Janice Cowden @janicetnbcmets.bsky.social · 16/03/2025Providing P2P support is advocating in my mind! Thank you for being there, Deb, we all need to be heard. 010 0
Janice Cowden @janicetnbcmets.bsky.social · 16/03/2025One doesn’t have to be early stage to feel “imposter syndrome.” I’m amongst ~1-2% of people dx w/ stage 4 metastatic breast cancer (OligoMBC, tnbc) who’s NED & on no tx for 8.5 yrs. I’ve lost far too many friends over the yrs to stop advocating & sharing. It honors their life & legacy & offers hope. 141 0
Reposted by Janice CowdenMETAvivor @metavivor.bsky.social · 03/02/2025#METAvivor #MetastaticBreastCancer #Transparency #ThankYou #DonorPolicy 071 0
Janice Cowden @janicetnbcmets.bsky.social · 31/01/2025THIS‼️ 🔺brain mets occur in 15 - 30% of MBC pts; ⬆️ in #TNBC & #HER2+ 🔺delayed MRI=⬆️ adv disease, req. ⬆️WBR & ⬆️ dx LMD 🔺earlier det=earlier intervention = better outcomes for pts ”.. maybe we should be routinely performing brain MRIs in those patients”💡 #bcsm #BCBM www.medpagetoday.com/hematologyon...medpagetoday.comTime to Reconsider MRI to Detect Asymptomatic Brain Mets in Breast Cancer?Initial MRI showed asymptomatic brain lesions in 14% of patients, increasing to 25% at 6 months 0204 0
Janice Cowden @janicetnbcmets.bsky.social · 20/01/2025Spent the past 5 days with an incredible group of #advocates @ the 2025 Bag It Cancer #EscapeToThrive2025 leadership conference in Tucson, AZ. Miraval Resort & Spa was the ideal spot to #restore, #refresh, & #rejuvenate! 060 0
Janice Cowden @janicetnbcmets.bsky.social · 20/01/2025Honored to serve on this study with an incredible group of patient advocates & @ascocancer.bsky.social leaders! 020 0
Reposted by Janice CowdenJulie Gralow @jrgralow.bsky.social · 18/01/2025Thanks to the patient advocates who serve on our @ascocancer.bsky.social CDK study advisory group and data safety monitoring committee. @janicetnbcmets.bsky.social @paspears88.bsky.social connection.asco.org/do/empowerin...connection.asco.orgEmpowering Patients: ASCO’s Inclusive Approach to Clinical TrialsASCO's CDK4/6 Inhibitor Dosing Knowledge (CDK) Study prioritizes patient advocacy and engagement to improve outcomes and quality of life for individuals with cancer. 182 0
Reposted by Janice CowdenWendy Woodward, MD, PhD @ibcradiation.bsky.social · 14/01/2025www.nytimes.com/2025/01/08/p... Amazing story from a stage IV inflammatory breast cancer patient about finding love. #IBC #oncsky #canskynytimes.comFinding the Magic, Just in TimeClare Cory was 59 years old and had been single almost her whole life. She thought her love story was over. Then everything changed. 073 0
Janice Cowden @janicetnbcmets.bsky.social · 14/01/2025Happening tonight: Tuesday 1/14/25, 5 pm PT / 8 pm ET ~ #TumorBoardTuesday (#TBT) - HR+ #MBC! Join @zoezhang.bsky.social & @dr-rshatsky.bsky.social for this great educational session! #bcsm #PatientAdvocate 041 0
Reposted by Janice CowdenDr. RShatsky @dr-rshatsky.bsky.social · 05/12/2024#OncoSky #CanSky Listen up!! For those who used to enjoy Tumor Board Tuesday #TBT. We have been speaking to the wonderful Dr. P @mpishvaian.bsky.social and we will be starting some Tumor Board Tuesday “Sky Chats” over here soon! Stay tuned! #TBT is a wonderful learning/CME resource!!! #bcsm 43411 0
Janice Cowden @janicetnbcmets.bsky.social · 09/01/2025That’s great! I know many of us are still using Twitter regularly! (Me included) 010 0
Reposted by Janice CowdenDr. RShatsky @dr-rshatsky.bsky.social · 09/01/2025Hello all, wanted to let you know about a fantastic interactive learning opportunity! This Tuesday the 14th my lovely fellow and I will be presenting Tumor board Tuesday #TBT about new developments in HR+ MBC! It will be 5pm pacific, 8pm eastern! #bcsm #OncSky #CanSky #MedSky #breastcancer #MBC 4429 0
Janice Cowden @janicetnbcmets.bsky.social · 09/01/2025Thanks for the tag @dr-rshatsky.bsky.social, will share & try my best to be there! 110 0
Reposted by Janice CowdenDSP💙#🟦✡️ @drawstickpeople.bsky.social · 05/01/2025Especially important for our #oncosky community due to weakened immunity to infections. Please read this excellent educational public health tgread by @tmprowell.bsky.social 1113 0
Janice Cowden @janicetnbcmets.bsky.social · 05/01/2025📑 benefits of P2P online support, “..most reported was being better informed…a predominant aspect of group participation is the exchange of info, the sharing of knowledge related to the disease, tx methods, or rec.”https://link.springer.com/content/pdf/10.1007/s00520-024-09119-5.pdf #bcsm #cancer 030 0
Janice Cowden @janicetnbcmets.bsky.social · 04/01/2025Tried hard to stay off SoMe during family time/holidays, & missed seeing the X post on 1/3, found it this a.m., & admittedly reeling a bit. Didn’t expect this, so damn 💔‼️ Hate MBC so, SO much 😢 130 0
Reposted by Janice CowdenMartha Carlson @marthacarlson.bsky.social · 04/01/2025Lori Carey lived long on Enhertu. She was a wealth of knowledge about getting thru its rough start and the photographer of some of the most beautiful landscapes I’ve seen. I hope she got to say goodbye to those she loved and that Rebel was by her side too💔 #cansky #cancer #Stage4NeedsMore 1263 0
Reposted by Janice CowdenThe OncoAlert Network 🚨 @oncoalert.bsky.social · 01/01/2025Happy New Year from OncoAlert @doublewhammied.bsky.social @janicetnbcmets.bsky.social @kjankovic.bsky.social @seanmmcbride.bsky.social @icromeattini.bsky.social @jdmunter.bsky.social @achoud72.bsky.social @jesusanampa.bsky.social @weoncologists.bsky.social 0113 0
Janice Cowden @janicetnbcmets.bsky.social · 31/12/2024Reg for METAvivor Ground Swell is open. Share your story/exp, educate lawmakers who serve you in DC, make an impact, 👊 change advocating for policies that benefit all dx w/ & impacted by #metastaticbreastcancer, & 📣 need to ⬆️ 💲for MBC #research! #bcsm donate.metavivor.org/event/2025-g... 021 0
Janice Cowden @janicetnbcmets.bsky.social · 23/12/2024Taking a SoMe break for the holidays, spending time with family! Wishing everyone a holiday season filled with love, light, joy, & cherished moments with those you hold dear. See you in 2025! Thankful for the #bcsm community! #HappyHolidays #Gratitude 2130 0
Reposted by Janice CowdenPatricia Stoop @patriciastoop.bsky.social · 19/12/2024#2SLGBTQIA young adult #cancer study in Canada #oncosky #cansky 031 0
Janice Cowden @janicetnbcmets.bsky.social · 18/12/2024It’s a privilege to be part of this meaningful work! The ASCO CDK Dosing Study has the potential to reshape clinical practice for older adults w/ #metastaticbreastcancer. Thnx to PCORI for funding this impactful project. @therightdose.bsky.social @oncoalert.bsky.social #bcsm #DoseOptimization #QoL 2339 0
Janice Cowden @janicetnbcmets.bsky.social · 14/12/2024I’m in the US, haven’t heard of him or his podcast, but will check it out. Thanks for sharing! 110 0
Reposted by Janice CowdenMatt Sikora @mjsikora.bsky.social · 10/12/2024Loving tumor heterogeneity session at #SABCS24! Talk by Nick Navin w/ cool implications for #lobular BrCa tumorigenesis. In healthy breast cells, 16q/CDH1 loss common (~8% of cells from 49 patients), led to luminal clonal outgrowth... earliest precursors of ILC??? pubmed.ncbi.nlm.nih.gov/39567687/pubmed.ncbi.nlm.nih.govNormal breast tissues harbour rare populations of aneuploid epithelial cells - PubMedAneuploid epithelial cells are common in breast cancer<sup>1,2</sup>; however, their presence in normal breast tissues is not well understood. To address this question, we applied single-cell DNA sequ... 072 0
Janice Cowden @janicetnbcmets.bsky.social · 10/12/2024Kicking off #SABCS24 w/ imp topics, communicating a MBC dx with pts, disease progression & prognosis, about #clinicaltrials. The Do’s & Don’ts. #metastaticbreastcancer #AdvancedBC #bcsm @sabcs.bsky.social @mbcalliance @ABCGlobalAll 073 0
Janice Cowden @janicetnbcmets.bsky.social · 10/12/2024View from the Marriott Rivercenter! All is calm, all is bright ~ the action begins tomorrow! Excited for another fabulous week of education, information, & connection at #SABCS24! Let’s do this! #bcsm @oncoalert.bsky.social #metastaticbreastcancer #PatientAdvocates @sabcs.bsky.social 1343 0
Janice Cowden @janicetnbcmets.bsky.social · 09/12/2024✈️ Tampa —>Houston for BCM researcher/lab visits today, now 🚌 Houston—>San Antonio via Vonlane (fancy bus) w/ @amybeumer.bsky.social See you soon @sabcs.bsky.social!! #bcsm @oncoalert.bsky.social #SABCS24 1141 0
Reposted by Janice CowdenMake Cancer Less Shitty @cancersuckless.bsky.social · 07/12/2024If you haven't already checked out @cancercaremascc.bsky.social - it's an entire global organization of clinicians, researchers, and even advocates focused on trying to #MakeCancerLessShitty #Cansky #SuppOnc #hpm #SurvOnc 1133 0
Reposted by Janice CowdenRod Ritchie @malefitness.bsky.social · 07/12/2024This is the best explanation of breast cancer in men published to date. www.mdanderson.org/cancerwise/m... #Cansky #Oncosky #CancerBSmdanderson.orgCan men get breast cancer? 10 things to knowBreast cancer is often thought of as a woman’s disease. But men can get breast cancer, too. Breast medical oncologist Sharon Giordano, M.D., shares insights about male breast cancer. 13919 0
Janice Cowden @janicetnbcmets.bsky.social · 06/12/2024Unfortunately relatable in so many areas - alkaline water, sugar, special diets, alternative, unproven “therapeutic” protocols, & let’s not forget coffee enemas 😳 All the 🤬 😡😤 feels about charlatans who promote these (incl other #cancer patients) #Oncosky #Cansky #bcsm #metastaticbreastcancer 1183 0
Janice Cowden @janicetnbcmets.bsky.social · 05/12/2024So many familiar faces, well deserved friends! 000 0
Reposted by Janice CowdenDSP💙#🟦✡️ @drawstickpeople.bsky.social · 05/12/2024@janicetnbcmets.bsky.social pointed out how helpful having oncology tweetorials were on Twitter & the oncology health care community here is large & active so I'm sure they'll participate but we'll also need patients experts to do some, too. Any other ideas? #oncosky 031 0
Reposted by Janice CowdenDSP💙#🟦✡️ @drawstickpeople.bsky.social · 04/12/2024The breast cancer community on Twitter was historically strong & proactive. @janicetnbcmets.bsky.social & i are discussing wsys to bring some of the most helpful aspects from Twitter to bsky such as tweetorials Would you participate & what topics interest you? (continued) 7242 0
Janice Cowden @janicetnbcmets.bsky.social · 01/12/2024Logically - report back from SABCS in January ~ late breaking news/updates. My area of interest is mainly MBC, but the topic range could be broad, all cancers. Give me some time to think & if I can come up w/ a list, will do so. Long to-do list pre-SABCS here, will provide input later! 220 0
Janice Cowden @janicetnbcmets.bsky.social · 01/12/2024Most Tweetorials I followed were done by #bcsm Med Oncs. I think most are on #bsky now, so a matter of getting started. Missing(?) on 🦋 vs X, I saw tweets from ppl I followed, w/ notifications set specifically to see their posts/replies. Does 🦋 offer this? My 🦋 timeline is filled w/ unknowns 😞 210 0
Janice Cowden @janicetnbcmets.bsky.social · 01/12/2024One thing I will miss from X, if not done here, are the Tweetorials & #TumorBoardTuesday educational type opportunities. Of course, would love to see the #bcsm chat resurrected, but don’t have time/energy to moderate it personally. 360 0
Janice Cowden @janicetnbcmets.bsky.social · 01/12/2024You’re too kind, thank you ♥️ You’ve been so helpful! 020 0
Janice Cowden @janicetnbcmets.bsky.social · 01/12/2024Here for community & advocacy. Being able to connect directly with the #bcsm community easily is important to me. 160 0
Reposted by Janice CowdenSarah D. Wald @sarahdwald.bsky.social · 01/12/2024The Patient Centered Dosing Initiative does incredibly important work! 161 0
Janice Cowden @janicetnbcmets.bsky.social · 01/12/2024Also… if you reply to my post with a hateful, nasty comment & we don’t know each other 👉🏻 blocked ✔️ First #bluesky block today. Kindness matters! Not here to perpetuate or encourage hatred. 061 0
Janice Cowden @janicetnbcmets.bsky.social · 01/12/2024Does anyone know if there’s a setting on post sharing that only allows those you follow to share your posts? Is it under post interaction settings? 130 0
Janice Cowden @janicetnbcmets.bsky.social · 01/12/2024Thank you! Enjoyed a beautiful sunset last night! 040 0
Reposted by Janice CowdenDaniel Stover, MD, FASCO @stoverlab.bsky.social · 23/11/2024Wish that I could be at ISLB!! Visionary liquid biopsy expert @christianrolfo.bsky.social gives master class lectures on translational potential for innovative LB technologies & approaches 💯💯 @osucccjames.bsky.social @osuwexmed.bsky.social 0103 0
Reposted by Janice CowdenDaniel Stover, MD, FASCO @stoverlab.bsky.social · 24/11/2024Does anyone have the 🦋 version of this list?? @tmprowell.bsky.social @erikahamilton9.bsky.social @drsgraff.bsky.social @maryamlustberg.bsky.social @drteplinsky.bsky.social @ptarantinomd.bsky.social 1184 0
Reposted by Janice CowdenTatiana Prowell, MD @tmprowell.bsky.social · 30/11/2024Between now & the end of #GivingTuesday, I’ll mostly be posting about Healthcare Workers vs. Hunger #HCWvsHunger. Please support our multidisciplinary oncology team #DiagnoseAndTreats by donating to a food bank or hunger org this holiday season & logging for our team! /1 0279 0
Reposted by Janice CowdenErika Hamilton MD, FASCO @erikahamilton9.bsky.social · 19/11/2024#Oncologysky did you already vote once this month? Please make it twice and vote ✍️ 🗳️ in the #ASCO election if you are a member of ASCO!!! I'm lucky enough to be on the ballot 🗳️ this year for an undesignated spot on the Nomination Committee. society.asco.org/about-asco/a... Vote here ⬆️! 0236 0