iiinova — where your digital self keeps evolving

jennycrow.bsky.social @jennycrow.bsky.social · 23/12/2025

Impact of socioeconomic deprivation on mechanical thrombectomy outcomes after acute ischaemic stroke @ismalias.bsky.social @imperialbrains.bsky.social We urgently need systems in place that deliver equitable healthcare. svn.bmj.com/content/svnb...

svn.bmj.com

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jennycrow.bsky.social @jennycrow.bsky.social · 24/10/2025

Inspirational words from stroke advocates Melinda Roaldsen @esostroke.bsky.social and Joseph Rukelibuga from Stroke Action Rwanda. Collaboration is key to shaping and improving stroke services globally! @worldstrokeorg.bsky.social

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jennycrow.bsky.social @jennycrow.bsky.social · 23/10/2025

Beautiful early morning sunrise in Barcelona and great early morning session. ‘Stroke recovery: the elephants in the room’ #WSC2025 @esostroke.bsky.social @thestrokeassoc.bsky.social More sessions focusing on #lifeafterstroke needed please!

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jennycrow.bsky.social @jennycrow.bsky.social · 09/10/2025

A really interesting observational study which suggests that more positive attitudes to ageing may build resilience and improve recovery after a fall. Importantly we need to shift our focus from the physical only to the psychological state and wellbeing of a person too.

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jennycrow.bsky.social @jennycrow.bsky.social · 21/09/2025

Maya reflects on the distinction between clinical and personal recovery after stroke. She describes how recovery is not about being who you were before but is self-determined and about becoming who you want to be. open.substack.com/pub/mayakuza...

open.substack.com

(Re)defining Recovery

Recovering from a stroke is a journey that's physical, cognitive, mental and more...

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jennycrow.bsky.social @jennycrow.bsky.social · 21/09/2025

Maya explains her experience of life after stroke and how the European Life After Stroke Conference was a turning point in navigating her life post-stroke. Also what she wished she had been told - stroke professionals please read this!! Becoming Your Own Advocate open.substack.com/pub/mayakuza...

open.substack.com

Becoming Your Own Advocate

Fighting for continuity of care.

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jennycrow.bsky.social @jennycrow.bsky.social · 21/09/2025

What stroke survivors want you to know, how it helps & the value of lived experience. Excellent descriptions and important reading for professionals and the families of those adjusting to life after stroke. @louiseclark15.bsky.social @willchegwidden.bsky.social open.substack.com/pub/theesk/p...

open.substack.com

What stroke survivors want you to know, how it helps & the value of lived experience

What Stroke Survivors Want You to Know......

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jennycrow.bsky.social @jennycrow.bsky.social · 30/07/2025

Looking at my qualitative interviews with young people after minor stroke. 31 yr olds comment on multiple errands test ‘I am very confident I can do that but that does not in anyway mean I am fine’ #lifeafterstroke @f-geranmayeh.bsky.social @imperialbrains.bsky.social @thestrokeassoc.bsky.social

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jennycrow.bsky.social @jennycrow.bsky.social · 03/06/2025

Have a listen to this new podcast started by a member of our Imperial Stroke Public Involvement Group. I think it has the potential to evolve into a useful resource for people with stroke and their families. @imperialbrains.bsky.social @imperialperc.bsky.social shows.acast.com/talking-abou...

shows.acast.com

Talking about Strokes | Talking about Strokes

A gentle introduction.....

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jennycrow.bsky.social @jennycrow.bsky.social · 03/06/2025

Really looking forward to reading this editorial ‘If patients only knew’. Will message you with a few thoughts.

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jennycrow.bsky.social @jennycrow.bsky.social · 29/05/2025

Had our 2nd Imperial Stroke Public Involvement group of the year yesterday. Excellent discussions around SILENCE-CSVD trial. Celebrated attendance of 4 of our group members at the European life after stroke conference in Prague. #lifeafterstroke @imperialbrains.bsky.social @imperialperc.bsky.social

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Stephanie Rossit @stephanierossit.bsky.social · 05/04/2025

I am lucky enough to Chair this organisation & work with fabulous team bringing these events together where psychological stroke research worldwide is showcased. We are looking for abstract submissions - don’t miss out! It’s THE event for research of psychological aspects of stroke! Join us!

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Paresh Malhotra @pareshmalhotra.bsky.social · 27/03/2025

‘Exodus’ of clinical researchers sparks concern over future of UK healthcare in @financialtimes.com today. Lots of change needed.

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Prof Nick Ward @prof-nick-ward.bsky.social · 28/03/2025

Watch this tonight about Clemency Burton-Hill's continuing fight to recover after a #stroke 5 years ago. @clemencybh www.bbc.co.uk/programmes/m...

bbc.co.uk

BBC Two - My Brain: After the Rupture

The incredible story of Clemency Burton-Hill’s recovery following a brain haemorrhage.

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Avril Drummond @avrildrummond1.bsky.social · 10/03/2025

#lifeafterstroke #elasf2025 excellent session on secondary prevention after stroke. Medical and lifestyle issues covered but also the need to live

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Avril Drummond @avrildrummond1.bsky.social · 10/03/2025

#lifeafterstroke #elasf2025 Alexia Kountouri from Cyprus talks in English about her aphasia. Involvement in research has given her a voice.

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Avril Drummond @avrildrummond1.bsky.social · 10/03/2025

#lifeafterstroke #elasf2025 Hatice Ozkan - participant " I am more than my stroke"

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Fatemeh Geranmayeh @f-geranmayeh.bsky.social · 07/03/2025

Well worth a read .

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Paresh Malhotra @pareshmalhotra.bsky.social · 08/03/2025

We can always try to improve how we conduct trials and how we ensure that the most important people have a say in how they are designed and run. For the AD-SMART platform and #dementia research, Ben Underwood is doing just that with POPPED. Please take a look at www.popped.org.uk and do share!

popped.org.uk

POrtal for Patient and Public Engagement in Dementia research

Weclome to Popped! This platform invites you to share your thoughts on research projects aimed at improving dementia care.

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jennycrow.bsky.social @jennycrow.bsky.social · 05/02/2025

Another excellent Imperial Stroke Public involvement group today. We discussed research topics the group felt were important. Also interesting discussions around the Stroke Association PREM question - Did you receive support coming to terms with the effects of your stroke?

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