iiinova — where your digital self keeps evolving

Shelley Jules @shelleyjules.bsky.social · 07/03/2025

I took how to stop a coup training in 2020 before the election as we knew they had plans to steal the election…George Lakey did the training and it was excellent. Here he gives us some hope of what has worked before: wagingnonviolence.org/2025/01/can-...

wagingnonviolence.org

Can nonviolent struggle defeat a dictator? This database emphatically says yes

The Global Nonviolent Action Database details some 40 cases of mass movements overcoming tyrants through strategic nonviolent campaigns.

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Shelley Jules @shelleyjules.bsky.social · 27/02/2025

I’m participating in the Economic Boycott on Friday Feb 28th. I hope it’s possible to join us. We have the power to push back.

Light turquoise blue image - with big restraint with black marks like fur - with big black letters at to saying “Economic Boycott” white letters inside black text bubbles that say “don’t buy stuff Friday Feb 28” & “We have power” - then additional black words below that say “no Amazon, Walmart, Target, Fast-food, Gas” then “Ok small businesses” and “use cash” - additional black icons in various locations on top of the blue background - power symbol, dollar sign, tear drop, circle, star, clover, two circles.

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Shelley Jules @shelleyjules.bsky.social · 21/02/2025

We can and er must…https://www.theguardian.com/commentisfree/2025/feb/21/lessons-for-the-resistance-20-on-how-to-fight-back-against-trump?CMP=Share_iOSApp_Other

theguardian.com

Lessons for the resistance 2.0 on how to fight back against Trump | Jan-Werner Müller

Defeatism and demoralisation are rampant in Trump’s second term. But we cannot give up

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Shelley Jules @shelleyjules.bsky.social · 12/02/2025

This is important! Please share with any journalists you know that are doing the work to protect the truth.

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Amy Siskind @amysiskind.com · 10/02/2025

Posted around NYC, Chicago, DC and other cities. Be creative. Do something!

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Billy Hanlon @bhanlon15.bsky.social · 25/01/2025

"We initially were not going to do whole genome on the entire RECOVER cohort, but now, after a lot of lobbying by the scientists who are involved in RECOVER, most of the patients will have their genome sequenced." (Most of the total 14,743 patients)

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Briana Mills, LMFT ♿️🏳️‍🌈 @brianamillslmft.bsky.social · 06/01/2025

One thing that isn’t talked about enough is how closely tied disability can be to homelessness. Many disabled people are forced into poverty in order to keep their medical benefits. By doing so, the income they receive isn’t enough to live off of. This isn’t a moral failing, it’s the system’s fault.

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Danielle Beckman @daniellebeckman.bsky.social · 07/01/2025

"Widespread use of metal caused estimated 2- to 3-point drop in IQ for nearly 180 years of Pax Romana" Meanwhile, #Covid in 5 years: "Participants with persistent symptoms had a 6-point loss in IQ, while those who had been admitted to an ICU experienced a 9-point loss in IQ."

Paper at the NEJM: Cognition and Memory after Covid-19 in a Large Community Sample, published on February 28, 2024

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Shelley Jules @shelleyjules.bsky.social · 07/01/2025

It’s important to remember that the person who stole FB from the actual idea guys did so because he felt rejected by the hot women on campus. This guy has always shown a us who he is. An incel who got lucky and was rewarded for very inappropriate behavior.

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Shelley Jules @shelleyjules.bsky.social · 31/12/2024

Just donated to a few of these…my heart breaks at our failure as a society to stop this genocide. Shame on humanity. 🥲

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Shelley Jules @shelleyjules.bsky.social · 03/12/2024

🤓🤓🤓 100% accuracy in sorting who has long covid or NOT. As frustrating as it is to have a chronic illness that doctors can’t help (most don’t even understand what it is) - the speed of research data coming out now is encouraging. #LongCovid

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Naomi Harvey PhD @naomidharvey.bsky.social · 01/12/2024

Oh this is exciting to see! This whole project was started and run by LC/ME patient and PharmD Martha Eckey, most of you know her as LongCovidPharmD I helped screen & edit the early versions if the survey, which was v long but comprehensive! 1000’s of you took part!

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Ezra S @ezra.zone · 30/11/2024

New RCT of oxaloacetate in ME/CFS at Bateman Horne was just published – it showed some positive effect on fatigue, but they used the Chalder Fatigue Scale. And it is still so expensive that I don't know if it's even worth trying. www.frontiersin.org/journals/neu...

frontiersin.org

Frontiers | RESTORE ME: a RCT of oxaloacetate for improving fatigue in patients with myalgic encephalomyelitis/chronic fatigue syndrome

BackgroundThe energy metabolite oxaloacetate is significantly lower in the blood plasma of ME/CFS subjects. A previous open-label trial with oxaloacetate sup...

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It's ME(Jaime) @exceedhergrasp1.bsky.social · 26/11/2024

#LongCOVID RESEARCH looking for participants! Research opportunity on long COVID, employment, & disability benefits for recruitment. This research is led by Deborah Lefkowitz, PhD at the University of California, Riverside, with a fellowship supported by the Social Security Administration. (1/4) 🧵

You are invited to share your long COVID experiences for a research study

Your long COVID story is important!
You can participate in this study if you...
• currently have long COVID, or had long COVID in the past
• worked full-time before you got long COVID
• are age 18 or older, and have an email address
What is the purpose of this study?
This study looks at challenges that people with long COVID experience at work or, if no longer able to work, when they apply for disability benefits. The goal is to help develop better workplace, Social Security, and policy solutions to benefit people with long COVID.
What will I be asked to do?
You will be asked to participate in an interview. You may choose to answer the questions in writing at your own pace, or in a 60-minute conversation with the researcher via Zoom/phone, or in a 40-minute conversation with the researcher and some questions in writing.
Your participation is completely voluntary and confidential.
Who is leading this study, and who is funding it?
Deborah Lefkowitz, PhD, researcher at the University of California Riverside, is leading this study in collaboration with long COVID patient advocates and other stakeholder advisers.
The study is funded by a fellowship from the Retirement and Disability Research Center and Institute for Research on Poverty at the University of Wisconsin, and supported by the Social Security Administration.
If you would like to participate in this study
To start the questions and receive the Study Information Sheet
to learn more about the study, please click on this link:
https://redcap.link/longcovid_disability or scan the QR code.

If you have any questions, please contact
Deborah Lefkowitz at deborahl@ucr.edu

Approved | Protocol #30495 | Approved: Aug 22, 2024

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George Monbiot @georgemonbiot.bsky.social · 25/11/2024

Ah, this is great. Super-simple to use, works immediately, really clear format. Thank you ‪@davidsainez.com‬ and skywriter.blue. skywriter.blue

skywriter.blue

Convert Bluesky threads into shareable web pages.

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Shelley Jules @shelleyjules.bsky.social · 22/11/2024

Still figuring out how to engage over here, haven’t finished following everyone, or how to have it meet my needs (fill that niche like the bad place). Very obvious they have adjusted the algorithm over there to suck us back in and I’m resisting. My view- this lovely peach colored poinsettia. 💖

Laptop with black screen open in front a large peach colored poinsettia sitting on top of a silver platter on a brown wood table and the view of a living room in the background with white curtains and lighter filtering through and white and navy blue couches.

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Kelly @broadwaybabyto.bsky.social · 19/11/2024

Not only is disability tax very real - the system is designed to keep us in poverty. Everything costs more, we have a higher number of emergency expenses, and we’re prohibited from earning extra money (and in some cases we can’t even inherit or fundraise). It’s a terrifying & precarious situation.

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Shelley Jules @shelleyjules.bsky.social · 18/11/2024

Elly is here!! Yay!! 💖🙌@remissionbiome.bsky.social @renegaderesearch.bsky.social #pwME #MECFS

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Rebecca Solnit @rebeccasolnit.bsky.social · 17/11/2024

Oops! Warning ahead:

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Carole Cadwalladr @carolecadwalla.bsky.social · 17/11/2024

NEW: The great Trump-Musk crackdown is coming. And it will hit hard & fast. Journalists will be first. But everyone else is next. I urge you to read my 20 lessons in How to Survive the Broligarchy, inspired by & featuring the great @timothysnyder.bsky.social 1/ www.theguardian.com/commentisfre...

theguardian.com

How to survive the broligarchy: 20 lessons for the post-truth world | Carole Cadwalladr

In the wake of Trump’s unnerving appointees, the investigative journalist and veteran of the libel court offers pointers on coping in an age of surveillance

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Anat Shenker-Osorio @anatosaurus.bsky.social · 16/11/2024

Not one word of my solicited response to NYT columnist Thomas Edsall's election post-mortem made it to print. So, here are his questions to me and my answers:

Anat,

Does the election outcome suggest that class has begun to outweigh racial and ethnic identity and this trend is working to the advantage of Republicans? If so, is the 2024 Republican coalition a viable and sustainable coalition?

Did the election reveal the fragility and vulnerability of the Democrats upstairs (well-educated, largely white)/downscale (disproportionately minority) coalition?

Have the cultural values of white liberals become a liability to the Democratic Party?

How much trouble in the Democratic Party in?

Has the feminization of the Democratic Party become a liability?

Any thoughts welcome, Best Tom

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Todd Davenport @sunsopeningband.bsky.social · 17/11/2024

Everyone with PEM/PENE has dysautonomia but not everyone with dysautonomia may have PEM/PENE. Pass it on.

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Shelley Jules @shelleyjules.bsky.social · 16/11/2024

Wow! Look what @vashetc.bsky.social put together for our community #pwME #pwLC - this looks like community care. I’m unable 🥲 to attend due to mom care that day - can we please promote and support? And Vee, what else can we do to support? 💖

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Shelley Jules @shelleyjules.bsky.social · 15/11/2024

Does anyone have a source I can share? I don’t have time to go find one. She is open to reading… #pwLC #LongCovid #MECFS #pwME She thinks it’s egregious I would “accuse” anyone at Kaiser of not adhering to evidence based medicine 🤦🏼‍♀️🤦🏼‍♀️🤦🏼‍♀️.

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Richelle Sepulveda @richellesepulveda.bsky.social · 15/11/2024

When I first joined the site last year, my feed was full of furries and trans people, despite the fact I am not actually part of those communities. And I felt such relief! A place they feel safe to express themselves means the moderation tools are effective!

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Shelley Jules @shelleyjules.bsky.social · 15/11/2024

A doctor in California told a FB friend of mine from high school that her immunity is poor - immunity debt (and so is yours) from staying home during the pandemic and wearing masks. The way she accepted it 😱🤦🏼‍♀️😱🤦🏼‍♀️. I can’t even engage. But I did. Because we must.

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Ed Yong is offline @edyong209.bsky.social · 14/11/2024

The Sick Times--a digital long-COVID newspaper--is 1 yr old today. I couldn't be prouder of what Betsy, Miles, and their team have accomplished. thesicktimes.org/2024/11/14/p... If you have the means, pls join me in supporting their end-of-year fundraiser. the-sick-times.fundjournalism.org/donate/

thesicktimes.org

Press release: The Sick Times announces one year of covering the Long COVID crisis - The Sick Times

“Our reporting on Long COVID remains as vital today as it did when we launched,” executive editor Miles W. Griffis said. “Many of our colleagues in the media continue to minimize the disease and the o...

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Shelley Jules @shelleyjules.bsky.social · 15/11/2024

I am new here…and I posted gifs twice and as I was hitting the post button forgot to do alt text because no reminder like the bad place. Here is how to change your settings so you won’t ever forget:

Top of screen shot “Settings”
Then shows the account of this user - Shelley Julienne
Then list of menu items - Accessibility, Appearance, Languages, Moderarion

Top of screenshot shows “Accessibility Settings”
Next it shows a list of 4 menu items you can toggle on - one is toggled on in blue - Require alt text before posting - others listed are - display larger alt text badges, disable auto play for videos and gifs and disable haptic feedback.

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It's ME(Jaime) @exceedhergrasp1.bsky.social · 14/11/2024

✨This petition will close TOMORROW, Nov 15!✨ We're over 7k-- next stop 10k! In this political climate, it's more important than ever to tell NIH that we need to fund infection-associated chronic illnesses. Sign & share widely! US signers: lnkd.in/e99rsvdT International signers: lnkd.in/e3TpjnTE

Black square with white and red writing. Text: #MEAction’s Petition to the NIH to Fund the ME/CFS Roadmap now has over 7,000 signers! Add your voice. Sign now!

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Shelley Jules @shelleyjules.bsky.social · 10/11/2024

Hello! Hadn’t signed in over here in a long time. Seems like it may be our new home #pwME #pwLC or at least one where we spend more time. I’m ready for a break from the forced right wing propaganda in our feeds.

media.tenor.com

the word hey you is written in pink on a blue background .

ALT: the word hey you is written in pink on a blue background .

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It's ME(Jaime) @exceedhergrasp1.bsky.social · 04/10/2023

Our paper has been published in Mayo Clinic Proceedings! This is a Concise Clinical Review, meaning it MUST be short, with a limited number of pages and citations. Drs. Grach, Ganesh, and Chon and I worked very hard to pare it down to the essentials. www.mayoclinicproceedings.org/article/S002...

mayoclinicproceedings.org

Diagnosis and Management of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a chronic neurologic disease often preceded by infection. There has been increased interest in ME/CFS recently because of its significant...

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Shelley Jules @shelleyjules.bsky.social · 01/10/2023

Pretty excited about @julierehmeyer.bsky.social getting everyone in our ME world connected with this site and came to see if I have any codes to contribute and not yet. 💖

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