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Touretteshero

@touretteshero.bsky.social
771 followers 132 following 122 posts
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Touretteshero @touretteshero.bsky.social · 02/10/2026
So much chat about #SocialCare that presents this as only an issue for older people. I’ve been able to get up & dressed today & make plans for the weekend because of care. Resharing our @Channel4 BAFTA nominated pilot that centres the power of good care: m.youtube.com/watch?v=hLsW...
m.youtube.com
Biscuitland | Comedy Blap | Channel 4 Comedy
YouTube video by Channel 4 Comedy
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Richard Amm ♿ (Disability & Research) @richamm.bsky.social · 22/09/2026
London event looking for wheelchair users, parents/carers, and people involved in repair and maintenance to help shape future approaches. forms.cloud.microsoft/Pages/Respon...
forms.cloud.microsoft
Microsoft Forms
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Ramandeep Kaur @mumof3amigos.bsky.social · 31/08/2026
My son performed at Shambala Fest yesterday. Huge thanks to @touretteshero.bsky.social for giving him the opportunity to showcase his Bollywood dance skills. He’s an absolute star! ⭐️
Young man wearing a green T-shirt, blue shirts and muddy wellies standing outside a green tent with a sign which reads Green room, performers and artists only. There is an inset image of him wearing a blue and gold shalwar kameez with a purple brimmed hat.Young man wearing a blue shalwar kameez with a gold and blue waistcoat. He is standing on a stage with yellow and pink lights in the background and the words Rebel Soul. There are audience members sat and stood in front of the stage.
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Touretteshero @touretteshero.bsky.social · 20/08/2026
You might have seen our talented friend Annalisa Dinnella's piece on #AccessToWork in the Guardian this week, a shortened version of a longer article - we're delighted to publish the full piece here: www.touretteshero.com/2026/08/17/i...
touretteshero.com
Is This Thing Working? ‘Access To Work’ and My Labyrinth of Doom  - Touretteshero
Last year I wrote extensively about the sudden cut to my Access to Work support that meant I had to stop doing the job I love for three months. While my support was eventually reinstated, many other w...
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Touretteshero @touretteshero.bsky.social · 10/07/2026
It’s the last day to complete Raquel Meseguer’s survey on Crip wisdom - I’ve just completed it and really enjoyed the question it took me about 10 minutes and you can answer in video, audio or text - complete it here: touretteshero.typeform.com/crip-proverbs Closes today!
touretteshero.typeform.com
Crip Proverbs Survey (Raquel)
Turn data collection into an experience with Typeform. Create beautiful online forms, surveys, quizzes, and so much more. Try it for FREE.
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Touretteshero @touretteshero.bsky.social · 18/06/2026
A few days left to apply to be Touretteshero’s Senior Producer (Deadline 22/06) make glorious things happen across our creative, solidarity & research strands. If you care about Disability Culture & connecting people with ideas & each other apply now: www.touretteshero.com/2026/05/20/a...
touretteshero.com
A New Producer - Touretteshero
After two brilliant years with the company, our Senior Producer Nisha is moving on to pursue some new ventures of her own. We’ve loved working with her on all sorts of different projects including Val...
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Touretteshero @touretteshero.bsky.social · 12/06/2026
We’re really excited to share the first cohort of Knowledge Builders projects - an amazing range of interesting & important projects covering varied themes and experiences find out more in this guest blog by our Knowledge for Change manager Chloe www.touretteshero.com/2026/06/09/k...
touretteshero.com
Knowledge Builders The First Cohort - Touretteshero
When I joined the Touretteshero team in January 2025 as the Knowledge for Change Manager, I couldn’t wait to get stuck into planning for Knowledge for Change (aka KFC!) This radical research programme...
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Touretteshero @touretteshero.bsky.social · 12/06/2026
We’re looking for a new Senior Producer to join our small, disabled-led team 4 days a wk, could this be you or someone you know? The role involves making things happen across our creative, solidarity & research programmes, help us find someone great: www.touretteshero.com/2026/05/20/a...
touretteshero.com
A New Producer - Touretteshero
After two brilliant years with the company, our Senior Producer Nisha is moving on to pursue some new ventures of her own. We’ve loved working with her on all sorts of different projects including Val...
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New Humanist @newhumanist.bsky.social · 11/06/2026
New online! We spoke to @touretteshero.bsky.social about the furore around the film "I Swear" and why the condition she lives with is so misunderstood
newhumanist.org.uk
The truth about Tourette’s
Tourette’s activist Jess Thom on the furore around the film I Swear and why the condition she lives with is so misunderstood
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Touretteshero @touretteshero.bsky.social · 23/05/2026
A week until the Touretteshero group for children & young people with tics, their siblings & families. Free, creative, playful, social for any family navigating tics, involuntary noise or movement (no diagnoses required) more info & booking here: www.touretteshero.com/2026/05/02/l...
touretteshero.com
London Calling – Community, Connection and Creativity  - Touretteshero
I was diagnosed with Tourettes when I was 25 and one of the first things my friends encouraged me to do was meet other people who had it too. I was a bit nervous to start with, but it was one of the b...
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Touretteshero @touretteshero.bsky.social · 20/05/2026
Could you be Touretteshero’s new producer? Or do you know someone who’d be great? We’re looking for a Senior Producer who can help make exciting things happen across our Creative, Solidarity & Research strands, find out more & spread the word: www.touretteshero.com/2026/05/20/a...
touretteshero.com
A New Producer - Touretteshero
After two brilliant years with the company, our Senior Producer Nisha is moving on to pursue some new ventures of her own. We’ve loved working with her on all sorts of different projects including Val...
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Touretteshero @touretteshero.bsky.social · 15/05/2026
Happy #Tourettes month, if you’re raising a child or young person with tics we’d love your family to join us on Saturday 30th May at an amazing adventure playground in Oval, London for a free day of friendship, food & freedom to tic. www.touretteshero.com/events/toure... #BookNow #ShareWidely
touretteshero.com
Touretteshero London Group  - Touretteshero
Touretteshero London group is for children and young people, aged 6 – 16, who have lived-experience of involuntary noise and movement, including tics, Tourettes, and associated conditions - no diagnos...
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Sisters of Frida @sistersofrida.bsky.social · 14/05/2026
New London group for young people (6–16) with lived-experience of involuntary noise & movement, tics, Tourettes, & associated conditions -10-3pm, Kennington -30th May Family & siblings welcome. Please share #Tourettes #London @touretteshero.bsky.social www.touretteshero.com/2026/05/02/l...
touretteshero.com
London Calling – Community, Connection and Creativity  - Touretteshero
I was diagnosed with Tourettes when I was 25 and one of the first things my friends encouraged me to do was meet other people who had it too. I was a bit nervous to start with, but it was one of the b...
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Touretteshero @touretteshero.bsky.social · 02/05/2026
It's been a long time coming so I'm really excited to announce the first official Touretteshero London Group for young people with tics & their families: free, creative, playful Saturday 30th May 2026: www.touretteshero.com/events/toure... No diagnosis required, relaxed & wheelchair accessible
touretteshero.com
Touretteshero London Group  - Touretteshero
Touretteshero London group is for children and young people, aged 6 – 16, who have lived-experience of involuntary noise and movement, including tics, Tourettes, and associated conditions - no diagnos...
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Touretteshero @touretteshero.bsky.social · 15/04/2026
Just another bovine blog post: www.touretteshero.com/2026/04/06/i...
touretteshero.com
In Fact… A Cow - Touretteshero
I’ve just got back from a lovely holiday in Cornwall with my family. Where ever I go, my tics go with me, and for the last few months that’s included one about bovine intimacy, “I fucked a cow in a ho...
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Touretteshero @touretteshero.bsky.social · 15/04/2026
A month ago Touretteshero welcomed disabled & non-disabled children and adults to Whitechapel Gallery to play freely, joyfully and rebelliously check out our new video sharing this glorious celebration of play, creativity and imagination: youtu.be/ri03tkRZmRg?...
youtu.be
Rebel Play - Return of the Rebels February 2026
YouTube video by Touretteshero
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Community Living Magazine @communitylivingmagazine.com · 06/04/2026
New stories out now! One aim is to balance the negative headlines with some good stuff, so we look at how creativity can make a difference in people's lives. @georgejulian.bsky.social @maryohara1.bsky.social @touretteshero.bsky.social @oskabright.bsky.social communitylivingmagazine.com
communitylivingmagazine.com
Community Living
The campaigning magazine on equality, inclusion and living life: learning disabilities, care, health, welfare, housing, arts and more
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Touretteshero @touretteshero.bsky.social · 01/04/2026
I’m very excited to announce that the new Touretteshero website has landed. The old site saw us brilliantly through our first 15 years. The new site is a better reflection of the organisation we are now and will hopefully see us into the future: www.touretteshero.com/2026/04/01/a...
touretteshero.com
A New Era - Touretteshero
Fear not friends, this isn’t an elaborate April Fools hoax, it’s actually our brand new website! We’ve been working on it for the last couple of years - building a site is a long process – but we’re r...
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Community Living Magazine @communitylivingmagazine.com · 31/03/2026
*NEW* stories in April, including positive stories to balance the bad times. Articles with and by: @touretteshero.bsky.social @oskabright.bsky.social @maryohara1.bsky.social @georgejulian.bsky.social @sabasalman.com and many more. communitylivingmagazine.com
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Touretteshero @touretteshero.bsky.social · 20/03/2026
On Friday 27th March we’re holding an event at Graeae in East London (& online) to talk about our experiences of what’s happening with Access to Work & to help us all think about collective action & resistance. More info about the event here: www.touretteshero.com/2026/03/20/1...
touretteshero.com
1000 Cuts - How Do We Protect Our Access to Work?
This time next week we’re going to be hosting a Knowledge Exchange event at Graeae in East London (and online). It will start at 10.00am and finish at 1.00pm. Big changes are coming to Access to Wo...
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Touretteshero @touretteshero.bsky.social · 19/03/2026
An important guest post from Jamie Beddard reminding us of the battles that have gone before & sharing a powerful and moving piece of art reflecting on disabled people's right to take up space. Read the post, watch the film, share the message! www.touretteshero.com/safe/2026/03...
touretteshero.com
Take Up Space – Jamie Beddard
I’m currently going through the process of renewing my Access to Work support. This is particularly daunting because last year’s renewal went very badly and the vital support I need to do my job was c...
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KateW @kateweb.bsky.social · 26/02/2026
Access to Work says Jenny Sealey of Graeae Theatre can only have 10 hours a week BSL interpretation to cover her 47 work week. @touretteshero.bsky.social had a similar cut in support - her blog encouraging everyone affected to send evidence to the Public Accounts Committee: bsky.app/profile/tour...
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Touretteshero @touretteshero.bsky.social · 23/02/2026
Read my post on the fall out of last nights BAFTA's here. This is an opportunity to increase understanding of oppositional tics and acknowledge the complex realities and impacts of the condition: www.touretteshero.com/safe/2026/02...
touretteshero.com
BAFTA Fallout
I want to start this post with a significant caveat – attempting to talk about complex, emotive and highly charged issues within the constraints of the frenzied news cycle is difficult and unpredictab...
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Touretteshero @touretteshero.bsky.social · 23/02/2026
Resharing this on oppositional tics, the element of #Tourettes that involves saying or doing the opposite of what you should/would want to. A complex, distressing part of TS that’s hard to manage practically, emotionally & intellectually: www.touretteshero.com/2020/02/01/o...
touretteshero.com
Oppositional Me
This is a post I need to write but you might not need to read – I’m going to discuss some of the complicated, distressing parts of having Tourettes, and if reading it feels too much at any point pleas...
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Left Outside @leftoutside.bsky.social · 23/02/2026
While tourettes is in the news can I recommend seeing @touretteshero.bsky.social perform whenever you get the chance. Saw her performance at glastonbury (biscuits!) in 2008? 2009? on a tiny stage and it was utterly fabulous. She's done great work since on and off stage since too.
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Touretteshero @touretteshero.bsky.social · 17/02/2026
I’ve just submitted my evidence for the Public Accounts Committee inquiry into #AccessToWork. It’s becoming increasingly clear that huge, devastating changes are planned & the future of many working disabled people & those they employ, hangs in the balance www.touretteshero.com/safe/2026/02...
touretteshero.com
Access To Work Inquiry – Submit Your Evidence Now
I’ve spent the last few days gathering evidence for the Public Accounts Committee inquiry into Access to Work. It’s becoming increasingly clear that huge, devastating changes are planned by the Govern...
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Touretteshero @touretteshero.bsky.social · 13/02/2026
As my shock at the death of my long-term creative collaborator & 1/3rd of the Tourettes Bipolar Alliance, Christopher ‘Captain Hotknives’ Smith starts turning into grief, now feels like the right moment to write in celebration of my favourite Captain: www.touretteshero.com/2026/02/10/f...
touretteshero.com
For the Love of Hotknives
Content Warning: Description of death I don’t know exactly where to start with this, so I’m going to get the devastating news out the way first. Then I can focus all my attention on paying tribute t...
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Touretteshero @touretteshero.bsky.social · 09/02/2026
Applications are open for our 3rd volume of The Department for Wonder & Play zine, the 2026 theme is: Shadows in the Light. A supportive, low pressure opportunity for disabled, neurodivergent or chronically ill 14-26 yr olds. More here: www.touretteshero.com/2026/02/09/t...
touretteshero.com
The Department for Wonder and Play – Shadows in the Light
Can you believe it’s been nearly three years since we launched our brilliant Zine, The Department for Wonder and Play? Now that we’ve got two volumes and two launch events under our collective belt, i...
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Owen Watts @owenwattsdraws.bsky.social · 07/02/2026
We were here. Easily the highlight of the festival for us, the wonderful anarchic joy of @touretteshero.bsky.social & Captain Hotknives. Also saw him in beautiful freeflowing form in late 2019 on the cusp of the world changing forever. Well it's a different time now alright... rest in peace Captain.
youtube.com
(1/2) Tourettes Hero and Captain Hotknives - Glade Stage - Glastonbury Festival 2016
YouTube video by HyperboreanUK
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Touretteshero @touretteshero.bsky.social · 26/01/2026
Our new programme Knowledge Builders launches today. Supporting disabled thinkers to undertake their own research. You don’t have to have done research before. If you’re a disabled person over 16 with a question you'd like to explore this could be for you: www.touretteshero.com/2026/01/26/i...
touretteshero.com
Introducing Knowledge Builders – Our New Research Programme
Supporting disabled-led thinking has been an important part of Touretteshero from the beginning, and over the last few years our research programmes have grown under the care of our Director of Resear...
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Touretteshero @touretteshero.bsky.social · 23/01/2026
Disabled people are facing an existential threat as #AccessToWork seems to be being gutted from the inside. We know it’s being reformed but not what this will look like or the timeline. We need leaders to engage now or risk undoing decades of investment www.touretteshero.com/2026/01/19/a...
touretteshero.com
Access Anxiety
Often when I write these posts I’m doing it with a wide audience in mind, but this one is slightly different. While everyone’s welcome to read it, it’s particularly aimed at funding bodies, grant admi...
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Touretteshero @touretteshero.bsky.social · 19/12/2025
Save the date! 14th Feb, the day of love & if you love creative, disabled-led play then this is for you. Touretteshero’s Rebel Play is back & we’ve teamed up with @_TheWhitechapel & incredible new artists for Return Of The Rebels more info in the new year: www.whitechapelgallery.org/events/toure...
whitechapelgallery.org
Touretteshero: Return of the Rebels - Whitechapel Gallery
Join Touretteshero for Return of the Rebels – a day of rebellious and inclusive fun for all ages. Expect multi-sensory play, creativity and connection, inviting you to explore what rebellious, inclusi...
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Graeae Theatre Company @graeaetheatre.bsky.social · 12/12/2025
We'd like to highlight a podcast episode for Disability History Month from @disabilityarts.bsky.social featuring Cathy Waller and @touretteshero.bsky.social speaking about Access to Work. 

Content warning, this podcast contains strong language and references of a sexual nature. tinyurl.com/yj9tzup3
tinyurl.com
Interview - Podcast ep.73 Disability and… Access to Work
In this episode of Disability and... choreographer and artistic director of Cathy Waller Company, Cathy Waller chats with writer, artist and activist Jess Thom about her recent experience of claiming ...
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Touretteshero @touretteshero.bsky.social · 15/11/2025
Ten Years ago today Live From Television Centre was broadcast on BBC4 you can still watch the grand finale, orchestrated by my tics and made possible by many incredible people here: www.bbc.co.uk/programmes/p... #BringOnTheBiscuits #ILove
bbc.co.uk
BBC Four - On Stage: Live from Television Centre, Broadcast from Biscuitland: The Finale
A surreal and comic musical finale featuring a choir, a brass band and dancing biscuits.
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Touretteshero @touretteshero.bsky.social · 13/11/2025
It’s Children In Need tomorrow so I’m resharing a piece from a few years ago. I don’t believe that pity is the only way of raising money & I’d like to see CiN working with disabled people to imagine new ways of framing & contextualising our stories: www.touretteshero.com/2021/11/20/w...
touretteshero.com
What Do Children Need?
Yesterday was BBC Children in Need day. Schools and workplaces held collections in the lead up to an evening extravaganza of celebrity-led TV fundraising. The money raised will fund life-changing work...
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Touretteshero @touretteshero.bsky.social · 28/10/2025
What do you get if you cross a 2011 Rihanna song with a cow? Seems the answer for me is a new regular #Tourettes tic! Biscuits have made space for bovines - find out more here: www.touretteshero.com/2025/10/24/i...
touretteshero.com
In A Hopeless Place
For anyone old enough to remember, in 2011 Rihanna found love in a hopeless place. That place, if the video is anything to go by, turned out to be County Down in Northern Ireland. The song, with its c...
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Touretteshero @touretteshero.bsky.social · 03/10/2025
Great guest blog by our Senior Producer Nisha on Epilepsy & organists. One of the complexities of living with brain conditions is that it's also where so much of who we are is located. Navigating the reality of this can be practically & emotionally complex: www.touretteshero.com/2025/09/01/l...
touretteshero.com
Living with the Organist – Nisha Oza
If living with Tourettes has taught me one thing it’s that brains are incredibly complex and that medical understandings of neurological conditions and the reality of living with them can often feel q...
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Touretteshero @touretteshero.bsky.social · 02/10/2025
We're planning to reprint our welcome pack for children with #Tourettes & are adding a letter for siblings. If you're a person with tics, their sibling, or parent/carer please complete a short survey & help us make the letter as useful as possible: www.touretteshero.com/safe/2025/10...
touretteshero.com
Siblings Letter – Your Help Needed
Last year we launched the Touretteshero Welcome Pack, a set of artist designed letters that we provide free to children who are newly diagnosed with tics or Tourettes, and their families. The welcome ...
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Touretteshero @touretteshero.bsky.social · 15/08/2025
Our Practical Intervention fund's back! This time with a Mobility focus, we can't provide actual mobility aids but we have 8 great items we can gift to disabled people who aren't able to buy them. Simple application process, more here: www.touretteshero.com/2025/08/12/p... closes 03/09/25
touretteshero.com
Practical Intervention Fund – Mobility Edition
It’s been four years since we launched our Practical Intervention Fund (PIF). The fund enables disabled, deaf and neurodivergent people to experiment with different items which can support their wellb...
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Touretteshero @touretteshero.bsky.social · 01/08/2025
I've not been able to do my job for the last 3 months because of a DWP decision to cut my #AccessToWork support. This week I received a letter reinstating my support, while this is good news for me there are many others still affected by cuts & delays touretteshero.com/safe/2025/07... 1/2
touretteshero.com
We Are Not Disposable
A couple of weeks ago some colleagues and I gathered round a phone in the Touretteshero office to speak to my newly allocated caseworker from the Department for Work and Pensions about my Access to Wo...
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Touretteshero @touretteshero.bsky.social · 11/07/2025
An important article by Andrew Miller in @ArtsPro please read and share: www.artsprofessional.co.uk/magazine/fea... #ProtectAtW #TakingThePip
artsprofessional.co.uk
Benefit reforms risk pushing disabled creatives back to the margins - Arts Professional
Without equitable access to life enhancing benefits, disabled people's participation in culture is severely limited, writes the UK's arts access champion Andrew Miller.
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Dee @deeruddock.bsky.social · 30/06/2025
I’m so shocked this is happening, in 21st century Britain, under a Labour govt. - the words say “get people working “ the policies are causing the complete opposite!
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Kieran Hurley @kieranhurley.bsky.social · 30/06/2025
I don't know Jess personally, but for pretty much the entire time I've been working professionally she has been widely regarded as a valued and respected figure in the British theatre sector. That it has taken a Labour government to force her out of work is an indelible mark of shame.
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Touretteshero @touretteshero.bsky.social · 30/06/2025
My Job Hasn’t Changed, My Disability Hasn’t Changed, So Why Has My Support Changed? www.touretteshero.com/2025/06/20/m...
touretteshero.com
My Job Hasn’t Changed, My Disability Hasn’t Changed, So Why Has My Support Changed?
Shortly before my emergency pacemaker operation at the end of March, I had a meeting with a couple of my colleagues to talk about what should happen to our company if I didn’t survive the procedure. T...
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Ramandeep Kaur @mumof3amigos.bsky.social · 30/06/2025
Channel 4 news interviewing Jess Thom who cannot continue working due to cuts in Access to Work funding. It was Jess’ organisation, @touretteshero.bsky.social that enabled my learning disabled son, to perform at the Southbank in London. The cuts in support for #disabled people must stop.
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Touretteshero @touretteshero.bsky.social · 28/06/2025
A Tale of Two Pods, offering us two versions of the future, which would you choose? www.touretteshero.com/2025/06/25/a...
touretteshero.com
A Tale of Two Pods
Content Notice: References to genocide and Euthanasia In 2016 much to my surprise and delight I became a Wellcome Trust Engagement Fellow. This Fellowship from an internationally recognised health re...
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Disability News Service @johnpring.bsky.social · 26/06/2025
Making all self-driving pilot schemes accessible would be ‘counter-productive’ and slow us down, says minister www.disabilitynewsservice.com/making-all-s...
disabilitynewsservice.com
Making all self-driving pilot schemes accessible would be ‘counter-productive’ and slow us down, says minister
A transport minister has told peers that it would be “counter-productive” – and take too long – to draw up rules that would ensure all pilot schemes of self-driving taxis are accessible to disabled…
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Touretteshero @touretteshero.bsky.social · 20/06/2025
Sharing this in solidarity with all those who, like me, are deeply worried and concerned about the outcome of the #AssistedDying vote today: www.touretteshero.com/2025/06/20/l... #TakingThePip #ProtectAtW
touretteshero.com
Labour’s Pincer Movement
Is it just me or is it feeling a lot like the 1930s all of a sudden? I’m giving myself permission to ask big questions like this in part because I’m not working at the moment. The reason why I’m not d...
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Touretteshero @touretteshero.bsky.social · 20/06/2025
I’ve been vocal about the impact the cuts to my Access To Work support have had on my job. I haven’t explained publicly my biggest fear - I’ve lost 45hrs of support a week and if this isn’t reinstated I’ll have to go back to #SocialCare & #NHS to cover these lost hours 1/3
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Cassetteboy @cassetteboy.bsky.social · 18/06/2025
The only thing preventing Jess from working is Keir Starmer.
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