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Little Lobbyists

@littlelobbyists.com
53K followers 176 following 540 posts

Family-led group advocating for our kids with complex medical needs and disabilities. Little Lobbyists Action Network is a 501(c)(4) org.

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Little Lobbyists @littlelobbyists.com · 23h
Head Start Changes Would Harm Dual Language Learners and Their Families www.migrationpolicy.org/commentary/h...
migrationpolicy.org
Head Start Changes Would Harm Dual Language Learners and Their Families
The Trump administration's proposed changes to Head Start, which include a mandate for English-only instruction, threaten Dual Language Learners (DLLs), who comprise one-third of all enrollees.
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Little Lobbyists @littlelobbyists.com · 14/09/2026
The administration of Gov. Ron DeSantis is still not giving firm answers on when — or whether — it intends to expand a safety-net healthcare program for low-income children that the Florida Legislature has approved. floridaphoenix.com/2026/09/14/s...
floridaphoenix.com
Still no answers from DeSantis administration on KidCare disenrollments, challenges • Florida Phoenix
The administration of Gov. Ron DeSantis is still not giving firm answers on when — or whether — it intends to expand a safety-net healthcare program for low-income children that the Florida…
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Little Lobbyists @littlelobbyists.com · 04/09/2026
Rest in power, Gloria ❤️‍🩹 Thank you for your fight for equality, reproductive freedom, and the belief that every person deserves dignity and a voice in their own life. Your work lives on in every parent, advocate, and kid who refuses to be told "no."
Top photo: Group photo in Gloria Steinem’s New York City living room. Maria Town, Ai-jen Poo, Nicole Jorwic, Elena Hung, and Gloria Steinem smile at the camera, seated and standing close together on a couch surrounded by eclectic art and antique furniture.

Bottom photo: Gloria Steinem sits on her couch in conversation with Elena Hung, mid-gesture, in her New York City living room
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Little Lobbyists @littlelobbyists.com · 01/09/2026
This was an incredibly difficult read on the impact #immigration enforcement is having on children, teens, and families across the country... Our well wishes to Pierre's family 💙❤️
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s. e. smith @sesmith.lol · 01/09/2026
Glad to see more states implementing paid family caregiving programs for parents providing specialized care like managing trachs and complex meds and have to drop out of the workforce to do so. This work is so devalued because it's racialized and feminized and parents really need this support.
hechingerreport.org
States turn to parents to fill a home care workforce gap
Parents who provide 'extraordinary care' for their disabled or medically fragile children can be paid for their services
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Little Lobbyists @littlelobbyists.com · 01/09/2026
"Air Canada has introduced a new mobility aid travel policy designed to make flying simpler, more predictable and less stressful for customers travelling with mobility aids." www.futuretravelexperience.com/2026/08/air-...
futuretravelexperience.com
Air Canada introduces new mobility aid policy to improve accessibility and passenger experience
Air Canada has introduced a new mobility aid travel policy designed to make flying more predictable and accessible.
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The Leadership Conference @civilrightsorg.bsky.social · 14/08/2026
For 25 years, the Supreme Court’s Olmstead decision has protected people with disabilities' right to live in community. In June, the DOJ put that right — for 40 million adults and 5 million children — at risk. In a craven move, DOJ is attacking the rights and dignity of millions.
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Little Lobbyists @littlelobbyists.com · 13/08/2026
OKLAHOMA CITY, Okla. – With Medicaid cuts on the horizon, a large chunk of rural Oklahoma hospitals could face closure, and new numbers back up years of warnings from healthcare experts. “We’re in rural America, and the healthcare in rural America is struggling,” kfor.com/news/instagr...
kfor.com
https://kfor.com/news/instagram/despite-warnings-even-more-ok-rural-hospitals-set-to-close/
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Governor Josh Shapiro @governor.pa.gov · 07/08/2026
Today’s order stands up to the Trump Administration’s cruelty, which would have made it harder for Pennsylvanians to find safe, stable housing — even putting some at risk of returning to homelessness.
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Governor Josh Shapiro @governor.pa.gov · 07/08/2026
BREAKING: We just won in court AGAIN to protect thousands of Pennsylvanians from being kicked out of their homes.
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Little Lobbyists @littlelobbyists.com · 07/08/2026
NEW: @lujan.senate.gov (D-N.M.) and @kaine.senate.gov (D-Va.) introduced the Home and Community-Based Services (HCBS) Access Act, legislation to ensure older adults and people with disabilities have a real choice between receiving long-term care at home or in institutional settings.
Graphic headlined ‘Luján, Kaine Lead Legislation to Expand Access to Home and Community-Based Care for Older Adults and People with Disabilities,’ with a quote explaining that the HCBS Access Act would expand access to home and community-based care so people who want to stay home and receive care can do so, instead of waiting years on state waiver lists.
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Little Lobbyists @littlelobbyists.com · 05/08/2026
NYT: The Senate voted to confirm Dr. Erica Schwartz, a physician who has repeatedly affirmed the safety and efficacy of childhood vaccines, as director of the CDC, the agency’s first full-time leader in nearly a year. www.nytimes.com/2026/08/05/h...
nytimes.com
Senate Confirms Dr. Erica Schwartz as C.D.C. Director
Dr. Schwartz, a deputy surgeon general in the first Trump administration, has publicly supported childhood vaccines.
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Little Lobbyists @littlelobbyists.com · 05/08/2026
Peter, 7, is a dog-loving prankster who's obsessed with Bluey and Ms. Rachel. He also has cerebral palsy, epilepsy, and needs 24/7 care. Mississippi Medicaid's home nursing keeps him healthy at home with his mom and brother, not in a hospital bed. Read his story: littlelobbyists.org/peters-story...
Lisa, wearing a Little Lobbyists t-shirt, poses with her sons Peter and Zachary, both also in Little Lobbyists shirts, at a birthday event with colorful balloon letters in the background. Peter sits in his wheelchair on the right. Text overlay reads "Peter's Story: A Dog-Loving Prankster Counting on Home Care — Mississippi Medicaid is what allows Peter, his brother Zachary, and his widowed mother Lisa to live happy, healthy lives."Lisa stands behind Zachary and Peter, who is in his wheelchair, all three wearing Chicago Cubs gear on a baseball field. A quote bubble reads: "After my husband's death in 2022, I am staying in Mississippi with my boys because it is the home we created together, the cost of living is lower, and life is slower here. It's especially important for us because living within an ambulance ride of a children's hospital is non-negotiable for us, and many cities with high-quality care and services are too expensive to live in."
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s. e. smith @sesmith.lol · 04/08/2026
Contact tracers and public health workers are astonishingly good at their jobs and would have excellent careers as PIs if they ever decided to leave the field.
kffhealthnews.org
Nurses Chase Cyclospora, Aided by Interviews, Fast-Food Receipts — And the Messy Details - KFF Health News
Yes, they’ve heard all the poop jokes. Public health staffers are painstakingly tracing the sources of this massive outbreak, combing through fast-food orders and lettuce purchases as they listen to p...
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Little Lobbyists @littlelobbyists.com · 05/08/2026
Trump Administration Plans to Upend Head Start by Deregulating It The White House tried but failed to block funding for preschool for poor children. Instead, it will seek to strip away standards on health, literacy — and brushing teeth. www.nytimes.com/2026/07/31/u...
nytimes.com
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Little Lobbyists @littlelobbyists.com · 05/08/2026
The Trump administration is ending a Medicare drug subsidy program. Here's how it could affect costs apnews.com/article/medi...
apnews.com
The Trump administration is ending a Medicare drug subsidy program. Here's how it could affect costs
Millions of older adults on Medicare prescription drug coverage could face higher monthly costs in 2027.
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Little Lobbyists @littlelobbyists.com · 29/07/2026
“The Trump administration has effectively shut down most of the Agency for Healthcare Research and Quality’s activities, closing the spigot on federal funding estimated to have saved thousands of lives and billions of dollars over the past 27 years by improving medical practice.”
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Little Lobbyists @littlelobbyists.com · 29/07/2026
Trump Has Quietly Throttled an Agency Devoted to the Safety of American Healthcare kffhealthnews.org/news/ahrq-fu...
kffhealthnews.org
Trump Has Quietly Throttled an Agency Devoted to the Safety of American Healthcare - KFF Health News
Congress appropriated $345 million for the Agency for Healthcare Research and Quality for the 2026 fiscal year, but the agency has spent less than $15 million on grants. AHRQ hasn’t issued a new one i...
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Little Lobbyists @littlelobbyists.com · 29/07/2026
Medicaid fills that gap for over 100,000 disabled applicants a year. New work requirements could yank it away before they even get a determination.
kff.org
What Could Medicaid Work Requirements Mean for SSI Applicants? | KFF
Medicaid work requirements may make it more difficult for some SSI applicants to maintain coverage due to the added complexity of navigating the verification process for the medical frailty exclusion....
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jamelle @jamellebouie.net · 24/07/2026
an ideologically driven effort to destroy an independent institution and replace its serious and broad-minded approach to american history with MAGA slop
nytimes.com
Trump Orders Warnings Placed at ‘Inaccurate’ Smithsonian History Museum
President Trump said the signage at the National Museum of American History would correct what a disputed White House report described as “extreme political activism.”
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Little Lobbyists @littlelobbyists.com · 24/07/2026
"The planned 4% cut on Medicaid reimbursements has been reversed after Beshear says a surplus of funds has been collected." www.tristatehomepage.com/news/local-n...
tristatehomepage.com
“It’s important to me”: Owensboro nonprofit reacts to Medicaid cuts reversal
OWENSBORO, Ky. (WEHT) — Organizations in Kentucky may not have to worry about Medicaid cuts this year. Nonprofits like Wendell Foster are breathing a sigh of relief after Governor Andy Beshear anno…
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Little Lobbyists @littlelobbyists.com · 24/07/2026
"A new poll indicates that most Americans believe they’re far from the main culprit. Most respondents also said they thought the overall Medicaid-fraud push was just politics." www.newsfromthestates.com/article/poll...
newsfromthestates.com
Poll: Americans don’t think recipients are ripping off Medicaid
As some Republican leaders are pushing allegations that Medicaid recipients and their families are defrauding Medicaid, a new poll indicates that most Americans believe they’re far from the main…
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Little Lobbyists @littlelobbyists.com · 23/07/2026
Excited to join our friends @aapd.com and disability community to celebrate the 36th Anniversary of the Americans with Disabilities Act!
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Little Lobbyists @littlelobbyists.com · 23/07/2026
Families are drowning in health care costs — rising premiums, sky-high hospital bills, and drug prices that force people to choose between care and rent. Congress has real, bipartisan solutions on the table right now. #LowerHealthCareCostsNow Take action: ow.ly/aJA550Zp4fU
Familes USA graphic for Health Care Affordability Digital Week of Action. Icon of 5 people, 2 shaded dark pink to represent ‘Nearly 2 in 5 adults are in medical debt.’ Below, large text reads ‘100M+ Americans carrying medical debt.’ Caption: ‘Over 100 million Americans owe a combined ~$220 billion in medical debt. Medical bills are the #1 cause of personal bankruptcy in the U.S.’ Source: KFF / Peterson Center on Healthcare, 2024.
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Little Lobbyists @littlelobbyists.com · 22/07/2026
THEY TOLD US THERE IS NO MONEY FOR MEDICAID but somehow there is money for Pete Hegseth
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s. e. smith @sesmith.lol · 22/07/2026
The school to prison pipeline is very, VERY real. Black, Indigenous, people of color and/or disabled kids are at especially high risk.
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Carl Quintanilla @carlquintanilla.bsky.social · 21/07/2026
Page One. @nytimes.com
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Julia Métraux @juliametraux.bsky.social · 21/07/2026
The reason why home and community-based services funding has increased a lot in California is not because of fraud, but unlike in other states, California has no wait-list to get HCBS services once you qualify www.theguardian.com/us-news/2026...
theguardian.com
RFK Jr pauses $1bn Medicaid funding to California and Minnesota
Trump’s health secretary says AI used to identify potential fraud in Democratic-run states
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Child Care for Every Family @childcareforeveryfamily.org · 21/07/2026
We all depend on care. Today’s the day we talk about it. Join @caringacross.org today to have your say and be one of 1 Million Care Conversations: caringacross.formstack.com/forms/1_mill... #1MCare
An illustration of the United States of America with different colors representing different parts of the country with text above saying, "Be one in a million. Be heard. Join our 1 Million Care Conversations."
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Caring Across Generations @caringacross.org · 21/07/2026
We all depend on care. Today’s the day we talk about it. Join us for the Day to Have Your Say and be one of 1 Million Care Conversations: caringacross.formstack.com/forms/1_… #1MCare
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Little Lobbyists @littlelobbyists.com · 21/07/2026
Sen. @kim.senate.gov (D-N.J.) on Tuesday unveiled a proposal for all American children to receive #Medicare, a program he’s dubbed MediKids, saying Democrats must bring new ideas to move the conversation on healthcare forward.
thehill.com
Senate Democrat proposes universal health care for children
Sen. Andy Kim (D-N.J.) on Tuesday unveiled a proposal for all American children to receive Medicare, a program he’s dubbed MediKids, saying Democrats must bring new ideas to move the conversa…
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Juan Escalante @juanescalante.com · 21/07/2026
Despite being eligible for #Medicaid, Marie was denied coverage in 2025 because of an error with the state's benefits system. It took months of pushback before the state reversed its mistake. Even as a "tech-savvy" former bank manager, Marie she wanted to give up several times along the way.
npr.org
Deloitte-run systems denied Medicaid to disabled people. New laws could make it worse
Complex computer systems that decide whether people get Medicaid benefits have a history of errors. Now, changes to comply with Trump's tax and domestic policy law are inundating those systems.
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Little Lobbyists @littlelobbyists.com · 21/07/2026
Happy to catch a pre-release screening of “Take Me Home” 🎬 — a beautifully directed film by Liz Sargent following Anna, a young disabled woman, and her family navigating caregiving, health care, and structural barriers. ❤️💙🩵 @americanprogress.bsky.social @aapd.com @caringacross.org
Group photo of nine people at the Center for American Progress, including a child wearing a Little Lobbyists t-shirt, smiling together in front of an American flag and a Center for American Progress backdrop. Several people use wheelchairs, and one child has a medical tube. Everyone is smiling warmly for the camera.
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Lise 🇺🇦 @elee9.bsky.social · 18/07/2026
Also known as “work requirements,” community engagement reqs expect those they define as able-bodied adults to either work at least 80 hr/month; be enrolled at least half-time in school; perform 80 hrs of community service; have an income of at least 80 hrs/month at fed min wage; or a mix of these.
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s. e. smith @sesmith.lol · 18/07/2026
Multiple states are very eager to share Medicaid, SNAP, and other data with the feds and third parties to achieve their aims of harassing immigrants who are minding their own business.
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Little Lobbyists @littlelobbyists.com · 18/07/2026
'Community Engagement Requirements' Will Eliminate Medicaid Benefits for Millions. Here's What You Can Do 👉 littlelobbyists.org/community-en...
littlelobbyists.org
'Community Engagement Requirements' Will Eliminate Medicaid Benefits for Millions. Here's What You Can Do.
A new rule could kick up to ten million people off Medicaid, and we're fighting back. So can you.
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Joanna "Ms. Crow" Blackhart [They/Them] @joannablackhart.com · 18/07/2026
the amount of crime this is...
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Ridley @rid-ley.bsky.social · 18/07/2026
Back when I worked for a Medicaid call center, you would get fired on the spot if you looked up anyone but the people you were helping. Even looking up yourself or your family would get you the boot. And these guys just passed that data off to their friends like NBD.
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Elena Hung (she/her) @elenahung.bsky.social · 16/07/2026
Here with @protectourcare.org this morning on behalf of @littlelobbyists.com families again fighting for affordable quality health care, fighting for our children. We are #SickOfIt Join us live! 👇 www.youtube.com/live/Wy3OmUT...
youtube.com
Sick of It! Fix Health Care Now in Washington, DC (LIVE at 10:30AM ET)
YouTube video by Protect Our Care
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Little Lobbyists @littlelobbyists.com · 18/07/2026
ICE was supposed to delete the improperly shared data … But in recent days, federal officials have admitted to additional instances of improper data sharing. Full story via @npr.org
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Little Lobbyists @littlelobbyists.com · 18/07/2026
After #Medicaid officials improperly shared data about millions of people in January with immigration officials, ICE then shared that data with the data analytics firm Palantir, according to new court filings.
npr.org
ICE shared Medicaid data it wasn't supposed to have with Palantir
The revelations came out in a federal court case brought by Democratic states challenging ICE's access to Medicaid data to aid in deportation efforts.
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Little Lobbyists @littlelobbyists.com · 17/07/2026
South Florida’s non-profits, hospitals and home healthcare providers rely heavily on Haitian professionals who serve with extraordinary skill and compassion. www.miamiherald.com/opinion/op-e...
miamiherald.com
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Little Lobbyists @littlelobbyists.com · 25/06/2026
Medically complex and disabled children need to be seen and heard. 💙 This father and son share what it's like — funny, stubborn, brave, and for years, not seeing themselves represented in healthcare debates on the news. Little Lobbyists changed that ❤️ Give what you can: www.tinyurl.com/ll9years
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Little Lobbyists @littlelobbyists.com · 25/06/2026
Parents and caregivers went to the KY Capitol to raise concerns that #Medicaid cuts could put services for vulnerable children and adults at risk, including people with disabilities. “Our children have become collateral damage in something they have nothing to do with” www.wkyt.com/2026/06/24/m...
wkyt.com
Medicaid cuts raise concerns about disability services in Kentucky
More than three overflow rooms were needed for all the people that wanted to speak out against and support programs for the disabled Wednesday at the state capitol in Frankfort.
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Little Lobbyists @littlelobbyists.com · 20/06/2026
Disability Groups Fear RFK Jr.’s New Special Education Role Alienated by Secretary Robert F. Kennedy Jr.’s claims about autism, advocates for disabled students are sounding the alarm about the Trump administration's shifting special education programs to his department.
nytimes.com
Disability Groups Fear RFK Jr.’s New Special Education Role
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Protect Our Care @protectourcare.org · 19/06/2026
Health care affects every family. It shapes whether people can get preventive care, afford treatment, and live healthy lives. This Juneteenth, we honor the struggle for freedom by standing up for the belief that everyone deserves access to quality, affordable health care.
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hand_to_eye @delightw2023.bsky.social · 18/06/2026
👇👇👇
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s. e. smith @sesmith.lol · 18/06/2026
CA's billionaires have already raised $107m to defeat a one-time tax that would only affect 200 people—and they put a deceptive countermeasure on the ballot ('retirement protection') that would cancel it out. We are going to be INUNDATED in political advertising about this.
calmatters.org
California billionaires are spending big to kill a tax meant to fund health care
A California union wants to tax billionaires to fund healthcare. The initiative has drawn fierce opposition from Newsom and Silicon Valley moguls.
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Little Lobbyists @littlelobbyists.com · 18/06/2026
there’s “no money” for #Medicaid but there’s money for whatever this is
“Video still showing a hand pulling a large sheet of dark blue material out of murky green water, with splashing droplets around it. Bold blue overlay text reads ‘Reflecting Pool $14 million dollar paint job update…’ with a search icon in the top corner.”
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Little Lobbyists @littlelobbyists.com · 17/06/2026
Providers worry cuts could result in more Missourians seeking surgeries and emergency room care for issues like chronic back pain missouriindependent.com/2026/06/15/m...
missouriindependent.com
Missouri Medicaid will no longer cover chiropractic care after budget cuts • Missouri Independent
Providers worry cuts to chiropractic services could lead more Medicaid recipients to seek surgeries and emergency room care for chronic pain.
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