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James Lind Alliance

@jameslindalliance.bsky.social
372 followers 81 following 316 posts

Bringing patients, carers, and health and care professionals together to identify and prioritise the unanswered questions they want health research to address. Visit our website: www.jla.nihr.ac.uk

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Reposted by James Lind Alliance
Mental Health in Development @mhid.org.uk · 24/09/2026
Exciting news from our Supporting Early Minds team as the Developing Child UK Priority Setting Partnership shares the research priorities for babies, toddlers & preschoolers. A huge milestone for infant mental health research! mhid.org.uk/top-10-resea...
mhid.org.uk
Top 10 Research Priorities for the Social & Emotional Wellbeing of Under 5s - Mental Health in Development
We have been sharing regular updates about the progress of the Developing Child UK Priority Setting Partnership, run by Jane Barlow and Michael Fanner from our Supporting Early Minds team
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James Lind Alliance @jameslindalliance.bsky.social · 25/09/2026
💭What should women’s heart health research focus on? Help to shape the direction of future research in women's heart disease. Take part in the survey to choose the 10 questions that matter most to you: buff.ly/5ajo1Dz 📣Please share this survey across your networks.
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James Lind Alliance @jameslindalliance.bsky.social · 23/09/2026
📢Help shape future research. As a young person who has experienced gender incongruence, your voice matters. Choose the questions you think future research should answer: southampton.qualtrics.com/jfe/form/SV_... 📣Please help us get as many voices heard as possible and share this post.
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James Lind Alliance @jameslindalliance.bsky.social · 21/09/2026
There are a few JLA PSPs that have published research priorities identified by people with experiences of cancer in childhood, their families, and the healthcare professionals that support them. The Top 10s from these PSPs can be found here: buff.ly/P8zGtqO #ChildhoodCancerAwarenessMonth
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James Lind Alliance @jameslindalliance.bsky.social · 17/09/2026
This #SickleCellAwarenessMonth, we encourage researchers and funders to use the Sickle Cell Genomics PSP priorities to shape future research. 🌟Identified by people with lived and professional experience, they highlight the questions that matter most. Explore the priorities: buff.ly/73u6TYb
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James Lind Alliance @jameslindalliance.bsky.social · 17/09/2026
Help to identify the Top 10 priorities for research into gender incongruence in young people. Take the survey to choose the research questions you think are most important: southampton.qualtrics.com/jfe/form/SV_...
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James Lind Alliance @jameslindalliance.bsky.social · 15/09/2026
Have you experienced delirium, or have you cared for someone who has? If so, help to shape the future of delirium research in the UK. Take part in the survey to choose the questions you consider to be the most important priorities for future research: buff.ly/jC9r9in
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James Lind Alliance @jameslindalliance.bsky.social · 14/09/2026
A new study has mapped UK childhood cancer research against the 23 priorities identified through the JLA Children’s Cancer PSP. This study shows where funding is and where gaps remain. We hope it helps inform future research priorities. Find out more: buff.ly/jw5XP16
onlinelibrary.wiley.com
Does Current United Kingdom Childhood Cancer Research Address the James Lind Alliance Children's Cancer Priority Setting Partnership Priorities? A Grant Mapping Study
Introduction The James Lind Alliance Children's Cancer Priority Setting Partnership identified 23 key research topics, as defined by children, survivors, families, carers, and professionals.…
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James Lind Alliance @jameslindalliance.bsky.social · 10/09/2026
No one understands gender incongruence better than young gender diverse people, their parents/ carers and the professionals who work with them. Pick the 10 questions that you think research needs to answer: buff.ly/sFWXC0d
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James Lind Alliance @jameslindalliance.bsky.social · 10/09/2026
📢 Help shape future research on digital health technology for trauma and orthopaedics. What do you think are the most important unanswered questions about how digital technology can improve care for people with bone, joint, muscle and soft tissue conditions? Share your views buff.ly/gMiQKny
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James Lind Alliance @jameslindalliance.bsky.social · 09/09/2026
📢Have your say! Help to identify the most important unanswered research questions about digital technologies for living independently at home and in the community. If you draw on care or support, provide unpaid care, or work in the sector, share your thoughts: buff.ly/EqgNl1r
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James Lind Alliance @jameslindalliance.bsky.social · 08/09/2026
The Pediatric Migrant Health in Europe PSP has published the most important unanswered research questions relating to the health and healthcare of children and adolescents with migration experiences. 📄Find out more about the PSP and the top research priorities: buff.ly/I9stYQL
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Reposted by James Lind Alliance
National Perinatal Epidemiology Unit @npeu-oxford.bsky.social · 25/08/2026
Help future research into perinatal mental health focus on what matters to you. Take part in the survey to help identify the Top 10 priorities with @jameslindalliance.bsky.social here: bit.ly/PMHTopTen #PMHResearchPriorities @mmhalliance.bsky.social
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Reposted by James Lind Alliance
SURGE Workforce Research Partnership @surgeworkforce.bsky.social · 25/08/2026
🚀 Here they are! The top 10 priorities for research in same day, urgent and emergency care 🚑 as identified as part of our priority setting partnership in association with the @jameslindalliance.bsky.social @bethjonesresearch.bsky.social @nickiwalsh.bsky.social @chcr-uwe.bsky.social
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Reposted by James Lind Alliance
SURGE Workforce Research Partnership @surgeworkforce.bsky.social · 20/08/2026
🚀 and...that's a wrap! (for now....) The full top 10 list as part of our PSP in association with the @jameslindalliance.bsky.social ⬇️ ⏰ Stay tuned to find out about how SURGE is beginning to address some of these 🔎 @bethjonesresearch.bsky.social @nickiwalsh.bsky.social @chcr-uwe.bsky.social
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James Lind Alliance @jameslindalliance.bsky.social · 04/09/2026
A new funding opportunity from the NIHR and Addictions Healthcare Goals Programme is now open for applications: buff.ly/LKqwaSK Strong applications may align with the top research priorities identified by people with experience of addiction and those who support them: buff.ly/iUQFCGi
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James Lind Alliance @jameslindalliance.bsky.social · 03/09/2026
📢 New Top 10! The Delirium (Australia and New Zealand) PSP worked with people at risk of experiencing delirium, those experiencing delirium and those caring for them, to identify and prioritise uncertainties of the condition. Check out the top research priorities: buff.ly/3AmbAWN
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James Lind Alliance @jameslindalliance.bsky.social · 31/08/2026
📢 Have your say on physical and mental health in prison. Have you experienced physical and mental health conditions in prison, supported someone who has, or worked with people in this situation? What would you like to see improved? Your experience can help shape future research. buff.ly/usgbY2k
docs.google.com
Physical and Mental Health in Prisons Priority Setting Partnership
Have you had a physical and mental health condition at the same time while being in prison? OR Do you have a family member or someone you care for who has (or had) physical and mental health…
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James Lind Alliance @jameslindalliance.bsky.social · 27/08/2026
📢 Have your say on future research into digital technologies for independent living. If you draw on care or support, provide unpaid care, or work in the sector, choose the questions you think research should answer. Standard survey: buff.ly/URPRr04 Screen-reader accessible survey: buff.ly/8Kcusbg
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James Lind Alliance @jameslindalliance.bsky.social · 26/08/2026
The Problematic Menstrual Bleeding PSP has published the top priorities for future research. 📄Learn more about the PSP and the priorities in the latest journal article: buff.ly/kzR2E3n
thelancet.com
Research priorities for problematic menstrual bleeding
Heavy, prolonged, frequent, or irregular menstrual bleeding can cause iron deficiency and negatively affect physical, social, emotional, and material quality of life. In the 2023 Reproductive Health…
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James Lind Alliance @jameslindalliance.bsky.social · 25/08/2026
Are you based in Canada? Do you have lived or living experience (as a patient, carer, or healthcare professional) of heart failure? Please pick up to 10 questions that you think are most important for researchers to answer about the brain-related implications of heart failure: buff.ly/dmqpKEw
redcap.link
Brain and Heart Failure Priority Setting Partnership
The module mentioned in the error below is preventing REDCap from working properly. It is recommended to disable this module until it can be updated to avoid this error:
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James Lind Alliance @jameslindalliance.bsky.social · 24/08/2026
📢 New Top 10 published! The Pediatric Migrant Health in Europe PSP has identified the most important unanswered questions for improving healthcare for children and adolescents with migration experiences across Europe. Explore the priorities... JLA website: buff.ly/fJXsLEg Video: buff.ly/2QD7pup
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James Lind Alliance @jameslindalliance.bsky.social · 21/08/2026
The Problematic Menstrual Bleeding PSP worked with people with lived experience, supporters, and healthcare professionals to identify unanswered questions about managing irregular, frequent, heavy, or prolonged menstrual bleeding. Check out the top priorities for future research: buff.ly/NcaAhMC
jla.nihr.ac.uk
Problematic Menstrual Bleeding PSP
Top 10 priorities
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James Lind Alliance @jameslindalliance.bsky.social · 18/08/2026
The Preventing Joint Replacement Infection Priority Setting Partnership is bringing together patients, carers, and healthcare professionals to decide what future research should focus on. Take part in the survey to share your views: jointinfectionpsp.qualtrics.com/jfe/form/SV_...
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James Lind Alliance @jameslindalliance.bsky.social · 17/08/2026
NIHR's Health Technology Assessment Programme is looking to fund research about interventions for improving outcomes in adults with faecal incontinence: buff.ly/210Dd9L 🌟 We encourage researchers to address the top research priorities from the Faecal Incontinence in Adults PSP: buff.ly/iIoH3CM
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Reposted by James Lind Alliance
SURGE Workforce Research Partnership @surgeworkforce.bsky.social · 14/08/2026
🚨 Priority number 4 - How might services be enhanced in Urgent and Emergency Care? 🚑 @jameslindalliance.bsky.social @nickiwalsh.bsky.social @bethjonesresearch.bsky.social @chcr-uwe.bsky.social @reachbristol.bsky.social
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Reposted by James Lind Alliance
SURGE Workforce Research Partnership @surgeworkforce.bsky.social · 13/08/2026
..half way there! Priority number 5 is about skill mix ⚙️ @jameslindalliance.bsky.social @chcr-uwe.bsky.social @nickiwalsh.bsky.social @bethjonesresearch.bsky.social
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Reposted by James Lind Alliance
SURGE Workforce Research Partnership @surgeworkforce.bsky.social · 12/08/2026
Priority number 6 is about individual and system level clinical risk tolerance 🚨 @jameslindalliance.bsky.social @chcr-uwe.bsky.social @nickiwalsh.bsky.social @bethjonesresearch.bsky.social
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James Lind Alliance @jameslindalliance.bsky.social · 13/08/2026
The Endoscopy PSP worked with patients, carers and clinicians to identify unanswered questions about endoscopy services from referral to results. ➡️ PSP's Top 10 priorities for future research: buff.ly/oNFec4B ➡️ PSP's final report: buff.ly/TkceE27
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James Lind Alliance @jameslindalliance.bsky.social · 12/08/2026
📢New Top 10! The Same Day and Urgent Care (SURGE) workforce PSP has identified key workforce challenges within this sector and priorities for future research. The top research priorities are now available on the JLA website: buff.ly/7Tv5Hnw
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Reposted by James Lind Alliance
SURGE Workforce Research Partnership @surgeworkforce.bsky.social · 11/08/2026
💡 Priority 7...🚂 Training to manage risk and uncertainty in urgent and emergency care... 🚨 How well equipped do you feel to manage risk and uncertainty? What training do you think is neeed? 🔍 @chcr-uwe.bsky.social @bethjonesmd.bsky.social @nickiwalsh.bsky.social @jameslindalliance.bsky.social
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Reposted by James Lind Alliance
SURGE Workforce Research Partnership @surgeworkforce.bsky.social · 10/08/2026
⭐ PRIORITY 8 What is your experience of inter-professional communication in UEC? ➡️ check out our page for the day-by-day countdown to the top priorities for workforce research in UEC @bethjonesresearch.bsky.social @nickiwalsh.bsky.social @chcr-uwe.bsky.social @jameslindalliance.bsky.social
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James Lind Alliance @jameslindalliance.bsky.social · 11/08/2026
Have you had a hip or knee replacement for osteoarthritis, or cared for someone who has? Are you a healthcare professional involved in their care? 💭 Share the questions that you think research should answer to improve patients' experiences. Have your say: buff.ly/r2iYUlH
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Help shape hip and knee replacement research in the UK! - Online Surveys | Online surveys
Online surveys is a powerful, easy to use tool for creating online surveys. Run by Jisc, Online surveys is used by over 300 different organisations in the UK...
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James Lind Alliance @jameslindalliance.bsky.social · 10/08/2026
NIHR's Health Technology Assessment (HTA) Programme is looking to fund research about developmental stammer: buff.ly/hB8GyaD 🌟 We encourage researchers to address the top research priorities from the Developmental Childhood Stammering PSP: buff.ly/zWuT0h4
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Reposted by James Lind Alliance
reachbristol.bsky.social @reachbristol.bsky.social · 06/08/2026
We are excited to share some of the first findings from SURGE! @surgeworkforce.bsky.social Counting back from 10, the team are releasing the priorities identified from their PSP in association with the @jameslindalliance.bsky.social @bethjonesresearch.bsky.social @nickiwalsh.bsky.social
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Reposted by James Lind Alliance
SURGE Workforce Research Partnership @surgeworkforce.bsky.social · 06/08/2026
🎖️ The results are in....! The Priority Setting Partnership in association with the @jameslindalliance.bsky.social has identified the priorities for workforce research in urgent and emergency care 🏥 We will be counting down from 10 - releasing one priority a day until the full list is live 💡
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James Lind Alliance @jameslindalliance.bsky.social · 06/08/2026
📢 New Top 10 research priorities! The Endoscopy PSP brought together patients, carers and clinicians to identify the unanswered questions that matter most across the endoscopy pathway, from referral and diagnosis to receiving results. Explore the priorities: buff.ly/tRWfiXn
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James Lind Alliance @jameslindalliance.bsky.social · 04/08/2026
The Metabolic Interventions for People with Severe Mental Illness PSP brought together people with lived experience, carers, and health and social care professionals to identify the research questions that matter most. Explore the priorities: ➡️https://buff.ly/6ahNxLN
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James Lind Alliance @jameslindalliance.bsky.social · 03/08/2026
It is Spinal Muscular Atrophy (SMA) Awareness Month. We are highlighting the research priorities identified by people affected by SMA and the healthcare professionals that support them: buff.ly/RuK7aM4 🌟We encourage researchers and funders to use these priorities to shape future research.
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James Lind Alliance @jameslindalliance.bsky.social · 31/07/2026
Help shape the Top 10 research priorities in perinatal mental health. Take part in the survey to share your views: bit.ly/PMHTopTen #PMHResearchPriorities 📢 Share the survey with your colleagues, patients, and their carers to ensure a wide range of voices are heard and represented in the future.
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Perinatal Mental Health | James Lind Alliance Priority Setting Partnership
Join the Perinatal Mental Health James Lind Alliance (JLA) Priority Setting Partnership consultation – have your say now and shape the future of perinatal mental health research!
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James Lind Alliance @jameslindalliance.bsky.social · 29/07/2026
📢 What's new on the JLA website? Check out the newest Priority Setting Partnership (PSP) web pages: - Pregnancy Hypertension in Low-income and Lower-middle-income Settings (Sierra Leone and Zambia) ➡️ buff.ly/P2uT9b7 - Bone and Joint Infection ➡️ buff.ly/fZcHqen - Eczema Refresh ➡️ buff.ly/CmFyy7c
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James Lind Alliance @jameslindalliance.bsky.social · 28/07/2026
The Global Burn Injury Priority Setting Partnership launched in 2021 and worked with patients, carers and clinicians in countries across the world to identify and prioritise uncertainties about burn care management. We are pleased to share the PSP's final report:
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Priorities in Global Burns Research
PSP Final Report
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James Lind Alliance @jameslindalliance.bsky.social · 27/07/2026
📢 New Top 10 The Young Adults with Hip Pain (YAHP) PSP worked with patients, carers and healthcare professionals to identify the most important unanswered questions about hip pain in individuals between the ages of aged 16 to 55 years. ➡️ Check out the priorities:
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Young Adults with Hip Pain PSP
Top 10 priorities
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James Lind Alliance @jameslindalliance.bsky.social · 24/07/2026
The Brain-Computer Interfaces for Motor Impairments (BCIs) PSP has published its list of priorities for future research. These priorities have been identified by patients, carers and healthcare professionals with lived and/or professional experience of BCIs. ➡️ Check out the Top 10: buff.ly/GStcdOD
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James Lind Alliance @jameslindalliance.bsky.social · 23/07/2026
📢Today is world Sjögren's Day. The Sjögren's Disease PSP wants to know what questions matter most to patients, their families, and healthcare professionals across Ireland. If you have lived and/or professional experience of Sjögren's Disease, share your views:
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Shaping the Future of Sjögren's Disease Research: Shortlisting Survey
Take this survey powered by surveymonkey.com. Create your own surveys for free.
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James Lind Alliance @jameslindalliance.bsky.social · 17/07/2026
💭What are the most important research topics for children and young people with coeliac disease? Children and young people with coeliac disease, their parents/caregivers, and healthcare professionals based in the Netherlands are invited to share their views. Take the survey:
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Kennisagenda coeliakie bij kinderen - Glutenvrij
We vragen jouw mening om te kijken wat voor kinderen en jongeren met coeliakie de belangrijkste onderwerpen van onderzoek zijn. Dat doen de Nederlandse Coeliakie Vereniging (NCV) en het Rijnstate…
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James Lind Alliance @jameslindalliance.bsky.social · 16/07/2026
The Food Allergy in Children PSP worked with children, parents and health care professionals to identify the unanswered research questions that matter most to them about the prevention, diagnosis and care of food allergy in children. 📄 Learn more in the PSP's recent journal article:
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Research Priorities for Children With Food Allergy: A UK James Lind Alliance Priority Setting Partnership
The UK childhood food allergy James Lind Alliance Priority Setting Partnership collaboratively identified the most important research priorities highlighting the breadth of research required to improve the prevention, diagnosis, treatment and broader impacts of food allergy on those directly impacted. These provide a clear, stakeholder-driven agenda to guide future research and funding.
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James Lind Alliance @jameslindalliance.bsky.social · 15/07/2026
📢 Which questions about IBS and functional abdominal pain in young people should research answer? Young people, parents and healthcare professionals based in the Netherlands are invited to choose the top 10 research questions. Take part in the survey: buff.ly/nZ5kKeo
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James Lind Alliance @jameslindalliance.bsky.social · 13/07/2026
What happens after a JLA PSP publishes its priorities? A new grant mapping exercise examined whether UK childhood cancer research funding reflects the priorities identified by children, families and healthcare professionals, and where more attention is needed. Read more:
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Latest News
How far does current funding reflect the priorities from the Children’s Cancer Priority Setting Partnership? A grant mapping exercise
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James Lind Alliance @jameslindalliance.bsky.social · 09/07/2026
The Neuroendocrine Cancer PSP brought together patients, carers and healthcare professionals to identify the top research priorities. The priorities highlight the most important unanswered questions across diagnosis, treatment, survivorship and supportive care. Find out more: buff.ly/ma7ydA3
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