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Julia Maués

@itsnotpink.bsky.social
856 followers 315 following 45 posts

She/Her. Living w #MBC since '13 & advocating for people w MBC to LIVE. #AntiRacist #InclusionPledge. Co-founder of @graspcancer.bsky.social & @therightdose.bsky.social. 🇧🇷🇺🇸🇩🇪

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Julia Maués @itsnotpink.bsky.social · 30/06/2025
What an honor to join the Executive Board of @bigxresearch.bsky.social! As someone living w metastatic breast cancer & connected to many other patients, I’m excited to support research that reflects what truly matters to people dealing with this disease. 🔗 bigagainstbreastcancer.org/about-big/go...
bigagainstbreastcancer.org
Governance
BIG is dedicated to supporting all research stakeholders and facilitating ethically sound human research for breast cancer.
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International Cardio-Oncology Society @icosociety.bsky.social · 19/05/2025
On this episode of #HeartToHeart, we're joined by @itsnotpink.bsky.social ‬of @graspcancer.bsky.social. Julia shares her treatment journey with IC-OS President @susandent.bsky.social and treating physician Ana Barac, MD. Tune In: tinyurl.com/bpju4ec4
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Fumiko Ladd Chino, MD FASCO @fumikochino.bsky.social · 19/05/2025
🎙️It was my pleasure to speak with Dr. Erin Roesch & phenomenal patient advocate @itsnotpink.bsky.social about pregnancy associated cancer with a focus on #breastcancer, the most common cancer dx during pregnancy. #bcsm @ascocancer.bsky.social @oncoalert.bsky.social ascopubs.org/do/pregnancy...
ascopubs.org
Pregnancy and Breast Cancer | Podcast | ASCO Publications
Dr. Chino talks with Dr. Erin Roesch and patient advocate Julia Maues about pregnancy associated cancer with a focus on breast cancer, the most common cancer diagnosed during pregnancy. This discussio...
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Fumiko Ladd Chino, MD FASCO @fumikochino.bsky.social · 06/05/2025
With ⬆️ outcomes, pts with #breastcancer have prolonged survivorship often lasting decades but may carry chronic toxicities; both ongoing tx of #MBC & long-term surveillance can add to the cumulative #financialtoxicity for #bcsm pts & families. @ascocancer.bsky.social @oncoalert.bsky.social #ASCO25 📖
ascopubs.org
Financial Toxicity and Breast Cancer: Why Does It Matter, Who Is at Risk, and How Do We Intervene?
Financial toxicity, or the financial burden patients experience because of medical costs, can lead to negative patient effects including lower quality of life, compromised clinical care, and worse hea...
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Julia Maués @itsnotpink.bsky.social · 06/05/2025
“I have tried to live in a world that does not see color but have only succeeded in living in a world that does not see me.” www.statnews.com/2025/01/13/k...
statnews.com
‘My life’s purpose’: A neuroscientist wants to rewire mental illness treatment and remake the field he loves
Duke neuroscientist Kafui Dzirasa wants nothing less than to reengineer the brain’s electrical patterns to treat anxiety, depression, bipolar disorder, and schizophrenia.
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Our MBC Life @ourmbclife.bsky.social · 05/05/2025
Patient Advocate @itsnotpink.bsky.social discusses how @therightdose.bsky.social empowers patients in their treatment decision-making & how patients can use this information to communicate with their doctors. 🎧 Listen (all channels) or 🔗 buff.ly/1o6hJNe #PCDI #MBC #dosing #CanSky #BCSM
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Julia Maués @itsnotpink.bsky.social · 05/05/2025
58 years of life with metastatic breast cancer in this photo—made possible by public investment in cancer research. Now we’re tossing future progress down the drain with federal research cuts. 😢 #NBCCSummit #NBCConTheHill #BecauseScience
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Darcy Burbage, DNP, RN, AOCN @darcyburbage.bsky.social · 10/04/2025
First session of #ONSCongress on antibody drug conjugates presented by #ResearchToPractice! #ONS50 #oncsky
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Liz Szabo @lizszabo.bsky.social · 10/04/2025
How FDA layoffs may impact food safety www.wbur.org/hereandnow/2...
wbur.org
How FDA layoffs may impact food safety
Layoffs at the Food and Drug Administration are expected to reduce the FDA's workforce by 20%.
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Mike Thompson, MD, PhD, FASCO @mtmdphd.bsky.social · 09/04/2025
Continuing to Broaden Eligibility Criteria to Make #ClinicalTrials More Representative and Inclusive: ASCO–Friends of Cancer Research Joint Research Statement [Feb 9, 2021] @DrEdKim et al. @rschilsky @ASCO @CancerResrch @CCR_AACR ow.ly/jmPM50DvH0M #ctsm @FDAOncology
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NPR @npr.org · 09/04/2025
Amy Sherald, who painted former First Lady Michelle Obama's portrait in 2018, has a major survey of her work opening this week at the Whitney Museum of American Art in New York.
npr.org
Painter Amy Sherald asks: What is American?
Amy Sherald, who painted former First Lady Michelle Obama's portrait in 2018, has a major survey of her work opening this week at the Whitney Museum of American Art in New York.
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Estelamari Rodríguez @latinamd.bsky.social · 08/04/2025
Florida @ASCO Delegation at Capitol Hill this morning for #ASCOAdvocacySummit @RManochakian @atperez_md @DevikaDasMD @Sonampuri
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Stephanie L. Graff, MD FACP FASCO @drsgraff.bsky.social · 08/04/2025
I am joining over 150 oncologists this week at the #ASCOAdvocacySummit in Washington, D.C. to urge Congress to help address existing #drugshortages and prevent future shortages of lifesaving and life-prolonging cancer drugs. @ascocancer.bsky.social
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Julie Gralow @jrgralow.bsky.social · 08/04/2025
Great @ascocancer.bsky.social Day on the Hill today - advocating for funding for cancer care and research. Favorite meeting was with Bad Bunny, Lucy, and @repemilyrandall.bsky.social from Washington State - great supporter of access to health care for all!
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Stephanie L. Graff, MD FACP FASCO @drsgraff.bsky.social · 08/04/2025
An honor to meet w/ #RepGabeAmo this AM w/Drs. Mega & Strenger to discuss key #ASCOAdvocacySummit asks including consistent funding for the NIH, NCI, and ARPA-H; the Improving Seniors' Timely Access to Care Act; partnering on a Comprehensive Solution to End Drug Shortages. @ascocancer.bsky.social
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Stephanie L. Graff, MD FACP FASCO @drsgraff.bsky.social · 08/04/2025
Want to join us in our efforts? Visit asco.org/actnetwork to contact your Members of Congress about the issues that matter most to you! Advocates are also on the Hill to fix #PriorAuth and protect #CancerResearch funding. #ASCOAdvocacy @ascocancer.bsky.social
asco.org
Engage in ASCO's Advocacy Efforts
Write a letter to your lawmaker today!
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Stephanie L. Graff, MD FACP FASCO @drsgraff.bsky.social · 08/04/2025
An honor to meet w/Rep.Magaziner staff, Raisa Majid with Drs. Mega & Strenger to discuss key #ASCOAdvocacySummit asks including consistent funding for the NIH, NCI, and ARPA-H; the Improving Seniors' Timely Access to Care Act; partnering on a Solution to End Drug Shortages. @ascocancer.bsky.social
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Fumiko Ladd Chino, MD FASCO @fumikochino.bsky.social · 08/04/2025
🇺🇸 #ASCOAdvocacySummit with my @ascocancer.bsky.social Leadership Development Program friend Dr Shilpa Gupta. We spoke to our elected officials about issues that directly impact patients: research funding, #priorAuth, & drug shortages. Join today w/ the ACT Network: asco.quorum.us/action_center/
Two woman in front of the capital on a windy day
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@doublewhammied @doublewhammied.bsky.social · 07/04/2025
"Why would a #metastatic #cancer patient need any more stress? Why slow down the research when cancer rates are on the rise, particularly with young people under 50?” 🤦 Great questions! #CanSky #MedSky #ScienceSky #crcsm #colorectalcancer www.washingtonpost.com/science/2025...
washingtonpost.com
NIH scientists have a cancer breakthrough. Layoffs are delaying it.
A big step forward in cancer therapy has been slowed by layoffs and new restrictions at the National Institutes of Health, where it was developed.
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Roberta Lombardi - Infinite Strength @infinitembc.bsky.social · 04/04/2025
"Metastatic breast cancer is the worst club with the best people." is truly a saying that resonates for so many. Watch the full video, plus all of the other presentations from our 2025 MBC Conference here: www.infinitestrength.org/blog/metasta...
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Wendy Woodward, MD, PhD @ibcradiation.bsky.social · 03/04/2025
www.wired.com/story/doctor...
wired.com
Doctor Behind Award-Winning Parkinson’s Research Among Scientists Purged From NIH
Leading scientists at the National Institutes of Health, the US’s leading medical research agency, were swept up Tuesday in the Trump administration’s latest firing blitz.
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Julia Maués @itsnotpink.bsky.social · 03/04/2025
“In 2023, Healio reported results of a systematic review that showed abstracts of randomized phase 3 clinical trials in gastrointestinal oncology frequently use subjective minimizing language to characterize serious toxicities.”
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Martha Carlson @marthacarlson.bsky.social · 03/04/2025
Once at cancer mtg where a drug was called “tolerable” from the stage w/high low-grade SE % & at least 1 grade 5, which a more experienced patient told me meant death. Also fwiw, pls partner with patients themselves, who are not mentioned as sources of knowledge here #cansky #language #patients
Article quote about the serious consequences on quality of life of continuous low-grade side effectsA list of possible collaborators for improving adherence to guidelines of treatment toxicity reporting, which does not specifically name patients themselves nor their nonprofit representatives
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Dana-Farber’s Breast Oncology Center @dfcibreastonc.bsky.social · 03/04/2025
Watch recordings from the 2024 Breast Cancer in Young Adults Forum! 🎥 💬 Young & Strong Panel: 5 young adults share their journeys. 🎙️ Keynote: Prof. Dame Lesley Fallowfield on better doctor-patient communication. Watch here ⬇️ youtube.com/playlist?lis... #YoungAdultCancerAwarenessWeek
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Dana-Farber’s Breast Oncology Center @dfcibreastonc.bsky.social · 02/04/2025
Dr. Jennifer Ligibel, a @danafarber.bsky.social breast cancer oncologist, who specializes in #ExerciseResearch, discusses how strength training can help prevent #lymphedema.
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Sophiescott2.bsky.social @sophiescott2.bsky.social · 02/04/2025
Shingles vaccine =dementia prevention www.abc.net.au/news/health/...
abc.net.au
Shingles vaccine study finds 'huge protective signal' against dementia
The shingles vaccine could be an effective intervention for dementia, with a large "natural experiment" in Wales finding a substantial drop in dementia risk for those who received the vaccine.
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Dana-Farber’s Breast Oncology Center @dfcibreastonc.bsky.social · 02/04/2025
Patient preferences for CDK4/6 inhibitor treatments in HR+/HER2- early #BreastCancer, a discrete choice survey study recently published in the Breast Cancer Research and Treatment journal. 🔓https://pubmed.ncbi.nlm.nih.gov/39915434/ @elmayermd.bsky.social @maryamlustberg.bsky.social
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Wendy Woodward, MD, PhD @ibcradiation.bsky.social · 01/04/2025
Alarming #cansky stats. We need better and deeper implementation of quality metrics in healthcare to help patients get guideline concordant care wherever they seek it.
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Lisa Jarvis @lisamjarvis.bsky.social · 01/04/2025
Noticeably silent amid the upheaval at HHS? Big pharma. Every new drug has NIH somewhere in its DNA--and NIH funding supports the training of their workforce. Now they're finding out FDA isn't safe, either. Wrote about how keeping quiet isn't working My latest @opinion.bloomberg.com (gift link):
bloomberg.com
Big Pharma Needs to Get Off the Sidelines
The industry can’t continue to sit idly by while Robert F. Kennedy Jr. guts the nation’s public health agencies.
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Julia Maués @itsnotpink.bsky.social · 31/03/2025
Bravo, @tuftsmedschool.bsky.social & @drdonsdizon.bsky.social! But the biggest winners are the patients at Tufts and students who will learn from this brilliant oncologist and exceptional human being!! ❤️
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Denis Wirtz @deniswirtz.bsky.social · 27/03/2025
This is just horrible. The FY25 CR obliterates the already small funding allocations for the development of new treatments for patients with pancreatic cancer, lung cancer and glioblastoma.... for what purpose? These are three of the deadliest types of cancer.
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Eric Topol @erictopol.bsky.social · 27/03/2025
The first randomized trial of a generative A.I. chatbot shows promise for treating mental health symptoms in major depressive disorder, generalized anxiety disorder, eating disorder @ai.nejm.org open-access ai.nejm.org/doi/full/10....
ai.nejm.org
Randomized Trial of a Generative AI Chatbot for Mental Health Treatment
Generative artificial intelligence (Gen-AI) chatbots hold promise for building highly personalized, effective mental health treatments at scale, while also addressing user engagement and retention ...
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The OncoAlert Network 🚨 @oncoalert.bsky.social · 26/03/2025
Oncology HERE & NOW Webcast/Podcast Now Out JOIN Faulty 🚨 @realbowtiedoc.bsky.social 🇺🇸& @crisbergerot.bsky.social 🇧🇷 as they dive into #SupportiveCare , the future of #Telemedicine and much more! youtu.be/4WYdTostU7w
youtu.be
Oncology Here & Now: Supportive Care/ Telehealth with Dr. Joseph McCollom & Dr. Cristiane Bergerot
YouTube video by OncoAlert 360
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Joan Mancuso @joanmancusombc.bsky.social · 26/03/2025
Ablation not inferior to surgery. That it should be reserved for unresectable colorectal liver metastases needs re-evaluation. AEs any grade 19%v46%. Grades 3&4 7%v18%. No treatment-related deaths in ablation group. ascopost.com/news/februar...
ascopost.com
Thermal Ablation vs Surgical Resection of Small Resectable Colorectal Liver Metastases
In an interim analysis of a phase III noninferiority trial (COLLISION) reported in The Lancet Oncology, van der Lei et al found that thermal ablation was noninferior to surgical resection in terms of ...
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Fumiko Ladd Chino, MD FASCO @fumikochino.bsky.social · 26/03/2025
#Cervicalcancer dx are 📈 for those in their 30s & early 40s. Sadly a third of women in their 20s are overdue for #cancerscreening. Those in rural areas are screened less & die more. HPV vaccine (which PREVENTS cancer) uptake remains suboptimal. #gyncsm #ayacsm @lizszabo.bsky.social @nbcnews.com
nbcnews.com
Cancer caused by HPV is increasing in some women in the U.S.
The percentage of women screened for cervical cancer fell, especially in rural areas, as rates of the disease have been edging up among women in their 30s and 40s.
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Wendy Woodward, MD, PhD @ibcradiation.bsky.social · 25/03/2025
#nihsky #medsky #cansky Such a needless self-inflicted wound with immeasurable impact. 🤯🤯🤯
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Liz Szabo @lizszabo.bsky.social · 25/03/2025
www.nbcnews.com/health/cance...
nbcnews.com
Cancer caused by HPV is increasing in some women in the U.S.
The percentage of women screened for cervical cancer fell, especially in rural areas, as rates of the disease have been edging up among women in their 30s and 40s.
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Darcy Burbage, DNP, RN, AOCN @darcyburbage.bsky.social · 24/03/2025
Thank you #NCCS for these great resources on #palliativecare for individuals living w/cancer & their caregivers! canceradvocacy.org/resources/su... @pallonccop.bsky.social
canceradvocacy.org
Palliative Care Resources for Cancer Survivors and Caregivers - NCCS - National Coalition for Cancer Survivorship
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BK. Titanji @boghuma.bsky.social · 23/03/2025
99.4% of new drugs approved by the FDA are the product of NIH funded research. Remember this every time you see another headline on the NIH funding cuts. It will directly impact YOU. #ScienceNOTSilence
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Julie Gralow @jrgralow.bsky.social · 24/03/2025
New data published by IARC on global breast cancer incidence and mortality with 25 year projections: "By 2050, new cases & deaths will have increased by 38% & 68%, respectively, disproportionately impacting low-HDI countries" www.nature.com/articles/s41...
nature.com
Global patterns and trends in breast cancer incidence and mortality across 185 countries
Nature Medicine - Global analyses of breast cancer incidence and mortality show that only seven high-income countries are currently meeting the targets of the World Health Organization Global...
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Heide Ford Lab @heidefordlab.bsky.social · 20/03/2025
Was very excited to host Senator Hickenlooper in my lab this past week, as well as be involved in a panel discussion around the important of federal funding for science! coloradosun.com/2025/03/19/n...
coloradosun.com
Funding cuts to CU-Anschutz could erase years of medical research contributed by patients, advocates fear
NIH funding cuts could halt years of progress on medical research contributed by patients at Colorado's CU-Anschutz campus.
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Susan Dent MD FRCPC @susandent.bsky.social · 18/03/2025
Congratulations to the University of Rochester for being named the 73rd NCI designated Cancer Center!!!!
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Katie Coleman @katiekickscancer.bsky.social · 09/03/2025
Few things have broken my spirit more since my diagnosis than watching the dismantling of funding for cancer research. Watching friends die from cancer, wishing there was more for them, while simultaneously watching the advancements to keep us alive threatened, cut, and our systems dismantled has
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Apoorva Mandavilli @apoorvanyt.bsky.social · 09/03/2025
As President Trump seeks to purge the federal government of “woke” initiatives, agencies have flagged hundreds of words to limit or avoid, according to a compilation of government documents. www.nytimes.com/interactive/...
nytimes.com
The Words Federal Agencies Are Discouraged From Using Under Trump (Gift Article)
Federal agencies have issued guidance to employees on hundreds of terms to limit or avoid using. An analysis of government websites shows many of the same words being removed.
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Roberta Lombardi - Infinite Strength @infinitembc.bsky.social · 08/03/2025
@drdonsdizon.bsky.social talking about sexual health and intimacy for those with #MBC. His presentation will be up on our website in a few weeks and everyone touched by breast cancer at any stage should tune in! #metastaticbreastcancer #sexualhealth
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Maryam Lustberg MD MPH FASCO @maryamlustberg.bsky.social · 08/03/2025
Thank you Infinite Strength & Roberta Lombardi for this wonderful conference #mbc #bcsm
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Roberta Lombardi - Infinite Strength @infinitembc.bsky.social · 08/03/2025
@drsarahsammons.bsky.social and Lisa Backus speaking about the bond of trust between patient and physician. #metastaticbreastcancer #patientvoice
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Roberta Lombardi - Infinite Strength @infinitembc.bsky.social · 08/03/2025
@maryamlustberg.bsky.social @itsnotpink.bsky.social @marthacarlson.bsky.social and Ashley Johnson Fernandez are up next having an honest conversation about living with #MBC
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Lori Petitti @loripetitti.bsky.social · 08/03/2025
Kick ass breast cancer researchers and of course Steffi Oesterreich is one! www.bcrf.org/blog/womens-...
bcrf.org
Trailblazing Women in Breast Cancer Research | Breast Cancer Research Foundation
In honor of Women’s History Month, meet some BCRF-supported women researchers who have advanced our understanding of breast cancer and innovated care for patients
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