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Libby Humphris

@libbyhumphris.bsky.social
502 followers 385 following 62 posts

Public contributor | Honorary Research Associate @CardiffUni | Advocate for women’s health, rare diseases & shared decision-making | Co-lead, Public Engagement @EvidenceCentre | Breaking down barriers for patients & the public ✨ Crocheter & Rescue Dog Mum

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Libby Humphris @libbyhumphris.bsky.social · 18/11/2025
Adrenal crisis 10 days ago, I was worried I would not be able to be at the #CUMEDICPPIE showcase today. Looking forward to a day focused on public involvement and engagement. Do say hello if you see me, I'll be on the Evidence Centre stand.
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Libby Humphris @libbyhumphris.bsky.social · 08/10/2025
Having a rough time with my health recently. Infection-virus-flare-another infection. Today my "bad" eye has a weird sore patch developing, another "thing" to sort out. It's exhausting! Very grateful to Nurse Dog Luna keeping me company while I rest up.
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Libby Humphris @libbyhumphris.bsky.social · 01/08/2025
It was refreshing to meet with an anaesthetist yesterday at pre-op clinic who introduced me to the @sobauk.co.uk guidelines. I'd not come across them until now. Thank you for making this difficult time that little bit easier 🙏 #SharedDecisionMaking #PatientVoice #Thankyou
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Dr Victoria Shepherd @vickylshepherd.bsky.social · 21/05/2025
📢Developing recommendations for inclusive consent processes for trials OPTIMISE is developing recommendations for designing consent processes for trials involving people with communication &/or capacity needs. We are inviting researchers to a workshop to agree key domains to include. Info below:
Flyer for OPTIMISE workshop - developing recommendations for inclusive consent processes for trials - 8th July in Cardiff. Contact Dr Victoria Shepherd via email sheoherdvl1@cardiff.ac.uk
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Disability Wales @disabilitywales.bsky.social · 11/04/2025
📢We are recruiting! We're looking for a disabled person to join us as Programme Co-ordinator. This is an exciting opportunity to work alongside partner organisations to deliver the Equal Power Equal Voice programme. Closing date: 9am on 22 April. www.disabilitywales.org/vacancy-prog...
We are recruiting. 

Programme Co-ordinator. 

To ensure the next Equal Power Equal Voice programme cycle is efficient and effective, and provides the best possible experience to mentees and mentors. 

Closing date: 9am on Tuesday 22nd April. 

18 hours a week. Remote working with office base at Spark, Cardiff.

The EPEV and DW logos are in the top right corner.
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Libby Humphris @libbyhumphris.bsky.social · 30/03/2025
A reminder on one of the hardest days of the year for me. It is never ok to ask someone when they are starting a family, never. Thinking of everyone struggling today. #ChildlessNotByChoice
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Co-Production Collective @coprocollective.bsky.social · 25/03/2025
Co-Production Collective is looking for someone to manage our projects with partners. If you are interested in co-production in research, policy and service development, we would like to hear from you! Find out more about the role and how to apply in our blog: shorturl.at/AAPln #coproduction
This image depicts a yellow piece of paper with letters cut out of it, reading "join us". The paper is on a green background.
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Libby Humphris @libbyhumphris.bsky.social · 24/02/2025
Inspired by a talk given by @drmattmorgan.bsky.social a few weeks ago, I'm finally off the mark with my writing plan. Wishing you all a great week ahead.
On a coffee shop wooden table there is an iPad with a blank page open, a teal blue diary with light blue pen on top and a latte with a heart in the milk.
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Fair Treatment for the Women of Wales (FTWW) @ftww.bsky.social · 06/02/2025
Have you heard of #Lleswyl? It’s the only inclusive virtual festival organised by @daringtodream.bsky.social. Many miss out on events and festivals due to illness, and that’s exactly why Lleswyl exists. Get your free tickets now! www.eventbrite.co.uk/e/lleswyl-20...
Purple graphic for Lleswyl 2025 event on February 21. Includes colorful bursts, the tagline "Making Space to Talk," and website link: www.daringtodream.wales.
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Libby Humphris @libbyhumphris.bsky.social · 05/02/2025
It's really tough to see the constant headlines on this topic. You are not alone, my inbox is always open.
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Libby Humphris @libbyhumphris.bsky.social · 05/02/2025
Grateful to have Nurse Dog Luna keeping me company in my little home office this morning 🐾 She has no idea how important she is to my emotional health, join Luna and I at #Lleswyl2025 later this month to hear more on this. @daringtodream.bsky.social #DogSky #RescueDog
A Yorkshire terrier cross lies across a pile of blankets with their head resting on a pillow looking up at the camera.
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Libby Humphris @libbyhumphris.bsky.social · 05/02/2025
I struggled to know who I was at the end of last year. With a few tweaks and working hard to hone down on what is really important to me, I am now much happier and more motivated than ever. Sometimes you have to take a step back to realise what it is you want.
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Libby Humphris @libbyhumphris.bsky.social · 05/02/2025
Today, fab line up! #PxP #PatientEngagement
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Daring to Dream @daringtodream.bsky.social · 03/02/2025
🌟 #Lleswyl2025 🎉 The only #inclusive virtual festival by @daringtodream.bsky.social, shining a light on adults with illness in #Wales. Many miss out on events & festivals due to illness! Lleswyl comes to them! Get your FREE tickets now! 👉 Register on Eventbrite! www.eventbrite.co.uk/e/lleswyl-20...
eventbrite.co.uk
Lleswyl 2025
Daring to Dream's free, fantastic, fun and for everyone wellbeing festival! Livestreamed from 7pm 21st February 2025 from You Tube
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Daring to Dream @daringtodream.bsky.social · 02/02/2025
Well said @hrhcatherinepow.bsky.social - this is exactly what we are saying @daringtodream.bsky.social. Emotional health and skills are being overlooked - we must get better at talking about feelings constructively #emotionalhealth and #emotionalskills matter. www.bbc.co.uk/news/article...
bbc.co.uk
Kate says emotional skills a priority for healthier society
The Princess of Wales launches a project calling for more emphasis on social and emotional skills.
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Daring to Dream @daringtodream.bsky.social · 31/01/2025
#Lleswyl2025 - how about booking your tickets for a #WatchParty at #WalesMillenniumCentre? Book to go along with a few friends? have a great night! www.wmc.org.uk/en/whats-on/...
wmc.org.uk
Lleswyl Watch Party
Lleswyl 2025: Top musical talent, transported from the festival field to Wales Millennium Centre!&lt;br /&gt;<br /> &lt;br /&gt;<br /> Lleswyl is Daring to Dream&amp;#039;s free li…
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Libby Humphris @libbyhumphris.bsky.social · 31/01/2025
Happy Friday! I'm having a "rest day". I have to be really careful that I don't burn out. It's so tempting to carry on, I'm motivated, my brain is willing but my body needs to rest. If I don't listen to my body then I'll be out of action for weeks. Nurse dog Luna with me, as always. #mecfs #dogsky
A Yorkshire terrier cross is sat on a human bed looking at the camera, one ear up and one ear down. The duvet is white with blue geometric patterns. There are grey wardrobes in the distance.
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Daring to Dream @daringtodream.bsky.social · 24/01/2025
Good Morning! Have you heard of #Lleswyl2025? Lleswyl means 'Wellbeing Festival' in Welsh. We provide a great, free fun evening on 21 February 2025 from 7pm! Get your FREE tickets from www.eventbrite.co.uk/e/lleswyl-20... Join us for a great night! YouTube channel: Lleswyl 2025.
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Daring to Dream @daringtodream.bsky.social · 26/01/2025
#Lleswyl2025 #inclusive #talented #diverse #LineUp. FREE tickets www.eventbrite.co.uk/e/lleswyl-20... In Wales 1.2 million live with at least one #longstanding #illness. #Lleswyl #festival brings #joyousevening to their home @dawnbowden.bsky.social @dalilatm.bsky.social @libbyhumphris.bsky.social
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Libby Humphris @libbyhumphris.bsky.social · 27/01/2025
Nurse Dog Luna is never far from where I am, today she is snoozing under my desk. This afternoon I've been busy working on a few upcoming presentations. I was dreading another week of January, but an inspiring talk from @drmattmorgan.bsky.social has started this week off perfectly 💪 #PatientVoice
A Yorkshire terrier cross is asleep, laying stretched out on a collection of blankets.
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Alex Haagaard (they/them) @alexhaagaard.bsky.social · 26/01/2025
Lotta new folks here so I guess it's a good time to plug this webinar! If you want to hear me talk about a bunch of light-hearted shit like temporal accessibility and hermeneutical (in)justice in patient engagement, sign up at the link.
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Libby Humphris @libbyhumphris.bsky.social · 26/01/2025
Looking forward to #Lleswyl2025 next month. Tickets are FREE! #emotionalhealth #raisingawareness #chronicillness #maketimetotalk
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Elizabeth Blackwell Institute @ebibristol.bsky.social · 22/01/2025
Digital tools should make healthcare more efficient and accessible, but do they make everyone’s lives easier? Join @trishgreenhalgh.bsky.social for 'Healthcare in the digital age: A new era of inequality?' When: 3 Feb 2025, 18:30-20:00 Where: City Hall, Bristol Free tickets: tinyurl.com/2pyn8w4b
tinyurl.com
Healthcare in the digital age: A new era of inequality?
We are delighted to welcome Professor Trish Greenhalgh to give the eleventh annual Elizabeth Blackwell lecture, Bristol on 3 February 2025.
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Libby Humphris @libbyhumphris.bsky.social · 26/01/2025
Thank you for writing this Lucy, it sums up perfectly how important the online community is when you are disabled. I'm so grateful to have social media bring us all together ❤️
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Rachel Charlton-Dailey @rachelcdailey.bsky.social · 25/01/2025
Want to find out more about the history of disability activism in the UK and what we need to do now? Well I have a book for that! Ramping Up Rights is out July 3rd with @hurstpublishers.bsky.social Preorder here: www.hurstpublishers.com/book/ramping...
hurstpublishers.com
Ramping Up Rights | Hurst Publishers
A vivid history of the 100-year battle for British disability rights, spotlighting enraging injustices and inspiring campaigns, past and present: this fight isn’t over.
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Libby Humphris @libbyhumphris.bsky.social · 20/12/2024
Nurse Dog Luna and I are signing off for the next two weeks. Wishing you all a merry Christmas 🎄 See you in 2025!
A Yorkshire terrier is sat on a stripy crochet blanket, wearing a red Santa hat which has a white bobble and white trim. There is a small dog toy in the background.
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Dawn Richards, PhD @dawnrichards.bsky.social · 12/12/2024
Hey research teams/orgs that engage #PatientPartners! Please build in a very large chunk of time at your 1st team or other type of mtg for intros. This is really key to starting to build your relationship and trust. #PatientEngagement #ConsumerInvolvement #PPI /1
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Libby Humphris @libbyhumphris.bsky.social · 13/12/2024
I've spent nearly a quarter of the year at UHW. Here's hoping 2025 is kinder to me 🙏🏻 The rest of my #FullTimePatient statistics can be found on my Instagram. It was an interesting project collating all the data to create a health themed #2024wrapped
On a yellow background with blue circles in the corners, black text states " you spent 83 days in hospital" below this red text states "23% of 2024" in the bottom left hand corner in white is "@eat_sleep_crochet_repeat"
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NIHR Applied Research Collaborations (ARCs) @nihrarcs.bsky.social · 09/12/2024
#ARCadvent day 9️⃣: @neuro-observant.bsky.social is a long-term public contributor at @arc-west.bsky.social. She’s the brains behind a wildly successful diagram outlining how patient and public involvement (#PPI) can be woven into every stage of the research cycle. arc-w.nihr.ac.uk/news/my-ppi-...
NIHR National Institute for Health and Care Research
#ARCadvent
Top ARC stories of the year 
Day 9
Successful patient and public involvement diagram by long-term ARC public contributor

Main image: A picture of Louise Ting, who is a long-term public contributor at ARC West. She’s also the brains behind the wildly successful diagram outlining how patient and public involvement (PPI) can be woven into every stage of the research cycle.
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Libby Humphris @libbyhumphris.bsky.social · 09/12/2024
Happy to be back at my desk this morning. For a little while I wasn't sure I'd be back this quickly (or at all). What should my reward be for pacing myself this week? 🤔
A diary notes page with "This weeks main goal" underneath in purple handwriting is "be sensible - pace yourself!" Underneath this is an empty box that says " reward if achieved"
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Libby Humphris @libbyhumphris.bsky.social · 08/12/2024
You don't realize how poorly you've been until you start to feel human again. Very grateful to be feeling more myself again and looking forward to getting back to some normality - whatever that is. First though, an afternoon planning out the cushions for our nearly finished campervan build 👌🏻
A very large dark grey ex-military Land Rover ambulance converted into a campervan is turning onto the driveway.
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Libby Humphris @libbyhumphris.bsky.social · 06/12/2024
When I asked for the weather to be kind, this was not the plan 🤦🏻‍♀️
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Libby Humphris @libbyhumphris.bsky.social · 06/12/2024
Thank you @familiarstudy.bsky.social 😊 it's been a learning curve for us both, it feels very strange to be coming to the end of the project after so long. You've got this 🫶🏻🦜
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Libby Humphris @libbyhumphris.bsky.social · 06/12/2024
Hoping the weather eases so we can collect Nurse Dog Luna today, my awesome in-laws have kindly looked after her while I've been in hospital the last couple of weeks. Looking forward to her being my little shadow again, the house is very quiet without her here.
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Libby Humphris @libbyhumphris.bsky.social · 04/12/2024
Disappointed to miss the PRIME Centre Wales annual meeting today. My body decided I need some more lived experience, this time ticking off the neurology department at UHW. #morelivedexperience #ireallydontneedanymore #patientexperience
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Libby Humphris @libbyhumphris.bsky.social · 04/12/2024
Great to see @pxphub.bsky.social here, I was happy to be your first follower yesterday ☺️
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Dawn Richards, PhD @dawnrichards.bsky.social · 03/12/2024
📣 For those new or not quite sure about patient engagement in research, this free, online How-To Guide to PE in research was developed by patient partners for anyone on a research team (supported by the CIHR Institute of Musculoskeletal Health and Arthritis). cihr-irsc.gc.ca/e/27297.html... /1
cihr-irsc.gc.ca
Patient Engagement - CIHR
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Libby Humphris @libbyhumphris.bsky.social · 03/12/2024
On International Day of Persons with Disability I am rather frustrated to be poorly yet again. Very grateful to have been looked after by a fab team at UHW over the last week. Seeing Neurology consultant tomorrow, hopefully a plan of how to get better 🤞🏻
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Libby Humphris @libbyhumphris.bsky.social · 28/11/2024
Does anyone have any coping strategies for a very claustrophobic person needing an urgent MRI? Mindfulness gets me through nearly everything but not an MRI #Terrified
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Libby Humphris @libbyhumphris.bsky.social · 19/11/2024
A great piece on improving shared decision making. #MedSky
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Libby Humphris @libbyhumphris.bsky.social · 19/11/2024
"..grief remains because we care so deeply about ourselves, our health, and the future we imagined." ^ This! I'm very grateful to have found a way to turn that grief into something that can help not only me but many others too. A brilliant article by Linxi Mytkolli!
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Libby Humphris @libbyhumphris.bsky.social · 18/11/2024
Hi everyone, aware I am late to the bluesky party. I am an honorary research associate @cardiffuni.bsky.social with a keen interest in shared decision making and women's health. Battling multiple chronic health issues. I love to crochet & have a rescue dog called Luna a.k.a Nurse Dog.
A golden blonde yorkshire terrier cross bichon is sat on the lawn on a sunny day with her mouth open showing her tongue.
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