iiinova — where your digital self keeps evolving

Lupus Foundation of America @lupus.org · 1h

💜 Meet Mi'yana, diagnosed with lupus at 15. Through the LFA, she's expanded her knowledge and found she's not alone. From hospital visits to everyday moments in between, Mi'yana is showing what her life with lupus looks like. ➡️ Share your photos today: buff.ly/RLzbMre

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Lupus Foundation of America @lupus.org · 5h

⏰ Today is the last day of our budget year. Your support helped 7,000+ people access #lupus webinars, brought 2,700 together at Empowerment Conferences, connected 3,000+ people with support, and much more! Help continue this support in the year ahead: buff.ly/CmTncwA

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Lupus Foundation of America @lupus.org · 8h

Deadline extended! 🏃 Applications to join our inaugural Race to End Lupus team at the 2027 TCS Dobule London Marathon are now open through October 19. Make your miles matter for people impacted by #lupus. Apply today: buff.ly/4JsUvBx #LondonMarathon

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Lupus Foundation of America @lupus.org · 29/09/2026

DC, you brought the energy! 💜 Thank you to everyone who walked, fundraised, and showed up for our #lupus community at Walk to End Lupus Now. Here’s a look at some of the fun we shared! Keep the momentum going! Find a Walk near you: buff.ly/sUaKvWn

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Lupus Foundation of America @lupus.org · 29/09/2026

Did you miss out on our last webinar: Lupus & You: Disability (SSDI) + Making Work Work? Check out the event’s recap blog, which features responses to audience questions by our Health Education Specialists, as well as a recording of the event: buff.ly/H60G0Sd

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Lupus Foundation of America @lupus.org · 29/09/2026

New research found that people with #SLE and depression, anxiety and/or PTSD had higher rates of emergency visits and hospitalizations, highlighting the importance of mental health as part of comprehensive lupus care. Read the study: buff.ly/a5g7ZsV

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Lupus Foundation of America @lupus.org · 28/09/2026

🎉 Here are September's top 20 Facebook birthday fundraisers! We’re so grateful for your dedication and impact. 🎂 Got a birthday coming up? Celebrate with a fundraiser for the Lupus Foundation of America! Fuel #lupus research, support, education, and more: buff.ly/BMtYjFk

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Lupus Foundation of America @lupus.org · 27/09/2026

Hear from Shawnta about her #Walktoendlupusnow experience and why being a part of her local walk means so much to her! Join a team, invite family and friends, and have fun while taking steps toward ending lupus! Visit buff.ly/Rpu8PaE to join a walk near you!

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Lupus Foundation of America @lupus.org · 26/09/2026

El #lupus afecta a las comunidades hispanas/latinas a tasas más altas y puede causar complicaciones. 💜 Este #MesDeLaHerenciaHispana, estamos compartiendo información clave para ayudar a crear conciencia sobre los síntomas del lupus, y las señales de advertencia. Descárgala ahora: buff.ly/ji2iVZ2

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Lupus Foundation of America @lupus.org · 25/09/2026

Immunovant shared results from a proof-of-concept study of imeroprubart in cutaneous #lupus. While the study did not meet its primary endpoint, findings may help inform future research in lupus and autoimmune disease. Read the press release here: buff.ly/uqkuEF6

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Lupus Foundation of America @lupus.org · 25/09/2026

La música, el amor propio y la comunidad han ayudado a Natalis a sobrellevar su experiencia con el #lupus. 💜 En este #MesDeLaHerenciaHispana, descubre cómo compartir su historia y conectar con los demás se han convertido en una fuente de fortaleza. Encuentra apoyo hoy mismo: buff.ly/W25ocBb

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Lupus Foundation of America @lupus.org · 24/09/2026

💜 @wmar2news.bsky.social featured LFA ambassadors and member of LFA’s Board of Directors, Dr. Ashira Blazer, sharing their stories and why they join Baltimore's Walk to End Lupus Now. Following this weekend’s Maryland Walk, hear why every step matters: buff.ly/UV6CGTO

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Lupus Foundation of America @lupus.org · 24/09/2026

🆕 A new episode of The Expert Series is live! Dr. Paul Hoover discusses obesity and its impact on people living with #lupus, how GLP-1 therapies work, and what researchers are learning about their potential role in lupus and related health outcomes. 🎧 Listen now: buff.ly/ladCGog

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Lupus Foundation of America @lupus.org · 23/09/2026

Black/African Americans make up 43% of #lupus cases nationally and have poorer outcomes. For treatments to effectively address the health needs of this community, it’s crucial that Black/African Americans share their lupus experience with patient-registries like RAY. Learn more: buff.ly/4gYvm7D

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Lupus Foundation of America @lupus.org · 22/09/2026

Why do you walk? 💜 Members of the #lupus community share what brings them to Walk to End Lupus Now and why every step is personal. Join us at a Walk near you and make your reason part of the movement: buff.ly/No6tAZi 💬 Share why you walk in the comments.

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Lupus Foundation of America @lupus.org · 22/09/2026

Meet members of the 2026 Racing to End Lupus Philadelphia Marathon team! 💜 This fall, 34 runners will take on the marathon, half marathon and 8K while raising #lupus awareness and funds to help end lupus. Learn the stories behind the miles: buff.ly/EBj6wSS #phillymarathon

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Lupus Foundation of America @lupus.org · 22/09/2026

Managing #lupus takes more than one strategy, and this #SelfCareAwarenessMonth, SELF is here to help. Our free app helps you manage symptoms, stress, medications, and your relationship with your health care team. Download the SELF app today: buff.ly/SZuYnxx

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Lupus Foundation of America @lupus.org · 21/09/2026

New research found that people with #lupus had a higher risk of stroke, including increased risks of both ischemic and hemorrhagic stroke, reinforcing the importance of cardiovascular health in lupus care. Read the study: buff.ly/HYGbJug

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Lupus Foundation of America @lupus.org · 20/09/2026

Join us on October 14 for our free national Lupus & You virtual education event where we’ll explore practical tips on protecting your skin from UV exposure, navigating cosmetic procedures safely, and choosing the right products. Register today: buff.ly/H8kJGc7

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Lupus Foundation of America @lupus.org · 20/09/2026

💜 Watch as Janeris shares what it's really like to live with #lupus, an autoimmune disease where the immune system mistakenly attacks healthy tissue, causing pain, fatigue, and brain fog that most people never have to think about. Learn about lupus: buff.ly/DOWj0Nt

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Lupus Foundation of America @lupus.org · 19/09/2026

Looking for a place to connect with others who understand life with #lupus? 💜 LupusConnect is a free online community for people with lupus and their loved ones to share experiences, find emotional support and discuss practical tips for daily life. Join today: buff.ly/UwPX66U

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Lupus Foundation of America @lupus.org · 19/09/2026

🏃 Race to End Lupus at the 2027 Double TCS London Marathon! Join our inaugural team for this historic two-day event and make your miles matter for people impacted by #lupus. Apply by October 2: buff.ly/ErJKnwz

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Lupus Foundation of America @lupus.org · 18/09/2026

Durante tres generaciones, el #lupus ha formado parte de la historia familiar de Yvette. En este #MesdelaHerenciaHispana, ella comparte cómo la familia, la fe y la defensa de sus propios intereses marcaron su trayectoria de 30 años. 💜 Lee la historia de Yvette: buff.ly/QhUDMvB

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Lupus Foundation of America @lupus.org · 18/09/2026

💜👟 LFA Charleston Ambassador Shama joined @abcnews4.com to share her #lupus journey ahead of this weekend’s Charleston #WalktoEndLupusNow. Hear her story and learn more about the Walk: buff.ly/QittYDl

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Lupus Foundation of America @lupus.org · 18/09/2026

New LFA-funded research highlights racial and ethnic differences in pregnancy outcomes among people with #lupus, highlighting the need to consider cardiovascular risk and social drivers of health in lupus pregnancy care. Read the study: buff.ly/D3f7kO4

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Lupus Foundation of America @lupus.org · 17/09/2026

Thank you to everyone who joined our Lupus & You event: Disability (SSDI) + Making Work Work If you missed the event, don’t worry! Check out all of the resources available and the event recording, and keep an eye out for our next event: buff.ly/oA0HPL7

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Lupus Foundation of America @lupus.org · 16/09/2026

💜 Este #MesDeLaHerenciaHispana, encuentra recursos para la comunidad hispana/latina con #lupus, incluyendo información confiable en español, recursos revisados por expertos, grupos de apoyo e historias de personas que luchan contra el lupus. 👉 Lee más: buff.ly/YqnSx2Y

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Lupus Foundation of America @lupus.org · 16/09/2026

Tonight’s the night – join us at 7PM ET for our free Lupus & You event: Disability (SSDI) + Making Work Work! Hear from our dynamic panel of speakers as they discuss your legal rights at work and the SSDI process. Register today! ⬇️ buff.ly/oA0HPL7

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Lupus Foundation of America @lupus.org · 15/09/2026

Have you heard of Inside #Lupus Research? It's your one-stop location for learning about the most important #lupusresearch news that matters to you. Stay on top of the latest, check out the current headlines and subscribe to get them straight to your email: buff.ly/NEpPVTI

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Lupus Foundation of America @lupus.org · 15/09/2026

It’s not too late to register for our Lupus & You event tomorrow night on workplace accomodations and Social Security Disability Insurance (SSDI). Listen as experts and lupus warriors discuss your legal rights at work and the SSDI process. Register today! ⬇️ buff.ly/oA0HPL7

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Lupus Foundation of America @lupus.org · 15/09/2026

Al dar inicio al #MesDeLaHerenciaHispana, destacamos el apoyo y los recursos disponibles para miembros de habla hispana de la comunidad de #lupus. 💜Nuestras educadoras de salud, incluida Lety, ofrecen orientación gratuita (no médica) y educación en español e inglés. Conéctate hoy: buff.ly/Sy8nlie

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Lupus Foundation of America @lupus.org · 14/09/2026

🆕 ¡Ya está disponible un nuevo episodio en español de The Expert Series! El Dr. Mejía-Vilet habla sobre cómo el lupus puede afectar los riñones, la nefritis lúpica y la importancia de monitorear la salud renal a lo largo del tiempo. 🎧 Escúchalo ahora: buff.ly/dzbVFY1

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Lupus Foundation of America @lupus.org · 12/09/2026

👟 Fall #WalktoEndLupusNow season is here! 💜 Across the country, #lupus warriors, families, friends and supporters are coming together to raise awareness, fundraise, and move us closer to a future without lupus. Not registered yet? Find a Walk near you: buff.ly/9HpmIuE

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Lupus Foundation of America @lupus.org · 11/09/2026

Navigating work with #lupus can raise difficult questions about accommodations, communication and your rights. 💜 Join Jade and other expert speakers at our free Lupus & You event on on workplace accommodations, legal rights, SSDI and career changes: buff.ly/oA0HPL7

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Lupus Foundation of America @lupus.org · 11/09/2026

Curious about #clinicaltrials but not sure what to expect? 💜 Meet Beverly. She lost access to the medication that had managed her #lupus symptoms for a decade and decided to give one a try, and found it far easier than she expected. 🔬 Read her story: buff.ly/rDUTy4F

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Lupus Foundation of America @lupus.org · 10/09/2026

New oral investigational therapy, afimetoran, met its Phase 2 primary endpoint for adults with systemic #lupus erythematosus. The drug is also being explored for lupus skin disease. Read the announcement: buff.ly/UrvhHkh

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Lupus Foundation of America @lupus.org · 09/09/2026

Join our free Lupus & You webinar next week and listen as our speakers discuss navigating workplace accommodations and Social Security Disability Insurance (SSDI). Register today ↓ buff.ly/oA0HPL7

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Lupus Foundation of America @lupus.org · 08/09/2026

Meet Chris. 💜 Living with autoimmune disease inspired her to create Cielo Pill Holders, making medication easier to carry with style. Now a Purple for Purpose partner, Cielo gives 5% of every sale to LFA in support of people with #lupus. Shop today: buff.ly/72ugZ6m

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Lupus Foundation of America @lupus.org · 07/09/2026

Missed our latest #Lupus & You webinar? 💜 Our new recap blog shares practical tips for navigating symptoms, medications, and support while living with lupus. Hear from a lupus expert and warriors who shared their experiences and advice. Read more: buff.ly/HVix2vO

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Lupus Foundation of America @lupus.org · 06/09/2026

Behind every step at #WalktoEndLupusNow is a reason to walk. Maybe it's for yourself, maybe it's for someone you love, maybe it's both. Every step brings us closer to a future free of #lupus. Who are you walking for? Comment below and find a walk today: buff.ly/rLBDdc6

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Lupus Foundation of America @lupus.org · 05/09/2026

💜 Meet Yolanda. Diagnosed at 49. Through the LFA, she found a community that helped her understand #lupus and reminded her she is not alone. Her photos capture the highs and lows of a journey that is uniquely her own. ➡️ Share your life with lupus: buff.ly/hu0PbWz

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Lupus Foundation of America @lupus.org · 04/09/2026

A new study finds people with systemic autoimmune rheumatic diseases like #lupus and clinicians describe flares differently, especially in how quickly they start, how they are recognized, and whether they require changes in treatment. Read the study: buff.ly/dzfEgKr

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Lupus Foundation of America @lupus.org · 04/09/2026

This #PainAwarenessMonth, we're highlighting the link between chronic pain and #depression for people with #lupus. Our new blog with Heather Artushin, MSW, LISW-CP, explores this connection and shares 6 evidence-based approaches that can help. Learn more: buff.ly/JxYhIQc

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Lupus Foundation of America @lupus.org · 03/09/2026

Fall #WalkToEndLupusNow season is almost here! 👟💜 Communities across the country are coming together to raise funds and awareness for everyone living with #lupus. Find a walk near you and register today: buff.ly/rLBDdc6

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Lupus Foundation of America @lupus.org · 03/09/2026

Researchers identified two molecular subtypes of lupus nephritis that differed in immune activity, kidney function and chronic kidney damage. They also identified APOL1 as a candidate biomarker that may help distinguish between the subtypes. Learn more: buff.ly/7kUSPJv

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Lupus Foundation of America @lupus.org · 03/09/2026

Meet the 2026 Racing to End Lupus #TCSNYCMarathon team! 💜 This November, nine runners will take on 26.2 miles while raising #lupus awareness and funds to help end lupus. Get to know the team: buff.ly/NAm1OxT

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Lupus Foundation of America @lupus.org · 02/09/2026

Want to make an impact for #lupus community from your phone or computer? Start a Facebook fundraiser to rally your network for a meaningful cause. Every dollar funds LFA research, education, resources for millions with lupus. Get started today: Lupus.org/Facebook

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Lupus Foundation of America @lupus.org · 01/09/2026

Novartis and Bristol Myers Squibb have paused their CAR-T trials for #lupus and other autoimmune diseases to review safety concerns. CAR-T remains experimental, and continued research is needed to understand its benefits and risks. Read the announcement: buff.ly/QJBbN7L

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Lupus Foundation of America @lupus.org · 01/09/2026

Many people with #lupus experience skin problems like rashes and sores, and for some, lupus affects only the skin. This #SkincareAwarenessMonth learn the signs to help you recognize symptoms early and find treatment. Read more: buff.ly/SbLRkkS

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Reposted by Lupus Foundation of America

Tiffany - The Benevolent Bard Coming 2027 @tiffanywitcher.bsky.social · 31/08/2026

My biggest Charity Concert yet! More singers, duets and even group songs. This will be for the @lupus.org in honor of my Mother on October 4th! Be sure to check out all these talented singers joining! I have worked super hard on this!

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