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Vicky van der Togt

@vickyvdtogt.bsky.social
1.7K followers 152 following 156 posts

Facilitator | Researcher | Advocate

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Reposted by Vicky van der Togt
The Guardian @theguardian.com · 29/06/2026
‘We’re up against forces that have all the money in the world’: Erin Brockovich on her battle against AI datacentres
theguardian.com
‘We’re up against forces that have all the money in the world’: Erin Brockovich on her battle against AI datacentres
In 1993, she squeezed a $333m settlement from a Californian energy company in a scandal over contaminated water. Three decades later, she has a new target in her sights – and it’s global
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Vicky van der Togt @vickyvdtogt.bsky.social · 26/06/2026
En dat was maar goed ook, gezien de hoeveelheid kinderen met Long Covid.
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Vicky van der Togt @vickyvdtogt.bsky.social · 26/06/2026
Nieuw artikel: Nederland verdient een betere corona-enquête Geschreven door Mick Blok en mij www.frontaalnaakt.nl/archives/ned...
frontaalnaakt.nl
Nederland verdient een betere corona-enquête - Frontaal Naakt
Michael Blok en Vicky van der Togt De Parlementaire Enquêtecommissie Corona is geen diepe en brede waarheidsvinding over de moeilijkste periode in ons land sinds de oorlog. Michael Blok en Vicky van d...
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Reposted by Vicky van der Togt
The Guardian @theguardian.com · 06/05/2026
World’s most powerful are suing media outlets before stories are even published, says editor
theguardian.com
World’s most powerful are suing media outlets before stories are even published, says editor
Editor-in-chief of Wall Street Journal says those with deep pockets launching legal challenges as a PR strategy Powerful figures are increasingly suing media outlets before they have even published a story, the editor of the Wall Street Journal has said. Emma Tucker, whose title is being sued by Donald Trump over its reporting of his relationship with the late child sex offender Jeffrey Epstein, said the act of reporting itself was now under threat from the use of “lawfare”. Continue reading...
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Vicky van der Togt @vickyvdtogt.bsky.social · 04/05/2026
Hihi, no worries, ik snapte 'em! Maar ik geef ook gewoon eerlijk toe dat het allemaal een tikje gênant is 😅 I mean, look at what we've got going for us
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Vicky van der Togt @vickyvdtogt.bsky.social · 04/05/2026
Hahahaha, hey, I'm human 🫣 Ik heb mijn lesje ondertussen geleerd en ben nu happy single and thriving 💫
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Vicky van der Togt @vickyvdtogt.bsky.social · 04/05/2026
Oh boy, same 🤭
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Vicky van der Togt @vickyvdtogt.bsky.social · 02/05/2026
Stop spreading lies.
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Reposted by Vicky van der Togt
The Washington Post @washingtonpost.com · 22/04/2026
A report showing the efficacy of the covid-19 vaccine that was previously delayed by the head of the CDC has been blocked from being published in the agency’s flagship scientific journal, according to people familiar with the decision.
washingtonpost.com
CDC won’t publish report showing covid shots cut likelihood of hospital visits
The report, which had cleared the agency’s scientific-review process, had been delayed. It now won’t be published at all, people familiar with the decision told The Post.
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Reposted by Vicky van der Togt
Dez Fenton @butisitart.bsky.social · 22/03/2026
You know how in a library no one’s trying to sell you anything? That’s how the internet was.
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Reposted by Vicky van der Togt
Jeff Sharlet @jeffsharlet.bsky.social · 21/02/2026
NH state house passes "CHARLIE Act," which bans teaching, I kid you not, "critical consciousness" & "prohibited world-views," such as that queer people exist, or that slavery involved race, or, implicitly, that the Nazis murdered Jews based on identity. newhampshirebulletin.com/2026/02/19/h...
newhampshirebulletin.com
House passes bill banning ‘leftist indoctrination’ and LGBTQ+ teaching in public schools • New Hampshire Bulletin
New Hampshire House Republicans are moving forward with a new attempt to regulate teaching on race, history, and LGTBQ+ issues in public schools. On Thursday, the chamber passed a bill that would ban ...
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Reposted by Vicky van der Togt
Democracy Now! @democracynow.org · 20/02/2026
Donald Trump, now chairing a so-called Board of Peace, has offered a dystopian vision for Gaza that leaves Palestinians under permanent Israeli occupation. www.democracynow.org/2026/2/20/trum…
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Reposted by Vicky van der Togt
Kirsten Verdel @locuta.bsky.social · 21/01/2026
Kijk deze speech! Ik weet het, niemand heeft tijd, maar kijk dit. Dit is waar het nu over gaat in de wereld.
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Vicky van der Togt @vickyvdtogt.bsky.social · 31/10/2025
With this newest edition, the diary is now available in English, Dutch, Spanish, German, and French! You can order your copy here: ddxpublishing.com/the-long-cov...
ddxpublishing.com
DDx Publishing - The Long Covid Symptom Diary
> Click for all languages The Long Covid Symptom Diary DDx Publishing is delighted to present the Long Covid Symptom Diary, a disease tracking notebook to help patients track all aspects of their dise...
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Vicky van der Togt @vickyvdtogt.bsky.social · 31/10/2025
This week, the Long Covid Symptom Diary was published in French, with the help of @longcovidbelgium.bsky.social The French version of the diary, titled 'Journal de bord des Symptômes du Covid Long' is now available in all Amazon stores worldwide.
An image showing the cover of Journal de bord des Symptômes du Covid Long in the center, with examples of the symptom tracking pages in French on either side. On the top of the image are 2 circles, one with the DDx Publishing logo and one with the Long Covid Belgium logo. At the there are multiple hands in blue and green visible, of which one is holding a Belgian flag.
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Vicky van der Togt @vickyvdtogt.bsky.social · 21/07/2025
I recently discussed my book, the Long Covid Symptom Diary, with Gez Medinger, for his educative, long-running YouTube series on everything #LongCovid. 🎦 Video: Why Old School Is Best - The Long Covid Symptom Diary Watch it here: youtu.be/VCkh1WRiaAk?...
youtu.be
Why Old School is Best | The Long Covid Symptom Diary
YouTube video by Gez Medinger
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Reposted by Vicky van der Togt
Prof Danny Altmann @daltmann.bsky.social · 19/06/2025
www.theguardian.com/society/2025... Ondine did such a huge job to get recognition for all with Long Covid👇
theguardian.com
Ondine Sherwood obituary
Other lives: Founder of a group campaigning for the recognition of Long Covid
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Vicky van der Togt @vickyvdtogt.bsky.social · 11/04/2025
Love to see all the accessibility aspects incorporated into the event! Well done 👏
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Reposted by Vicky van der Togt
Research-Aid Networks @researchaidnet.bsky.social · 07/04/2025
This April, the world has one more chance to finalize a pandemic accord that could shape global health security for decades. But we can’t just plan for a next pandemic. We must also reckon with this one. But recovery is still missing from the draft accord. 🧵
telegraph.co.uk
Why we need a pandemic treaty now
The consequences of failing to strike a deal extend well beyond how the world will grapple with health emergencies
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Vicky van der Togt @vickyvdtogt.bsky.social · 01/04/2025
Navigating the current political situation in the United States while working remotely for a US-based research-focused organization from the Netherlands is a bit of a nightmare, to put it mildly.. 👀
A screenshot of a message om the Leiden University website which states: Researchers advised not to respond to US questionnaire
19 March 2025

Researchers who have received a questionnaire containing political questions from the United States Geological Survey (USGS) or other American government funders such as NIH or ARPA are advised not to respond.

An email with 36 intrusive questions has been received by researchers from organisations including Wageningen University & Research (WUR). Various media have reported on this recently.
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Vicky van der Togt @vickyvdtogt.bsky.social · 30/03/2025
I'm incredibly grateful for the opportunity to speak on these topics, and look forward to being able to do this more in the future, and hopefully, work towards a situation where ethical and effective PPI becomes the standard in research.
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Vicky van der Togt @vickyvdtogt.bsky.social · 30/03/2025
I spoke about what meaningful inclusion looks like to me, how accessibility can be embedded in every stage of the research process, and how centering patient and community voices can lead to better research.
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Vicky van der Togt @vickyvdtogt.bsky.social · 30/03/2025
I shared part of my journey over the years, from navigating Long Covid as a patient, to national and international advocacy, to building community-informed research initiatives.
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Vicky van der Togt @vickyvdtogt.bsky.social · 30/03/2025
Last Thursday, I gave a presentation for the Engagement & Inclusion focal area at CWTS | Leiden University about Patient and Public Involvement (PPI) in research, and the topic of accessibility in research overall.
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Reposted by Vicky van der Togt
Vicky van der Togt @vickyvdtogt.bsky.social · 15/03/2025
As mentioned before, the Long Covid Symptom Diary is created by and for patients, and this includes the translations of the book. I was happy to work with Long Covid patient and long-term advocate Elizabeth Semper (ACPE) to create this Spanish version of the diary.
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Reposted by Vicky van der Togt
Vicky van der Togt @vickyvdtogt.bsky.social · 15/03/2025
🫴 For every Spanish edition of the diary sold, €1 will be donated to Long Covid associations supporting Spanish-speaking communities.
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Vicky van der Togt @vickyvdtogt.bsky.social · 15/03/2025
I was fortunate enough to recover after 2 years of struggling with the disease, but most are not so lucky. Just like in 2020, patients around the world are still fighting for recognition, research, and rehabilitation. Please, support your local or national Long Covid association 🙏
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Vicky van der Togt @vickyvdtogt.bsky.social · 15/03/2025
On this #LongCovidAwarenessDay, I stand in solidarity with all Long Covid patients, and those who are working tirelessly to put a spotlight on this debilitating illness.
A photo of a close up of my upper body, showing a Long Covid Awareness pin pinned to my (faux) leather jacket. The pin reads 'Long covid sos'
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Vicky van der Togt @vickyvdtogt.bsky.social · 15/03/2025
🫴 De cada edición en Español vendida del diario, 1€ será donado a asociaciones en apoyo a las comunidades hispanoparlantes. La versión española de Diario de Síntomas de Covid Persistente, ya está disponible en Amazon, en todas las regiones del mundo. Consigue el tuyo ahora 👇
ddxpublishing.com
DDx Publishing - The Long Covid Symptom Diary
>> Scroll down for other languages The Long Covid Symptom Diary DDx Publishing is delighted to present the Long Covid Symptom Diary, a disease tracking notebook to help patients track all aspects of t...
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Vicky van der Togt @vickyvdtogt.bsky.social · 15/03/2025
Como ya mencionamos, el Diario de Síntomas de Covid Persistente está creado por y para pacientes, y esto incluye las traducciones del libro. Me complace haber trabajado con Elizabeth Semper (ACPE), paciente de Covid Persistente y activista desde 2020, para crear esta versión en español del diario.
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Vicky van der Togt @vickyvdtogt.bsky.social · 15/03/2025
En este #LongCovidAwarenessDay, me complace anunciar la publicación de la versión en español de The Long Covid Symptom Diary: Diario de Síntomas de #CovidPersistente 🇪🇸
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Vicky van der Togt @vickyvdtogt.bsky.social · 15/03/2025
The Spanish version of the diary, Diario de Síntomas de Covid Persistente, is now available in all Amazon territories worldwide. Get yours now: ddxpublishing.com/the-long-cov...
ddxpublishing.com
DDx Publishing - The Long Covid Symptom Diary
>> Scroll down for other languages The Long Covid Symptom Diary DDx Publishing is delighted to present the Long Covid Symptom Diary, a disease tracking notebook to help patients track all aspects of t...
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Vicky van der Togt @vickyvdtogt.bsky.social · 15/03/2025
🫴 For every Spanish edition of the diary sold, €1 will be donated to Long Covid associations supporting Spanish-speaking communities.
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Vicky van der Togt @vickyvdtogt.bsky.social · 15/03/2025
As mentioned before, the Long Covid Symptom Diary is created by and for patients, and this includes the translations of the book. I was happy to work with Long Covid patient and long-term advocate Elizabeth Semper (ACPE) to create this Spanish version of the diary.
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Vicky van der Togt @vickyvdtogt.bsky.social · 15/03/2025
On this #LongCovidAwarenessDay, we are excited to announce the publication of the Spanish version of The Long Covid Diary, Diario de Síntomas de #CovidPersistente 🇪🇸
An image of a hand holding the Spanish version of the book, against a beige background. The title of the book reads 'Diario de Síntomas de Covid Persistente'
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Vicky van der Togt @vickyvdtogt.bsky.social · 15/03/2025
As mentioned before, the Long Covid Symptom Diary is created by and for patients, and this includes the translations of the book. I was happy to work with Long Covid patient and long-term advocate Elizabeth Semper (ACPE) to create this Spanish version of the diary.
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Vicky van der Togt @vickyvdtogt.bsky.social · 12/03/2025
She was a true powerhouse of a woman, with a heart of gold, and a mind as sharp as they come. The Long Covid community lost a true champion.. 💔 My heart is with all her friends, family, the @longcovidsos.bsky.social team, and all who knew and loved here.
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Vicky van der Togt @vickyvdtogt.bsky.social · 12/03/2025
Ondine Sherwood was one the co-founders of Long Covid SOS, and a close partner and friend of mine. The world lost one of the most beautiful, loving, inspiring, and impactful people I ever had the pleasure of meeting.
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Vicky van der Togt @vickyvdtogt.bsky.social · 12/03/2025
Due to the passing of my dear friend Ondine, I’ve decided to cancel my participation in the 'Confronting Injustice Through Open Science' conference. I was looking forward to speaking at the conference, but right now, taking the time to grieve with loved ones is more important 💔
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Reposted by Vicky van der Togt
Long Covid SOS @longcovidsos.bsky.social · 12/03/2025
We are heartbroken to share the loss of our co-founder, CEO, and beloved friend, Ondine, who passed away on Tuesday 11th March. Longcovidsos.org/post/ondine-sherwood
A black background with centered white text. The heading reads, “In Honour of Ondine Sherwood.” The message states that Long Covid SOS is heartbroken to share the loss of their co-founder, CEO, and beloved friend, Ondine, who passed away on Tuesday, 11th March. It expresses love and condolences to her family. A small horizontal line is placed at the bottom.A black background with centered white text. The message describes Ondine as the driving force and heartbeat of the Long Covid SOS team, a dear friend, and a profound loss to the community. It expresses devastation at her passing but also a commitment to continuing her legacy. The final line states, “We will miss her every day.” A small horizontal line is placed at the bottom.
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Vicky van der Togt @vickyvdtogt.bsky.social · 10/03/2025
Are you looking for a tool to better keep track of different aspects of your disease? You can order the Long Covid Symptom Diary here:
ddxpublishing.com
DDx Publishing - The Long Covid Symptom Diary
>> Scroll down for other languages The Long Covid Symptom Diary DDx Publishing is delighted to present the Long Covid Symptom Diary, a disease tracking notebook to help patients track all aspects of t...
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Vicky van der Togt @vickyvdtogt.bsky.social · 10/03/2025
Having this data in a clear overview can help patients get more clarity on what works, what doesn’t, and how different treatments interact. It also provides a valuable record to share with doctors, which can lead to better care decisions.
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Vicky van der Togt @vickyvdtogt.bsky.social · 10/03/2025
The #LongCovid Symptom Diary was created to support patients in tracking all aspects of their disease, and this includes keeping track of the use of medication, supplements, and treatments.
A photo of a page of the symptom diary that reads 'medication list', with different lines that can be filled out, such as 'name + type of medication, start date and stop date, the dose and the effects.
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Vicky van der Togt @vickyvdtogt.bsky.social · 10/03/2025
You can register for the event here: www.eventbrite.co.uk/e/tickets-co...
eventbrite.co.uk
Confronting injustice through Open Science
Centering justice, equity, and decolonial approaches in research.
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Vicky van der Togt @vickyvdtogt.bsky.social · 10/03/2025
Will you join us at the 'Confronting Injustice Through Open Science' conference this Thursday? You can either join in person (free) or online! I'll be speaking about my approach to doing research on the panel 'How to place marginalized forms of knowledge production in the center'.
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Reposted by Vicky van der Togt
Vicky van der Togt @vickyvdtogt.bsky.social · 01/03/2025
For years, I have worked to improve care, research, and support for people with Long Covid. Now, I am introducing a project that brings all of this work together into a practical tool: The Long Covid Symptom Diary
ddxpublishing.com
DDx Publishing - The Long Covid Symptom Diary
>> Scroll down for other languages >> Scroll down for other languages The Long Covid Symptom Diary DDx Publishing is delighted to present the Long Covid Symptom Diary, a disease tracking notebook to h...
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Vicky van der Togt @vickyvdtogt.bsky.social · 01/03/2025
Read more about the Long Covid Symptom Diary:
ddxpublishing.com
DDx Publishing - The Long Covid Symptom Diary
>> Scroll down for other languages >> Scroll down for other languages The Long Covid Symptom Diary DDx Publishing is delighted to present the Long Covid Symptom Diary, a disease tracking notebook to h...
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Vicky van der Togt @vickyvdtogt.bsky.social · 01/03/2025
This easy-to-use notebook is designed to help patients track their symptoms, communicate more effectively with doctors, and contribute to a better understanding of the disease.
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Vicky van der Togt @vickyvdtogt.bsky.social · 01/03/2025
For years, I have worked to improve care, research, and support for people with Long Covid. Now, I am introducing a project that brings all of this work together into a practical tool: The Long Covid Symptom Diary
ddxpublishing.com
DDx Publishing - The Long Covid Symptom Diary
>> Scroll down for other languages >> Scroll down for other languages The Long Covid Symptom Diary DDx Publishing is delighted to present the Long Covid Symptom Diary, a disease tracking notebook to h...
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Reposted by Vicky van der Togt
Vicky van der Togt @vickyvdtogt.bsky.social · 26/02/2025
I’m looking forward to sharing my perspective on what needs to change and learning from others working in this space. If you’re interested in these topics, I’d love for you to join. The event is free to attend, both in person at Vrije Universiteit Amsterdam (@vuamsterdam.bsky.social) and online.
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