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Sarah Tilsed

@sarahtilsed.bsky.social
282 followers 189 following 196 posts

@patientsassoc.bsky.social Partnership. Podcasts. Patients. Proud. Pizza. People. Pencilling portraits. Padam. Views my own.

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Reposted by Sarah Tilsed
The Health Foundation @healthfoundation.bsky.social · 01/10/2026
NEW PODCAST: After several weeks of apocalyptic headlines, how worried about AI in health care should we be? 🎧 bit.ly/4iMUtvP
This image features a podcast cover on a blue background with the text: 'Podcast, Should we worry about AI in health care?, Neil Lawrence in conversation with Jennifer Dixon, Listen now'.
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Reposted by Sarah Tilsed
Patients Association @patients-association.org.uk · 29/09/2026
Download the translated guides: buff.ly/GuqJPym We also translated our animation voiceover into Punjabi: buff.ly/IEBeDmx
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https://buff.ly/IEBeDmx
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Reposted by Sarah Tilsed
Patients Association @patients-association.org.uk · 29/09/2026
Know your rights as a patient and understand what help you can get in our guide - now translated into Arabic, Bengali, Portuguese, Romanian and Urdu! Thank you to Novartis UK for funding the translation of this work.
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Patients Association @patients-association.org.uk · 28/09/2026
Our Chief Executive @rachel-p.bsky.social is at Labour Party conference this week and today was speaking on two panels. The first was with RCGP and @rcphysicians.bsky.social about neighbourhood health and what it will take to get it right for patients. #LAB26
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Patients Association @patients-association.org.uk · 28/09/2026
At this free webinar, you'll hear about patients' experiences of accessing bladder and bowel products and services, including some of the challenges people face in getting care that meets their individual needs. Sign up: buff.ly/BijgGjK
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Reposted by Sarah Tilsed
Healthwatch England @healthwatchengland.bsky.social · 25/09/2026
Happy FrEYEday! Looking after your eyes is important. Stay hydrated, get quality sleep, spend time outdoors, remove eye make-up, relax with a warm compress, ensure good eye hygiene. #VisionMatters #EyeWeek
On a pale pink background, bold dark pink text reads “Self-care Freyeday. Self-care habits help protect your vision and eye health.” The National Eye Health Week logo is also displayed
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Patients Association @patients-association.org.uk · 25/09/2026
Too often, neurodivergent south Asian women are dismissed or misunderstood in healthcare. Patient advocate Mala shares why inclusion, empathy, and small changes can transform trust and outcomes. 👉 Read her blog: buff.ly/4F0sx8a #ESEA Heritage Month
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Unseen and unheard: why healthcare must listen to neurodivergent south Asian women
Patient advocate Mala shares how bias and misunderstanding shape healthcare for neurodivergent South Asian women, and why empathy, inclusion, and small adjustments can transform patient trust and…
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The Health Foundation @healthfoundation.bsky.social · 22/09/2026
Boosting NHS Productivity: Our #NHSProductivityCommission today launched its report at @wellcomecollection.bsky.social​, setting out the huge economic benefits and improvements to health outcomes that could be achieved through a rewiring of the NHS to improve productivity ⬇️ bit.ly/4cZLzHE
A photograph featuring a panel of six people seated on stage during a discussion, with an audience visible in the foreground.
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Reposted by Sarah Tilsed
Centre for Perioperative Care (CPOC) @cpoc.bsky.social · 21/09/2026
A simple call can make a significant difference. When a loved one is in surgery, the wait for news can be one of the most anxious parts of the perioperative journey. #CallThem
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Patients Association @patients-association.org.uk · 24/09/2026
👋 Our free membership brings you to the heart of our campaign for improvements in health and social care. Sign up today: buff.ly/2kFknqW
Join our free membership!
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Healthwatch England @healthwatchengland.bsky.social · 23/09/2026
Improving access to GP primary care is a key part of the Government’s 2025 NHS 10 Year Health Plan. But how satisfied are people with contacting their GP and what factors shape the choices they make when seeking care? Find out in our new blog bit.ly/4iBzMD8
25% of people said that their GP practice did not offer alternative contact methods.
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Royal College of Physicians @rcphysicians.bsky.social · 22/09/2026
📣 The next generation of specialists need time to become experts. Training places matter, but so do time, supervision and opportunities to build skills, experience and confidence. Read more from Prof David Sanders: ow.ly/r1pF50ZQ5hN
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Patients Association @patients-association.org.uk · 23/09/2026
Patient consent is much more than signing a form and saying yes. Join our free webinar, in partnership with Radar Healthcare, to explore what meaningful consent looks like in practice on 21 October, at 4pm Book now: buff.ly/z6CrLUv
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Philip Baldwin @philipcbaldwin.bsky.social · 23/09/2026
Today is Bi Visibility Day! Bi experiences are sometimes ignored, forgotten or misrepresented, both within the LGBTQIA+ community and the wider world. Bi identities are valid, wonderful and need to be celebrated. BE PROUD. BE VISIBLE. YOU ARE LOVED. #BiVisibilityDay
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Healthwatch England @healthwatchengland.bsky.social · 21/09/2026
It's Organ Donation Week! This week, learn more about organ donation and how to register as a donor. Visit NHS Blood and Transport's website to learn more. www.organdonation.nhs.uk
A white infographic overlayed with shaded pink. A man and woman are standing and smiling at the camera. He wears dark clothing, she wears light. NHS logo top right. Text says Most of us would accept an organ if we needed one. Confirm your decision on the NHS Organ Donor Register. It's the best thing you'll do today.
Website listed bottom left: organdonation.nhs.uk
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Sarah Tilsed @sarahtilsed.bsky.social · 22/09/2026
In our live poll, only a third of attendees said NHS communication is generally good, with just less than half saying it varies inconsistently depending on where and who you see. Being told something is not the same as understanding it. www.patients-association.org.uk/blog/fixing-...
patients-association.org.uk
Fixing how the NHS communicates with patients
Our final Patient Partnership Week 2026 webinar tackled communication issues in the NHS.
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Sarah Tilsed @sarahtilsed.bsky.social · 22/09/2026
This webinar explored why many patients still feel unheard, or excluded when communicating with the NHS. And examined whether NHS communication is truly designed with patients, or simply delivered to them. www.patients-association.org.uk/getting-thro...
patients-association.org.uk
Getting through: fixing how NHS communicates with patients
This webinar explored why many patients still feel unheard, confused, or excluded when communicating with the NHS.
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Sarah Tilsed @sarahtilsed.bsky.social · 22/09/2026
AI used across NHS healthcare must embed racial equity to ensure full participation and build further trust with diverse communities and patients. The call comes from a new paper from the @NHS_RHO www.voice-online.co.uk/news/uk-news...
voice-online.co.uk
AI could deepen racial inequalities in healthcare NHS is warned  - Voice Online
ARTIFICIAL INTELLIGENCE (AI) used across NHS healthcare must embed racial equity to ensure full participation...
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Sarah Tilsed @sarahtilsed.bsky.social · 22/09/2026
GPhC has laid out the findings of a parliamentary roundtable discussion on the dangers of fake online pharmacies and unregulated medicines in a report that urges Labour to co-ordinate a “system-wide approach” to protect patients’ safety. www.pharmacymagazine.co.uk/news/gphc-go...
pharmacymagazine.co.uk
GPhC: Government must oversee 'system-wide approach' to battle fake online pharmacies
The General Pharmaceutical Council said it can only “directly oversee legitimate providers”.
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The King's Fund @thekingsfund.bsky.social · 21/09/2026
The National Cancer Plan has set a clear direction for cancer care. The harder question is what it will take to deliver it. Join us on 21 October to explore the realities of delivering change across cancer care. 👉 Find out more today: bit.ly/4gku6Mi
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Fixing Today, Building Tomorrow: Delivering Cancer Care Now And For The Future | The King's Fund
Cancer care is under growing pressure with progress uneven across the system. Join us to explore what it takes to turn ambition into real improvements for patients.
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Patients Association @patients-association.org.uk · 21/09/2026
Our Chief Exec @rachel-p.bsky.social is speaking at a @libdems.org.uk conference fringe event on ambitions for the National Cancer Plan. Cancer services must be designed around patients and tackle delays. Good intentions in a plan don’t help someone waiting a year for a referral. #LDConf #HCF26
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The Health Foundation @healthfoundation.bsky.social · 21/09/2026
Join us at the Liberal Democrat Conference #LDConf today as we discuss the public’s priorities for the NHS and social care with @ipsosintheuk.bsky.social​​. 📍 Room 1B, Brighton Centre (inside the secure zone) 🕑 13:45–14:45
Speaker announcement for a discussion on public priorities for the NHS and social care, featuring Tim Gardner, Layla Moran MP, Miranda Green, and Anna Quigley, scheduled for Monday, 21 September, at 13:45–14:45 in Room 1B, Brighton Centre, Kings Road, Brighton.
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Frontline19 @frontline19.bsky.social · 17/09/2026
Today we pause to remember those health and care workers we have lost to suicide, which happens alarmingly often. We must foster a culture where staff feel supported and cared for at their worst If you are a frontline worker in need, you can confidentially self-refer for counselling frontline19.com
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Frontline19 @frontline19.bsky.social · 18/09/2026
The Practitioner Health Programme @nhsprachealth.bsky.social have launched an online memorial wall to remember all those health and care workers tragically lost to suicide. To leave a tribute/message or find out more, please visit: www.practitionerhealth.nhs.uk/remembrance#...
practitionerhealth.nhs.uk
Wall of Remembrance
Honour the life of a loved one, friend, or colleague by sharing a tribute, memory, or reflection.
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Patients Association @patients-association.org.uk · 18/09/2026
Behind these figures are real women who were told mastectomies could have been avoided. Our thoughts are with everyone affected. Patients deserve full transparency from County Durham and Darlington NHS Foundation Trust, and to be genuinely involved in the review process www.bbc.co.uk/news/article...
bbc.co.uk
Twenty women had breasts removed unnecessarily, NHS trust admits
The women were among hundreds who were harmed by their treatment at County Durham health trust.
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Sarah Tilsed @sarahtilsed.bsky.social · 17/09/2026
Today is #WorldPatientSafetyDay and so I wrote a blog. ‘Safe care for life’ is the slogan for this year's day, and it is concerning that this even needs saying. Surely, care should always be safe? www.patients-association.org.uk/Blog/safe-ca...
patients-association.org.uk
Safe care for life: why patient partnership matters for patient safety
‘Safe care for life’ is the slogan for this year's World Patient Safety Day, and it is concerning that this even needs saying. Surely, care should always be safe?
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Patients Association @patients-association.org.uk · 15/09/2026
Our webinar on NHS #ContinuingHealthcare is underway! Not able to attend? Don't worry, the recording will be uploaded to our website later this week. www.patients-association.org.uk/Event/an-int...
patients-association.org.uk
An introduction to Continuing Healthcare - 15/09/2026 11:00:00
Are you struggling to fund specialist care? Find out whether NHS Continuing Healthcare could be the answer.
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Patients Association @patients-association.org.uk · 14/09/2026
Our free webinar about NHS #ContinuingHealthcare is happening tomorrow, but don't worry there's still time to book your place! Sign up here: buff.ly/WelzLgx
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Patients Association @patients-association.org.uk · 12/09/2026
We're incredibly grateful to everyone who has decided to give a one-off donation or updated their Will to include a gift to our organisation. Thank you!
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Patients Association @patients-association.org.uk · 12/09/2026
In her latest blog, Chief Executive @rachel-p.bsky.social reflects on the huge impact legacy donations have on our work by bringing us closer to the future we want to see; one where patients aren’t simply heard but genuinely help shape the care they receive. Read her blog: buff.ly/ILsKQd1
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Patients Association @patients-association.org.uk · 12/09/2026
Remember A Charity Week is drawing to a close but you can always find information on how to leave a gift in your legacy to enable our work by visiting this webpage: buff.ly/jqIzaIR
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How to leave a legacy to the Patients Association
Leaving a gift to the Patients Association in your Will could help many people after you are gone.
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Patients Association @patients-association.org.uk · 11/09/2026
“AI has the potential to improve healthcare, but patients need to be confident that it is being developed and used safely, fairly and transparently, and without reinforcing the inequalities that already exist in healthcare." @rachel-p.bsky.social
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Patients Association @patients-association.org.uk · 11/09/2026
We stand with the @nhs-rho.bsky.social in calling for addressing inequity, and involving racially minoritised communities as equal partners in decision-making, to be foundational to the development of AI in healthcare. buff.ly/ih7QE2g
nhsrho.org
Observatory urges race equity to be central to the future of AI in NHS care
Artificial intelligence (AI) used across NHS healthcare must embed racial equity to ensure full participation and build further trust with diverse communities and patients. The call comes from a new…
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Irish Hospice Foundation @irishhospice.bsky.social · 10/09/2026
💛 World Suicide Prevention Day The impact of these deaths, affects workplaces and communities. We have a practical guide to help workplaces navigate a suicide death. 📖 Download the guide: goto.hospicefoundation.ie/respondin… #WorldSuicidePreventionDay #SuicideBereavement
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Staying Put @stayingputuk.bsky.social · 10/09/2026
This Suicide Prevention Day, the theme "Start the Conversation" reminds us that compassionate, non-judgemental conversations matter. While one conversation cannot solve everything, it can help someone feel seen, reduce isolation and be the first step towards safety, hope and support.
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HSE Ireland @hselive.bsky.social · 10/09/2026
In this episode of the HSE Talking Health & Wellbeing Podcast, our guests discuss our free online suicide prevention training programme, Let's Talk About Suicide, and the role it can play in helping people recognise when someone may be struggling. More: bit.ly/4yyL2Vy #WorldSuicidePreventionDay
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Patients Association @patients-association.org.uk · 10/09/2026
There's a week to go until our free webinar on NHS Continuing Healthcare. Book your place and share with someone who you think might be interested in learning more about this service. Book now: buff.ly/HOys4Y4 This webinar is being delivered in partnership with Compass Continuing Healthcare.
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Staying Put @stayingputuk.bsky.social · 10/09/2026
Suicide Prevention Day | Start the Conversation Domestic abuse doesn't always leave visible injuries, but its impact can be profound. Coercive control, emotional, psychological and financial abuse can leave people feeling isolated, overwhelmed and struggling to see a way forward.
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TransActual @transactualuk.bsky.social · 10/09/2026
Suicide can affect every one of us. By raising awareness, reducing the stigma & encouraging action we can help to reduce the instances of suicide around the world. #WSPD2026
Poster promoting World Suicide Prevention Day, 10 September, with bold orange-and-yellow headline on a blue background, a small orange awareness ribbon, the International Association for Suicide Prevention logo, and the URL www.iasp.info/wspd.
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Frontline19 @frontline19.bsky.social · 10/09/2026
It's #WorldSuicidePreventionDay We know how tragically common suicide is among NHS staff. But we also know that the right support at the right time can save a life - we’ve seen it happen. No frontline worker should suffer in silence. Reach out for free, confidential counselling: frontline19.com
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Rethink Mental Illness @rethinkcharity.bsky.social · 10/09/2026
Everyone has a part to play in suicide prevention. Talking about suicide saves lives. So for #WorldSuicidePrevention Day, share this post. You never know who it might help 💜 More detailed guidance 👉 bit.ly/4tZGrJY
A poster titled "How to support someone who is feeling suicidal" lists six tips with icons: listen and be kind, do no try to fix things, stay connected until they're safe, ask about suicide directly, connect to help, stay connected, and follow up. A note at the bottom says World Suicide Prevention Day.
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Beyond Reflections @beyondreflectuk.bsky.social · 10/09/2026
Today is World Suicide Prevention Day. A day for destigmatisation. To have difficult conversations that may save someone's life. A day to remember those that we have lost to suicide, and to work towards a better future for those who are still here. . #LetsTalkAboutSuicide #worldsuicidepreventionday
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International Association for Suicide Prevention @iaspinfo.bsky.social · 09/09/2026
Tomorrow is World Suicide Prevention Day. Join communities around the world in raising awareness, starting conversations, and changing the narrative on suicide. #WSPD2026 #ChangingTheNarrative
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James' Place @jamesplaceuk.bsky.social · 09/09/2026
It's #WorldSuicidePreventionDay tomorrow, and this year we’re encouraging more people to have life-saving conversations.💙 Take a look at our tips on how you can prepare for a life-saving conversation. Download our shareable World Suicide Prevention Day resources here: bit.ly/4iThGMH
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Patients Association @patients-association.org.uk · 07/09/2026
At this free webinar, you'll hear about patients' experiences of accessing bladder and bowel products and services, including some of the challenges people face in getting care that meets their individual needs. Sign up: buff.ly/BijgGjK
patients-association.org.uk
Making decisions together: Supporting conversations about bladder and bowel products and services - 14/10/2026 10:00:00
Join us to learn about resources empowering patients to access bladder and bowel care tailored to their needs, beyond cost-based NHS decisions.
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VJM Counselling @vjm-counselling.bsky.social · 07/09/2026
September is Suicide Prevention Awareness Month This years theme is “Changing the Narrative on Suicide”, with a simple but powerful call to action:🗣️ Start the Conversation. And if you’re not sure what to say, you don’t need to have the perfect words. Starting the conversation is what matters.💚
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York CVS @yorkcvs.bsky.social · 07/09/2026
September is World Suicide Prevention Month. We’ll be sharing information to challenge myths, encourage conversations and help people find trusted support. @samaritans.bsky.social are available 24/7 on 116 123 (free)
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Keep Your Head @keepyourhead.bsky.social · 07/09/2026
World Suicide Prevention Day is 10 September. Talking openly about suicide can help challenge stigma and make it easier for people to seek support. The latest Keep Your Head article shares local help and resources across Cambridgeshire and Peterborough 👉 keep-your-head.com/world-suicid...
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Patients Association @patients-association.org.uk · 07/09/2026
What would you want to leave behind for future patients? For Janet, it’s a future where patients are listened to, understood and involved in decisions about their care. After her husband’s prostate cancer was diagnosed late, she knows how important that can be 🩵 Read Janet’s story: buff.ly/UJELkAZ
“I've known the valuable work of the Association for many years and how important it is to make sure patient views get listened to and acted upon.”
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South Lanarkshire Council @southlanarkshire.gov.uk · 07/09/2026
South Lanarkshire Council is supporting Suicide Prevention Week by raising awareness, challenging stigma and promoting mental health and wellbeing. Throughout the week, we'll share information and support available across our communities. Every Life Matters. Find out more: orlo.uk/Hoc50
Every life matters in South Lanarkshire. South Lanarkshire University Health and Social Care Partnership.
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