Reposted by @traceyburgess.bsky.socialHarriet Carroll: Long Covid Scientific Consultancy @angryhacademic.bsky.social · 05/10/2026In the paper, we argue that PEM is characteristic of and unique to ME, and is equivalent to PENE as defined by the ICC. Required to be prolonged, disproportionate, systemic, may be delayed, can cause lasting functional decline 1133
Reposted by @traceyburgess.bsky.socialHarriet Carroll: Long Covid Scientific Consultancy @angryhacademic.bsky.social · 05/10/2026Check out our conference poster on defining PEM: positivenutrition.ie/wp-content/u... Coauthors: @naomidharvey.bsky.social @ciarawrightphd.bsky.social @sunsopeningband.bsky.social Full paper currently in draft! 🧵positivenutrition.ie 5289
Reposted by @traceyburgess.bsky.socialThe Vertlartnic @thev.bsky.social · 06/10/2026If Chronic Illness Is Real, Why Don’t More Sexy People Have It? 29514
Reposted by @traceyburgess.bsky.socialThe Vertlartnic @thev.bsky.social · 7hThere’s No Need To Worry About Hospitals Closed By This Covid Wave Because Everyone Is Immune To Covid Now 09932
Reposted by @traceyburgess.bsky.socialGeorge Monbiot @georgemonbiot.bsky.social · 06/10/2026This is how we should see these magnificant animals, not hauled up on a boat or in fillets on a slab. We should no more catch or kill this rare and stunning megafauna than we should trap or kill tigers or whales. Here are some more of Rupert’s photos from yesterday, with his kind permission. 15839161
Reposted by @traceyburgess.bsky.socialGeorge Monbiot @georgemonbiot.bsky.social · 06/10/2026There aren't many days when you can kayak off Start Point, renowned for one of Britain's most dangerous tidal races. But yesterday the stars aligned, so I bunked off work. Delighted to see Rupert Kirkwood (the Lone Kayaker) out there. He took this picture of me +1. Before you ask: yes, it's real. 🧵 872074332
Reposted by @traceyburgess.bsky.socialThe Vertlartnic @thev.bsky.social · 05/10/2026The Eight Things You Can Pretend Aren’t True About American Covid 08516
Reposted by @traceyburgess.bsky.socialThe Vertlartnic @thev.bsky.social · 05/10/2026Is It Time To Stop Avoiding The Plague Like The Plague 016443
Reposted by @traceyburgess.bsky.socialAlem Matthees @alemmatthees.bsky.social · 03/10/2026(1/3) Perhaps what the GP wrote was lost in translation striving for balance? Of course exercise (beyond our capacity) is inherently dangerous, it is built into the definition of PEM. When improving, it is also far more useful to do hobbies or chores than a bland exercise in the name of exercise.theguardian.comSpecialist services are vital to help people with ME/CFS | LetterLetters: Readers respond to George Monbiot’s article about how those with myalgic encephalomyelitis, or chronic fatigue syndrome, have been failed by the health system 53710
Reposted by @traceyburgess.bsky.socialAlem Matthees @alemmatthees.bsky.social · 02/10/2026(3/3) This spin poisoned the well against critics of the #PACEtrial, so I had to address it in detail with the information tribunal that sided with my FOIA request. It was well received and they agreed the assessment of #MECFS activism in relation to the #PACEtrial was "grossly exaggerated" (p40).informationrights.decisions.tribunals.gov.uk 1248
Reposted by @traceyburgess.bsky.socialAlem Matthees @alemmatthees.bsky.social · 02/10/2026(1/3) @georgemonbiot.bsky.social is far more deserving of winning a prize for his journalism on the #MECFS scandal than whatever award was given to another journalist for literally just reporting a curated narrative handed to him by the Science Media Centre (UK) as part of their organised campaign.theguardian.comAbandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed | George MonbiotChanges in guidance and science seem to have little impact on millions of devastated lives. It’s a social crisis playing out behind closed doors, says Guardian columnist George Monbiot 14010
Reposted by @traceyburgess.bsky.socialGeorge Monbiot @georgemonbiot.bsky.social · 02/10/2026@davetuller1.bsky.social, a great champion of patients, interviewed me about the massive, ongoing scandal of the neglect, abuse and mistreatment of people with ME/CFS www.youtube.com/watch?v=Maae...youtube.comInterview with George Monbiot about Guardian column on ME/CFSYouTube video by David M Tuller 14287117
Reposted by @traceyburgess.bsky.socialGeorge Monbiot @georgemonbiot.bsky.social · 02/10/2026Keir Starmer wanted to be remembered as Prime Minister for building homes. Instead he will be remembered for his complicity in destroying them. #GazaGenocide 451439533
Reposted by @traceyburgess.bsky.socialTessa Munt MP 🔶 @tessamunt.bsky.social · 02/10/2026Thanks @thereforme.bsky.social! There must be serious review of the government’s inadequate response to #ME, with its cost to us all. Still considering best options to call for including @georgemonbiot.bsky.social proposed public inquiry, Select Committee Inquiry, a Czar or even referral to HSSIB. 59434
Reposted by @traceyburgess.bsky.socialThe Vertlartnic @thev.bsky.social · 28/09/2026Covid Infections Can’t Be Causing Long Term Health Problems, Because Look Over There At The Squirrel 226482
Reposted by @traceyburgess.bsky.socialThe Vertlartnic @thev.bsky.social · 28/09/2026For Decades Doctors Thought Post-Infection Syndromes Were Hysteria, Then Stress, Then Trauma, Before Finally Discovering They Were All In The Mind 314945
Reposted by @traceyburgess.bsky.socialThe Vertlartnic @thev.bsky.social · 30/09/2026Current Covid Wave Reaches The ‘Exciting Future Solutions For Rich People’ Stage 18126
Reposted by @traceyburgess.bsky.socialKelly @broadwaybabyto.bsky.social · 02/10/2026Men: “Jane Doe is lying! That’s why the Cornell 7 weren’t charged! Won’t you think of the reputations of the rapists?” Reality: Cornell lied. Not Jane Doe. They withheld crucial details of her story when they gave the information to police and prosecutors. They protected the men:nytimes.comStatement Written by Police in Cornell Assault Case Omitted Her Claim She Was RapedDocuments obtained by The New York Times show that the campus police at Cornell University sent a condensed statement to a prosecutor, who then declined to bring charges. 10379124
Reposted by @traceyburgess.bsky.socialNatasha Devon @natashadevon.bsky.social · 24/09/2026George will be coming on my show this weekend to discuss this very important article. 29437138
Reposted by @traceyburgess.bsky.socialLucibee @lucibee.bsky.social · 24/09/2026If folks need an impression of how dismal things are wrt treatment of ME and LC in the NHS, you just need to look at the services stocktake that was done in January 2025. There was "no data" for ME/CFS clinic referrals. 313859
Reposted by @traceyburgess.bsky.socialFrances Ryan @francesryan.bsky.social · 24/09/2026As I lay in bed with PEM, always grateful to my colleague @georgemonbiot.bsky.social for helping bring M.E. into mainstream attention. The way people with M.E. are ignored and actively harmed by medics who have been trusted to help them is a hidden scandal. www.theguardian.com/commentisfre...theguardian.comAbandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed | George MonbiotChanges in guidance and science seem to have little impact on millions of devastated lives. It’s a social crisis playing out behind closed doors, says Guardian columnist George Monbiot 719056
Reposted by @traceyburgess.bsky.socialAnil van der Zee @anilvanderzee.bsky.social · 24/09/2026Great rant by George Monbiot about the fact despite new guidelines patients with ME are still poorly treated in the UK. Unfortunately it doesn't seem be much better elsewhere such as the Netherlands... #pwme #myalgicE #millionsmissing #severeME #LongCovid #PAIS #IACItheguardian.comAbandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed | George MonbiotChanges in guidance and science seem to have little impact on millions of devastated lives. It’s a social crisis playing out behind closed doors, says Guardian columnist George Monbiot 0408
Reposted by @traceyburgess.bsky.socialThereForME @thereforme.bsky.social · 23/09/2026We're excited to share something we've been working on for a while. ThereForME is now a registered charity! 🥳 1/4 12811
Reposted by @traceyburgess.bsky.socialsibylle dahrendorf @sibylledahrendorf.bsky.social · 24/09/2026"We need to ask why so many patients have been abandoned, why discredited and dangerous treatments continue to be prescribed and why ignorance and neglect still dominate, in the health system and beyond. In other words, there has seldom been a stronger case for a public inquiry." 0189
Reposted by @traceyburgess.bsky.socialPZ @itsmepz.bsky.social · 24/09/2026Thank you George for using your platform to make people aware of the #GreatestMEdicalScandal It means a lot to #pwME ! 0341
Reposted by @traceyburgess.bsky.socialAdam @abrokenbattery.bsky.social · 24/09/2026Thanks, George, for another excellent article. Really appreciate you continuing to write about this and highlighting such a neglected issue. 0813
Reposted by @traceyburgess.bsky.socialCarole Bruce @cabruce.bsky.social · 24/09/2026Huge thanks for this. Factual, compassionate, incredibly disturbing. Thousands of ME patients will be sending you endless gratitude for this today. We have been seen. Let’s hope the people with the power to change things are, at last, moved to act urgently. 01087
Reposted by @traceyburgess.bsky.socialKaty B @katybrc.bsky.social · 24/09/2026Can't ever thank you enough for this piece & for being the most fantastic ally, so grateful to you for hearing us & for reporting on what's still happening to pwME with such clarity, accuracy & compassion. We'll be sharing it everywhere we possibly can. 11422
Reposted by @traceyburgess.bsky.socialGeorge Monbiot @georgemonbiot.bsky.social · 24/09/2026With great thanks to the hundreds of people who gave me their testimonies. If I hadn't said "stop" after a few hours, it might have been thousands. The sheer scale of this scandal is hard to get your head around. 2/2 3075893
Reposted by @traceyburgess.bsky.socialGeorge Monbiot @georgemonbiot.bsky.social · 24/09/2026Here's today's column on the astonishing, ongoing mistreatment of people with #ME/CFS. Please spread it far and wide: the only thing which can break the media's wall of indifference is seeing an article about the issue go viral. Thank you. 1/2 www.theguardian.com/commentisfre...theguardian.comAbandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed | George MonbiotChanges in guidance and science seem to have little impact on millions of devastated lives. It’s a social crisis playing out behind closed doors, says Guardian columnist George Monbiot 17925351729
traceyburgess.bsky.social @traceyburgess.bsky.social · 24/09/2026Abandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed | George Monbiot | The Guardian share.google/q4HWPqmCtNLQ...share.googleAbandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed | George MonbiotChanges in guidance and science seem to have little impact on millions of devastated lives. It’s a social crisis playing out behind closed doors, says Guardian columnist George Monbiot 020
Reposted by @traceyburgess.bsky.socialGeorge Monbiot @georgemonbiot.bsky.social · 21/09/2026Thanks so much everyone for a massive response. I've now had as many emails as I can cope with, so no more please - thank you. They paint a really grim and heatbreaking picture. The neglect and abuse of patients goes on and on. I hope to try to do the issue justice. #ME/CFS 28770201
Reposted by @traceyburgess.bsky.socialAlem Matthees @alemmatthees.bsky.social · 21/09/2026What about the possibility of #MECFS patients being given rephrased or tweaked GET in disguise e.g. pacing up? When the 2021 NICE guidelines were published, there was posturing from the Royal Colleges over what GET actually meant in practice and how it was delivered, because GET label became toxic. 2401
Reposted by @traceyburgess.bsky.socialGeorge Monbiot @georgemonbiot.bsky.social · 21/09/2026Intending to write another column about the treatment of #ME/CFS patients this week, pegged to new research findings on the biological basis. My question for sufferers: Are any of you still being offered inappropriate (psych/GET etc) "treatments"? Please email george at monbiot dot info. Thanks. 131711288
Reposted by @traceyburgess.bsky.socialAlem Matthees @alemmatthees.bsky.social · 17/09/2026I am going to have a go at social media. I do not know if it will be successful or if anyone will be interested. I would rather avoid the topic of #MECFS and focus on other interests, but it continues to destroy my life and if I can help raise awareness then perhaps the suffering is not for nothing. 2011618
Reposted by @traceyburgess.bsky.socialThe Vertlartnic @thev.bsky.social · 14/06/2026Experts Praise Public For Adapting To Constant Illness Without Asking Follow Up Questions 320666
Reposted by @traceyburgess.bsky.socialThe Vertlartnic @thev.bsky.social · 14/06/2026Instead Of Parroting Traditional Wellness Narratives, We Are Going To Parrot Traditional Illness-Denial Narratives 18215
Reposted by @traceyburgess.bsky.socialThe Vertlartnic @thev.bsky.social · 14/06/2026Experts Rule Out Mild Illness As Cause Of Severe Repercussions, Instead Blame That Time That You Didn't Get Sick 014134
Reposted by @traceyburgess.bsky.socialThe Vertlartnic @thev.bsky.social · 13/06/2026Hidden Fungus Network Below Our Feet Could Circle Earth 2.7 Trillion Times, Still Shorter Than Gap Between Long Covid Evidence And Public Understanding 113931
Reposted by @traceyburgess.bsky.socialvalebodi.bsky.social @valebodi.bsky.social · 13/06/2026People with #ME/CFS in Norway still suffer greatly, and their suffering is increased by the mistreatments of NAV and the health service. It is time for politicians and health institutions to see both the smoke and the ruins, writes psychology specialist and #pwME Frøydis Lilledalen.forskersonen.noSom ME-syk taler man sant gang på gang, men blir sjelden troddDEBATT: Hvor lenge skal svært syke mennesker bli sykere i møte med NAV og norsk helsevesen, skriver innsenderen? 172
Reposted by @traceyburgess.bsky.socialKTeaTalks @kttalks2.bsky.social · 13/06/2026What Ivanka & Jared are doing is worse than I thought they are destroying natural wetlands of Albania. The corruption is unpalatable. Ariel Brunner is fighting them tooth & nail and boy oh boy is he angry. As he should be. Ariel Brunner is Europe & Central Asia Director of BirdLife International.aljazeera.comI saw Kushner’s Albania resort up close — it is an environmental disasterThe damage at Vjosa-Narta is not fake news. Bulldozers are tearing into one of Europe’s most precious wetlands. 22773943136
Reposted by @traceyburgess.bsky.socialThe Vertlartnic @thev.bsky.social · 13/06/2026Researchers Find Long Covid More Common Than Willingness To Say Long Covid 117052
Reposted by @traceyburgess.bsky.socialBilly Hanlon @bhanlon15.bsky.social · 12/06/2026Daily Telegraph: 'POTS - the condition leaving Australians bedridden that doctors say medicine has missed' '...doctors say a little-known condition is emerging as one of Australia’s fastest-growing post-Covid health challenges' www.dailytelegraph.com.au/subscribe/ne...dailytelegraph.com.au 292
Reposted by @traceyburgess.bsky.socialThe Vertlartnic @thev.bsky.social · 13/06/2026Most People Do Not Have Long Covid, Just A Mysterious Illness Since Covid, Says Study 523970
Reposted by @traceyburgess.bsky.socialThe Vertlartnic @thev.bsky.social · 13/06/2026Long Covid Cases Hidden By Widespread Preference For Literally Any Other Diagnosis 733484
Reposted by @traceyburgess.bsky.socialMary Fernando M.D. 🇨🇦 @maryfernando.bsky.social · 12/06/2026About damn time: “This Scientific Consensus makes clear that climate policy can no longer ignore wildlife – not only for the sake of biodiversity, but for the future stability of our planet.” 🧪 oceanographicmagazine.com/news/wildlif...oceanographicmagazine.comWildlife belongs in climate policy, says breakthrough consensus - OceanographicScientists have endorsed a landmark consensus recognising wild animals as active participants in climate mitigation. 512288829
Reposted by @traceyburgess.bsky.socialBilly Hanlon @bhanlon15.bsky.social · 12/06/2026New Hampshire Bulletin: 'Miss Wheelchair New Hampshire hopes her crown can help others the same way it helped her' '..Ballard’s symptoms never seemed to go away. She has what doctors now understand to be long COVID...' newhampshirebulletin.com/2026/06/12/m...newhampshirebulletin.comMiss Wheelchair New Hampshire hopes her crown can help others the same way it helped her • New Hampshire BulletinToday, Nenia Ballard is 2026’s Miss Wheelchair New Hampshire, but her early days using the chair were filled with shame. 1155
Reposted by @traceyburgess.bsky.socialThe Vertlartnic @thev.bsky.social · 08/06/2026Covid Infection Has Not Affected My Brian 613829
Reposted by @traceyburgess.bsky.socialThe Vertlartnic @thev.bsky.social · 09/06/2026Why Are We Not Allowed To Promote Therapies That Don’t Work And Make People Worse 011823
Reposted by @traceyburgess.bsky.socialThe Vertlartnic @thev.bsky.social · 09/06/2026Are Bedbound Patients In Bed With Big Bed 17716