Abstract. Introduction: The diagnostic journey for rare diseases (RDs) often involves lengthy delays and significant burdens on patients and their families. Genetic newborn screening (NBS) for RDs…

Health data holds great value for research and development, even long after it was originally collected. It can shed light on questions beyond those that initially motivated the collection.…

Scientific Reports - Comparing emotion regulation, perceived discrimination, perceived social support and anxiety in North African immigrant and native French populations

When we talk about norms, we often overlook a higher norm in human interaction. I am thinking of the norm of having knowledge, the demand to know. Why do I say that knowledge is a higher norm?…

Background As healthcare systems undergo rapid digital transformation digital health literacy has become a critical determinant of equitable access to health services. Immigrants often additional…

Incorporating patient preferences into drug development is crucial, particularly, for rare diseases with significant unmet needs. This study used Best-Worst Scaling type 2 (BWS-2) to explore…

Publicerad i Nordisk socialrättslig tidskrift nr 45.2026, juni 2026 av William Bülow, Mats Johansson, Vilhelm Persson, Lena Wahlberg

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The study investigated how healthcare personnel communicate with families when experiencing language barriers, and the use of interpreters in Nordic p…

Background In intensive care units, critically ill patients often require life-sustaining interventions. When these no longer benefit the patient, care is often transferred to end-of-life care.…

During the 20th century, it was often considered scientifically suspect to talk about consciousness or to use psychological concepts that were not defined in terms of observable behavior. For even lon...

This program report describes the establishment of the Nordic Network for Genetic Counselling (NNGC) and the ongoing work toward developing a joint Nordic MSc in Genetic Counselling and increasing…

In the field of childhood cancer, care and research are closely linked. Children treated for cancer are often involved as participants in studies that can contribute to better future cancer care. It i...

Drawing on a genealogical analysis of the distinction between zoē (biological life as organic functioning) and bios (a distinctively human way of life shaped by meaning, orientation, and evaluative…

Over-indebtedness is a societal problem affecting nearly half a million individuals in Sweden, placing them at risk of deteriorating health and well-being. Municipal budget and debt counselling…

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Patient autonomy is a fundamental principle in healthcare and medical ethics. Patients have the right to be informed about what it means to undergo a proposed treatment (as well as what it means to re...

The debate about the use of artificial intelligence (AI) in medicine has intensified among different stakeholders, including academics, developers, patients associations, regulators, and the general public. This debate is driven by the development of a number of AI-based technologies designed for different medical applications, including diagnosis, prognosis, patient management, and healthcare delivery. Building on previous research examining Swedish radiologists’ and screening participants’ perception of AI use in mammography exams, this paper aims at identifying the ethical issues raised by these two populations. The ultimate goal is elaborating a structured set of key considerations and a map of ethical priorities that may inform the discussion regarding the use of AI in medical practice, particularly in ethical and regulatory debates on the use of AI in radiology.

An intensive care unit is a place where life is maintained with the help of advanced medical equipment. But it is also a place where life sometimes ends. In cases where it becomes clear that life-sust...

Global health discussions have, in recent years, made a point of involving young people. Conferences feature youth panels, international organisations hold youth consultations, and most major health s...

The value of scientific knowledge and fairness in distribution of academic credit are core values in research publication. However, it is little discussed in the literature that these values may co...

This paper presents the results from a qualitative study with Swedish researchers in the social sciences and the humanities. The aim of the study was to explore researchers’ perceptions of ethical rev...

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Research involving humans requires ethical review. Ethical review is important to protect the rights and interests of research participants, and to maintain public trust in research. Ethical review wa...

BMC Public Health - Informing the public about lifestyle-related risk factors for colorectal cancer (CRC) is central for cancer prevention. More knowledge is needed about the public’s...

“Consciousness” is an ambiguous concept that arouses the interest of people with different expertise, including the general public. This situation naturally creates several related ambiguities, for ex...

A vital tool for ensuring and improving quality in healthcare is clinical guidelines. Guidelines are used to support the clinicians’ memory and evidence-based decision-making, as well as to guide the ...

Statens medicinetiska råd föreslår att åldersgränsen för assisterad provrörsbefruktning, IVF, ska slopas för kvinnor över 40 år. Rådet menar att det nuvarande ...