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Juliah

@juliahhh.bsky.social
344 followers 964 following 239 posts

Midwesterner. Caregiver. T1D adjacent. My son is wrong about the Oxford comma.

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Juliah @juliahhh.bsky.social · 02/09/2026
19% increase in FSSA Medicaid waiver appeals as families report confusion over process to fight service cuts #HoosierSky www.wthr.com/article/news...
wthr.com
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Julia Métraux @juliametraux.bsky.social · 29/07/2026
RFK Jr. and Oz attacked California for its Medicaid home care, citing growth as proof of fraud. For @motherjones.com, I reported on how the growth isn't proof of fraud, and growth of participants is proof the program is more accessible than in other states. www.motherjones.com/politics/202...
motherjones.com
California does Medicaid home care well. They're being punished for it.
Republicans are deferring $850 million from the state because of unfounded fraud claims.
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Lizzy Lawrence @lizzylawrence.bsky.social · 14/07/2026
Powerful, important read from @rosebroderick.bsky.social. As states absorb Medicaid funding cuts, family caregivers face financial ruin: www.statnews.com/2026/07/13/f...
statnews.com
As states absorb Medicaid funding cuts, family caregivers face financial ruin
Family caregivers of people with disabilities face a grim financial future as several states consider steep cuts to their wages.
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Juliah @juliahhh.bsky.social · 30/06/2026
www.nbcnews.com/news/us-news...
nbcnews.com
Paralyzed at 7, she fought for the life she wanted. Medicaid cuts threaten to take it away.
For a half-century, U.S. policy has pushed to keep disabled Americans out of institutions. Now Rebecca Anger and others fear that era could end.
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Juliah @juliahhh.bsky.social · 15/05/2026
www.nbcnews.com/news/us-news...
nbcnews.com
Families caring for disabled relatives face unthinkable choices as Medicaid cuts loom
President Trump’s “big, beautiful bill,” state budget turmoil and new attacks on paid family caregiving have people fearing financial ruin as they fight to keep loved ones out of institutions.
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Matthew Cortland (they) @matthewcort.land · 10/04/2026
Help Matthew Cover Emergency Surgery Costs If, and only if, it would NOT at all be a financial hardship, and you find what I do valuable ⤵️ www.gofundme.com/f/help-matth...
gofundme.com
Donate to Help Matthew Cover Emergency Surgery Costs, organized by Matthew Cortland
I'm writing this from a hospital bed at Tufts Medical Center, where I had … Matthew Cortland needs your support for Help Matthew Cover Emergency Surgery Costs
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Foxtrot Delta Tango @graphisch.bsky.social · 29/03/2026
“No Kings” Protest in Evansville, Indiana. 28 March 2026 young and old as one protesting against tyrants exercise freedom
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Juliah @juliahhh.bsky.social · 29/03/2026
It was heartening to witness such a big turnout for No Kings in Evansville, Indiana. #HoosierSky #NoKings
An estimated 2000 people, some holding signs, stand while listening to speakers at the Four Freedoms monument, which consists of four stone pillars and a plaza.
A woman carries a sign that reads Stop the War, Start the Trials and another sign that reads We Stand with Immigrant Families. The Ohio river and about a dozen people are visible in the background.
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David M. Perry @lollardfish.bsky.social · 12/01/2026
Our dear friend Anne died on Christmas of ovarian cancer, leaving her wife Valerie and their son Bobby. This family matters so much to me. They got to know us after Bobby was diagnosed with Down syndrome before he was born, and our families remain close. Help if you can. Just a repost helps.
gofund.me
Donate to Help Our Family Recover After an Unexpected Loss, organized by Valerie Grunsted
After losing my beloved wife Anne to ovarian cancer, Bobby and I are… Valerie Grunsted needs your support for Help Our Family Recover After an Unexpected Loss
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Misa on Wheels @misaonwheels.bsky.social · 14/11/2025
Marriage equality does not exist for everyone until disabled people can marry without losing their benefits.
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s. e. smith @sesmith.lol · 29/07/2025
I feel really strongly that nature is for everyone and we need to improve accessibility practices in conservation; appreciated this read on how people are doing just that.
baynature.org
Accessible Nature, Beyond the Pavement - Bay Nature
New kinds of access to nature are emerging for people with disabilities.
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Andrea Ducas @andreaducas.bsky.social · 25/07/2025
CMMI has announced a demo to introduce more prior authorization into traditional Medicare. My latest with Don Berwick in @statnews.com on that’s bad news: www.statnews.com/2025/07/25/m...
statnews.com
Plans to test prior authorization in traditional Medicare are deeply troubling
Preauthorization is about to enter the lives of many seniors who have chosen traditional Medicare over MA, write former CMS Administrator Don Berwick and health policy expert Andrea Ducas.
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Christopher Webb @cwebbonline.com · 24/07/2025
This moment from today’s Medicaid vigil is so powerful… Question: What do you say to the people who voted to cut Medicaid? Be honest. Samantha Phillis: They voted against my child’s life. #MedicaidCutsKill
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Indivisible ❌👑 @indivisible.org · 05/07/2025
We want to train one million Americans in the strategic logic and practice of non-cooperation, as well as the basics of community organizing and campaign design. This is how we slow down, stop, and ultimately defeat Trump’s authoritarian takeover. 👇
mobilize.us
One Million Rising: Strategic Non-Cooperation to Fight Authoritarianism · No Kings
Across the country, authoritarian forces are getting bolder and more dangerous. Trump and his allies are not hiding their agenda: mass deportations, rollbacks of civil rights, weaponized courts, and f...
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Little Lobbyists @littlelobbyists.com · 03/07/2025
A special thank you from Xiomara (and her mom, @elenahung.bsky.social) for the love + support We're not giving up on this fight — we're not giving up on our kids, or anyone's kids. Please keep helping us fundraise for this urgent work by sharing: secure.actblue.com/donate/littl...
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Little Lobbyists @littlelobbyists.com · 01/07/2025
We have @littlelobbyists.com families on the way to Washington DC right now, they'll be on the House-side of the Capitol tomorrow. We're going to make them see us before they vote to kill disabled children. If you can help cover the costs of this urgent action: secure.actblue.com/donate/littl...
secure.actblue.com
I just gave to Little Lobbyists Action Network!
Show your support with a contribution.
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Elena Hung (she/her) @elenahung.bsky.social · 29/06/2025
Disabled kids like mine rely on Medicaid to survive; this bill cuts Medicaid. I don't know how else to say that medically complex disabled children will die as a result of this bill.
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Little Lobbyists @littlelobbyists.com · 28/06/2025
🚨 URGENT 🚨 The Senate may vote on gutting #Medicaid soon Little Lobbyists kids need you to call your Senator now! ☎️ (202) 224-3121 "Hi, my name is [YOUR NAME], I'm a constituent from [ZIP CODE], I'm calling to tell the Senator VOTE NO on any cuts to Medicaid!" PLEASE SHARE #PROTECTMEDICAID
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Anna Bower @annabower.bsky.social · 23/06/2025
I rarely post personal things. But I need to talk about my 4-year-old niece, Hope. She has a rare disease. A drug called elamipretide has helped her survive. But the FDA recently denied its approval. Now, her health hangs in the balance. Please share her story & urge the FDA to reconsider. 🧵
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Juliah @juliahhh.bsky.social · 15/06/2025
Evansville, Indiana, was amazing today! #HoosierSky #NoKings
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Robert Califf @robcaliff.bsky.social · 24/05/2025
This is as good a description that I've read of what makes universities so great and worth preserving, including some concentration of scholarly activity and discovery science. www.nytimes.com/2025/05/23/o...
nytimes.com
Opinion | Harvard Derangement Syndrome
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Juliah @juliahhh.bsky.social · 20/05/2025
The government intends to severely limit who can get a covid vaccination. If you want to have the choice to get vaccinated, please comment via the link below. #Covid #LongCovid
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Juliah @juliahhh.bsky.social · 01/05/2025
Evansville made the Rachel Maddow Show last night. #HoosierSky
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50501 Indiana @indiana50501.bsky.social · 26/04/2025
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Juliah @juliahhh.bsky.social · 04/04/2025
Evansville Hands Off rally rescheduled from April 5 to April 12 because of storms and flood warnings this weekend. #HoosierSky
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Juliah @juliahhh.bsky.social · 02/04/2025
www.mobilize.us/indivisible/... Evansville, April 5, 2025 #HoosierSky
mobilize.us
Hands Off! Evansville Fights Back · Indivisible
**Donald Trump and Elon Musk think this country belongs to them.** Evansville is fighting back! They're taking everything they can get their hands on—our health care, our data, our jobs, our services...
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Juliah @juliahhh.bsky.social · 29/03/2025
www.medtechdive.com/news/dexcom-... The sensors with the changed coating “cause higher risks for users who rely on the sensors to dose insulin or make other diabetes treatment decisions,” the letter said.
medtechdive.com
Dexcom’s FDA warning letter reveals unauthorized changes to sensors
Dexcom made a significant design change to a component used in its sensors and did not adequately validate the change, according to the warning letter.
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Juliah @juliahhh.bsky.social · 22/03/2025
Proud of the 8th District asking, "Where's Congressman Messmer?" #HoosierSky
Many people in front of 8th District Congressman Messmer's office holding protest signs at a Missing Congressman rally
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Juliah @juliahhh.bsky.social · 11/03/2025
Thank God for the Canadians. www.news-medical.net/news/2025031...
news-medical.net
Next-generation, inhaled COVID-19 vaccine enters phase-2 clinical trial
Researchers at McMaster University have started a phase-2 clinical trial on a next-generation, inhaled COVID-19 vaccine.
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Juliah @juliahhh.bsky.social · 26/02/2025
Glad this is on Marc Elias’s radar. #HoosierSky
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Juliah @juliahhh.bsky.social · 11/02/2025
#HoosierSky
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Elizabeth Jacobs, PhD @elizabethjacobs.bsky.social · 09/02/2025
USAID uses their money to buy crops from U.S. farmers and send them to kids around the world who need food. Musk uses his money to buy ads during the Superbowl to spread anti-public health propaganda.
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Juliah @juliahhh.bsky.social · 08/02/2025
Hey @goodtroublein.bsky.social how does this effect medical research and medical care in Indiana? Can someone help with talking points for contacting our reps? Maybe examples, like current cancer research, impact on Riley? #HoosierSky
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ACLU of Indiana @acluindiana.bsky.social · 03/02/2025
Today, the Senate Elections Committee disenfranchised the nearly 400,000 Hoosier voters who voted more than 14 days before the general election last year by passing SB 284 6–3.
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Juliah @juliahhh.bsky.social · 01/02/2025
stoprfkjr.com
stoprfkjr.com
Call TODAY to stop RFK Jr
RFK Jr is a danger to every single American… and Trump wants him to lead Medicare. Help us stop him!
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Juliah @juliahhh.bsky.social · 28/01/2025
From the Chicago Sun-Times, "The state of Illinois was shut out of Medicaid on Tuesday morning, according to Gov. JB. Pritzker's office" due to Trump's order last night to freeze federal grants. Any word from Gov. Braun or FSSA head Mitch Roob? #HoosierSky
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Juliah @juliahhh.bsky.social · 24/01/2025
#HoosierSky
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Juliah @juliahhh.bsky.social · 24/01/2025
FSSA chief: check Medicaid eligibility every 1/4 instead of every year. "Advocates warn this move could create a heavier administrative burden on the state, which could end up increasing costs in the long run." What of *personal* burden? #HoosierSky www.lakeshorepublicmedia.org/2025-01-16/b...
lakeshorepublicmedia.org
Braun administration quick to make Medicaid changes related to eligibility checks, advertisements
Indiana Gov. Mike Braun was sworn in on Monday and his administration has already made changes to the Medicaid program. The most significant change involves how often the Family and Social Services Ad...
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J. Offir, PhD @joffirphd.bsky.social · 23/01/2025
Note to folks w/ disabilities: the DoJ OCR handles ADA complaints. Both WaPo & Forbes are reporting this new story. "The Justice Department has ordered its civil rights division to halt all ongoing litigation... and not pursue new cases or settlements." 1/2 www.washingtonpost.com/national-sec...
washingtonpost.com
Justice Department freezes all cases in civil rights division
The directives halt ongoing civil rights cases and could jeopardize police reform agreements finalized in recent months in Minneapolis and Louisville.
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Robbie Schneider @robbieschneider.bsky.social · 22/01/2025
Thinking of my friends battling cancer, living with transplanted organ or are immunocompromised. #hoosiersky
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Juliah @juliahhh.bsky.social · 20/01/2025
Gov. Mike Braun’s administration has made it an immediate goal to get people off Medicaid “We will further constrain Medicaid eligibility across all the different categories of eligibility,” Roob said. #HoosierSky www.wishtv.com/news/i-team-...
wishtv.com
Braun's new Medicaid rule impacts Black, Hispanic communities
Gov. Mike Braun's administration has made it an immediate goal to get people off Medicaid, a publicly funded health insurance program.
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Juliah @juliahhh.bsky.social · 18/01/2025
What people don't know about, people won't utilize.... #HoosierSky www.wishtv.com/news/braun-a...
wishtv.com
Braun administration tells providers to stop advertising Medicaid programs
Indiana Family and Social Services Administration instructs MCEs to halt all radio and TV advertising of Indiana Medicaid programs.
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Retired EDMD @scholerined.bsky.social · 14/01/2025
My retirement job is going to be working for a large insurance company and approving every claim until they fire me.
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Matthew Cortland (they) @matthewcort.land · 13/01/2025
Medicaid messaging preview for BlueSky thought-leaders: MAGA is coming for Medicaid. They're using the language of policy wonks (e.g. "per capita caps") to hide what they're intending to do: cut Medicaid. Call them cuts. Clarity matters.
Medicaid Per Capita Caps versus Cuts

Bar chart of polling data from Data For Progress.
Title: "Per Capita Caps".
Description: Medicaid is a government-run health insurance program for low-income individuals. Some lawmakers are proposing changes to Medicaid. Each state receives matching funding from the federal government based on the program's actual costs. This proposal would shift Medicaid funding to a per capita model, meaning there would be a limit placed on how much the federal government would spend on Medicaid. States with program costs that are over the limit would be responsible for the remaining costs. Do you support or oppose this proposal?
All likely voters — Support: 39%, Oppose: 50%
Democrat — Support: 26%, Oppose: 66%
Independent / Third party — Support: 34%, Oppose: 58%
Republican — Support: 53%, Oppose: 30%
January 10–11, 2025 survey of 606 likely voters.

Bar chart of polling data from Data For Progress.
Title: "Cuts".
Description: Medicaid is a government-run health insurance program for low-income individuals. Some lawmakers are proposing changes to Medicaid that would result in cuts to Medicaid's funding. Do you support or oppose this proposal?
All likely voters — Support: 24%, Oppose: 70%
Democrat — Support: 13%, Oppose: 83%
Independent / Third party — Support: 23%, Oppose: 70%
Republican — Support: 37%, Oppose: 56%
January 10–11, 2025 survey of 595 likely voters.
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Chad Loder @chadloder.dev · 11/01/2025
INSULIN NEEDED - if anyone can spare insulin, especially the more shelf-stable pens, please bring them to: Bernie's Coffee Shop 6101 Wilshire Blvd before 6pm today
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Sam Levin @samtlevin.bsky.social · 10/01/2025
Galen Buckwalter, 68, shared with me his harrowing tale of being forced to flee the Eaton fire alone on his wheelchair through dark streets and fierce winds, dodging debris as fire neared his home. “In emergencies, disabled people are the last to get services…We have no system. You’re on your own”
theguardian.com
Fleeing the LA fires alone on a wheelchair: ‘I had to take my chances’
An evacuation order when the Eaton fire threatened Galen Buckwalter’s Sierra Madre home triggered a nightmare odyssey through chaotic streets
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Juliah @juliahhh.bsky.social · 08/01/2025
Bloomberg: "Trump took aim at Denmark at a wide-ranging press conference, threatening the country with high tariffs as part of his push to bring Greenland under US control." Danish company Novo Nordisk make 1/2 the insulin used in the world, including my daughter's. This "nonsense" has consequences.
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Acyn @acyn.bsky.social · 06/01/2025
Cooper: Should President Biden issue pardons for the January 6 committee members including yourself? Kinzinger: No. I don't want it.. the second you take a pardon it looks like you are guilty of something and I am guilty of nothing except bringing the truth
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Melody Schreiber @melodyschreiber.com · 31/12/2024
“Prior authorization is the number one frustrating thing of practicing outpatient medicine right now, far and away,” @gbosslet.bsky.social told me: www.theguardian.com/us-news/2024...
theguardian.com
Lawmakers take on prior authorization reform as health insurance frustrations mount
Nearly one in four doctors say the practice of prior authorization has led to serious issues for patients
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