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Sabine Best

@sabinebest.bsky.social
197 followers 94 following 23 posts

Associate Director, Research Management & Impact, Marie Curie. Interested in end of life, PPI, #openaccess etc. All views my own.

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Reposted by Sabine Best
MarieCurieEOLC @mariecurieeolc.bsky.social · 14/07/2026
🏥Announcing six new research projects aiming to improve end of life experiences in, and on discharge from, hospital. Read more and watch the researchers talk about their projects – www.mariecurie.org.uk/research-and...
An image of a hospital corridor with beds.
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MarieCurieEOLC @mariecurieeolc.bsky.social · 18/05/2026
Introducing our next Research Grants Scheme, Opening 2 June – Care close to home, in and out of hours 💡Our new call for research seeks to fund projects of up to £150K. Researchers, find out more and submit your expression of interest from 2 June to 17 July - www.mariecurie.org.uk/research-and...
A yellow Marie Curie styled Daffodil saying: Announcing the Marie Curie Research Grants Scheme 2026, Care close to home, in and out of hours
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Sabine Best @sabinebest.bsky.social · 18/02/2026
There is still time to register for the annual Marie Curie Research into Practice conference - we have a really exciting programme of practice-relevant topics. Thank you so much to all the teams who have submitted spotlight sessions and abstracts! Register here www.mariecurie.org.uk/research-and...
mariecurie.org.uk
Research Conference 2026
Marie Curie Research into Practice Conference will take place the week commencing Monday 23 February 2026.
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MarieCurieEOLC @mariecurieeolc.bsky.social · 04/11/2025
Prizes return for the Marie Curie Research into Practice Conference 2026 In continuation with previous years, we will be presenting four awards. Two are now open for nomination of any researcher in the palliative and end of life care field:
A Marie Curie branded image reads Marie Curie Research into Practice conference award nominations are now open. Nominations close 9 january 2026
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MarieCurieEOLC @mariecurieeolc.bsky.social · 11/11/2025
Researchers – Three new commissioned research calls are open for application (below) The aim is for evidence from these projects to inform our policy and campaigns activities. Calls close Friday 12th December 2025 at 5pm. Details can be found on our website - www.mariecurie.org.uk/research-and...
An image of a question mark with the text - Three new calls for commissioned research projects. Applications close December 12th 2025
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MarieCurieEOLC @mariecurieeolc.bsky.social · 21/08/2025
Dr Katharine Weetman, Marie Curie Associate Professor Dr John MacArtney and team have recently published findings on the challenges posing current discharge processes, identifying patient experiences and highlighting suggestions for healthcare professionals, summarised below.
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MarieCurieEOLC @mariecurieeolc.bsky.social · 11/08/2025
The Chief Medical Officer for England’s 2023 Annual Report on Health in an Ageing Society identified that more research needs to include older people. That's why we've joined other organisations in signing a statement of intent and to take action. Read more - www.nihr.ac.uk/news/nihr-an...
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MarieCurieEOLC @mariecurieeolc.bsky.social · 05/08/2025
🚨Calling researchers - Submissions for abstracts and spotlight sessions for the Marie Curie Research into Practice Conference 2026 are now open! www.mariecurie.org.uk/research-and...
Conference submissions are open. We are welcoming abstract and spotlight session submissions for the Marie Curie Research into Practice Conference 2026.
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MarieCurieEOLC @mariecurieeolc.bsky.social · 15/07/2025
@mariecurieuk.bsky.social and @alzheimerssoc.bsky.social announce the projects awarded through our research funding partnership. The projects aim to tackle the urgent need for better dementia-specific end-of-life care. Find the individual projects ⬇️ www.mariecurie.org.uk/research-and...
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MarieCurieEOLC @mariecurieeolc.bsky.social · 09/06/2025
Priorities identified through the Marie Curie/James Lind Alliance (JLA) Priority Setting Partnership have guided our research grants scheme; end of life care in, and discharge from, hospitals. Read the JLA blog to learn more👇 And visit the scheme page - www.mariecurie.org.uk/research-and...
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Sabine Best @sabinebest.bsky.social · 03/06/2025
The @mariecurieeolc.bsky.social research call is now open. We're delighted to partner up with two brilliant hospital charities: Leeds Hospitals Charity and Royal Brompton & Harefield Hospitals Charity. Deadline for expressions of interest is 21 July 25 www.mariecurie.org.uk/research-and...
mariecurie.org.uk
Research Grants Scheme: improving hospital experiences
Marie Curie's next call for research will focus on improving the quality of care and discharge processes in hospitals for people at the end of life.
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John MacArtney @johnmacartney.bsky.social · 03/06/2025
*FAO all hospices!* We want to help you set-up and develop a Men's Shed support group. For more information please watch our short presentation (25mins) explaining what Men's Sheds are, the benefits they bring, and how we are able to help you start your own! www.youtube.com/watch?v=s5ZY...
youtube.com
How to start a Men's Shed in your hospice
YouTube video by Marie Curie
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Anne Finucane @annefinucane.bsky.social · 30/05/2025
Great to see over 100 posters on the management of psychological symptoms & needs at #eapc2025. Check out our poster on research required in this area. And feel free to join our network to exchange ideas on research and practice in this space: www.mainexchange.org.uk
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Donna Wakefield @donnawakefield.bsky.social · 30/05/2025
Sharing the results of this important study at #EAPC2025: Mapping the #PalliativeCare #Research workforce in the UK 🗺️ - thoughts? Led by @annefinucane.bsky.social -with wide collaboration including @simonnoahetkind.bsky.social & @flissmurtagh.bsky.social Funded by @mariecurieeolc.bsky.social
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Anne Finucane @annefinucane.bsky.social · 29/05/2025
My Grief My Way: delighted to present a poster on our bereavement support resource at #eapc2025. Our website content is free to use by all, with further material coming soon! mygriefmyway.co.uk Funded by @mariecurieuk.bsky.social
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Sabine Best @sabinebest.bsky.social · 29/05/2025
Congratulations to @andreabruun.bsky.social for winning the @eapcvzw.bsky.social Early Career Researcher Award #EAPC2025 - so well deserved! Brilliant to hear about your career development from PhD @mariecurieeolc.bsky.social @ucl.ac.uk Research Dept and current work on learning disabilities
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Sabine Best @sabinebest.bsky.social · 14/05/2025
Pre-launch: themes for the next @mariecurieuk.bsky.social Research Grants Scheme call, based on the refreshed @jameslindalliance.bsky.social palliative + end of life care research priorities - focus on hospital palliative + end of life care from ED to discharge www.mariecurie.org.uk/research-and...
mariecurie.org.uk
Call for research: Improving hospital experiences
Marie Curie's next call for research will focus on improving the quality of care and discharge processes in hospitals for people at the end of life.
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Dr Ben Bowers @drbenbowers.bsky.social · 27/04/2025
I’m presenting at the Dorothy House Palliative Care Research Conference on 5 June, discussing the timely, effective and safe use of injectable end-of-life medications. Bringing together our brand new research for the 1st time! www.dorothyhouse.org.uk/palliative-c...
dorothyhouse.org.uk
Palliative Care Research Conference
Our Palliative Care Research Conference aims to support researchers and practitioners to establish research opportunities in their hospice.
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MarieCurieEOLC @mariecurieeolc.bsky.social · 19/03/2025
Marie Curie funded research is looking into the palliative and end of life care research workforce. Can you help? The sessions seek to explore your views on the findings and implications for growing the palliative care research workforce in the UK. See below post for details 👇
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MarieCurieEOLC @mariecurieeolc.bsky.social · 19/02/2025
🏅Our Tammy Prescott public and patient involvement award goes to the team behind the Victoria and Stuart Project! The project was a codesign of a toolkit of resources for advanced care planning for those at the end of life with learning difficulties.
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Sabine Best @sabinebest.bsky.social · 14/02/2025
'Dads' Takeaway nights' - most effective in engaging fathers of children who have died suddenly - Sarah Hodkinson and Lisa Dennis from Shooting Star Children's Hospices #MCResearch2025 on their bereavement support model. Very moving and available on catchup www.shootingstar.org.uk/news/shootin...
shootingstar.org.uk
Shooting Star's bereavement service highly commended at Third Sector Awards
Shooting Star Children’s Hospices has been highly commended in the Breakthrough of the Year category at the prestigious Third Sector Awards 2024 for the ground-breaking expansion of our bereavement se...
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MarieCurieEOLC @mariecurieeolc.bsky.social · 13/02/2025
We’re excited to announce the launch of new research priorities for palliative and end of life care! These have been created in a project with the JLA and other partner organisations, including co-funders the ESRC and @mndassoc.bsky.social, and guided by people affected by a life limiting illness.
The top 10 new priorities for palliative and end of life care research are:

How do people with dementia experience end of life? How can palliative and end of life care better meet their needs and those of their carers, friends and families?
How can NHS, social services and charities work more collaboratively to provide joined-up care that better meets the needs of people with a serious life-limiting illness and their carers, friends and families?
What kinds of palliative and end of life care and support need to be in place to enable people to die well at home? What skills do staff need? What helps or hinders the delivery of care at home?
What are the best ways to provide personalised palliative and end of life care that meets all the physical, mental, practical, social and spiritual needs of a person with a serious life-limiting illness?
How can palliative and end of life care better meet the complex needs of people with multiple health conditions?
How can communication and care co-ordination be improved across the teams of health and social care professionals caring for people with any serious life-limiting illness?
What skills, training and information do carers, friends and family members need to be able to care for someone who is dying at home (e.g. giving medicines safely by injection, managing incontinence, moving people)? What is the impact (pros and cons) of upskilling the people giving care?
How can the quality of palliative and end of life care in hospital be improved? What helps or hinders improvement?
What are the best ways to provide palliative and end of life care, support and advice at all hours (24/7 or out of hours)?
How can palliative and end of life care better meet the needs of people who live alone, or are socially isolated?
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Sabine Best @sabinebest.bsky.social · 14/02/2025
Most carers of people at the end of life are significantly older, most aged over 65 years, 20% aged over 80 years - striking findings that chime with my experience of my mother caring for my father for > 2 years, aged 84+, Clare Gardiner Sheffield #MCResearch2025 www.sheffield.ac.uk/palliativere...
sheffield.ac.uk
Financial and employment impacts of end of life family caregiving
Funded by Marie Curie, this study used data from the UK Household Longitudinal Survey (UKHLS) and Health Survey for England (HSE) to explore the financial and employment impacts of end of life caring ...
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Sabine Best @sabinebest.bsky.social · 14/02/2025
Really important new data on unpaid carers from Clare Gradiner, Sheffield #MCResearch2025: between 150,000 and 180,000 people every year are providing unpaid care for someone at the end of life - around 4% of household carers in the UK @mariecurieeolc.bsky.social www.sheffield.ac.uk/palliativere...
sheffield.ac.uk
Financial and employment impacts of end of life family caregiving
Funded by Marie Curie, this study used data from the UK Household Longitudinal Survey (UKHLS) and Health Survey for England (HSE) to explore the financial and employment impacts of end of life caring ...
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Sabine Best @sabinebest.bsky.social · 14/02/2025
Always shocked by the number of people dying in poverty in the UK - 111,000 in 2023, up from 90,000 in 2019 - higher risk for working age people, women, black minorities, North East, Wales @drjulietstone.bsky.social @helenbarnard.bsky.social @mariecurieeolc.bsky.social #MCResearch2025 bit.ly/42UPfpK
bit.ly
The cost of dying crisis
It shouldn’t be harder to make ends meet at the end of your life. But many people are pushed into poverty after a terminal diagnosis.
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Sabine Best @sabinebest.bsky.social · 14/02/2025
Last day of the @mariecurieeolc.bsky.social Research into Practice conference - another great line up of interesting presentations! I did not manage to catch all sessions live yesterday and Tuesday but will watch them all on catchup #MCResearch2025 mariecurie.ivent-pro.com/events/resea...
mariecurie.ivent-pro.com
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Sabine Best @sabinebest.bsky.social · 13/02/2025
Session recording from @spbowers.bsky.social @felicitydewhurst.bsky.social on palliative care for people with multiple long-term conditions #MCResearch2025 now live-this is addressing priority 5 of the new @jameslindalliance.bsky.social Peolc research priorities healthopenresearch.org/documents/7-2
healthopenresearch.org
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Sabine Best @sabinebest.bsky.social · 13/02/2025
Very interesting abstract session #MCResearch2025 - great to hear from Lynne Partington from @eolp.bsky.social about the @mariecurieeolc.bsky.social impact grant on involvement of activity coordinators in care homes to improve identification and management of depression
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Sabine Best @sabinebest.bsky.social · 13/02/2025
Great to be finally able to share the refreshed research priorities identified+prioritised by people with lived/professional experience, a partnership with @jameslindalliance.bsky.social @mndassoc.bsky.social, ESRC @mariecurieeolc.bsky.social Report here: healthopenresearch.org/documents/7-2
healthopenresearch.org
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MarieCurieEOLC @mariecurieeolc.bsky.social · 12/02/2025
🏅Congratulations to all the Marie Curie Research into practice conference 2025 prize winners! We'll be posting about each individual winner soon. In the meantime, check out this conference booth to explore the winning research - mariecurie.ivent-pro.com/events/resea... #MCResearch2025
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Dr Lisa Graham-Wisener @lgrahamwisener.bsky.social · 11/02/2025
I'm one of over 70 people tuned in for Stephanie Crawford from @qubelfastofficial.bsky.social School of Psychology's presentation on #deathliteracy at the Marie Curie annual conference #MCResearch2025
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Sabine Best @sabinebest.bsky.social · 11/02/2025
Great to hear about the partnership approach to discussing and researching end of life care for people with HIV by @mariecurieeolc.bsky.social community team and @thtorguk.bsky.social @brionyhudson.bsky.social great to see the use of the Life Cafe in the first stages #MCResearch2025
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Simon Etkind @simonnoahetkind.bsky.social · 04/02/2025
How do you say "I don't know" whilst maintaining trust? Come to our session on communicating #uncertainty at the free @mariecurieuk.bsky.social Marie Curie Research into Practice Conference on 13.2.25 @2pm to find out. Register here: www.mariecurie.org.uk/research-and... #MCResearch2025
mariecurie.org.uk
Research Conference 2025
We're delighted to announce that the Marie Curie Research into Practice Conference will take place the week commencing Tuesday 11 February 2025.
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Dr Catriona R Mayland @catrionamayland.bsky.social · 11/02/2025
Delighted to be presenting 2day at Marie Curie 'Research into Practice' conference. The conference is online and free for all to attend. Join us as we give a voice to those with incurable #HNC, sharing key priorities for transforming complex care. #MCResearch2025 @sheilapayne1.bsky.social
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Andrea Bruun @andreabruun.bsky.social · 11/02/2025
At the @mariecurieuk.bsky.social Research Into Practice Conference these days? 💡 #MCResearch2025 Then check out our @dappleproject.bsky.social poster booth! 🔍 It's called: Developing effective service models for Adult Palliative and end-of-life care for People with a LEarning disability: DAPPLE
youtube.com
The DAPPLE Project information video (NIHR159160)
YouTube video by Prof Irene Tuffrey-Wijne
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Sabine Best @sabinebest.bsky.social · 11/02/2025
Such interesting insights from the session on the NI School Bereavement Programme on embedding grief education on the school curriculum #MCResearch2025 - young people are so much more open to talk about grief than adults seem to be www.mariecurie.org.uk/research-and...
mariecurie.org.uk
Schools Bereavement Programme
Marie Curie leads a program in Northern Ireland providing bereavement support for children and youth in educational settings.
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Sabine Best @sabinebest.bsky.social · 11/02/2025
Most people that ambulance services encounter who are at the end of life have not been previously identified as such - often people with frailty @edwardobrian.bsky.social @mariecurieeolc.bsky.social #MCResearch2025 - we need better recognition of the end of life for this population in primary care
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Sabine Best @sabinebest.bsky.social · 11/02/2025
There is an urgent need for more and better routine service data on people at the end of life and social and community care @sarahscobie.bsky.social #MCResearch2025 -the report presented in the first session of the @mariecurieeolc.bsky.social conference is here www.mariecurie.org.uk/document/pub...
mariecurie.org.uk
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Sarah Scobie @sarahscobie.bsky.social · 05/02/2025
Our new report on with the Health Economic Unit and @mariecurieuk.bsky.social 👇
nuffieldtrust.org.uk
Public expenditure in the last year of life
Supporting people at the end of life is a crucially important element of public spending, yet there is remarkably little evidence available on how much money is being spent on it, and what that money ...
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Sabine Best @sabinebest.bsky.social · 11/02/2025
The Marie Curie Research into Practice Conference is finally here, starting today at 10am #MCResearch2025 mariecurie.ivent-pro.com/events/resea...
mariecurie.ivent-pro.com
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Sabine Best @sabinebest.bsky.social · 07/02/2025
I'm so excited - It's almost time for the annual @mariecurieeolc.bsky.social Research into Practice Conference - it's online, it's free and attendees can dip in and out to view sessions of particular interest. All posters now live! (click on compass sign) mariecurie.ivent-pro.com/events/resea...
mariecurie.ivent-pro.com
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John MacArtney @johnmacartney.bsky.social · 10/01/2025
REALLY IMPORTANT SURVEY for all those in the UK researching dying and palliative care. The results will help shape research funding - so have your say, *especially* if you are have a social science or humanities background!
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Marie Curie UK @mariecurieuk.bsky.social · 10/01/2025
"Wes Streeting is right. No one should die in hospital when they don’t want or need to be there. The state of end of life care needs to change." 💔 Read more from Dr Sarah Holmes: www.lbc.co.uk/opinion/view... #FixEndofLifeCare @rthonwesstreeting.bsky.social @lbc.co.uk
lbc.co.uk
No one should die in hospital when they don’t want or need to be there. The state of end of life care needs to change.
Wes Streeting is right. No one should die in hospital when they don’t want or need to be there. The state of end of life care needs to change.
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Sabine Best @sabinebest.bsky.social · 03/01/2025
There's one more week to nominate someone, or even yourself, for the Marie Curie Prizes for Research Impact or PPI involvement! A great opportunity to highlight your work and win £1,000 - deadline is 10 January 25. Scroll down to the prize section here: www.mariecurie.org.uk/research/ann...
mariecurie.org.uk
Research Conference 2025
We are delighted to announce that the Marie Curie Research into Practice Conference will take place the week commencing Monday 10 February 2025.
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Sabine Best @sabinebest.bsky.social · 17/12/2024
UK-based researchers in palliative and end of life care: please take part in this important survey identifying the current #palliativecare research workforce.
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Sabine Best @sabinebest.bsky.social · 13/12/2024
Registration for the Marie Curie Research into Practice Conference is now open. Online and free and open to everybody interested in palliative and end of life care evidence. 11-14 February 25, 4 sessions per day. Registration link: mariecurie.ivent-pro.com/events/resea...
mariecurie.ivent-pro.com
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