iiinova — where your digital self keeps evolving

Reposted by Ilana

Anna Holmes @annabookwriter.bsky.social · 13/08/2026

The idea of denying a hundred disabled people help because one nondisabled person “might” “take advantage” is unconscionable to me, and I do not understand why this is so hard for people to grasp.

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PPCEducate @ppceducate.bsky.social · 27/05/2026

ppceducate.co.uk. Check out the new resource we are recommending, exploring the use of framing to help others understand children's palliative care... free to access, no login required! #PPCEducate

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Vermont Oxford Network @vtoxfordnetwork.bsky.social · 17/05/2026

Today is NEC Awareness Day. At VON, we track rates of NEC every year and while rates of these outcomes have been steady, there is variation in outcomes when sorted by race. We encourage centers to use this data for quality improvement to improve the care and outcomes of infants and families. #neosky

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Dr Jo Kershaw @mthrjo.bsky.social · 14/05/2026

Once again: Jo Cox MP was murdered. David Amess MP was murdered.

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Ilana @ilana-abc.bsky.social · 12/05/2026

Thanks @rcpch.bsky.social for giving us the chance to present the priority setting partnership on LGBTQIA+ perinatal care to paediatricians. Just a shame that the 8am timing and 30 minute length limited what we could share and how many people we could connect to... @natboxall.bsky.social

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Moriam (Neonatal Dietitian) @moneord.bsky.social · 02/04/2026

Excited to finally see this @bapmofficial.bsky.social draft framework out for consultation! Please share and give us your feedback 😀 www.bapm.org/resources/pr... #neonatalsky #preterm #MBDP #nutrition #NICU #FiCare #dietitian

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Ilana @ilana-abc.bsky.social · 19/03/2026

Had a great time at the Neonatal Society meeting today. So many people were interested to hear about the induced lactation & shared lactation questions that came from the JLA priority setting partnership for LGBTQIA+ perinatal care. And so many presentations on great UK neonatal research

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Ilana @ilana-abc.bsky.social · 23/01/2026

No instructions to pump to maintain supply if having to use alternate milks...

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Jane Plumb @janeplumb.bsky.social · 20/01/2026

If you/a family member has used maternity or neonatal services in England, share your experience with the NMNI team. Tell them what worked, what didn’t, what must change. Help make care safer & better. Please add your voice & share so others can too. www.matneoinv.org.uk/call-for-evi...

matneoinv.org.uk

Call for Evidence - National Maternity and Neonatal Investigation

Baroness Amos is asking women and families across England to share their experiences of maternity and neonatal care through a public Call for Evidence.

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Ilana @ilana-abc.bsky.social · 12/01/2026

Systematic review of herbal products for lactation after preterm birth - low certainty of effect from barley malt, lettuce syrup, Moringa oleifera (all inexpensive), silymarin phytosomes with phosphatidylserine and Galega (branded supplement, ££) #neosky #lactation www.nature.com/articles/s41...

nature.com

Client Challenge

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Ilana @ilana-abc.bsky.social · 12/01/2026

I was a little worried about the difference between labinic and proprems - although not statistically different, the rate of NEC for proprems was very much clinically significantly higher if a true estimate...

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Ilana @ilana-abc.bsky.social · 05/01/2026

Preterm birth was one of the largest influences on school readiness in this study (<32wk, with 32-36wk also having an impact), along with male sex & low maternal education: Observational cohort study using Born in Bradford birth cohort data bmjpaedsopen.bmj.com/content/10/1...

bmjpaedsopen.bmj.com

Early life exposures and school readiness: an observational cohort study using the Born in Bradford longitudinal birth cohort data

Objective To assess the associations of early life exposures with school readiness.Design, setting, main outcome measure and participants Using data from the Born in Bradford (BiB) birth cohort, we in...

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Ilana @ilana-abc.bsky.social · 25/12/2025

Have you seen the cut sequence where he does gymnastics? Not actually relevant to your point...

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Ilana @ilana-abc.bsky.social · 20/11/2025

Thanks so much to all the LGBTQIA+ people and their healthcare professionals, family, friends, gamete donors and surrogates who took part in the priority setting partnership process over the last 18 months, and to my wonderful steering group 3/3

Today we showed questions 19-24 - that's it! To see all the questions, go to bit.ly/PSPresults. To see what evidence is out there on these questions, go to: bit.ly/PSPevidence

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Ilana @ilana-abc.bsky.social · 20/11/2025

To see all 48 summary questions go to bit.ly/results. To read more about the process, bit.ly/about. And to look at accessible summaries of any existing evidence that we found on the topic of any of these questions, bit.ly/evidence 2/

Question 23: How often is written language (for example, letters, forms and policies) used by perinatal services inclusive or exclusive of LGBTQIA+ people? How can institutions keep up to date with inclusive language?

Question 24: How can the number and range of sperm donors available to LGBTQIA+ people be increased, including those from racialised ethnic backgrounds?

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Ilana @ilana-abc.bsky.social · 20/11/2025

Final day of sharing Top 24 research priorities for LGBTQIA+ Perinatal Care (@jameslindalliance.bsky.social PSP, supported by @ox.ac.uk & @britishacademy.bsky.social ).Qu 19-24 cover bonding, work leave, experiences of gender, induced & shared lactation, written language, & sperm donor diversity 1/

Question 19: What are the similarities and differences for gestational and non-gestational LGBTQIA+ parents bonding with their baby, and how can bonding be maximised?

Question 20: What are LGBTQIA+ people’s experiences of taking leave from work when trying to conceive, during pregnancy or as new parents?

Question 21: How do transgender parents’ experiences of their gender in the perinatal period affect their relationship with their baby?

Question 22: What are non-gestational parents’ experiences of inducing lactation, and/or sharing lactation? What are the effects on the parents, and on the baby who is drinking induced milk?

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Ilana @ilana-abc.bsky.social · 19/11/2025

As usual, see bit.ly/PSPresults to see all the questions and bit.ly/PSPevidence for any evidence that we found that starts to address them #perinatalequity #LGBTQIA #twomums #twodads #allkindsoffamilies 2/2

Question 17: How do the parental titles on birth certificates affect LGBTQIA+ parents?

Question 18: How confident and competent are perinatal staff in using up to date LGBTQIA+ inclusive language, and how can this be improved?

Today we showed questions 13 to 18. More to follow... To see all the questions, go to: bit.ly/PSPresults. To see what evidence is out there on these questions, go to: bit.ly/PSPevidence

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Ilana @ilana-abc.bsky.social · 19/11/2025

Day 3 of 4: results of the LGBTQIA+ Perinatal Care Priority Setting Partnership. Qu 13-18 cover finding information, induced lactation, timing of gender affirming hormones, surrogacy, parental titles on birth certificates and inclusive language 1/

Question 13: Where do LGBTQIA+ people and healthcare professionals look for information about reproductive choices (including success rates, health, legal, financial and employment implications)? Is the information they get accurate, and how can access to information be improved, including from NHS sources?

Question 14: What are the most successful methods for inducing lactation in a non-gestational parent? What are the barriers to healthcare professionals providing lactation support to a non-gestational parent and how can these be overcome?

Question 15: When planning a pregnancy, what are the right timings to pause and restart gender affirming hormones?

Question 16: What increases good experiences of care and good perinatal outcomes for surrogates and LGBTQIA+ people becoming parents through surrogacy?

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Ilana @ilana-abc.bsky.social · 18/11/2025

These research priorities are the result of an 18 mth collaborative process of gathering questions, summarising, looking for evidence & then prioritising. All 48 summary questions are on the launch website, including one which we felt has already been answered by research 3/3

Today we showed questions 7 to 12. More to follow... To see all the questions, go to: bit.ly/PSPresults. To see what evidence is out there on these questions, go to: bit.ly/PSPevidence

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Ilana @ilana-abc.bsky.social · 18/11/2025

Questions 7-12 cover emotional labour, inclusive language, loss, geographical inequalities, risk stratification for pregnancy and labour care, and abortion. To see the limited evidence that is already out there on some of these questions, see bit.ly/PSPevidence #perinatal #lgbtqia #obsky #neosky 2/

Question 9: How does perinatal and reproductive loss affect LGBTQIA+ people’s mental health and decisions about trying to conceive again? What are their experiences of support during perinatal loss, and how can this be improved? By perinatal loss we mean being unable to try to conceive (can’t find a surrogate or donor, can’t afford fertility treatment); not getting pregnant; miscarriage; stillbirth; death of a baby

Question 10: How does where LGBTQIA+ families are in the UK affect their access to reproductive options, and how are their decisions and experiences affected by this?

Question 11: How does the way LGBTQIA+ people got pregnant (home insemination, IUI, IVF with own egg, IVF with someone else’s egg) affect healthcare recommendations (for example, obstetric-led care and induction of labour)? How do these recommendations affect parents and babies?

Question 12: What are LGBTQIA+ people’s experiences of abortion and abortion support in the UK?

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Ilana @ilana-abc.bsky.social · 18/11/2025

Day two of sharing the @LindAlliance LGBTQIA+ Priority Setting Partnership results: questions 7 - 12 coming up... see yesterday's post for questions 1-6 and more description of the project, or read here: bit.ly/PSPabout and bit.ly/PSPresults 1/

Hundreds of LGBTQIA+ people and health professionals shared questions about fertility, pregnancy, birth and the time afterwards. Together we decided which ones need to be answered first. Read on for our results...

Question 7: How much emotional labour are LGBTQIA+ people doing when accessing (or thinking about accessing) perinatal healthcare? How can this situation be improved? By emotional labour we mean the mental work people do in order to access services or meet someone else’s needs. It might include giving explanations of how LGBTQ+ people conceive, answering homophobic comments, dealing with your own emotions when forms or systems don’t fit your family, or thinking about any of these issues before making or going to an appointment.

Question 8: How does using inclusive language throughout any treatment, pregnancy and birth, healthcare encounters, and within the first year of a baby’s life affect LGBTQIA+ families?

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Ilana @ilana-abc.bsky.social · 17/11/2025

Each day I will share six of the Top 24 questions. To see the full Top 24, and all 48 summary questions, go to: bit.ly/PSPresults. To see our summary of the evidence that is currently out there for each of these summary questions, go to: bit.ly/PSPevidence 4/

Question 5: what does good perinatal mental health support look like for LGBTQIA+ people, and is this different for gestational and non-gestational parents, or for people with different genders or gender identities?

Question 6: are perinatal outcomes different for LGBTQIA+ people, and are they affected by how someone attempted pregnancy or became pregnant? By perinatal outcomes we mean live birth rates, stillbirths and miscarriages; pregnancy, labour and birth complications; interventions to start labour or during labour; mode of birth; gestational parent/surrogate mortality rates; birth trauma; mental health; infant feeding, health, developmental and mortality outcomes

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Ilana @ilana-abc.bsky.social · 17/11/2025

The aim of the project is to help target future research to the most important questions. We also want to share the qus with the LGBTQIA+ community, as well as the evidence we found that is already out there on some of the questions 3/

Question 3: what training do healthcare professionals and their educators need about how LGBTQIA+ people become parents (including family creation, perinatal care and infant feeding)?

Question 4: how do puberty blockers and gender affirming hormones (both regulated and unregulated) affect fertility, pregnancies, the foetus, birth and postnatal healing?

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Ilana @ilana-abc.bsky.social · 17/11/2025

In our 2nd survey, 214 LGBTQIA+ people & their HCPs chose their Top 10 summary qus. This helped us choose 20 qus to take to a final prioritisation workshop. 4 more qus also stood out as being really important from the survey, so we are presenting the Top 24 questions 2/

Question 1: how do healthcare responses to LGBTQIA+ people's intersectional identities affect whether they can become parents and have good perinatal care? For example, those who may be subjected to disable-ism, fatphobia, racism or faith-based discrimination. What are the barriers to improving this?

Question 2: What does LGBTQIA+ inclusive care look like? What models of perinatal care (for example, specialist midwives, LGBTQIA+ 'out' healthcare professionals, continuity of carer) work for LGBTQIA+ people?

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Ilana @ilana-abc.bsky.social · 17/11/2025

Excited to launch the results of the LGBTQIA+ Perinatal Care Priority Setting Partnership. In our 1st survey, 366 LGBTQIA+ people & their HCPs submitted 1166 qus. We combined qus on the same topic to make 48 summary qus. We checked the evidence to see if any had been answered 1/

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Ilana @ilana-abc.bsky.social · 16/11/2025

Interested in LGBTQIA+ perinatal health, particularly collaborative research with LGBTQIA+ families? This family focused research network hosted by York University looks fantastic, we will be presenting our priority setting work there on Dec 3rd www.eventbrite.co.uk/e/research-p... #lgbtq #perinatal

eventbrite.co.uk

Research Priorities for LGBTQIA+ Health: Online Meeting

The inaugural meeting of our Research Network shares LGBTQIA+ perinatal health research priorities

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Ilana @ilana-abc.bsky.social · 06/11/2025

fun.chicagotribune.com/game/la-time... for the crossword lovers, hope this is as much fun to solve as it was to create 🙂

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Ilana @ilana-abc.bsky.social · 04/11/2025

Plus at least this design can protect disabled people, in contrast to LTN bollards

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Ilana @ilana-abc.bsky.social · 04/11/2025

N3 poster about giving buccal vitamin D to premature babies - it seems to work! #neosky #vitamind #mbd

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Ilana @ilana-abc.bsky.social · 10/10/2025

bmjpaedsopen.bmj.com/content/9/1/... UK wide paper reporting perinatal optimisation and a few other variables through the lens of ethnicity and deprivation. Timing of cord clamping, admission temperature, mothers milk provision and communication with/involvement of parents showed inequities

bmjpaedsopen.bmj.com

Does neonatal care delivery in England and Wales vary by deprivation and ethnicity: a retrospective cohort study

Objective To investigate whether perinatal care delivery in England and Wales varies by ethnicity and socio-economic deprivation, using National Neonatal Audit Programme (NNAP) measures.Design Retrosp...

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Ilana @ilana-abc.bsky.social · 17/08/2025

There were about 5 RCTs in the 50s/60s. Most showed some increase in milk volume or infant weight gain, some didn't. One neonatal unit RCT from Holland appeared to show dramatic increase in milk yield but larger RCT in UK did not replicate. Yes, potential for more research

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Ilana @ilana-abc.bsky.social · 17/08/2025

Disingenuous to say that nasal oxytocin has too many side effects to use. Several countries use it without problems. Whether its effective is unproven but side effect profile is not a compelling reason for an alternative product (which will presumably be under patent and likely much more expensive)

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Caroline Litman @alicemydaughter.bsky.social · 15/08/2025

Thank you for your wonderful review. I’m so glad you enjoyed it. I wish everyone would read it too. Especially politicians. Then all doctors, whose voices are unsettlingly quiet on the matter of our government led withdrawal of trans healthcare and how this fits with ‘do no harm’.

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Sharna @headsmartfellow.bsky.social · 08/08/2025

Absolutely delighted to see the Child Cancer Smart campaign launch today. A campaign steeped in evidence aiming to raise awareness and accelerate diagnosis for all children and young people with cancer. Huge thank you to everyone who has worked so hard to make this happen.

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The SURFSUP Trial @surfsuptrial.bsky.social · 08/08/2025

Welcome to the new BlueSky home for the SURFSUP Trial! SURFSUP is a RCT including preterm infants ≥1250g, comparing supraglottic airway surfactant vs minimally invasive surfactant by thin catheter in preventing surfactant treatment failure. We'll be posting updates on the trial here 🏄🏄‍♂️🏄‍♀️

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La Leche League Great Britain (LLLGB) @lllgb.bsky.social · 04/07/2025

"Breastfeeding was something I could do in a body that so often feels limited. I’m so proud of our journey and everything we achieved." Thanks to Jo for sharing her story with us #DisabilityPrideMonth

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Otto English @ottoenglish.bsky.social · 06/08/2025

The moment I saw that "trans bra" M & S story I sensed it was nonsense. Seconds later, having read the Telegraph piece I knew it was worse than that. It was deliberate hate mongering completely devoid of evidence, names and facts. Superb job of debunking it here www.thepinknews.com/2025/08/06/m...

thepinknews.com

Dispelling harmful misinformation about M&S 'trans' bra fitting row

Dangerous misinformation over an M&S 'trans' bra fitting story is spreading online; here's what we actually know.

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Bríd Nic Annaidh ☘️ @bridgetmcgann.medsky.social · 05/08/2025

@brandeisuniversity.bsky.social is hosting a webinar TOMORROW discussing how to support parents with a variety of disabilities in lactation and breastfeeding their child. 🔗 zurl.co/UMvAl #NationalBreastfeedingMonth #NBM #DisabledPregnancy #WorldBreastfeedingWeek2025 #MCH

Graphic for a webinar titled "Lactation and Breastfeeding with a Disability" on Wednesday, August 6, 2025, at 12 PM ET, featuring speakers Alesha Thomas, Elizabeth Campbell Soper, and Norma Morán. The flyer features a purple background with speaker photos and accessibility icons indicating the availability of sign language interpretation and closed captioning.

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Geula Hanin @geula.bsky.social · 04/08/2025

Still time to join our team! We're exploring how lactation and early nutrition shape lifelong health 🔬🥼👩🏻‍🔬🤱

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