Reposted by IlanaAnna Holmes @annabookwriter.bsky.social · 13/08/2026The idea of denying a hundred disabled people help because one nondisabled person “might” “take advantage” is unconscionable to me, and I do not understand why this is so hard for people to grasp. 223466
Reposted by IlanaPPCEducate @ppceducate.bsky.social · 27/05/2026ppceducate.co.uk. Check out the new resource we are recommending, exploring the use of framing to help others understand children's palliative care... free to access, no login required! #PPCEducate 011
Reposted by IlanaVermont Oxford Network @vtoxfordnetwork.bsky.social · 17/05/2026Today is NEC Awareness Day. At VON, we track rates of NEC every year and while rates of these outcomes have been steady, there is variation in outcomes when sorted by race. We encourage centers to use this data for quality improvement to improve the care and outcomes of infants and families. #neosky 011
Reposted by IlanaDr Jo Kershaw @mthrjo.bsky.social · 14/05/2026Once again: Jo Cox MP was murdered. David Amess MP was murdered. 13384121
Ilana @ilana-abc.bsky.social · 12/05/2026Thanks @rcpch.bsky.social for giving us the chance to present the priority setting partnership on LGBTQIA+ perinatal care to paediatricians. Just a shame that the 8am timing and 30 minute length limited what we could share and how many people we could connect to... @natboxall.bsky.social 011
Reposted by IlanaMoriam (Neonatal Dietitian) @moneord.bsky.social · 02/04/2026Excited to finally see this @bapmofficial.bsky.social draft framework out for consultation! Please share and give us your feedback 😀 www.bapm.org/resources/pr... #neonatalsky #preterm #MBDP #nutrition #NICU #FiCare #dietitian 023
Reposted by IlanaNational Perinatal Epidemiology Unit Clinical Trials Unit @npeu-ctu.bsky.social · 02/04/2026The TOAST Study is open to recruitment! 🍞 Check out the website for more information www.npeu.ox.ac.uk/toastnpeu.ox.ac.ukTOAST | NPEUThe National Perinatal Epidemiology Unit (NPEU) is a multidisciplinary research unit based at the University of Oxford. Our work involves running randomised con 011
Reposted by IlanaCal Horton (they/them) @fiercemum.bsky.social · 27/03/2026To participate please click on the blue button here: wp.lancs.ac.uk/transadultsp...wp.lancs.ac.ukJames Lind Alliance Priority Setting Partnerships help decide what health questions most need research. 0236
Ilana @ilana-abc.bsky.social · 19/03/2026Had a great time at the Neonatal Society meeting today. So many people were interested to hear about the induced lactation & shared lactation questions that came from the JLA priority setting partnership for LGBTQIA+ perinatal care. And so many presentations on great UK neonatal research 000
Reposted by IlanaJane Plumb @janeplumb.bsky.social · 20/01/2026If you/a family member has used maternity or neonatal services in England, share your experience with the NMNI team. Tell them what worked, what didn’t, what must change. Help make care safer & better. Please add your voice & share so others can too. www.matneoinv.org.uk/call-for-evi...matneoinv.org.ukCall for Evidence - National Maternity and Neonatal InvestigationBaroness Amos is asking women and families across England to share their experiences of maternity and neonatal care through a public Call for Evidence. 001
Ilana @ilana-abc.bsky.social · 12/01/2026Systematic review of herbal products for lactation after preterm birth - low certainty of effect from barley malt, lettuce syrup, Moringa oleifera (all inexpensive), silymarin phytosomes with phosphatidylserine and Galega (branded supplement, ££) #neosky #lactation www.nature.com/articles/s41...nature.comClient Challenge 000
Ilana @ilana-abc.bsky.social · 05/01/2026Preterm birth was one of the largest influences on school readiness in this study (<32wk, with 32-36wk also having an impact), along with male sex & low maternal education: Observational cohort study using Born in Bradford birth cohort data bmjpaedsopen.bmj.com/content/10/1...bmjpaedsopen.bmj.comEarly life exposures and school readiness: an observational cohort study using the Born in Bradford longitudinal birth cohort dataObjective To assess the associations of early life exposures with school readiness.Design, setting, main outcome measure and participants Using data from the Born in Bradford (BiB) birth cohort, we in... 041
Reposted by IlanaKeith Barrington @neonatalresearch.bsky.social · 29/12/2025How much oxygen for the resuscitation of the preterm? I like a good acronym, so my initial response to the new TORPIDO trial was very positive! TORPIDO 30/60 was a large multicentre RCT comparing initial FiO2 concentrations for resuscitation of the preterm infant (Oei JL, et al. Targeted Oxygen…neonatalresearch.orgHow much oxygen for the resuscitation of the preterm?I like a good acronym, so my initial response to the new TORPIDO trial was very positive! TORPIDO 30/60 was a large multicentre RCT comparing initial FiO2 concentrations for resuscitation of the preterm infant (Oei JL, et al. Targeted Oxygen for Initial Resuscitation of Preterm Infants: The TORPIDO 30/60 Randomized Clinical Trial. JAMA. United States2025). The first TORPIDO study (Targeted Oxygen in the Resuscitation of Preterm Infants and their Developmental Outcomes) was a comparison in 290 infants <32 weeks GA, of 21% starting O2 concentration vs 100% starting concentration ( 022
Ilana @ilana-abc.bsky.social · 20/11/2025Final day of sharing Top 24 research priorities for LGBTQIA+ Perinatal Care (@jameslindalliance.bsky.social PSP, supported by @ox.ac.uk & @britishacademy.bsky.social ).Qu 19-24 cover bonding, work leave, experiences of gender, induced & shared lactation, written language, & sperm donor diversity 1/ 112
Ilana @ilana-abc.bsky.social · 19/11/2025Day 3 of 4: results of the LGBTQIA+ Perinatal Care Priority Setting Partnership. Qu 13-18 cover finding information, induced lactation, timing of gender affirming hormones, surrogacy, parental titles on birth certificates and inclusive language 1/ 131
Ilana @ilana-abc.bsky.social · 18/11/2025Day two of sharing the @LindAlliance LGBTQIA+ Priority Setting Partnership results: questions 7 - 12 coming up... see yesterday's post for questions 1-6 and more description of the project, or read here: bit.ly/PSPabout and bit.ly/PSPresults 1/ 121
Ilana @ilana-abc.bsky.social · 17/11/2025Excited to launch the results of the LGBTQIA+ Perinatal Care Priority Setting Partnership. In our 1st survey, 366 LGBTQIA+ people & their HCPs submitted 1166 qus. We combined qus on the same topic to make 48 summary qus. We checked the evidence to see if any had been answered 1/ 133
Ilana @ilana-abc.bsky.social · 16/11/2025Interested in LGBTQIA+ perinatal health, particularly collaborative research with LGBTQIA+ families? This family focused research network hosted by York University looks fantastic, we will be presenting our priority setting work there on Dec 3rd www.eventbrite.co.uk/e/research-p... #lgbtq #perinataleventbrite.co.ukResearch Priorities for LGBTQIA+ Health: Online MeetingThe inaugural meeting of our Research Network shares LGBTQIA+ perinatal health research priorities 000
Ilana @ilana-abc.bsky.social · 06/11/2025fun.chicagotribune.com/game/la-time... for the crossword lovers, hope this is as much fun to solve as it was to create 🙂 000
Ilana @ilana-abc.bsky.social · 04/11/2025N3 poster about giving buccal vitamin D to premature babies - it seems to work! #neosky #vitamind #mbd 000
Ilana @ilana-abc.bsky.social · 10/10/2025bmjpaedsopen.bmj.com/content/9/1/... UK wide paper reporting perinatal optimisation and a few other variables through the lens of ethnicity and deprivation. Timing of cord clamping, admission temperature, mothers milk provision and communication with/involvement of parents showed inequitiesbmjpaedsopen.bmj.comDoes neonatal care delivery in England and Wales vary by deprivation and ethnicity: a retrospective cohort studyObjective To investigate whether perinatal care delivery in England and Wales varies by ethnicity and socio-economic deprivation, using National Neonatal Audit Programme (NNAP) measures.Design Retrosp... 000
Reposted by IlanaCaroline Litman @alicemydaughter.bsky.social · 15/08/2025Thank you for your wonderful review. I’m so glad you enjoyed it. I wish everyone would read it too. Especially politicians. Then all doctors, whose voices are unsettlingly quiet on the matter of our government led withdrawal of trans healthcare and how this fits with ‘do no harm’. 062
Reposted by IlanaSharna @headsmartfellow.bsky.social · 08/08/2025Absolutely delighted to see the Child Cancer Smart campaign launch today. A campaign steeped in evidence aiming to raise awareness and accelerate diagnosis for all children and young people with cancer. Huge thank you to everyone who has worked so hard to make this happen. 031
Reposted by IlanaThe SURFSUP Trial @surfsuptrial.bsky.social · 08/08/2025Welcome to the new BlueSky home for the SURFSUP Trial! SURFSUP is a RCT including preterm infants ≥1250g, comparing supraglottic airway surfactant vs minimally invasive surfactant by thin catheter in preventing surfactant treatment failure. We'll be posting updates on the trial here 🏄🏄♂️🏄♀️ 012
Reposted by IlanaLa Leche League Great Britain (LLLGB) @lllgb.bsky.social · 04/07/2025"Breastfeeding was something I could do in a body that so often feels limited. I’m so proud of our journey and everything we achieved." Thanks to Jo for sharing her story with us #DisabilityPrideMonth 011
Reposted by IlanaOtto English @ottoenglish.bsky.social · 06/08/2025The moment I saw that "trans bra" M & S story I sensed it was nonsense. Seconds later, having read the Telegraph piece I knew it was worse than that. It was deliberate hate mongering completely devoid of evidence, names and facts. Superb job of debunking it here www.thepinknews.com/2025/08/06/m...thepinknews.comDispelling harmful misinformation about M&S 'trans' bra fitting rowDangerous misinformation over an M&S 'trans' bra fitting story is spreading online; here's what we actually know. 59966394
Reposted by IlanaBríd Nic Annaidh ☘️ @bridgetmcgann.medsky.social · 05/08/2025@brandeisuniversity.bsky.social is hosting a webinar TOMORROW discussing how to support parents with a variety of disabilities in lactation and breastfeeding their child. 🔗 zurl.co/UMvAl #NationalBreastfeedingMonth #NBM #DisabledPregnancy #WorldBreastfeedingWeek2025 #MCH 001
Reposted by IlanaGeula Hanin @geula.bsky.social · 04/08/2025Still time to join our team! We're exploring how lactation and early nutrition shape lifelong health 🔬🥼👩🏻🔬🤱 023
Reposted by IlanaBríd Nic Annaidh ☘️ @bridgetmcgann.medsky.social · 29/07/2025🦖 What was the first animal that breastfed? 👵🏽 Can you breastfeed after menopause? 🌈 Does the color of breast milk mean anything? 🔬 Why does breastmilk contain stem cells? 💉 Does breastmilk protect against Covid? 🐄 How do different animals milks differ? Come ask us anything on FRIYAY! 352
Ilana @ilana-abc.bsky.social · 28/07/2025New publication on markers of metabolic bone disease in EPT/VLBWs during different clinical regimes. Key points: a) no improvement in ALP/radiological signs/fracture with routine fortification/switch to PTH driven protocol (but v low fracture rate) 1/ share.google/u42DlXULiNzc...share.googleMarkers of Metabolic Bone Disease in Extremely Preterm and Very Low Birth Weight Infants: A Four‐Part Cohort Study Spanning Changes in Clinical ApproachAim Analyse the association of markers of metabolic bone disease of prematurity (MBDP) with different clinical approaches to MBDP prevention and management. Methods Four-part cohort study in a ter... 121
Ilana @ilana-abc.bsky.social · 16/07/2025www.amnesty.org.uk/anti-rights Amnesty UK report finding: "a rapidly expanding network of organisations working to undermine human rights protections, targeting reproductive freedoms, LGBTI rights and promoting dangerous practices such as so-called "conversion therapy". " 020
Reposted by IlanaLilith Ferreyra-Carroll @trasinscneach.bsky.social · 15/07/2025Today is the 10th anniversary of Ireland's gender recognition act. Ireland's gender recognition is through self-declaration without the need for permission from a doctor, panel or judge etc. In the past decade nothing bad happened. youtu.be/1f8OxezAqTk?...youtu.beThe Gender Recognition Bill Becomes Law in IrelandYouTube video by TransgenderEquality 191946643
Reposted by IlanaHeather Paterson @heatherpaterson.co.uk · 14/07/2025Today is International Non-Binary People's Day and the first day of Non-Binary Awareness Week The day was first celebrated in 2012, started by Katje van Loon. The date was chosen for being precisely midway between International Women's Day and International Men's Day. 2626901358
Reposted by IlanaLlinos Cathryn Thomas @llincathryn.bsky.social · 14/07/2025I just read this and it’s wonderful! 153
Reposted by IlanaSara Conroy, PhD @episconroy.bsky.social · 27/06/2025Third generation Fenton growth curves #neosky #ebneo pubmed.ncbi.nlm.nih.gov/40534585/pubmed.ncbi.nlm.nih.govFenton Third-Generation Growth Charts of Preterm Infants Without Abnormal Fetal Growth: A Systematic Review and Meta-Analysis - PubMedCRD42024589756. 032
Ilana @ilana-abc.bsky.social · 29/06/2025This update also has a new Excel bulk calculator where you don't have to divide the data into boys and girls which is great 🙂 000
Reposted by IlanaJoe Chou @incidentalfindings.org · 29/06/2025The 3rd generation Fenton preterm growth charts were recently released, so being a data geek, I did some analysis of how the Fenton 2003/2013/2025 and Olsen 2010 preterm charts compared, and harmonization with the WHO growth standards. Also some opinionated musing. #NeoSky #PedSky #rstats #datavizincidentalfindings.orgGrowth chart comparison – Incidental FindingsComparison of Fenton, Olsen, and WHO growth charts and observations on the interpretation of small, large, preterm, and term. 022
Ilana @ilana-abc.bsky.social · 09/06/2025Last day to share your voice on future research priorities for LGBTQIA+ perinatal care (pregnancy, birth and beyond) Bit.ly/PSPTopTen - closing midnight Monday June 9th! 000
Reposted by IlanaSarindi Aryasinghe @sarindiary.bsky.social · 07/06/2025🚨New blog: Break the Barriers!🚨 For my PhD, my lived experience partners & I are co-producing research to address #racism in maternity care for Black families in NW London, and we want to share our journey! 🔗 First post + subscribe: bit.ly/3Hw2If4 #BlackMaternalHealth #coproduction #healthequityopen.substack.comIntroducing Break the BarriersCo-producing better maternity care with and for Black, African, Caribbean, and mixed-Black families—grounded in lived experience, advocacy, and research. 1127
Reposted by IlanaMehdi Hasan @mehdirhasan.bsky.social · 07/06/2025So, to be clear, Musk has now admitted he funded a man he believes to be a pedophile to be president. And Trump has now admitted that he gave access to high level government secrets to a man he believes to be a big time drug addict. This should be *the* story on the Sunday shows tomorrow. 295148544581
Ilana @ilana-abc.bsky.social · 07/06/2025Last chance to choose your Top Ten priorities for research in LGBTQIA+ perinatal care! Bit.ly/PSPTopTen closing 9th June (Monday) #equity #perinatal #pridemonth2025 #neosky #obsky #midwives #lgbtqia @jameslindalliance.bsky.social @npeu-oxford.bsky.social 011
Reposted by IlanaNational Perinatal Epidemiology Unit @npeu-oxford.bsky.social · 04/06/2025📢We are developing a new study looking at treatments that may help improve care for Hypoxic Ischaemic Encephalopathy (HIE).📢 If you have a child who received cooling therapy for HIE and are interested in taking part in an online focus group please get in touch. @npeu-ctu.bsky.social 001
Reposted by IlanaEuropean Society for Paediatric Research (ESPR) @espr-esn.bsky.social · 03/06/2025🧠Join us for the second NOTE Summer Guest Lecture! 📅 Wed, June 4 | 🕕 18:00 London time 📍 "2025: Neonatal Seizures Revisited" 👩⚕️ Prof. Maria Roberta Cilio, Université Catholique de Louvain, Belgium 🔗 Register: esntutorial.espr.eu/register #Neonatology #Neurodevelopment #ESN 012
Reposted by IlanaNeonatal Nurses Association (NNA) @neonatalnursesuk.bsky.social · 02/06/2025National surveys reveal that LGBTQIA+ families often have a lot of worries about the care they receive within the maternity and postnatal system. Ilana Levene, a neonatal doctor in Oxford, is working on a project to address this issue. Find out how you can contribute: bit.ly/3T1NTmT #PrideMonth 043
Ilana @ilana-abc.bsky.social · 02/06/2025Video update on the current stage of our priority setting partnership for LGBTQIA+ perinatal care! UK health professionals and LGBTQIA + people, take the survey here: bit.ly/PSPTopTen Share with your networks to recognise Pride month 🙂 #pregnancy #birth #babies #equity 🌈 010
Ilana @ilana-abc.bsky.social · 02/06/2025Mark Pride month by choosing your Top Ten priorities for future research on LGBTQIA+ perinatal care! Calling UK health professionals, LGBTQIA+ people, family, supporters: bit.ly/PSpTopTen #equity @royalcollegeofgps.bsky.social @rcm.org.uk @neonatalnursesuk.bsky.social @bapmofficial.bsky.socialbit.ly 010
Ilana @ilana-abc.bsky.social · 25/05/2025UK perinatal healthcare professionals, take a look at this collaboratively created list of unanswered research questions on lgbtqia+ perinatal care and choose your top ten: bit.ly/PSPTopTen #equity #research #prioritysetting 021
Ilana @ilana-abc.bsky.social · 25/05/2025UK perinatal healthcare professionals, take a look at this collaboratively created list of unanswered research questions on lgbtqia+ perinatal care and choose your top ten: bit.ly/PSPTopTen #equity #research #prioritysetting 031
Reposted by IlanaTim van Hasselt @tim-van-hasselt.bsky.social · 24/05/2025www.theguardian.com/lifeandstyle... Fantastic piece in @theguardian.com. Doctors only see part of families' lives after brain injury in childhood, this illuminates a bit more of the other side.theguardian.comThe boy who came back: the near-death, and changed life, of my son MaxIt was, we were told, a case of sudden infant death syndrome interrupted. What followed would transform my understanding of parenting, disability and the breadth of what makes a meaningful life 052