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Nchangwi Syntia

@synthymama.bsky.social
727 followers 508 following 20 posts

Be Kind | Global Health Research-Governance| Bioethics-Genomics, Data Science, Infectious Disease| I believe in love| Hugger-in-chief| Social Vegan|

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Nchangwi Syntia @synthymama.bsky.social · 23/07/2026
Science advances best when scientists listen to communities, connect with the public, throw off perceptions of elitism and have honest conversations about uncertainties This @nature.com Editorial is a reminder that open communication & humility are important in science www.nature.com/articles/d41...
nature.com
The complex truth about trust in science
Confidence in science has not collapsed, but scientists have urgent problems to address.
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CIDRAP @cidrap.bsky.social · 29/06/2026
Ebola outbreak spreads to 4th province in DR Congo The growing outbreak has prompted the government of the Democratic Republic of the Congo to ban mass gatherings in the country’s capital www.cidrap.umn.edu/e...
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TARGetAMR @target-amr.bsky.social · 30/06/2026
🚨 One month left to apply for the TARGetAMR Flexible Funding Initiative (FFI)! 💡 Designed to facilitate cooperative working across disciplines and stimulate new transdisciplinary research 📅 Deadline: Friday 31 July 2026 🔗 More details & how to apply: www.targetamr.org.uk/flexible-fun...
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Global Research Initiative on Open Science (GRIOS) @grios-openscience.bsky.social · 07/01/2026
[1/3] Worth reading in @science.org: really important, comprehensive work on #OpenScience impact by the @pathos-project.bsky.social. Some benefits are well-documented (citations, citizen science), but strong evidence for broader economic/societal impacts still sparse. www.science.org/content/arti...
science.org
Is ‘open science’ delivering benefits? Major study finds proof is sparse
It’s hard to measure social and economic impacts of making papers and data free, researchers say
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Florian Naudet @floriannaudet.bsky.social · 16/10/2025
😃 to share this new @plos.org Medicine 📄 written in collaboration with the super cool @kahin-tai.bsky.social (from the super cool @sharectd.bsky.social doctoral network), Gérard Legoff, @annelelouarn.bsky.social & @synthymama.bsky.social.
journals.plos.org
Open science must include effective results dissemination to study participants
Open science often centers around publications and data transparency. This Perspective discusses how and why disseminating results to study participants is essential for maximizing the values and bene...
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TARGetAMR @target-amr.bsky.social · 25/09/2025
🚨Happening today! 🚨 👨‍🍳The food-associated resistome with Dr Avelino Álvarez-Ordóñez ⏲️At 12pm today! 📍Online via teams 🔗Register here: www.targetamr.org.uk/hdrevents/ta...
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Nchangwi Syntia @synthymama.bsky.social · 08/09/2025
We propose a roadmap for promoting a data-sharing culture in African health research. It integrates dynamic consent, benefit-sharing, controlled access infrastructures & data sovereignty. See: www.nature.com/articles/s41.... @dsi-africa.org @aphrc.bsky.social @natureportfolio.nature.com
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DS-I Africa @dsi-africa.org · 16/07/2025
⏰ 38 days to go! Join us for the Data for Health in Africa & 5th DS-I Africa Consortium Meeting 📍Cedi Conf. Centre, Univ. of Ghana 🗓️ 23–29 Aug 2025 Theme: Data Science in Africa: Strengthening Partnerships and Collaboration across Networks, Sectors and Impact Areas 🔗 Info: lnkd.in/eWEzjUEG
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Nchangwi Syntia @synthymama.bsky.social · 18/06/2025
Second teenage boy dies from liver failure following #Genetherapy for Duchenne muscular dystrophy, raising concerns over safety. The company (Serepta) says it will pause the study & assemble an expert panel to recommend new safety protocols. #RareDisease apnews.com/article/sare...
apnews.com
Second patient death reported with gene therapy for muscular dystrophy
Shares of Sarepta Therapeutics have plunged again after the drugmaker reported a second death in connection with its gene therapy for muscular dystrophy.
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Nature @nature.com · 06/06/2025
Sierra Leone has confirmed 15 deaths and more than 3,000 mpox infections go.nature.com/4kYY1ZP
go.nature.com
Skyrocketing mpox outbreak in Sierra Leone raises fears of wider spread
Boom in infections in the West African nation is driven by the same viral strain that caused a global outbreak in 2022.
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Nchangwi Syntia @synthymama.bsky.social · 14/05/2025
What the public expects of publicly visible scientists: Solid professional reputation; Base their comments on evidence; Tell the truth; Not operate too closely to politics; No hidden agenda; charismatic; articulate. @marinajoubert.bsky.social @theconversation.com theconversation.com/new-survey-e...
theconversation.com
New survey explores what people in South Africa expect of publicly visible scientists – why it matters
When asked to name a living scientist from their own country, more than half of the respondents in both countries did not reply.
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MINOR revision @handle.invalid · 02/04/2025
#AcademicSky #SciPub #PeerReview #PhDSky #OpenScience #AcademicResearch #AcademicWriting #ScholarlyPublishing #AcademicPublishing #AcademicChatter #Comics 🧪
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Nchangwi Syntia @synthymama.bsky.social · 10/03/2025
Science diplomacy & academic-industry partnerships are key to realizing "Genomics for All." African gov'ts, researchers, biotech, civil society & health agencies must collaborate & define a path for translational #genomics medicine in Africa. link.springer.com/article/10.1...
link.springer.com
Science and Society: Pathways to Equitable Access and Delivery of Genomics Medicine in Africa - Current Genetic Medicine Reports
Purpose of Review Recent advances in genetics are pushing the frontiers of health research in Africa. Notable developments include the release of the draft human pangenome reference, regulatory approv...
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Tess Johnson @drtessjohnson.bsky.social · 06/03/2025
I was delighted to see this special issue published last week, after a rewarding journey through questions of #justice and #amr
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Jack 🦠 @jack-d-barber.bsky.social · 13/02/2025
www.nature.com/articles/d41... #GlobalHealth #HealthEquity
nature.com
US aid cuts are an opportunity to reimagine global health
The global south should become self-reliant by investing in health.
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Nchangwi Syntia @synthymama.bsky.social · 19/02/2025
We need to develop more holistic, inclusive, socially just & ecologically sustainable approaches to health, science & environmental stewardship for the well-being of all life on Earth. Article: link.springer.com/article/10.1.... @biomedcentral.bsky.social
Eco-bio-communitarianism: Reimagining Bioethics for Sustainable Health
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Joseph Yaroch @jcyaroch.bsky.social · 19/02/2025
"These can be appealing qualities in the classroom, of course, but overemphasizing them can undermine the learning of students who are inward-thinking and easily drained by constant interactions with others." www.theatlantic.com/education/ar...
theatlantic.com
Why Schools Are Increasingly Neglecting Introverts
For many students, quiet time is key for the learning process.
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Christopher R. Matthews @drcrmatthews.bsky.social · 19/02/2025
If more academics dropped the main character syndrome, the university sector would be a much better place. The more senior you become, the more you should see your role as a facilitator and assister. You may still need to lead, but it's to lift others up, not yourself.
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Nchangwi Syntia @synthymama.bsky.social · 12/02/2025
"My ideas matter more than how I sound". Sometimes people struggle to believe something said with an unfamiliar accent. As an international scholar, Ogochukwu Uweru says he is learning to speak up-accent and all. | Science | AAAS www.science.org/content/arti...
science.org
As an international scholar, I’m learning to speak up—accent and all
“My ideas matter more than how I sound,” this postdoc writes
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Nchangwi Syntia @synthymama.bsky.social · 31/01/2025
In this paper, we argue that addressing ethical issues in #DataScience health research and #genomics requires a holistic social contract. Thanks to @hastingscenter.bsky.social Report for considering & publishing our work (onlinelibrary.wiley.com/doi/10.1002/...).
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Nchangwi Syntia @synthymama.bsky.social · 28/01/2025
Be Kind #tuesdaymotivations #BeKindAlways
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Florian Naudet @floriannaudet.bsky.social · 23/01/2025
🚨: New publication « Data management and sharing » in @jclinepi.bsky.social with Claude Pellen, @synthymama.bsky.social, Anna Catharina Armond, Ulrich Mansmann, Maximilian Siebert. A 🧵.
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Science News @scinews.bsky.social · 23/01/2025
How much do people around the world trust scientists? "Most people have a relatively high trust in scientists. People want scientists to take an active role in society and policymaking." www.nature.com/articles/s41...
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GeneMAP Research Center @genemap-center.bsky.social · 18/01/2025
"One Humanity, Many Genomes" is a reminder of our shared evolutionary origins & African heritage-A call to explore the vast diversity of genomes & strive for an equitable genomic medicine agenda worldwide. Ambroise Wonkam proposes a 5-point agenda www.sciencedirect.com/science/arti....
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Nature @nature.com · 13/01/2025
“It’s going to take me longer, but I will get there. My plans have not changed, don’t give up, don’t step away from mentorship” Early-career researchers describe how they juggled workloads, emotions and finances after having children. go.nature.com/4gSIfhj
go.nature.com
PhD parents: the pros and cons of having a child during your doctorate
Early-career researchers describe how they juggled workloads, emotions and finances after having children.
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Nature Portfolio @natureportfolio.nature.com · 22/12/2024
Many workplaces have parties or team meals to celebrate the end of the working year, but some show true appreciation by cultivating group traditions. Nature asked group leaders to explain these, and how they thank colleagues for their hard work. #AcademicSky
go.nature.com
How to thank your lab mates: eight ways to show gratitude at the end of year
Alongside secret Santas and seasonal parties, many laboratories develop traditions to show appreciation to colleagues — from sweets and mulled wine to quizzes and ice-skating trips.
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CNN @cnn.com · 22/12/2024
Eight years ago, a budding scientist gave a commercial airline pilot a gift that would link the two for life. Since then, they'd met in person and linked up on social media. But when she boarded a flight a week ago, she didn't expect to see him. Then an announcement came over the PA system.
cnn.it
A pilot raced through the airport to surprise an old friend: the woman who saved his life | CNN
When Allie Reimold boarded Flight 2223 in Houston a week ago, she didn’t expect to see the pilot whose life she had saved.
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Centre for Research Ethics & Bioethics @crb-uu.bsky.social · 10/12/2024
New on the #EthicsBlog >> Were many clinical trials during the #COVID19 pandemic unethical?
ethicsblog.crb.uu.se
Were many clinical trials during the COVID-19 pandemic unethical? - The Ethics Blog
It is understandable if the COVID-19 pandemic spurred many researchers to conduct their own studies on patients with the disease. They wanted to help in a difficult situation by doing what they were c...
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Nchangwi Syntia @synthymama.bsky.social · 03/12/2024
We asked a few people what genetics is/means in their home language. Here is their response. We are adding more African languages. If you'd like to contribute to this resource, please let me know t.co/tqP4qHjteF
t.co
https://youtu.be/Yrd5634fGgo?si=lF8dax6RSUEKjuM4
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TARGetAMR @target-amr.bsky.social · 27/11/2024
Still time to register for our #TARGetAMR online launch event taking place on Friday at 12pm, with guest speaker: Prof. Adrian Egli, University of Zurich. Sign up now: targetamr.org.uk/hdrevents/ta... #Genomics #AMR #TeamScience
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Science News @scinews.bsky.social · 26/11/2024
🎯Welcome to Bluesky! @bsky.app “If I wanted to thrive in academia, I would need to actively cultivate networking habits.” @science.org AHALYA SURESH, DEAKIN UNIVERSITY #scisky #PhD #Academic #news
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Nchangwi Syntia @synthymama.bsky.social · 19/11/2024
We report on the analysis of 37 data protection legislation in Africa, present key principles, data process, rights of data subjects, legal grounds for cross-border data transfers, & propose ethical & technical strategies to enhance compliance. health-policy-systems.biomedcentral.com/articles/10....
health-policy-systems.biomedcentral.com
Data protection legislation in Africa and pathways for enhancing compliance in big data health research - Health Research Policy and Systems
Background The increasing availability of large volumes of personal data from diverse sources such as electronic health records, research programmes, commercial genetic testing, national health survey...
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Seye Abimbola @seyeabimbola.bsky.social · 18/11/2024
I'm happy to announce that my book, "The Foreign Gaze: Essays on Global Health", is now out! You can order the print copy and download the e-copy (open access) here: www.editions.ird.fr/produit/728/... The book comes with a playlist for your listening pleasure: open.spotify.com/playlist/5K5...
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Christina SanInocencio @csaninocencio.bsky.social · 18/11/2024
Very cool opportunity from the #Epilepsy Foundation. They are launching a Research Ambassador Program to strengthen connections between the epilepsy community and research, providing insight into the processes of clinical research and new therapy development. www.epilepsy.com/research-fun...
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Nature Portfolio @natureportfolio.nature.com · 18/11/2024
Some newer AI-powered science search engines can already help people to produce narrative literature reviews, but some researchers fear that AI tools could lead to more sloppy, inaccurate or misleading reviews polluting the literature. Read the Nature feature. 🧪
go.nature.com
Can AI review the scientific literature — and figure out what it all means?
Artificial intelligence could help speedily summarize research. But it comes with risks.
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TARGetAMR @target-amr.bsky.social · 30/10/2024
We've officially launched the #TARGetAMR network! Join us on our mission to create a #Transdisciplinary network to explore how #Genomics can combat #AMR. Together we can make a difference: Sign up now: targetamr.org.uk #AntimicrobialResistance #GlobalHealth #SaveLives
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Johns Hopkins Berman Institute of Bioethics @bermaninstitute.bsky.social · 11/11/2024
‘What’s your pain right now?’ Sickle cell, loss, and survival in America www.statnews.com/2024/11/11/c... via @statnews.bsky.social
statnews.com
'What's your pain right now?' Sickle cell, loss, and survival in America
For a St. Louis woman wrestling with pain and a coercive sterilization, crises come in waves
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Johns Hopkins Berman Institute of Bioethics @bermaninstitute.bsky.social · 11/11/2024
Justifications and acceptability of coercive public health measures in the COVID-19 response in South Africa: a case study of the jurisprudence of human rights cases - By Safura Abdool Karim | Monash Bioethics Review link.springer.com/article/10.1...
link.springer.com
Justifications and acceptability of coercive public health measures in the COVID-19 response in South Africa: a case study of the jurisprudence of human rights cases - Monash Bioethics Review
South Africa implemented a comprehensive response to COVID-19 comprising of several coercive public health measures. As in many countries, COVID-19 measures were subject to a number of legal challenge...
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Johns Hopkins Berman Institute of Bioethics @bermaninstitute.bsky.social · 11/11/2024
Dr. David M. Levine, former Johns Hopkins professor, dies: Dr. Levine was a founding core faculty member of the Berman Institute of Bioethics. www.baltimoresun.com/2024/11/10/d...
baltimoresun.com
Dr. David M. Levine, former Johns Hopkins professor of medicine, dies
Dr. David M. Levine, a retired Johns Hopkins professor of medicine who worked to prevent heart disease in the East Baltimore community, died Nov. 5 at Gilchrist Center Towson.
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Nchangwi Syntia @synthymama.bsky.social · 26/10/2024
The challenges of new requirements toshare individual participant data for US federally funded clinical trials carried out in other countries. What needs to be addressed to ensure equitable data sharing? @bmj.com t.co/ZWEj4nG2vR www.bmj.com/content/386/...
bmj.com
Navigating US participant data sharing requirements: implications for international clinical trials
Rafael Dal-Ré and colleagues consider the challenges of new requirements to share individual participant data for US federally funded trials carried out in other countries Despite practices and guide...
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Johns Hopkins Berman Institute of Bioethics @bermaninstitute.bsky.social · 24/10/2024
‘Not a free-for-all’: Indigenous communities want limits on how their data are shared | Science | AAAS www.science.org/content/arti...
science.org
‘Not a free-for-all’: Indigenous communities want limits on how their data are shared
Push for “data sovereignty” could reshape how scientists share information
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Nchangwi Syntia @synthymama.bsky.social · 22/08/2024
Our 5th PUBGEM-Africa science for society virtual café is on the theme "Shaping the Future of Genetics and Data Science in Medicine in Africa." Date: Thursday 22nd August at 15:00 GMT. Register at zoom.us/webinar/regi....
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Nchangwi Syntia @synthymama.bsky.social · 27/07/2024
Brazilian COVID-19 malpractice case: A physician had shared a protocol for managing COVID-19 cases with a warning: "Do not inform patients or their families about the drugs or the program." Classic case study for research & medical ethics. www.thelancet.com/journals/lan...
Brazilian COVID 19 malpractice case
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Nchangwi Syntia @synthymama.bsky.social · 19/04/2024
Our research project is preparing for a series of science & society cafes (virtual & in-person) on genomics, data science & health research. Sign up to get more information and join us for thought-provoking discussions on bioethics, genomics and data science.
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Holly Fernandez Lynch @hollylynchez.bsky.social · 01/03/2024
Bioethics friends, don't forget about www.diversebioethics.org when thinking about job postings, speaker invites, potential collaborators, recommendations for media contacts, etc. Also, it's time for a list refresh. Who's missing? 📣 Please continue to spread the word. 📣
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Nchangwi Syntia @synthymama.bsky.social · 26/01/2024
To be yourself is a revolutionary act. Be yourself
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Nchangwi Syntia @synthymama.bsky.social · 28/11/2023
Great to see this workshop take off following a year of online meetings with sickle cell disease patient support groups across Africa. Interesting discussions on a draft framework on how to equitably involve patients as partners in health research. Thanks for the support @SickleInAfrica, CERA ELSI
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Nature Portfolio @natureportfolio.nature.com · 13/11/2023
The time that children and adolescents spend interacting with screens is associated with both benefits and risks to education and health, but these effects are small, according to a review of 102 meta-analyses published in Nature Human Behaviour. go.nature.com/49C6EEA 🧪
A child is lying in bed under a blanket looking at a tablet.
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Johns Hopkins Berman Institute of Bioethics @bermaninstitute.bsky.social · 08/11/2023
Webinar: Kadija Ferryman, PhD, "Ethics and Healthcare Artificial Intelligence" - Nov 14, 7-8p EST. Open to all, link for more info & free registration to join via Zoom | Hot Topics in Research Ethics bioethics.jhu.edu/events/hot-t...
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