iiinova — where your digital self keeps evolving

Reposted by Tina Katsaros

Dr Jo Greer @drjogreer.bsky.social · 27/11/2025

theredtreeandme.substack.com/p/red-leaves... Huge thanks to all the ME/CFS scientists & clinicians from around the world for the messages of hope given to #TheRedTreeandME for people with ME @chestercathedral.bsky.social @cgatist.bsky.social

theredtreeandme.substack.com

Red Leaves and Messages of Hope @ Chester Cathedral

By Jo and Nick Greer

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Tina Katsaros @tinakatsaros.bsky.social · 26/08/2025

Are there many #pwME still active on here? I haven't been posting much lately but thinking about putting more energy into building up my #MECFS and #LongCovid community on here. 💙 Would love to know who's around! 😊

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Simon McGrath @simonmcg.bsky.social · 10/08/2025

#DecodeME A brilliant interview with Chris Ponting by @davetuller1.bsky.social Chris gave new details, including: - They got feedback on a draft of the pre-print from independent researchers, to help them test their findings and improve the manuscript. 1/ youtu.be/CGUmcB_YIaA?...

youtu.be

Interview with Professor Chris Ponting about the DecodeME results.

YouTube video by David M Tuller

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Emerge Australia @emergeaustralia.bsky.social · 16/07/2025

Nominate now for the 2025 ME/CFS & Long COVID Media Awards! Help honor journalism that correctly depicts these conditions and fights stigma. Open to all mediums, both Australian and international. More info: vist.ly/3y6q7

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#MEAction Network @meactnet.bsky.social · 16/07/2025

It's almost that time of year again! Our Severe ME Artists Project is coming up! Can you believe it will be the 5th one?!? Deadline to submit is July 24th! Details and submission link: www.meaction.net/2025/07/10/s... If you need help, email us at sMEartistsproject@meaction.net. #pwME #SevereME

Simple sketch in white against black background showing a bedroom. There is a bed on the right with an easel beside it. The text on the easel says "Severe ME Artists Project 2025"

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GrasLab @graslab.bsky.social · 01/04/2025

If you are on campus in Bundoora @latrobeuni.bsky.social on Wednesday 2nd of April come and help research 😉👍

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Niko Suvisto @nikosuvisto.com · 15/03/2025

Today is Long Covid Awareness Day! And I want to support my LC friends. 1/9 #5YearsLongCovid #HalfADecadeOfNeglect #LongCovidAwarenessDay2025 #LongCovid #MECFS #pwME

A black and white photograph of a white man, Niko, with short hair and a beard, sitting on a hospital bed. He wears a sweatshirt and holds a tablet displaying a message about Long COVID. The text on the tablet reads: “5 YEARS OF LONG COVID. HALF A DECADE OF NEGLECT! WHERE’S THE ACTION?! - BERLIN BUYERS CLUB.” Niko has a serious expression, and the background includes a framed picture on the wall, a lamp, and part of a headboard.

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Ebony Monson @ebony-monson.bsky.social · 07/03/2025

Happy #IWD2025 to all the wonderful women in STEM, and to our male colleagues that support us 👩‍🔬 Diversity is so important in science and I'm very lucky to be part of a group that celebrates this! @helbiglab.bsky.social @irumii.bsky.social @jacintaagius.bsky.social @timetogoz.bsky.social

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Tina Katsaros @tinakatsaros.bsky.social · 26/02/2025

Mid-candidature talk ✅ Now onto the final stretch of the PhD 😎 #MECFS

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PZ @itsmepz.bsky.social · 23/02/2025

⚠️Attention #pwME Scoping survey for Australian Clinical Practice Guidelines for ME/CFS consultations.nhmrc.gov.au/clinical-pra... Open to everyone so I encourage #pwME & carers outside 🇦🇺 to provide input if they are able! #MyalgicEncephalomyelitis #MECFS **Please repost**

consultations.nhmrc.gov.au

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Niko Suvisto @nikosuvisto.com · 28/12/2024

Yesterday I managed to go to our living room and I photographed our Christmas tree, which is a tradition of mine. Why is that significant to me? Well, as I’m 99% bedbound by #MECFS, the last time I visited that room was in April. So that happens only a handful of times in a year. 1/3 #photography

A colour image. In the middle of the photo there is a Christmas tree, it has lots of ornaments on it: candles, red balls, white snowflakes. In the lower right corner there is a part of sofa, and there is a pillow on it. Behind the tree there are a couple of old photographs on the wall. In the left side of the image, there is a large wooden clock on the wall, in the background. Also a table and a couple of chairs can be seen in the background.

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Tom Kindlon @tomkindlon.bsky.social · 05/01/2025

3/ some of the scientists, researchers, clinicians & advocates involved with ME, Long Covid, & similar to submit nice comments were @danielmissailidis.bsky.social @physiosforme.bsky.social @aryback.bsky.social @buonsenso.bsky.social @tinakatsaros.bsky.social @exceedhergrasp1.bsky.social

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lifeatthewindow.bsky.social @lifeatthewindow.bsky.social · 24/12/2024

Mum just dropped by with my presents, so I have something to open in the morning. Sending lots of love to everyone who can’t have the Christmas you’d like to have, owing to illness. It’s a hard time of year to face it all. Wishing you much coziness 🎄❄️🌟 #pwME #MECFS #Chronicillness

The photo shows a few Christmas presents stacked on a brown wooden floor. One present is large and flat and wrapped in silver paper. Two other rectangular presents are on top of this one and wrapped in colourful paper with a Christmas tree pattern and have Santa Claus faces for gift tags.

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Niko Suvisto @nikosuvisto.com · 24/12/2024

I have now shared one Christmas themed album every day until it’s Christmas. So today I want to share one more as the final one. Today’s album is: Leevi and the Leavings - Varasteleva joulupukki / A Thieving Santa Claus (1990) (pop) 1/4 #SpendChristmasWithME #MusaSky #MusicSky #MECFS #LongCovid

open.spotify.com

Varasteleva joulupukki

Leevi and the leavings · Album · 1990 · 10 songs

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Ólafur Waage @olafurw.com · 24/12/2024

Hans has fallen. Happy Holidays.

Hans Gruber falling at the end of Die Hard.

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Niko Suvisto @nikosuvisto.com · 24/12/2024

As a severe #MECFS patient I don’t dress up often, as I’m always just in bed. But I’ve tried to do that if there’s a special occasion, like today! It sure feels nice to put on some proper clothes. So this is my outfit for today’s ”festivities”. 1/3 #SpendChristmasWithME #pwME

A colour image. The author of the post is sitting on a hospital bed. The bed has been lifted to a sitting position. He is wearing a red turtle neck wool jumper, white pants and grey socks. He is signaling the peace sign with his left hand. He is looking at the camera and having a slight smile on his face. Behind him there are some objects on the next bed: electronics and cables and such.

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Ellie @madknittrsteaparty.bsky.social · 24/12/2024

Sending solidarity to everyone with a limiting illness. It's so hard if this week is quiet,& if it isn't. Being left out. Saying no when you'd love to say yes. Being asked to make an effort because it's Christmas when you've already overdone it. Good luck all! #SpendChristmasWithME #MECFS #LongCovid

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Tina Katsaros @tinakatsaros.bsky.social · 25/12/2024

Sending my love this Xmas to everyone with #MECFS and #LongCovid, especially those spending the day alone at home or in bed ❤️ I leave you with a gift of hope. Just know, even if you are spending Xmas alone, you are not forgotten and you are not alone 🫶🏼 #SpendChristmasWithME

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Tina Katsaros @tinakatsaros.bsky.social · 23/12/2024

Day #5 of #SpendChristmasWithME 🎄 Today's movie recommendations: - The Nightmare Before Christmas 💀🎄 - Home Alone 🏠 Remember to use #SpendChristmasWithME in any of your posts and interact with other posts! Let's spend Xmas Eve together from home 🫶🏼 #MECFS #LongCovid

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Tina Katsaros @tinakatsaros.bsky.social · 23/12/2024

The Holiday 🏠 Been a few years since I last saw this one. Forgot how much I liked it. Snack of choice is Christmas Tree Cookies from Aldi. 🎄 Aldi only sell these cookies around Xmas but they are possibly one of my favourite biscuits. Highly recommend. #SpendChristmasWithME

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Niko Suvisto @nikosuvisto.com · 23/12/2024

I’ll listen to and share one Christmas themed album every day until it’s Christmas. Today’s album is: Various Artists - Stax Christmas (2023) (funk, soul) 1/3 #SpendChristmasWithME #MusaSky #MusicSky #MECFS #LongCovid

open.spotify.com

Stax Christmas

Various Artists · Compilation · 2023 · 12 songs

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Tina Katsaros @tinakatsaros.bsky.social · 23/12/2024

"If you look for it, I've got a sneaky feeling you'll find that love actually is all around". Love actually ❤️ Watching from my bed tonight. #SpendChristmasWithME

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Tina Katsaros @tinakatsaros.bsky.social · 22/12/2024

Day #4 of #SpendChristmasWithME 🎄 Today's movie recommendations: - Love Actually ❤️ - The Holiday 🏠 Remember to use #SpendChristmasWithME in any of your posts and interact with other posts! Let's spend Xmas together from home 🫶🏼 #MECFS #LongCovid

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Niko Suvisto @nikosuvisto.com · 22/12/2024

I’ll listen to and share one Christmas themed album every day until it’s Christmas. Today’s album is: Jimmy Smith - Christmas Cookin’ (1964) (jazz) 1/4 #SpendChristmasWithME #MusaSky #MusicSky #MECFS #LongCovid

open.spotify.com

Christmas Cookin'

Jimmy Smith · Album · 1964 · 10 songs

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Tina Katsaros @tinakatsaros.bsky.social · 22/12/2024

Yippee ki yay… well we all know how that phrase ends 😂 Die Hard is without a doubt one of my top 3 favourite Christmas movies! And I don’t care what anyone says, Die Hard IS a Christmas movie, and a fantastic one at that🎄💥 #SpendChristmasWithME

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Tina Katsaros @tinakatsaros.bsky.social · 22/12/2024

Watching How The Grinch Stole Christmas 💚 Rainy night in Melbourne calls for a hot chocolate ☕️ and some of the the gingerbread men that I did remember to put a timer on for when baking in the oven 😂 #SpendChristmasWithME

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Tina Katsaros @tinakatsaros.bsky.social · 22/12/2024

Note to self: Don’t forget to put a timer 🤦🏼‍♀️ At least it was only a small batch I guess. 🍪 #SpendChristmasWithME

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Tina Katsaros @tinakatsaros.bsky.social · 22/12/2024

Day #3 of #SpendChristmasWithME 🎄 Today's movie recommendations: - Die Hard 🧨💥 - How The Grinch Stole Christmas 💚 Remember to use #SpendChristmasWithME in any of your posts and interact with other posts! Let's spend Xmas together from home 🫶🏼 #MECFS #LongCovid

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Niko Suvisto @nikosuvisto.com · 21/12/2024

I’ll listen to and share one Christmas themed album every day until Christmas. Today I’m also sharing a photo of me, as a bonus, listening to music, this is how it is for me! 1/3 #SpendChristmasWithME #MusaSky #MusicSky #MECFS #LongCovid

A black and white image. It’s a selfie made with the ultrawide lens of an iPhone. The author of the post is laying in bed. He has a sweatshirt on. He’s listening to music with wired headphones. He’s looking at the camera. He has a pillow on his stomach, and his other hand is resting on the pillow. On the right side of the image, on the bed next to his, you can see an iPad and a pillow. And the headphones wires are connected to a DAC/Amp. There’s some other stuff in the right corner of the photo, like glasses, a toy horn and some cables.

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Tina Katsaros @tinakatsaros.bsky.social · 21/12/2024

I remember watching this every Christmas Eve growing up with the family. A true Christmas classic 🚂💺🎄 #SpendChristmasWithME

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Niko Suvisto @nikosuvisto.com · 20/12/2024

I’ll listen to and share one Christmas themed album every day until Christmas. Today’s album is: Kelly Finnigan - A Joyful Sound (2020) (soul, R&B, funk) Kelly Finnigan’s, the frontman of Monophonics, Xmas album is very soulful. 1/3 #SpendChristmasWithME #MusaSky #MusicSky #MECFS #LongCovid

open.spotify.com

A Joyful Sound

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#MEAction Network @meactnet.bsky.social · 20/12/2024

For anyone who needs to hear this today. "What I most want is for all of those who are in those dark rooms and in pain and struggling to access nutrition and so very alone- to feel our love. We are sending it to you every day." Thread. #PwME #SevereME #MyalgicEncephalomyelitis #LongCovid

What I most want is for all of those who are in those dark rooms and in pain and struggling to access nutrition and so very alone- to feel our love. We are sending it to you every day. You are in our hearts- all of the community is- but those who cannot interact with our online world or who can do so very rarely, we hold a very special place for you. We are fighting for you to be able to join us once again.

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Simone @phoenixme.bsky.social · 21/12/2024

Calling fellow MEeps! Emerge Australia, the national patient organisation for #mecfs and #longCOVID in Australia, recently joined Bsky, but the account is looking a bit sad with only 14 followers. Help me out by following the account! TIA! bsky.app/profile/emergeaustralia.bs…

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Tina Katsaros @tinakatsaros.bsky.social · 21/12/2024

Day #2 of #SpendChristmasWithME 🎄 Today's movie recommendations: - The Polar Express 🚂💺🔔 - Elf 🧝🎅🏼 Remember to use #SpendChristmasWithME in any of your posts and interact with other posts! Let's spend Xmas together from home 🫶🏼 #MECFS #LongCovid

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Tina Katsaros @tinakatsaros.bsky.social · 20/12/2024

Who else is a subtitle watcher? 👀 I refuse to watch things at home without them, although I know this is definitely a controversial opinion. 😬 Enjoying Movie #2 tonight: The Santa Clause 🎅🏼 #SpendChristmasWithME

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Tina Katsaros @tinakatsaros.bsky.social · 20/12/2024

Watching Jingle All The Way with my nieces tonight ❤️ First time watching this one. Love Arnie so far in this role. #SpendChristmasWithME

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Tina Katsaros @tinakatsaros.bsky.social · 20/12/2024

One of my favourite Xmas songs 🎶🎄 Doesn't matter how many times I listen to this song, I can never get sick of it. Mum used to play this every day in December growing up, so nostalgia definitely plays a part in that ❤️ What's your go-to Xmas song? #SpendChristmasWithME

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Tina Katsaros @tinakatsaros.bsky.social · 20/12/2024

Shoutout to @nikosuvisto.bsky.social for a great Christmas themed album recommendation 🎶 Niko shared this album as part of the #SpendChristmasWithME campaign here on BlueSky, but thought I would also share it since it’s been on repeat at work last few days 🎷🎄 open.spotify.com/album/2qecyn...

open.spotify.com

Have Yourself a Soulful Little Christmas

Kenny Burrell · Album · 2003 · 12 songs

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Niko Suvisto @nikosuvisto.com · 19/12/2024

I’ll listen to and share one Christmas themed album every day until Christmas. Today’s album is: Vince Guaraldi Trio - A Charlie Brown Christmas (2022 Mix) (1965) (jazz) 1/3 #SpendChristmasWithME #MusaSky #MusicSky

open.spotify.com

A Charlie Brown Christmas (2022 Mix)

Vince Guaraldi Trio · Album · 2022 · 11 songs

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Tina Katsaros @tinakatsaros.bsky.social · 19/12/2024

#SpendChristmasWithME campaign begins tomorrow! Starting with our first 2 movies: - The Santa Clause 🎅🏼 - Jingle All The Way 🎄🧸 Remember to use #SpendChristmasWithME in any of your posts and interact with other posts! Let's spend Xmas together from home 🫶🏼 #MECFS #LongCovid

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Niko Suvisto @nikosuvisto.com · 18/12/2024

I’ll listen to and share one Christmas themed album every day until Christmas. Today’s album is: Sharon Jones & The Dap-Kings - It’s A Holiday Soul Party (2015) (soul, funk) 1/3 #SpendChristmasWithME #MusaSky #MusicSky

open.spotify.com

It's a Holiday Soul Party

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Niko Suvisto @nikosuvisto.com · 17/12/2024

I’ve made a lot of new friends this past year. I’m very thankful for an online community. So, I thought about sharing something here, to give something for others. I also saw this social media campaign for Christmas time. It hasn’t started yet, but I’m still participating already. 3/5

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Tina Katsaros @tinakatsaros.bsky.social · 17/12/2024

And just like that, the MAPP HDR Student Society wraps up 2024 with our final event - a Wellness Retreat! See the highlights below! 📸 A huge thanks to our incredible committee for their hard work in organising events that HDR students loved this year👏 Here’s to 2025! 🫶🏼

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Tina Katsaros @tinakatsaros.bsky.social · 16/12/2024

4 days until the #SpendChristmasWithME campaign begins! 🎄 Please join in however you can! Whether that's joining in on our movie nights or just sharing a message/photo using #SpendChristmasWithME. Let's bring together #pwME and #pwLC and share how you #SpendChristmasWithME

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Tina Katsaros @tinakatsaros.bsky.social · 05/12/2024

Bring together #pwME and/or #pwLC this Christmas 🎄 Share a photo of your Xmas with #MECFS or #LongCovid and enjoy suggested movies knowing that you are not alone and others are watching with you. See my pinned post to see how you can get involved. #SpendChristmasWithME @meresearchuk.bsky.social

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