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Mwidimi Ndosi

@ndosie.bsky.social
353 followers 380 following 163 posts
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Mwidimi Ndosi @ndosie.bsky.social · 11/10/2026
Can a nurse-led, treat-to-target approach improve gout management? In this feasibility study, there was 93% adherence to scheduled at-home measurements and 75% of patients reached their serum urate target within 24 weeks. A full RCT is warranted to evaluate effectiveness. doi.org/10.1093/rap/...
doi.org
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Mwidimi Ndosi @ndosie.bsky.social · 11/10/2026
Could same-day methotrexate and folic acid dosing make treatment easier? Before launching a clinical trial, Dalix et al decided to ask patients. Findings: 1 in 4 respondents missed folic acid doses, and nearly 2 in 3 were willing to join a trial of same-day dosing. doi.org/10.1093/rap/...
academic.oup.com
Patient perspectives on simultaneous methotrexate–folic acid intake to improve adherence in rheumatoid arthritis: a cross-sectional survey
AbstractObjective. To assess real-world adherence to folic acid (FA) supplementation with methotrexate (MTX) and patient perceptions of a simplified, same-
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Mwidimi Ndosi @ndosie.bsky.social · 23/09/2026
Black people in the UK are twice as likely as White people to experience a stroke. Livingstone et al. examine how Black people living with stroke in England navigate health services, noting barriers related to access, trust, representation and cultural safety. Full paper: doi.org/10.1186/s129...
doi.org
Client Challenge
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Mwidimi Ndosi @ndosie.bsky.social · 22/09/2026
Lupus Brain Fog Severity Scale has been developed to assess brain fog and related cognitive symptoms in #SLE Factor analysis identified a single dominant dimension accounting for 62% of total variance supporting the use of a global summary score Arnaud L et al (2026) doi.org/10.1136/lupu...
doi.org
International development of a lupus-specific instrument to assess cognitive symptoms in patients with SLE: Lupus Brain Fog Severity Scale (LBFSS) study
Introduction Cognitive symptoms such as ‘brain fog’ are frequent and disabling in patients with SLE. We aimed to develop and validate the Lupus Brain Fog Severity Scale (LBFSS), the first patient-repo...
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UWE Bristol @uwebristolofficial.bsky.social · 12/08/2026
Our Photography graduate Archie Byron has spent six years documenting life in his hometown of Weston-super-Mare. His graduate project Love and Other Feelings explores identity, inequality and community while challenging how coastal towns are represented. ⬇️ (cr: Archie Byron and BBC)
uwe.ac.uk
Graduate photographer breathing life into Weston-super-Mare’s own identity | UWE Bristol
A graduate photographer from Weston-super-Mare has created a 'love letter' to his home town to shine a light on struggling coastal communities.
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UWE Bristol @uwebristolofficial.bsky.social · 08/09/2026
Our Equity, Diversity and Inclusivity (EDI) team has won the Heroes Award at the University Alliance Awards 2026. 🏆 Our Anti-Racism Strategy was co-produced with 250+ staff, students and community partners and is helping drive lasting change across our university. More ⬇️
uwe.ac.uk
UWE Bristol wins Heroes Award for Anti-Racism Strategy | UWE Bristol
UWE Bristol’s Equity, Diversity and Inclusivity (EDI) team has been recognised with a prestigious prize at the University Alliance Awards 2026.
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Mwidimi Ndosi @ndosie.bsky.social · 17/09/2026
“How active was your arthritis in the last 6 months?” vs “How is your general health today?” General health captures broader elements like mental wellbeing and comorbidities, rather than inflammatory disease activity @picklestim.bsky.social @rheumjnl.bsky.social 🔗 doi.org/10.1093/rheu...
doi.org
Patient global assessment in rheumatoid arthritis: general health and disease activity are not interchangeable
Dear Editor, There are numerous composite response criteria and clinical outcome measures for RA disease activity (DA). Most, though not all, contain the c
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Mwidimi Ndosi @ndosie.bsky.social · 01/09/2026
New paper by Rachel Bolton exploring how people with fibromyalgia perceive physical activity, and how terms like 'sedentary' can feel stigmatising. A case for more inclusive guidance to improve well-being and make physical activity more achievable for this community. doi.org/10.1093/rap/...
doi.org
Perspectives of sedentary behaviour, physical activity and health messaging among people with fibromyalgia: a qualitative study
AbstractObjectives. To explore how individuals with fibromyalgia (FM) perceive physical activity (PA), sedentary behaviour (SB) and related health messagin
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Mwidimi Ndosi @ndosie.bsky.social · 01/09/2026
Many congratulations to our MRes 2025 finisher Alexander Thear-Graham on this fantastic publication! His study explores NHS physios’ perceptions of Robot-Assisted Gait Training in acute neuro rehab, revealing cautious optimism and the need for structured support. dx.doi.org/10.1016/j.ph...
dx.doi.org
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UWE Health & Care Research @chcr-uwe.bsky.social · 25/08/2026
Calling #HCPs in #Rheumatology! Join @ndosie.bsky.social & a panel of nurses to learn good practice & skills to support patients to understand & manage conditions that require drug therapy @arthritisuk.bsky.social 📅 30 Sept 2026 🕖 7-8pm 💻 Online MSTeams secure.arthritis-uk.org/page/192854/...
secure.arthritis-uk.org
SKILLs Session: Involving patients to improve treatment outcomes - Arthritis UK
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Mwidimi Ndosi @ndosie.bsky.social · 02/08/2026
Living with Giant Cell Arteritis and high-dose steroids brings immense physical and psychological burdens. Our new review shows how Patient-Reported Outcome Measures give patients a voice. Well done Emily for leading this informative paper. @chcr-uwe.bsky.social #PhD #GCA doi.org/10.1177/1759...
doi.org
Sage Journals: Discover world-class research
Subscription and open access journals from Sage, the world's leading independent academic publisher.
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Mwidimi Ndosi @ndosie.bsky.social · 27/07/2026
Immersive virtual reality is a safe and effective intervention for improving upper limb rehabilitation following #stroke Congratulations Avgi Christodoulou on this contribution to the growing evidence base for technology-enabled #rehabilitation @chcr-uwe.bsky.social #review doi.org/10.1080/1083...
doi.org
Overview of systematic reviews: immersive virtual reality for upper limb stroke rehabilitation
Upper limb impairment following stroke impairs independence, quality of life, and participation. Immersive virtual reality is an emerging intervention for upper limb rehabilitation, offering task-s...
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Mwidimi Ndosi @ndosie.bsky.social · 13/06/2026
Damgaard A, et al. Feasibility of COMFI: a combined fatigue intervention for people with inflammatory arthritis [abstract]. Ann Rheum Dis. 2026;85(Suppl 1):s119. Abstract no. OP0140-HPR. doi:10.1136/annrheumdis-2026-eular.C.122 tinyurl.com/u56d44vy
tinyurl.com
EULAR Abstract Archive
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Mwidimi Ndosi @ndosie.bsky.social · 13/06/2026
Pergens J, et al. How the conversational health literacy assessment tool for inflammatory rheumatic diseases (CHAT-iRD) can help to address health literacy in practice: a qualitative study [abstract]. Ann Rheum Dis 2026;85(Suppl 1):s113. doi:10.1136/annrheumdis-2026-eular.C.214 tinyurl.com/yhn6kf54
tinyurl.com
EULAR Abstract Archive
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Mwidimi Ndosi @ndosie.bsky.social · 13/06/2026
Knudsen LR, et al. Cost-effectiveness of digital patient education for newly diagnosed patients with rheumatoid arthritis: an economic evaluation from a randomised controlled trial [abstract]. Ann Rheum Dis. 2026;85(Suppl 1):s4. doi:10.1136/annrheumdis-2026-eular.C.44 tinyurl.com/5dvf8f4y
tinyurl.com
EULAR Abstract Archive
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Mwidimi Ndosi @ndosie.bsky.social · 13/06/2026
Health Professionals in Rheumatology should be proud of the breadth and quality of research showcased at #EULAR2026 Congratulations to Abstract Award winners 🇩🇰 Line Raunsbæk Knudsen, 🇳🇱 Jelle Pergens and 🇩🇰 Astrid Damgaard Very rewarding to present the HPR Highlights Photo credits: Dr Sarah Bennett
Presenting the Health Professionals in Rheumatology Highlights at EULAR2026 London Excel Saturday 6th June 2026
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Mwidimi Ndosi @ndosie.bsky.social · 11/06/2026
Planned pregnancy in #lupus involves consultation with the rheumatologist Disease needs to be in remission for >6 mths and medication regimen compatible with pregnancy Planned pregnancies & #hydroxychloroquine use are associated with improved outcomes Retrospective study 🇬🇷 doi.org/10.1093/rap/...
doi.org
Temporal trends in lupus pregnancy over four decades in a referral centre: pregnancy planning and hydroxychloroquine use are associated with improved outcomes
AbstractObjective. To evaluate temporal trends in pregnancy management and outcomes in women with SLE and explore the impact of pregnancy planning on mater
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Mwidimi Ndosi @ndosie.bsky.social · 11/06/2026
Newer treatments for rheumatoid arthritis are safer and have fewer side effects However, #steroid use remains prevalent especially for patients with severe #rheumatoid arthritis where previous treatments were unsuccessful A new UK study published in @rheumjnl.bsky.social doi.org/10.1093/rap/...
doi.org
Patterns of steroid use in patients with established rheumatoid arthritis commencing treatment with biologic or targeted synthetic DMARDs
AbstractObjectives. To investigate the clinical use of steroids in established RA.Methods. A cohort of RA patients commencing treatment with biologic or ta
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Mwidimi Ndosi @ndosie.bsky.social · 03/06/2026
Knudsen LR, et al. Cost-effectiveness of digital patient education for newly diagnosed patients with rheumatoid arthritis: an economic evaluation from a randomised controlled trial [abstract]. Ann Rheum Dis. 2026;85(Suppl 1):s4. doi:10.1136/annrheumdis-2026-eular.C.44 tinyurl.com/5fcekv5h
scientific.sparx-ip.net
EULAR Abstract Archive
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Mwidimi Ndosi @ndosie.bsky.social · 03/06/2026
Huge congratulations to Line Knudsen for winning the prestigious HPR Abstract Award at #EULAR2026! 🏆🇩🇰🇬🇧 Presented on the big stage today, #WebRA trial economic evaluation demonstrates structured digital patient education is cost-effective Refs in comments #Rheumatology #DigitalHealth #EULAR2026
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Mwidimi Ndosi @ndosie.bsky.social · 09/05/2026
Helpful diagram
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LATITUDES Network @latitudes-network.bsky.social · 09/12/2024
The LATITUDES Network provides a library of #ValidityAssessment (AKA #RiskOfBias) tools for use in #EvidenceSyntheses such as #SystematicReviews. Researchers can register new tools and get access to training, see @jclinepi.bsky.social article: www.jclinepi.com/article/S089...
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Dr Ai Lyn Tan @drailyntan.bsky.social · 24/04/2026
Are you attending #BSR26? Remember to pack your running shoes! I will be leading the 5k Fun Run along with Heidi, Yuz, Hector, Harsha @ndosie.bsky.social @katiefishpool.bsky.social, join us for an invigorating start to the day!😀 🗓️Wed 29th April 06:30 📍Outside Glasgow SEC main entrance 🚶🏻All welcome
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Yashar Ali 🐘 @yasharali.bsky.social · 20/04/2026
Absolutely incredible. NASA Astronaut Reid Wiseman, who commanded Artemis II, took this footage from the far side of the Moon with his iPhone. Watch with sound on.
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Mwidimi Ndosi @ndosie.bsky.social · 08/04/2026
Development of the earlier rheumatology physiotherapy framework took a pragmatic, iterative consensus approach (survey + expert feedback and refinement). The newer OT framework, using a structured 5-stage model, reflects methodological progression in this space. doi.org/10.1093/rheu...
doi.org
P085 The development of a UK-wide rheumatology specialist physiotherapy capabilities framework
Abstract. Background/Aims Rheumatology physiotherapy is a specialist area requiring specific skills and knowledge. At all levels of practice, physiotherapi
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Mwidimi Ndosi @ndosie.bsky.social · 08/04/2026
How do you develop a national capability framework for a specialist workforce? The UK Rheumatology Occupational Therapy Capabilities Framework development used a 5-stage approach from scoping → endorsement. A useful model for wider health workforce development. doi.org/10.1093/rap/...
doi.org
Development of the UK Rheumatology Occupational Therapy Capabilities Framework: a national consensus initiative
AbstractObjectives. To describe the development and national consensus process underpinning the Rheumatology Occupational Therapy Capabilities Framework. T
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Mwidimi Ndosi @ndosie.bsky.social · 24/03/2026
Thanks @wandamocats.bsky.social we will do 👍
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Mwidimi Ndosi @ndosie.bsky.social · 22/03/2026
Despite clinical remission, many #rheumatoid arthritis patients still endure severe #fatigue, pain and anxiety Patients feel doctors have 'tunnel vision' when they focus solely on active inflammation Multidisciplinary care is clearly needed, but access barriers persist 🇧🇪 doi.org/10.1093/rap/...
doi.org
Unmet needs in patients with RA judged in remission by the rheumatologist: a semi-structured interview study
AbstractObjectives. To map unmet care needs in patients with RA who are in remission, investigate perceptions on the cause and impact of such needs and exp
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Prof Peter Hotez MD PhD DSc(hon) @peterhotezmdphd.bsky.social · 05/03/2026
World book day
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Mwidimi Ndosi @ndosie.bsky.social · 05/03/2026
The NIHR INSIGHT Programme for South West Central offers funded MRes studentships ✔ Tuition fees covered + stipend ✔ Full-time or part-time ✔ Sept 2026 start Newly qualified healthcare professionals. ⏳Deadline 15 Mar 2026 Please share 🌐https://insight-southwestcentral.net/
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Mwidimi Ndosi @ndosie.bsky.social · 03/03/2026
📢 EULAR Webinar: Supporting Self-Management in RMDs! Health professional, researcher, or patient advocate, this webinar is for you. You will need to register here edu.eular.org/enrol/index....
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Mwidimi Ndosi @ndosie.bsky.social · 02/03/2026
📢Powerful viewpoint calls for stronger recognition of paediatric rheumatology The key asks: ✨Formal accreditation across all countries ✨Stronger international advocacy ✨Child‑centred, developmentally appropriate care ✨Better training, research & MDT collaboration Read more doi.org/10.1016/S266...
thelancet.com
Paediatric rheumatology care in Europe: setting children and adolescents into focus
Despite major scientific advances, delivering high-quality care for children with inflammatory rheumatic and musculoskeletal diseases remains challenging. The field of paediatric rheumatology lies at ...
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Mwidimi Ndosi @ndosie.bsky.social · 21/02/2026
Does where you live in the UK affect bone health? Study of 40,951 patients comparing urban–rural differences ⬇️ Lower osteoporosis prevalence in rural residents ⬇️ Slightly lower abdominal fat in rural groups ➡️ No difference in major osteoporotic fractures Download the paper doi.org/10.1093/rap/...
doi.org
Investigating the association between urban rural classification with fragility fractures and bone density in the UK: evidence from a large observational clinical cohort
AbstractObjectives. Geographic variation in fracture risk exists across the UK, yet rural/urban differences in fracture risk and bone density have yet to b
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Mwidimi Ndosi @ndosie.bsky.social · 14/02/2026
Are you on our 2025 Reviewer Recognition List? Here is the full list of experts who generously dedicated their time, insight, and mentorship in 2025. Your contribution strengthens the science, @rheumjnl.bsky.social and the wider rheumatology community. Find your name here: doi.org/10.1093/rap/...
doi.org
Thank you to the reviewers of Rheumatology Advances in Practice 2025
On behalf of the Editorial Team, I would like to extend my sincere thanks to all reviewers who generously contributed their time and expertise to Rheumatol
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Mwidimi Ndosi @ndosie.bsky.social · 09/02/2026
Gout content on TikTok has >400M views, but is it accurate? 🧐 ➡️ Influencers push herbal cures and diet changes ➡️ Genetics and urate-lowering therapy info invisible. Download the full paper on @rheumjnl.bsky.social doi.org/10.1093/rap/...
doi.org
Gout, TikTok and misleading information: a content analysis
AbstractObjectives. This study aims to explore what types of gout content are presented on the social media platform TikTok and assess their association wi
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Mwidimi Ndosi @ndosie.bsky.social · 05/02/2026
Introducing the Positive Perspective Paradigm in the management of #rheumatoid #arthritis 1️⃣Educate with positive communication (not just warnings 2️⃣Empower by validating lived experience early 3️⃣Enable holistic care to support the mind and the joints New paper Doumen et al doi.org/10.1016/j.ar...
Schematic overview of the positive perspective paradigm. The positive perspective paradigm postulates that the early stages of a chronic inflammatory disease present an optimal time window where appropriate intervention might positively influence one’s health perspective, in turn contributing to reduced long-term disease impact. Specifically, we propose that such an intervention should involve the prompt control of inflammation with appropriate pharmacotherapy, as well as tailored patient education and psychosocial support with a focus on positive communication from the time of diagnosis. The main hypothesis of the model is that both these types of interventions will lead to less patient-experienced disease impact both directly and through positive effects on patients’ health perspective
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Mwidimi Ndosi @ndosie.bsky.social · 27/01/2026
Study of patients newly diagnosed with Giant Cell Arteritis identified 4 themes 1️⃣Uncertainty & fear 2️⃣Loss of autonomy & identity 3️⃣Adapting to physical symptoms 4️⃣Critical role of healthcare interactions Patients need clear communication and support alongside disease control doi.org/10.1093/rap/...
doi.org
Understanding the patient experience of newly diagnosed giant cell arteritis
AbstractOBJECTIVE. The impact Giant Cell Arteritis (GCA) and its treatment has on an individual’s life is poorly characterised. This research sought to adv
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Mwidimi Ndosi @ndosie.bsky.social · 27/01/2026
Social media listening of people with #PMR and #GCA ➡️61% of treatment-related mentions were negative ➡️72% of GCA-related mentions on steroids were negative ➡️Biologics had more positive feedback than steroids Download full paper doi.org/10.1093/rap/... @rheumjnl.bsky.social
doi.org
Patient perspectives on life impact and unmet needs in giant cell arteritis and polymyalgia rheumatica: insights from social media
AbstractObjective. To ascertain the perspectives of caregivers and patients with giant cell arteritis (GCA) and/or polymyalgia rheumatica (PMR) and the imp
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Mwidimi Ndosi @ndosie.bsky.social · 15/01/2026
Hot off the press!🗞️ The AGenDA project shows how to finally enrich African representation in the global genome Led by African researchers, they targeted under-represented groups, prioritising data sovereignty and local capacity building Blueprint for decolonising research doi.org/10.1038/s415...
doi.org
Enriching African genome representation through the AGenDA project - Nature
The Assessing Genetic Diversity in Africa (AGenDA) project shares their processes, including community engagement, obtaining ethics approvals, navigating legal compliance and developing a common gover...
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Mwidimi Ndosi @ndosie.bsky.social · 10/01/2026
Great point @rheumnow.bsky.social the data suggests it is largely the 'severe' phenotype. It seems steroids remain a crutch for difficult-to-treat #RA..
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Mwidimi Ndosi @ndosie.bsky.social · 07/01/2026
Palindromic rheumatism is unpredictable and under-researched New study by Chapman et al captures valuable patient insights ➡️ Unpredictable flares & psychological distress ➡️ Frequent diagnostic delays ➡️ Lack of info on progression to RA @rheumjnl.bsky.social #palindromic doi.org/10.1093/rap/...
doi.org
Living with palindromic rheumatism: a qualitative interview study
AbstractObjectives. Palindromic rheumatism (PR) is an unpredictable and under-researched inflammatory condition, and patients with PR are at risk of develo
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Mwidimi Ndosi @ndosie.bsky.social · 05/01/2026
For people with #inflammatory #arthritis, staying in work matters. Employment loss is driven by: ➡️manual work ➡️age ➡️musculoskeletal symptoms ➡️mental health A simple risk tool can help direct scarce occupational health support to those who need it most. Open access doi.org/10.1093/rap/...
doi.org
Development of a clinical tool to identify patients with early inflammatory arthritis at high risk of employment loss: analysis from the National Early Inflammatory Arthritis Audit
AbstractObjectives. Work disability is an early consequence of inflammatory arthritis. Preventive interventions exist but access is limited, highlighting t
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Mwidimi Ndosi @ndosie.bsky.social · 03/01/2026
We are good at promoting "movement" in Rheumatoid Arthritis, but are we neglecting "strength"? 🏃‍♀️ 67% of patients meet aerobic activity guidelines. 🏋️‍♀️ Only 29% meet muscle strengthening targets. The missing link? Confidence and clinician support. Download the full paper doi.org/10.1093/rap/...
doi.org
Understanding physical activity participation in people living with rheumatoid arthritis
AbstractObjective. We examined self-reported physical activity (PA) levels (metabolic equivalents expended (METs)/week and muscle strengthening/resistance
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Mwidimi Ndosi @ndosie.bsky.social · 24/12/2025
Glad to have supported 35 authors in the BMC Rheumatology and Arthritis Research & Therapy this year. Next time you get an invite to #review, ask the editor if you can mentor a PhD student through the process. This helps reduce the reviewer 2 syndrome. @springernature.com #AcademicSky #PeerReview
Infographic titled "2025 in review(s)" from Springer Nature. Statistics show 4 manuscripts reviewed, 3 resulting publications, 35 authors benefited, 2 journals reviewed for, and a 10-day average to complete a report. Top journals listed are BMC Rheumatology and Arthritis Research & Therapy.
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Mwidimi Ndosi @ndosie.bsky.social · 18/12/2025
Fusama et al assessed the implementation of @eular.org recommendations for the role of the #nurse in Japan 🇯🇵 High agreement by both nurses and rheumatologists, but the classic implementation barriers remain ⏳ Lack of time 🧠 Knowledge gaps 🛑 Issues with role expansion 🔗 doi.org/10.1111/1756...
doi.org
Acceptability and Barriers to Implementation of the EULAR Recommendations for the Role of the Nurse in the Management of Chronic Inflammatory Arthritis: A Mixed‐Methods Study With Nurses and Rheumatol...
Aim EULAR recommendations for the role of nurses in managing chronic inflammatory arthritis were updated in 2018. This study aimed to: (i) assess the level of agreement and implementation of these r.....
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Mwidimi Ndosi @ndosie.bsky.social · 13/11/2025
I am sure they got the right answer. Not just safe, but recommended. Always best to start gradually, ideally under the guidance of a physiotherapist or specialist familiar with systemic sclerosis, to ensure they account for factors like skin tightness, fatigue, or cardiopulmonary involvement.
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Mwidimi Ndosi @ndosie.bsky.social · 12/11/2025
Pain and fatigue are among the most disabling symptoms in systemic #sclerosis. New randomised controlled trila shows that a 12-week personalised, supervised exercise programme can ease pain, fatigue, and other symptoms of systemic sclerosis. rmdopen.bmj.com/content/11/4...
rmdopen.bmj.com
High-intensity interval and resistance training programme improves pain and fatigue outcomes in people with systemic sclerosis: a European multicentre randomised controlled trial
Background Pain and fatigue are among the most debilitating symptoms of systemic sclerosis (SSc), severely impairing quality of life (QoL). Pharmacological management is often inadequate, and evidence...
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Mwidimi Ndosi @ndosie.bsky.social · 11/11/2025
New Joint Statement on artificial intelligence #AI in evidence synthesis. From Cochrane, Campbell Collaboration, JBI & CEE 🧠 Human accountability remains paramount 🤖 AI tools require expert oversight 📊 Transparency & methodological rigour are non-negotiable More: doi.org/10.1002/1465...
doi.org
Position statement on artificial intelligence (AI) use in evidence synthesis across Cochrane, the Campbell Collaboration, JBI and the Collaboration for Environmental Evidence 2025 | Cochrane Library
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Mayor of London, Sadiq Khan @london.gov.uk · 08/11/2025
When I was first elected, evidence showed it would take 193 years to bring London's air pollution within legal limits. Due to our policies, we've done it in 9. In Brazil this week, we showed that cities are giving the world reason to hope when it comes to tackling the climate emergency.
Mayor of London Sadiq Khan with colleague stood in front of C40 cities info board.
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Mwidimi Ndosi @ndosie.bsky.social · 06/11/2025
What if the biggest barrier to early #arthritis treatment is not access to care but knowing when to ask for help? 🇩🇰 New Danish study shows how #education relates to how quickly people seek medical help. We need health education and advocacy built into every health system. 🔗 doi.org/10.1016/j.ar...
doi.org
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