Sign in

Centre of Genomics and Policy

@genomicsandpolicy.bsky.social
244 followers 47 following 70 posts

Centre of Genomics and Policy: Exploring the socio-ethical and legal issues in genomic health sciences. www.genomicsandpolicy.org/

PostsRepliesMedia
Centre of Genomics and Policy @genomicsandpolicy.bsky.social · 20/08/2026
The CGP had a great time hosting this week’s symposium "At the Intersection of Forensic and Medical Genetics: Science, Ethics, and Public Policy" at McGill University.
111
Centre of Genomics and Policy @genomicsandpolicy.bsky.social · 15/06/2026
Last week, CGP Director Prof. Yann Joly presented “From Data Sharing to Data Resilience: Governing Genomic Surveillance in Uncertain Times” at the Robert Koch Institute Colloquium 2026 in Berlin. 🎥 Watch the presentation here: www.youtube.com/watch?v=iR5E... More info below 🧵
100
Centre of Genomics and Policy @genomicsandpolicy.bsky.social · 25/05/2026
Our #CGP Newsletter is here! 🗞️ Check out the latest issue below👇🏼 mailchi.mp/mcgill/cgp-n...
000
Centre of Genomics and Policy @genomicsandpolicy.bsky.social · 27/04/2026
How do we ensure AI-driven medicine stays aligned with #ELSI values? 🧠 ⚖️ On May 7th, CGP’s Academic Associate Maelenn Corfmat will be presenting at the upcoming #HaploTalks seminar as she tackles the ELSI challenges of biomarker discovery. 🖇️ See more info on poster.
000
Centre of Genomics and Policy @genomicsandpolicy.bsky.social · 17/04/2026
That’s a wrap on the @ga4gh.org Annual Connect 2026 meeting. 🧬 🌎 🧩 It was a dynamic week-long event that brought together the #GA4GH community to collaborate, advance technical work, and reflect on strategic priorities. 🧵More info below ⬇️
100
Centre of Genomics and Policy @genomicsandpolicy.bsky.social · 16/04/2026
Thank you to all who attended the seminar “Health Law, Ethics, and AI in China,” presented by Dr. Li Du. He explored China’s evolving AI legal framework in healthcare, covering data protection, oversight, and ethical challenges. Hosted by CGP and McGill RGHL. #HealthLaw #Ethics #AI
000
Centre of Genomics and Policy @genomicsandpolicy.bsky.social · 15/04/2026
Visit the CGP booth at the Human Genetics Students' Society (HGSS) 2026 conference! Where genomics meets ethics, law & policy. Connect with our mentors and explore #CGP research opportunities. 🗓️ April 27 @ 9AM – 6PM | 📍MUHC Register Here: bit.ly/4838I9E
000
Centre of Genomics and Policy @genomicsandpolicy.bsky.social · 14/04/2026
🧬 💻 🧪Join us for a special seminar happening this Friday hosted by the Victor Phillip Dahdaleh Institute of Genomic Medicine & the Centre of Genomics and Policy. Dr. Minxian Wang (China National Center for Bioinformation) will present “Data Resources of the China National Center for Bioinformation.”
100
Centre of Genomics and Policy @genomicsandpolicy.bsky.social · 10/03/2026
📢 New article! The BQC19 enabled rapid collection and sharing of samples and data to advance COVID-19 research. Our article highlights how its governance, flexible consent, and collaborative framework created a scalable model for future health crises. 🔗 bit.ly/40XAiRy
bit.ly
Sage Journals: Discover world-class research
Subscription and open access journals from Sage, the world's leading independent academic publisher.
110
Centre of Genomics and Policy @genomicsandpolicy.bsky.social · 23/02/2026
Upcoming HaploTalks seminar on Mar. 5, hosted by McGill's Victor Phillip Dahdaleh Institute of Genomic Medicine. CGP Research Assistants, Fatoumata Binta Diallo and Charles Selva-Rivero will delve on “Rethinking Risks: Genetic Discrimination and Children’s Right to Participate in Research.” 🧬⚖️🔬
000
Centre of Genomics and Policy @genomicsandpolicy.bsky.social · 02/02/2026
❄️ Our Winter Newsletter has arrived! 📬 Dive into the latest research, publications, upcoming events, and highlights at the Centre. Read the latest issue here👇 us18.campaign-archive.com?e=[UNIQID]&u...
011
Centre of Genomics and Policy @genomicsandpolicy.bsky.social · 15/01/2026
🚀 We’re excited to launch our new video on Explainable AI (XAI) which is part of the OBVIA-funded (@observatoireia.bsky.social) project "Explaining the Right to Explanation: Data Protection Legislation and Clinical Automated Decision-Making" (PI: Ma'n H. Zawati @mhzawati.bsky.social). Links below🧶
111
Centre of Genomics and Policy @genomicsandpolicy.bsky.social · 23/12/2025
As the year comes to a close, the CGP team wishes you a happy holiday season! 💌
000
Centre of Genomics and Policy @genomicsandpolicy.bsky.social · 10/12/2025
Just out in @natgenet.nature.com 🗞️ CGP published a new piece on the urgent need for a global #cybersecurity framework in #genomics. Fragmented #governance is increasing dual-use and data security risks. The field needs coordinated global standards. 🔗 Read the article: doi.org/10.1038/s415...
010
Centre of Genomics and Policy @genomicsandpolicy.bsky.social · 14/11/2025
🎉 Congratulations to Prof. Ma'n H. Zawati @mhzawati.bsky.social, Research Director at the CGP, on being inducted on Nov. 14 2025, as a member of the Royal Society of Canada! 🎥 Watch Prof. Zawati discuss his research and its impact on Canadian healthcare: www.youtube.com/watch?v=PHMc...
youtube.com
Ma'n H Zawati | 2025 New College Member | McGill University
YouTube video by The Royal Society of Canada
032
Centre of Genomics and Policy @genomicsandpolicy.bsky.social · 07/11/2025
Excited to share a new D2R-funded project led by Larry Lynd (UBC), co-led by Profs @YannJoly6 & @MHZawati (CGP, McGill): Early assessment of the value of novel #RNAtherapeutics in #genomicnewbornscreening initiatives: health, economic and ethical implications. 🧶
mcgill.ca
Foundational Projects | Cycle 2
The Foundational Projects funding program supports high-risk, early-stage projects with the potential to be game-changers in the fields of D2R’s areas of interest. In the second funding cycle launched...
100
Centre of Genomics and Policy @genomicsandpolicy.bsky.social · 07/11/2025
The upcoming Brocher Foundation meeting will delve on the latest health data news and the ethical challenges surrounding them. Tune in on Nov. 11th, 2025 at 2PM (Geneva time). 🔗 us06web.zoom.us/j/83487320128
us06web.zoom.us
Join our Cloud HD Video Meeting
Zoom is the leader in modern enterprise cloud communications.
100
Centre of Genomics and Policy @genomicsandpolicy.bsky.social · 20/10/2025
Congratulations to Prof. Bartha Maria Knoppers, our Centre’s Founding Director and Distinguished James McGill Professor Emerita, on receiving the McGill Medal for Exceptional Academic Achievement! 👏🏼 reporter.mcgill.ca/bartha-knopp...
reporter.mcgill.ca
Bartha Knoppers awarded McGill Medal for lifetime of pioneering work in bioethics  - McGill Reporter
From literature to law to genetics, the founder of McGill’s Centre of Genomics and Policy built a career at the crossroads of science and ethics
010
Centre of Genomics and Policy @genomicsandpolicy.bsky.social · 17/10/2025
Dr. Zohar Lederman (Emergency Medicine, University of Hong Kong) spoke about the Marburg outbreak in Rwanda 🦠🌍 While widely praised as a One Health & public health success, he highlighted key data gaps, limited attention to animal and environmental health and conflicting economic development goals.
000
Reposted by Centre of Genomics and Policy
Ma’n H. Zawati @mhzawati.bsky.social · 17/10/2025
New in Cell! “Exploring Latin America one cell at a time” — we chart challenges & opportunities for single-cell & spatial genomics across LATAM. A call for equitable funding, collaboration & capacity building. 🔗 doi.org/10.1016/j.ce...
doi.org
Redirecting
011
Centre of Genomics and Policy @genomicsandpolicy.bsky.social · 08/10/2025
In honour of Breast Cancer Awareness Month 💗, CGP Director Yann Joly will be paneling at @d2rmcgill.bsky.social’s upcoming event on Breast Cancer & RNA Therapeutics on Oct. 22, 2025. 🔗 Register: bit.ly/3J4DbuB 🗓️ Oct. 22, 2025 @ 5 - 8:30PM 📍 Atrium, Bellini Building, McGill University
bit.ly
In Person Event | Breast Cancer & RNA Therapeutics: Exploring inclusive research and career opportunities
Join D2R and the Rosalind and Morris Goodman Cancer Institute (GCI) for an event in honour of Breast Cancer Awareness Month and Women's History Month, in collaboration with Fondation du cancer du sein...
010
Centre of Genomics and Policy @genomicsandpolicy.bsky.social · 02/10/2025
🗞️ Our newsletter is fresh off the press! Catch up on the recent research, publications, and highlights at the CGP in our Summer-Fall Issue: mailchi.mp/mcgill/cgp-n...
mailchi.mp
CGP News | Summer-Fall Issue 2025
000
Centre of Genomics and Policy @genomicsandpolicy.bsky.social · 25/09/2025
The CGP and @phgfoundation.bsky.social co-hosted an international think tank at Ayer’s Cliff, Canada, bringing together leading scholars, professionals and practitioners to reimagine the future of #genomics, #medicine, and global population #health in a data-driven world now through 2050.
Photo (left to right): Bartha Maria Knoppers, Brian Chung, Laura Blackburn, Ron Zimmern, Vasiliki Rahimzadeh, Colin, Ma’n H. Zawati, Anna Lewis, Edward Dove, Nicola Mulder, Jeffrey Barrett, Paul Pharoah, Marina Cornel, Anneke Lucassen, Anthony Ng, David Glazer, Katherine Littler, Jeff Skopek, Habiba Al Safar, Eric Meslin, Yann Joly, Calvin Ho, and Pete Mills.
120
Centre of Genomics and Policy @genomicsandpolicy.bsky.social · 10/09/2025
Prof. Calvin W.L. Ho’s talk, “Polygenic Risk Scores and the Human Right to Science,” from the Annual Bartha Maria Knoppers Lecture, is now available for viewing! 🎤 Watch the recording on our YouTube channel:
youtu.be/BRbpegQDF5A?...
Prof. Calvin Ho presenting at the Bartha Maria Knoppers Annual Lecture 2025
100
Centre of Genomics and Policy @genomicsandpolicy.bsky.social · 08/09/2025
🎤 That’s a wrap on the 3rd Annual Bartha Maria Knoppers Lecture! Honoured to host Prof. Calvin W.L. Ho (@monashuniversity.bsky.social) for his talk, "Polygenic Risk Scores and the Human Right to Science," celebrating Knoppers' legacy in genomics and health law. Thanks to all who attended!
100
Centre of Genomics and Policy @genomicsandpolicy.bsky.social · 08/09/2025
Is it time to rethink ELSI? 💭 Last week at @mcgill.ca, our guest speaker Eric M. Meslin, global leader in bioethics and science policy and member of the CGP Advisory Committee member, sparked a vital convo on ELSI’s future in research & genomics—its roots, impact, and two diverging paths ahead.
000
Reposted by Centre of Genomics and Policy
Ma’n H. Zawati @mhzawati.bsky.social · 04/09/2025
Honoured to share that I have been elected to the College of New Scholars, Artists and Scientists of the Royal Society of Canada. Grateful to my mentors, colleagues & students whose support and collaboration made this possible, and I look forward to working with such an inspiring community.
131
Centre of Genomics and Policy @genomicsandpolicy.bsky.social · 29/08/2025
At the H2R conference at @ox.ac.uk, Terese Knoppers spoke about the barriers and bridges towards making healthcare data more accessible for childhood cancer survivors and families. The talk drew on ACCESS & CGP’s research project: Pan-Canadian Approaches to Data Sharing & Access. 🔗 bit.ly/47kscHi
000
Centre of Genomics and Policy @genomicsandpolicy.bsky.social · 29/08/2025
📣 Upcoming conference on AI & biotech happening this week-end in Montreal! CGP Academic Associate Maelenn Corfmat will be speaking on the “Bioethics in Action” panel at On the Verge, McGill iGEM’s annual biotech conference! 🔗 For more info & to register: igemontheverge.wixsite.com/home
110
Centre of Genomics and Policy @genomicsandpolicy.bsky.social · 25/08/2025
Our summer intern Olivia Maracle-Hill shares her experience working on a @d2rmcgill.bsky.social project as part of @mcgill.ca's IMPRESS program. 💻✨ 🔗 bit.ly/4oIVjds #CGPInternship #IndigenousHealthResearch #ELSI #RNAResearch
bit.ly
Centering Community in Science: A D2R-Funded Student on Her IMPRESS Internship
The Indigenous Mentorship and Paid Research Experience for Summer Students (IMPRESS) program at McGill University is more than just a summer job—it is a chance for Indigenous undergraduate students fr...
010
Centre of Genomics and Policy @genomicsandpolicy.bsky.social · 21/08/2025
⏰ Just over 2 weeks away until the 3rd Bartha Maria Knoppers Annual Lecture on Sept 5th! We are grateful to have Prof. Calvin Ho as this year’s speaker. Join us for an insightful talk on Polygenic Risk Scores & the Human Right to Science. 🧵More details: bit.ly/472cW1z
100
Centre of Genomics and Policy @genomicsandpolicy.bsky.social · 19/08/2025
🩺 The Guide for Healthcare Providers on Affirmative Intersex Health Communication—now available in English & French. A Canadian-first resource to support inclusive, affirming care. Link to guides below 🧵
100
Centre of Genomics and Policy @genomicsandpolicy.bsky.social · 13/08/2025
🚨Two NEW papers from our team! Ecological Genome Project 🔗 doi.org/10.1111/bioe... A bold vision for ecogenomics + One Health to guide ethical, interdisciplinary genomics. Data Sharing in Genomics 🔗 doi.org/10.1186/s402... New GA4GH lexicon to improve cross-border collaboration & data governance.
000
Centre of Genomics and Policy @genomicsandpolicy.bsky.social · 04/08/2025
📢 New publication with @universitypress.cambridge.org! "Psychedelic Treatment with Psilocybin" explores malpractice risks & regulatory gaps that may deter physicians—despite psilocybin’s therapeutic promise. 🔗 Read more: doi.org/10.1017/jme.... #Psilocybin #Psychedelics #HealthPolicy #MedicalLaw
doi.org
Psychedelic Treatment with Psilocybin: Addressing Medical Malpractice Risk and Physicians’ Concerns | Journal of Law, Medicine & Ethics | Cambridge Core
Psychedelic Treatment with Psilocybin: Addressing Medical Malpractice Risk and Physicians’ Concerns
010
Reposted by Centre of Genomics and Policy
Ma’n H. Zawati @mhzawati.bsky.social · 28/07/2025
Two new articles have been published from our team: “The evolution of health data ecosystems: An international survey” in AJHG: doi.org/10.1016/j.aj... & “Harnessing the promises of cell therapy, gene therapy, and regenerative medicine in Québec, Canada” in Front. Med.: doi.org/10.3389/fmed...
031
Centre of Genomics and Policy @genomicsandpolicy.bsky.social · 22/07/2025
We are elated to host the 3rd Bartha Maria Knoppers Annual Lecture on Sept 5th! Our guest speaker Calvin Ho, Associate Professor (Faculty of Law, Monash University), will present on “Polygenic Risk Scores and the Human Right to Science.” RSVP by Aug 28: bit.ly/4kPaLBC
011
Centre of Genomics and Policy @genomicsandpolicy.bsky.social · 13/06/2025
While #GenerativeAI helps make #GenomicResearch more productive and accessible, Academic Associate Maelenn Corfmat explores two key concerns in her HaploTalks presentation at the @mcgill.ca Victor Phillip Dahdaleh Institute of Genomic Medicine: #Privacy and #HumanAgency 🧬🤖💬
000
Centre of Genomics and Policy @genomicsandpolicy.bsky.social · 12/06/2025
Academic Associate Terese Knoppers shared the Centre’s latest research on improving intersex health communication with intersex adults in Canada at the Intersex Insights conference in Dublin, Ireland. 🔗 To learn more about the research: www.frontiersin.org/journals/pub...
000
Centre of Genomics and Policy @genomicsandpolicy.bsky.social · 06/06/2025
This week concludes the Global Health Law summer course led by CGP Director Yann Joly and Academic Associate Diya Uberoi, offered as part of the @mcgill.ca Summer Institute in Global Health Program. 🌎 🩺 ⚖️ Thank you to all who participated!
CGP Academic Associate Diya Uberoi - Global Health Law Course
000
Centre of Genomics and Policy @genomicsandpolicy.bsky.social · 05/06/2025
🗞️ It’s out! @mhzawati.bsky.social released a NEW article this week on #CellTherapy #GeneTherapy #RegenerativeMedicine in Québec, Canada! 🧬 Read now in @frontiersin.bsky.social in medicine: doi.org/10.3389/fmed...
doi.org
Frontiers | Harnessing the promises of cell therapy, gene therapy, and regenerative medicine in Québec, Canada
The last decade has witnessed tremendous progress in the fields of cell and gene therapy and regenerative medicine (CGT/RM). However, these advances came wit...
051
Centre of Genomics and Policy @genomicsandpolicy.bsky.social · 28/05/2025
We are elated to have CGP Academic Associate Diya Uberoi host this year’s summer course on Global Health Law at the McGill Summer Institutes in Global Health. 🌎 ⚖️ 🔗 Register now while spots last! www.mcgill.ca/summerinstit... #GlobalHealthLaw
000
Reposted by Centre of Genomics and Policy
Ma’n H. Zawati @mhzawati.bsky.social · 02/05/2025
Grateful to count on the generous support of the Fonds de Recherche du Québec - Santé, who are funding my Junior 2 Career Award! #FRQS #FRQ #communautéFRQ
051
Reposted by Centre of Genomics and Policy
D2R | DNA to RNA @d2rmcgill.bsky.social · 30/04/2025
👨‍🔬👩‍🔬 Meet D2R researchers - new video series! Kicking off the series: @mhzawati.bsky.social ! His D2R-funded research explores the social, ethical, and legal considerations of using AI for genomic biomarker identification. @mcgill.ca @genomicsandpolicy.bsky.social youtu.be/gKRjA0Fvvt0
youtu.be
Chercheur D2R: Ma'n Zawati
YouTube video by D2R | DNA to RNA
062
Reposted by Centre of Genomics and Policy
Ma’n H. Zawati @mhzawati.bsky.social · 03/04/2025
A pan-Canadian precision oncology initiative www.sciencedirect.com/science/arti...
sciencedirect.com
The Terry Fox Research Institute Marathon of Hope Cancer Centres Network: A pan-Canadian precision oncology initiative
The Marathon of Hope Cancer Centres Network (MOHCCN), led by the Terry Fox Research Institute and the Terry Fox Foundation, unites researchers, clinic…
041
Reposted by Centre of Genomics and Policy
Ma’n H. Zawati @mhzawati.bsky.social · 25/04/2025
"Emerging & evolving values in the changing landscape of genomics" in Frontiers examines rapid advancements & ethical challenges, proposing 3 values: equity, collective responsibility & sustainability for fair access, shared accountability & responsible governance doi.org/10.3389/fgene.2025.1566291
doi.org
Frontiers | Emerging and evolving values in the changing landscape of genomics
PERSPECTIVE article
051
Centre of Genomics and Policy @genomicsandpolicy.bsky.social · 09/04/2025
Yann Joly will take part in the @d2rmcgill.bsky.social & AReNA symposium at the 92nd @acfas.ca congress! He will be joining a panel of experts to discuss ethics & equity in RNA-based therapies. 🧬🔬 📅 May 5, 2025 ⏰ 12:45 pm - 7:00 pm 💡Learn more: www.mcgill.ca/dna-to-rna/c... #ACFAS8 #RNA
032
Centre of Genomics and Policy @genomicsandpolicy.bsky.social · 07/04/2025
That’s a wrap on the @ga4gh.org Connect Meeting at @broadinstitute.org! 🚀 🔬CGP chaired 3 key sessions on: 1. Improving REWS adoption across communities 2. Brainstorming #ClinicalDataSharing standards to guide institutional practices 3. REWS in Focus: Bridging regulatory & ethical gaps
032
Centre of Genomics and Policy @genomicsandpolicy.bsky.social · 03/04/2025
🎤 Productive session at GA4GH (@ga4gh.org) Connect on #datavisiting in #genomics research! Experts explored new models and discussed key challenges with Paul Esselaar, Yann Joly, Donrich Thaldar, & Robin Roehm. Thanks for a great discussion! 👏
031
Centre of Genomics and Policy @genomicsandpolicy.bsky.social · 28/03/2025
🚨 Last Chance to Apply! 🚨 There are only a few days left to apply for the Academic Associate (Law) position! Don’t miss out on this opportunity to join the CGP team. 👉 Apply Now: mcgill.wd3.myworkdayjobs.com/McGill_Caree...
mcgill.wd3.myworkdayjobs.com
Academic Associate
Please refer to the How to Apply for a Job (for External Candidates) job aid for instructions on how to apply. If you are an active McGill employee (ie: currently in an active contract or position at ...
000
Centre of Genomics and Policy @genomicsandpolicy.bsky.social · 27/03/2025
Join us on April 10th for Prof. Donrich Thaldar's talk on "Technology, Reproductive Autonomy, and Its Limits: The South African Experience," hosted by the CGP and McGill RGHL. Register by April 8th: forms.gle/bTFLSnHJDTv9... Please view the flyer for more information.
000