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georgerook

@georgerook.bsky.social
46 followers 94 following 30 posts

living as best I can with dementia: blogs, research, painting

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georgerook @georgerook.bsky.social · 26/08/2026
georgerook51.wordpress.com/2026/08/26/w...
georgerook51.wordpress.com
Whom do we represent?
I and my friends living with dementia are all different, but most of us have symptoms that have not yet become severe. Indeed, they may never develop a lot further. We believe that the more we use …
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Dementia Community @dementiacommunity.bsky.social · 24/06/2026
📢 Latest News! 👉 Participants wanted for study into live-in care for people with dementia buff.ly/qCKz2DX #dementia #News
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georgerook @georgerook.bsky.social · 06/06/2026
@guardianheather.bsky.social Could someone expose this hypocrisy and illegality by Alzheimers Society please? georgerook51.wordpress.com/2026/06/03/t...
georgerook51.wordpress.com
Trust the trustees?
To… The Chief Executive and the Chair of Trustees Ms Dyson and Ms Leather Alzheimer’s Society Suite 2 1st Floor East Wing Plumer House Tailyour Road Plymouth PL6 5FS 3rd June 2026 Dear Ms Dys…
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Innovations in Dementia @innov-dementia.bsky.social · 14/04/2026
@dementiacommunity.bsky.social @georgerook.bsky.social @imcmillan.bsky.social @nihr.bsky.social @kateswaffer.bsky.social @markwilberforce.bsky.social @nationalvoices.bsky.social @tnlcommunityfund.org.uk @exeter.ac.uk @claudiacooper.bsky.social @rthonwesstreeting.bsky.social @bpsofficial.bsky.social
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Dr Lucy Carolan @icarousse.bsky.social · 03/06/2026
I've just found and read the bulletin, and on top of everything you say in your blog, how could they precede the trustee announcement with a piece about how valuable *the lived experience of one person* was to a training session and not properly credit her contribution by naming her in full?!
email.alzheimers.org.uk
Alzheimer's Society Involvement Bulletin
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georgerook @georgerook.bsky.social · 03/06/2026
Trust the trustees? Alzheimers Society has just excluded people living with dementia from being a trustee. Hardly believable? georgerook51.wordpress.com/2026/06/03/t...
georgerook51.wordpress.com
Trust the trustees?
To… The Chief Executive and the Chair of Trustees Ms Dyson and Ms Leather Alzheimer’s Society Suite 2 1st Floor East Wing Plumer House Tailyour Road Plymouth PL6 5FS 3rd June 2026 Dear Ms Dys…
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georgerook @georgerook.bsky.social · 18/03/2026
My latest blog about living with dementia. Pls RB if you like it. Or not. georgerook51.wordpress.com/2026/03/18/t...
georgerook51.wordpress.com
The Outsiders
How do I know I exist? When I studied Camus and Sartre in the 70s I found it hard to understand the concept of existence. Is it religious? Do I exist because I believe in there being a God who crea…
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Charlotte Augst @charlotteaugst.bsky.social · 01/10/2025
I read this (and then some other things on @georgerook.bsky.social 's website with interest. I think I would also rather go for a pub lunch than a memory cafe.
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georgerook @georgerook.bsky.social · 10/02/2026
My latest post about living with dementia. georgerook51.wordpress.com/2026/02/10/r...
georgerook51.wordpress.com
RISK
No, mum. You can’t go out on your own! Oh I’d better come with you. You might slip on those rocks… Here’s some cotton wool to roll you in… Risk and safeguarding, two key elements of living as you c…
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georgerook @georgerook.bsky.social · 18/01/2026
journalofdementiacare.co.uk/awards
journalofdementiacare.co.uk
2026 UK Dementia Awards – Dementia Community
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georgerook @georgerook.bsky.social · 07/01/2026
georgerook51.wordpress.com/2026/01/06/a... My latest post about living with dementia.
georgerook51.wordpress.com
Antipsychotic anyone?
I need to write. After three weeks of sub zero cryotherapy in my brain it is time to shake myself off. I feel dull, faint, distant, drugged – although I am no more drugged than usual – …
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georgerook @georgerook.bsky.social · 19/12/2025
My latest post about living with dementia. Pls repost if you like it. Or not. georgerook51.wordpress.com/2025/12/19/h...
georgerook51.wordpress.com
Humbuggery
If you have read my writings in previous years you will know that Christmas brings noise, clamour and many urges to restrain small people. So this year something different. For 2026. For in 2026 we…
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georgerook @georgerook.bsky.social · 30/09/2025
georgerook51.wordpress.com/2025/09/30/t...
georgerook51.wordpress.com
The devastating hyperbole of dementia
Here’s another go at dementia numbers, and the devastation that surrounds dementia. One or two of us (with dementia) have become increasingly upset about the way numbers and predictions are being t…
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georgerook @georgerook.bsky.social · 14/08/2025
My latest blog about dementia. Pls RT if you like it. Or not. georgerook51.wordpress.com/2025/08/14/a...
georgerook51.wordpress.com
A moral conundrum
Here is an extract from a BBC website news report today. ‘…a London School of Hygiene and Tropical Medicine study said there had been little improvement in those affecting the oesophagus, stomach a…
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georgerook @georgerook.bsky.social · 10/08/2025
www.eventbrite.co.uk/e/young-onse...
eventbrite.co.uk
Young Onset Dementia Conference
Discover new approaches to young onset dementia care with real stories, our film "If Not Now, When?" & workshops you won’t want to miss!
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georgerook @georgerook.bsky.social · 18/07/2025
My latest blog about living with dementia. What did we so to deserve this georgerook51.wordpress.com/2025/07/18/w...
georgerook51.wordpress.com
What did we do to deserve this?
What have we done to deserve this? Good question. What indeed? Let’s start with what “this” is? Well, I’m talking about dementia, as you would expect. But this “this” varies enormously. Everyone’s …
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georgerook @georgerook.bsky.social · 06/05/2025
Live in Care for people with dementia. (in the uk) www.southampton.ac.uk/publicpolicy... Research opportunity for people living with dementia. Provide your experience and wisdom to researchers into Live In Care. Join our lay involvement panel. message me
southampton.ac.uk
Understanding how and why live-in care packages are arranged and sustained when dementia is the primary support need: A mixed method study (LIVE-DEM).
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georgerook @georgerook.bsky.social · 27/04/2025
My latest blog about living (not dying) with dementia. Pls RT if you like it. Or not. georgerook51.wordpress.com/2025/04/27/d...
georgerook51.wordpress.com
‘Dear’ Alzheimers Society
Dear Alzheimers Society, What do you think you are doing? What are you hoping to achieve? Why are you putting out your intensely untrue and cruel advertisement? People living with dementia do not d…
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georgerook @georgerook.bsky.social · 17/04/2025
My latest blog about living with dementia. georgerook51.wordpress.com/2025/04/17/d...
georgerook51.wordpress.com
Dementia Assessment and Support?
I am really pleased that a few memory services are changing their name to Dementia Assessment and Support Service. DASS seems to be the favoured (the only?) acronym. I remember that my dad used to …
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georgerook @georgerook.bsky.social · 10/04/2025
My new post about living with dementia. pls reblue it if you like it. or not georgerook51.wordpress.com/2025/04/10/s...
georgerook51.wordpress.com
Still me inside
A reminder…people living with dementia are still people I will not disclose the trigger for this piece, but I am more and more and more concerned and annoyed by the continuing paradigm about dement…
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georgerook @georgerook.bsky.social · 04/04/2025
My latest blog about living with dementia. Please RT if you like it, or not. georgerook51.wordpress.com/2025/04/03/t...
georgerook51.wordpress.com
To blog or not to blog?
(Slings and arrows, etc etc) Why do I write blogs? What am I trying to achieve? I started about ten years ago, I think. Soon after I had been diagnosed with mixed dementia, aged 62. I met other peo…
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georgerook @georgerook.bsky.social · 03/04/2025
Take two Van Goghs daily: the growing popularity of museum prescriptions Via @roylilley1.bsky.social Really important research re social prescribing arts and culture
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georgerook @georgerook.bsky.social · 27/03/2025
Via @roylilley1.bsky.social Fiscal rules that are no more than inventions, deliver the grotesque image of rich people not taxed for fear they’ll run away and poor people taxed, made fearful because they have nowhere to run. So true…
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Innovations in Dementia @innov-dementia.bsky.social · 10/02/2025
Have you got a question about dementia. Why not ‘Ask a Dementia Diarist’? You can email your question to DementiaDiaries@outlook.com and we will put it to our diverse range of diarists in our #DementiaDiaries community!
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georgerook @georgerook.bsky.social · 20/03/2025
arc-eoe.nihr.ac.uk/news-blogs/b...
arc-eoe.nihr.ac.uk
Prioritising the voices of people living with dementia to shape the future of social prescribing
For Social Prescribing Day, the SPLENDID project team shares how the project is ensuring social prescribing remains effective and beneficial for people living with dementia and their carers. We hear f...
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georgerook @georgerook.bsky.social · 19/03/2025
Interesting…X not working again today. Or I’ve been blocked?
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georgerook @georgerook.bsky.social · 19/03/2025
RIP Nigel Hullah. A learned and dogged campaigner for human rights and better dementia lives. We will miss you.
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georgerook @georgerook.bsky.social · 10/03/2025
My latest blog about living with dementia. Pls RT if you like it. Or not. georgerook51.wordpress.com/2025/03/10/w...
georgerook51.wordpress.com
Watch them weep
Where is the care for those living with dementia when they need it? Of course, I include family and other unpaid care givers in this, because there often comes a time when they cannot (and should n…
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georgerook @georgerook.bsky.social · 05/03/2025
if you live in or near Shrewsbury and have recently been diagnosed with dementia this course is for you. www.shropshirelive.com/news/2025/03...
shropshirelive.com
Course will show how to live a good life with dementia
‘Dementia is not a death sentence’ - that’s the message from the organisers of course that is being run in Shrewsbury.
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Tom Shakespeare @tomshakespeare.bsky.social · 03/01/2025
Sad to hear about David Lodge. Showed you could write both academic books and great fiction...
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georgerook @georgerook.bsky.social · 23/11/2024
I’m now booked up for trains and hotel for Dementia Congress next week. Catch up with old and new friends.
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Kristen Panthagani, MD, PhD @kmpanthagani.bsky.social · 15/11/2024
I would love to tell you about the times vaccines prevented me from getting sick, but every time it happens, I don’t notice. I just keep feeling well. Neither do you. Public health, when it’s working, is invisible.
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Helen Salisbury @helensalisbury.bsky.social · 16/11/2024
My reading of this is that is up to each individual doctor so set the scope of practice for the PA/AA working with them. If you give them too much responsibility and they harm someone, that's the Dr's career down the swanee. www.pulsetoday.co.uk/news/regulat...
pulsetoday.co.uk
Physician associates will need 'individual' scopes of practice, says GMC chair
Exclusive: The GMC will not take into account other bodies' scopes of practice for physician associates (PAs) when regulation begins.
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georgerook @georgerook.bsky.social · 15/11/2024
Hello. I’ve just joined to get away from Musk et al. I am an artist with dementia and researcher activist re dementia. If you see this and have similar interests please follow me.
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