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ME/FM Society of BC

@mefmsocietyofbc.bsky.social
166 followers 230 following 15 posts
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ME/FM Society of BC @mefmsocietyofbc.bsky.social · 30/04/2025
Building a strong support network is essential for every caregiver! 🤝 Discover strategies to connect with others and find the support you need. You're not alone in this journey! Download your Caregivers Toolkit - www.mefm.bc.ca/caregiver-re... #Caregivers #SupportNetwork #MEFM #LongCOVID
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ME/FM Society of BC @mefmsocietyofbc.bsky.social · 22/04/2025
🌟 Excited to launch our Caregivers Toolkit! A must-have for those supporting loved ones with ME, FM, & Long-COVID. Packed w tips & support resources. Download & share now! #MECommunityStrength #MEBCCommunitystrength #MEFMBC #Longcovid #FM #BChealthcare mefm.bc.ca/caregiver-re...
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ME/FM Society of BC @mefmsocietyofbc.bsky.social · 15/04/2025
Caregiving for someone with #MEcfs, #LongCovid or Fibromyalgia? A new resource is launching THIS FRIDAY to support YOU. 💪 Stay tuned! #caregiver #resources #comingsoon
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ME/FM Society of BC @mefmsocietyofbc.bsky.social · 07/03/2025
🌟 #IWD2025: 80% of ME cases are women. Menopause + ME? Hormonal shifts can worsen fatigue, pain, & brain fog. MYTH: “It’s just aging.” FACT: ME is a distinct illness. Rest isn’t failure—it’s survival. 💪💜 👉 Tips + support: shorturl.at/qDWU0 #MEAwareness #MenopauseAndME
shorturl.at
Celebrating Strength on International Women’s Day: Navigating ME and Menopause with Compassion
Today, as we honor the resilience and achievements of women worldwide, we want to shine a light on a community that embodies unwavering strength: women living with ME/CFS. Did you know that women make...
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ME/FM Society of BC @mefmsocietyofbc.bsky.social · 07/03/2025
The @bcndp.bsky.social budget has once again failed our community. @josieosborne.bsky.social we urge you to act immediately and prioritize the care this community deserves. Please see our response here -https://www.mefm.bc.ca/post/response-to-the-2025-bc-budget-me-fm-society-of-british-columbia
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ME/FM Society of BC @mefmsocietyofbc.bsky.social · 19/02/2025
More Myth Busting! 'GET' isn’t a cure for ME/CFS or Long-COVID and can be harmful. Protect your health with accurate info! #MECFS #ChronicIllnessAwareness
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ME/FM Society of BC @mefmsocietyofbc.bsky.social · 12/02/2025
Myth Busting!! Symptoms of ME/CFS & Long-COVID can fluctuate. Yesterday’s abilities don’t mean today’s. Let’s understand and support! #ChronicIllnessSupport #LongCovid #MECFS
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ME/FM Society of BC @mefmsocietyofbc.bsky.social · 06/02/2025
Myth Busting! ME/CFS & Long-COVID are real, with biological changes like immune dysfunction. They're not psychosomatic myths. Let's spread awareness! #MECFS #LongCOVID
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ME/FM Society of BC @mefmsocietyofbc.bsky.social · 23/12/2024
Feeling festive without fatigue? Discover pacing strategies to manage your energy this holiday season. Learn more in our free email series! - www.mefm.bc.ca/need-support... 🎉 #ME #FM #LongCOVID #PacingTips
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ME/FM Society of BC @mefmsocietyofbc.bsky.social · 18/12/2024
🌟 Your voice matters! Help shape better healthcare in BC. If you're in Canada with ME/CFS, Fibromyalgia, Lyme Disease, or Long-COVID, we want to hear from you. Share your experiences to drive real change. Take the survey now: info595.questionpro.com/Health2024 #HealthcareBC #PatientVoices
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ME/FM Society of BC @mefmsocietyofbc.bsky.social · 17/12/2024
Our FREE Holiday Pacing Module is OUT!! What's your biggest holiday energy-zapper? Share with us! 🌟 www.mefm.bc.ca/holiday-module #HolidayPacing
mefm.bc.ca
Holiday Module| MEFM SOCIETY OF BC
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ME/FM Society of BC @mefmsocietyofbc.bsky.social · 09/12/2024
We need your voice! Help inform better healthcare in BC. GO TO SURVEY NOW (info595.questionpro.com/Health2024) Click on image below to read entire article or view it on our website (www.mefm.bc.ca/.../we-need-...).
info595.questionpro.com
We need your voice! Help inform better healthcare for people living with ME, FM, Lyme and Post COVID in BC.Thank you for your time in completing this survey.  By clicking
We need your voice! Help inform better healthcare for people living with ME, FM, Lyme and Post COVID in BC. Thank you for your time in completing this survey.  By clicking "Start", you consent to the ...
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Maggie Keresteci @maggiekeresteci.bsky.social · 05/12/2024
Having #LongCovid has made it crystal clear that we do not have a robust, systematic way to support caregivers. We need a co-designed person-centred system where supports are built in Q: What happens when a #caregiver becomes a #Patient in Canada? A: Nothing....absolutely nothing
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Billy Hanlon @bhanlon15.bsky.social · 05/12/2024
Burnley Express: 'ME: 'My daughter has ME, she went into the appointments able to walk and came out in a wheelchair'' 'We speak with Michiel van Zanten who lives with ME & Janet Sylvester from MEAction whose daughter Emma has been living with ME for 12 years' www.burnleyexpress.net/health/me-ch...
burnleyexpress.net
'My daughter has ME, she went into appointments walking and came out in a wheelchair'
There are an estimated 1.3 million people in the UK with ME 🏥
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VC @vgc1720.bsky.social · 29/11/2024
N95s work because of how they are designed:
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Adithya Ramachandran 🇨🇦🇫🇷 @adithyar.bsky.social · 29/11/2024
Chiming in to add that my spouse and I have had zero respiratory infections since the last one in January 2020. The only reason: Masks. All public places. We started off with cloth, upgraded to KN95s, and then finally N95s when Omicron popped up. Our prepandemic average was 2-3 per person per year.
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Isabel Jordan (she/her) @seastarbatita.bsky.social · 03/12/2024
Today, on the International Day for Persons with Disabilities, I am beyond proud that the Canadian Institutes for Health Research have released their Anti-Ableism Action Plan, entitled "From Intention to Impact". 1/3 cihr-irsc.gc.ca/e/54121.html...
cihr-irsc.gc.ca
From Intention to Impact: CIHR Anti-Ableism Action Plan - CIHR
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valebodi.bsky.social @valebodi.bsky.social · 04/12/2024
Immune cells become exhausted in #MECFS. Read about the latest findings of the PNAS research paper of M. Hanson et al. here: news.cornell.edu/stories/2024...
news.cornell.edu
Immune T cells become exhausted in chronic fatigue syndrome patients | Cornell Chronicle
The study found that key CD8+ T cells showed signs of constant stimulation that lead to an exhausted state, a condition that is well-studied in cancer.
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Lawrence (Larry) Mróz @drmroz.bsky.social · 01/12/2024
The BMJ will remunerate patient and public reviewers | The BMJ www.bmj.com/content/387/... #PatientEngagement
bmj.com
The BMJ will remunerate patient and public reviewers
The BMJ will offer £50 for reviews by patients and the public From January 2025 patients and members of the public who complete a review for The BMJ will be offered £50 or a 12 month online subscript...
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ME/FM Society of BC @mefmsocietyofbc.bsky.social · 03/12/2024
This #GivingTuesday, support those living with ME, FM, & Long-COVID! Your gift can funds vital support groups & email series that empower individuals. 💌🤝 www.canadahelps.org/en/dn/9932?v... Monthly or 1-time donations make a difference! Not able to give? Share our mission or sign up for membership.
canadahelps.org
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betsy ladyzhets 😷 @betsyladyzhets.bsky.social · 02/12/2024
We made a zine! @thesicktimes.bsky.social commissioned artist Katie Drackert to create a printable mini-magazine of our first year’s highlights, as well as top Long COVID and COVID-19 resources. Check it out: thesicktimes.org/2024/12/02/s...
thesicktimes.org
Special edition zine: One year of The Sick Times - The Sick Times
We made a zine! To celebrate our first anniversary, we commissioned artist Katie Drackert to create a printable mini-magazine of our first year’s highlights, as well as top Long COVID and COVID-19 res...
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Simon Spichak @spichaksimon.bsky.social · 25/11/2024
Canada's proposed Long COVID recommendations (CAN-PCC) pose harm to patients. I spoke with experts + advocates including @sunsopeningband.bsky.social, Adriana Patino, @sabrinapoirier.bsky.social to breakdown why. #pwME #LongCOVID #CanadaSky simonspichak.beehiiv.com/p/everything...
simonspichak.beehiiv.com
Everything Wrong with Canada's Proposed Long COVID Recommendations
The proposed Canadian guidelines for treating Long COVID pose harm to patients and risk psychologizing the disease.
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Illustrator Interrupted @franceyme.bsky.social · 26/11/2024
Those who continue to push the FND/psych narrative should lose their medical licenses for wilfully ignoring scientific advances and their Hippocratic oath “to do no harm”
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Sickandtiredaus Jordan Crane @sickandtiredaus.bsky.social · 15/11/2024
You can protect yourself & your loved ones from COVID with these 6 steps: 😷 Wear a respirator mask 🏠 Stay home if sick ⏰ Test if you have symptoms 🌳 Let fresh air in or meet outdoors 💉 Stay up to date with your vaccinations 💡 Talk to your GP about COVID medicines. youtu.be/FlBfq22nxt8?...
youtu.be
Jordan’s long COVID story
YouTube video by Department of Health Victoria
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DoNoHarm BC @donoharmbc.bsky.social · 21/11/2024
Advocacy alert ‼️ New Canadian draft recommendations for Long Covid are out, & they include concerning guidance to EXERCISE to prevent Long Covid, & to use CBT as a treatment. Have your say by Wednesday Nov 27 at 8:45 pm Pacific / 11:45 pm Eastern: www.research.net/r/CAN-PCCRec...
Red and white graphic of CAN-PCC Canadian guidelines for post COVID-19 condition. CAN-PCC recommendations public comment survey – November 2024. Draft recommendations for input.
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Brian Hughes @bmhughes.bsky.social · 06/11/2023
Your usual reminder that CBT has *never* been shown to improve *actual physical symptoms* in #MECFS patients. Self-reported well-being is often higher after CBT; but that's what CBT does -- it gets people to look at things more positively. Actual strength, endurance, mobility etc all UNAFFECTED
cambridge.org
Does the effect of cognitive behavior therapy for chronic fatigue syndrome (ME/CFS) vary by patient ...
Does the effect of cognitive behavior therapy for chronic fatigue syndrome (ME/CFS) vary by patient characteristics? A systematic review and individual patient data meta-analysis
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ME/FM Society of BC @mefmsocietyofbc.bsky.social · 26/10/2023
Our upcoming Social and Support groups: www.mefm.bc.ca/post/novembe...
mefm.bc.ca
November social support group announcement
Social Support for people living with ME, FM and/or Long-COVID. Advanced registration for each session is required. Registration is capped at 20. Our professionally facilitated social support groups a...
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Dialogues ME/CFS @dialoguesmecfs.bsky.social · 23/10/2023
www.youtube.com/watch?v=278v... Videos of the PolyBio symposium held on Friday are available on youtube. Lots of exciting work being done by so many researchers. Thank you so much.
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Sabrina Poirier @sabrinapoirier.bsky.social · 25/10/2023
Let’s start a thread of awesome follows on here that relate to #MyalgicEncephalomyelitis #MECFS #LongCovid or #InfectionAssociatedChronicIllnesses. Because it is hard to rebuild community on a new platform…but doing it as a #PwME…nearly impossible. Let’s help each other with safe suggestions.
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