iiinova — where your digital self keeps evolving

Reposted by Jeni Baykoca

Navigate MS @navigatems.bsky.social · 30/09/2026

We’re still recruiting! 📣 Living with MS? Help shape the Navigate MS app by sharing your feedback on managing MS symptoms. ⏱️ Around 1 hour/week for 9–10 weeks. Interested? shorturl.at/TyrOa Questions? DM us or email navigatems@kcl.ac.uk

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Reposted by Jeni Baykoca

Navigate MS @navigatems.bsky.social · 29/09/2026

Pain is real, even when no one can see it. 💙 This #PainAwarenessMonth, meet Navigate MS: an app-based self-guided psychological intervention for invisible symptoms in MS, including pain. We're now recruiting! 🔗 Follow the link below to learn more and join. qualtrics.kcl.ac.uk/jfe/form/SV_...

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Reposted by Jeni Baykoca

Navigate MS @navigatems.bsky.social · 07/09/2026

Living with MS? We’re recruiting adults in Great Britain to help us improve the Navigate MS app. Taking part is voluntary, you can stop at any time, and your identifiable information is only accessible to the research team. qualtrics.kcl.ac.uk/jfe/form/SV_...

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Jeni Baykoca @jenibaykoca.bsky.social · 24/08/2026

Looking for people living with MS! With the MS Society and King's College London, we created an app to support MS symptom management, including: 1. Pain 2. Psychological distress 3. Sexual difficulties Try the programme that interests you and tell us how we can improve it: tinyurl.com/yw6dk6uu

qualtrics.kcl.ac.uk

Navigate MS Registration of Interest

Thank you for your interest in this study exploring the Navigate MS app. This survey will guide you through: information about the study, a consent form, a few eligibility questions, and some questi...

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Reposted by Jeni Baykoca

NIHR Biomedical Research Centre: Maudsley @nihrmaudsleybrc.bsky.social · 12/08/2026

📱Why do we stop using health apps, and is that always a problem? A new blog from King's IoPPN PhD student Jeni Baykoca explores what helps people living with long-term conditions engage with mobile health apps. www.maudsleybrc.nihr.ac.uk/news/why-do-... @kingsioppn.bsky.social

Digital health should not become another space in which people living with long-term conditions are made to feel like they have failed. When an app is abandoned, the problem is not automatically a lack of motivation. The design may have asked too much, offered too little, or failed to fit the realities of living with fluctuating
symptoms, work, caring responsibilities and
everyday life.”

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Jeni Baykoca @jenibaykoca.bsky.social · 27/07/2026

The first paper from my PhD is now published in @jmirpub.bsky.social ! We brought together evidence from 19 systematic reviews to understand what may help people with long-term conditions stay engaged with mobile health apps. A helpful read for anyone interested in digital health and engagement.

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Jeni Baykoca @jenibaykoca.bsky.social · 23/06/2026

I had such a lovely time at MS Frontiers last week, and it felt really special to share some of the work we’ve been doing on Navigate MS!

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Reposted by Jeni Baykoca

UK Health Psychology Network @ukhpn.bsky.social · 18/05/2026

Participants needed 📢 Can you help Rupali with their research? Looking for women aged 18+ living with long-term pain and taking prescribed pain medication to share their experiences. Your voice could make a real difference 💜 Please take part or share: forms.cloud.microsoft/pages/respon...

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Reposted by Jeni Baykoca

ukmsregister @ukmsregister.bsky.social · 05/05/2026

New Study: Does your menstrual cycle affect your MS symptoms? This study is funded by the MS Society UK and supported by MS Together. To take part, visit ms-menstrualcycle.co.uk/newcastle-la...

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Jeni Baykoca @jenibaykoca.bsky.social · 23/04/2026

Imagine you’ve just given birth after a pregnancy with GDM, and you’re also feeling low or overwhelmed. Would breastfeeding feel straightforward? We studied this in 2,800+ women in Iran with @kingsioppn.bsky.social &Isfahan University of Medical Sciences. Graphic below Paper: tinyurl.com/3z36f54j

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Reposted by Jeni Baykoca

MS-UK @ms-uk.bsky.social · 15/04/2026

A new project is exploring how women living with MS experience menopause, aiming to identify gaps in care and support. Research in this area is still limited, so this study will help improve understanding and future support. 💜 ms-uk.org/news/new-pro... #MSUK #MSResearch #LivingWithMS

ms-uk.org

New project to explore how women with MS experience menopause

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Reposted by Jeni Baykoca

MS-UK @ms-uk.bsky.social · 15/04/2026

Planning a break or day out but not sure where to start? Our latest blog shares useful tips and trusted resources to help you find accessible holidays, city breaks and days out across the UK. 😊 Comment below if you have any trips or days out planned for 2026! ms-uk.org/blog/plannin...

ms-uk.org

Planning accessible days out and breaks in the UK

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Reposted by Jeni Baykoca

Navigate MS @navigatems.bsky.social · 15/04/2026

📢We are inviting people with MS to take part in Patient and Public Involvement (PPI) to help us ensure a new app is relevant, useful, and works as intended. Click the link below or message us directly if interested! forms.cloud.microsoft/e/REfPC4e5zQ

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Reposted by Jeni Baykoca

ukmsregister @ukmsregister.bsky.social · 27/03/2026

Researcher Richard Edwards from University of Wolverhampton is currently looking for participants to take part in his study focusing on time to MS diagnosis. Participants can take part remotely. If this sounds of interest to you, please contact Richard for more information: r.c.edwards@wlv.ac.uk

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Reposted by Jeni Baykoca

brandon-beaber.bsky.social @brandon-beaber.bsky.social · 04/04/2026

Considerations for family planning with multiple sclerosis. Authors @drruthdobson @KerstinHellwig pubmed.ncbi.nlm.nih.gov/41925496/

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Reposted by Jeni Baykoca

Multiple Sclerosis @multiplesclerosis.bsky.social · 30/03/2026

Multiple sclerosis (MS) has more than doubled in recorded prevalence in England from 2000 to 2020, increasing by 6% per year, largely due to improved diagnosis and longer life expectancy, finds a new study by UCL and Imperial College London researchers. www.ucl.ac.uk/news/2026/ma...

ucl.ac.uk

Multiple sclerosis doubles in prevalence while survival rates improve

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Reposted by Jeni Baykoca

Frances Ryan @francesryan.bsky.social · 30/01/2026

So lovely to get this package from @thehealthpsych.bsky.social to celebrate the upcoming publication of It’s All In Your Body. If you have a chronic health condition, this book really could be a life-changer. Pre-order: www.waterstones.com/book/its-all...

A photo of the hardback book and a yellow wellbeing journal that came with (and a sticker set, for fun).

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Jeni Baykoca @jenibaykoca.bsky.social · 10/02/2026

Real lived experience shaping tools for people with MS If this speaks to you, please consider getting involved 💙

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Reposted by Jeni Baykoca

brandon-beaber.bsky.social @brandon-beaber.bsky.social · 12/01/2026

This retrospective study from Norway of over a million people found that maternal diabetes is linked to doubling of future risk of multiple sclerosis of the child (HR 2.15 (95% CI, 1.37-3.37). pubmed.ncbi.nlm.nih.gov/41525064/

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Jeni Baykoca @jenibaykoca.bsky.social · 20/11/2025

We’re looking to include example scripts and real tips on what helped you share your MS diagnosis with friends, family, colleagues, or bosses. Let us know!

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Reposted by Jeni Baykoca

Multiple Sclerosis @multiplesclerosis.bsky.social · 15/11/2025

Brain scans reveal that mindfulness meditation for pain is not a placebo Mindfulness meditation engages separate neural pathways from the well-documented “placebo effect” www.eurekalert.org/news-release...

eurekalert.org

Brain scans reveal that mindfulness meditation for pain is not a placebo

Brain scans reveal that mindfulness meditation engages different neural pathways compared to placebo, demonstrating that pain relief from mindfulness meditation is not the result of the placebo effect...

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Jeni Baykoca @jenibaykoca.bsky.social · 18/11/2025

Thrilled to have won Best Oral Presentation at the Health Sciences DTC Symposium🎉 I presented my work adapting Compass MS into a self-guided mobile app for MS-related distress, and the panel chose it as their top talk. Pictured: me, the same height of the laptop stand😄 @kingsioppn.bsky.social

A speaker stands at a podium giving a presentation. Their body is partially obscured by a tall laptop stand, with only their upper torso and head visible. Behind them, a large projected slide shows the title and content of their presentation on adapting Compass MS from a web-intervention to a standalone app in a conference

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Jeni Baykoca @jenibaykoca.bsky.social · 16/11/2025

Such an energising session!🤗 I'm so grateful for this amazing, thoughtful group. Your insights are truly shaping the app into something meaningful and practical for people living with MS. Every conversation moves us a step closer to creating tools that support, empower and make a real difference👊

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Jeni Baykoca @jenibaykoca.bsky.social · 10/09/2025

There’s no holiday from type 1 diabetes (T1D). The constant management can take a real toll on mental health. We have been looking at how to best detect and support mental health difficulties in people living with T1D. I wrote a blog post that breaks it down in an easy read 📝

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Jeni Baykoca @jenibaykoca.bsky.social · 29/08/2025

Can we study mental health in people with type 1 diabetes at scale? 🧠📊 We tested it and it’s doable. Read our new paper in @springernature.com Pilot and Feasibility Studies on what worked, what didn’t, and what’s next! Link to article: rdcu.be/eCYFj #T1D #MentalHealth #Research

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Reposted by Jeni Baykoca

Natasha Seaton @natashaseaton.bsky.social · 23/05/2025

1️⃣ NEW *open access* measure alert 🧵 We’ve just published the Illness-Related Distress (IRD) Scale in Psychological Medicine doi.org/10.1017/S003... It's a 14-item, trans-diagnostic PRO for distress related to living with any long-term physical condition (LTC). But WHY does this matter 🤔 ⬇️

doi.org

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Jeni Baykoca @jenibaykoca.bsky.social · 08/05/2025

Looking forward to speaking at the @midshealthpsych.bsky.social Conference! ✨ I'll be presenting on user engagement in mHealth apps for adults with long-term conditions. Get your tickets below and let’s chat about all things health psychology! 🎟️ f.mtr.cool/tbvntqqauj

f.mtr.cool

Conference 2025 - Midlands Health Psychology Network

20th Annual Conference Building the Future of Health Psychology 20 May 2025 (10am-4pm), online Call for abstracts NOW open Annual MHPN Conference 2025: ‘Building the Future of Health Psychology’. If [...

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Reposted by Jeni Baykoca

Navigate MS @navigatems.bsky.social · 04/05/2025

Participants needed 📣✨ We're developing a digital support tool for people living with MS experiencing sexual difficulties. Click the link below to access the survey and enter a prize draw for a chance to win 1 of 5 £20 vouchers! shorturl.at/bMjEz Your input makes a difference 💜

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Reposted by Jeni Baykoca

REFUEL-MS @refuelms.bsky.social · 29/04/2025

When we talk about MS, finding the right words can be tough – but it doesn’t have to be. That’s why, this MS Awareness Week, the UK’s leading MS charities are teaming up start #MSConversations This year’s theme is designed to break the stigma and get people talking about MS!

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Rory Coyne @rorycoyne.bsky.social · 28/04/2025

Are you a health psychology researcher? We would love to hear from you about your engagement with #OpenScience! Follow the link below to be taken to a brief survey: psychologygalway.qualtrics.com/jfe/form/SV_...

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Reposted by Jeni Baykoca

Navigate MS @navigatems.bsky.social · 28/04/2025

MS doesn’t just affect the body — it can impact mental health too. This MS Awareness Week, we’re talking about it. Watch the video and join the conversation. #MSAwareness"

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Jeni Baykoca @jenibaykoca.bsky.social · 14/04/2025

Follow @kcl-ms-research.bsky.social for updates on our upcoming project aiming to support people living with MS! 👇

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Jeni Baykoca @jenibaykoca.bsky.social · 21/03/2025

So lucky to be a part of this incredible team!

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Jeni Baykoca @jenibaykoca.bsky.social · 19/03/2025

Exciting things in the works! 🚀 Together with people living with MS, @kingsioppn.bsky.social are creating mobile interventions for the invisible symptoms of MS. 📱 Follow the page for updates as we turn research into reality! 💡🧡 #MultipleSclerosis #DigitalHealth #Research

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Jeni Baykoca @jenibaykoca.bsky.social · 12/03/2025

Huge congrats to the @refuelms.bsky.social team on their app launch last week! 🎉 Excited for the upcoming projects in the health psychology team at @kingsioppn.bsky.social, where we're developing an app for psychological distress and other invisible symptoms of MS forming my PhD 🧠📱

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Reposted by Jeni Baykoca

ukmsregister @ukmsregister.bsky.social · 07/03/2025

International Women's Day 2025! The Register are especially grateful for the women we work alongside who have a positive impact on our work and our lives. Read our IWD 2024 blog on inspirational women of the UK MS Register: blog.msregister.org/celebrating-... #AccelerateAction #IWD2025

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Jeni Baykoca @jenibaykoca.bsky.social · 24/02/2025

🚨 We're still recruiting! 🚨 If you're interested in getting involved, please don't hesitate to contact us or repost this message to help spread the word! We'd love to hear from you! 🙌 #MultipleSclerosisResearch #MS #ResearchOpportunities

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Jeni Baykoca @jenibaykoca.bsky.social · 12/02/2025

📢 🔬 Seeking PPI participants with MS! Help us design a mobile app for pain, psychological distress and sexual difficulties. Your voice matters 📱🌟

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Reposted by Jeni Baykoca

Rona Moss-Morris @ronamoss-morris.bsky.social · 08/01/2025

Sexual difficulties in #MS are often not asked about or treated. If you want to hear more about our recent trial and how we trying to change this join Dr Ashley Brown, our patient advisers and me on Thurs 16th Jan from 5:00-6:30pm GMT. bit.ly/421VuHN

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Jeni Baykoca @jenibaykoca.bsky.social · 09/12/2024

An early holiday surprise! My diploma for MSc Mental Health Studies from @kingsioppn.bsky.social arrived 🎊 Feeling so grateful for everyone I met, the modules I took and my amazing dissertation supervisor Dr Madeleine Benton 🌟

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Jeni Baykoca @jenibaykoca.bsky.social · 03/12/2024

Just saw Bright Places @sohotheatre.bsky.social An incredibly moving and informing story on living with multiple sclerosis. I laughed, I cried, I felt all humanly possible emotions It is so amazing to see more representations of MS in theatre and the arts! 🎭 #multiplesclerosis #theatre

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Jeni Baykoca @jenibaykoca.bsky.social · 18/11/2024

Different psychological and social factors may be affecting mother-infant bonding in women with gestational diabetes (GDM) during pregnancy and after birth.🤰🧠🌟 📢 Read the full article here! doi.org/10.1002/rfc2... #maternalhealth

New cross-sectional research published in the Journal of Reproductive, Female and Child Health. Different psychological and social factors may be affecting mother-infant bonding in women with gestational diabetes (GDM).

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