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Torie Robinson

@torierobinson.bsky.social
452 followers 558 following 151 posts

🎬 Epilepsy Sparks Insights Podcast Host & YouTuber 🧠🧬 | International Speaker | PPI Lead | #Epilepsy & #MentalHealth Research fiend | All views my own

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Torie Robinson @torierobinson.bsky.social · 27/08/2026
😴😴 Sleep disorders - affect about 1/3 of us but it's even more common in people with an epilepsy! 👉🏻 youtu.be/plZ0F1uUc8I Common ones include: - sleep apnea - nocturnal bruxism (teeth grinding) - restless leg syndrome - insomnia 1/ #epilepsy #sleepdisorder #bruxism #sleepapnea
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Torie Robinson @torierobinson.bsky.social · 06/08/2026
‼️ Re-release due to popularity and importance: #Epilepsy & #Suicide: Breaking the Silence - with Drs Milena Gandy 🇦🇺 & Heidi Munger Clary 🇺🇸 - who explain everything - including how clinicians can bring suicide risk up in appointments. 🎬 lnkd.in/ed85Ht9a #mentalhealth #depression #mooddisorder
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Torie Robinson @torierobinson.bsky.social · 06/08/2026
Our new paper - led by star @vaughanbell.bsky.social "Developing a neuropsychiatry curriculum for clinical psychologists and neuropsychologists: An e-Delphi study" - check it out 👇🏻! #epilepsy #fnd #depression #anxiety #psychiatry #neurology
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Torie Robinson @torierobinson.bsky.social · 05/08/2026
I'm thankful to be part of this paper - led by the brill @vaughanbell.bsky.social and fellow coauthor @fndportal.bsky.social! #neuropsychiatry #neurology #psychiatry #fnd #epilepsy
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Torie Robinson @torierobinson.bsky.social · 04/08/2026
I'd rather seize every day than be depressed. Please check out this incredibly important paper about the clinical care gap between #epilepsy and #depression - and what we need to do to close it. By Reetta Kalviainen et al. www.dovepress.com/bridging-the... www.dovepress.com/bridging-the...
dovepress.com
Bridging the Gap Between Depression and Epilepsy: A Call for Integrate | NDT | Dove Medical Press
The intricate and bidirectional relationship between epilepsy and depression presents significant challenges for diagnosis, treatment, and overall patient care.
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Torie Robinson @torierobinson.bsky.social · 30/07/2026
🧘 Medication can be just one part of the puzzle in treating #epilepsy! In this week's Epilepsy Sparks Insights podcast 🎬 "Still Having Seizures? Don't Just Accept It", Dr. Manjari Tripathi speaks of how medications are just one part of a complex puzzle! 🧩 🎬 www.epilepsysparks.com/epilepsy-spa...
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Torie Robinson @torierobinson.bsky.social · 23/07/2026
🤔 Why is it that drugs don't control seizures in 30% of people with #epilepsy? On the Epilepsy Sparks Insights podcast, Graeme Sills, PhD 🇬🇧, shares his work and theories into this problem and how we - pharma, researchers, and clinicians - need to look "outside the box"! 👇🏻 🎬 youtu.be/0xhPeVjJqQA
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Torie Robinson @torierobinson.bsky.social · 22/07/2026
🧠 🎉 Today is #WorldBrainDay! Hear why you should be involved (hint: over 40% of us all - including your friends and family - shall have a brain disease)! Chair, founder, and neurologist Dr. Tissa Wijeratne 🇦🇺 !! Watch here 👇🏻: youtu.be/ZYOocAtuRkY #neurology #brainhealth
youtu.be
World Brain Day: Brain Health: Access for All - Prof. Tissa Wijeratne
YouTube video by Epilepsy Sparks Insights - with Torie Robinson
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Torie Robinson @torierobinson.bsky.social · 17/07/2026
For those who don't "believe" in #climatechange - the London Fire Brigade has given a guide on how to minimise risk of losing your home and garden during bushfires. www.london-fire.gov.uk/safety/grass...
london-fire.gov.uk
Wildfires - protecting your home and garden
Wildfires can destroy homes and gardens, but there are steps you can take to reduce the risk. From cutting your grass to clearing your gutters - simple actions make a difference. Find out what you can...
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Torie Robinson @torierobinson.bsky.social · 14/07/2026
👥 Attending a conference even if only to catch up with an international colleague face to face is 100% worth it!! It's been a few years now that Jennifer Bethell and I have worked together on the iNeuron project - with multiple colleagues from around Canada! 🇨🇦 #basicscience #alzheimers #epilepsy
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Torie Robinson @torierobinson.bsky.social · 13/07/2026
🧠 Jennifer Bethell and I at the #AAIC2026 conference in London 🇬🇧! Presenting the Advisory Board for Lived Experience of Stroke, Epilepsy and Dementia (ABLE) poster!! It's about our amazing iNeuron group researching #stroke, #epilepsy, and #dementia (all of which are closely linked!)! 1/
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Torie Robinson @torierobinson.bsky.social · 25/06/2026
😀 Who knew one could have such fun talking about immune disorders causing epilepsy! In this week's Epilepsy Sparks Insights podcast 🎬, Prof. Colin Doherty 🇮🇪 shares his theories about refractory epilepsies being immune disorders! Watch here: 🎬 youtu.be/Gxmuot0Is6o 1/ #epilepsy #immunotherapy
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Torie Robinson @torierobinson.bsky.social · 18/06/2026
We have only three medical ketogenic therapy centres in the UK - that's to cover 660,000 people who could be suitable! It's a fascinating treatment which can treat #epilepsy, #depression, and more. It should be considered at the same time as/before neutostimulation and neurosurgery.
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Torie Robinson @torierobinson.bsky.social · 18/06/2026
Often seizures are the last thing on peoples minds (when they have an #epilepsy). It can be the utter #depression, #anxiety, feelings of not wanting to be here. These symptoms must be addressed. It's not just breathing that's important; it's wanting to breathe that can be the challenge... #suicide
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Torie Robinson @torierobinson.bsky.social · 11/06/2026
🐄 The science behind the #ketogenicdiet is simple, right? Well, sorry (for myself as well as others)... not so much. 😆 In this week's podcast 🎬, Dr. Manny Bagary 🤩🇬🇧 explains all about the ketogenic process and the amazing impact of altering one's ketosis 👇🏻! 🎬 youtu.be/aVXUMjfvbJg 1/
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Reposted by Torie Robinson
UCSF @ucsanfrancisco.bsky.social · 14/05/2026
People with #Epilepsy experience more than seizures. UCSF researchers discovered how momentary “brain blips” — that happen thousands of times a day and disrupt memory, attention, and language — might be prevented. ow.ly/fvqt50YZ7BH
ow.ly
HD Probes Show for the First Time How Epileptic ‘Brain Blips’ Occur
Epilepsy physicians Jon Kleen and Eddie Chang used high-resolution technology to see how cognition is disrupted in people with epilepsy and predict when it will occur. The new view points the way to being able to fend of these disruptions.
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Torie Robinson @torierobinson.bsky.social · 07/05/2026
It's Reetta Kälviäinen 🇫🇮: "Beyond the Myoclonus: Recognizing the Clinical Face of PMEs (Progressive Myoclonic Epilepsy) EPM1 epilepsy" Reetta shared how the best epilepsy research is done with patients and families. And not just with the usual "awareness" activities it's research collaboration. 1/
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Torie Robinson @torierobinson.bsky.social · 07/05/2026
Amazing panel discussion and notes: What defines a DEE? How "severe" must symptoms be? Is it a matter of association of clinical and EEG findings above a certain aetiogy? Is it a pathophysiological rather than a clinical concept? Is it not a static but dynamic concept? 1/
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Torie Robinson @torierobinson.bsky.social · 07/05/2026
😀 Second day of the #DICE2026 epilepsy conference in Denmark! First speakers are: 〰️ Nicola Specchio 🇮🇹: "DEE: Classification and Current Concepts" 〰️ Lieven Lagae 🇧🇪: "Challenges in the Current Classification of DEEs" 1/2
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Torie Robinson @torierobinson.bsky.social · 26/04/2026
At the London Marathon supporting Epilepsy Action! #epilepsy #londonmarathon2026
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Torie Robinson @torierobinson.bsky.social · 23/04/2026
Many people's brain scans look normal - despite them having seizures. 🧠⚡️ Christos Papadelis 🤩 talks about combining MEG with high-density EEG & AI to identify where seizures start!👇🏻 🎬 youtu.be/KQGjwVdYUBs This episode is presented in partnership with EASEE®Epilepsie, by PRECISIS GmbH. #epilepsy
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Torie Robinson @torierobinson.bsky.social · 19/04/2026
Laughs, friendships, a touch of seriousness, pizza 🍕, and the cutest 🐶 ever (who snarls when he likes you). Thank you so much to Landis Wiedner for being such a great host, and Wilson Kukla and Ivana Garcia for being equally splendid. #chicago #pizza #epilepsy
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Torie Robinson @torierobinson.bsky.social · 17/04/2026
In prep for the UCB EpilepSEE conference in Chicago! We start tomorrow, with some incredible global collaborators - the start of a new project to improve the lives of those affected by epilepsy. Global experts inc. Prof. Reetta Kalviainen, Landis Wiedner, Alison Kukla, & Ivana Garcia. #epilepsy
Chicago, IL
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Torie Robinson @torierobinson.bsky.social · 16/04/2026
Thank you to the Epilepsy Foundation 🧠🇺🇸 for the Research Ambassador Keynote Speaker award. I'm honoured. Not possible without EF leaders Jacqueline French, Caitlin Grzeskowiak, Renisha Jones, and Eva Childers. More is coming. Stay tuned y'all.... #epilepsy #neurology
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Torie Robinson @torierobinson.bsky.social · 13/04/2026
Thank you to such a cool audience for being with me for a 55min keynote talk about how they can become involved/leaders in #epilepsy research - using their Epilepsy Experience Expertise. Thank you to Prof. Jacqueline French and Caitlin Grzeskowiak of the Epilepsy Foundation for the invitation.
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Torie Robinson @torierobinson.bsky.social · 12/04/2026
Tremendous presentation about medtech devices used to help try and control epileptic seizures (they often have other benefits too though) - by star scientist Benjamin H Brinkmann PhD, FACNS FAES - at the Epilepsy Foundation Research Ambassador Program 🇺🇸! #epilepsy #medtech #eeg #neurology
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Torie Robinson @torierobinson.bsky.social · 09/04/2026
See you soon Epilepsy Foundation of America - in Minneapolis 🇺🇸. I'll be sharing some pics of my talks - and those of others - over the next few days. Beautiful Delta Air Lines A330-900 LHR-MSP. ✈️ #epilepsy
Delta A330-900 LHR-MSP
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Torie Robinson @torierobinson.bsky.social · 26/03/2026
🥳 New, fun podcast episode! Epilepsy; it's just not sexy, is it?! Hear how we need to improve education and marketing for epilepsy so that we can get greater acceptance and funding for research! All with intellectual disability nurse Jay Price 🤩🇬🇧! 👇🏻 🎬 youtu.be/-pMjMXnYKKM #epilepsy #purpleday
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Torie Robinson @torierobinson.bsky.social · 19/03/2026
Our latest podcast episode - now out!! 🥳 👇🏻 #epilepsy #dataset #AI
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Torie Robinson @torierobinson.bsky.social · 19/03/2026
Want to hear something exciting? 🥳 In this week's podcast, @konradwagstyl.bsky.social shares how he is using AI & datasets to identify previously unidentifyable (on MRI) brain lesions!! 🧠 Watch! 👇🏻 youtu.be/3qj5If0RdqM Presented in partnership with EASEE®Epilepsie, by PRECISIS GmbH. #epilepsy #MRI
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Torie Robinson @torierobinson.bsky.social · 17/03/2026
🥳 Speaking to MedTech about #epilepsy, #depression, #Parkinsons & #Alzheimers and our #PPIE work at the international Advanced Research & Invention Agency (ARIA) neurotech summit with tremendous colleagues Jon Nelson, Kuhan Pushparatnam, and Trevor Salomon 🤩🤩🤩! At the National Space Centre! 🚀
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Torie Robinson @torierobinson.bsky.social · 05/03/2026
Podcast! Mental health illnesses are symptoms of epilepsy and they can even precede seizure onset! 😯 Hear from global lead epileptologist Dr. Andres Kanner 🤩 🇺🇸 Watch/listen👇🏻 🎬 youtu.be/2BZaqboYIpQ This episode is presented in partnership with EASEE® by Precisis GmbH. #epilepsy #mentalhealth #adhd
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Torie Robinson @torierobinson.bsky.social · 27/11/2025
Addressing inequalities in access to epilepsy care! It’s the Epilepsy Sparks Insights podcast with Prof. Nicola Specchio 🤩🇮🇹 who speaks of: • delays to diagnosis • earlier interventions • improve standards • precision medicine, biomarkers & neuroimaging Watch here: youtu.be/eWXWNjL2FGw #epilepsy
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Torie Robinson @torierobinson.bsky.social · 21/11/2025
New paper “Epilepsy and mental health disorders: current challenges and potential solutions”. “Seizure control alone doesn’t equal quality of life...” Writing about this isn’t easy when you draw on lived experience, but it’s worth it. 👇🏻 www.cambridge.org/core/journal... #epilepsy #mentalhealrth
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Torie Robinson @torierobinson.bsky.social · 13/11/2025
🩸🧠 The Blood-Brain Barrier can influence/cause epilepsy! 😱 In this week’s @epilepsysparks.bsky.social Insights podcast, we hear about what happens when this barrier leaks! What gets through?! Hear all about it from our brill guests Dr. Claire Behan and Dr. Chris Greene! 👇🏻 🎬 youtu.be/rBpI_-daWjw
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Torie Robinson @torierobinson.bsky.social · 12/11/2025
🧠 Absolute pleasure presenting at the 3rd Advanced Course on the Pharmacological Treatment of Drug-Resistant Epilepsies (DRE) in Palma 🇪🇸! Topics: QoL, mood, cognition, interictal behaviour, language & labels, med efficacy vs tolerability, psychiatric morbidities, social & environmental determinants!
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Torie Robinson @torierobinson.bsky.social · 05/11/2025
🌍 Fab symposium: the Brain Health Innovation Summit Thinking about Cognition and the Future of Care 🇮🇹! Discussions with those working in #psychiatry, #neuropsychiatry, #neurology, covering #epilepsy, #cognition, #ALS, #dementia, #psychosis, #physicalfitness, #AI, & #digitalinnovation!
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Torie Robinson @torierobinson.bsky.social · 25/09/2025
😲 I was shocked! On Epilepsy Sparks Insights I chat with Dr Ewan Nurse 🤩🇦🇺 about #seizure diaries 📝. How accurate are they really? Many seizures go unrecognised or misreported - even with a witness! That has a huge impact on treatment & quality of life. Watch here 👉🏻 shorturl.at/SJLxN #Epilepsy
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Torie Robinson @torierobinson.bsky.social · 18/09/2025
Chatting with neurologist Dr Phillip Pearl 🤩🇺🇸 from Boston Children’s Hospital re: 〰️ Metabolic epilepsies & the future 〰️ Patients we can’t yet help 😞 〰️ Advocacy, gene therapy, SUDEP & mental health Listen/watch, here 👇🏻! 🎙️ shorturl.at/LbjyF 🎬 shorturl.at/z7VzU #epilepsy #neurology #podcast
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Torie Robinson @torierobinson.bsky.social · 16/09/2025
The fabulous Prof Georgia Ramantani and I meet again! At the #IEC2025 conference! Georgia’s podcast episodes were: - Slicing a Brain In Half to Treat Epilepsy”(!) 🧠🔪, and; - The Sacrifices & Benefits of a Hemispherectomy”. Check them out here 👇🏻! youtu.be/u6Sjsh5TuDo
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Torie Robinson @torierobinson.bsky.social · 11/09/2025
😃 Did you know about metabolic epilepsies? Did you know that a lack of vitamin B6 💊 can lead to an #epilepsy 😱?! Hear from Dr Phillip Pearl 🤩🇺🇸 from Boston Children's Hospital & Harvard Medical School about inherited #metabolic epilepsies! 👇🏻 🎙️ Podcast shorturl.at/5entK 🎬 YouTube shorturl.at/ghltc
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Torie Robinson @torierobinson.bsky.social · 09/09/2025
Check him out! The cool neurologist (and upcoming podcast guest 🥳) Ching Soong Khoo from Malaysia 🇲🇾 - at the International Epilepsy Congress in Lisbon 🇵🇹! And yes, in case you hadn’t noticed 😁 - CS’s pic is right there on the stand! #epilepsy #neurology #IEC2025
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Torie Robinson @torierobinson.bsky.social · 09/09/2025
Meeting in person really makes a difference! 😀 I meet our Epilepsy Sparks Insights podcast guest Consultant Neurologist Elisabeth Doran 🤩 🇮🇪 face to face for the first time! 😀😀 Along with upcoming guest Claire Behan 🇮🇪! All the at International Epilepsy Congress in Lisbon 🇵🇹! #IEC2025 #epilepsy
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Torie Robinson @torierobinson.bsky.social · 05/09/2025
Had an absolute blast chatting with Asst. Prof. Simona Balestrini 🤩🌍🇬🇧 🇮🇹 for the latest episode of Epilepsy Sparks Insights! Learn about Transcranial Magnetic Stimulation here 👇🏻 and its potential as a future epilepsy treatment! Watch here 🎬 youtu.be/hyLxVtc6ud8
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Torie Robinson @torierobinson.bsky.social · 03/09/2025
🤩 Our team at the International Epilepsy Congress 2025 in Lisbon 🇵🇹! It was such fun, with laughs and great questions from the audience! It was in interactive 1.5 hour session with topics including sex, SUDEP, suicide, and more! #epilepsy #suicide #neurology #SUDEP #mentalhealth #sex #psychology
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Torie Robinson @torierobinson.bsky.social · 02/09/2025
Lisbon icons - at sunset! 🌅: 🏰 Castelo de São Jorge 🗽 The Cristo Rei statue 🌉 The Ponte 25 de Abril suspension bridge 🌅 Lovely sunset #lisbon #castle #portugal
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Torie Robinson @torierobinson.bsky.social · 02/09/2025
Gorgeous, utterly fresh seafood 🐟🐙 in Lisbon! Fish doesn’t smell fishy - because it’s FRESH! #lisbon #seafood #Portugal #foodlover #foodgasm #fish
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Torie Robinson @torierobinson.bsky.social · 31/08/2025
Day 2 at the International Epilepsy Congress in Lisbon! Tomorrow I’m part of a fun talk “From Awkward to Empowered: Having truly 'patient-centered' conversations in epilepsy care and research” with Milena Gandy, Heidi Munger Clary, Lucas Orellana, & Brad Kamitaki! Join us!! #epilepsy #iec2025
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Torie Robinson @torierobinson.bsky.social · 30/08/2025
👏🏻 Honestly, a fab talk by Reeta Kälviäinen, Manuel Toledo, and Lawrence Hirsch at the Satellite Symposium - Medscape: “The Clock Is Ticking: Optimizing Ongoing Seizure Response!” Topics: #statusepilepticus, prolonged seizures, seizure clusters, & Rapid Early Seizure Termination (REST)! #epilepsy
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Torie Robinson @torierobinson.bsky.social · 30/08/2025
🥳 Reetta Kalviainen led the fab session about Epilepsy Experience Experts/Consultants and how researchers can and should work with them! Great questions and conversation had between Reetta, Jacqueline, Eli Cripps, I, & the audience at the International Epilepsy Congress in Lisbon! #IEC2025 #epilepsy
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