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Susan K

@susankmecfs.bsky.social
135 followers 216 following 23 posts

Scientist. Current interest in #IACC. Progressive worsening of #mecfs triggered by virus, Feb 1996.

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Reposted by Susan K
Billy Hanlon @bhanlon15.bsky.social · 01/10/2026
Looking forward to this talk by Institute for Systems Biology and Dr. Jim Heath
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Reposted by Susan K
Billy Hanlon @bhanlon15.bsky.social · 22/09/2026
Dr. Grach: "..as of a couple weeks ago, have officially rebranded our clinic....historically our clinics were separate - Fibromyalgia, separate POTS, separate Long COVID clinics...we officially transitioned to our new Post-Infectious and Complex Chronic Conditions Clinic..."
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Reposted by Susan K
Billy Hanlon @bhanlon15.bsky.social · 28/08/2026
Institute for Systems Biology: How COVID-19 Can Trigger a Lupus-Like Immune Response ISB President and Professor Jim Heath and study lead author Dan Yuan '..may help explain connections between COVID-19, Long COVID and autoimmune disease' www.youtube.com/watch?v=_GMf...
youtube.com
How COVID-19 Can Trigger a Lupus-Like Immune Response
YouTube video by Institute for Systems Biology
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Susan K @susankmecfs.bsky.social · 07/08/2026
I was wondering when someone would write this - now let’s hope it gets explained to the US politicians
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Reposted by Susan K
Nature Reviews Immunology @natrevimmunol.nature.com · 07/08/2026
In this World View article from @miriammerad.bsky.social, she argues that spending on biomedical research is crucial for national defence and should be prioritized accordingly. rdcu.be/fyrGB
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Reposted by Susan K
Sabrina Poirier @sabrinapoirier.bsky.social · 10/06/2026
ICYMI- Please share!
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Susan K @susankmecfs.bsky.social · 16/05/2026
This is a great video Elizabeth is a very effective advocate Worth the spoons to listen
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Reposted by Susan K
Irish ME/CFS Association @irishmecfsassoc.bsky.social · 11/05/2026
11/ #May12 is #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome Day & May is #MECFSawarenessmonth Please help by reposting +/or liking this 12-minute documentary which features @whitneydafoe.bsky.social & others www.youtube.com/watch?v=9_Hw... Day11 #PwME #SevereME #mecfs @janetdafoe.bsky.social
youtube.com
Invisible Illness - Stories of Chronic Fatigue Syndrome
YouTube video by Palo Alto Online
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Reposted by Susan K
Johan Van Weyenbergh @johanvawe.bsky.social · 29/04/2026
Pathogenic IgG from #LongCOVID patients with neurological sequelae triggers sensitive but not cognitive impairments upon transfer into mice rdcu.be/ff6vi
rdcu.be
Pathogenic IgG from long COVID patients with neurological sequelae triggers sensitive but not cognitive impairments upon transfer into mice
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Reposted by Susan K
Sabrina Poirier @sabrinapoirier.bsky.social · 25/04/2026
Hey everyone! I was invited to write about Myalgic Encephalomyelitis (ME) and our inclusion into much needed clinical trials. Please read, like and share to help us reach more people? 💙
ctontario.ca
Welcoming Myalgic Encephalomyelitis (ME) Into the Clinical Trials Space - Clinical Trials Ontario
This Talk Clinical Trials blog has been written by Sabrina Poirier, a patient advocate for Myalgic Encephalomyelitis (ME) and other complex chronic illnesses, and co-founder of the ICanCME Research Ne...
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Reposted by Susan K
Billy Hanlon @bhanlon15.bsky.social · 26/03/2026
3/26/26, La Jolla Institute for Immunology: "The Pandemic We Didn’t See: What We Actually Know About Long COVID & Post-Viral Disease" Ft. LJI Associate Professor Sonia Sharma, PhD., UC SD Health cardiologist Pam Taub, MD & award-winning health journalist Jason Gale www.youtube.com/watch?v=7hn6...
youtube.com
The Pandemic We Didn’t See: What We Actually Know About Long COVID & Post-Viral Disease
YouTube video by La Jolla Institute for Immunology
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Reposted by Susan K
Brian Shuell @bshuell.bsky.social · 25/03/2026
@peters.senate.gov Please support our 3 asks for FY27 Appropriations: • $15.4M for the CDC ME/CFS Program • $50M for the NIH ME/CFS Research Roadmap • ME/CFS in the PRMRP #MEAwareness #MECFS
Graphic stating ME/CFS has no FDA-approved treatments, urging support for medical research funding through advocacy letters.
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Reposted by Susan K
Dr. Jeroen den Dunnen @drdendunnen.bsky.social · 13/05/2025
Second, Franziska Sotzny showing data on molecular mimicry, with patients expressing antibodies against EBV that also recognize human proteins, particularly those expressed in the brain. 3/7
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Reposted by Susan K
🍁Hilde🍁 @hildec.bsky.social · 12/06/2025
Here’s a short presentation of the Norwegian pilot study on using the medicine Daratumumab on MEpatients. The results have lead to the decision to turn this into a large study with 66 patients. The lecture is in Norwegian with English subtitles. #pwme #MEcfs
youtu.be
Professor Øystein Fluge (MD) - Biological treatment strategies (English subtitles)
YouTube video by Norges ME-forening - Rogaland Fylkeslag
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Susan K @susankmecfs.bsky.social · 25/01/2025
@cuboidalhug.bsky.social Another transporter, essential in maintenance of homeostasis (health)
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Reposted by Susan K
Matthew Alexander, PhD @mattmuscleguy.bsky.social · 27/12/2024
8. Kumar et al., Science. Brain-muscle communication prevents muscle aging by maintaining daily physiology. tinyurl.com/4y3erekn
tinyurl.com
Brain-muscle communication prevents muscle aging by maintaining daily physiology
A molecular clock network is crucial for daily physiology and maintaining organismal health. We examined the interactions and importance of intratissue clock networks in muscle tissue maintenance. In ...
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Susan K @susankmecfs.bsky.social · 03/12/2024
Important work published from Dr Hanson’s lab
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Reposted by Susan K
Michal Caspi Tal, PhD @immunofever.bsky.social · 23/11/2024
The absolute best post of the day, possibly of the entire month! This public atlas came online to relate disease to protein levels found in the blood from thousands of people across many diseases, searchable by sex. 1/9 bsky.app/profile/chil...
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