iiinova — where your digital self keeps evolving

Erin Lee @erinmarilee.bsky.social · 02/10/2026

On Sunday October 11, Nate and I will compete in The Big Sit to raise funds for #MECFS research and we’d love your help! The Big Sit is a birding event where you try to find as many species as possible while sitting in a 17 foot circle. There are 2 ways you can help:

A white male and female couple in their 40s smile in front of a fallen southern live oak tree bleached by the sun. They are holding binoculars and smiling because they just spotted an endangered piping plover in the wild!

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Charlie Warzel @cwarzel.bsky.social · 30/09/2026

There is a moment at the very very end of Abdul El-Sayed's podcast with Ezra Klein (book recommendation section) where he talks about the idea of "speaking truth to pain" and this will be staying with me for an extremely long time. www.nytimes.com/2026/09/25/o...

But there’s also something about truth to pain. We talk a lot about truth to power, but I think it’s actually a lot harder to speak truth to pain. I say that as someone who went to medical school, realizing that in a lot of our politics right now, we’ve got to get a lot better at speaking truth to pain if we’re going to get through some of these challenges that we have.

What does “truth to pain” mean?

It’s one thing to look power in the eye and say: You’re wrong about this. But there’s a way in which pain is very difficult to reason with. Because when somebody is in their pain, they’re in their trauma. They see that pain, and they may not see what’s causing it.

I remember just very explicitly being in a trauma ward with a gunshot wound patient and watching this big guy with his hand on his gunshot wound. All the folks are trying to pull his hand off his pain, that point of his gunshot wound, this clear vulnerability.

And this emergency room doctor had the presence of mind to be like: Everyone, stop. And she looks him in the eyes, and she’s like: I get that really hurts, and I’m so sorry that you’re here. You don’t want to be here. We don’t want you to be here. But if you don’t let us fix this, you could die. So I’m going to take your hand, and I’m going to move it off, OK? Because I need to get there so that you can live.

She was speaking truth to pain. He understands he’s at the hospital, he needs care, but he also doesn’t want anybody to touch the wound. Which is a natural thing. And I think it is a really great metaphor for how we think about a lot of these challenges we talked about today.

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George Monbiot @georgemonbiot.bsky.social · 24/09/2026

Here's today's column on the astonishing, ongoing mistreatment of people with #ME/CFS. Please spread it far and wide: the only thing which can break the media's wall of indifference is seeing an article about the issue go viral. Thank you. 1/2 www.theguardian.com/commentisfre...

theguardian.com

Abandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed | George Monbiot

Changes in guidance and science seem to have little impact on millions of devastated lives. It’s a social crisis playing out behind closed doors, says Guardian columnist George Monbiot

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Erin Lee @erinmarilee.bsky.social · 21/09/2026

I’m teaching my local church ladies about #MECFS on Thursday and am looking for a high level summary of what we know today about the mechanisms of the disease. @bhanlon15.bsky.social @exceedhergrasp1.bsky.social any 1-pagers out there you recommend?

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Wilhelmina Jenkins @wilhelminaj.bsky.social · 04/09/2026

Friends, a major problem in the demographics of ME/CFS studies is the absence of Black participants. If you know of any Black adults with ME/CFS, please suggest that they complete this survey. I have completed it and it is relatively untaxing. Thanks!

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Erin Lee @erinmarilee.bsky.social · 01/09/2026

Every year we decide to do a lord of the rings themed family Halloween costume, and every year the October Slide derails all are plans. So this year I started making costumes in August. And I am pleased to share that as of today the kiddos’ hobbit costumes are ready! Next up: Gandalf!

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Erin Lee @erinmarilee.bsky.social · 31/07/2026

Minutes after I discovered The Great British Sewing Bee had disappeared from Roku, a political candidate texted me asking for $5. $5??? In this economy??? Without my emotional support sewing show?? How dare you sir??? *now that my show is back, I have chosen to forgive the candidate.

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Erin Lee @erinmarilee.bsky.social · 12/07/2026

I submitted my comment! Solve did a great job breaking down the parts of the rule that are most troubling for #MECFS research. It only took me 15 minutes. Now it’s time for me to rest and recover. ❤️

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Trung Le Nguyen @trungles.com · 28/05/2026

So I’ve started Pride and Prejudice, and already I feel bad for Mrs Bennet.

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Erin Lee @erinmarilee.bsky.social · 05/07/2026

#NEISvoid I’ve crashed hard from smoke inhalation from the fireworks. I’m resting all day, but is there anything else I can do to help my body recover quickly?

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Erin Lee @erinmarilee.bsky.social · 03/06/2026

I guffawed. But also, good idea!

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blaine @jblainefoster.bsky.social · 03/06/2026

have the mind-body researchers considered doing some amygdala retraining about how they interpret every criticism of their work as "being silenced"?

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Brian Phillips @brianphillips.lol · 28/05/2026

Here's the serious bit for anyone who'd rather skip the 4000 words of jokes

Because the truth is, tech doesn't have an image problem. It doesn't have a message problem. It has an intention problem. What's wrong with the axe murderer who broke into my house is not that he hasn't successfully persuaded me to buy into his narrative. What's wrong is that he's trying to kill me with an axe. Similarly, when you launch a product that's designed to put millions of people out of work, block access to sources of verifiable truth, replace human creativity with slop, and lower the barriers to every sort of atrocity, the problem isn't that you haven't told the public a good story about those things. The problem is that you are trying to do them. (
There are things in the world that are more important than money. The fact that you seem not to believe this, that you seem to think any motive beyond ruthless acquisitiveness is fake, dishonest, or childish, is the heart of your problem. Your attitude is not by any means unique to tech, but the

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🎃 Killy Witches 👻 @tillybridges.bsky.social · 19/05/2026

CIS PEOPLE TIME TO STEP UP it’s once again time to yell at our bad government via online comment form the FCC is trying to make trans and nonbinary content require special ratings on shows GLAAD has a good writeup on it below TELL ‘EM NO direct link to comment form: www.fcc.gov/ecfs/filings...

glaad.org

Tell the FCC that LGBTQ Stories Don’t Need a Warning Label | GLAAD

The Federal Communications Commission (FCC) is targeting LGBTQ stories. They are trying to control what you see on television. This government overreach is dangerous...

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Sherrilyn Ifill @sifill.bsky.social · 14/05/2026

Feeling overwhelmed with all of this. LISTEN. Another Louisiana resident (Marshawn is the only name we have) testifies against the state’s racial gerrymander, speaking truth to power up and down the hearing room and predicts how this story will end. Speak your truth, fight and believe.

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Anil van der Zee @anilvanderzee.bsky.social · 01/05/2026

‼️ BURIED ALIVE WITH M.E.‼️ For #MEAwarenessMonth I made a severe ME body‑bag “dance” film about death within the ME community. youtu.be/XhrAhGkrGuQ?... I also joined the online expo ME Kills by A Quiet Storm, which goes live on May 12th, 1/ #pwme #myalgicE #millionsmissing

youtu.be

Buried Alive with M.E. (with subtitles)

YouTube video by Anil about ME

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Sunny Moraine @dynamicsymmetry.bsky.social · 07/04/2026

It’s so easy right now, feeling and really in practical terms *being* so powerless, to start feeling like everything is shit and nothing is worth anything anyway That’s pathetic cope and you should reject it

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Sunny Moraine @dynamicsymmetry.bsky.social · 07/04/2026

Second, once you’ve done that: Try to remember what we’re fighting for and working toward This wouldn’t all be so frightening and emotionally devastating if we didn’t care about each other, if we felt like we genuinely had nothing to protect. Think intentionally about what those things are

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Sunny Moraine @dynamicsymmetry.bsky.social · 07/04/2026

I’ve been seeing a lot of “what the fuck am I even supposed to DO today” and feeling that myself, and after some thought, here’s where I’ve come down First, call your house rep/senators. Yes, I know that feels pointless. Do it anyway. Helpful script below bsky.app/profile/cele...

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5 Calls @5calls.org · 07/04/2026

🚨🚨🚨 Congress must return from recess and use every tool it can to stop Trump from committing war crimes and unilaterally launching a nuclear war. That includes impeachment. Call your reps. NOW. 🔥📞🔥 Info, numbers, and script @ 5calls.org

5calls.org

5 Calls

Spend 5 minutes. Make 5 calls. Make your voice heard.

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Erin Lee @erinmarilee.bsky.social · 07/04/2026

The whiplash of parenting in this era: Calls reps: Hi, the president threatened to destroy an entire civilization today. I’d like to know what you’re doing to stop him today. Thanks, I’m scared. Calls excitedly to the littles: OK kids! Who wants to help mommy cook eggs in the instant pot?!

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Miles W. Griffis @mileswgriffis.bsky.social · 05/03/2026

Can anyone point me to a resource on how sign "Long COVID" in American Sign Language? I've seen various ways from spelling it out, to using the sign for "Coronavirus" or "COVID-19" followed by "Long" or "Stay". I'm curious if there is any official guidance/recommendations. Many thanks 🙏

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It's ME(Jaime) @exceedhergrasp1.bsky.social · 27/02/2026

Hey, folks. If you're able to donate to a Kansas LGBTQ+ or trans rights org, please do so! Check out the thread below for more details. I donated $25 but I'm sure anything would be appreciated. paypal.com/donate/?host...

paypal.com

Donate to LGBTQ Foundation of Kansas

Help support LGBTQ Foundation of Kansas by donating or sharing with your friends.

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Keith @keithdunn.bsky.social · 15/02/2026

Being a scientist, he ran on the metric system - 1km/hr.

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Keith @keithdunn.bsky.social · 15/02/2026

28 hours into the #BM100 1 runner is on loop 1 and loop 2; 4 runners are on loop 3.

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Keith @keithdunn.bsky.social · 14/02/2026

Word is one of the runners was seen climbing Rat Jaw shirtless. #BM100

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emilyzelda.bsky.social @emilyzelda.bsky.social · 14/02/2026

This is just to say I have eaten the runners that were in the forest And which you were probably tracking for inspo Forgive me they were delicious so sweet And so lost #BM100 #BM100fangirling

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Erin Lee @erinmarilee.bsky.social · 05/02/2026

Hi Meeps! I've been off socials for awhile, but I'm back to invite you to a party! After big funding losses for the #MECFS community, we need a pick me up. We would love to introduce you to ME Action Georgia’s favorite sporting event of the year - The Barkley Marathons! (1/3)

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Alt CDC (they/them) @altcdc.altgov.info · 02/11/2025

While SNAP is in limbo between politics and courts, grocery stores and apps have offers for both SNAP recipients and people who want to donate food (e.g. Instacart Community Carts). Would’ve been great if these businesses had advocated against politicizing SNAP with the shutdown, but here we are.

progressivegrocer.com

Instacart Offers Support for SNAP Recipients, Food Banks

Online platform 1 of several companies stepping into breach as government shutdown threatens benefits

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DCapTO @dcapto.bsky.social · 29/10/2025

😭💔 😷 #CovidIsNotMild Reposting with alt text

Social post by Rebecca O'Connor @rebeccaoco
Replying to @Saffiya_Khant @TrudiG and 2 others
I actively hated lockdowns, cried my way through them and felt I was neglecting my children while they were stuck at home and I tried to work. Would have that again forever, compared to what I have now, which is two chronically ill children with long covid who can't function
9:31 PM - 21 Oct 25

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Julia Métraux @juliametraux.bsky.social · 28/10/2025

I get these fact-checks re tylenol/Autism lawsuit but what is very much needed is messaging of "If you think your kids' autism diagnosis is that devastating, please seek help before your child feels the effect of your anti-autism views."

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New Disabled South @newdisabledsouth.org · 28/10/2025

We are offering one time payments to disabled folks in the South who will not receive their SNAP benefits this month. If you need help, please find more information and details at ndsdj.org/snaphelp. If you’d like to donate to the fund, go to ndsdj.org/snapdonate We take care of each other ❤️

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Hank Green @hankgreen.bsky.social · 28/10/2025

“Leaders not Tweeters” is the rebrand America needs.

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Julia Métraux @juliametraux.bsky.social · 27/10/2025

If you're going to volunteer at a food bank because of the current times, please consider wearing a mask when helping distributing food. Even if they're not wearing a mask themselves, poor people have enough to deal with right now, getting an infectious disease just adds to the burden.

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Bethany Brookshire @beebrookshire.bsky.social · 27/10/2025

I know a lot of people (cough Millennials) feel like they need to START a thing, START a food bank, build a little free food pantry. My friends, my loves, my dears. Don't start. JOIN. These exist. They have community ties! They have some funding! Accountability! Regulations!

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castawayfarm.bsky.social @castawayfarm.bsky.social · 26/10/2025

Feeding America has a page where you can input your zip code and it'll show you all of the food banks near you overlaid on a map. If you need it, it's there. If you don't need it, think about donating money if you have it and your time if you don't. www.feedingamerica.org/find-your-lo...

feedingamerica.org

Find Your Local Food Bank | Feeding America

Find the Feeding America member food bank nearest you. Over 200 member food banks can connect you with free food, food pantries, soup kitchens, and mobile pantries in your community.

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Erin Lee @erinmarilee.bsky.social · 26/10/2025

I love this whole thread that looks at how things associated with femininity (like decorating the front porch) are important for relationship building which is vital for community organizing.

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Julia Métraux @juliametraux.bsky.social · 23/10/2025

What if all the rich members of Congress donated their salary to their local food banks....

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It's ME(Jaime) @exceedhergrasp1.bsky.social · 21/10/2025

Actual @lastweektonight.com is here? Resharing an advocacy thread from last year! :D

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Jill Weinberger @jillybobww.bsky.social · 18/10/2025

Brb just writing a screenplay about a struggling inflatable costume factory in a wholesome but dying American small town that unexpectedly helps save democracy, and democracy saves it right back.

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#MEAction Network @meactnet.bsky.social · 18/10/2025

We know a lot of people are wanting to participate in actions or protests right now. #MEAction has a Protest Guide for those with ME or other energy-limiting chronic disease to help! Find it here: www.meaction.net/_files/ugd/b... #pwME #MECFS #ChronicIllness #protest #spoonie

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Erin Lee @erinmarilee.bsky.social · 18/10/2025

I’m on Day 4 of a migraine, but that’s nothing compared to what people are suffering from USAID cuts, unconstitutional deportations, illegal military actions, and the loss of healthcare access. Thanks to @meactnet.bsky.social for the perfect #MECFS protest shirt. #NoKings Douglasville, Georgia

A woman with a tired smile stands behind a protest crowd of a couple hundred people. She is wearing noise cancelling headphones, migraine glasses, and a teal shirt that says “I saved my spoons for this. #MEAction”. She is holding American flags in each hand.

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Sunny Moraine @dynamicsymmetry.bsky.social · 17/10/2025

Block. Do not engage. They are here ONLY to get engagement, why the fuck would you give them the one thing they came here to get

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Kelly @broadwaybabyto.bsky.social · 18/10/2025

US Government accounts have arrived on Bluesky. Block on sight. Protect your digital space. Be aware that the DHS account in particular is known to quote dunk on regular people to encourage their followers to harass them. The detach quote function will come in very handy here…

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Jo @jokar.bsky.social · 17/10/2025

Here’s a list: bsky.app/profile/did:...

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