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Tracy

@tracyme.bsky.social
546 followers 639 following 95 posts

Neurodiverse socialist. Love history, science, nature and creativity. Medically retired biomedical research associate with severe ME

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Tracy @tracyme.bsky.social · 23/07/2025
www.independent.co.uk/life-style/h...
independent.co.uk
I have ME. Here’s what I wish people knew about living with it
Tracy Meggitt reveals how her 2018 ME diagnosis impacts her life
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Tracy @tracyme.bsky.social · 14/06/2025
www.thecanary.co/uk/news/2025...
thecanary.co
A new SEND-focused charity is launching to empower disabled people and break down barriers
See-ME - standing for SEND, Empowerment and Equity via Mentorship and Employment - plans to act on systemic access issues
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Tracy @tracyme.bsky.social · 23/05/2025
A new charity (UK based) has just been launched by my son to help SEND children move into career pathways after school. It would be amazing and truly appreciated if you could contribute in any way or share this link to help it become a success. www.instagram.com/see_me_chari... gofund.me/cdee6602
instagram.com
Login • Instagram
Welcome back to Instagram. Sign in to check out what your friends, family & interests have been capturing & sharing around the world.
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Tracy @tracyme.bsky.social · 01/05/2025
This cause is close to my heart - please sign: you.38degrees.org.uk/petitions/no...
you.38degrees.org.uk
Don't allow Trump's Turnberry golf course to host The Open Championship
The Open Championship must not give in to the UK government's lobbying and allow Donald Trump to host one of the world's biggest, oldest and respected golf tournaments at any of the golf courses he ow...
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Tracy @tracyme.bsky.social · 22/04/2025
organise.network/actions/peti...
organise.network
Organise: Get heard at work
Over 1 million workers are using Organise to let off steam and take action together. Join for free:
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Tracy @tracyme.bsky.social · 08/04/2025
petition.parliament.uk/petitions/72...
petition.parliament.uk
Petition: Protect Disabled people who cannot work from planned cuts to benefits
We want the Government to halt all planned benefit cuts for disabled people unable to work. Instead of reducing benefits, we want them to rise in line with inflation. We want support, not hardship and...
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Tracy @tracyme.bsky.social · 06/04/2025
The Government is planning “catastrophic” cuts to benefits that experts say will force disabled people into poverty, and even those with extreme disabilities will lose money. Our social safety net isn’t up for grabs: add your name now. 38d.gs/NoCruelBenef...
38d.gs
NO cruel cuts to benefits
The Government is planning “catastrophic” cuts that experts say will force disabled people into poverty. Don’t think that’s right? Add your name now.
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Tracy @tracyme.bsky.social · 31/03/2025
A powerful piece by a Palestinian journalist. The English Translation is in the comment. www.thecanary.co/global/world...
thecanary.co
عيد غزة؛ بلا أجواء وافتقاد للشهداء
عيد غزة؛ بلا أجواء وافتقاد للشهداء from Canary on 31 March 2025
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Tracy @tracyme.bsky.social · 12/03/2025
Very moving video #FundThePlan
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Tracy @tracyme.bsky.social · 09/03/2025
youtu.be/pvT3aQjLxdE?...
youtu.be
"Puppets on a Kremlin String?" - Marsh Family adaptation of Coldplay's "Viva la Vida" on Trump/Vance
YouTube video by Marsh Family
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It's ME(Jaime) @exceedhergrasp1.bsky.social · 05/02/2025
A letter stating that all clubs in the army designed by any demographic that is not white and Christian have been forbidden in the US Army.
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Binita Kane @binitakane.bsky.social · 06/02/2025
The amazing @safedavid3.bsky.social is on BSky! I wish he was the bearer of better news for his first post. ‘COVID Inquiry won’t rule the Earth is flat as a couple of people still maintain that the Earth is flat’. @trishgreenhalgh.bsky.social
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The Fighting Liberal Texan🌈🌊💙🦋Congress Switchboard 202-224-3121 @fightingliberal.bsky.social · 12/01/2025
If you live in the Los Angeles area and need assistance from FEMA Here is link to FEMA If you have insurance, file a claim with your insurance company. Even if you have insurance, from past experience, FEMA may provide $750 for immediate assistance. 1-800-621-3362 👇👇👇 www.fema.gov/disaster/4856
If you live in the Los Angeles area and need assistance from FEMA

Here is link to FEMA

If you have insurance, file a claim with your insurance company.

Even if you have insurance, from past experience, FEMA may provide $750 for immediate assistance.

1-800-621-3362

👇👇👇
https://www.fema.gov/disaster/4856
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Wanda Sykes @iamwandasykes.bsky.social · 13/01/2025
Please consider supporting Best Friends Animal Society, their emergency response fund will be used exclusively to support lifesaving work in the Los Angeles area. ​To donate, please go to www.justgiving.com/campaign/la-... ​ Or sign up to volunteer at bfas.io/VLA.
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Malena-PRO-CHOICE 🌊 🟦🟧Fighting Tyranny! @malena.bsky.social · 12/01/2025
My daughter's very close friend in Los Angeles lost his home & belongings in the fire. He needs professional work attire & is staying near Westwood.. His sizes are 33/15 1/2 shirt 34/29 pants and a 40 regular jacket. LMK if you have extras or know places where he could find donations like this.
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Bateman Horne Center @batemanhornecenter.bsky.social · 10/01/2025
Check out The Basics: Orthostatic Intolerance with Clayton Powers, DPT! Learn about OI, its symptoms, and tips for pacing upright activities. Watch now: bit.ly/3W9TzNG #OrthostaticIntolerance #BatemanHorneCenter #ChronicIllness #PatientEducation
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Bateman Horne Center @batemanhornecenter.bsky.social · 07/01/2025
🌟 BHC January Outreach Events are live! Join us for support groups & Lunch & Learns—topics & links are now available! 📅 Register: batemanhornecenter.org/events ✉️ Subscribe for updates: batemanhornecenter.org/outreach/newsletter #MECFS #Fibromyalgia #LongCovid #BreakTheIsolation
Shows 3 events for January. January 14 Support Group with the image of a man sitting on his couch looking at a laptop with a notepad in his hands. January 16 Lunch & Learn with the image of a man at a desk looking at a laptop with food in front of him. January 21 Support Group with the image of a black woman smiling and sitting on her couch, legs crossed with a laptop on her lap.
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George Takei @georgetakei.bsky.social · 22/12/2024
This sums it up, yes.
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Simone @phoenixme.bsky.social · 21/12/2024
Calling fellow MEeps! Emerge Australia, the national patient organisation for #mecfs and #longCOVID in Australia, recently joined Bsky, but the account is looking a bit sad with only 14 followers. Help me out by following the account! TIA! bsky.app/profile/emergeaustralia.bs…
Emerge Australia logo: a stylised image of a battery lying on its side, with the words Emerge Australia inside
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tern @1goodtern.bsky.social · 21/12/2024
Well, it's been the longest ever wait, but the switcheroo is flexing its muscles again. H69/V70+ sequences popping up in multiple countries. I've been wondering for a while whether it was inevitable, or whether BA.2.86 had somehow killed it off.
A growing curve of h69/v70+ covid sequences - at a very low level so far.
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The Canary @thecanaryuk.bsky.social · 20/12/2024
Judge keeps UNCONVICTED Palestine Action prisoner locked-up over Christmas Palestine Action activist Francesca Nadin has now been held, without being convicted, for almost six months, the equivalent of a one year sentence www.thecanary.co/uk/news/2024...
thecanary.co
Judge keeps UNCONVICTED Palestine Action prisoner locked-up over Christmas
Palestine Action Francesca Nadin has now been held, without being convicted, for almost six months, the equivalent of a one year sentence
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The Onion @theonion.com · 16/12/2024
‘No Way To Prevent This,’ Says Only Nation Where This Regularly Happens theonion.com/no-way-to-pr...
‘No Way To Prevent This,’ Says Only Nation Where This Regularly Happens
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Binita Kane @binitakane.bsky.social · 16/12/2024
Beautifully written by @drjogreer.bsky.social a Mum caring for a daughter with severe ME.
theredtreeandme.substack.com
'The Red Tree' and M.E. - One leaf at a time
Images used with kind permission from Shaun Tan
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God @thegodshow.com · 16/12/2024
Hey corporate media, Thou shalt not spend thousands of hours on one CEO’s shooting and only one hour on a classroom of children.
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Long Covid Families @longcovidfam.bsky.social · 16/12/2024
Kids with Long COVID face relentless fatigue that rest can’t fix, leading to high school absenteeism and missed academic potential. Families bear the burden as young patients struggle to keep up. – Dr. Kirti Sivakoti, University of Utah Health Read more: www.deseret.com/lifestyle/20...
deseret.com
Unpacking the impact: The lingering effects of COVID on children
Early research that suggested children face little risk from the coronavirus has been retracted. Studies say long-term risk is real.
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DecodeME @decodemestudy.bsky.social · 10/12/2024
This festive season, we’d like to encourage those with a loved one w/ME to gift an act of kindness. Ask what would be most helpful and comforting to them, what may seem small to you could be immensely helpful & meaningful to someone living with ME #DecodeME #RandomActsOfKindness
Graphic with yellowy beige background. At the top left there is the DecodeME logo, at the top right are dark blue and green baubles. At the top centre it says ‘Supporting someone with ME’. Beneath this it says ‘Remember to check in on your friend/ family member with ME this festive season and see what would be most helpful and comforting for them.’ Underneath this it lists suggestions to do this, including: Go shopping, call or text them to let them know you’re here for them, cook them a warming meal, keep including them in your plans even if they have to decline most of the time and sit with them quietly.
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Billy Hanlon @bhanlon15.bsky.social · 09/12/2024
The Sick Times: '“It’s not an individual problem, it’s everyone’s”: Matt McGorry shares his experience with Long COVID' "...it’s been by far the hardest thing I’ve ever done." - Matt McGorry thesicktimes.org/2024/12/09/i...
thesicktimes.org
“It’s not an individual problem, it’s everyone’s”: Matt McGorry shares his experience with Long COVID - The Sick Times
This fall, activist and actor Matt McGorry disclosed on social media that he has Long COVID in an educational, two-part video series. In the videos, shared with over a million followers, McGorry talke...
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Acyn @acyn.bsky.social · 09/12/2024
Biden: My administration is moving ahead on a 10-year plan to revive native languages. It's a vision that works with tribes to support teachers, schools, communities.. in order to save native language from disappearing. This matters. It's a part of our heritage.
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María Richardson @diatoma.bsky.social · 10/12/2024
By the way, I've just signed this @mefoggydog.bsky.social petition: organise.network/s/0ddd1d522993 #MyalgicEncephalomyelitis #SevereME #ExposeMENow #pwME #GreatestMEdicalScandal
organise.network
Urgent Call for the Creation of an NHS Protocol for Severe Myalgic Encephalomyelitis (M.E.) - M.E. Foggy Dog Campaign
Add your name:
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It's ME(Jaime) @exceedhergrasp1.bsky.social · 09/12/2024
Pass it along! UK only
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Tom Kindlon @tomkindlon.bsky.social · 09/12/2024
From Australia: "In this study we showed that the reduced expression of LILRB1 and LILRB2 alone discriminated a small pilot cohort of Long COVID PBMC samples from COVID recovered controls without overlap." #LongCovid #AusCovid19 #AusCovid #PASC
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Matt Oliver @sameo416.bsky.social · 09/12/2024
No need to do you own research when these experts have laid everything out. And why public health’s complete failure to understand and properly apply the precautionary principle sets us up for another pandemic failure. www.newwestrecord.ca/local-news/o...
newwestrecord.ca
Opinion: Gambling with bird flu is asking for trouble — and another pandemic
It's time for preventive action, four health experts write.
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Bilbo Yaga @bilboyaga.bsky.social · 07/12/2024
That feeling when you wake up from a nap and you don’t know who you are or what year it is or how the world works or how to communicate with other humans
Robin Williams in Jumanji, in the scene where he is freed from the board game and re-enters the world disheveled, shouting, and traumatized
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Brian Tyler Cohen @briantylercohen.bsky.social · 08/12/2024
Amid the backdrop that more than a dozen members of Trump's Cabinet are billionaires, a reminder that this is what happened to income inequality in this country once the tax rate for top earners was slashed after 1980. Trickle down does not work and top earners' priority is themselves.
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Neurologist Mom @neurologistmom.bsky.social · 06/12/2024
📌 Excellent resource alert for #ME/CFS and severe #LongCOVID patients from Bateman Horne Center, supervised by Lucinda Bateman @advocate4me.bsky.social ! Download The ME/CFS Crash Survival Guide for free from the link below. It’s a 49-page manual. batemanhornecenter.org/education/me...
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Adam @abrokenbattery.bsky.social · 06/12/2024
"NHS to review ME services after death of Maeve Boothby O’Neill: Health minister and Nice commit to work to improve patient outcomes after landmark inquest" (The Times): www.thetimes.com/uk/healthcar...
thetimes.com
NHS to review ME services after death of Maeve Boothby O’Neill
Health minister and Nice commit to work to improve patient outcomes after landmark inquest
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The Lincoln Project @lincolnproject.us · 06/12/2024
Really looking out for the working class.
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Open Medicine Foundation (OMF) @openmedf.bsky.social · 05/12/2024
📣 OMF's StudyME Registry Has Over 11,000 Participants! 🎉 Will You Help Us Reach 15,000? Accelerate research for #MECFS and #LongCOVID through research participation. Join StudyME—a free, global recruitment tool—today 👉 ow.ly/Bhi350UlKlQ #pwME #pwLC #mecfs #longcovid
ow.ly
The OMF StudyME Registry
Help accelerate the cure for ME/CFS, Long COVID, and related diseases through research participation
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BrooklynDad_Defiant! @mmpadellan.bsky.social · 05/12/2024
Good morning and Happy Thursday to everyone who is determined to turn up the volume and EXPOSE all of the brutal, deadly consequences of abortion bans in America. They're not "pro-life." They're pro controlling women's bodies.
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Acyn @acyn.bsky.social · 04/12/2024
Tapper: You said you don't like all these anonymous accusations, and I should be able to interview these people. I'm saying, ok, shouldn't Hegseth release this woman from her NDA so that I can do what you suggested at the top of the interview, you wanted me to do? Scott: Absolutely not.
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María Richardson @diatoma.bsky.social · 04/12/2024
I’ve signed this petition both because my friends in the UK deserve accurate, caring, & strong representation & because misinformation from one of the few top ME orgs has negative repercussions for #pwME all around the world. Inviting all to read ⬇️ #MyalgicEncephalomyelitis #GreatestMEdicalScandal
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Paul Keeble ME/LC @paulkeeble.co.uk · 04/12/2024
Poor women is bedbound for nine years, finds a cyst in her brain, has to travel to Germany to get treatment as the NHS refuses it as risky, it cures her and the NHS still claims she didn't need it and it must be placebo. UK neurology has lost its way! www.bbc.co.uk/news/article...
bbc.co.uk
'Controversial brain surgery stopped my migraines'
A woman who defied mainstream advice to have risky brain surgery says her symptoms have gone.
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Tracy @tracyme.bsky.social · 04/12/2024
youtu.be/zTvU5XSGWXA?...
youtu.be
Ex-Tory minister admits UK should have sanctioned Israel
YouTube video by PoliticsJOE
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Carla Denyer @carladenyer.bsky.social · 03/12/2024
I was at an incredibly moving and upsetting session in the House of Commons today where MPs heard from a group of professionals including doctors, nurses and humanitarian organisers describing their first hand experience of the abhorrent situation in Gaza 🛢️ 1/...
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Led By Donkeys @ledbydonkeys.org · 04/12/2024
"And once you come to this conclusion you cannot remain silent." Location: Parliament Square, London (sound on) youtu.be/WMwqhdVV5as
youtu.be
Yes, it's a genocide
YouTube video by Led By Donkeys
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Brian Tyler Cohen @briantylercohen.bsky.social · 04/12/2024
Nothing says “lead the Pentagon” like mommy making phone calls for her very good boy.
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Brian Tyler Cohen @briantylercohen.bsky.social · 04/12/2024
I mean the abuse allegations literally came from his own mother but okay.
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OnTheHorizon @handle.invalid · 03/12/2024
Here's a list of them that I have found in my short time on the app 👍💩 bsky.app/profile/did:...
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