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A Chronic Voice

@achronicvoice.com
3.2K followers 2.7K following 12K posts

I share #ChronicIllness, #ChronicPain, #disability & #MentalHealth info from VARIOUS #perspectives. #Lupus #Sjogrens #AntiphospholipidSyndrome #epilepsy Open to constructive chat, will block overly opinionated people. achronicvoice.com

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A Chronic Voice @achronicvoice.com · 8m
[New] "The #WritingPrompts are a monthly get-together for anyone with a #ChronicIllness, #MentalIllness or #Disability. An opportunity to share, to listen, and to learn from one another through shared writing prompts.": buff.ly/vFghpyK #WritingCommunity #DisabledPeople
achronicvoice.com
October/November 2026 Chronic Illness Writing Prompts
Check out the October/November 2026 chronic illness and disability writing prompts. Our online community is friendly supportive, so come join us!
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A Chronic Voice @achronicvoice.com · 1h
"So a lot of the time, #doctors ..& even #MentalHealth docs might know a lot more abt #SleepHygiene ..But when some1's got actually chronic #insomnia, it doesn’t usually help on its own..& they don’t hv ..much awareness of [ #CBT ] for insomnia.": buff.ly/FZWmU19 via mnt #depression #sleep #health
medicalnewstoday.com
Insomnia and depression: Why 'just get more sleep' doesn't work
This podcast episode explores the two-way relationship between sleep and mental health, the science of sleep cycles, sleep supplements, and the role of cognitive behavioral therapy in treating…
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A Chronic Voice @achronicvoice.com · 2h
" #SuicidePrevention [also]..requires all of us as #family members, #friends, #colleagues & neighbours, to recognise when some1 may b struggling & have the confidence to start a convo & direct them to the appropriate #support resources.": buff.ly/l1P726e via @channelnewsasia.bsky.social #singapore
channelnewsasia.com
441 suicides reported in Singapore in 2024; deaths among adults aged 30 to 39 up 50%
Suicide was the second leading cause of death among adults aged 30 to 39.
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A Chronic Voice @achronicvoice.com · 6h
"Many people with #ChronicPain suffer from ‘ #painsomnia ’..Many of us have poor quality #sleep in general, too. A good #SleepMask can be a helpful #sleeping tool, especially for those who are light sleepers.": buff.ly/O7mUAeR #ChronicPain #GiftGuide #accessibility #ChronicIllness #disability
Chronic Illness Gift Guide — Here’s What’s Probably on Their Wish List. Whether it’s Christmas, their birthday, a housewarming or some other occasion — this guide has you covered!
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A Chronic Voice @achronicvoice.com · 7h
"The hardest part of acquiring a #disability is not #pain or inconvenience. It’s..Your past self still lives in your #mind .. Yesterday, u were “normal”.. That past self is not imaginary.. Which makes it the strongest possible #comparison.": buff.ly/56k8x1l by kenken02122000 #ChronicIllness
newlifestylesdlm.jp
Why “Just Do Your Best” Can Quietly Destroy People With Acquired Disabilities - 『不自由な自由』 〜当たり前が壊れた後の、新しい世界の歩き方〜
— A Complete Structural Breakdown, Not a Moral LectureL
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A Chronic Voice @achronicvoice.com · 9h
"We live in a #culture that celebrates visibility. #Society lionizes #confident ..individuals who..showcase their #accomplishments ..unintended consequence is that many people find themselves performing #connection rather than experiencing it.": buff.ly/wMwB7kh via @behscientist.bsky.social
behavioralscientist.org
How Can We Feel Loved If We Don’t Feel Known? - by Sonja Lyubomirsky and Harry Reis - Behavioral Scientist
Many of us tell ourselves “if only” stories about love that seem entirely reasonable at first—stories that fit with what we’ve learned over the years, and that resonate with our hopes, fears, and…
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A Chronic Voice @achronicvoice.com · 10h
"A doctor on the phone, a physio doing home visits and a whole hospital stay later, I came out of it on the other side with a plan & got my #mobility back, all just in time for my move which had been in the works for years": buff.ly/60BKFmL by chronic_hopeful #disability #ChronicallyIll #moving
chronicallyhopeful.com
Personal Update: 6 Months After Moving To France
Updating on my health and life after moving to France from the UK. What I'm recommitting to, bracing for and how I'm pampering myself too.
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A Chronic Voice @achronicvoice.com · 12h
“Many of the poor outcomes we see in #endometriosis rare.result of delayed #diagnosis & #surgeries performed without..expertise..We’re now studying the #neurological & #immune mechanisms of the disease. That’s where the real breakthroughs will come.”: buff.ly/fklhL3C via @nypost.com #WomensHealth
nypost.com
Exclusive | Doctors dismissed my agonizing symptoms for years — my misunderstood condition affects 190M people
Kristina Kasparian’s pain was unbearable. She couldn’t shower without vomiting from the strain, couldn’t pull up her underwear or tie her shoes. But doctors brushed it off as IBS or anxiety.…
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A Chronic Voice @achronicvoice.com · 14h
"Those 2,400 miles weren't any less real because I may not get another year like that. Good years aren't the exception simply because they ended. Wanting more doesn't mean I'm #ungrateful for what I got.": buff.ly/Z7l7uio by @stillrollingoutdoors.com #duality #perspective #ChronicallyIll #human
buff.ly
Don't Get to Keep Good Things | Still Rolling Outdoors
On grief, capacity and regulation. The stories that pain tells when control slips.
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A Chronic Voice @achronicvoice.com · 15h
@dralexandriasz.bsky.social Thanks for resharing 🪱
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A Chronic Voice @achronicvoice.com · 15h
@rockwaypress.bsky.social Thanks for resharing 🪱
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A Chronic Voice @achronicvoice.com · 15h
@mondayblogs.bsky.social Thanks for resharing 🪱
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A Chronic Voice @achronicvoice.com · 15h
@glaucusatlanticus.bsky.social Thanks for resharing 🪱
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A Chronic Voice @achronicvoice.com · 15h
@markdignam69.bsky.social Thanks for resharing 🪱
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A Chronic Voice @achronicvoice.com · 15h
@wordwitchlife.bsky.social Thanks for resharing 🪱
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A Chronic Voice @achronicvoice.com · 15h
@graycat-125.bsky.social Thanks for resharing 🪱
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Reposted by A Chronic Voice
Carrie Marshall - MySeveralWorlds.com @myseveralworlds.com · 29/09/2026
"Skin-related manifestations are common & may be the 1st signs of #APS. 40% of APS pts who hv #cutaneous manifestations go on to develop multisystemic #thrombotic events which underscores the need to be extra vigilant" buff.ly/XofExpO @achronicvoice.com #AntiphospholipidSyndrome
buff.ly
How Does Antiphospholipid Syndrome Affect The Body? (Beyond the Blood to Major Organs)
How does Antiphospholipid Syndrome affect the body? Whilst APS is a blood clotting disorder, it is also a systemic autoimmune disease.
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A Chronic Voice @achronicvoice.com · 16h
Thanks for resharing 🪱
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A Chronic Voice @achronicvoice.com · 16h
Good tip thank you!
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A Chronic Voice @achronicvoice.com · 17h
"Your paths in life may overlap, esp if you are in a #relationship ..but no 2 person's end point is a complete match..To follow someone else's shadow isn't just a waste of time, but also a waste of energy & resources.": buff.ly/HQ9iu0v #ChronicIllness #LifeJourney #spoonie #comparison #empowerment
Don’t Compare, Your Life Destination is Your Own Special Mission
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A Chronic Voice @achronicvoice.com · 18h
"My #body never turns off & neither does this background monitoring. Every twinge, #ache, or flare gets logged, analysed & accommodated before it becomes a bigger prob. It’s like living inside a list that never stops updating.": buff.ly/mT8GyLc by tanyahindes #ChronicPain #ChronicIllness #awareness
crackednailsandsplitends.co.uk
Things Chronically Ill People Do Just To Function Every Day - Cracked Nails & Split Ends
A personal look at the invisible labour of chronic illness, pain and fatigue. The quiet coping strategies people use just to get through the day.
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A Chronic Voice @achronicvoice.com · 21h
"I began to learn how to optimize my #creativity in support of #measurable outcomes. More readers. More buzz. More #sales ..made me feel powerful &, before long, the parts of me born loving #language for its own joyous sake, receded.": buff.ly/LcghIoT via lithub #writer #identity #advertising
lithub.com
Working in Advertising Helped Me Write My Memoir
I am trying to resist the temptation to begin this essay with a headline that I know will hook you. I don’t want to trick you into feeling an emotion you weren’t planning to feel, or to take …
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A Chronic Voice @achronicvoice.com · 29/09/2026
"Many of us don’t really open up about such things [like #ChronicIllness ] as well, especially if there’s a #mental aspect to it, which still holds quite a bit of #stigma in most #Asian #societies.": buff.ly/f6ITgUV #singapore #MentalHealthAwareness #culture #InvisibleIllness #inclusive #humanity
Invisible in Singapore — What's It Like to Live Here with Chronic Illness? Read on A Chronic Voice .com
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A Chronic Voice @achronicvoice.com · 29/09/2026
"10 weeks of #rehabilitation therapy became 2 years..for Smith..only to be told that, “despite yr Herculean effort..we deem you totally #disabled for.. #work for the rest of your life,” she recalls..the heartbreak of losing her #career.": buff.ly/DMzcFzS via healthing_ca #disability #ChronicIllness
healthing.ca
PAIN: Chronic suffering hiding in plain sight
Inspiring Canadians to live better.
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A Chronic Voice @achronicvoice.com · 29/09/2026
“"the #loneliness can hurt as much as the “burning” or “stabbing”..the longer it persists, the worse the entire #pain experience becomes — we must recognise that there is more to do than #surgery or #analgesics,” adds David Biro.”: buff.ly/0lAHrlr by @apainprincess.bsky.social #ChronicPain #spoonie
princessinthetower.org
The Isolating Loneliness of Chronic Pain & Invisible Illness
Chronic pain and invisible illness can be incredibly isolating, sometimes in obvious ways but other times, it's far more insidious or subtle. Just as our pain and symptoms are mo
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A Chronic Voice @achronicvoice.com · 29/09/2026
" #Home is where the… #medications are." — Yes, I feel 'safest' at home because I can reach out for any medication as needed. For more #ChronicIllness #memes & #humor: buff.ly/Evdi3QH #ChronicLife #ChronicPain #disability #spoonie #ChronicallyIll #awareness #meme
Home is... where the medications are.
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A Chronic Voice @achronicvoice.com · 29/09/2026
“Looking back, I see how such well-meaning words brought to the surface how much I was violating societal #expectations about #pain ..My pain wasn’t acute with an end in sight. It was #chronic.”: buff.ly/5M9IYFk from @psychologytoday.com #ChronicIllness #ableism #NEisVoid #disabled #inclusion
psychologytoday.com
What Not to Say to Someone With Chronic Pain
Personal Perspective: A psychologist describes the social challenges that people living with chronic pain often face—and what we can do about it.
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A Chronic Voice @achronicvoice.com · 29/09/2026
"This is what social scientists call traditional #ecological #knowledge – information about the #environment that’s woven into #culture and #language and handed down from generation to generation.": buff.ly/8cWEDBf via @theconversation.com #linguistics #fishermen #OceanLife #gaelic #Scotland
buff.ly
How Scottish Gaelic is helping protect Scotland’s seas
Around 75% of fishermen in the Outer Hebrides speak Gaelic. Their daily use of the language at work helps keep it alive.
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A Chronic Voice @achronicvoice.com · 29/09/2026
"Damp #fabric at room #temperature is close to an ideal #microbial habitat. They have warmth, moisture & abundant food in the form of #skin cells, sebum (skin oil) & #sweat residues that may survive a normal wash cycle.": buff.ly/xc5pCwR via @theconversation.com #laundry #germs #bacteria #smelly
buff.ly
Why does laundry get smelly if it stays wet? A textile scientist explains how to fix it
Forgot your laundry in the washing machine? Sorry, you’re going to have to wash it again.
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A Chronic Voice @achronicvoice.com · 29/09/2026
" #Adicet believes it may be able to sidestep [ #SideEffects ] with a diff kind of #treatment. Its therapy “prula-cel” is derived from the #cells of donors, an “allogeneic” approach that’s quicker & less costly to manufacture.": buff.ly/U0s5mT3 via @biopharmadive.com #lupus #ClinicalTrial #CARTCell
buff.ly
An ‘off-the-shelf’ CAR-T therapy from Adicet shows promise against lupus
Data from an early trial showed the company’s “gamma delta” cell therapy surpassed benchmarks set by personalized CAR-T treatments tested in lupus.
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A Chronic Voice @achronicvoice.com · 29/09/2026
"if u only ask for " #supplements," you will miss the protein powder containing hidden garcinia, the daily " #wellness tea" containing hepatotoxic substances, or the imported “functional snack” packed with heavy metals.": buff.ly/ivOIuPm via kevinmd #vitamins #medicine #MedSky #medications
buff.ly
How to diagnose supplement toxicity in 4 clinical steps
How to diagnose supplement toxicity starts with patient omissions. Follow supplement-induced liver injury clues across history, labels, timing, and dechallenge.
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A Chronic Voice @achronicvoice.com · 29/09/2026
" #LymphaticMassage can be quite helpful if you have #lymphedema. But it shouldn’t be your only #treatment. If you wear #CompressionGarments (like socks or sleeves) to reduce #FluidRetention, you should keep wearing them.": buff.ly/zFtT2kC via @ClevelandClinic.bsky.social #AlternativeTreatment
my.clevelandclinic.org
Lymphatic Drainage Massage: What It Is, What It Does & Whether You Need It
Lymphatic drainage massage moves waste toward your lymph nodes to rid your body of toxins and reduce fluid retention. Learn more.
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A Chronic Voice @achronicvoice.com · 29/09/2026
"I worked so hard to get into my #career field and to have my career cut short at age 27 was so painful. With time I’ve adjusted, but it will always feel like a part of me is missing. — whatapain_blog.": buff.ly/bXjb0vh #NEisVoid #ChronicIllness #ChronicPain #RA #MondayBlogs #career #society
Sometimes, Physical Pain Isn’t the Worst Part About Chronic Illness. Read the post on: A Chronic Voice .com
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A Chronic Voice @achronicvoice.com · 29/09/2026
" #UVLight is like a smart bomb, entering the #skin and exploding #collagen and elastic fibers to cause #wrinkles, saggy #skin, and cellular DNA changes that increase #cancer risk, explains Robinson.": buff.ly/hKzcJ43 via @Healthline.bsky.social #SkinCare #PublicHealth #FaceCare #BeautyAndWellness
healthline.com
Brainy Beauty: Can Anti-Pollution Skincare Really Protect Your Skin?
Pollution can harm the skin. Can these products repair it?
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A Chronic Voice @achronicvoice.com · 28/09/2026
"I miss the days when all I had to worry abt was a #stoma prob after #meals because I would rather deal with that over #bloating ..I cannot eat a meal without.. #pain & I miss the days when #eating a meal was enjoyable!": buff.ly/xfXoeZx by sarahlynn358 #ChronicPain #ChronicIllness #StomachPain
myrockindisabledlife.com
Five Things I Took For Granted Before Pain
Chronic pain changes you and impacts everything you do because before doing a task people with pain have to think about how that activity is going to affect their pain levels. Some people with Spin…
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A Chronic Voice @achronicvoice.com · 28/09/2026
"What is the most toxic thing your #InnerCritic tells you all the time? How can you #empower yourself instead?" — Check out the #mindfulness #JournalingPrompts for October. The theme for the month is "Dark & Light" 👉 buff.ly/ctewKTa #MondayBlogs #MentalHealth #SelfLove
October Journaling Prompts (Theme: Dark and Light). “What is the most toxic thing your inner critic tells you all the time? How can you empower yourself instead?” Get all the prompts on: A Chronic Voice .com
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A Chronic Voice @achronicvoice.com · 28/09/2026
" #Independence is often taken for granted. I have truly missed being able to pop to the shops. I use online services to have things delivered all the time. But, it’s so much better going to the shop and picking it up yourself.": buff.ly/ZOmZbxh by @raisiebay.bsky.social #disability #ChronicIllness
buff.ly
September Chronic Illness Post - Raisie Bay
joining in with Sheryl from a Chronic Voice where those of us with chronic illnesses join up each month to talk about our illnesses and life
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A Chronic Voice @achronicvoice.com · 28/09/2026
"I think the small but big diff I have been trying to highlight is the #meaning of #happiness versus #contentment ..[the version I like:] “‘chokkshay’ is a ‘spiritual word’ that means ‘the knowledge of #enough ’.” — Join us in the Sep #linkup! buff.ly/CzI7Wcl #MondayBlogs #ChronicIllness #wisdom
How to Seek Out Contentment in Everyday Life with Chronic Illness. Read on: A Chronic Voice .com
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A Chronic Voice @achronicvoice.com · 28/09/2026
"Recognizing early signals requires.. #trust ..There’s a way that repeated #dismissal teaches u to second-guess yr own #perceptions. To hold back on naming something until you’re sure. & by the time you’re sure, the signal has become something louder.": buff.ly/VV1qCO4 by @.thethrivingspoonie.com
thethrivingspoonie.com
The Body Signals Chronic Illness Taught Me to Stop Ignoring
Your body sends early warning signals before things get harder. The problem is that chronic illness makes those signals difficult to notice and even harder to trust. This post is about what early…
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A Chronic Voice @achronicvoice.com · 28/09/2026
" #Birthdays can cause a lot of #stress & #anxiety for people with #ChronicPain because you are eating food you wouldn’t normally have and doing activities you wouldn’t normally do..every activity has to revolve around your #PainLevels.": buff.ly/Cof1AUi by sarahlynn358 #NEisVoid #ChronicIllness
myrockindisabledlife.com
Why Birthdays Are Hard When You Live With Chronic Pain
When you live with chronic pain, everything you do revolves around your pain levels because you can’t do anything without thinking about it. Chronic pain is a full-time job and shows up when we don…
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A Chronic Voice @achronicvoice.com · 28/09/2026
" #Disability is part of being #human, as #natural as growing older, as ordinary as a change in the weather. When we build a world that works for those who have been excluded, we build a world that works better for everyone.": buff.ly/3ECVeVc by Dusty1Wentworth #inclusion #accommodations #humane
dustywentworth.blogspot.com
The Power of Inclusion: A Reflection on Disability
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A Chronic Voice @achronicvoice.com · 28/09/2026
"While #rollerblading, you are working your core & #LowerBack #muscles, which helps strengthen your #balance & coordination skills. If you have kids, teaching your children how to #rollerblade at an early age helps develop these skills.": buff.ly/IVxntCT via lifehackorg #fitness #exercise #healthy
lifehack.org
9 Low-Impact Exercises For All Fitness Levels - LifeHack
Being physically active has been shown to have many health benefits , both physically and mentally. It may even help you live longer. Additionally
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A Chronic Voice @achronicvoice.com · 28/09/2026
"I’m hoping to bring gentle.. #exercise back into my #routine too. Not because I want to punish my #body or chase unrealistic #fitness goals, but because #movement helps me feel stronger, improves my mood [& more].": buff.ly/yTD9MEi by @beverleybutterfly.bsky.social #ChronicPain #spoonie #SelfCare
bloomingmindfulness.co.uk
Building a Life That Works With Your Body -
Sometimes life is hard, and you need to start building a life that works with your body and respecting my new normal.
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Reposted by A Chronic Voice
Carrie Marshall - MySeveralWorlds.com @myseveralworlds.com · 27/09/2026
The Surprising Thing About Chronic Pain buff.ly/2Lvfo5n I’ve lived w. #ChronicIllness for 20 years & have gone through flares that are so disabling that I imagine this is what hell feels like. IMO, one cannot deal w. #ChronicPain when they’re defeated mentally. Via @achronicvoice.com
buff.ly
Sometimes, Physical Pain Isn’t the Worst Part About Chronic Illness
When we think of pain, physical pain often comes to mind first. But sometimes, chronic pain isn't the worst part about chronic illness.
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A Chronic Voice @achronicvoice.com · 28/09/2026
@markdignam69.bsky.social Thanks for resharing 🍒
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A Chronic Voice @achronicvoice.com · 28/09/2026
Thanks for resharing 🍒
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Reposted by A Chronic Voice
Still Rolling @stillrollingoutdoors.com · 28/09/2026
"I am not that special, nor am I at the centre of the universe." 30 years with chronic illness. One question, over and over: What does life expect from me, right now? On Contentment, happiness, survival and thriving. by @achronicvoice.com: buff.ly/LmUJNTd #ChronicIllness #Contentment #Humility
buff.ly
How to Live with Chronic Illness (My Personal Approaches)
People often ask me how to live with chronic illness, especially when chronic pain seems endless. Here are my personal approaches I use to thrive.
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A Chronic Voice @achronicvoice.com · 28/09/2026
Thanks for resharing 🍒
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A Chronic Voice @achronicvoice.com · 28/09/2026
"I also felt a visceral sense of #ImposterSyndrome ..I had always been able to cope with whatever life threw at me. I was young, otherwise #healthy, & wanted so desperately to just push through this period of ill #health.": buff.ly/zBisDqd by Stephen White #ChronicIllness #YoungAdults #MondayBlogs
Young, in Pain, but Undiagnosed. Stephen White's Story, read on A Chronic Voice .com.
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A Chronic Voice @achronicvoice.com · 28/09/2026
"Do your legs feel dead? #Numbness or a feeling of “deadness” in the legs can occur when #NerveDamage or #inflammation affects #sensory perception. This sensation can be accompanied by weakness or difficulty moving the legs.": buff.ly/lLanJwT by @myseveralworlds.com #ChronicPain #arthritis
myseveralworlds.com
Arthritis Leg Pain & Fibromyalgia Leg Pain: What’s The Difference?
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