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A Chronic Voice

@achronicvoice.com
3.3K followers 2.7K following 12K posts

I share #ChronicIllness, #ChronicPain, #disability & #MentalHealth info from VARIOUS #perspectives. #Lupus #Sjogrens #AntiphospholipidSyndrome #epilepsy Open to constructive chat, will block overly opinionated people. achronicvoice.com

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A Chronic Voice @achronicvoice.com · 6h
"we can glean #inspiration ..from many things in #life, even if they may seem irrelevant or unrelated. I do believe that #knowledge gained is never wasted. It expands our capacity for #understanding & often helps with #ProblemSolving in other areas.": buff.ly/a6nXlzd by lisaalioto #ChronicIllness
Find Your Way Back To Happiness With A Chronic Illness. Guest Post By: Lisa M. Alioto.
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A Chronic Voice @achronicvoice.com · 12h
"Many times we ignore the effects of chronic #stress, because it isn’t an acceptable excuse, or there isn’t a #choice. This can be esp true if others are reliant on u to live in some form; perhaps you are a #parent, #employer or #caregiver yourself.": buff.ly/CrTwmpy #ChronicPain #MentalHealth
Chronic Stress, the Silent Assassin
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A Chronic Voice @achronicvoice.com · 02/10/2026
"“Don’t beat yourself up, just give your body what it needs right now. Rest, love and nourishment.” — Invisible_Hypo.": buff.ly/f8IrrcI #ChronicPain #healing #SelfCare #ChronicIllness #resting #pacing #acceptance
40 People with Chronic Illness Share Their Best Pain Management Tips (What to Do if an Unforeseen Pain Flare Hits)
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A Chronic Voice @achronicvoice.com · 02/10/2026
"Who is somebody you look up to? What qualities do you #admire about them? They can be famous or someone you know." — Get all the #October #journaling prompts for #SelfImprovement & #MentalHealth in the post 👉 buff.ly/ctewKTa #ChronicIllness #WritingCommunity #disabled
October mindfulness journaling prompts for people with chronic illness, mental health issues, or disabilities. Theme: Dark and Light. View them on: A Chronic Voice .com
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A Chronic Voice @achronicvoice.com · 02/10/2026
"With the death of every #language comes the death of #perspective, a way of #thinking, a way of solving problems. As a result, our worldviews shrink, and our approach to #ProblemSolving slides into rigidity.": buff.ly/PHrH1EU #BucketList #ChronicIllness #education #disability #humanity #culture
The Barriers That Throw Rocks into My Bucket List with Chronic Illness. Read on: A Chronic Voice .com
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A Chronic Voice @achronicvoice.com · 01/10/2026
"'It would be great to repeat some activities..Long #RoadTrips in Malaysia, staying at all kinds of lodgings.' (I do remember staying at #motels that cost $1 a night, which my #dad seemed to consider a 'victorious find'. They were gross 😉)": buff.ly/4vwpvbj #ChronicIllness #father #parenting
What’s it Like to be the Father of a Child with Chronic Illness? (Precious Insights from My Own Dad!)
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A Chronic Voice @achronicvoice.com · 01/10/2026
"Despite [her #ChronicIllnesses ], Cheyanne writes with such eloquence, fairness and joy. Her #blog posts are #authentic and filled with #wisdom & I love how she’s always willing to consider #perspectives different than her own.": buff.ly/FDEWOvB #MCAS #ChronicallyIll #ChronicLife #ChronicIllness
Cheyanne Perry — Living a Full Life with Deadly Allergies. “It’s in My Blood” is a series that feature people with chronic illnesses, and also their passions and talents.
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A Chronic Voice @achronicvoice.com · 01/10/2026
"I’m not a good sleeper & sometimes have #nights on end where I’m literally half-awake & #LucidDreaming. #Medications that are meant to help can sometimes make the #dreams more vivid instead.": buff.ly/IU6E89o #painsomnia #NEisVoid #ChronicPain #ChronicIllness #insomnia #anxiety
What's it like? A Day in My Life with Chronic Illnesses. Read on: A Chronic Voice .com
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A Chronic Voice @achronicvoice.com · 30/09/2026
"Many people with #ChronicPain suffer from ‘ #painsomnia ’..Many of us have poor quality #sleep in general, too. A good #SleepMask can be a helpful #sleeping tool, especially for those who are light sleepers.": buff.ly/O7mUAeR #ChronicPain #GiftGuide #accessibility #ChronicIllness #disability
Chronic Illness Gift Guide — Here’s What’s Probably on Their Wish List. Whether it’s Christmas, their birthday, a housewarming or some other occasion — this guide has you covered!
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A Chronic Voice @achronicvoice.com · 30/09/2026
"Your paths in life may overlap, esp if you are in a #relationship ..but no 2 person's end point is a complete match..To follow someone else's shadow isn't just a waste of time, but also a waste of energy & resources.": buff.ly/HQ9iu0v #ChronicIllness #LifeJourney #spoonie #comparison #empowerment
Don’t Compare, Your Life Destination is Your Own Special Mission
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A Chronic Voice @achronicvoice.com · 29/09/2026
"Many of us don’t really open up about such things [like #ChronicIllness ] as well, especially if there’s a #mental aspect to it, which still holds quite a bit of #stigma in most #Asian #societies.": buff.ly/f6ITgUV #singapore #MentalHealthAwareness #culture #InvisibleIllness #inclusive #humanity
Invisible in Singapore — What's It Like to Live Here with Chronic Illness? Read on A Chronic Voice .com
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A Chronic Voice @achronicvoice.com · 29/09/2026
" #Home is where the… #medications are." — Yes, I feel 'safest' at home because I can reach out for any medication as needed. For more #ChronicIllness #memes & #humor: buff.ly/Evdi3QH #ChronicLife #ChronicPain #disability #spoonie #ChronicallyIll #awareness #meme
Home is... where the medications are.
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A Chronic Voice @achronicvoice.com · 29/09/2026
"I worked so hard to get into my #career field and to have my career cut short at age 27 was so painful. With time I’ve adjusted, but it will always feel like a part of me is missing. — whatapain_blog.": buff.ly/bXjb0vh #NEisVoid #ChronicIllness #ChronicPain #RA #MondayBlogs #career #society
Sometimes, Physical Pain Isn’t the Worst Part About Chronic Illness. Read the post on: A Chronic Voice .com
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A Chronic Voice @achronicvoice.com · 28/09/2026
"What is the most toxic thing your #InnerCritic tells you all the time? How can you #empower yourself instead?" — Check out the #mindfulness #JournalingPrompts for October. The theme for the month is "Dark & Light" 👉 buff.ly/ctewKTa #MondayBlogs #MentalHealth #SelfLove
October Journaling Prompts (Theme: Dark and Light). “What is the most toxic thing your inner critic tells you all the time? How can you empower yourself instead?” Get all the prompts on: A Chronic Voice .com
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A Chronic Voice @achronicvoice.com · 28/09/2026
"I think the small but big diff I have been trying to highlight is the #meaning of #happiness versus #contentment ..[the version I like:] “‘chokkshay’ is a ‘spiritual word’ that means ‘the knowledge of #enough ’.” — Join us in the Sep #linkup! buff.ly/CzI7Wcl #MondayBlogs #ChronicIllness #wisdom
How to Seek Out Contentment in Everyday Life with Chronic Illness. Read on: A Chronic Voice .com
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A Chronic Voice @achronicvoice.com · 28/09/2026
"I also felt a visceral sense of #ImposterSyndrome ..I had always been able to cope with whatever life threw at me. I was young, otherwise #healthy, & wanted so desperately to just push through this period of ill #health.": buff.ly/zBisDqd by Stephen White #ChronicIllness #YoungAdults #MondayBlogs
Young, in Pain, but Undiagnosed. Stephen White's Story, read on A Chronic Voice .com.
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A Chronic Voice @achronicvoice.com · 27/09/2026
"This is who I am, but I had covered it all up like many others have. I had forgotten how much power I actually possessed as a #HumanBeing, whilst trying to rack up points with people who don’t matter to me.": buff.ly/ChvnSlQ #MondayBlogs #ChronicIllness #disabled #SelfWorth #SelfAcceptance
Self-acceptance — How I Rebuilt My Identity with Chronic Illness. Read the post on: A Chronic Voice .com
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A Chronic Voice @achronicvoice.com · 27/09/2026
"I don’t deal with #emotional pain well. At that point of time [after my 1st #breakup ], I actually thought it hurt more than even my worst #FlareUp. Or rather, I would actually choose physical pain over emotional pain.": buff.ly/QKYsIbF #ChronicPain #spoonie #perspectives #LifeLessons #emotions
Keeping Up with the World: Why it’s Important Despite Pain. Read the post on: A Chronic Voice .com.
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A Chronic Voice @achronicvoice.com · 26/09/2026
"In single-loop learning, we modify the method to get the result we want. Whereas in double loop #learning, the object itself needs to change to achieve the desired result. Thus, we can #change our mental models by being #SelfAware.": buff.ly/ARrOa9A #mindfulness #ChronicIllness #resilient #spoonie
How to Stay Resilient with Chronic Pain (An A – Z Guide by Angela)
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A Chronic Voice @achronicvoice.com · 26/09/2026
"Call me #ignorant for not knowing about [the #IceFallDoctors ] earlier..but I was appalled by how these men’s lives are literally used to pave the way, before the ‘#heroes’ & ‘conquerors’ even get on the trail [of #MountEverest ].": buff.ly/8Xbomd2 #MountainClimbing #humility #advocacy #inclusion
Humility and Advocacy — Read why humility is the best tool for advocacy. If we want to be of real use, then we need to put our petty prides aside, and celebrate both our individual and collective humanity instead. Read more on: A Chronic Voice .com
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A Chronic Voice @achronicvoice.com · 26/09/2026
"It reminds me of all the people who truly matter in my life, the ones who deserve what little energy I have on bad days..I have learned that I #love them even more now..I do not have to #fear my #relationships, nor will they ruin me.": buff.ly/0LcZfaC #humanity #LifeLessons #ChronicIllness
A Quarterly Reflection: 12 Important Life Lessons I’ve Learned (A girl half sits on a table with a notebook in hand, scribbling something in it.)
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A Chronic Voice @achronicvoice.com · 25/09/2026
"4. #Communication & #Collaboration are Key in #DoctorPatient Relationships — also doc-to-doc relationships. #ChronicIllnesses r never an isolated problem. #Patients often have to keep up with an assortment of doctors from diff dpts..covering head to toe.": buff.ly/eWbBMs1 #Autoimmune #MedSky
Is My Doctor Right for Me?
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A Chronic Voice @achronicvoice.com · 25/09/2026
"The #CAMHS & a specialist team from Great Ormond Street #Hospital created a #progress chart that would help motivate me to achieve my #dreams. I would get a point..whenever I moved an arm or finger.": buff.ly/epCpeIW #ChronicIllness #FND #ProgressiveDisease #disability #NeurologicalDisorder
Liam’s FND Story — Read about Liam’s diagnosis and recovery process, and how me achieved his dream of visiting London.
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A Chronic Voice @achronicvoice.com · 25/09/2026
"U could be working towards #reclaiming a certain aspect of your sense of self or #identity ..Or a state of #health & #wellbeing. Y could also be reclaiming a physical possession, certain #boundaries, etc" — There's still time to join us 😊 buff.ly/FXLXYLZ #ChronicIllness #ChronicPain #disability
September Writing Prompts for the Chronically Ill and Disabled: Asking, Overthinking, Humbling, Valuing, and Reclaiming. Visit: A Chronic Voice .com
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A Chronic Voice @achronicvoice.com · 24/09/2026
"I think that #healthy people don’t #appreciate just how much "#boring" is actually a #BlessingInDisguise. In addition, when the #GoodDays do finally come around — as they always do — the taste is just that much sweeter.": buff.ly/CzI7Wcl #ChronicPain #spoonie #gratitude #disabled #SelfAwareness
How to Live with Chronic Illness? Read on: A Chronic Voice .com
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A Chronic Voice @achronicvoice.com · 24/09/2026
"The remnant surgical abrasions from the #KneeSurgery will also look bloody and disgusting. But not to worry; once you’re up and taking showers again, your skin will look better soon after.": buff.ly/OWqQjQB #ChronicIllness #lupus #surgery #PatellaTendonRupture #KneeInjury #disabled
Resources and Therapies for Pain After Major Knee Surgery
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A Chronic Voice @achronicvoice.com · 23/09/2026
"Often in large #social settings, I get #anxious & feel out of place..I struggle to verbalize how I truly feel bcos I get embarrassed. Help me find a place to sit & have a conversation one-on-one with me.": buff.ly/24NRhHw #friendship #ChronicPain #MentalIllness #MentalHealthAwareness #support
7 Ways to Be a Better Friend to Someone with a Chronic Illness (and 3 Things You Should Never Do)
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A Chronic Voice @achronicvoice.com · 23/09/2026
“'The only way to make sense out of change is to plunge into it, move with it, and join the dance.' ― Alan Wilson Watts” — I suppose #change is the only constant in #life. Here's to being in the flow this week! buff.ly/gZ9vb6S #LifeLessons #mindfulness #InspirationalQuote #wisdom #MentalHealth
“The only way to make sense out of change is to plunge into it, move with it, and join the dance.” ― Alan Wilson Watts
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A Chronic Voice @achronicvoice.com · 23/09/2026
"I’m..fortunate to have a great #doctor who thinks with me & is always up for listening to my suggestions. #Medication & care is very affordable [in #Belgium ], although getting #disability benefits as a young woman has proved..challenging.": buff.ly/NWNNEbt Featuring: sarahfrisonhc #ChronicIllness
“It’s in my Blood”: Sarah Frison. A pastry chef with dysautonomia, gastroparesis, gluten intolerance and allergies. Read the series about people with chronic illness, their passions, and talents. Read the blog.
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A Chronic Voice @achronicvoice.com · 22/09/2026
"The problem w #tendons, unlike #bones, is that they do not regrow. The best we can do is to try & repair the tendons with an #allograft or #autograft, which will never be as strong as they were in their original state. I might even be #disabled for life.": buff.ly/JLDAcfR #KneeSurgery #KneeInjury
Broken Knees — Read about my rare medical incident — spontaneous bilateral patellar tendon rupture (approximately only 50 reported cases in the medical literature), which was a result of my Lupus and steroid therapy. (A Chronic Voice .com)
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A Chronic Voice @achronicvoice.com · 22/09/2026
"I had to be confined to a #wheelchair ..& my #mother became my hands & legs. What this means is that there is zero #privacy ..I needed her assistance to move around, fetch things, take a shower, get dressed & even..[had t o be] spoonfed.": buff.ly/9U2DM1A #ChronicPain #disability #NEisVoid #carer
The Art of Supporting: Sometimes That Means Letting Go
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A Chronic Voice @achronicvoice.com · 22/09/2026
“After living with myriad #ChronicIllnesses over 20 years, you learn how to lead in regards to your own #healthcare. A #decision always has to be made. Even waiting something out is an action that could affect u in drastic ways.”: buff.ly/XyH2aWY #MondayBlogs #ChronicPain #AntiphospholipidSyndrome
Antiphospholipid Syndrome Emergency - Ovarian Cyst Ruptures
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A Chronic Voice @achronicvoice.com · 21/09/2026
"Whatever your need, reaching out to someone who has the capacity to give & is #happy to do so, is what being #human is all about. We’re all in this thing called #life together, so we might as well make the most out of it.": buff.ly/EXb9vig #LifeLessons #MondayBlogs #community #compassion #humanity
Asking for Help (and Why Everyone Needs to Learn This Important Life Skill). Read the post on: A Chronic Voice .com
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A Chronic Voice @achronicvoice.com · 21/09/2026
"I never saw my #surgeon at all..I will be changing #doctors after this, as I find this #invalidating & an unacceptable level of #PatientCare. I hv many questions to ask, I am in horrible pain, & I need some level of accountability on their end.": buff.ly/fWwH70D #MondayBlogs #surgery #ChronicPain
Treatment for AIN 3 — Imiquimod and Anal Excision. Read about my experience with the topical, Imiquimod, and invasive anal excision surgery, for AIN 3, on: A Chronic Voice .com.
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A Chronic Voice @achronicvoice.com · 21/09/2026
"We can work on sharing the #reality of our #experiences, and #SpeakUp for those who can’t or aren’t ready to do so yet. We can remind others of what it means to be #human, and how to behave like a decent one.": buff.ly/XSLRoJr #MondayBlogs #advocates #disability #ChronicIllness #SickGirl #spoonies
Call Me Sick Girl (Or How to Make Your Weakness Your Strength)
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A Chronic Voice @achronicvoice.com · 20/09/2026
CW: #suicide . "After 10 yrs of struggling with #depression ..I discovered that a large part of it was treatable..that my struggles with #suicidal thoughts were not quite my own, but seeds planted by illness & fertilised by #medications.": buff.ly/y8Mabaj #MentalHealth #ChronicPain #MondayBlogs
Clinical Depression: Diagnosed 10 Years Late
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A Chronic Voice @achronicvoice.com · 20/09/2026
"Whilst I still have a #HeartRhythmDisorder ..it did get much better after I completed my course of [ #tuberculosis ] #medications. I still carry a strip of #verapamil in my wallet wherever I go however.": buff.ly/9fKt6PN #MondayBlogs #arrhythmia #HeartRate #ChronicallyIll #HeartHealth #cardiology
What’s it Like to Live with a Heart Rhythm Disorder? And how I manage it at home. Read on: A Chronic Voice .com
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A Chronic Voice @achronicvoice.com · 20/09/2026
"If you’re looking to maximise #heat retention from your #YuYu #HotWaterBottle, then their Belgian Pimlico linen covers do a wonderful job at that. These covers come with extra #cotton padding for better insulation.": buff.ly/oV3kFqG yuyubottle #ChronicIllness #HeatTherapy #ChronicPain #PainRelief
YuYu Bottle Review: Hot Water Bottle for ‘Surround Warmth’ Pain Relief. Plus 15 percent discount code on A Chronic Voice .com!
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A Chronic Voice @achronicvoice.com · 19/09/2026
"I had heard my mum yelling that ‘the bird was out of the cage’, before my dad tried to grab it from the window ledge. He must have been #frightened. By the time I dashed out, it was way too late. & way #TooLate is often just a few #seconds short.": buff.ly/za1n1vv #loss #PetBird #ChronicLife
By the time I dashed out, it was way too late. And way too late is often just a few seconds short. Click to Read: A Car Accident & A Song Gone Silent (How Life Lessons from Chronic Illness Tide Me Through) #toolate #chroniclife #grief
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A Chronic Voice @achronicvoice.com · 19/09/2026
" #AspirationPneumonia can also happen especially when a person is asleep, where regurgitated food gets inhaled into the #lungs & becomes #infected. Apart from #gastric content, the..fluid can also consist of oropharyngeal secretions & particulate matter.": buff.ly/Qme4vEw #RareDisease #esophageal
Learn More About the Super Rare Disease — Esophageal Diverticulum
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A Chronic Voice @achronicvoice.com · 18/09/2026
"I started to keep a close watch on my #INR ..I had to make sure that my #blood wasn’t too thin, and this does not change overnight. Sometimes I need to avoid leafy greens for a while to normalise it (you heard me right).": buff.ly/K4Ko43H #AntiphospholipidSyndrome #ChronicIllness #BloodDisorder
We Want to Have Fun Just Like You, But Here’s What it Takes with Chronic Illness
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A Chronic Voice @achronicvoice.com · 18/09/2026
Tips for those who have your kind of #ChronicIllnesses & #dream of #traveling? — "Bree: Go on that trip! Do not be scared. You will have fun. Life is too short to say, “I wish I had gone away.”": buff.ly/47S38fr Featuring: breedixon3 #LifeLessons #disability #fibromyalgia #RA #traveler #ChronicLife
“It’s In My Blood”: Bree Dixon — Paris Je T’aime, Even with Chronic Pain. A series featuring people with chronic illness, their passions, and talents. Read on: A Chronic Voice .com.
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A Chronic Voice @achronicvoice.com · 17/09/2026
"My #rheumatology #NurseClinician works in tandem with my #rheumatologist, and does a lot of work behind the scenes. These nurses follow up on problems of a smaller scale, or of a more predictable or routine nature.": buff.ly/1o9qr0l #ChronicIllness #doctors #MedSky #healthcare #PatientCare
Healthcare Specialists Who are Not Doctors (But Still a Vital Part of My Healthcare Team)
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A Chronic Voice @achronicvoice.com · 17/09/2026
"She started me on yet more #medications ..I was unhappy about the need to add more drugs to my regimen, but noticed a positive difference after a few weeks. These drugs didn’t make me happy or high, they made me feel more like myself again.": buff.ly/9vzsCxj #MentalHealth #depression #psychiatrist
Is Seeking Help for Your Mental Health Worth It?
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A Chronic Voice @achronicvoice.com · 17/09/2026
"When it comes to #ChronicIllness & #AutoimmuneDisease, one size does not fit all. Even our #doctors deal with us on a case by case basis..It isn’t quite like a cough or a sore throat, where u go to the pharmacy to get the same prescription as every1 else.": buff.ly/jYCSGKK #advice #communication
Advice That Could, Quite Literally, Kill (Unsolicited advice when you live with chronic illness)
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A Chronic Voice @achronicvoice.com · 16/09/2026
"I have also started to care less about how others perceive me & realise that whatever qualities I have are #strengths ..If the boring noun ‘ #endurance ’ describes me, then I will use it to maximum effect.": buff.ly/Lrwa6tB #ChronicPain #acceptance #disability #SelfAcceptance #SelfWorth #BeKind
Kick Ass With Kindness, and a Sweet Cherry on Top. Read the post on the blog — A Chronic Voice .com
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A Chronic Voice @achronicvoice.com · 16/09/2026
"I've started a little late afternoon #walk #ritual with my #dad. It's been quite pleasant & a nice break, otherwise I tend to work nonstop; I admit to being a #productivity -based person, which can be #unhealthy in extreme measures.": buff.ly/9jmJZCI #SelfCare #ChronicallyIll #spoonie #unknowns
To Live with Chronic Illness is to Learn to Live with Maybes
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A Chronic Voice @achronicvoice.com · 16/09/2026
"It can be easy to #overthink when you're in the throes of a severe #PainFlare ..u might feel like u r a burden to others, engage in #negative #SelfTalk, or reinforce defeating thoughts. What are your strategies to deal with such rumination?": buff.ly/FXLXYLZ #ChronicPain #ChronicIllness #NEisVoid
September Prompts: Asking, Overthinking, Humbling, Valuing, and Reclaiming. Visit: A Chronic Voice .com
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A Chronic Voice @achronicvoice.com · 15/09/2026
"I stumbled upon these gorgeous, intricate 3D #wooden #puzzles and was blown away. Some of them play #music, too!..No batteries are required either, as it runs on #gears & use mortise and tenon joint structure, and precise laser cutting.": buff.ly/hP5dKuf #ChronicIllness #hobbies #crafts
Hobbies, Arts and Crafts — Fun things to do while recovering from major knee surgery
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A Chronic Voice @achronicvoice.com · 15/09/2026
“As I grew older, people around me slowed down to a level where I could keep up with. Superficial interactions were also pared down as we all grew a little more comfortable in our own skin.”: buff.ly/Hw2VgrP #identity #spoonie #ChronicIllness #DisabledPeople #InvisibleIllness #ChronicPain
A Page From a Sick Girl’s Diary: Sometimes I Wish I was an Old Person. Read on a chronic voice .com
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