iiinova — where your digital self keeps evolving

Reposted by Kasia Patynowska

MarieCurieEOLC @mariecurieeolc.bsky.social · 03/06/2025

We’re delighted to announce that our Research Grants Scheme will be funded in partnership and is now open to applications. Leeds Hospitals Charity and Royal Brompton & Harefield Hospitals Charity will be part funding the scheme with dedicated funding pots. Applications close 21 July

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Kasia Patynowska @kpatynowska.bsky.social · 09/06/2025

#Researcher during a day, #trailrunner in the evening! 👌🏻😃 What a fulfilling and enriching day at #UlsterPhDFest with a chance to present some reflections from undertaking #realistreview. Followed up by a challenging and wonderful #trailrunning in #MourneMountains as part of the #Hill&Dale series!

A woman stands presenting in front of a projected slide titled “Undertaking a Realist Review as a Novice Realist Researcher: Reflections from a study on Peer Support among Healthcare Assistants delivering Hospice Care at Home.” The slide includes her name, Kasia Patynowska, her role as a Doctoral Research Fellow at Ulster University and Research Nurse at Marie Curie, and lists her supervisors. She gestures with her hands while speaking, in a classroom setting with a whiteboard and ceiling tiles visible.

A woman (Kasia Patynowska) is trail running through a grassy, mountainous landscape, smiling broadly and making a joyful hand gesture with both arms raised. She wears a green running outfit, a hydration vest, and a race bib numbered 232. Rolling hills and rugged terrain are visible in the background under a clear sky.

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Reposted by Kasia Patynowska

Anne Finucane @annefinucane.bsky.social · 29/05/2025

My Grief My Way: delighted to present a poster on our bereavement support resource at #eapc2025. Our website content is free to use by all, with further material coming soon! mygriefmyway.co.uk Funded by @mariecurieuk.bsky.social

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Kasia Patynowska @kpatynowska.bsky.social · 22/04/2025

I sought eye contact and smiled at EVERY person in the park yesterday on my run. Just a big kind smile even during speed intervals! And 99% smiled back, some appeared surprised they were not 'invisible' and looked genuinely happy to smile back! #running #sharehapinness

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Kasia Patynowska @kpatynowska.bsky.social · 08/04/2025

Indeed! As a slow runner I recognise some of these self-limiting practices which... I decided to overcome last year! I even have a coach now! Me - 5hrs marathoner😅 Working with a coach helped me train better, be braver and trust my abilities more. I'm getting stronger and faster too! #running

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Kasia Patynowska @kpatynowska.bsky.social · 08/04/2025

Very few of us have access to the track. I do my speedwork in a local park with the workouts I created in Garmin Connect and uploaded to my watch. I use the track on holidays in Poland (there is a free access one next to my sister's home) but I don't really enjoy running on track - bit boring! 😜

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Kasia Patynowska @kpatynowska.bsky.social · 05/04/2025

I thought we had a bit more time. Sadly, he's no longer with us. He was a wonderful companion for over 13y. He travelled Europe, was with us when children were born and survived when we added crazy Vizsla to our family. #Grief when loosing a #pet is horrible and took me by surprise💔

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Kasia Patynowska @kpatynowska.bsky.social · 22/03/2025

Not available to stream in UK😭 The trailer looks fab!

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Kasia Patynowska @kpatynowska.bsky.social · 21/03/2025

As you can see this #PhD Researcher is very enthusiastic about her project!! 🤣 Thanks to @pccongress.bsky.social for introducing 'Work in Progress' category this year! @ulsteruni.bsky.social @traceymcconnell.bsky.social #academicsky #palliativecare #EOL #PCC2025

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Kasia Patynowska @kpatynowska.bsky.social · 21/03/2025

Looking forward to this plenary! It's good to reflect and talk about the #assisteddying irrespective of our position about the issue. @pccongress.bsky.social #PCC2025

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Kasia Patynowska @kpatynowska.bsky.social · 20/03/2025

Nursing Times award for Clinical Research Nursing finally arrived in Belfast! Great award for a wonderful team of Research Nurses at Marie Curie! Delighted to be part of it! Thanks @sarah-stan.bsky.social for bring it over for #PCC2025! @nursingtimes.bsky.social @mariecurieeolc.bsky.social

A woman takes a selfie in Belfast, holding a Nursing Times Award 2024 for Clinical Research Nursing, which is inscribed with "Marie Curie Research Nurses in hospices". She wears a navy quilted jacket and stands beside the iconic "Big Fish" mosaic. The Albert Memorial Clock and a modern glass building are visible in the background, with the setting sun casting a warm glow.

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Kasia Patynowska @kpatynowska.bsky.social · 11/03/2025

I forgot to add 'for sharing' after thanking John and Rachel! 😱 Thank you @bprainsack.bsky.social for writing this lovely piece!

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Reposted by Kasia Patynowska

Health and Social Care Workforce Research Unit @hscwru.bsky.social · 07/03/2025

Coming up in the #Homelessness series at King's (all online; all bookable now): Palliative and end of life care and homelessness Caroline Shulman; Briony Hudson. 25 March 2025 10:00 to 11:00 www.kcl.ac.uk/events/palli...

kcl.ac.uk

Palliative and end of life care and homelessness

Caroline Shulman, UCL; Briony Hudson, UCL

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Kasia Patynowska @kpatynowska.bsky.social · 07/03/2025

This paper is a helpful reminder of importance of consistent and scheduled #writing! I've recently started to write everyday but the paper offers tips how to make it more structured and effective🤩 Thanks @johnmacartney.bsky.social and Rachel Perry! #academicsky nilq.qub.ac.uk/index.php/ni...

nilq.qub.ac.uk

Northern Ireland Legal Quarterly

The Northern Ireland Legal Quarterly is a legal research journal published quarterly by the School of Law at Queen's University Belfast.

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Reposted by Kasia Patynowska

Hannah @policyhannah.bsky.social · 21/02/2025

This is an important new report from @cancerresearchuk.org. In more deprived areas there are higher levels of cancer incidence, higher prevalence of cancer risk factors, less engagement with screening programmes, and worse diagnosis and survival outcomes. www.cancerresearchuk.org/sites/defaul...

Deprivation inequalities across the cancer pathway. Compared to least deprived areas, people living in the most deprived areas have a higher proportion of adults who smoke (22% vs 6%), higher proportion of adults who are obese (36% vs 19%), lower proportion participating in bowel screening (57% vs 76%), higher proportion diagnosed via emergency route (26% vs 21%), higher proportion of stage 4 diagnoses (31% vs 24%), higher incidence rate (685 per 100k vs 570 per 100k), lower 5 year survival rate (52% vs 70%), and higher mortality rate (337 per 100k vs 217 per 100k).

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Kasia Patynowska @kpatynowska.bsky.social · 20/02/2025

Thrilled to showcase this stunning commissioned painting, translating my research into visual art, at the @mariecurieeolc.bsky.social conference last week! It highlights vital role of Healthcare Assistants in delivering hospice care at home. mariecurie.ivent-pro.com/events/resea... #MCResearch2025

A vibrant, expressive painting depicting hospice care at home. The artwork features multiple healthcare assistants in purple uniforms tending to a patient lying in bed under a golden-yellow blanket. A black cat lies across the bed. The painting conveys warmth and care, with a rich colour palette of deep blues, yellows, and reds. Surrounding the central scene, carers are shown providing comfort, administering medication, documenting notes, and communicating. A sense of movement and emotion is captured in the layered composition, highlighting the essential role of healthcare assistants in end-of-life care.

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Kasia Patynowska @kpatynowska.bsky.social · 20/02/2025

Are there any projects combining my two passions—running and palliative care? E.g. research into running for coping with dying, bereavement, etc. Would love to learn more! #running #trailrunning #palliativecare #EOLcare #Health #palliative #publichealth #hospice #AcademicSky #hospicesky

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Kasia Patynowska @kpatynowska.bsky.social · 20/02/2025

Huge, old, never-ending forests! I currently live in Northern Ireland and all the forests near Belfast can be run around within 1hr. So much tree coverage has been lost here over recent centuries😭 In Poland forests are much bigger and you can run for hours without doing any loops.

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Kasia Patynowska @kpatynowska.bsky.social · 19/02/2025

After few days #running in the snow it's a shock coming back to a grey Belfast. I miss the snow and polish forests! #trailrunning

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Reposted by Kasia Patynowska

MarieCurieEOLC @mariecurieeolc.bsky.social · 13/02/2025

We’re excited to announce the launch of new research priorities for palliative and end of life care! These have been created in a project with the JLA and other partner organisations, including co-funders the ESRC and @mndassoc.bsky.social, and guided by people affected by a life limiting illness.

The top 10 new priorities for palliative and end of life care research are:

How do people with dementia experience end of life? How can palliative and end of life care better meet their needs and those of their carers, friends and families?
How can NHS, social services and charities work more collaboratively to provide joined-up care that better meets the needs of people with a serious life-limiting illness and their carers, friends and families?
What kinds of palliative and end of life care and support need to be in place to enable people to die well at home? What skills do staff need? What helps or hinders the delivery of care at home?
What are the best ways to provide personalised palliative and end of life care that meets all the physical, mental, practical, social and spiritual needs of a person with a serious life-limiting illness?
How can palliative and end of life care better meet the complex needs of people with multiple health conditions?
How can communication and care co-ordination be improved across the teams of health and social care professionals caring for people with any serious life-limiting illness?
What skills, training and information do carers, friends and family members need to be able to care for someone who is dying at home (e.g. giving medicines safely by injection, managing incontinence, moving people)? What is the impact (pros and cons) of upskilling the people giving care?
How can the quality of palliative and end of life care in hospital be improved? What helps or hinders improvement?
What are the best ways to provide palliative and end of life care, support and advice at all hours (24/7 or out of hours)?
How can palliative and end of life care better meet the needs of people who live alone, or are socially isolated?

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Kasia Patynowska @kpatynowska.bsky.social · 11/02/2025

The new priority setting work for palliative and end of life care research led by @mariecurieuk.bsky.social @jameslindalliance.bsky.social

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Reposted by Kasia Patynowska

WHO @who.int · 11/02/2025

It is International Day of Women and Girls in Science. Gagandeep Kang’s research on enteric infections has contributed to the rotavirus vaccine rollout in #India, protecting millions of children and shaping a healthier future. for all. 🔬 #WomenInScience #WomenInSTEM

When you have women leaders in science, they think about problems differently.

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Reposted by Kasia Patynowska

Sabine Best @sabinebest.bsky.social · 11/02/2025

Such interesting insights from the session on the NI School Bereavement Programme on embedding grief education on the school curriculum #MCResearch2025 - young people are so much more open to talk about grief than adults seem to be www.mariecurie.org.uk/research-and...

mariecurie.org.uk

Schools Bereavement Programme

Marie Curie leads a program in Northern Ireland providing bereavement support for children and youth in educational settings.

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Reposted by Kasia Patynowska

MarieCurieEOLC @mariecurieeolc.bsky.social · 04/02/2025

Join our Research into Practice Conference 2025, 11 - 14 February Hey BlueSky! If you haven't yet registered for our free, online conference, do so now mariecurie.ivent-pro.com/events/resea... We'll be joined by prominent presenters across palliative and end of life care research.

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Kasia Patynowska @kpatynowska.bsky.social · 29/01/2025

"I had to come back three times. I believed that it was possible" Watching Jasmin Paris finishing Barkley marathons last year always brings tears to my eyes. (100miles and 60,000ft elevation gain) What an incredible achievement! #inspiration #hero #running #trailrunning youtu.be/YLX5b2qYlaY?...

youtu.be

Jasmin Paris Interview | First Woman to Finish the Barkley Marathons

YouTube video by Singletrack

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Reposted by Kasia Patynowska

Auschwitz Memorial @auschwitzmemorial.bsky.social · 27/01/2025

Auschwitz was at the end of a long process. It did not start from gas chambers. This hatred was gradually developed by humans. From ideas, words, stereotypes & prejudice through legal exclusion, dehumanization & escalating violence... to systematic and industrial murder. Auschwitz took time.

A bird's-eye view of a former Auschwitz II-Birkenau camp showing a wide dirt pathway flanked by parallel rows of barbed-wire fences. Groups of visitors walk along the path, surrounded by the remnants of brick structures and barracks, now reduced to foundations. Green grass contrasts with the somber history of the site, as the path leads toward a guard tower in the distance.

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Reposted by Kasia Patynowska

The Health Foundation @healthfoundation.bsky.social · 28/01/2025

🧵 Insightful report from @employmentstudies.bsky.social for the Commission for #HealthierWorkingLives, which we support, on workplace health and disability in Europe. The report finds that, compared to 14 other European countries, the UK is one of the worst performers 👇

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Kasia Patynowska @kpatynowska.bsky.social · 26/01/2025

Jasmin Paris is truly an incredible inspiration! Her grit, endurance, and determination are absolutely legendary. She's my hero!

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Reposted by Kasia Patynowska

Ann-Marie Towers @a-mtowers.bsky.social · 24/01/2025

Want a career in applied health & social care research? Come join us @hscwru.bsky.social @annetteboaz.bsky.social and apply for this exciting Research Associate role! Project focused on #homecare #socialcare #workforce. www.kcl.ac.uk/jobs/103567-...

kcl.ac.uk

Research Associate

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Kasia Patynowska @kpatynowska.bsky.social · 23/01/2025

How amazing to have you all coming to Belfast!🥳 I'm delighted to be attending and presenting some of my work relating to healthcare assistants providing hospice care at home. #palliativecare #hapc

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Kasia Patynowska @kpatynowska.bsky.social · 23/01/2025

Usually 30min for me too but varies. That's why I prefer marathon than a 5k race! 😅

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Kasia Patynowska @kpatynowska.bsky.social · 23/01/2025

Beautiful writing... one to read again, slowly. 'Consolation, of course, is never permanent, always needs to be reinforced and reimagined if it is to keep sustaining and centering us, for in each of us there is a pendulum that keeps swinging between hope and despair.' #palliativecare

themarginalian.org

On Consolation: Notes on Our Search for Meaning and the Antidote to Resignation

The thing about life is that it happens, that we can never unhappen it. Even forgiveness, for all its elemental power, can never bend the arrow of time, can only ever salve the hole it makes in the…

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Kasia Patynowska @kpatynowska.bsky.social · 22/01/2025

I used to wash the mud off after the runs... now I just let them dry and put them back on😅🙈 It takes few strides in the wet Irish winter for them to be caked all over again!

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Kasia Patynowska @kpatynowska.bsky.social · 22/01/2025

I needed to get to the city centre to get a book from a library. After quick calculations it turned out the quickest way was to run there and back. 14.5km done but I got some weird looks from a librarian! 😅 Now, back to my research governance application... #running #balance #busyschedule

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Kasia Patynowska @kpatynowska.bsky.social · 21/01/2025

After passing my first PhD examinations at Ulster University, I needed some #trailtherapy with my trail running group!! 😅😅😅 Muddy forest in the dark, hilly trails, just focussing on next step ahead... feeling #relaxed and #happy and #fulfilled!!! ##trailrunning #running

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Kasia Patynowska @kpatynowska.bsky.social · 19/01/2025

Never tried toe socks for running but when I I tried them for walking my toes felt too warm and too cramped in shoes.

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Kasia Patynowska @kpatynowska.bsky.social · 19/01/2025

Trail tour with TrailRunNI in Mournes today! Followed by hot coffee and homemade cake from the boot of the car 🥰🤩 I'm so lucky to have found this wonderful group of people! Ps. I really need to work on leg strenght for the uphills - it was tough🥵 #trailrunning #running

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Brent Toderian @brenttoderian.bsky.social · 17/01/2025

Air pollution has dropped significantly in #Paris in the last 15 years. Mayor @annehidalgo.bsky.social’s leadership has traded car space for green space, safe bike space, kid space.. and traded pollution for people. Good trade.

Change in Paris air quality between 2007 and 2023 using visuals

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Reposted by Kasia Patynowska

PsyPal Project @psypaleu.bsky.social · 17/01/2025

PsyPal is the first ever European grant to fund clinical research into #psychedelic-assisted therapy. Learn more about our project by visiting our website: palliativeprojects.eu/psypal/ or connect with us on LinkedIn! www.linkedin.com/company/psyp...

palliativeprojects.eu

Home - Psypal

Psilocybin Therapy for Psychological Distress in Palliative Care Patients Project Objectives Consortium Funding Information PsyPal is the first ever European […]

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Reposted by Kasia Patynowska

Lisa Robinson @drlisa-ahp.bsky.social · 16/01/2025

Professor @soniadalkin.bsky.social summing up a fabulous three days of provocation & productive debate during ‘The Future of Evaluation in Health and Social Care’ Conference @northumbriaideas.bsky.social 🤩 Great speakers, and really innovative thinking - best conference I’ve attended in ages!! 👏🏼👏🏼👏🏼

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Kasia Patynowska @kpatynowska.bsky.social · 16/01/2025

Why changing health inequalities is difficult? Because researchers/scientists, policymakers and politicians make it difficult - Mike Kelly at #evaluation conference @northumbriaideas.bsky.social

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REEM @reemecon.bsky.social · 14/01/2025

Ray Pawson on the vital role of carrots in the Future of Evaluation. They help you see into the 'black box'. #evaluation.

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Kasia Patynowska @kpatynowska.bsky.social · 16/01/2025

'An intervention is never just a thing-in-itself. Complex interventions have many moving parts, but they also have many different effects. These effects shape important aspects of the contexts in which the intervention is being evaluated" @carlrmay.bsky.social @northumbriaideas.bsky.social

Slide with presentation stating:
An intervention is never just a thing-in-itself. Complex
interventions have many moving parts, but they also have many
different effects. These effects shape important aspects of the
contexts in which the intervention is being evaluated"

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Kasia Patynowska @kpatynowska.bsky.social · 16/01/2025

Delighted to present a poster about my #realist PhD study at the #evaluation conference. It helped to open many conversations and allowed me to developed my thinking and clarify uncertainties. Thank you @northumbriaideas.bsky.social for such a thought provoking event!

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