🔍 New research from our team challenges how we think about ethics in biobank participation. They ask: Is altruism really the right framework for understanding why people participate in genetic biobanks?
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Biobanks, the ‘diagnostic misconception’ and the distinction between altruism and reciprocity - Medicine, Health Care and Philosophy
In this paper, we revisit the topic of genetic biobanks and the ethical issues surrounding them. Focusing on the centrality of altruism to their conception, design and governance, we explore the ways ...