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Jane Shepherd

@janeshep.bsky.social
200 followers 149 following 17 posts

Community campaigner | peer supporter | designer | writer HIV auto/biography | gardener 🌱

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Reposted by Jane Shepherd
Bill McKibben @billmckibben.bsky.social · 08/03/2026
This is what ecocide looks like.
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Jane Shepherd @janeshep.bsky.social · 08/02/2026
“We so badly need the Starmer Government to succeed. This moral and political delinquency makes me want to cry.” Oborne on McSweeney
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Amanda Mull @amandamull.bsky.social · 25/01/2026
Really hard to look at this and all the other examples of bravery and kindness from ordinary people in this moment not think also of the tremendous cowardice exhibited over the past year by some of the richest, most well-protected people in business, media and politics
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Jane Shepherd @janeshep.bsky.social · 10/07/2025
Generous and thoughtful piece on Salt Path. In writing my own memoir, I’ve found the most interesting insights come from the contradictions, the omissions and the culled. But I hated Salt Path so feel a tiny bit vindicated.
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Sarah Taber @sarahtaber.bsky.social · 04/07/2025
I know we don't feel like there's much to celebrate this July 4th. It's been a rough several years. So I want to talk about how we're making history right now.
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HIV i-Base @hiv-i-base.bsky.social · 03/06/2025
The #GatesFoundation commits to providing #lenacapavir as #PrEP over the next year: i-base.info/htb/51222 Plus #BillGates calls US cuts to #GlobalAid a “huge mistake”. #HIVsky #IDsky #HIVprevention #HIVPrEP #HIVwomen #InjectablePrEP #Adherence #PEPFAR #USAID #PEPFARSavesLives #USpoli
Colourful i-Base graphic. The main text reads: Gates Foundation commits to roll out lenacapavir PrEP. To the right of this is a photo of Bill Gates speaking into a microphone. At the top is a URL: I hyphen base dot info. At the bottom it says, subscribe by email. The colours used in the image are two shades of dark red, green, dark purple, orange, dark blue, light blue, mustard and white.
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HIV i-Base @hiv-i-base.bsky.social · 20/05/2025
Thanks to @janeshep.bsky.social for producing this beautiful riso print to raise funds for HIV i-Base: i-base.info/htb/51064 It celebrates #TheDenverPrinciples, an essential #HIVactivist document that all people living with #HIV should know about. Purchase at the link to support us. #HIVsky
Photo of a riso print, on a colourful i-Base graphic. The title of the print reads: The Denver Principles, which is fluro pink on white. 1983 is written in big, blue bubble lettering, vertically and intersecting with the title. The subheading, in blue text, reads: Statement from the Advisory Committee of the People with AIDS, 1983. The rest of the text is too small to read but can be found via the linked article. I dash base dot info is in white on a pink background in the top left corner. Orange text on dark blue in the bottom left corner, reads: print available to buy! The background of the image is coloured blocks of mustard, grey-blue, a medium cool blue, and a grey-purple. A line of bright pink circles is in the left corner of the graphic, with pale blue ones mirroring these in the top right corner. There are various coloured dots in the image.Photo of Simon Collins, co-founder of HIV i-Base, on a colourful i-Base graphic. He is smiling and holding up an A3 riso print, titled, The Denver Principles. The print is described in the previous image. Simon is a white man in his 60s. I dash base dot info is in white on a pink background in the top left corner. Orange text on dark blue in the bottom left corner, reads: print available to buy! The background of the image is coloured blocks of mustard, grey-blue, a medium cool blue, and a grey-purple. A line of bright pink circles is in the left corner of the graphic, with pale blue ones mirroring these in the top right corner. There are various coloured dots in the image.
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Jane Shepherd @janeshep.bsky.social · 08/05/2025
Good to see Isle of Wight West MP’s name on this 👏👏@richardquigley.bsky.social
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UK-CAB @ukcab.bsky.social · 30/04/2025
New @abpi.bsky.social guidance risks excluding #HIV advocates from conferences — suggesting we’re too “impressionable” to hear about treatments. We reject this. People with HIV are informed, critical partners in progress. You can read our response below. #NothingAboutUsWithoutUs #HIVAdvocacy
UK-CAb Response to the new ABPI Conference Guidance
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Harun. The poxie one. @haruntulunay.bsky.social · 23/04/2025
If your London NHS trust is in this list AND has any red flags, visit @londonftci.bsky.social at #BHIVA25 to solve it! No gatekeeping, no barriers in integrated peer support! @positivelyuk.bsky.social @bhiva.bsky.social
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British HIV Association @bhiva.bsky.social · 23/04/2025
James Cole of @nationalaidstrust.bsky.social summarises why #HIV voluntary & community services need to be safeguarded. From the provision of wrap-around care for people with HIV, to providing a platform for people to thrive, the services are invaluable. #BHIVA25
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Mallory Moore @sexabolition.blog · 17/04/2025
The job of the EHRC is to champion the rights of all protected groups and to foster good relations between these groups helping advise and integrate their interests in non discrimination Baroness Kishwer Faulkner makes absolutely plain that she just sided with anti trans activists over trans rights
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Jo Grady @drjogrady.bsky.social · 17/04/2025
Women are unsafe on a daily basis - statistically due to men they already know. Want to make women safer? Change rape laws, fund refuges properly, end femicide, address misogyny in boys and men, improve healthcare. Taking aim at trans women does nothing to make women safer.
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Equality Trust @equalitytrust.bsky.social · 10/04/2025
We know there are huge ethnic wealth gaps, but we often struggle to explain why. In a new report with @lse-sticerd-case.bsky.social we asked people across the UK to tell us about their experiences of ethnic wealth inequalities: equalitytrust.org.uk...
equalitytrust.org.uk
The Challenge of Ethnic Wealth inequalities - Equality Trust
Wealth is deeply unequal in the UK and getting more so; recent analysis also suggests this increase is particularly stark for younger generations. Within that inequality, the ONS Wealth and Assets Survey indicates a large racial wealth gap.
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Mind @mind.org.uk · 17/03/2025
Where's the evidence that mental health is being "overdiagnosed"?
Dear UK government,

Let's be clear: our mental health is getting worse, and cutting benefits won’t help.

You claim mental health is being “overdiagnosed”, but where’s the evidence?

The reality is that our environment affects our wellbeing - pandemics, the cost of living crisis, political unrest and ongoing concerns around climate change are all taking their toll.

But when people seek help, they face months, or even years, of waiting.

Rhetoric like this is dangerous. It reinforces stigma and stops people getting support.

If you’re serious about change, listen to those affected. We can turn this crisis around - but only if the government works with us, not against us.

We look forward to hearing from you,

Mind
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Joseph Rowntree Foundation @jrf-uk.bsky.social · 14/03/2025
Slashing benefits to meet an arbitrary fiscal target would be unethical, short sighted and illogical. ❌ 2 in 5 people receiving disability benefits already experience hardship. This means they are either unable to afford enough food, heat their home or pay household bills. 1/3
A quote card with an image of JRF chief executive Paul Kissack saying "2 in 5 working-age families receiving disability benefits already experience hardship – cutting benefits will only serve to deepen this. It is no answer to the nation’s health or employment prospects and an unethical and short-sighted approach."
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Campaign for Disability Justice @campaignfdj.bsky.social · 17/03/2025
We’ve united with Scope, @disrightsuk.bsky.social @dis-ppl-protest.bsky.social and @turn2us.bsky.social against cuts to disability benefits. Together, we’ve published an open letter urging the govt to safeguard them. Read the full letter on Scope’s website. buff.ly/FhxKY7U #Disability
"Dear Chancellor, We fear the cost of cuts is too great." Open letter. Scope logo. Campaign for Disability Justice logo.
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Dan Sohege @danielsohege.bsky.social · 16/03/2025
Might I not so politely suggest that Streeting yeets himself into the sun. Yes, diagnosis has improved, and people are becoming more aware of mental health issues. That doesn't mean they are being "overdiagnosed". It is more likely they were previously under-diagnosed. www.bbc.com/news/article...
bbc.com
Mental health conditions are overdiagnosed, Streeting says
Wes Streeting says too many young people are "being written off", as he defends upcoming welfare reforms.
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womensartbluesky.bsky.social @womensartbluesky.bsky.social · 14/03/2025
Affectionately known as the ‘graffiti grannies of Lisbon', Lata65 is a Portuguese org that runs workshops in street art for the over-65s-the oldest participant is 90-year-old Isaura Santos Costa #WomensArt
Photo of a street with buildings the right and a board covered in spray painted designs, in the foreground is an elderly white woman looking outwards holds a spray paint container
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Carina Marquez MD @carinamarquez.bsky.social · 11/03/2025
🔥Very exciting data presented at #CROI2025 and just published in the Lancet: PK data for once year IM Lenacapavir are higher than twice a year SC Len at 56week and support phase 3 study for PrEP. The public health impact of yearly LEN for prevention would be huge! #IDSky
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Liz Highleyman @lizhighleyman.bsky.social · 10/03/2025
Rebecca Dennison: "The recklessness we’re seeing is like dropping an egg on the floor – you can’t just pick it up & put it back together again...Do not bend a knee in advance, do not crumple in despair – that’s exactly what they want you to do." #CROI2025
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Alex @alex-schneider.bsky.social · 12/03/2025
🚀 Long-acting antibodies as an alternative to daily HIV treatment? The RIO study at #CROI2025 shows that 75% of participants on two broadly neutralizing antibodies (bNAbs) stayed virally suppressed without daily ART for 20+ weeks—some for over a year! 🔗 Read more: life4me.plus/en/news/croi...
life4me.plus
RIO Study Suggests Antibodies Could Offer a Break from Daily HIV Treatment
Long-acting antibodies could allow some people with HIV to stay off daily antiretroviral therapy (ART) for extended periods.
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HIV i-Base @hiv-i-base.bsky.social · 11/03/2025
i-Base reports from this year’s #CROI2025 conference: i-base.info/htb/50463 Highlights from the programme include: - New compounds and combinations for #HIVtreatment - Access to #PrEP - #bNAbs and cure-related research - Weight changes and #GLP1 agonists #islatravir #lenacapavir #LongActing
i-Base graphic. The main text in red and dark blue, on a light blue blue background, reads: CROI 2025. Conference on retroviruses and opportunistic infections. Below, in white on a burnt orange background, text reads, San Francisco, California. 9th to 12th March. Next to this is a faint image of the Golden Gate Bridge. In the top left corner is a URL: I hyphen base dot info. In the top right corner is the CROI logo, a colourful illustration of HIV.
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Gregg Gonsalves @gregggonsalves.bsky.social · 28/02/2025
This is on #Trump #Musk #Vought #Rubio.
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Jane Shepherd @janeshep.bsky.social · 28/02/2025
This is so cruel and counterproductive. Health has been subsumed by a global preoccupation with extraction and military proliferation. bhekisisa.org/health-news-...
bhekisisa.org
Trump: 'Thank you for partnering with USAID and God bless America.' - Bhekisisa
In today’s newsletter, Mia Malan explains how US President Donald Trump ordered USAID-funded HIV organisations in SA to shut down. Sign up for our newsletter today. THIS IS A BREAKING, DEVELOPING STOR...
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Matthew Hodson @matthewhodson.bsky.social · 18/02/2025
Keith Haring’s Silence=Death was painted in 1988, the year he was diagnosed with AIDS. The Pink Triangle referred to the badges worn by gay men in concentration camps. It reflected the US Government’s long silence on AIDS. 24,559 Americans died of AIDS before Reagan publicly referred to the disease.
A large pink triangle, pointing downwards.
The canvas is covered with Keith Haring’s distinctive figures in silver, adopting ‘See no evil, hear no evil, speak no evil’ poses.
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Gregg Gonsalves @gregggonsalves.bsky.social · 16/02/2025
From @realclevejones.bsky.social. I hope he doesn't mind me sharing: "The Resistance is weak, disorganized & rudderless. And it shows - with scattered protests called by anonymous individuals, incoherent messaging & little media coverage. People are confused & uncertain & desperate for direction."
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Gregg Gonsalves @gregggonsalves.bsky.social · 15/02/2025
The British stand in solidarity with American scientists. www.bmj.com/content/bmj/...
bmj.com
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Rebecca Solnit @rebeccasolnit.bsky.social · 15/02/2025
A rabbi asked his pupils how they could tell when the night had ended and the day was on its way back.
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Saving Lives UK @savinglives.bsky.social · 12/02/2025
PrEP - what is it, and why aren't more women on it? Our Clinical Nurse Specialist, @niamhfkielb.bsky.social, talks about conversations she's had with friends & family - and the barriers we need to overcome to get more women accessing #PrEP. Read more: www.savinglivesuk.com/women-and-pr... #HIVSky
A nurse in navy blue scrubs, with a rainbow lanyard sits in an office. The caption says "Niamh Fleming-Kielb, Clinical Nurse Specialist, Saving Lives Ambassador"Blue text on a light pink cloudy background says: Women and girls are told repeatedly from a young age "don't get pregnant". Wider sexual health and HIV education including PrEP and PEP should be key components of ongoing conversations and teaching.
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Kai Kupferschmidt @kakape.bsky.social · 10/02/2025
"Some 2.5 million people in 2024 received PrEP through PEPFAR, accounting for more than 90% of those worldwide who initiated this form of prevention.... Stopping those efforts has infuriated champions of PrEP. “It’s outrageous,” Warren says. “This is madness.” By my colleague @cohenjon.bsky.social 🧪
science.org
‘Madness’: Trump freeze on global HIV prevention efforts sparks disbelief, anger
After chaotic halt, PEPFAR’s global distribution of HIV treatments may be resuming but limits on using drugs to curb viral spread remain
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British HIV Association @bhiva.bsky.social · 10/02/2025
What a great start to #HIVTestingWeek! BHIVA is delighted to see Sir Keir Starmer continue his commitment to getting the UK to zero new #HIV transmissions by taking an HIV test. This makes him the first PM ever to do so publicly, which we hope will encourage others to do the same. #HIVSky #IDSky
metro.co.uk
Sir Keir calls on others to follow lead after becoming first PM to take HIV test
Metro was invited to Downing Street for the historic moment.
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Jane Shepherd @janeshep.bsky.social · 07/02/2025
I lived through the era of no access to ARVs. This is horrific.
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Liz Highleyman @lizhighleyman.bsky.social · 05/02/2025
I did some digging & federal health websites have largely been reviewed, revised & restored -- but with some major holes. CDC took the brunt of it for HIV content, but HIV.gov & even DHHS antiretroviral treatment guidelines have deleted transgender people in some places. www.poz.com/article/cdc-...
poz.com
CDC Pulls, Partially Restores HIV Web Content
Federal health agency websites are largely back online, but information about transgender people has been removed.
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Maxwell Frost @maxwellfrost.bsky.social · 04/02/2025
We are members of Congress at the Treasury Department. We want to be let in to provide oversight on behalf of our constituents. @jasmineforus.bsky.social @sethmagaziner.bsky.social
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Mo Moulton @momoulton.bsky.social · 02/02/2025
I was interviewed for this ... www.cbc.ca/news/world/t...
cbc.ca
Trump claims there's only '2 genders.' Historians say that's never been true | CBC News
The Trump administration's 'two gender' policy is sparking fear and confusion among trans and non-binary people. The executive order claims it's a return to "biological facts," but experts say it igno...
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womensartbluesky.bsky.social @womensartbluesky.bsky.social · 03/02/2025
"Art is a way of survival" - Yoko Ono, 91yr old artist & peace activist #WomensArt #Monday
Monochrome photograph featuring a standing woman facing forwards with short dark hair, in dark clothes and sungasses, holding a sign stating ' NOT AFRAID', all against a white background
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Alt CDC (they/them) @altcdc.altgov.info · 01/02/2025
The entire archive of CDC datasets can be found here. HUGE shoutout to data archivists- this work is important 👏🙌🏻 archive.org/details/2025...
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Jane Shepherd @janeshep.bsky.social · 31/01/2025
Mass violence against women PEPFAR was providing HIV treatment to around 680,000 pregnant women, mostly in Africa. A 90-day stoppage could lead to approx 136,000 babies acquiring HIV. With HIV testing services also suspended, many of those could go undiagnosed. www.propublica.org/article/trum...
propublica.org
“People Will Die”: The Trump Administration Said It Lifted Its Ban on Lifesaving Humanitarian Aid. That’s Not True.
Organizations that provide vital care for desperate and vulnerable people around the world have been forced to halt operations, turn away patients and lay off staff. “I’ve never seen anything that sca...
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Alan Klein @akmedia.bsky.social · 31/01/2025
“An update on the stop work order for the PEPFAR program: despite the waiver being signed 2 days ago…no services are being provided. PEPFAR provides life-saving treatment to about 225,000 people EVERY day. That's over a million people without their pills since the shut down on Friday.” — David Barr
An update on the stop work order for the PEPFAR program: As the newspapers reported, a waiver was signed allowing PEPFAR programs to re-open. However, the scope of what can and cannot re-open is unclear. And, despite the waiver being signed two days ago, no communication has gone out to PEPFAR sites and no services are being provided. PEPFAR provides life-saving treatment to about 225,000 people EVERY day. That's over a million people without their pills since the shut down on Friday.
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Zoe TunnHELL ➡️ NYCC @zoewithasword.bsky.social · 30/01/2025
All I can really say at this point is if everyone isn't watching how trans people have lost basic rights and protections on a scale that hasn't been seen in decades in the span of 72 hours and realizing that even if you aren't trans there's nothing stopping it from happening to you, you're a fool
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Jane Shepherd @janeshep.bsky.social · 28/01/2025
#HIV people… what would you choose to read at a vigil remembering people who died of AIDS?
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Jane Shepherd @janeshep.bsky.social · 26/01/2025
Trump orders PEPFAR freeze. “PEPFAR provides lifesaving antiretrovirals for more than 20 million people – and stopping its funding essentially stops their HIV treatment. If that happens, people are going to die and HIV will resurge. i-base.info/htb/50097
i-base.info
IAS statement: PEPFAR freeze threatens millions of lives | HTB | HIV i-Base
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Mimmi Mossa @mimmimossa.bsky.social · 24/01/2025
On january 30th in 2008 we published the #swissstatement about the noninfectuosity of people living with #HIV under successfull antiviraltreatment. Nearly no one was amused about the worldwide first publication. the secret was over. #UequalsU Film: performance,women on stage talks abt activism
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Jane Shepherd @janeshep.bsky.social · 24/01/2025
www.thehandbasket.co/p/nih-travel...
thehandbasket.co
SCOOP: National Institutes of Health ordered by Trump admin to enact 'immediate and indefinite' travel suspension
"If staff aren’t able to travel, clinical trials will likely have to be put on hold," a source tells The Handbasket.
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Tzeporah Berman @tzeporah.bsky.social · 11/01/2025
They knew this would happen, denied the science, delayed the transition & are increasing fossil fuel production to continue making record profits while thousands suffer the consequences. LA is on fire & Big Oil are the Arsonists. My piece in the Guardian today. www.theguardian.com/commentisfre...
theguardian.com
Los Angeles is on fire and big oil are the arsonists | Tzeporah Berman
Every barrel of oil, every cubic meter of gas, and every ton of coal burned brings us closer to environmental catastrophe
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Damian Barr @damianbarr.bsky.social · 06/01/2025
‘Nothing you write is as bad as writing nothing.’ - Damian Barr. #writingadvice #booksky #GetWriting #TheTwoRoberts
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Maggie Smith @maggiesmithpoet.bsky.social · 30/12/2024
Lucille Clifton, always.
“i am running into a new year” by Lucille Clifton 

i am running into a new year
and the old years blow back
like a wind
that i catch in my hair
like strong fingers like
all my old promises and
it will be hard to let go
of what i said to myself
about myself
when i was sixteen and
twenty-six and thirty-six
even thirty-six but
i am running into a new year
and i beg what i love and
i leave to forgive me
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Stanchion @stanchion.bsky.social · 27/12/2024
The only thing I really know about starting something is that you don't need to know what you're doing, but you do need to be curious, try hard, be good to people, not make excuses, and honor your commitments. And the best part is that none of that costs a penny.
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