Sign in

Imperial Patient Experience Research Centre (PERC)

@imperialperc.bsky.social
125 followers 45 following 26 posts

We are a team of mixed methods researchers doing research on research and public involvement practitioners supporting the Imperial Biomedical Research Centre funded by the National Institute of Health and Care Research (NIHR). linktr.ee/imperial_perc

PostsRepliesMedia
Imperial Patient Experience Research Centre (PERC) @imperialperc.bsky.social · 30/09/2026
🔍 New research from our team challenges how we think about ethics in biobank participation. They ask: Is altruism really the right framework for understanding why people participate in genetic biobanks? Read the full article 👇 link.springer.com/article/10.1...
link.springer.com
Biobanks, the ‘diagnostic misconception’ and the distinction between altruism and reciprocity - Medicine, Health Care and Philosophy
In this paper, we revisit the topic of genetic biobanks and the ethical issues surrounding them. Focusing on the centrality of altruism to their conception, design and governance, we explore the ways ...
011
Imperial Patient Experience Research Centre (PERC) @imperialperc.bsky.social · 03/08/2026
Our latest paper sheds new light on how biomedical researchers experience #publicinvolvement in health research. Read our paper 👉 link.springer.com/article/10.1... @imperialmed.bsky.social @imperialsph.bsky.social @nihr.bsky.social
010
Imperial Patient Experience Research Centre (PERC) @imperialperc.bsky.social · 22/07/2026
Congratulations to our Public Involvement Officer, Laura Alvarado Cruz, who has been awarded the President's Leadership Award for Excellence in Societal Engagement, which comes as part of @imperialcollegeldn.bsky.social Staff Recognition Awards. @imperialmed.bsky.social @imperialsph.bsky.social
030
Imperial Patient Experience Research Centre (PERC) @imperialperc.bsky.social · 15/06/2026
📣Our team is growing! We are looking for 5 new people to help us expand the work we are doing to support community engagement and involvement in translational research. Visit the Imperial College Jobs website and apply: tinyurl.com/3k7vmxzu
002
Imperial Patient Experience Research Centre (PERC) @imperialperc.bsky.social · 27/04/2026
Join us for a six-month fixed-term secondment, to get upskilled on participatory research methods and public involvement in research. 🗓️ Apply by Monday 8 June 2026, 5pm lnkd.in/djriPj9n Reflections from last year's PERC Fellows lnkd.in/dg94Fk-r @imperialmed.bsky.social @imperialbrc.bsky.social
000
Reposted by Imperial Patient Experience Research Centre (PERC)
Helen Ward @profhelenward.bsky.social · 24/04/2026
A new initiative in partnership with our REACT study to help speed up demential trials. www.itv.com/watch/news/u...
itv.com
011
Reposted by Imperial Patient Experience Research Centre (PERC)
Imperial Medicine @imperialmed.bsky.social · 13/04/2026
Research from @imperialsph.bsky.social is powering a major UK initiative to speed up #dementia trials – tackling one of the biggest barriers: finding volunteers. 700+ people have already taken part, accelerating the path to new treatments. 🧠 More: www.imperial.ac.uk/news/article... @ukdri.ac.uk
A researcher from Imperial College London working in a laboratory.
022
Reposted by Imperial Patient Experience Research Centre (PERC)
Helen Ward @profhelenward.bsky.social · 27/03/2026
So proud of the work of my PhD student, @sarindiary.bsky.social for her inspiring work addressing racism in maternity care, alongside community partners like Phayza Fudlalla, pictured with Sarindi in this report, who works with @imperialperc.bsky.social. www.imperial.ac.uk/stories/sari...
imperial.ac.uk
Advocating against racism in maternity care
#CelebratingEngagement with Sarindi Aryasinghe
021
Imperial Patient Experience Research Centre (PERC) @imperialperc.bsky.social · 26/03/2026
We were glad to have celebrated Paediatric health research taking place at @imperialmed.bsky.social with more than 200 children, young people and parents from across North West London & identifying their health research priorities through our People's Research Cafe.
032
Reposted by Imperial Patient Experience Research Centre (PERC)
Imperial Medicine @imperialmed.bsky.social · 25/03/2026
“We don’t want to just do #research to children; we want to do it with them.” From asthma to mental health, young people joined our researchers + #NHS teams to share what matters most for their #health, at a unique event at Chelsea FC. www.imperial.ac.uk/news/article... @imperialbrc.bsky.social
imperial.ac.uk
London’s young people work with researchers and doctors to shape the future of child health research
Over 200 children joined more than 100 researchers, clinicians, and parents at Chelsea Football Club in West London.
066
Reposted by Imperial Patient Experience Research Centre (PERC)
NIHR ARC Northwest London (NWL) @arc-nwl.bsky.social · 26/02/2026
🚨Calling #LondonMums🚨​ Had a baby since Dec 2024 or currently pregnant? @ImperialCollege researchers want to hear your thoughts on the RSV vaccine, whether you had it or not. ​💬 30-45 min interview (phone/online) 🎁 £25 Lovetoshop voucher 📧 Email: matimms@imperial.ac.uk
024
Imperial Patient Experience Research Centre (PERC) @imperialperc.bsky.social · 23/02/2026
The Covid Made Long project has been working with a group of peer collaborators and young people to co-produce 3 resources we are excited to launch today If you know someone who may benefit from these resources, please share this post and direct them to this link www.lshtm.ac.uk/covid-made-l...
The front cover of the Long Covid Lives illustrated story about young people with Long Covid featuring an illustration of the four young people from the story.The front cover of the Living with Long Covid: A Young Person's Guide featuring illustrations of young people in different situations, some depicted struggling with symptoms such as lying in bed or with a cloud above their head. Some smiling and eating pizza with friends The front cover of the Living with Long Covid: A Young Person's Glossary, featuring a young person sitting on a bed looking sad with words such as 'ache' 'depressed' 'lost' and 'sick' floating above their head.
132
Reposted by Imperial Patient Experience Research Centre (PERC)
NIHR Imperial BRC @imperialbrc.bsky.social · 01/12/2025
Huge shoutout 👏to Annemarie Lodder, winner of the 2025 BRC Public Involvement in Research Competition! 🏆 The project exemplifies excellence in PPIE from start to finish. @imperialperc.bsky.social @imperialcollegeldn.bsky.social More details 👇 imperialbrc.nihr.ac.uk/2025/11/28/w...
021
Imperial Patient Experience Research Centre (PERC) @imperialperc.bsky.social · 28/11/2025
Read our latest article exploring how Long COVID affects people at work, highlighting the need for adaptable work accommodations to support employment and well‐being. 👇 onlinelibrary.wiley.com/doi/epdf/10....
onlinelibrary.wiley.com
“I Put a Lot of Emphasis on Work Because I Want to Keep My Job”: A Population‐Based Interview Study of Long Covid and Employment Changes in England
You have to enable JavaScript in your browser's settings in order to use the eReader.
011
Imperial Patient Experience Research Centre (PERC) @imperialperc.bsky.social · 19/11/2025
Our Partnerships & Training Manager, Maria Piggin (right), has received an Outstanding Recognition Award from the Mosaic Community Trust. We collaborate with Mosaic and researchers, like Dr Helen Skirrow (left), towards ensuring that community priorities are addressed at Imperial's health research.
030
Reposted by Imperial Patient Experience Research Centre (PERC)
Helen Ward @profhelenward.bsky.social · 31/10/2025
New article exploring how Long COVID affects people at work, highlighting the need for adaptable work accommodations to support employment and well‐being. onlinelibrary.wiley.com/doi/epdf/10.... @longcovidsupport.bsky.social @nikki-s.bsky.social @imperialperc.bsky.social @imperialbrc.bsky.social
onlinelibrary.wiley.com
“I Put a Lot of Emphasis on Work Because I Want to Keep My Job”: A Population‐Based Interview Study of Long Covid and Employment Changes in England
You have to enable JavaScript in your browser's settings in order to use the eReader.
0124
Imperial Patient Experience Research Centre (PERC) @imperialperc.bsky.social · 30/09/2025
Our Senior Research Fellow in Anthropology, Dr Kirsten Bell reflects on how labelling research disciplines influences how we think about them. Read more at @bristolbrc.bsky.social blog👇
bristolbrc.nihr.ac.uk
Should qualitative health researchers call themselves ‘qualitative health researchers’? - Bristol Biomedical Research Centre
Dr Kirsten Bell is a Senior Research Fellow in Anthropology at Imperial College’s Patient Experience Research Centre. She’s also a member of the BRC Qualitative Social and Behavioural Research Network...
031
Imperial Patient Experience Research Centre (PERC) @imperialperc.bsky.social · 18/09/2025
💛 PERC at W12 Together Festival 💛 We keep it real and relevant — bringing research that speaks to our audience and the people it will impact most. #W12Together #PeopleFirst #HealthResearch #CommunityEngagement
011
Imperial Patient Experience Research Centre (PERC) @imperialperc.bsky.social · 17/09/2025
Are you an experienced #PublicInvolvement professional & passionate about engaging with underrepresented communities? Join us to support @imperialbrc.bsky.social health research. 👇Find out more and apply by 13 October 2025. lnkd.in/d88Ttg_p @imperialmed.bsky.social @imperialcollegeldn.bsky.social
000
Imperial Patient Experience Research Centre (PERC) @imperialperc.bsky.social · 12/09/2025
The @imperialbrc.bsky.social proudly recognises the exceptional public involvement in research across @imperialcollegeldn.bsky.social. Our Public Involvement in Research Competition 2025 is now officially open. Apply by 12 October 2025 👉 tin.al/jG1dq @imperialmed.bsky.social @nihr.bsky.social
011
Imperial Patient Experience Research Centre (PERC) @imperialperc.bsky.social · 04/09/2025
🌈 Our PI Officer had an amazing time volunteering at the @wlqp.bsky.social street party! 💌 Big thanks to our colleagues at @westlondonnhs.bsky.social for helping hand out flyers, and to the brilliant folks from @goodgym.bsky.social and @dkms-uk.bsky.social we met along the way. #WLQP #LGBTQ
031
Reposted by Imperial Patient Experience Research Centre (PERC)
Imperial Medicine @imperialmed.bsky.social · 06/08/2025
Millions signed up to @imperialcollegeldn.bsky.social's REACT study during the #COVID19 pandemic. Now, that same cohort could help accelerate #dementia research – through a new partnership with HDR UK, @ukdri.ac.uk & Inuvi. Faster trials = faster treatments 🧠 www.imperial.ac.uk/news/267013/...
imperial.ac.uk
REACT study to help boost UK dementia research | Imperial News | Imperial College London
Imperial’s REACT study will collaborate with a leading national dementia programme to help boost recruitment for clinical trials.
024
Reposted by Imperial Patient Experience Research Centre (PERC)
Helen Ward @profhelenward.bsky.social · 11/07/2025
A quick update from me on the REACT study which continues to follow the health impacts of the pandemic. @longcovidsupport.bsky.social @imperialperc.bsky.social @imperialsph.bsky.social
051
Reposted by Imperial Patient Experience Research Centre (PERC)
Viveka Guzmán @vivekaguzman.bsky.social · 26/06/2025
🤒How do older people make-sense of persistent COVID symptoms? 🤔 How does this influence their behaviors & outcomes? 📝 I'm presenting findings from the REACT study at the #BSG2025 conference, let's have a chat! 🗨️ @imperialsph.bsky.social @imperialperc.bsky.social @britishgerontology.bsky.social
042
Reposted by Imperial Patient Experience Research Centre (PERC)
NIHR Imperial BRC @imperialbrc.bsky.social · 09/06/2025
Event 🚨 Title: NIHR Research Inclusion Training Event Date: 25 June Time: 12:00-16:00 Venue: Hybrid To register or know more- imperial.eu.qualtrics.com/jfe/form/SV_... @imperialmed.bsky.social @imperialnhli.bsky.social @imperialsci.bsky.social @imperialcollegeldn.bsky.social
imperial.eu.qualtrics.com
Online Survey Software | Qualtrics Survey Solutions
Qualtrics sophisticated online survey software solutions make creating online surveys easy. Learn more about Research Suite and get a free account today.
004
Reposted by Imperial Patient Experience Research Centre (PERC)
Sarindi Aryasinghe @sarindiary.bsky.social · 07/06/2025
🚨New blog: Break the Barriers!🚨 For my PhD, my lived experience partners & I are co-producing research to address #racism in maternity care for Black families in NW London, and we want to share our journey! 🔗 First post + subscribe: bit.ly/3Hw2If4 #BlackMaternalHealth #coproduction #healthequity
open.substack.com
Introducing Break the Barriers
Co-producing better maternity care with and for Black, African, Caribbean, and mixed-Black families—grounded in lived experience, advocacy, and research.
1127
Imperial Patient Experience Research Centre (PERC) @imperialperc.bsky.social · 03/06/2025
It was a pleasure hosting @menkaloomba.bsky.social as an @imperialcollegeldn.bsky.social Global Development Fund Fellow. This blog reflects her #communityengagement across #NorthWestLondon & feedback on her #PhD in #periodontalhealth & #Type2diabetes blogs.imperial.ac.uk/perc/2025/06...
Community session in a hall
020
Reposted by Imperial Patient Experience Research Centre (PERC)
jennycrow.bsky.social @jennycrow.bsky.social · 29/05/2025
Had our 2nd Imperial Stroke Public Involvement group of the year yesterday. Excellent discussions around SILENCE-CSVD trial. Celebrated attendance of 4 of our group members at the European life after stroke conference in Prague. #lifeafterstroke @imperialbrains.bsky.social @imperialperc.bsky.social
031
Imperial Patient Experience Research Centre (PERC) @imperialperc.bsky.social · 23/05/2025
We are delighted to share that our Director, @profhelenward.bsky.social, has been elected a Fellow of the Academy of Medical Sciences @acmedsci.bsky.social. Huge congratulations, @profhelenward.bsky.social 🎉
160
Reposted by Imperial Patient Experience Research Centre (PERC)
Dr Gemma Clunie @gemmaclunie.bsky.social · 13/05/2025
New paper alert! A Core Outcome Set for intervention studies in Airway Stenosis. Thanks @imperialbrc.bsky.social for infrastructure support & @nihr.bsky.social for funding @imperialmed.bsky.social @drjustinroe.bsky.social @amyfreeman.bsky.social @imperialperc.bsky.social doi.org/10.1002/lary...
doi.org
Development of a Core Outcome Set for Intervention Studies in Adults With Laryngotracheal Stenosis
We used a rigorous two round Delphi process informed by multiple stakeholder groups to gain consensus on seven core outcomes for inclusion in future research relating to adults with laryngotracheal s...
041
Reposted by Imperial Patient Experience Research Centre (PERC)
Vas @vas-papa.bsky.social · 12/05/2025
📢New paper now available: rdcu.be/elqhD We outline how we trained & supported people living with HIV to conduct & analyse online interviews during the COVID-19 pandemic. Huge thanks to our amazing community partner @positivelyuk.bsky.social, staff @imperialperc.bsky.social & co-researchers ✨
rdcu.be
Co-production in HIV research: a case study from the COVID-19 pandemic
031
Imperial Patient Experience Research Centre (PERC) @imperialperc.bsky.social · 29/04/2025
🎉 Discover Kimberley Foley’s @kafoley.bsky.social inspiring blog on the Public Involvement work Kim led at the Ealing Community Involvement in Research event 👏 This blog was co-authored with a community member. Visit the link below: tinyurl.com/2avat9rb and let us know your thoughts!
tinyurl.com
Researchers and community members working together to shape research on respiratory infections in young children - Patient Experience Research Centre
This entry is part 1 of 1 in the series Ealing Community Involvement in Research Event 2024Ealing Community Involvement in Research Event 2024Researchers and community members working together to shap...
032
Reposted by Imperial Patient Experience Research Centre (PERC)
Cancer Screening & Prevention Research Group @imperial-csprg.bsky.social · 24/04/2025
Post doc Dr Rhea Harewood sharing #BowelCancerAwareness at a community outreach event with the Harrow THCOGIC church. The group discussed how #BowelCancer is caused, how we can screen to find it earlier and how to improve public involvement in bowel cancer research #EDI #CancerResearch
011
Reposted by Imperial Patient Experience Research Centre (PERC)
Helen Ward @profhelenward.bsky.social · 15/04/2025
Pre-print from REACT . 60 interviews with diverse group - all reported persistent symptoms after COVID - many "invisible" as not using clinical care or support groups - some didn't identify with category Long Covid 1/2 @longcovidsupport.bsky.social @imperialperc.bsky.social doi.org/10.1101/2025...
doi.org
Challenges of visibility and inclusion in Long COVID: a population-based interview study
Introduction People with Long Covid report a wide range of symptoms and inconsistent responses when seeking clinical diagnosis and support. Much of the qualitative research on Long Covid has been base...
152
Imperial Patient Experience Research Centre (PERC) @imperialperc.bsky.social · 07/04/2025
On this #WorldHealthDay the @who.int focuses on the health of mothers and babies. Our 2024 Public Involvement in Research Competition Winner, @sarindiary.bsky.social, followed a co-production approach to address ethnic inequities in maternity care for Black women in West London. 👉 shorturl.at/bvVBO
Helen Ward, Carole and Sarindi Aryasinghe holding the 2024 BRC Public Involvement in Research trophy after their presentation at the NIHR Imperial BRC Annual Event.
033
Reposted by Imperial Patient Experience Research Centre (PERC)
NIHR Imperial BRC @imperialbrc.bsky.social · 26/03/2025
BRC Public Involvement in Research Competition winner 24 receives the trophy 🏆 at the Annual Event. @sarindiary.bsky.social’s exceptional work addresses inequality in maternal mortality among Black women. @profhelenward.bsky.social @imperialmed.bsky.social imperialbrc.nihr.ac.uk/2024/12/10/w...
045
Reposted by Imperial Patient Experience Research Centre (PERC)
Dr Gemma Clunie @gemmaclunie.bsky.social · 25/03/2025
Blown away by @sarindiary.bsky.social & Carole presenting prize winning co-production work on priority setting for Black & Global majority women in maternity services at the @imperialbrc.bsky.social celebration. @imperialperc.bsky.social @profhelenward.bsky.social @sophie-day.bsky.social
Two women presenting at a conference
062
Imperial Patient Experience Research Centre (PERC) @imperialperc.bsky.social · 17/03/2025
🎥 Discover how we are collaborating with the Latin American community in London to promote health awareness and public involvement! A huge thank you to LA United UK and The Invention Rooms for making this possible. 🌟 #HealthAwareness #PublicInvolvement #LatinAmericanCommunity #ImperialCollegeLondon
011
Imperial Patient Experience Research Centre (PERC) @imperialperc.bsky.social · 20/12/2024
Don’t miss our final blog of 2024! 💫 Featuring @emmaaaaa8.bsky.social Emma Alexander's amazing Public Involvement work in the Paediatric Intensive Care Unit research. Please find it here: blogs.imperial.ac.uk/perc/2024/12... Let us know your thoughts in the comments!
blogs.imperial.ac.uk
Having an Impact with PPIE in Paediatric Intensive Care Research
By Emma Alexander As a doctor who works in children’s intensive care, I have always been interested in research, especially in research that matters to parents and young children
032
Imperial Patient Experience Research Centre (PERC) @imperialperc.bsky.social · 10/12/2024
Congratulations to @sarindiary.bsky.social on winning the @imperialbrc.bsky.social 2024 #publicinvolvement competition! Read more about her coproduced #maternitycare in #NorthWestLondon here. tinyurl.com/2fyt492b @imperialcollegeldn.bsky.social #academicsky #medsky #matexp #coproduction
tinyurl.com
Winner announced for the BRC Public Involvement in Research Competition 2024 – NIHR Imperial Biomedical Research Centre
<p>The winner of the NIHR Imperial BRC Public Involvement in Research Competition 2024 was announced early this month.</p>
0122
Imperial Patient Experience Research Centre (PERC) @imperialperc.bsky.social · 28/11/2024
There is a need for an integrated, #community-centred approach beyond hospital to improve #maternityexperience in Black, African, Caribbean & mixed-Black families @sarindiary.bsky.social @nihr.bsky.social @phoebeaverill.bsky.social #academicsky #medsky #matexp #coproduction doi.org/10.1136/bmjq...
doi.org
Improving the maternity experience for Black, African, Caribbean and mixed-Black families in an integrated care system: a multigroup community and interprofessional co-production prioritisation exerci...
Background Ethnic inequities in maternity care persist in England for Black, African, Caribbean and mixed-Black heritage families, resulting in poorer care experiences and health outcomes than other m...
161
Imperial Patient Experience Research Centre (PERC) @imperialperc.bsky.social · 28/11/2024
We attended the #CardiomyopathyUK conference a few weeks ago to further explore experiences of patients and how they feel about their heart medications. Read more in our latest blog: #cardiomyopathy #patientexperience @imperialcollegeldn.bsky.social @nihr.bsky.social #TRED-HF2 tinyurl.com/3dv2sws8
2 people sitting at a table with a bowl of counters and 2 glass jars
120