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Centre of Genomics and Policy

@genomicsandpolicy.bsky.social
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Centre of Genomics and Policy: Exploring the socio-ethical and legal issues in genomic health sciences. www.genomicsandpolicy.org/

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Centre of Genomics and Policy @genomicsandpolicy.bsky.social · 15/10/2026
🎥 The lecture recording is now available here: youtu.be/mf3OSqdTkTk?...
youtu.be
4th Bartha Maria Knoppers Lecture 2026 – Guest Speaker: Henry T. Greely
YouTube video by Centre of Genomics and Policy
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Centre of Genomics and Policy @genomicsandpolicy.bsky.social · 15/10/2026
Thank you to all who joined us for the 4th Annual Bartha Maria Knoppers Lecture on Oct. 13. We were honoured to welcome Prof. Henry T. Greely (Law, Stanford University), for his lecture, "A Modest Proposal: How to Pay Appropriate Attention to New Biotechnologies."
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Centre of Genomics and Policy @genomicsandpolicy.bsky.social · 20/08/2026
The symposium concluded with a animated discussion featuring Yann Joly and Nicole Palmour (McGill University), exploring what these developments mean for the future of human genomic research and clinical genetics. #ForensicGenetics #MedicalGenetics #Genomics #Bioethics #PublicPolicy
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Centre of Genomics and Policy @genomicsandpolicy.bsky.social · 20/08/2026
We were pleased to welcome leading experts in forensic genetics, including Maria Eugenia D’Amato (University of Western Cape), Vanessa Lynch (DNAforAfrica), Nathan Scudder (University of Technology Sydney), and Martin Zieger (Bern University).
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Centre of Genomics and Policy @genomicsandpolicy.bsky.social · 20/08/2026
The CGP had a great time hosting this week’s symposium "At the Intersection of Forensic and Medical Genetics: Science, Ethics, and Public Policy" at McGill University.
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Centre of Genomics and Policy @genomicsandpolicy.bsky.social · 15/06/2026
Drawing on lessons from the COVID-19 pandemic, the presentation explored how genomic surveillance is evolving in response to growing concerns around data sovereignty, privacy, and equitable benefit sharing. #DataSharing #GenomicSurveillance #DataBenefitSharing #GenomicData
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Centre of Genomics and Policy @genomicsandpolicy.bsky.social · 15/06/2026
Last week, CGP Director Prof. Yann Joly presented “From Data Sharing to Data Resilience: Governing Genomic Surveillance in Uncertain Times” at the Robert Koch Institute Colloquium 2026 in Berlin. 🎥 Watch the presentation here: www.youtube.com/watch?v=iR5E... More info below 🧵
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Centre of Genomics and Policy @genomicsandpolicy.bsky.social · 25/05/2026
Our #CGP Newsletter is here! 🗞️ Check out the latest issue below👇🏼 mailchi.mp/mcgill/cgp-n...
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Centre of Genomics and Policy @genomicsandpolicy.bsky.social · 27/04/2026
How do we ensure AI-driven medicine stays aligned with #ELSI values? 🧠 ⚖️ On May 7th, CGP’s Academic Associate Maelenn Corfmat will be presenting at the upcoming #HaploTalks seminar as she tackles the ELSI challenges of biomarker discovery. 🖇️ See more info on poster.
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Centre of Genomics and Policy @genomicsandpolicy.bsky.social · 17/04/2026
The CGP team took part in a wide range of sessions, including topics on: Responsible Generative AI in Genomics, Genomic Data Sharing in Asia and developing impact indicators for ELSI Research.
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Centre of Genomics and Policy @genomicsandpolicy.bsky.social · 17/04/2026
That’s a wrap on the @ga4gh.org Annual Connect 2026 meeting. 🧬 🌎 🧩 It was a dynamic week-long event that brought together the #GA4GH community to collaborate, advance technical work, and reflect on strategic priorities. 🧵More info below ⬇️
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Centre of Genomics and Policy @genomicsandpolicy.bsky.social · 16/04/2026
Thank you to all who attended the seminar “Health Law, Ethics, and AI in China,” presented by Dr. Li Du. He explored China’s evolving AI legal framework in healthcare, covering data protection, oversight, and ethical challenges. Hosted by CGP and McGill RGHL. #HealthLaw #Ethics #AI
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Centre of Genomics and Policy @genomicsandpolicy.bsky.social · 15/04/2026
Visit the CGP booth at the Human Genetics Students' Society (HGSS) 2026 conference! Where genomics meets ethics, law & policy. Connect with our mentors and explore #CGP research opportunities. 🗓️ April 27 @ 9AM – 6PM | 📍MUHC Register Here: bit.ly/4838I9E
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Centre of Genomics and Policy @genomicsandpolicy.bsky.social · 14/04/2026
🗓️ Date: Friday, April 17, 2026 ⏰ Time: 10:00 AM – 11:30 AM 📍 Location: Genome Centre, 740 Dr. Penfield Avenue, Room 6001 (in-person + online) All are welcome! See poster for more details. #Bioinformation #DataResources
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Centre of Genomics and Policy @genomicsandpolicy.bsky.social · 14/04/2026
🧬 💻 🧪Join us for a special seminar happening this Friday hosted by the Victor Phillip Dahdaleh Institute of Genomic Medicine & the Centre of Genomics and Policy. Dr. Minxian Wang (China National Center for Bioinformation) will present “Data Resources of the China National Center for Bioinformation.”
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Centre of Genomics and Policy @genomicsandpolicy.bsky.social · 10/03/2026
#Biobanking #PublicHealth #COVID19 #HealthResearch
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Centre of Genomics and Policy @genomicsandpolicy.bsky.social · 10/03/2026
📢 New article! The BQC19 enabled rapid collection and sharing of samples and data to advance COVID-19 research. Our article highlights how its governance, flexible consent, and collaborative framework created a scalable model for future health crises. 🔗 bit.ly/40XAiRy
bit.ly
Sage Journals: Discover world-class research
Subscription and open access journals from Sage, the world's leading independent academic publisher.
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Centre of Genomics and Policy @genomicsandpolicy.bsky.social · 23/02/2026
Upcoming HaploTalks seminar on Mar. 5, hosted by McGill's Victor Phillip Dahdaleh Institute of Genomic Medicine. CGP Research Assistants, Fatoumata Binta Diallo and Charles Selva-Rivero will delve on “Rethinking Risks: Genetic Discrimination and Children’s Right to Participate in Research.” 🧬⚖️🔬
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Centre of Genomics and Policy @genomicsandpolicy.bsky.social · 02/02/2026
❄️ Our Winter Newsletter has arrived! 📬 Dive into the latest research, publications, upcoming events, and highlights at the Centre. Read the latest issue here👇 us18.campaign-archive.com?e=[UNIQID]&u...
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Centre of Genomics and Policy @genomicsandpolicy.bsky.social · 15/01/2026
The video explores AI transparency, the black box problem, and AI’s impacts in healthcare. 🎥 Watch in English: youtu.be/SuCdsqfRd5c?... 🎥 Watch in French: youtu.be/MagllUeZaRI?... #ArtificialIntelligence #XAI #AIExplainability
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Centre of Genomics and Policy @genomicsandpolicy.bsky.social · 15/01/2026
🚀 We’re excited to launch our new video on Explainable AI (XAI) which is part of the OBVIA-funded (@observatoireia.bsky.social) project "Explaining the Right to Explanation: Data Protection Legislation and Clinical Automated Decision-Making" (PI: Ma'n H. Zawati @mhzawati.bsky.social). Links below🧶
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Centre of Genomics and Policy @genomicsandpolicy.bsky.social · 23/12/2025
As the year comes to a close, the CGP team wishes you a happy holiday season! 💌
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Centre of Genomics and Policy @genomicsandpolicy.bsky.social · 10/12/2025
Just out in @natgenet.nature.com 🗞️ CGP published a new piece on the urgent need for a global #cybersecurity framework in #genomics. Fragmented #governance is increasing dual-use and data security risks. The field needs coordinated global standards. 🔗 Read the article: doi.org/10.1038/s415...
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Centre of Genomics and Policy @genomicsandpolicy.bsky.social · 14/11/2025
🎉 Congratulations to Prof. Ma'n H. Zawati @mhzawati.bsky.social, Research Director at the CGP, on being inducted on Nov. 14 2025, as a member of the Royal Society of Canada! 🎥 Watch Prof. Zawati discuss his research and its impact on Canadian healthcare: www.youtube.com/watch?v=PHMc...
youtube.com
Ma'n H Zawati | 2025 New College Member | McGill University
YouTube video by The Royal Society of Canada
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Centre of Genomics and Policy @genomicsandpolicy.bsky.social · 07/11/2025
We’re building tools to help researchers prioritize conditions and guide policies for fair, evidence-based implementation. Learn more: www.mcgill.ca/dna-to-rna/f...
mcgill.ca
Foundational Projects | Cycle 2
The Foundational Projects funding program supports high-risk, early-stage projects with the potential to be game-changers in the fields of D2R’s areas of interest. In the second funding cycle launched...
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Centre of Genomics and Policy @genomicsandpolicy.bsky.social · 07/11/2025
Excited to share a new D2R-funded project led by Larry Lynd (UBC), co-led by Profs @YannJoly6 & @MHZawati (CGP, McGill): Early assessment of the value of novel #RNAtherapeutics in #genomicnewbornscreening initiatives: health, economic and ethical implications. 🧶
mcgill.ca
Foundational Projects | Cycle 2
The Foundational Projects funding program supports high-risk, early-stage projects with the potential to be game-changers in the fields of D2R’s areas of interest. In the second funding cycle launched...
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Centre of Genomics and Policy @genomicsandpolicy.bsky.social · 07/11/2025
Speakers: Prof. Bartha Maria Knoppers – Distinguished James McGill Professor Emerita, Founding Director of the CGP, McGill University Prof. Fruzsina Molnar-Gabor – Faculty of Law, Heidelberg University Michael J.S. Beauvais – PhD Candidate, Faculty of Law, University of Toronto
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Centre of Genomics and Policy @genomicsandpolicy.bsky.social · 07/11/2025
The upcoming Brocher Foundation meeting will delve on the latest health data news and the ethical challenges surrounding them. Tune in on Nov. 11th, 2025 at 2PM (Geneva time). 🔗 us06web.zoom.us/j/83487320128
us06web.zoom.us
Join our Cloud HD Video Meeting
Zoom is the leader in modern enterprise cloud communications.
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Centre of Genomics and Policy @genomicsandpolicy.bsky.social · 20/10/2025
Congratulations to Prof. Bartha Maria Knoppers, our Centre’s Founding Director and Distinguished James McGill Professor Emerita, on receiving the McGill Medal for Exceptional Academic Achievement! 👏🏼 reporter.mcgill.ca/bartha-knopp...
reporter.mcgill.ca
Bartha Knoppers awarded McGill Medal for lifetime of pioneering work in bioethics  - McGill Reporter
From literature to law to genetics, the founder of McGill’s Centre of Genomics and Policy built a career at the crossroads of science and ethics
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Centre of Genomics and Policy @genomicsandpolicy.bsky.social · 17/10/2025
Dr. Zohar Lederman (Emergency Medicine, University of Hong Kong) spoke about the Marburg outbreak in Rwanda 🦠🌍 While widely praised as a One Health & public health success, he highlighted key data gaps, limited attention to animal and environmental health and conflicting economic development goals.
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Reposted by Centre of Genomics and Policy
Ma’n H. Zawati @mhzawati.bsky.social · 17/10/2025
New in Cell! “Exploring Latin America one cell at a time” — we chart challenges & opportunities for single-cell & spatial genomics across LATAM. A call for equitable funding, collaboration & capacity building. 🔗 doi.org/10.1016/j.ce...
doi.org
Redirecting
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Centre of Genomics and Policy @genomicsandpolicy.bsky.social · 08/10/2025
In honour of Breast Cancer Awareness Month 💗, CGP Director Yann Joly will be paneling at @d2rmcgill.bsky.social’s upcoming event on Breast Cancer & RNA Therapeutics on Oct. 22, 2025. 🔗 Register: bit.ly/3J4DbuB 🗓️ Oct. 22, 2025 @ 5 - 8:30PM 📍 Atrium, Bellini Building, McGill University
bit.ly
In Person Event | Breast Cancer & RNA Therapeutics: Exploring inclusive research and career opportunities
Join D2R and the Rosalind and Morris Goodman Cancer Institute (GCI) for an event in honour of Breast Cancer Awareness Month and Women's History Month, in collaboration with Fondation du cancer du sein...
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Centre of Genomics and Policy @genomicsandpolicy.bsky.social · 02/10/2025
🗞️ Our newsletter is fresh off the press! Catch up on the recent research, publications, and highlights at the CGP in our Summer-Fall Issue: mailchi.mp/mcgill/cgp-n...
mailchi.mp
CGP News | Summer-Fall Issue 2025
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Centre of Genomics and Policy @genomicsandpolicy.bsky.social · 25/09/2025
📃 View statement: drive.google.com/file/d/1claU...
drive.google.com
Genomics-and-population-health-in-the-era-of-data-driven-care-Communique.pdf
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Centre of Genomics and Policy @genomicsandpolicy.bsky.social · 25/09/2025
The CGP and @phgfoundation.bsky.social co-hosted an international think tank at Ayer’s Cliff, Canada, bringing together leading scholars, professionals and practitioners to reimagine the future of #genomics, #medicine, and global population #health in a data-driven world now through 2050.
Photo (left to right): Bartha Maria Knoppers, Brian Chung, Laura Blackburn, Ron Zimmern, Vasiliki Rahimzadeh, Colin, Ma’n H. Zawati, Anna Lewis, Edward Dove, Nicola Mulder, Jeffrey Barrett, Paul Pharoah, Marina Cornel, Anneke Lucassen, Anthony Ng, David Glazer, Katherine Littler, Jeff Skopek, Habiba Al Safar, Eric Meslin, Yann Joly, Calvin Ho, and Pete Mills.
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Centre of Genomics and Policy @genomicsandpolicy.bsky.social · 10/09/2025
🌐 Discover our latest talks on our website:
www.genomicsandpolicy.org/en/news_even...
genomicsandpolicy.org
Centre of Genomics and Policy
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Centre of Genomics and Policy @genomicsandpolicy.bsky.social · 10/09/2025
Prof. Calvin W.L. Ho’s talk, “Polygenic Risk Scores and the Human Right to Science,” from the Annual Bartha Maria Knoppers Lecture, is now available for viewing! 🎤 Watch the recording on our YouTube channel:
youtu.be/BRbpegQDF5A?...
Prof. Calvin Ho presenting at the Bartha Maria Knoppers Annual Lecture 2025
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Centre of Genomics and Policy @genomicsandpolicy.bsky.social · 08/09/2025
📸 In the photo (left to right): David Rosenblatt, Bartha Maria Knoppers, Calvin W.L. Ho, Eric M. Meslin, Yann Joly, and Ma'n H. Zawati.
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Centre of Genomics and Policy @genomicsandpolicy.bsky.social · 08/09/2025
🎤 That’s a wrap on the 3rd Annual Bartha Maria Knoppers Lecture! Honoured to host Prof. Calvin W.L. Ho (@monashuniversity.bsky.social) for his talk, "Polygenic Risk Scores and the Human Right to Science," celebrating Knoppers' legacy in genomics and health law. Thanks to all who attended!
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Centre of Genomics and Policy @genomicsandpolicy.bsky.social · 08/09/2025
Is it time to rethink ELSI? 💭 Last week at @mcgill.ca, our guest speaker Eric M. Meslin, global leader in bioethics and science policy and member of the CGP Advisory Committee member, sparked a vital convo on ELSI’s future in research & genomics—its roots, impact, and two diverging paths ahead.
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Reposted by Centre of Genomics and Policy
Ma’n H. Zawati @mhzawati.bsky.social · 04/09/2025
Honoured to share that I have been elected to the College of New Scholars, Artists and Scientists of the Royal Society of Canada. Grateful to my mentors, colleagues & students whose support and collaboration made this possible, and I look forward to working with such an inspiring community.
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Centre of Genomics and Policy @genomicsandpolicy.bsky.social · 29/08/2025
At the H2R conference at @ox.ac.uk, Terese Knoppers spoke about the barriers and bridges towards making healthcare data more accessible for childhood cancer survivors and families. The talk drew on ACCESS & CGP’s research project: Pan-Canadian Approaches to Data Sharing & Access. 🔗 bit.ly/47kscHi
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Centre of Genomics and Policy @genomicsandpolicy.bsky.social · 29/08/2025
💡McGill iGEM's annual #biotech conference On the Verge brings together students, academics, and industry leaders to explore real-world applications of synthetic biology. This year’s theme focuses on #bioethics, systemic challenges, career pathways, and the future of #SynBio innovation.
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Centre of Genomics and Policy @genomicsandpolicy.bsky.social · 29/08/2025
📣 Upcoming conference on AI & biotech happening this week-end in Montreal! CGP Academic Associate Maelenn Corfmat will be speaking on the “Bioethics in Action” panel at On the Verge, McGill iGEM’s annual biotech conference! 🔗 For more info & to register: igemontheverge.wixsite.com/home
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Centre of Genomics and Policy @genomicsandpolicy.bsky.social · 25/08/2025
Our summer intern Olivia Maracle-Hill shares her experience working on a @d2rmcgill.bsky.social project as part of @mcgill.ca's IMPRESS program. 💻✨ 🔗 bit.ly/4oIVjds #CGPInternship #IndigenousHealthResearch #ELSI #RNAResearch
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Centering Community in Science: A D2R-Funded Student on Her IMPRESS Internship
The Indigenous Mentorship and Paid Research Experience for Summer Students (IMPRESS) program at McGill University is more than just a summer job—it is a chance for Indigenous undergraduate students fr...
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Centre of Genomics and Policy @genomicsandpolicy.bsky.social · 21/08/2025
About our speaker: Prof. Calvin Ho is an Associate Professor with the Faculty of Law at Monash University in Melbourne (Australia), Research Fellow of the Centre for Medical Ethics at the University of Hong Kong, and Fellow of PHG Foundation at the University of Cambridge (UK).
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Centre of Genomics and Policy @genomicsandpolicy.bsky.social · 21/08/2025
⏰ Just over 2 weeks away until the 3rd Bartha Maria Knoppers Annual Lecture on Sept 5th! We are grateful to have Prof. Calvin Ho as this year’s speaker. Join us for an insightful talk on Polygenic Risk Scores & the Human Right to Science. 🧵More details: bit.ly/472cW1z
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Centre of Genomics and Policy @genomicsandpolicy.bsky.social · 19/08/2025
📘 Guide (English): lnkd.in/ecRmQqrM 📘 Guide (French): lnkd.in/eDJ9AQra 🔗 Both guides are also available on our website: lnkd.in/exJTMtSr #IntersexHealth #HealthEquity #InclusiveCare #AffirmativePractice
Towards Affirmative Intersex Health Communication in Canada: An Introductory Guide for Healthcare Providers
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Centre of Genomics and Policy @genomicsandpolicy.bsky.social · 19/08/2025
🩺 The Guide for Healthcare Providers on Affirmative Intersex Health Communication—now available in English & French. A Canadian-first resource to support inclusive, affirming care. Link to guides below 🧵
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Centre of Genomics and Policy @genomicsandpolicy.bsky.social · 13/08/2025
🚨Two NEW papers from our team! Ecological Genome Project 🔗 doi.org/10.1111/bioe... A bold vision for ecogenomics + One Health to guide ethical, interdisciplinary genomics. Data Sharing in Genomics 🔗 doi.org/10.1186/s402... New GA4GH lexicon to improve cross-border collaboration & data governance.
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