Reposted by Sabine BestMarieCurieEOLC @mariecurieeolc.bsky.social · 14/07/2026🏥Announcing six new research projects aiming to improve end of life experiences in, and on discharge from, hospital. Read more and watch the researchers talk about their projects – www.mariecurie.org.uk/research-and... 151
Reposted by Sabine BestMarieCurieEOLC @mariecurieeolc.bsky.social · 18/05/2026Introducing our next Research Grants Scheme, Opening 2 June – Care close to home, in and out of hours 💡Our new call for research seeks to fund projects of up to £150K. Researchers, find out more and submit your expression of interest from 2 June to 17 July - www.mariecurie.org.uk/research-and... 113
Sabine Best @sabinebest.bsky.social · 18/02/2026There is still time to register for the annual Marie Curie Research into Practice conference - we have a really exciting programme of practice-relevant topics. Thank you so much to all the teams who have submitted spotlight sessions and abstracts! Register here www.mariecurie.org.uk/research-and...mariecurie.org.ukResearch Conference 2026Marie Curie Research into Practice Conference will take place the week commencing Monday 23 February 2026. 010
Reposted by Sabine BestMarieCurieEOLC @mariecurieeolc.bsky.social · 04/11/2025Prizes return for the Marie Curie Research into Practice Conference 2026 In continuation with previous years, we will be presenting four awards. Two are now open for nomination of any researcher in the palliative and end of life care field: 103
Reposted by Sabine BestMarieCurieEOLC @mariecurieeolc.bsky.social · 11/11/2025Researchers – Three new commissioned research calls are open for application (below) The aim is for evidence from these projects to inform our policy and campaigns activities. Calls close Friday 12th December 2025 at 5pm. Details can be found on our website - www.mariecurie.org.uk/research-and... 103
Reposted by Sabine BestMarieCurieEOLC @mariecurieeolc.bsky.social · 21/08/2025Dr Katharine Weetman, Marie Curie Associate Professor Dr John MacArtney and team have recently published findings on the challenges posing current discharge processes, identifying patient experiences and highlighting suggestions for healthcare professionals, summarised below. 122
Reposted by Sabine BestMarieCurieEOLC @mariecurieeolc.bsky.social · 11/08/2025The Chief Medical Officer for England’s 2023 Annual Report on Health in an Ageing Society identified that more research needs to include older people. That's why we've joined other organisations in signing a statement of intent and to take action. Read more - www.nihr.ac.uk/news/nihr-an... 001
Reposted by Sabine BestMarieCurieEOLC @mariecurieeolc.bsky.social · 05/08/2025🚨Calling researchers - Submissions for abstracts and spotlight sessions for the Marie Curie Research into Practice Conference 2026 are now open! www.mariecurie.org.uk/research-and... 102
Reposted by Sabine BestMarieCurieEOLC @mariecurieeolc.bsky.social · 15/07/2025@mariecurieuk.bsky.social and @alzheimerssoc.bsky.social announce the projects awarded through our research funding partnership. The projects aim to tackle the urgent need for better dementia-specific end-of-life care. Find the individual projects ⬇️ www.mariecurie.org.uk/research-and... 164
Reposted by Sabine BestMarieCurieEOLC @mariecurieeolc.bsky.social · 09/06/2025Priorities identified through the Marie Curie/James Lind Alliance (JLA) Priority Setting Partnership have guided our research grants scheme; end of life care in, and discharge from, hospitals. Read the JLA blog to learn more👇 And visit the scheme page - www.mariecurie.org.uk/research-and... 032
Sabine Best @sabinebest.bsky.social · 03/06/2025The @mariecurieeolc.bsky.social research call is now open. We're delighted to partner up with two brilliant hospital charities: Leeds Hospitals Charity and Royal Brompton & Harefield Hospitals Charity. Deadline for expressions of interest is 21 July 25 www.mariecurie.org.uk/research-and...mariecurie.org.ukResearch Grants Scheme: improving hospital experiencesMarie Curie's next call for research will focus on improving the quality of care and discharge processes in hospitals for people at the end of life. 010
Reposted by Sabine BestJohn MacArtney @johnmacartney.bsky.social · 03/06/2025*FAO all hospices!* We want to help you set-up and develop a Men's Shed support group. For more information please watch our short presentation (25mins) explaining what Men's Sheds are, the benefits they bring, and how we are able to help you start your own! www.youtube.com/watch?v=s5ZY...youtube.comHow to start a Men's Shed in your hospiceYouTube video by Marie Curie 144
Reposted by Sabine BestAnne Finucane @annefinucane.bsky.social · 30/05/2025Great to see over 100 posters on the management of psychological symptoms & needs at #eapc2025. Check out our poster on research required in this area. And feel free to join our network to exchange ideas on research and practice in this space: www.mainexchange.org.uk 186
Reposted by Sabine BestDonna Wakefield @donnawakefield.bsky.social · 30/05/2025Sharing the results of this important study at #EAPC2025: Mapping the #PalliativeCare #Research workforce in the UK 🗺️ - thoughts? Led by @annefinucane.bsky.social -with wide collaboration including @simonnoahetkind.bsky.social & @flissmurtagh.bsky.social Funded by @mariecurieeolc.bsky.social 0205
Reposted by Sabine BestAnne Finucane @annefinucane.bsky.social · 29/05/2025My Grief My Way: delighted to present a poster on our bereavement support resource at #eapc2025. Our website content is free to use by all, with further material coming soon! mygriefmyway.co.uk Funded by @mariecurieuk.bsky.social 11410
Sabine Best @sabinebest.bsky.social · 29/05/2025Congratulations to @andreabruun.bsky.social for winning the @eapcvzw.bsky.social Early Career Researcher Award #EAPC2025 - so well deserved! Brilliant to hear about your career development from PhD @mariecurieeolc.bsky.social @ucl.ac.uk Research Dept and current work on learning disabilities 283
Sabine Best @sabinebest.bsky.social · 14/05/2025Pre-launch: themes for the next @mariecurieuk.bsky.social Research Grants Scheme call, based on the refreshed @jameslindalliance.bsky.social palliative + end of life care research priorities - focus on hospital palliative + end of life care from ED to discharge www.mariecurie.org.uk/research-and...mariecurie.org.ukCall for research: Improving hospital experiencesMarie Curie's next call for research will focus on improving the quality of care and discharge processes in hospitals for people at the end of life. 010
Reposted by Sabine BestDr Ben Bowers @drbenbowers.bsky.social · 27/04/2025I’m presenting at the Dorothy House Palliative Care Research Conference on 5 June, discussing the timely, effective and safe use of injectable end-of-life medications. Bringing together our brand new research for the 1st time! www.dorothyhouse.org.uk/palliative-c...dorothyhouse.org.ukPalliative Care Research ConferenceOur Palliative Care Research Conference aims to support researchers and practitioners to establish research opportunities in their hospice. 022
Reposted by Sabine BestMarieCurieEOLC @mariecurieeolc.bsky.social · 19/03/2025Marie Curie funded research is looking into the palliative and end of life care research workforce. Can you help? The sessions seek to explore your views on the findings and implications for growing the palliative care research workforce in the UK. See below post for details 👇 1128
Reposted by Sabine BestMarieCurieEOLC @mariecurieeolc.bsky.social · 19/02/2025🏅Our Tammy Prescott public and patient involvement award goes to the team behind the Victoria and Stuart Project! The project was a codesign of a toolkit of resources for advanced care planning for those at the end of life with learning difficulties. 132
Sabine Best @sabinebest.bsky.social · 14/02/2025'Dads' Takeaway nights' - most effective in engaging fathers of children who have died suddenly - Sarah Hodkinson and Lisa Dennis from Shooting Star Children's Hospices #MCResearch2025 on their bereavement support model. Very moving and available on catchup www.shootingstar.org.uk/news/shootin...shootingstar.org.ukShooting Star's bereavement service highly commended at Third Sector AwardsShooting Star Children’s Hospices has been highly commended in the Breakthrough of the Year category at the prestigious Third Sector Awards 2024 for the ground-breaking expansion of our bereavement se... 010
Reposted by Sabine BestMarieCurieEOLC @mariecurieeolc.bsky.social · 13/02/2025We’re excited to announce the launch of new research priorities for palliative and end of life care! These have been created in a project with the JLA and other partner organisations, including co-funders the ESRC and @mndassoc.bsky.social, and guided by people affected by a life limiting illness. 12113
Sabine Best @sabinebest.bsky.social · 14/02/2025Most carers of people at the end of life are significantly older, most aged over 65 years, 20% aged over 80 years - striking findings that chime with my experience of my mother caring for my father for > 2 years, aged 84+, Clare Gardiner Sheffield #MCResearch2025 www.sheffield.ac.uk/palliativere...sheffield.ac.ukFinancial and employment impacts of end of life family caregivingFunded by Marie Curie, this study used data from the UK Household Longitudinal Survey (UKHLS) and Health Survey for England (HSE) to explore the financial and employment impacts of end of life caring ... 011
Sabine Best @sabinebest.bsky.social · 14/02/2025Really important new data on unpaid carers from Clare Gradiner, Sheffield #MCResearch2025: between 150,000 and 180,000 people every year are providing unpaid care for someone at the end of life - around 4% of household carers in the UK @mariecurieeolc.bsky.social www.sheffield.ac.uk/palliativere...sheffield.ac.ukFinancial and employment impacts of end of life family caregivingFunded by Marie Curie, this study used data from the UK Household Longitudinal Survey (UKHLS) and Health Survey for England (HSE) to explore the financial and employment impacts of end of life caring ... 010
Sabine Best @sabinebest.bsky.social · 14/02/2025Always shocked by the number of people dying in poverty in the UK - 111,000 in 2023, up from 90,000 in 2019 - higher risk for working age people, women, black minorities, North East, Wales @drjulietstone.bsky.social @helenbarnard.bsky.social @mariecurieeolc.bsky.social #MCResearch2025 bit.ly/42UPfpKbit.lyThe cost of dying crisisIt shouldn’t be harder to make ends meet at the end of your life. But many people are pushed into poverty after a terminal diagnosis. 054
Sabine Best @sabinebest.bsky.social · 14/02/2025Last day of the @mariecurieeolc.bsky.social Research into Practice conference - another great line up of interesting presentations! I did not manage to catch all sessions live yesterday and Tuesday but will watch them all on catchup #MCResearch2025 mariecurie.ivent-pro.com/events/resea...mariecurie.ivent-pro.comiVent Pro 000
Sabine Best @sabinebest.bsky.social · 13/02/2025Session recording from @spbowers.bsky.social @felicitydewhurst.bsky.social on palliative care for people with multiple long-term conditions #MCResearch2025 now live-this is addressing priority 5 of the new @jameslindalliance.bsky.social Peolc research priorities healthopenresearch.org/documents/7-2healthopenresearch.org 162
Sabine Best @sabinebest.bsky.social · 13/02/2025Very interesting abstract session #MCResearch2025 - great to hear from Lynne Partington from @eolp.bsky.social about the @mariecurieeolc.bsky.social impact grant on involvement of activity coordinators in care homes to improve identification and management of depression 000
Sabine Best @sabinebest.bsky.social · 13/02/2025Great to be finally able to share the refreshed research priorities identified+prioritised by people with lived/professional experience, a partnership with @jameslindalliance.bsky.social @mndassoc.bsky.social, ESRC @mariecurieeolc.bsky.social Report here: healthopenresearch.org/documents/7-2healthopenresearch.org 011
Reposted by Sabine BestMarieCurieEOLC @mariecurieeolc.bsky.social · 12/02/2025🏅Congratulations to all the Marie Curie Research into practice conference 2025 prize winners! We'll be posting about each individual winner soon. In the meantime, check out this conference booth to explore the winning research - mariecurie.ivent-pro.com/events/resea... #MCResearch2025 041
Reposted by Sabine BestDr Lisa Graham-Wisener @lgrahamwisener.bsky.social · 11/02/2025I'm one of over 70 people tuned in for Stephanie Crawford from @qubelfastofficial.bsky.social School of Psychology's presentation on #deathliteracy at the Marie Curie annual conference #MCResearch2025 061
Sabine Best @sabinebest.bsky.social · 11/02/2025Great to hear about the partnership approach to discussing and researching end of life care for people with HIV by @mariecurieeolc.bsky.social community team and @thtorguk.bsky.social @brionyhudson.bsky.social great to see the use of the Life Cafe in the first stages #MCResearch2025 021
Reposted by Sabine BestSimon Etkind @simonnoahetkind.bsky.social · 04/02/2025How do you say "I don't know" whilst maintaining trust? Come to our session on communicating #uncertainty at the free @mariecurieuk.bsky.social Marie Curie Research into Practice Conference on 13.2.25 @2pm to find out. Register here: www.mariecurie.org.uk/research-and... #MCResearch2025mariecurie.org.ukResearch Conference 2025We're delighted to announce that the Marie Curie Research into Practice Conference will take place the week commencing Tuesday 11 February 2025. 163
Reposted by Sabine BestDr Catriona R Mayland @catrionamayland.bsky.social · 11/02/2025Delighted to be presenting 2day at Marie Curie 'Research into Practice' conference. The conference is online and free for all to attend. Join us as we give a voice to those with incurable #HNC, sharing key priorities for transforming complex care. #MCResearch2025 @sheilapayne1.bsky.social 095
Reposted by Sabine BestAndrea Bruun @andreabruun.bsky.social · 11/02/2025At the @mariecurieuk.bsky.social Research Into Practice Conference these days? 💡 #MCResearch2025 Then check out our @dappleproject.bsky.social poster booth! 🔍 It's called: Developing effective service models for Adult Palliative and end-of-life care for People with a LEarning disability: DAPPLEyoutube.comThe DAPPLE Project information video (NIHR159160)YouTube video by Prof Irene Tuffrey-Wijne 253
Sabine Best @sabinebest.bsky.social · 11/02/2025Such interesting insights from the session on the NI School Bereavement Programme on embedding grief education on the school curriculum #MCResearch2025 - young people are so much more open to talk about grief than adults seem to be www.mariecurie.org.uk/research-and...mariecurie.org.ukSchools Bereavement ProgrammeMarie Curie leads a program in Northern Ireland providing bereavement support for children and youth in educational settings. 011
Sabine Best @sabinebest.bsky.social · 11/02/2025Most people that ambulance services encounter who are at the end of life have not been previously identified as such - often people with frailty @edwardobrian.bsky.social @mariecurieeolc.bsky.social #MCResearch2025 - we need better recognition of the end of life for this population in primary care 082
Sabine Best @sabinebest.bsky.social · 11/02/2025There is an urgent need for more and better routine service data on people at the end of life and social and community care @sarahscobie.bsky.social #MCResearch2025 -the report presented in the first session of the @mariecurieeolc.bsky.social conference is here www.mariecurie.org.uk/document/pub...mariecurie.org.uk 031
Reposted by Sabine BestSarah Scobie @sarahscobie.bsky.social · 05/02/2025Our new report on with the Health Economic Unit and @mariecurieuk.bsky.social 👇nuffieldtrust.org.ukPublic expenditure in the last year of lifeSupporting people at the end of life is a crucially important element of public spending, yet there is remarkably little evidence available on how much money is being spent on it, and what that money ... 186
Sabine Best @sabinebest.bsky.social · 11/02/2025The Marie Curie Research into Practice Conference is finally here, starting today at 10am #MCResearch2025 mariecurie.ivent-pro.com/events/resea...mariecurie.ivent-pro.comiVent Pro 000
Sabine Best @sabinebest.bsky.social · 07/02/2025I'm so excited - It's almost time for the annual @mariecurieeolc.bsky.social Research into Practice Conference - it's online, it's free and attendees can dip in and out to view sessions of particular interest. All posters now live! (click on compass sign) mariecurie.ivent-pro.com/events/resea...mariecurie.ivent-pro.comiVent Pro 001
Reposted by Sabine BestJohn MacArtney @johnmacartney.bsky.social · 10/01/2025REALLY IMPORTANT SURVEY for all those in the UK researching dying and palliative care. The results will help shape research funding - so have your say, *especially* if you are have a social science or humanities background! 167
Reposted by Sabine BestMarie Curie UK @mariecurieuk.bsky.social · 10/01/2025"Wes Streeting is right. No one should die in hospital when they don’t want or need to be there. The state of end of life care needs to change." 💔 Read more from Dr Sarah Holmes: www.lbc.co.uk/opinion/view... #FixEndofLifeCare @rthonwesstreeting.bsky.social @lbc.co.uklbc.co.ukNo one should die in hospital when they don’t want or need to be there. The state of end of life care needs to change.Wes Streeting is right. No one should die in hospital when they don’t want or need to be there. The state of end of life care needs to change. 022
Sabine Best @sabinebest.bsky.social · 03/01/2025There's one more week to nominate someone, or even yourself, for the Marie Curie Prizes for Research Impact or PPI involvement! A great opportunity to highlight your work and win £1,000 - deadline is 10 January 25. Scroll down to the prize section here: www.mariecurie.org.uk/research/ann...mariecurie.org.ukResearch Conference 2025We are delighted to announce that the Marie Curie Research into Practice Conference will take place the week commencing Monday 10 February 2025. 022
Sabine Best @sabinebest.bsky.social · 17/12/2024UK-based researchers in palliative and end of life care: please take part in this important survey identifying the current #palliativecare research workforce. 001
Sabine Best @sabinebest.bsky.social · 13/12/2024Registration for the Marie Curie Research into Practice Conference is now open. Online and free and open to everybody interested in palliative and end of life care evidence. 11-14 February 25, 4 sessions per day. Registration link: mariecurie.ivent-pro.com/events/resea...mariecurie.ivent-pro.comiVent Pro 031