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MS-UK

@ms-uk.bsky.social
207 followers 98 following 83 posts

MS-UK is the national charity supporting anyone affected by multiple sclerosis (MS). We offer a number of services that support people affected by MS to live healthier, happier lives. For more information, visit www.ms-uk.org. Reposts not endorsements

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MS-UK @ms-uk.bsky.social · 22/06/2026
Bladder and bowel symptoms can be difficult to talk about, but many people living with MS will know just how much they can affect everyday life. In her latest New Pathways column, Roxy Murray is breaking the embarrassment barrier. ms-uk.org/blog/bladder...
ms-uk.org
Bladders and bowels - breaking the embarrassment barrier
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MS-UK @ms-uk.bsky.social · 22/06/2026
Want to support your mobility and everyday movement? 💜 Join Dr Gretchen Hawley on Monday 22 June from 4pm to 5pm for an online session exploring functional exercise and the movements used in everyday life. ms-uk.org/the-differen...
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MS-UK @ms-uk.bsky.social · 20/04/2026
It’s MS Awareness Week (20 April - 26 April)💜 We’re proud to be part of #MSThinkAgain, a campaign challenging assumptions about MS. Think you know MS? #ThinkAgain #ms #multiplesclerosis #msawarenessweek
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MS-UK @ms-uk.bsky.social · 15/04/2026
Planning a break or day out but not sure where to start? Our latest blog shares useful tips and trusted resources to help you find accessible holidays, city breaks and days out across the UK. 😊 Comment below if you have any trips or days out planned for 2026! ms-uk.org/blog/plannin...
ms-uk.org
Planning accessible days out and breaks in the UK
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MS-UK @ms-uk.bsky.social · 15/04/2026
A new project is exploring how women living with MS experience menopause, aiming to identify gaps in care and support. Research in this area is still limited, so this study will help improve understanding and future support. 💜 ms-uk.org/news/new-pro... #MSUK #MSResearch #LivingWithMS
ms-uk.org
New project to explore how women with MS experience menopause
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MS-UK @ms-uk.bsky.social · 15/04/2026
New research suggests over 70% of people living with MS in rehabilitation were taking five or more medications, often alongside supplements. What might this mean for managing symptoms and support? Read the full story via the link 💜 ms-uk.org/news/five-or... #MS #MSNews #MultipleSclerosis
ms-uk.org
Five or more medications taken by 70% of MS patients
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MS-UK @ms-uk.bsky.social · 05/03/2026
New research has explored a possible link between MS and a higher risk of dementia. If you've been affected by this story and need to speak to someone, please call our helpline free on 0800 783 0518, Monday-Friday, 10am-4pm. ms-uk.org/news/study-l...
ms-uk.org
Study links MS to higher dementia risk
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MS-UK @ms-uk.bsky.social · 05/03/2026
Our Women’s Peer Pod is a space where conversations can happen openly with others who understand what living with MS can really look like. 💜 Join us on Thursdays at 5.45pm or Fridays at 11am. Click the link to find out more about the Women’s Peer Pod. ms-uk.org/multiple-scl...
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MS-UK @ms-uk.bsky.social · 05/03/2026
It is not too late to join the Big Purple Dog Walk! 🐾 March is here, but there is still plenty of time for you and your dog to take on a challenge, start fundraising and be part of something special. Grab the lead and choose your challenge! Click the link below to sign up ms-uk.org/fundraise-fo...
ms-uk.org
Big Purple Dog Walk
The Big Purple charity dog walk is MS-UK's biggest event for dog lovers and pooches everywhere! Raise money for MS-UK on your dog walks!
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MS-UK @ms-uk.bsky.social · 20/02/2026
MS Awareness Week is back this April – and we need you! 💜 We’ve created a short survey that takes around 5 to 10 minutes to complete, and your insight will help us deliver the strongest and most meaningful campaign possible. survey.alchemer.eu/collab/91027... #MSAwarenessWeek #MS
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MS-UK @ms-uk.bsky.social · 20/02/2026
Samreena shares what Ramadan means to her as someone living with MS, and why the choice to fast is deeply personal. She reminds us that faith and health can sit side by side, and that compassion includes being kind to your own body. 💜 ms-uk.org/blog/what-if... #Ramadan #MS
ms-uk.org
What if I’m too ill to fast for Ramadan?
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MS-UK @ms-uk.bsky.social · 20/02/2026
Is it MS? 🤔 Cognition, Fatigue and Vision problems are symptoms that are often linked to MS. In this blog, we explain three common MS symptoms and explore other conditions that can share them, along with an update on the diagnostic criteria used by neurologists. ms-uk.org/blog/is-it-m... #MS
ms-uk.org
Is it MS? Here are some common MS symptoms
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MS-UK @ms-uk.bsky.social · 20/02/2026
Immune cells that target EBV may be driving MS. A type of immune cell that has received little attention in multiple sclerosis (MS) research may play an important role in how the condition develops. Click the link to find out more. ms-uk.org/news/immune-... #MS #MultipleSclerosis #EBV
ms-uk.org
Immune cells that target EBV may be driving MS
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MS-UK @ms-uk.bsky.social · 23/01/2026
News - Supplement linked to 42% lower MS risk 💊 New research has found that a higher intake of vitamin D from food or supplements was linked to a lower risk of developing MS in a large long-term study. 🌤️ Find out more below ms-uk.org/news/supplem... #MS #MSNews #MSUpdate #MSResearch #Supplements
ms-uk.org
Supplement linked to 42% lower MS risk
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MS-UK @ms-uk.bsky.social · 23/01/2026
The Big Purple Dog Walk is a lovely way to get outside with your dog while raising vital funds for people affected by MS. 🐶 Choose your own personal dog walking challenge to complete and claim your exclusive MS-UK bandana for your pooch! 💜 Click the link below ms-uk.org/fundraise-fo... #MS
ms-uk.org
Big Purple Dog Walk
The Big Purple charity dog walk is MS-UK's biggest event for dog lovers and pooches everywhere! Raise money for MS-UK on your dog walks!
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MS-UK @ms-uk.bsky.social · 23/01/2026
A new study suggests that a past infection with the Epstein Barr virus may change how the immune system behaves in people with certain genetic traits, increasing the likelihood of the body mistakenly attacking its own brain tissue. 🧠 ms-uk.org/news/genetic...
ms-uk.org
Genetic trait clue in EBV and MS link puzzle
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Reposted by MS-UK
ukmsregister @ukmsregister.bsky.social · 19/11/2025
Earlier this month Rod from the Register joined MS-UK @ms-uk.bsky.social for an online information session. You can read more about the event, or sign up to watch the recording, by following the link below. Thank you MS-UK for inviting us along! www.ms-uk.org/ms-register-...
ms-uk.org
How the MS Register helps everyone with MS
Our MS Register introduction session will explain how it works, and share how this valuable resource is helping shape the future of MS.
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MS-UK @ms-uk.bsky.social · 25/11/2025
💜 Winter can bring new challenges when you live with MS. If you could share one winter wellbeing tip with someone newly diagnosed, what would you tell them? Comment below to share yours! #MSUK #MultipleSclerosis #MSCommunity #WinterWellbeing
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MS-UK @ms-uk.bsky.social · 25/11/2025
✨ New study explores UV phototherapy for MS Researchers have found that narrowband UVB therapy may help reduce inflammation and improve fatigue for some people living with MS. Click the link below to read the full update. 💜 ms-uk.org/news/ultravi... #MS #Phototherapy #MSResearch #MSStudy
ms-uk.org
Ultraviolet light therapy may help reduce inflammation in MS
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MS-UK @ms-uk.bsky.social · 21/11/2025
Meet Britt, our Fundraiser of the Month! 💜 Since 2023, Britt has raised an amazing £3,373 through her monthly craft and tabletop events. Read Britt’s full story below! 😊 ms-uk.org/blog/fundrai... #MSUK #MSCommunity #FundraiserOfTheMonth #TeamPurple #MSSupport
ms-uk.org
Fundraiser of The Month – November
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MS-UK @ms-uk.bsky.social · 13/11/2025
💜 Reach for the sky! Lisa McAdams from Staffordshire is taking her fundraising to new heights as she prepares for an indoor flight challenge at iFLY Manchester! ✈️ Read Lisa’s inspiring story and find out how you can support her challenge below 👇 ms-uk.org/blog/reach-f... #MSUK #MSCommunity #MS
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MS-UK @ms-uk.bsky.social · 13/11/2025
💜 As the days grow colder, we know how MS symptoms can sometimes feel harder to manage. That’s why we’ve created our Winter Wellbeing Hub, which explores mental health, fatigue, diet, supplements, and more. Click the link below ❄️ ms-uk.org/winter-wellb... #MultipleSclerosis #MSUK #WinterWellbeing
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MS-UK @ms-uk.bsky.social · 13/11/2025
🧬 MS News – Epstein-Barr virus antibodies don’t predict MS progression Click here to find out more - ms-uk.org/news/epstein... #MSUK #MSNews #MultipleSclerosis #MSResearch #EpsteinBarrVirus #MSCommunity
ms-uk.org
Epstein-Barr virus antibodies don’t predict MS disease progression
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MS-UK @ms-uk.bsky.social · 24/10/2025
Join us on Monday 27 October at 3pm, for Dr Gretchen's session on 'making the most of mobility aids'. 💜 We will look at when to start using an aid, how to choose the right option, simple adjustments for comfort and safety, and how to use it well. Register here - ms-uk.org/mobility-aid... #MS
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MS-UK @ms-uk.bsky.social · 24/10/2025
#TeamPurple zipped over Twickenham Stadium and raised over £4,000 for MS-UK! Thank you to every brave flyer for taking on this incredible challenge. Your support helps people affected by MS to live healthier, happier lives. 💜 Email shannon@ms-uk.org or call 01206 226500 to do your own challenge!
#TeamPurple zipped over Twickenham Stadium and raised over £4,000 for MS-UK!
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MS-UK @ms-uk.bsky.social · 24/10/2025
News - Have scientists found the reason women are more likely to develop MS? 👀 Researchers have identified a gene that may help explain why women are more likely than men to develop neurological conditions such as MS and Alzheimer’s disease. #MS #MSResearch #MSStudy ms-uk.org/news/have-sc...
ms-uk.org
Have scientists found the reason women are more likely to develop MS?
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MS-UK @ms-uk.bsky.social · 24/10/2025
Five ways smoking can impact MS 🚬 This month is Stoptober, and quitting for 28 days can make you five times more likely to quit for good. Our new blog explains how smoking can affect MS, from risk and progression to treatment response. #MS #MultipleSclerosis #Stoptober ms-uk.org/blog/5-ways-...
ms-uk.org
Five ways smoking can impact multiple sclerosis
Read our blog about the impact of smoking on multiple sclerosis, you'll be surprised to know what a change it can make.
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MS-UK @ms-uk.bsky.social · 21/10/2025
AERO-MS is a new study at the University of Plymouth looking at how side effects are collected and shared in MS rehabilitation trials. Laura is inviting adults with MS to take part. Click the link below to get involved! 💜👇 #MSUK #MultipleSclerosis #Research ms-uk.org/blog/can-you...
ms-uk.org
Can you help with an MS rehabilitation side-effects study?
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MS-UK @ms-uk.bsky.social · 08/08/2025
New study explores how pregnancy affects MS 🤰🧬 Researchers at Queen Mary University of London are investigating why many women with MS experience fewer relapses during pregnancy. 💜 Read more and find out how to get involved here - ms-uk.org/blog/an-inte...
ms-uk.org
An interesting new study on pregnancy and MS
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MS-UK @ms-uk.bsky.social · 01/08/2025
💜 Have questions about MS treatments? We’re here to support you. The MS-UK Helpline can help you understand your options, talk through how they work, and signpost you to trusted information. 📞 Call 0800 783 0518 📧 Email info@ms-uk.org 💬 WhatsApp 07824 708897
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MS-UK @ms-uk.bsky.social · 01/08/2025
Have you been pregnant since being diagnosed with MS? 🤰 We're updating our Pregnancy and MS Choices booklet and would love your input. If you're happy to share your experience, please take a moment to fill out our short survey. 💜 👉 ms-uk.org/choices-preg... #MultipleSclerosis #MSCommunity
ms-uk.org
Choices Pregnancy survey
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MS-UK @ms-uk.bsky.social · 01/08/2025
Last chance to ride for MS-UK! 🚴‍♀️ Take on the iconic London to Brighton Cycle this September and help support people affected by multiple sclerosis 💜 📅 Event date - Sunday 14 September 2025 ⏳ Deadline to sign up - Friday 08 August booking.skylineevents.co.uk/book/v2k46kp...
booking.skylineevents.co.uk
New Booking - Skyline Events
Skyline Events
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MS-UK @ms-uk.bsky.social · 01/08/2025
We recently trained 360 Department for Work and Pensions professionals to help them better understand multiple sclerosis (MS) and to equip them with the tools to support members of the MS community. Get in touch at elearning@ms-uk.org or call 01206 226500 ms-uk.org/news/ms-uk-e...
ms-uk.org
MS-UK educates DWP professionals about MS
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MS-UK @ms-uk.bsky.social · 01/08/2025
Living with MS can come with extra pressures, and stress can make things feel even harder. 💜 In our latest blog, we explore how stress may affect MS symptoms, why it’s important to spot the early signs, and some practical ways to feel more in control. ms-uk.org/blog/managin...
ms-uk.org
Managing stress when you have MS
The study found that people who experienced these events were 17-30% more likely to develop MS, with the strongest association seen in the five years before symptoms began. Interestingly, women appeared to be more affected by stress-related MS risk than men.
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MS-UK @ms-uk.bsky.social · 27/06/2025
MS News - Breakthrough early warning biomarker for MS relapse found A new study has confirmed that serum neurofilament light chain (sNfL), a blood-based biomarker, can predict relapses in multiple sclerosis (MS) up to a year before symptoms appear. ms-uk.org/news/breakth...
ms-uk.org
Breakthrough early warning biomarker for MS relapse found
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MS-UK @ms-uk.bsky.social · 27/06/2025
💜 'One of my favourite quotes is, “Just because I could do it yesterday doesn’t mean I can do it today, but just because I can’t do it today doesn’t mean I can’t do it tomorrow.”' - Will #LifeIsForLiving #MSUKSupport #MSCommunity #MSStories #MultipleSclerosis ms-uk.org/blog/life-is...
ms-uk.org
Life is for Living! Meet Will
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MS-UK @ms-uk.bsky.social · 27/06/2025
💤 Beating MS fatigue In our latest living well with MS blog, we take a closer look at MS fatigue, what causes it, and practical, evidence-based ways to ease its impact on daily life. #LivingWellWithMS #MSfatigue #MultipleSclerosis #MS #MSUK ms-uk.org/blog/beating...
ms-uk.org
Beating MS fatigue
Fatigue and MS often go hand-in-hand. In fact, fatigue is one of the most common and challenging symptoms of multiple sclerosis (MS).
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MS-UK @ms-uk.bsky.social · 03/06/2025
Rabiah shares what helps her live fully with MS – from walking around London when she can, to learning new ways to manage symptoms and shift her mindset. 💜 Right now, she’s taking part in one of MS-UK’s mindfulness courses. Comment below one thing you are looking forward to this week! 💜 #MS
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MS-UK @ms-uk.bsky.social · 03/06/2025
🗓️ Coming up in June - MS-UK's online activities This month includes 🧘 Qigong, chair yoga, and guided meditation with Tracy Harris 💪 Weekly accessible exercise sessions with Alan Pearson 🧠 Masterclasses on balance And lots more! www.ms-uk.org/ms-uk-online...
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MS-UK @ms-uk.bsky.social · 03/06/2025
News - New study identifies key factors linked to faster MS progression 👇 A recent analysis of data from over 42,000 people with multiple sclerosis (MS) has highlighted several factors that may significantly increase the risk of disease progression. www.ms-uk.org/news/new-stu...
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MS-UK @ms-uk.bsky.social · 13/05/2025
Join MS-UK, the Royal College of Nursing Neuroscience Forum and the Neurology Academy for a free webinar designed to help you feel more confident and equipped to support people living with multiple sclerosis (MS). 🗓 22 May 2025 🕓 4pm - 5.15pm (BST) 📍 Online via Zoom ms-uk.org/blog/calling...
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MS-UK @ms-uk.bsky.social · 09/05/2025
🧪 A new study has found a potential link between thyroid hormone levels and the risk of developing MS. The study suggests that elevated levels of the thyroid hormone free thyroxine (FT4) are linked to an increased the risk of developing multiple sclerosis (MS). ms-uk.org/news/thyroid...
ms-uk.org
Thyroid hormone linked to MS development
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MS-UK @ms-uk.bsky.social · 09/05/2025
💜 'Life is indeed worth living, and though I have MS, I am still Becca – just Becca who happens to have MS.' New mum Rebecca shares how MS-UK’s support helped her feel informed, empowered, and hopeful about her future. 👉 Click the link below to read her story. ms-uk.org/blog/life-is...
ms-uk.org
Life is for living! Meet Rebecca
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MS-UK @ms-uk.bsky.social · 09/05/2025
News - Study finds specific gut bacteria linked to MS 🦠 New research suggests that certain gut bacteria may raise the risk of developing multiple sclerosis (MS), opening up potential new paths for treatment. ms-uk.org/news/study-f...
ms-uk.org
Study finds specific gut bacteria linked to MS
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MS-UK @ms-uk.bsky.social · 09/05/2025
News - New biomarker to predict MS progression discovered A new study has identified a specific type of brain lesion, known as a broad rim lesion (BRL), as a potential marker for rapid progression in multiple sclerosis (MS). ms-uk.org/news/new-bio...
ms-uk.org
New biomarker to predict MS progression discovered
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MS-UK @ms-uk.bsky.social · 09/05/2025
💜 Life is for living – and no one knows that better than the MS community. MS-UK supports people living with MS every day so they can choose how they want to live with MS. 👉 What does life is for living mean to you? Tell us in the comments or tag us using #LifeIsForLiving
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MS-UK @ms-uk.bsky.social · 15/04/2025
News - AI tool can track effectiveness of MS treatments in study 🧠 Researchers at University College London (UCL) have developed an artificial intelligence (AI) tool that can accurately monitor how MS progresses and how well treatments are working👇 ms-uk.org/news/ai-tool...
ms-uk.org
AI tool can track effectiveness of MS treatments in study
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MS-UK @ms-uk.bsky.social · 08/04/2025
Ultra-processed foods – how do they affect MS? 🧠 New research shows a link between ultra-processed foods (UPFs) and increased MS severity. Find out why what you eat really matters, how to spot a UPF, and what to look out for on food labels. Click below to find out more 👇 ms-uk.org/blog/you-are...
ms-uk.org
Ultra-processed foods - you are what you eat
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MS-UK @ms-uk.bsky.social · 26/03/2025
Have you tried a DMT for MS? 💊 We’re refreshing our DMT Choices booklet and would love to include your thoughts and experiences. Click here to fill in our short survey - ms-uk.org/dmt-survey/
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MS-UK @ms-uk.bsky.social · 20/03/2025
Give your loved ones peace of mind 💜 Writing a Will is one of the most important things you can do to protect your family and ensure your wishes are followed. With MS-UK’s free Will writing service, you can take this important step at no cost to you. 🔗 Visit www.ms-uk.org/charity-gift-in-will/
ms-uk.org
Leave a lasting legacy gift in your Will
You can help MS-UK continue making a difference for people with MS for the next generation by leaving a charity gift in your Will.
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