Our new article - in a philosophy journal! - on how we view participation in biobanks (research studies that collect blood or tissue samples). Discussion has focused on the presumed altruism of participation when reciprocity may be a more appropriate framing.
link.springer.com/article/10.1...
link.springer.com
Biobanks, the ‘diagnostic misconception’ and the distinction between altruism and reciprocity - Medicine, Health Care and Philosophy
In this paper, we revisit the topic of genetic biobanks and the ethical issues surrounding them. Focusing on the centrality of altruism to their conception, design and governance, we explore the ways ...