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Simon Etkind

@simonnoahetkind.bsky.social
243 followers 267 following 21 posts

Palliative care clinical-academic. Uncertain about uncertainty

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Simon Etkind @simonnoahetkind.bsky.social · 02/06/2026
Ok folks, last chance to complete the CURVE study and help us understand more about communicating uncertain recovery in acute care. We now have over 300 responses from across the UK, can you help us get to 350 before the end of the week? cambridge.eu.qualtrics.com/jfe/form/SV_...
cambridge.eu.qualtrics.com
Communicating Uncertain RecoVEry in acute care: a survey of physicians’ views. (The CURVE Study)
Communicating Uncertain RecoVEry in acute care: a survey of physicians’ views. (The CURVE Study)
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Simon Etkind @simonnoahetkind.bsky.social · 11/05/2026
Thanks to the 130+ UK doctors who have taken part in the CURVE study so far! There's still time to fill out our short survey so please consider sharing your views on communicating uncertain recovery. cambridge.eu.qualtrics.com/jfe/form/SV_... @rcphysicians.bsky.social @acutemedicine.bsky.social
cambridge.eu.qualtrics.com
Communicating Uncertain RecoVEry in acute care: a survey of physicians’ views. (The CURVE Study)
Communicating Uncertain RecoVEry in acute care: a survey of physicians’ views. (The CURVE Study)
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Simon Etkind @simonnoahetkind.bsky.social · 20/04/2026
Calling all UK based doctors! Take part in our survey to improve Communication of Uncertain RecoVEry in acute care. Follow this link to take part and please share widely with colleagues. cambridge.eu.qualtrics.com/jfe/form/SV_... @rcphysicians.bsky.social @acutemedicine.bsky.social
cambridge.eu.qualtrics.com
Communicating Uncertain RecoVEry in acute care: a survey of physicians’ views. (The CURVE Study)
Communicating Uncertain RecoVEry in acute care: a survey of physicians’ views. (The CURVE Study)
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Simon Etkind @simonnoahetkind.bsky.social · 13/04/2026
New paper considers what we should aim for when addressing uncertainty from serious illness. Important elements are finding security together by reframing uncertainty and moving forward through parallel planning. Great work Rachel & team! link.springer.com/article/10.1...
link.springer.com
What Should We Aim for when Addressing Uncertainty from Serious Illness? A Stakeholder Focus Group Study - Journal of General Internal Medicine
Background Uncertainty is ubiquitous in serious illness. It defines experiences of diagnosis, current illness, and future prognosis and is experienced across physical, psychological, and temporal doma...
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Simon Etkind @simonnoahetkind.bsky.social · 16/03/2026
Our new review of patient centred outcome measures in #palliative care is out: link.springer.com/article/10.1... Pulling together evidence since 2013 with info on facilitators and barriers to implementation
link.springer.com
Implementing patient-centred outcome measures in palliative care clinical practice. An updated systematic review of facilitators and barriers - BMC Palliative Care
Background Patient-centred outcome measures (PCOMs), when well implemented, are powerful tools facilitating patient, family and clinical communication to better respond to patient needs. Their routine...
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Simon Etkind @simonnoahetkind.bsky.social · 05/01/2026
Just out in @palliativemedj.bsky.social: Our practice review brings together the latest evidence on managing gastric outflow obstruction in palliative care Available open access here: journals.sagepub.com/doi/full/10....
journals.sagepub.com
Sage Journals: Discover world-class research
Subscription and open access journals from Sage, the world's leading independent academic publisher.
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Simon Etkind @simonnoahetkind.bsky.social · 24/09/2025
I'm honoured to be speaking at the @stclarehospice.bsky.social Hospice Palliative Care Conference on Friday 10th October. This year's theme is 'The future of end of life care' & I'll be talking about how we can deliver more equitable #EndOfLifeCare by changing our approach to future uncertainties
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Primary Care Unit, University of Cambridge @pcucambridge.bsky.social · 03/09/2025
Bella Madden, our public research partner, shares a heartfelt poem on anticipatory injectable medications in end-of-life care. The poem accompanies a new research paper exploring family carers experiences with these practices. youtu.be/fHoAaiPG6C8 Read more: doi.org/10.1177/1744...
youtu.be
Bella Madden's poem on anticipatory injectable medications in end-of-life care
YouTube video by Primary Care Unit, University of Cambridge
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Anna Alexandrova @annaalexandrova.bsky.social · 01/08/2025
This personal piece by Robbie puts his writings on attachment theory in context of his life n parenting. It is heartbreakingly matter of fact about what he's been through. But the analytic upshot is that attachment theory has clear implications in this more extreme situation too. A pleasure to read.
bps.org.uk
‘Attachment research gave some indication where we could start in trying to parent our seriously unwell daughter’ | BPS
Robbie Duschinsky (University of Cambridge) reflects on parenting a profoundly unwell and disabled child whilst undertaking research and writing about attachment.
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eapcvzw.bsky.social @eapcvzw.bsky.social · 15/07/2025
‘This presents a difficult dilemma for clinicians: should they always provide explicit information, even when it may go against patients’ or families’ wishes?’ This week’s #EAPCblog explores this complex topic eapcnet.wordpress.com/2025/07/15/p...
eapcnet.wordpress.com
Page not found | EAPC Blog
The blog of the European Association for Palliative Care
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Simon Etkind @simonnoahetkind.bsky.social · 05/07/2025
Our prognostic uncertainty communication study is out, see here for details! Please share with colleagues who may find this useful @rcphysicians.bsky.social apmposts.bsky.social @acutemedicine.bsky.social @gerisoc.bsky.social
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Good Grief Festival @goodgrieffest.bsky.social · 03/06/2025
Stephanie Meddick-Dyson (@drstephmeddickd.bsky.social) is inviting people to share their experiences of care in the Intensive Care Unit through focus groups or interviews. Please see the flyer or get in touch with Stephanie for more details
A flyer for Stephanie's study. For more information, visit: https://brave-icu.my.canva.site/#patient-and-family-focus-groups
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Simon Etkind @simonnoahetkind.bsky.social · 31/05/2025
What does good look like in situations of uncertainty from serious illness? Rachel Chen presenting her framework of desired outcomes #EAPC2025 Finding security in uncertainty together is the key
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Donna Wakefield @donnawakefield.bsky.social · 30/05/2025
Sharing the results of this important study at #EAPC2025: Mapping the #PalliativeCare #Research workforce in the UK 🗺️ - thoughts? Led by @annefinucane.bsky.social -with wide collaboration including @simonnoahetkind.bsky.social & @flissmurtagh.bsky.social Funded by @mariecurieeolc.bsky.social
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Simon Etkind @simonnoahetkind.bsky.social · 30/05/2025
Multimorbidity drives outpatient service use and is every specialties' business. We need more realistic conversations and better communication. Great presentation @spbowers.bsky.social #EAPC2025. Any data on acute care use?
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Simon Etkind @simonnoahetkind.bsky.social · 30/05/2025
New and extended roles in end of life care: @drbenbowers.bsky.social presenting his study of UK community nurses post-pandemic experiences @arceastofengland.bsky.social @pcucambridge.bsky.social #EAPC2025
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Dr Catriona R Mayland @catrionamayland.bsky.social · 29/05/2025
#EAPC2025 kicks off with a plenary on #ILD. #Opioids good for #cough, potentially for exertional dyspnoea and use at the very end-of-life - but not for chronic breathlessness. @eapcvzw.bsky.social
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Simon Etkind @simonnoahetkind.bsky.social · 27/05/2025
We've co-designed practice recommendations for communicating prognostic uncertainties in advanced multimorbidity. See here for the paper: rdcu.be/enwFr @pcucambridge.bsky.social @rcphysicians.bsky.social @gerisoc.bsky.social @apmposts.bsky.social @arceastofengland.bsky.social
a description of recommendations for communicating about uncertainty
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Professor Jonathan Koffman @jonathankoffman.bsky.social · 21/05/2025
Out today. My amazing PhD student, Miki Fujimoto, supervised with @catherineevans.bsky.social publishes her first PhD paper. This systematic review examines readiness for ACP among frail older adults & develops a logic model to inform intervention development linkinghub.elsevier.com/retrieve/pii...
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Professor Jonathan Koffman @jonathankoffman.bsky.social · 19/05/2025
Out today! Walking the fine line with information provision at the end life is highly nuanced and complex but we provide a workable roadmap to minimise harm and promote beneficence.
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Dr Ben Bowers @drbenbowers.bsky.social · 18/05/2025
Community nurses based in the UK? Please help us evidence how much of your work involves end of life care. Take part in our 10-min max survey study here: cambridge.eu.qualtrics.com/jfe/form/SV_... @theqicn.bsky.social @crystaloldman.bsky.social @johnunsworth10.bsky.social @rosyroo.bsky.social
cambridge.eu.qualtrics.com
NOTICE Survey
NOTICE Survey
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Dr Kathryn Mannix @drkathrynmannix.bsky.social · 06/05/2025
It's #DyingMattersWeek We're all going to do it. Shouldn't we get our minds around what to expect? Here's a 3 min guide. If you like it, please share it. bit.ly/TheosDFB
bit.ly
Dying for Beginners | Dr Kathryn Mannix
In modern British society, death is out of sight and behind closed doors. Many of us lack direct exposure to the dying process - with all sorts of potential emotional and spiritual consequences for how we grieve our loved ones, as well as how we prepare for our own deaths. What does the dying process actually look like? A short animation by Emily Downe, and voiced by Dr Kathryn Mannix which guides you gently on a step by step journey through the process of dying. Acclaimed author, speaker and former palliative care physician Dr Kathryn Mannix has spent her medical career working with people who have incurable, advanced illnesses. The author of two Sunday Times Bestsellers – With The End in Mind and Listen, Dr Mannix is on a mission to reclaim the public’s understanding of dying. CREDITS Written and voiced by Dr Kathryn Mannix Directed and designed by Emily Downe Animated by Martha Halliday Music and sound by Jan Willem de With Produced by Theos with thanks to The Fetzer institute Find out more about Theos' work in the area of death, dying and the afterlife here: https://www.theosthinktank.co.uk/dying-for-beginners-theos-work-on-death-dying-and-the-afterlife ***** Like what you see? Be sure to sign up to the Theos monthly newsletter to stay up-to-date with all our content, research and events: https://confirmsubscription.com/h/d/E9E17CAB71AC7464 CONNECT WITH THEOS Twitter: https://twitter.com/Theosthinktank Facebook: https://www.facebook.com/theosthinktank LinkedIn: https://www.linkedin.com/company/theos---the-think-tank/ Website: https://www.theosthinktank.co.uk/ CHECK OUT OUR PODCASTS The Sacred: https://podcasts.apple.com/gb/podcast/the-sacred/id1326888108 Reading Our Times: https://podcasts.apple.com/gb/podcast/reading-our-times/id1530952185
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Dr Ben Bowers @drbenbowers.bsky.social · 04/05/2025
Community nurses - how much of your work involves end of life care? Does any of this work have to go deferred? Please help with our short anonymous survey & share widely with colleagues 🙂 Take part here: cambridge.eu.qualtrics.com/jfe/form/SV_... @crystaloldman.bsky.social @theqicn.bsky.social
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Prof Katherine Sleeman @katherinesleeman.bsky.social · 09/04/2025
Open access paper just out on The social determinants of where people die: A study of moderators and mediators using linked UK Census and mortality data. Brilliantly led by @joannamdavies.bsky.social www.sciencedirect.com/science/arti...
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Jugdeep Dhesi @jkdhesi.bsky.social · 09/04/2025
Yup, this is why we need to respond to Sir Chris Whittys survey request about medical training for the future. We must plan for a workforce who can deliver healthcare aligned to needs of patients, the majority of which have MLTC. Similar, of course, for nursing/AHP @gerisoc.bsky.social
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Dr Ben Bowers @drbenbowers.bsky.social · 29/03/2025
🚨Our new BJGP paper - community nurses providing palliative care find collaborating with GPs harder, where practices have been moved towards remote dialogue & workforce diversification @bjgp.bsky.social Pls Share. Our paper: bjgp.org/content/earl... @theqicn.bsky.social @crystaloldman.bsky.social
bjgp.org
How do GPs’ new ways of working affect community nurses? A qualitative study
Background A growing literature examines the way two changes in primary care – the shift towards remote working, and the diversification of practice teams to incorporate, for instance, physician assoc...
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Primary Care Unit, University of Cambridge @pcucambridge.bsky.social · 28/03/2025
Researchers from the University of Cambridge have found that community nurses providing palliative care find collaborating with GPs harder, where practices have been moved towards remote dialogue and workforce diversification. Read more: www.phpc.cam.ac.uk/news/how-do-...
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MarieCurieEOLC @mariecurieeolc.bsky.social · 19/03/2025
Marie Curie funded research is looking into the palliative and end of life care research workforce. Can you help? The sessions seek to explore your views on the findings and implications for growing the palliative care research workforce in the UK. See below post for details 👇
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Amara Nwosu @amaranwosu.bsky.social · 15/03/2025
Well done to @katieflanagan.bsky.social for presenting a great paper in the @mariecurieuk.bsky.social Hospice Liverpool journal club about the role of #VirtualReality in palliative care for hospice patients. #hapc #palliativecare #medsky #vr @nicolawhite.bsky.social @sarah-stan.bsky.social
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The BMJ @bmj.com · 13/03/2025
Terminal illness is already characterised by uncertainty about the future trajectory. Prognostic uncertainty will become a more central issue if eligibility for assisted dying hinges on prognosis, say @samurray3.bsky.social and @simonnoahetkind.bsky.social www.bmj.com/content/388/...
People protesting for assisted dying outside Parliament
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Prof Mark Taubert @profmarktaubert.bsky.social · 12/03/2025
Really important editorial on predicting survival, prognosis and the current #AssistedDying law
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Simon Etkind @simonnoahetkind.bsky.social · 12/03/2025
Predicting a prognosis of 6 months is fraught with uncertainty and impossible to do accurately Scott Murray & I summarise the challenges of predicting survival over this timescale in @bmj.com & what this means for proposed Assisted Dying legislation www.bmj.com/content/388/...
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Simon Etkind @simonnoahetkind.bsky.social · 28/02/2025
Frailty brings up several important issues in relation to #assisteddying Read our commentary here: academic.oup.com/ageing/artic... @gerisoc.bsky.social
academic.oup.com
Why we need to consider frailty in the assisted dying debate
AbstractBackground. Assisted dying/assisted suicide (AD/AS) is legal or decriminalised in several countries and Bills to legalise it are currently being co
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Lucy Selman @lucyselman.bsky.social · 10/02/2025
Here are the 24 the identified priorities identified in the priority setting exercise
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Primary Care Unit, University of Cambridge @pcucambridge.bsky.social · 12/02/2025
The Marie Curie Research into Practice Conference 2025 is taking place this week. 🗓️ Feb 11-14, 2025 (Free & Online) ➡️ Register now (it's not too late to join for the remaining days of the conference): mariecurie.ivent-pro.com/events/resea...
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Nuffield Trust @nuffieldtrust.org.uk · 09/02/2025
Our research with the Health Economics Unit & @mariecurieuk.bsky.social reveals how much public money is spent on health care, social care & social security for those in their final year of life. Over half of the £22bn annual total goes on health care. 💷 Read report: buff.ly/3Eqyfxz
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Simon Etkind @simonnoahetkind.bsky.social · 04/02/2025
How do you say "I don't know" whilst maintaining trust? Come to our session on communicating #uncertainty at the free @mariecurieuk.bsky.social Marie Curie Research into Practice Conference on 13.2.25 @2pm to find out. Register here: www.mariecurie.org.uk/research-and... #MCResearch2025
mariecurie.org.uk
Research Conference 2025
We're delighted to announce that the Marie Curie Research into Practice Conference will take place the week commencing Tuesday 11 February 2025.
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Jugdeep Dhesi @jkdhesi.bsky.social · 31/01/2025
Older people make up the majority of those dying each year. @gerisoc.bsky.social concerned about the lack of representation from older people’s healthcare specialists and older people themselves on the witness list for the Assisted Dying Bill - have a look at our website for updates
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Palliative Medicine Journal @palliativemedj.bsky.social · 29/01/2025
Practitioners need to take caution when encouraging self-care as illness progresses, as its efficacy weakens as the end of life approaches. #hpm #hapc #palliativecare buff.ly/4gzygNb
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Anne Finucane @annefinucane.bsky.social · 06/01/2025
Invitation - open until Sunday 12th: If you are a UK-based researcher, or clinician conducting palliative care research, please complete our brief survey to help funders understand what is needed to sustain and grow palliative care research in the UK. Now open until 12.1.25:
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Joshua Gallagher @jallagher1.bsky.social · 10/12/2024
First bluesky post! My new editorial with Catherine Evans and @proflizsampson.bsky.social calls out the misuse of 'person-centred care' in policy and outcome measurement as vague and oversimplified, especially for those with dementia. Full article on request! onlinelibrary.wiley.com/doi/abs/10.1...
onlinelibrary.wiley.com
The Janus Face of Person‐Centred Care
Click on the article title to read more.
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libbysallnow.bsky.social @libbysallnow.bsky.social · 17/12/2024
@thelancet.bsky.social Comment out today: www.thelancet.com/journals/lan... Social and structural determinants of dying well and the complex systems they exist in #palliativecare #socialdeterminantsofhealth
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Anne Finucane @annefinucane.bsky.social · 16/12/2024
Invitation: If you are a UK-based researcher, or clinician conducting palliative care research, please complete our brief survey to help funders understand what is needed to sustain and grow palliative care research in the UK. Now open until 12.1.25: app.onlinesurveys.jisc.ac.uk/s/edinburgh/...
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