2026

If any writers are interested in doing a blurb for my poetry memoir about disability, please feel free to DM me. I'm happy to do whatever I can to support your work in return.

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Alana @alanasaltz.bsky.social · 13/08/2026

I've decided I'm going to publish my poetry memoir about chronic illness and disability whether anyone wants to read the brutal realities of my life or not. At least I tried even if it seems like nobody wants to hear about that anymore. Not when it's this severe and non-inspirational. Here we go.

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Alana @alanasaltz.bsky.social · 11/08/2026

Why can't people just not be horribly insensitive and rude and boundary violating about my disabilities? Why is that the hardest thing in the world I've ever had to ask? It's really not that hard to listen, be accommodating, be sensitive. I can't deal with this anymore.

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Alana @alanasaltz.bsky.social · 06/08/2026

No, I have no chill anymore. Stop expecting me to. The world crushes you, the system crushes you, almost everyone you care about or try to care about crushes you, your own body crushes you the most...try to keep your chill. I'd like to see it. You'd break too. Every day.

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Alana @alanasaltz.bsky.social · 02/08/2026

The way I was treated as someone without clearly visible disabilities or mobility aids was awful. The way I'm treated as someone with more visible disabilities and mobility aids is also awful. Even online, some of the things people say and do are so insensitive and disgusting and harmful.

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Nicholas Slayton @nslayton.bsky.social · 29/07/2026

I have friends dealing with chronic health issues from long covid, loved ones who lost family members to COVID, and immunocompromised friends who have to be very careful still to not get sick and die. Sorry if posting about COVID is annoying but it's not over and I wish people took it seriously.

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Solei @ferretoftheforest.bsky.social · 27/07/2026

As a disabled person I both love Jimothy as an icon and hate the fact that he's getting more attention than actual disability rights that are currently in danger. I know disabilities for humans aren't as cute, but the community needs you to care about us. Please.

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Alana @alanasaltz.bsky.social · 26/07/2026

I took a shower today for the first time in months. I feel like I got hit by a bus. I can't even do the most basic human things without horrible pain and nobody in my life will hold space for it and no doctor believes or cares how bad it is even with a diagnosis of severe autoimmune disease. Fml.

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Kelly @broadwaybabyto.bsky.social · 26/07/2026

When disability happens to you, you won’t be able to just “try harder”. The social supports you think magically appear? They won’t show up. The medical system will let you down. Friends & family will abandon you. You will realize disability advocates were right all along.

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Alana @alanasaltz.bsky.social · 21/07/2026

I haven't had central AC or heat in 20 years. It's been so hard especially with my health issues. This needs to be standard in rentals. The west coast of the US gets extreme weather too. It's ridiculous almost nowhere has it. Having again is so amazing and helpful to my health and quality of life.

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Alana @alanasaltz.bsky.social · 21/07/2026

An activist I used to admire wrote something about how taking COVID precautions is unnecessary and harmful and they regret doing it. I don't understand. Nothing's changed. It's not ok to discourage those of us who are continuing protect ourselves by framing it that way. It validates minimizers too.

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Alana @alanasaltz.bsky.social · 20/07/2026

If I believed in hell, people who write tributes and eulogies using genAI would get a special place in it. Of all the things to not use your own words and emotions.

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Alana @alanasaltz.bsky.social · 19/07/2026

I tried SO HARD for two months to avoid this last minute packing nightmare in these final moving days and yet it still happened because of factors outside of my control and how little I could do myself outside of logistics, of which I did an unbelievable amount. Idk if I'll recover from all this.

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Alana @alanasaltz.bsky.social · 19/07/2026

I'm so scared. I'm too sick for normal life things, it turns them into exhausting logistical nightmares and crises around basic functions.

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Alana @alanasaltz.bsky.social · 19/07/2026

I'm moving today to the place I hope to spend the rest of my life but I've never even been in person because it was too risky to even go visit. I'm terrified of so many things and I've gotten almost no support around how hard it's been to try to make it accessible and the toll this will take on me.

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Anna Holmes @annabookwriter.bsky.social · 18/07/2026

The tightrope of medical misogyny: you have to sound serious enough that they don’t tell you to lose some weight about it, but you can’t sound too informed or they’ll diagnose you with hysteria and a side of “Dr. Google.”

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Alana @alanasaltz.bsky.social · 17/07/2026

A guy I had been chatting with for a few days from a SUPPORT GROUP said the meanest thing after I opened up about the stress of moving as a disabled person and gently pushed back on some of his forced positivity about it. He told me I was choosing to not get better, be miserable, and enjoy agony.

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Eb @ebthen.bsky.social · 18/06/2026

It's also not ableist to be against Amazon or Walmart, even though many Disabled people (including me) rely on the services those giant money-sucking wage-stealing pits of hell provide. You can understand and appreciate the valid needs people are using shitty tools for without endorsing the tools.

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Alana @alanasaltz.bsky.social · 16/07/2026

Have people always been this incompetent and defensive and unaccountable or has this gotten worse? I can't seem to get anything done in my life now without these kind of issues with the people providing care or services to me and it's so terrible to keep dealing with.

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Alana @alanasaltz.bsky.social · 15/07/2026

I'm moving in a few days and so worried about my inevitable flares and allergies and all I'll have to risk and adjust to.

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Alana @alanasaltz.bsky.social · 14/07/2026

I don't hate the ending of HIMYM anymore so I've definitely changed a lot as a person over the past 10 years.

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Alana @alanasaltz.bsky.social · 13/07/2026

I feel so pathetic missing people who have clearly moved on because they're not the ones who are bedbound and I was just filler to them. Regardless of what they said at the time. I don't know how to do this I don't know how to connect when this is all I am to anybody anymore.

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s. e. smith @sesmith.lol · 12/07/2026

It’s not speaking ill of the dead to state facts! If you don’t like the facts people are going to share after you finally eat shit comically falling down a manhole while being chased by a goose dressed as a mime carrying a rubber chicken, don’t be a shitty person.

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Alana @alanasaltz.bsky.social · 11/07/2026

Is it wrong to hope someone would forgive me after I've apologized as much as I can and given how horribly sick I am and my limited time and function left? I don't know that I deserve this. Or to be abandoned by most in my life just for being sick.

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Alana @alanasaltz.bsky.social · 10/07/2026

Genuine question because the research I did was unclear. Is there evidence that fibromyalgia is a distinct condition and not a placeholder for something else (likely autoimmune) that doctors can't tell/don't believe yet?

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Alana @alanasaltz.bsky.social · 10/07/2026

I really hate when I try to tell people what role disability plays in my life after they try to say stuff like I don't see your disability or you're more than your disability etc. I tell them it does define me in a lot of ways and that's OK. Then they argue with me and get defensive.

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Kelly @broadwaybabyto.bsky.social · 10/07/2026

You do all these things while people tell you it “should be” easier. They tell you to “just ask for more help”. They act like there’s a system in place to care for us, because they need to believe there is. There isn’t.

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Kelly @broadwaybabyto.bsky.social · 10/07/2026

Disability is not a vacation. It’s a 24/7 job You’re forced into legislated poverty You have to endure ableism, abandonment and constant gaslighting You live with pain & suffering that would send most folks to the hospital. You fight for medical care, social supports & dignity. It’s not easy.

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SAG-AFTRA @sagaftra.org · 10/07/2026

Meta now lets anyone use your Instagram photos in AI images without your consent. SAG-AFTRA recommends that #SagAftraMembers (and all Instagram users) opt-OUT of Meta’s new AI image generation tool, Muse Image. Take action to protect your likeness.

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Alana @alanasaltz.bsky.social · 08/07/2026

Can everyone stop telling me everything will be ok because it scientifically objectively will not be. It's called severe degenerative autoimmune disease. Can I please stop being positive now, after decades of having to fake it and allow false hope, I earned my realism. Please give me this one thing.

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Alana @alanasaltz.bsky.social · 06/07/2026

Wow someone just called me ableist for noticing they were using AI to chat with me and I told them it made me uncomfortable. "You said you understood being disabled and this is an accommodation for me." Even if that's true, I don't have to be comfortable with it. I'd never force that on anyone.

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Ro Salarian @rosalarian.bsky.social · 02/07/2026

Good thing Disability Pride is about not letting the haters get you down rather than some toxic positivity BS about loving your disability, because mine are all torturing me and I'm desperate for some sorta cure.

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ShanRattie @shanrattie.bsky.social · 01/07/2026

Hey guys! I know we all like to joke about July being pride 2.0 / Wrath month, but let's also remember it's disability pride month too! Many of us are both LGBTQ+ and live with disabilities and it's more important than ever that both groups stick together and support each other!

The disability pride flag.
It is a diagonal set of pastel coloured stripes on a black background.

The colours corresponding with the following meanings:

Charcoal Grey: Mourning for people who have died due to ableist violence, abuse, suicide, and illness.

Red Stripe: Physical disabilities.

Gold Stripe: Neurodiversity.

Blue Stripe: Emotional and psychiatric disabilities.

Green Stripe: Sensory disabilities.

White Stripe: Undiagnosed and invisible disabilities.

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Bilbo Yaga @bilboyaga.bsky.social · 02/07/2026

It’s Disability Pride Month. Fascists are enacting a blatant eugenicist project worldwide. You can disrupt it. You can defy fascists, do community care, keep resistance efforts healthy, & shield marginalized groups from disproportionate harm. How? Wear an n95 in public. Give/get mutual aid:

maskbloc.org

Worldwide Mask Bloc Directory – Find your local Mask Bloc

MaskBloc.org lists active Mask Blocs around the world. Free high-quality masks, COVID-19 tests and other equipment for your community. Mutual Aid & We Keep Us Safe.

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Alana @alanasaltz.bsky.social · 01/07/2026

I'm proud to be part of the disability community. I'm proud of the activism we do to protect ourselves. I'm proud of how I advocate for myself even when it gets me punished and abused. And I'm heartbroken we live in a world where I have to be proud of how hard we fight to live and survive.

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Kelly @broadwaybabyto.bsky.social · 01/07/2026

Did you know disabled people are far more likely to be the victims of domestic abuse? It’s because we’re trapped. When you can’t perform your own activities of daily living, you endure abuse to survive. Another reason we need better safety nets and social supports.

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Alana @alanasaltz.bsky.social · 30/06/2026

One thing I've learned through all this is people are NOT open to feedback. No matter what they say. They say I can give feedback, I can be insecure, I can ask for accommodations. But almost every single time they immediately get defensive and pull away and the entire thing collapses when I do.

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Alana @alanasaltz.bsky.social · 28/06/2026

I don't know anymore. I don't know what to do. What are you supposed to do when the world hates you because you want to be honest and validated and believed and because you're suffering so much that you can't lie or play pretend or play positivity anymore? And no one can handle that?

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Alana @alanasaltz.bsky.social · 28/06/2026

This is such bullshit. Why is it always my fault? I'm really clear that I don't like toxic positivity and unsolicited advice but somehow people always blame me saying I wasn't clear or they thought there was an exception or they have good intentions, they have to help me and what else can they do?

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Alana @alanasaltz.bsky.social · 28/06/2026

I will not tolerate people deciding that they are going to ignore my boundaries around unsolicited advice and toxic positivity because they think that I am being objectively overly negative or pessimistic and they have to fix it. That is not how it works. My boundaries are my boundaries.

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Heather Hogan @heatherhogan.bsky.social · 27/06/2026

Come hang out with us! It's gonna be so great!

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Alana @alanasaltz.bsky.social · 26/06/2026

I know most of what I do is here is venting my anger at the medical system, at how ableist most of society is, and how badly I get treated by most people. I don't know what to do. I'm drowning in pain and neglect and abuse with no way to stop it and all I can do is say words and document it.

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Alana @alanasaltz.bsky.social · 26/06/2026

I don't understand what business it was of a random virtual urgent care provider today to grill me about my chronic illnesses which were not relevant to the acute issue I was there for, give me unsolicited advice about them, or give me attitude about my med intolerances. Why is it always something?

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