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Fair Treatment for the Women of Wales (FTWW)

@ftww.bsky.social
284 followers 517 following 149 posts

The only patient-led charity in Wales dedicated to achieving health equality for women, girls, and people assigned female at birth. We Chair the #WomensHealthWales Coalition. Disabled People's Organisation.

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Reposted by Fair Treatment for the Women of Wales (FTWW)
Dee Montague @deemontague.bsky.social · 21/07/2026
More coverage here: www.bbc.co.uk/news/article...
bbc.co.uk
Women's pain normalised in NHS, Cardiff health summit told
An operation left Donna Davies in constant pain but she only felt believed when her husband spoke up.
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Reposted by Fair Treatment for the Women of Wales (FTWW)
Dee Montague @deemontague.bsky.social · 21/07/2026
Ending the normalisation of female pain in healthcare I was pleased to attend the Ministerial Summit for Women's Health last week, where I shared my lived experience of pain in healthcare settings. Huge thanks to @ftww.bsky.social, Welsh Government, and NHS colleagues! Here's the itv Wales piece:
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Fair Treatment for the Women of Wales (FTWW) @ftww.bsky.social · 16/04/2026
Ask your #SeneddElections candidates to support our Manifesto! Follow the link to find a template letter and link to the pledge form: ftww.org.uk/2026/04/15/a...
Promotional graphic for FTWW showing a taped-up poster titled “Manifesto 2026–2030: Fair Treatment for the Women of Wales – Our Right to Health and Wellbeing in Wales.” The poster features three overlapping profile silhouettes in orange, black, and green. Beside it is a leaflet titled “Six Ways to Realise Women’s Right to Health and Wellbeing in Wales,” attached with a paperclip and including a QR code. The background shows a riverside walkway. Text reads, “Ask your Senedd candidates to support our Manifesto!” with the FTWW logo at the bottom.
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Fair Treatment for the Women of Wales (FTWW) @ftww.bsky.social · 15/04/2026
Join #MEVoicesWales for our first webinar in this series, featuring the NHS Symptom Management Service from Aneurin Bevan University Health Board. 🗓 Wednesday 22 April ⏰ 12:30–13:30 💻 Online on Microsoft Teams Register: events.teams.microsoft.com/event/bd12fa... @wamesmecfs.bsky.social #MECFS
Promotional graphic for ME Voices Wales advertising Webinar 1: NHS Symptom Management Service for ME/CFS, from Aneurin Bevan University Health Board, taking place Wednesday 22 April, 12:30–13:30. Includes illustrations of people around a laptop and the WAMES and FTWW logos.
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Reposted by Fair Treatment for the Women of Wales (FTWW)
Women's Equality Network (WEN) Wales @wenwales.bsky.social · 14/04/2026
Political representation for women in Wales varies across parties. But we don't have the full picture - we’re missing key diversity data. If we don’t count it, we can’t change it. Parties must publish this data. Find out how: wenwales.org.uk/wp-content/u... @cavendishcymru.bsky.social
Graphic reads: women are underrepresented in the upcoming senedd elections. 38% are women. But there's a deeper problem, too: we're missing important diversity data.
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Fair Treatment for the Women of Wales (FTWW) @ftww.bsky.social · 09/04/2026
Friends Fundraise for FTWW by Taking On #SheUltra in Memory of Sarah! Pob lwc Ffion, Jordan, Suri, Charity and Ama! Diolch o galon for supporting us. Read more and donate via the link below. ftww.org.uk/2026/02/26/f...
ftww.org.uk
Friends Take On SheUltra in Memory of Sarah - Fair Treatment for the Women of Wales
In memory of their colleague and friend, Sarah Seddon, who passed away unexpectedly in December, Ffion, Jordan, Suri, Charity and Ama will be taking on the SheUltra Women's only Ultra marathon on the ...
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Fair Treatment for the Women of Wales (FTWW) @ftww.bsky.social · 08/04/2026
📣 Our latest FTWW newsletter is out now! 📣 From influencing policy at the Senedd to elevating lived experiences across #Wales, March has been a powerful month for action and impact. Read - and subscribe to future editions - here: mailchi.mp/d5110bd541ea... #Cymru #WomensHealth #FemaleHealth
Promotional graphic for FTWW’s latest newsletter. On the left, a smartphone mock-up shows the FTWW newsletter webpage with the FTWW logo at the top and article headings about women’s health in Wales. On the right, large green and red text reads “Read our latest newsletter,” alongside a black-and-white QR code. A faint FTWW logo appears in the background.
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Fair Treatment for the Women of Wales (FTWW) @ftww.bsky.social · 02/04/2026
Hustings: Making Menstrual Health Matter in Wales 📅 Wednesday 22 April 2026 🕖 7:00–8:30pm | Online Register now and submit your questions: www.endometriosis-uk.org/civicrm/even... #SeneddElections #Cymru
Promotional graphic for an online event titled ‘Election Hustings: Make Menstrual Health Matter in Wales.’ It notes the free virtual event hosted by Selma Chalabi on Wednesday, 22 April from 7:00pm to 8:30pm. Logos for FTWW and Endometriosis UK appear at the bottom. On the right, part of a person holding a mug and using a laptop is visible.Promotional graphic in Welsh for an online event titled ‘Hysting: Gwneud i Iechyd Mislifol Gyfri yng Nghymru.’ It advertises a free virtual event hosted by Selma Chalabi on Wednesday, 22 April 2026 from 7:00pm to 8:30pm. FTWW and Endometriosis UK logos appear at the bottom. On the right, part of a person holding a mug and using a laptop is visible
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Fair Treatment for the Women of Wales (FTWW) @ftww.bsky.social · 20/03/2026
We visited the Senedd on Wednesday with our Manifesto, 'Our Right to Health and Wellbeing in Wales'. Huge thanks to all of the MSes who spent time chatting to us and finding out more about our work. Diolch o galon @sionedplaid.bsky.social for sponsoring us! ftww.org.uk/2025/05/28/r...
ftww.org.uk
Read our Manifesto: Our Right to Health and Wellbeing in Wales - Fair Treatment for the Women of Wales
With the Senedd elections taking place in under a year, we chose this very special day, International Day of Action for Women’s Health, to launch our Manifesto for the 2026-2030 Senedd term.
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Fair Treatment for the Women of Wales (FTWW) @ftww.bsky.social · 08/03/2026
Happy #InternationalWomensDay! 💜 We’re sharing two key resources: FTWW’s manifesto on #WomensHealth in Wales, and the #WomensHealthWales Coalition’s new manifesto... #GiveToGain #IWD2026
An illustrated collage of diverse women on a faint floral background. Text reads 8 March Happy International Women's Day, and features the FTWW logo at the bottom
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Reposted by Fair Treatment for the Women of Wales (FTWW)
Claire's Campaign Cymru @clairescampaign.bsky.social · 05/03/2026
The new Women’s Health Wales Coalition manifesto launched by @ftww.bsky.social highlights something many women know too well: symptoms being dismissed and long waits for answers. For those affected by gynaecological cancers and diagnostic delays can have life-changing consequences.
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Reposted by Fair Treatment for the Women of Wales (FTWW)
Women's Institute in Wales @thewi-wales.bsky.social · 04/03/2026
Rydym yn aelod o Glymblaid Iechyd Menywod Cymru ac yn falch o gymeradwyo ei Maniffesto 2026-2030: Canolbwyntio ar y 51%. Mae'r maniffesto yn galw ar Lywodraeth nesaf Cymru i gymryd camau beiddgar i wella iechyd menywod ledled Cymru.
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Reposted by Fair Treatment for the Women of Wales (FTWW)
Women's Institute in Wales @thewi-wales.bsky.social · 04/03/2026
We are a member of the Women's Health Wales Coalition and are proud to endorse its 2026-2030 Manifesto: Focusing on the 51%. The manifesto calls on the next Welsh Government to take bold action to improve women’s health across Wales.
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Fair Treatment for the Women of Wales (FTWW) @ftww.bsky.social · 03/03/2026
The #WomensHealthWales Coalition has launched its 2026–2030 Manifesto. A powerful example of orgs uniting to improve women’s health. Together we’re calling for bold action to put the 51% at the centre of policy. Learn more: ftww.org.uk/2026/03/02/f...
ftww.org.uk
Focusing on the 51%: Women’s Health Wales Coalition Manifesto Launched - Fair Treatment for the Women of Wales
We are excited to announce the publication of the third sector Women’s Health Wales Coalition’s Manifesto for 2026-2030, Focusing on the 51%. As we approach the 2026 Senedd Elections, Focusing on the ...
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Fair Treatment for the Women of Wales (FTWW) @ftww.bsky.social · 19/02/2026
We're looking forward to joining @wcvacymru.bsky.social for their #InternationalWomensDay event, where we'll be ​delivering a presentation on how #WomensHealth issues can be barriers for women and people assigned female at birth in the workplace. More info & tickets: luma.com/qex3og7f
luma.com
Rights & Resilience: Human Rights and International Women’s Day | Hawliau a Chydnerthedd: Hawliau Dynol a Diwrnod Rhyngwladol y Menywod · Luma
PLEASE SCROLL FOR ENGLISH Hawliau dynol Dewch i ddweud eich dweud ar ddyfodol Consortiwm Hawliau Dynol Cymru 10:30 AM -12:00 PM Rydym ni’n gwahodd unrhyw…
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Wellcome Trust @wellcometrust.bsky.social · 29/01/2026
Many Black-led initiatives in the UK that support the careers of Black researchers provide mentoring, safe spaces, networks and advocacy. But they're often underfunded. That's why we’re launching a new funding programme in partnership with Do it Now Now to help strengthen these initiatives. [1/3]
Faith Uwadiae, Ecosystems Manager at Wellcome, says: "We're supporting Black-led initiatives that expand opportunities for Black researchers in an intentional and thoughtful way."
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Reposted by Fair Treatment for the Women of Wales (FTWW)
Mair Rigby @mairsrambles.bsky.social · 19/02/2026
Super exciting funded PhD opportunity with Women's Health Research Wales www.findaphd.com/phds/project...
findaphd.com
Reducing health inequity for women living in rural communities through social and community activation at Cardiff University on FindAPhD.com
PhD Project - Reducing health inequity for women living in rural communities through social and community activation at Cardiff University, listed on FindAPhD.com
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Fair Treatment for the Women of Wales (FTWW) @ftww.bsky.social · 19/02/2026
#RamadanMubarak to Muslims across Wales and beyond! Sending warm wishes to disabled and chronically ill people observing in ways that work for them. Our Ramadan resources were co-produced with Naheed, Azra, and FTWW volunteer Harriet - diolch, pawb! Find them here: ftww.org.uk/2025/03/03/r...
ftww.org.uk
Ramadan Resources - Fair Treatment for the Women of Wales
We would like to wish Muslims across Wales and beyond Ramadam Mubarak (a blessed Ramadan). Below are some resources which we hope will signpost information, advice and support, not only for our Muslim...
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Fair Treatment for the Women of Wales (FTWW) @ftww.bsky.social · 13/02/2026
FTWW is a tiny but mighty charity with just 4 staff. Want to stay updated on our work in women’s health across Wales? Catch our latest newsletter and sign up for future editions: mailchi.mp/a708fc03acd9... Please share! #WelshCharitiesWeek #WythnosElusennauCymru
Graphic with a cream background and bold black text reading ‘Don’t miss a thing!’ Underneath is a green button that says ‘Sign up to our newsletter.’ Below, an illustration of a laptop displays the FTWW website homepage, showing a newsletter signup box over a faint Welsh dragon background. The bottom of the graphic features an angled block of rust‑red colour.
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Fair Treatment for the Women of Wales (FTWW) @ftww.bsky.social · 12/02/2026
We are delighted to share that Liz Hinchly is now our Chair, having been Joint Vice-Chair alongside Karen Lo, since June 2024. Former Acting Chair, Willow Holloway, now joins Karen as Joint Vice-Chair. #WelshCharitiesWeek
Liz, a white woman with long light-brown hair is standing indoors against a dark tiled wall, wearing a patterned top, a black jacket, and a lanyard with an orange 'Cymraeg' speech bubble on it. In the top-right corner is the FTWW logo. Text on the lower left of the image reads: “Liz Hinchly” and “FTWW Chair.”
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Fair Treatment for the Women of Wales (FTWW) @ftww.bsky.social · 04/02/2026
2 years after the Senedd’s Unheard report, action on gynaecological cancer in Wales is still too slow. We’re calling for urgent progress. On #WorldCancerDay, we remember Claire and Judith. Read & share the follow-up report in their honour. senedd.wales/senedd-now/n... #WomensHealthWales
senedd.wales
Still unheard: Gynaecological Cancer improvements fall short
Women are still being let down, as the Welsh Government fails to deliver on a number of recommendations submitted two years ago.
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Fair Treatment for the Women of Wales (FTWW) @ftww.bsky.social · 09/01/2026
Huge news for #WomensHealth in #Wales! In case you missed it, last month saw the official launch of the #WomensHealthResearch Wales Centre. We were delighted to attend - our Founder, Debbie, spoke of the importance of #Coproduction. Find out more: healthandcareresearchwales.org/about/news/n...
healthandcareresearchwales.org
New women's health research centre to help tackle historic gender health gap
Women's health research centre launched
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Fair Treatment for the Women of Wales (FTWW) @ftww.bsky.social · 12/12/2025
Welsh secondary schools will soon get new resources on #MenstrualHealth, #endometriosis, pelvic health & #menopause - co-produced with young people! A big step for awareness & support. Learn more: www.bbc.co.uk/cymrufyw/ert... + www.bbc.co.uk/news/article... #MenstrualWellbeing #Cymru #Wales
A collage featuring the FTWW logo at the top left, several headlines and images related to women’s health education in Wales. One headline reads “School taught me about bank accounts but not breast exams.” Another headline in Welsh says “Ysgolion Cymru i dderbyn adnoddau i ddysgu am gyflyrau iechyd menywod” (Schools in Wales to receive resources to learn about women’s health conditions). There are leaflets shown with illustrations and text about menstrual health, including phrases like “What’s menstrual health?” and “Understanding periods.” Additional elements include a classroom setting with students seated at desks, and the BBC News Cymru Fyw logo at the bottom right. The background features a bold, abstract pattern with black lines and pink accents.
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Fair Treatment for the Women of Wales (FTWW) @ftww.bsky.social · 01/12/2025
We're delighted to have been able to contribute to the coproduction of this vital manifesto to advance the rights of disabled people here in Wales. Please do check it out 👇 #DWManifesto
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Fair Treatment for the Women of Wales (FTWW) @ftww.bsky.social · 25/11/2025
FTWW Volunteer and Cardiff Uni student, Harriet, is looking for participants to take part in her #endometriosis research. Is this you? If so, please email Harriet at: martin-jonesHC@cardiff.ac.uk. Please share! #HealthResearch #Wales #Cymru
A recruitment poster with a bright yellow and orange background announces: “Participants Needed” for a research project on the experiences of endometriosis patients in emergency care settings in Wales. Below, a bold orange banner asks: “Do you meet the following criteria?” followed by a bullet list: over 18, reside in Wales, have a diagnosis or suspected endometriosis and are seeking a diagnosis, and have accessed emergency care such as out-of-hours GP, Welsh Ambulance Services, A&E, emergency gynaecology units, or interactions with 999/111 operators. A yellow box provides contact details: martin-joneshc@cardiff.ac.uk for more information. At the bottom, text notes the research is for a dissertation in the MSc Social & Public Policy program at Cardiff University. Illustrations show a healthcare professional with a stethoscope and a seated person holding their abdomen.
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Reposted by Fair Treatment for the Women of Wales (FTWW)
wamesmecfs.bsky.social @wamesmecfs.bsky.social · 25/11/2025
�� ME/CFS Self-Management – Join the Conversation! �� �� Fri 28 Nov  �� 11:00 AM – 12:30 PM  �� Online (Zoom) ME Voices Wales invites you to help us explore: ✔ Practical strategies ✔ NHS support & services ✔ Via Polls &/or discussion groups �� Register now! tinyurl.com/bwwzfwrz
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Reposted by Fair Treatment for the Women of Wales (FTWW)
Women's Equality Network (WEN) Wales @wenwales.bsky.social · 20/11/2025
We’ve identified six key areas where action is urgently needed. Wales can be fairer and more equal if gender equality is prioritised. 📄 Read our manifesto: wenwales.org.uk/wp-content/u...
wenwales.org.uk
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Women's Equality Network (WEN) Wales @wenwales.bsky.social · 20/11/2025
Women in Wales are still facing inequalities. These can, and must, be tackled. Our Gender Network of 80 orgs, activists and academics is urging all political parties to put gender equality at the heart of the 2026 Senedd election...
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Fair Treatment for the Women of Wales (FTWW) @ftww.bsky.social · 18/11/2025
Join us for Managing Uncertainty, a free webinar with Dr Robyn Jackowich. Explore strategies for coping with female health issues and the uncertainty they can bring. 📅 20 Nov, 7pm | Online via Teams Become a member to access - please answer all joining questions: www.facebook.com/groups/ftww....
Graphic promoting an online webinar titled “Managing Uncertainty.” The text reads:
“Dr Robyn Jackowich is a Lecturer in the School of Psychology at Cardiff University, with a background in clinical and health psychology, with a particular focus on menstrual disorders, pelvic pain, and sexual wellbeing.” Event details: “Online via Teams, November 20th, 7pm.”
Design elements include green abstract squiggles and the FTWW logo at the bottom, which shows three stylized figures holding hands above green grass roots, next to the bold letters “FTWW.” On the left side is a circular photo of Robyn, a white woman who is wearing a light-colored collared shirt under a beige sweater, with her hair in a ponytail.
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Fair Treatment for the Women of Wales (FTWW) @ftww.bsky.social · 30/10/2025
October is Menopause Awareness Month! 🌸 FTWW has been busy, joining Cysters for Marginalised and Menopausal in Cardiff, hosting a webinar for FTWW members, and our champion, Lisa, shared insights on BBC Radio Wales. Read more: ftww.org.uk/2025/10/29/m... #MenopauseAwarenessMonth #FTWW
ftww.org.uk
Menopause Awareness Month: Empowering Conversations and Support - Fair Treatment for the Women of Wales
October is menopause awareness month and – as one of FTWW’s key campaign areas – we have been very busy attending and hosting events and shining a spotlight on life with menopause. We were delighted t...
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Reposted by Fair Treatment for the Women of Wales (FTWW)
Women's Institute in Wales @thewi-wales.bsky.social · 15/10/2025
Byddwn yn cynnal dau ddigwyddiad, a noddir gan @joycewatson.org.uk yn y Senedd ar 17 Tachwedd: Digwyddiad i randdeiliaid ar y thema niwed ar-lein: 11yb - 1yp Gwylnos yng Ngolau Canhwyllau: 6yh - 7.30yh Cofrestrwch yma: www.thewi.org.uk/wi-in-wales/...
thewi.org.uk
Events at the Senedd to mark the 16 Days of Activism against Gender-Based Violence
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Reposted by Fair Treatment for the Women of Wales (FTWW)
Women's Institute in Wales @thewi-wales.bsky.social · 15/10/2025
We will be holding 2 events, sponsored by @joycewatson.org.uk at the Senedd on Monday 17 November to mark the 16 Days of Activism Against Gender-Based Violence: Stakeholder event discussing online harm: 11am - 1pm Candlelight vigil: 6pm - 7.30pm Register here: www.thewi.org.uk/wi-in-wales/...
thewi.org.uk
Events at the Senedd to mark the 16 Days of Activism against Gender-Based Violence
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Fair Treatment for the Women of Wales (FTWW) @ftww.bsky.social · 09/10/2025
We're really looking forward to attending Cysters' much-needed 'Marginalised and Menopausal – Reclaiming #Menopause in Racialized Bodies' event on Saturday 18th October in Cardiff. Are you attending? Do come and say hello if so! More information and ticket link here: ftww.org.uk/event/cyster...
ftww.org.uk
Cysters: Marginalised and Menopausal - Reclaiming Menopause in Racialized Bodies - Fair Treatment for the Women of Wales
We are delighted to be attending Marginalised & Menopausal, an intersectional initiative centering the experiences of South Asian individuals navigating menopause, all with a healthy dash of Samosay, ...
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Fair Treatment for the Women of Wales (FTWW) @ftww.bsky.social · 02/10/2025
Adenomyosis can have a huge impact on pregnancy, yet remains underdiagnosed and misunderstood. FTWW member Lana shared her story with BBC Wales, and we added our voice to the conversation. Read the full article here: www.bbc.co.uk/news/article... #Adenomyosis #WomensHealth #FTWW #BBCWales
bbc.co.uk
Adenomyosis: 'The pain was so agonizing, I walked with a stick'
Lana Boocock said her symptoms were dismissed as irritable bowel syndrome or
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Fair Treatment for the Women of Wales (FTWW) @ftww.bsky.social · 25/09/2025
#PolycysticOvarianSyndrome (PCOS) Awareness Month #PCOS affects 1 in 8 women and people AFAB in the UK - many go undiagnosed. FTWW is calling for better awareness, joined-up care, and investment in research to improve lives in Wales. Learn more and explore support: ftww.org.uk/health-issues/pcos
To the left of a photo of Rachel, a white woman with long blonde hair, text reads: "Meet Rachel, FTWW’s PCOS Volunteer Champion." Followed by a quote from Rachel: “There are still a lot of assumptions around the associated symptoms of PCOS, for example weight gain or obesity, acne, excessive hair growth to name a few. However, for myself and I imagine many, many others, these symptoms were not applicable in my case, and I believe this stereotype of linking PCOS to these more 'common' symptoms led to the long delays in my diagnosis. More needs to be done to bring in a more inclusive approach to testing and diagnosis of PCOS and not basing diagnosis off just symptoms alone.”Text reads: "Our Work in Wales: We raise awareness through events, media, training and fundraising. We engage directly with policy makers and researchers - We ensured PCOS featured in the Women’s Health Wales Coalition’s report to the Welsh Government ahead of the publication of the NHS Wales 10-year Women’s Health Plan. We're also working with the Verity PCOS charity and Cardiff University on a James Lind Alliance Research Priority-Setting Partnership which aims to identify the most pressing issues, uncertainties, and areas where research is needed for PCOS patients across the UK, including Wales."A graphic featuring an illustration of diverse individuals gathered together, with the title “Polycystic Ovary Syndrome: A Call to Action.” Above the illustration, text reads:
"On behalf of FTWW, Volunteer Zoe recently attended the UK All-Party Parliamentary Group (APPG) on PCOS’s launch of their report at the Houses of Parliament.
The launch brought together parliamentarians, clinicians, patient advocates, charities, NHS leaders and policymakers to highlight the urgent need for reform in PCOS diagnosis, treatment and long-term care. The report sets out ten clear recommendations to reduce diagnostic delays, integrate care, expand mental health support and strengthen clinical training and public awareness.
Diolch o galon, Zoe!"Text reads: "Find out more about PCOS and what we’re calling for on our website: 
ftww.org.uk/health-issues/pcos" Below it is a screenshot of the PCOS page on the FTWW website alongside the FTWW logo.
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Fair Treatment for the Women of Wales (FTWW) @ftww.bsky.social · 11/09/2025
Has #IUD #PainRelief improved since 2021? FTWW Champion, Lucy, is gathering real-life experiences - if you’ve experienced this, please take the survey & share! 🔗 www.surveymonkey.com/r/HXPJ8DR Looking for info & support? Check out our website 🔗 ftww.org.uk/health-issue... #ReproductiveHealth
A green background frames a white notepad-style paper in the center. At the top, there's a photo of a pink IUD next to Scrabble tiles spelling "IUD." Below, bold text asks: "Has IUD pain relief improved since 2021?" with a red button that reads "TAKE THE SURVEY." At the bottom is the FTWW logo. Dried flowers and two sparkles decorate the left side of the image.
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Fair Treatment for the Women of Wales (FTWW) @ftww.bsky.social · 09/09/2025
Applications for our Volunteer & Community Coordinator role have now closed. We received over 150 applications! So shortlisting is taking a little longer than expected, as we review every application thoroughly. We aim to reply to all applicants by the end of September - diolch for your patience!
Graphic announcing a recruitment update for the role of "Volunteer & Community Coordinator." The background features abstract pastel illustrations of people, with wavy green and red lines on either side, and the FTWW logo at the bottom.
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Fair Treatment for the Women of Wales (FTWW) @ftww.bsky.social · 03/09/2025
We're delighted to share details of an upcoming #WomensHealth Symposium taking place at @bangoruniversity.bsky.social! If you would like to attend, please contact Dr. Sophie Harrison by emailing s.harrison@bangor.ac.uk to register your space. #HealthResearch #GenderHealthGap
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Fair Treatment for the Women of Wales (FTWW) @ftww.bsky.social · 22/08/2025
🎙️ We spoke to BBC Radio #Wales about why menstrual leave matters for those with #endometriosis & #adenomyosis - and how existing legislation should already support it but often fails. FTWW backs the petition on this and urges MPs to act. Listen + info: ftww.org.uk/2025/08/22/t... #MenstrualHealth
A woman with red hair sits at a desk, speaking on the phone while looking at a computer monitor. Above her is the FTWW logo showing three figures holding hands over grass roots. Below the desk, a banner reads 'The Menstrual Leave Petition: Our View.' The bottom of the image displays the URL: ftww.org.uk/news. The background features abstract green and orange shapes.
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Fair Treatment for the Women of Wales (FTWW) @ftww.bsky.social · 19/08/2025
Help shape the future of #PCOS research! We’re working with patients & experts to identify the top 10 priorities for #PCOSResearch in the UK. 🔗 Take the Survey: www.verity-pcos.org.uk/jlapcos.html 📣 Please help us get as many voices heard as possible and share this post #JLAPCOS
A purple infographic titled “Can you help us shortlist the top PCOS research topics?” encourages participation in a survey. It emphasises the importance of lived experience in shaping research priorities. A checklist shows progress: “Form steering group,” “Launch 1st survey,” “Sort 1000+ responses,” and “Check against evidence” are ticked off. “Launch 2nd survey” is highlighted, followed by “Shortlist responses,” “Prioritisation workshop,” and “Publish Top 10.” A QR code labeled “Scan me” and a clock icon with “10 min” and “Take the survey” invite action. The hashtag #JLAPCOS and logos of supporting organisations, including Verity, Cardiff University, Cysters, FTWW, and PCOS Vitality, appear at the bottom.
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Fair Treatment for the Women of Wales (FTWW) @ftww.bsky.social · 18/08/2025
FTWW had an incredible July attending events focused on women’s health & wellbeing across Wales — from health boards and the Senedd, to the WOMB Festival 🌸 Catch the full recap here: ftww.org.uk/2025/07/29/j... #FTWW #WomensHealth #WalesEvents
ftww.org.uk
What we’ve been up to this month… - Fair Treatment for the Women of Wales
We’ve had a great month of attending a wide range of events including Cardiff and Vale University Health Board’s Sexual and Reproductive Health and Community event, the Senedd Cross-Party Group on Wom...
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Fair Treatment for the Women of Wales (FTWW) @ftww.bsky.social · 18/08/2025
In case you missed it... 🚨 We’re Hiring! 🚨 Full details in the post and link - feel free to send on to anyone you know who might be interested! #Jobs #Wales
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Fair Treatment for the Women of Wales (FTWW) @ftww.bsky.social · 13/08/2025
We at FTWW are so sorry to hear of the death of Hefin David. Our deepest condolences to his family, friends, and Senedd Colleagues.
All of us at FTWW are incredibly sad to hear of the death of Hefin David MS. 

In his work as the Long Covid Cross Party Group Chair and as Member of the Autism Cross Party Group, Hefin was kind, compassionate, and a champion, regularly amplifying lived experiences to his colleagues in the Senedd. 
 
Our thoughts go out to Hefin’s family, friends, and Senedd colleagues. 
He will be missed.
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Fair Treatment for the Women of Wales (FTWW) @ftww.bsky.social · 08/08/2025
Today is #SevereMEDay, where we remember those we have died from severe ME and to advocate for better understanding, research, and support for those living with this debilitating condition. Our thoughts are with them, and their loved ones left behind.
Severe ME Awareness Week 
Remembering those we have lost, and sharing glimmers of hope for the future...Living with Severe ME
About 25% of Myalgic Encephalomyelitis (ME)  patients will be severely disabled.
They might be:
housebound and bedbound 24/7
Unable to sit up in bed much or at all
Unable to tolerate light or sounds, and have to stay in dark rooms with eye masks and ear protection
In need of 24 hour care
Unable to eat or drink, and need to be tube-fedLouise's story: “I am bedridden in a dark room for weeks on end. It's not something one can easily describe, but I do appreciate when people try to understand.
Remember that ME is not tiredness - nothing can portray the complete annihilation of energy we experience and the effect that has on daily life. Last week I was physically struggling to swallow food. Many struggle with basic tasks like brushing teeth. I can't engage in my usual hobbies.
But, there is always hope, and simple understanding and accommodations 
can make all the difference in the world.” Next to the story is a photo of Louise, a white person with shaved hair, smiling gently to the camera.Speaking of hope, Decode ME’s Initial DNA study results have been published. Intial findings show:
Your genes contribute to your chances of developing ME/CFS.
People with an ME/CFS diagnosis have significant genetic differences in their DNA compared to the general population.
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Fair Treatment for the Women of Wales (FTWW) @ftww.bsky.social · 05/08/2025
📣 Please spread the word! Volunteer & Community Coordinator: 🏡 Home-based (Wales) 🕒 Full-time or part-time/job share 💷 £30,000 + £312/year WFH payment 📅 Funded to 31 Mar 2027 (possible extension) 💜 Passionate about community? Apply now! ftww.org.uk/job/voluntee... #Hiring #WalesJobs #Cymru #Jobs
raphic featuring diverse illustrated women, with the text 'WE ARE HIRING! Volunteer and Community Coordinator' above the FTWW logo and QR code.
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Fair Treatment for the Women of Wales (FTWW) @ftww.bsky.social · 01/08/2025
🗣️ Have your say! #RCGPCymruWales wants to hear from you about your experiences accessing your GP. 💬 Share your views and help shape future services. 👥 You can also express interest in joining the RCGP #Cymru #Wales Patient Forum! 📋 Take the survey here: forms.office.com/e/EdvU50bgkC #PrimaryCare
RCGP Cymru Wales survey poster with a QR code, healthcare images, and the text 'Have your say!' encouraging feedback on GP access.
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Fair Treatment for the Women of Wales (FTWW) @ftww.bsky.social · 31/07/2025
💪 #DisabilityPrideMonth isn’t just a celebration, it’s a protest! Like so many of the health issues we campaign on, advocacy is needed all year round. 👉 Read our latest blog to find out how we’re fighting for better health and rights for all: ftww.org.uk/2025/07/29/d... #WomensHealth #Disability
"A smartphone displays a blog post titled 'Disability Pride & Women's Health' by FTWW. The background features the disability pride flag. To the right of the phone, bold text reads 'Disability Pride Month: Read our blog.' In the bottom right corner is the FTWW logo.
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Fair Treatment for the Women of Wales (FTWW) @ftww.bsky.social · 30/07/2025
Our monthly newsletter is out tomorrow! We'll be sharing updates on what we've been up to this month, media coverage, exciting #WomensHealth research updates and opportunities, and more! Read last month's edition (+ previous issues) and subscribe here: mailchi.mp/d0c8ff56c9aa...
A screenshot of the bilingual newsletter from FTWW featuring updates on Volunteers' Week, Everywoman Festival, PMDD info for NHS Wales, and more. Includes a photo of volunteers holding signs, a thank-you message, and a QR code with the text 'Read all about it'
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Fair Treatment for the Women of Wales (FTWW) @ftww.bsky.social · 21/07/2025
We have another opportunity to help shape research on decision making about stopping #HRT, by completing this very short survey: cardiffunipsych.eu.qualtrics.com/jfe/form/SV_... Please feel free to share with anyone you know who may be interested. Diolch! #Menopause
A vibrant announcement with a watercolor background invites individuals to share their experiences with hormone replacement therapy (HRT) for menopause. It asks if they have stopped, considered stopping, or decided to continue HRT, and encourages participation in shaping healthcare research in Wales. The deadline to respond is August 18th. Logos of Cardiff University and FTWW appear in the bottom left corner, with an illustration of three people on the right.
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Fair Treatment for the Women of Wales (FTWW) @ftww.bsky.social · 17/07/2025
July is #FibroidsAwarenessMonth - Meet Carina, our FTWW Fibroids Champion! Find resources and information here: ftww.org.uk/health-issue...
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