iiinova — where your digital self keeps evolving

Susan K @susankmecfs.bsky.social · 21h

It was one of the best talks I’ve heard all year!!

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Susan K @susankmecfs.bsky.social · 21h

It was among the best 3 talks I’ve heard all year!! (out of 100)

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Reposted by Susan K

Billy Hanlon @bhanlon15.bsky.social · 01/10/2026

Looking forward to this talk by Institute for Systems Biology and Dr. Jim Heath

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Susan K @susankmecfs.bsky.social · 26/09/2026

Fav: Hacks Six feet under Homeland West Wing Madmen The Pitt Mare of Easton Somebody somewhere Lasso Crown Not on list, drama: Landman Lioness Hightown Nurse Jackie Tehran

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Susan K @susankmecfs.bsky.social · 26/09/2026

If you get insurance to cover, please consider sharing the ICD codes or rationale used. I have complement levels very low and slight hypogammaglobulin and still I got a no go. Pay out of pocket

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Billy Hanlon @bhanlon15.bsky.social · 22/09/2026

Dr. Grach: "..as of a couple weeks ago, have officially rebranded our clinic....historically our clinics were separate - Fibromyalgia, separate POTS, separate Long COVID clinics...we officially transitioned to our new Post-Infectious and Complex Chronic Conditions Clinic..."

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Billy Hanlon @bhanlon15.bsky.social · 28/08/2026

Institute for Systems Biology: How COVID-19 Can Trigger a Lupus-Like Immune Response ISB President and Professor Jim Heath and study lead author Dan Yuan '..may help explain connections between COVID-19, Long COVID and autoimmune disease' www.youtube.com/watch?v=_GMf...

youtube.com

How COVID-19 Can Trigger a Lupus-Like Immune Response

YouTube video by Institute for Systems Biology

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Susan K @susankmecfs.bsky.social · 07/08/2026

I was wondering when someone would write this - now let’s hope it gets explained to the US politicians

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Nature Reviews Immunology @natrevimmunol.nature.com · 07/08/2026

In this World View article from @miriammerad.bsky.social, she argues that spending on biomedical research is crucial for national defence and should be prioritized accordingly. rdcu.be/fyrGB

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Susan K @susankmecfs.bsky.social · 04/08/2026

This is fantastic for several reasons, naturally. How does her company know what to measure in blood? No one knows

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Susan K @susankmecfs.bsky.social · 29/07/2026

Too bad the healthies in 60-day bedrest group (age 30, 66% men) are different from the healthies in comparator group (age 42, 50% men) It matters bc there are age & sex differences in muscle & performance variables e.g. fCSA change due to bedrest is greater in males (v females) bc they begin larger

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Susan K @susankmecfs.bsky.social · 27/07/2026

Depletes all types of B cells including plasmablasts so wipes out humeral immunity Kinda scary, but this illness is pretty awful

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Susan K @susankmecfs.bsky.social · 24/07/2026

The MRI study is here: Singh TB, Marshall-Gradisnik S, Barnden L, Eaton-Fitch N, Huynh TH, Inderyas M Thapaliya K (2026) Microstructural alterations in brain tissue of ME/CFS and long COVID using diffusion tensor imaging and diffusion kurtosis imaging. Front. Med. 13:1824498. doi: 10.3389/fmed.2026

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Susan K @susankmecfs.bsky.social · 14/07/2026

Yes, thanks for posting, and for posting the authors’ interpretation Super skimpy on any lab methods How do these things get through peer review? Although a semi-thorough review is hard to find since everyone is over-worked

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Susan K @susankmecfs.bsky.social · 14/07/2026

Oddly though, there wasn’t a large decrease in the amount of HERV-W protein in the blood after or during the treatment period The small decrease was the same in treatment & placebo groups Same with blood cytokine levels

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Susan K @susankmecfs.bsky.social · 10/07/2026

I should’ve used the iced pack behind the neck years ago! And the service dog detection of pre crash is fascinating

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Sabrina Poirier @sabrinapoirier.bsky.social · 10/06/2026

ICYMI- Please share!

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Susan K @susankmecfs.bsky.social · 30/05/2026

I think one of the most interesting findings of the study was the increase in activating Fcγ receptor function in LC - assessed via antibody-dependent cellular phagocytosis using MED20 as an antigen

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Susan K @susankmecfs.bsky.social · 28/05/2026

How many people with persistent Covid antigen positivity had long COVID symptoms? In either group? Maybe it’s tucked in the paper somewhere, but not in methods

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Susan K @susankmecfs.bsky.social · 23/05/2026

Gorgeous! Super Model 🤍😻

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Susan K @susankmecfs.bsky.social · 16/05/2026

This is a great video Elizabeth is a very effective advocate Worth the spoons to listen

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Susan K @susankmecfs.bsky.social · 06/05/2026

Wow Thanks Billy, this is wild. They say supports the viral persistence hypothesis in Long Covid

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Susan K @susankmecfs.bsky.social · 05/05/2026

Hi Simon, This team is aware of the M Davis work looking for clonal expansion in T cells in 2017-2018 Roshan was at the Stanford meeting when Mark presented There are now better tools to study specific T cells, clonal expansion & antigen identification Try to listen to Ayano if you can - 10 min

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Johan Van Weyenbergh @johanvawe.bsky.social · 29/04/2026

Pathogenic IgG from #LongCOVID patients with neurological sequelae triggers sensitive but not cognitive impairments upon transfer into mice rdcu.be/ff6vi

rdcu.be

Pathogenic IgG from long COVID patients with neurological sequelae triggers sensitive but not cognitive impairments upon transfer into mice

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Reposted by Susan K

Billy Hanlon @bhanlon15.bsky.social · 26/03/2026

3/26/26, La Jolla Institute for Immunology: "The Pandemic We Didn’t See: What We Actually Know About Long COVID & Post-Viral Disease" Ft. LJI Associate Professor Sonia Sharma, PhD., UC SD Health cardiologist Pam Taub, MD & award-winning health journalist Jason Gale www.youtube.com/watch?v=7hn6...

youtube.com

The Pandemic We Didn’t See: What We Actually Know About Long COVID & Post-Viral Disease

YouTube video by La Jolla Institute for Immunology

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Brian Shuell @bshuell.bsky.social · 25/03/2026

@peters.senate.gov Please support our 3 asks for FY27 Appropriations: • $15.4M for the CDC ME/CFS Program • $50M for the NIH ME/CFS Research Roadmap • ME/CFS in the PRMRP #MEAwareness #MECFS

Graphic stating ME/CFS has no FDA-approved treatments, urging support for medical research funding through advocacy letters.

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Susan K @susankmecfs.bsky.social · 25/03/2026

Mine fits. 36.8 years old at age of onset

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Dr. Jeroen den Dunnen @drdendunnen.bsky.social · 13/05/2025

Second, Franziska Sotzny showing data on molecular mimicry, with patients expressing antibodies against EBV that also recognize human proteins, particularly those expressed in the brain. 3/7

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🍁Hilde🍁 @hildec.bsky.social · 12/06/2025

Here’s a short presentation of the Norwegian pilot study on using the medicine Daratumumab on MEpatients. The results have lead to the decision to turn this into a large study with 66 patients. The lecture is in Norwegian with English subtitles. #pwme #MEcfs

youtu.be

Professor Øystein Fluge (MD) - Biological treatment strategies (English subtitles)

YouTube video by Norges ME-forening - Rogaland Fylkeslag

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Susan K @susankmecfs.bsky.social · 26/02/2025

Interestingly, NIH funding also saved FOTUS’s life

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Susan K @susankmecfs.bsky.social · 26/02/2025

I wish it was this simple. Vitamin D supplements do nothing helpful in my case

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Susan K @susankmecfs.bsky.social · 31/01/2025

It’s interesting because antibodies cannot get inside of cells from the outside (i.e., from interstitial space, cell culture medium, or the circulation) They can tho, bind to things in the circulation and they can bind to cell surface proteins

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Susan K @susankmecfs.bsky.social · 25/01/2025

@cuboidalhug.bsky.social Another transporter, essential in maintenance of homeostasis (health)

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Susan K @susankmecfs.bsky.social · 03/12/2024

Important work published from Dr Hanson’s lab

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Michal Caspi Tal, PhD @immunofever.bsky.social · 23/11/2024

The absolute best post of the day, possibly of the entire month! This public atlas came online to relate disease to protein levels found in the blood from thousands of people across many diseases, searchable by sex. 1/9 bsky.app/profile/chil...

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