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Terry Makewell

@terrymakewell.com
1.6K followers 725 following 185 posts

Gov CDTO | Evelyn Glennie Foundation Trustee | Prev Gov CTO, CDO & NHS | Accessibility | Ménière's disease Exeter, Devon

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Terry Makewell @terrymakewell.com · 07/09/2025
The space nerd is still strong in me 🌙 ✨ The September 2025 lunar eclipse from Exeter, UK
The lunar eclipse. A crescent moon which is coloured red.
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Terry Makewell @terrymakewell.com · 11/05/2025
An early morning walk with the dog led me past the fire in Exeter city centre. Thankfully it was under control pretty quickly, no one was hurt and it didn't make it to St Nicholas Priory www.bbc.co.uk/news/article...
Plume of black smoke coming from behind a church Firemen watching flames down an alley way.
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The Evelyn Glennie Foundation @evelynglenniefd.bsky.social · 06/03/2025
With International Women’s Day coming up, our founder Dame Evelyn Glennie focuses on the radical power of listening to women, and how it can reshape the global landscape of unity, empathy, and shared humanity. Read the article in full: bit.ly/3Da8PnI #TeachTheWorldToListen #IWD2025
Image description: Black text against a pale lilac-blue background: “This International Women’s Day, let’s commit to more than just a nod of recognition. Let’s commit to real listening – a listening that can change the course of history.” Dame Evelyn Glennie
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Terry Makewell @terrymakewell.com · 11/02/2025
I've been missing for a while. I had an operation that purposely destroyed my balance function and made me lose even more hearing. I had to learn to balance and walk straight again. I thought I'd share some of my menieres and deafness journey to help others www.linkedin.com/posts/makewe...
linkedin.com
Terry Makewell on LinkedIn: #hearingloss #menieres #inclusion #tinnitus #balancedisorders…
Not all disabilities are visible. I know this from lived experience. 🧏‍♂️ I've had Ménière’s disease for nearly 20 years now. It’s a rare a rare inner ear…
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The Evelyn Glennie Foundation @evelynglenniefd.bsky.social · 28/01/2025
Our Founder, Dame Evelyn Glennie is excited to announce the launch of The Evelyn Glennie Foundation’s first dedicated website — our platform to share our mission and work with the world. #TeachTheWorldToListen
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Terry Makewell @terrymakewell.com · 08/01/2025
The wettest sloppiest sloshy slappin footsteps you've ever freakin heard 👾 4/5 viewers aged 18-25 yrs use subtitles/closed captions. It helps when distractions & devices compete for attention 📱💻 Stranger Things did this well, understanding audience & context. The Media Act 2024 will give us more
Screenshot of the series Stranger Things. It shows a scary looking monster with lots of tentacles. The closed captions read - The wettest sloppiest sloshy slappin footsteps you've ever freakin heard.
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Terry Makewell @terrymakewell.com · 15/12/2024
Well the 4th verse of 'We three Kings of Orient are' takes a dark turn. Sighing, bleeding, dying, sealed in the stone-cold tomb. Great Nativity at Exeter Cathedral though 🌟🦙
Programme showing 4th verse of 'We three kings of orient are'. Which goes as.....

Myrrh is mine; its bitter perfume breathes a life of gathering gloom; sorrowing, sighing, bleeding, dying, sealed in the stone-cold tomb.
O star of wonder....Printed programme with Exeter Cathedral, the Exeter Nativity, Sunday 15th December 2024, 4pm. Nativity play with carols.
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Sarah Johnson @sarahjohnson.bsky.social · 06/12/2024
*Important*. We don't issue Red warnings lightly. Please keep a close eye on our Met Office forecasts & warnings. Storm Darragh is going to bring dangerous winds. We've also got Amber and Yellow warnings out for wind and rain. Check out our app, website or socials for specific details for your area.
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Terry Makewell @terrymakewell.com · 02/12/2024
It's that time of year when RNID people from across the country travel to meet up for our charity summit. Even as a fully remote org we value meeting up 3 times a year. We're going to share, learn and celebrate....and wear our Christmas jumpers! 🎅🎄
Photo is looking along a train line at a train station. There are people waiting for the imminent arrival of a train. The sky has dark clouds and there is a rainbow spread across the sky.
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Terry Makewell @terrymakewell.com · 27/11/2024
Absolutely gutted not to be able to make it to @ukcharitycamp.bsky.social tomorrow....because of stuff. I've only been waiting 11 months! 🤷 There will still be someone from RNID there though. Hoping to be able to follow it on @bsky.app #UKCharityCamp
media.tenor.com
a man with a beard is wearing a red shirt and making a gesture with his hand on his chest .
Alt: a man with a beard is wearing a red shirt and making a gesture with his hand on his chest .
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The Evelyn Glennie Foundation @evelynglenniefd.bsky.social · 27/11/2024
The Foundation has been delighted to open its doors to the eminent artist, Johnny Warrender, who is focusing on capturing images related to war and conflict. This Ugandan drum created the sound of the Morse Code on BBC Radio during WW2, played by the late James Blades.
Image descriptions: Two colour photographs, the first of which shows the artist Johnny Warrender as he paints. We can see him stood looking towards his easel, whilst behind him are windows overlooking a car-park, with bright blue sky showing a very sunny but cold day. Surrounding him are (in the background) awards and instruments which form part of The Evelyn Glennie Collection. To his left, in the foreground of the photo, we can see some watercolour pans in his palette tin, a mixing palette tray, and an array of watercolour brushes. In the second photo, we can see the subject of Johnny's work - the Ugandan drum which created the sound of the Morse Code on BBC Radio during World War 2.Image descriptions: Two colour photographs, the first of which shows the artist Johnny Warrender as he paints. We can see him stood looking towards his easel, whilst behind him are windows overlooking a car-park, with bright blue sky showing a very sunny but cold day. Surrounding him are (in the background) awards and instruments which form part of The Evelyn Glennie Collection. To his left, in the foreground of the photo, we can see some watercolour pans in his palette tin, a mixing palette tray, and an array of watercolour brushes. In the second photo, we can see the subject of Johnny's work - the Ugandan drum which created the sound of the Morse Code on BBC Radio during World War 2.
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Terry Makewell @terrymakewell.com · 27/11/2024
The charity sector plays a critical role in delivering vital services. A small change (soft opt-in for email marketing) to the Data Bill could increase annual charity donations in the UK by £290 million! That's why I'm a co-signer on a letter to the Secretary of State. dma.org.uk/article/dma-...
dma.org.uk
DMA letter to Secretary of State Peter Kyle on behalf of the charity sector
Major charities have lined up behind the DMA's call for the government to extend the soft opt-in to the charity sector.
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Terry Makewell @terrymakewell.com · 21/11/2024
It finally reached down here in Exeter. Snow down by Exeter Quay EX2 8/10 #uksnow
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Terry Makewell @terrymakewell.com · 20/11/2024
Imagine climbing Mount Everest 🏔️ Now imagine doing it as a deaf mountaineer 🤯 Michael Woods highlights the difficulties of navigation when needing to sign in British Sign Language during foggy conditions or using a headlamp. Shaping Tomorrow Ep 3 is exceptionally inspiring youtu.be/DNT9I1V56Cs
A number of people using ropes to climb up the side of a snowy mountain.
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Aidan McGivern @aidanmcgivern.bsky.social · 19/11/2024
If you’re looking for a brief summary of this week’s weather… you’ve come to the wrong place 👇🏻 Deep Dive 19/11/2024 – Any more snow on the way? – Met Office weekly weather forecast UK youtu.be/GxlIIsSUhbM
youtu.be
Deep Dive 19/11/2024 – Any more snow on the way? – Met Office weekly weather forecast UK
YouTube video by Met Office - UK Weather
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Terry Makewell @terrymakewell.com · 19/11/2024
We've got some handy tips to help with making events more inclusive for deaf people 😀 rnid.org.uk/information-...
rnid.org.uk
Making your event deaf aware
There are several different types of communication and support which can be put in place to make events deaf aware.
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Terry Makewell @terrymakewell.com · 19/11/2024
JustGiving is now accepting cryptocurrency donations. 😕 Maybe not so strange with ~580 million crypto users worldwide & an estimated £1.5bn in cryptocurrency having been donated to charities [from Giving Block’s 2024 report] 💰 Maybe something to do with not being subject to capital gains tax?
civilsociety.co.uk
UK fundraising platform becomes first to accept cryptocurrency
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Terry Makewell @terrymakewell.com · 18/11/2024
Start the week the right way. Want to make online meetings more accessible and inclusive for those of us who are deaf or have hearing loss? Here's something to help. Mute when not speaking and only one person speaking at a time are the biggies. More tips here 👇 rnid.org.uk/wp-content/u...
Deaf awareness tips from RNID. They are listed in different groups. Full version is available at the link.
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Terry Makewell @terrymakewell.com · 19/11/2024
What gif pops up when you type your name?
media.tenor.com
a man in a suit says " and i need you " in a dark room
Alt: a man in a suit says " and i need you " in a dark room
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Terry Makewell @terrymakewell.com · 19/11/2024
Getting lots of photos of snow from my team across the country. This is Exeter.
View out of a window. The outside is blurry and lots of rain is seen on the glass.
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Terry Makewell @terrymakewell.com · 18/11/2024
Start the week the right way. Want to make online meetings more accessible and inclusive for those of us who are deaf or have hearing loss? Here's something to help. Mute when not speaking and only one person speaking at a time are the biggies. More tips here 👇 rnid.org.uk/wp-content/u...
Deaf awareness tips from RNID. They are listed in different groups. Full version is available at the link.
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Terry Makewell @terrymakewell.com · 16/11/2024
📢 Job alert !! Mid Level Service Designer £42-46k per year Fully UK remote working (we have no offices!) with no core hours. Work for a charity that is making a real difference for the 18 million people in the UK who are deaf, have hearing loss or tinnitus. careers.rnid.org.uk/job/635472
media.tenor.com
a man is sitting at a desk in front of a computer and smiling .
Alt: A man is sitting at a desk in front of a computer and typing the keyboard really fast.
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Space @redditspaceviewes.bsky.social · 15/11/2024
The Heart Nebula
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Terry Makewell @terrymakewell.com · 14/11/2024
Something nice for a Thursday evening. Dame Evelyn Glennie improvising on the Amadinda 🎵🎶
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RNIB @rnib.bsky.social · 14/11/2024
New to @bsky.app? We’ve got some etiquette just for you! Turn on the little feature that reminds you to post alt text with your images. Alt text allows blind and partially sighted people to understand what's in your images using screen readers. Without alt text, it just says "image".
Screen shot of "Accessibility Settings" with two main categories: "Alt text" and "Media." Under Alt text, there are two toggle options labelled "Require alt text before posting," which is switched on. “Display larger alt text badges" Under Media, there’s an option labelled "Disable autoplay for videos and GIFs," which is switched on.
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Terry Makewell @terrymakewell.com · 14/11/2024
When is my bin collected? My favourite website to visit every Thursday. exeter.gov.uk/bins-and-rec...
exeter.gov.uk
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Terry Makewell @terrymakewell.com · 14/11/2024
“It’s the noise, the passion, the feeling of belonging." Using technology to make sport more accessible and inclusive. Award winning work by Sela, CuteCircuit, and RNID that makes a difference 🏆 www.thedrum.com/news/2024/11...
Scene of Newcastle United fans celebrating in a crowd. The words 'unsilence the crowd' are shown in front.
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Clearyb @clearyb.bsky.social · 13/11/2024
Hi new followers👋 Sudden hearing loss led to me finding a long-lost ghost story by Bram Stoker. It is published now with a foreword from Roddy Doyle, artwork from Paul McKinley, & essays from Paul Murray/Charlotte Stoker/me. Proceeds go to research on preventing hearing loss in vulnerable newborns.
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John Burn-Murdoch @jburnmurdoch.ft.com · 13/11/2024
A tale of two platforms: BlueSky user numbers have hit a new record high in recent days, while the number of people deleting their accounts on X/Twitter has rocketed 🚀
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Terry Makewell @terrymakewell.com · 13/11/2024
Statement from the President- elect. Not unexpected, but 'one or two' conflicts of interest there I'd say. On a similar note, Winter is coming ❄️
"Together, these two wonderful Americans will pave the way for my Administration to dismantle Government Bureaucracy, slash excess regulations, cut wasteful expenditures, and restructure Federal Agencies,” Trump said in a statement
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Terry Makewell @terrymakewell.com · 12/11/2024
In just over 2 weeks @ukcharitycamp.bsky.social is happening. This is an unconference specifically for the third sector people who work in digital. It's in Birmingham on 28 November 2024. Get your free ticket here - www.ukcharitycamp.com Maybe see you there?
media.tenor.com
a girl wearing sunglasses with the words see you there on the bottom
Alt: A girl wearing sunglasses with the words see you there on the bottom
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Terry Makewell @terrymakewell.com · 10/11/2024
Introduce yourself with some jobs you have done apart from what you do now. Theme park ride attendant (Peppa Pig World) Supermarket shelf stacker Argos warehouse 'operative' Deputy Head Boy TV Production runner
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Terry Makewell @terrymakewell.com · 10/11/2024
People: Children's plays need to be more accessible English Touring Opera: Hold my apple juice (When touring the country doing opera in theatres the ETO also put on musicals for children in local libraries with captions and British Sign Language) #accessibility
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Ada Lovelace Institute @adalovelaceinst.bsky.social · 07/11/2024
📣Register for our online panel on the UK's industrial approach to AI. -Ada's @halcyene.bsky.social -@ambakak.bsky.social, @ainowinstitute.bsky.social -Haydn Belfield, @cser.bsky.social -Mary Towers, @the-tuc.bsky.social 🗓️11 November 🕔17:00 UK time www.adalovelaceinstitute.org/event/uk-ind...
adalovelaceinstitute.org
The UK’s industrial approach to AI – what’s next?
Join the Ada Lovelace Institute as we make sense of the current AI policy landscape and debate the way forward for the UK's industrial approach to AI.
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Terry Makewell @terrymakewell.com · 06/11/2024
For those who need cat photos today. Here's my cat dressed for Halloween in 2016
Black cat wearing combed off hair on their head like Donald Trump haircut.
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Terry Makewell @terrymakewell.com · 31/10/2024
According to a train company I live in the spookiest place in the country. Not going to ask how they determined that 👻🎃 #exeter www.lner.co.uk/news/lner-re...
Photo of old building on cathedral cloae
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John Burn-Murdoch @jburnmurdoch.ft.com · 21/10/2024
Everyone saying “no we can’t let the NHS use a proper joined up digital patient database, it’s all part of a plot to privatise British healthcare and sell your data” should be forced to read the dozens (hundreds?) of case studies like these www.bbc.co.uk/news/health-...
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Terry Makewell @terrymakewell.com · 09/10/2024
I only get a train once a month now. However there are always issues. Today found me sharing an Uber with 3 strangers between Huntingdon and Bedford to get on a different train line.
media.tenor.com
two men are sitting in front of a door that says planes trains and automobiles on it
Alt: Image of Steve Martin and John Candy from the movie Planes, Trains and Automobiles
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Terry Makewell @terrymakewell.com · 27/09/2024
Go to the south of France in September they said. It'll be lovely they said
Picture of a woman walking on a rainy beach with a child on their shoulders. There is a bolt of lightning in the background
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Terry Makewell @terrymakewell.com · 27/09/2024
Further from the eyes of god I go
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Terry Makewell @terrymakewell.com · 18/09/2024
There are only 3 posts on the whole of @bsky.app that mention that it's #BalanceAwarenessWeek 👂, so I feel I should add to that. I've a vestibular (inner ear) disorder that causes dizziness & balance problems. I'm in the company of Chris Packham, Jessie J & others www.menieres.org.uk/information-...
media.tenor.com
a goat is jumping over a fence with a 4gifs.com watermark on the bottom right
Alt: 3 goats trying to balance on a bending piece of metal.
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Terry Makewell @terrymakewell.com · 16/09/2024
Gigantic wave in Pacific Ocean was the most extreme 'Rogue Wave' on record. An exceptional event that is thought to occur only once every 1,300 years. Grounding for a Monday morning. www.sciencealert.com/gigantic-wav...
youtu.be
The most extreme rogue wave on record
YouTube video by ScienceAlert
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Terry Makewell @terrymakewell.com · 12/09/2024
📢 Aurora Borealis Alert !! 💫 The Northern Lights will be visible across the UK tonight! Lots of clear skies as well. Get out there & take that rubbish photo with your phone
Map showing where the aurora borealis can be seen. It is red over parts of the UK.Chart showing an extreme spike in solar activity and that the aurora is very likely tonight.
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Terry Makewell @terrymakewell.com · 10/09/2024
Great for a geo-nerd like me. Brought to you courtesy of the glaciers, rock formations and deltas in USA, Iceland, Argentina, Italy and New Zealand.
Satellite images where the natural geography spells out the word T E R R Y
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Terry Makewell @terrymakewell.com · 09/09/2024
While I'm not a fan of Apple and vendor lock-in, this has the potential to be a game changer. The age of Hearables is potentially about to go mainstream. www.theverge.com/2024/9/9/242...
theverge.com
The AirPods Pro 2 will soon double as hearing aids
As soon as the feature clears it's FDA approval anyway.
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Terry Makewell @terrymakewell.com · 06/09/2024
Solar activity is the strongest for 23 years. This means continuing increased chance of seeing the Northern Lights for the foreseeable future. Every night could be an Aurora Borealis night.....if the rain ever stops! 🌧️☔
Graph showing increase in solar activity from 2012 to 2024
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Simon Kuestenmacher @simongerman600.bsky.social · 05/09/2024
Take this map by @landgeist as a friendly reminder that you aren’t reading enough. Source: buff.ly/3MwvH1H
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Terry Makewell @terrymakewell.com · 02/09/2024
Fact: More than 30% of men are too embarrassed to wear a hearing aid. Chris Packham (fellow Menieres sufferer) on the BBC One Show earlier talking about the perceived stigma of wearing hearing aids. Vanity certainly kept me in silence for many years #deafness #inclusion
A screenshot of Chris Packham with the subtitles "in the early 1990s I began to suffer from a condition known..."A screenshot of Chris Packham's ear, with the subtitles "as Menieres syndrome which led to a loss of hearing"A screenshot of Chris Packham with the subtitles "But over 30% of men say they are too embarrassed to wear a hearing aid"A screenshot of Chris Packham with the subtitles "But I don't take my hearing for granted".
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Terry Makewell @terrymakewell.com · 30/08/2024
A dedicated special zone for the deaf community and Chris Martin signing the first part of 'Something Just Like This'. Whether you like them or not, Coldplay have to be lauded for their inclusivity. Can't imagine the Gallagher brothers doing this.
Chris Martin, the lead singer of Coldplay, on stage with an alien head on. He is signing the words to the song. Croke Park, Dublin.
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