iiinova — where your digital self keeps evolving

Tracy @tracyme.bsky.social · 23/05/2025

A new charity (UK based) has just been launched by my son to help SEND children move into career pathways after school. It would be amazing and truly appreciated if you could contribute in any way or share this link to help it become a success. www.instagram.com/see_me_chari... gofund.me/cdee6602

instagram.com

Welcome back to Instagram. Sign in to check out what your friends, family & interests have been capturing & sharing around the world.

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Tracy @tracyme.bsky.social · 16/05/2025

Thank you for such a wonderfully narrated and articulate response and for sharing your personal story. I had a similar response to my first covid jab. The following day I felt so healthy, I thought the jab had caused a spontaneous recovery. It only lasted 24 hours but it was a spectacular feeling.

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Tracy @tracyme.bsky.social · 06/04/2025

The Government is planning “catastrophic” cuts to benefits that experts say will force disabled people into poverty, and even those with extreme disabilities will lose money. Our social safety net isn’t up for grabs: add your name now. 38d.gs/NoCruelBenef...

38d.gs

NO cruel cuts to benefits

The Government is planning “catastrophic” cuts that experts say will force disabled people into poverty. Don’t think that’s right? Add your name now.

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It's ME(Jaime) @exceedhergrasp1.bsky.social · 05/02/2025

A letter stating that all clubs in the army designed by any demographic that is not white and Christian have been forbidden in the US Army.

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Binita Kane @binitakane.bsky.social · 06/02/2025

The amazing @safedavid3.bsky.social is on BSky! I wish he was the bearer of better news for his first post. ‘COVID Inquiry won’t rule the Earth is flat as a couple of people still maintain that the Earth is flat’. @trishgreenhalgh.bsky.social

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The Fighting Liberal Texan🌈🌊💙🦋Congress Switchboard 202-224-3121 @fightingliberal.bsky.social · 12/01/2025

If you live in the Los Angeles area and need assistance from FEMA Here is link to FEMA If you have insurance, file a claim with your insurance company. Even if you have insurance, from past experience, FEMA may provide $750 for immediate assistance. 1-800-621-3362 👇👇👇 www.fema.gov/disaster/4856

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Wanda Sykes @iamwandasykes.bsky.social · 13/01/2025

Please consider supporting Best Friends Animal Society, their emergency response fund will be used exclusively to support lifesaving work in the Los Angeles area. To donate, please go to www.justgiving.com/campaign/la-... Or sign up to volunteer at bfas.io/VLA.

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Malena-PRO-CHOICE 🌊 🟦🟧Fighting Tyranny! @malena.bsky.social · 12/01/2025

My daughter's very close friend in Los Angeles lost his home & belongings in the fire. He needs professional work attire & is staying near Westwood.. His sizes are 33/15 1/2 shirt 34/29 pants and a 40 regular jacket. LMK if you have extras or know places where he could find donations like this.

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Bateman Horne Center @batemanhornecenter.bsky.social · 10/01/2025

Check out The Basics: Orthostatic Intolerance with Clayton Powers, DPT! Learn about OI, its symptoms, and tips for pacing upright activities. Watch now: bit.ly/3W9TzNG #OrthostaticIntolerance #BatemanHorneCenter #ChronicIllness #PatientEducation

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Bateman Horne Center @batemanhornecenter.bsky.social · 07/01/2025

🌟 BHC January Outreach Events are live! Join us for support groups & Lunch & Learns—topics & links are now available! 📅 Register: batemanhornecenter.org/events ✉️ Subscribe for updates: batemanhornecenter.org/outreach/newsletter #MECFS #Fibromyalgia #LongCovid #BreakTheIsolation

Shows 3 events for January. January 14 Support Group with the image of a man sitting on his couch looking at a laptop with a notepad in his hands. January 16 Lunch & Learn with the image of a man at a desk looking at a laptop with food in front of him. January 21 Support Group with the image of a black woman smiling and sitting on her couch, legs crossed with a laptop on her lap.

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Tracy @tracyme.bsky.social · 26/12/2024

Yes, it's triggered by different infections & also vaccine injury, operations etc & they all contribute to the type of symptoms we suffer from but chronic fatigue is not CFS. CFS is a condition & chronic fatigue is a symptom. They are not interchangeable.

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Tracy @tracyme.bsky.social · 25/12/2024

I said 'chronic fatigue' not 'Chronic Fatigue Syndrome'. Chronic Fatigue Syndrome is a terrible alternative name for ME whereas chronic fatigue is simply one symptom of many illnesses and conditions.

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George Takei @georgetakei.bsky.social · 22/12/2024

This sums it up, yes.

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Simone @phoenixme.bsky.social · 21/12/2024

Calling fellow MEeps! Emerge Australia, the national patient organisation for #mecfs and #longCOVID in Australia, recently joined Bsky, but the account is looking a bit sad with only 14 followers. Help me out by following the account! TIA! bsky.app/profile/emergeaustralia.bs…

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tern @1goodtern.bsky.social · 21/12/2024

Well, it's been the longest ever wait, but the switcheroo is flexing its muscles again. H69/V70+ sequences popping up in multiple countries. I've been wondering for a while whether it was inevitable, or whether BA.2.86 had somehow killed it off.

A growing curve of h69/v70+ covid sequences - at a very low level so far.

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The Canary @thecanaryuk.bsky.social · 20/12/2024

Judge keeps UNCONVICTED Palestine Action prisoner locked-up over Christmas Palestine Action activist Francesca Nadin has now been held, without being convicted, for almost six months, the equivalent of a one year sentence www.thecanary.co/uk/news/2024...

thecanary.co

Judge keeps UNCONVICTED Palestine Action prisoner locked-up over Christmas

Palestine Action Francesca Nadin has now been held, without being convicted, for almost six months, the equivalent of a one year sentence

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The Onion @theonion.com · 16/12/2024

‘No Way To Prevent This,’ Says Only Nation Where This Regularly Happens theonion.com/no-way-to-pr...

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God @thegodshow.com · 16/12/2024

Hey corporate media, Thou shalt not spend thousands of hours on one CEO’s shooting and only one hour on a classroom of children.

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Long Covid Families @longcovidfam.bsky.social · 16/12/2024

Kids with Long COVID face relentless fatigue that rest can’t fix, leading to high school absenteeism and missed academic potential. Families bear the burden as young patients struggle to keep up. – Dr. Kirti Sivakoti, University of Utah Health Read more: www.deseret.com/lifestyle/20...

deseret.com

Unpacking the impact: The lingering effects of COVID on children

Early research that suggested children face little risk from the coronavirus has been retracted. Studies say long-term risk is real.

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DecodeME @decodemestudy.bsky.social · 10/12/2024

This festive season, we’d like to encourage those with a loved one w/ME to gift an act of kindness. Ask what would be most helpful and comforting to them, what may seem small to you could be immensely helpful & meaningful to someone living with ME #DecodeME #RandomActsOfKindness

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Tracy @tracyme.bsky.social · 10/12/2024

I haven't done a gaming one but did some from the ME Association. I checked my email to see if I was mistaken but it was the pacing narrative study. I was able to leave & go back to it but my link was taking me back to the start so had to email in to fix it.

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Acyn @acyn.bsky.social · 09/12/2024

Biden: My administration is moving ahead on a 10-year plan to revive native languages. It's a vision that works with tribes to support teachers, schools, communities.. in order to save native language from disappearing. This matters. It's a part of our heritage.

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Tracy @tracyme.bsky.social · 10/12/2024

I remember I did the survey over a number of weeks or maybe months but can't remember a single question. I miss my memory so I hope I at least contributed something useful at the time.

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Tracy @tracyme.bsky.social · 09/12/2024

Thanks for sharing this. Just ordered it. Hope your earlier interaction doesn't mess up your results 🤞

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It's ME(Jaime) @exceedhergrasp1.bsky.social · 09/12/2024

Pass it along! UK only

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Tom Kindlon @tomkindlon.bsky.social · 09/12/2024

From Australia: "In this study we showed that the reduced expression of LILRB1 and LILRB2 alone discriminated a small pilot cohort of Long COVID PBMC samples from COVID recovered controls without overlap." #LongCovid #AusCovid19 #AusCovid #PASC

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Matt Oliver @sameo416.bsky.social · 09/12/2024

No need to do you own research when these experts have laid everything out. And why public health’s complete failure to understand and properly apply the precautionary principle sets us up for another pandemic failure. www.newwestrecord.ca/local-news/o...

newwestrecord.ca

Opinion: Gambling with bird flu is asking for trouble — and another pandemic

It's time for preventive action, four health experts write.

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Bilbo Yaga @bilboyaga.bsky.social · 07/12/2024

That feeling when you wake up from a nap and you don’t know who you are or what year it is or how the world works or how to communicate with other humans

Robin Williams in Jumanji, in the scene where he is freed from the board game and re-enters the world disheveled, shouting, and traumatized

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Brian Tyler Cohen @briantylercohen.bsky.social · 08/12/2024

Amid the backdrop that more than a dozen members of Trump's Cabinet are billionaires, a reminder that this is what happened to income inequality in this country once the tax rate for top earners was slashed after 1980. Trickle down does not work and top earners' priority is themselves.

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Neurologist Mom @neurologistmom.bsky.social · 06/12/2024

📌 Excellent resource alert for #ME/CFS and severe #LongCOVID patients from Bateman Horne Center, supervised by Lucinda Bateman @advocate4me.bsky.social ! Download The ME/CFS Crash Survival Guide for free from the link below. It’s a 49-page manual. batemanhornecenter.org/education/me...

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Tracy @tracyme.bsky.social · 06/12/2024

Thank you for sharing. I'm trying to put a package together for my husband to refer to when I'm too ill so this should make it much easier for me.

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Adam @abrokenbattery.bsky.social · 06/12/2024

"NHS to review ME services after death of Maeve Boothby O’Neill: Health minister and Nice commit to work to improve patient outcomes after landmark inquest" (The Times): www.thetimes.com/uk/healthcar...

thetimes.com

NHS to review ME services after death of Maeve Boothby O’Neill

Health minister and Nice commit to work to improve patient outcomes after landmark inquest

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Tracy @tracyme.bsky.social · 06/12/2024

I don't mind the slight delay as long as it results in a better plan. When they said winter they meant up to February 25 so it's only a few more weeks at most. I just hope the delay is for due diligence to provide us with something close to perfect.

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Tracy @tracyme.bsky.social · 06/12/2024

Hopefully the final NHS e-learning package will be a hug improvement on the versions we've seen recently.

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