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Epilepsy Ireland

@epilepsyireland.bsky.social
233 followers 4 following 44 posts

Working to achieve a society where no person’s life is limited by epilepsy. www.epilepsy.ie

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Epilepsy Ireland @epilepsyireland.bsky.social · 24/09/2026
Delighted to name our Volunteers of the Year at our National Conference this past weekend in Cork! Thank you Julia, Bernie & Team Sophia - and to all our incredible volunteers who make all our work possible! Find out more about our 2026 Volunteers of the Year!
epilepsy.ie
Epilepsy Ireland Names 2026 Volunteers of the Year!
At our recent National Conference in Cork, we were delighted to name our 2026 Volunteers of the Year and recognise them for their outstanding commitment to supporting our work.
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FutureNeuro Centre @futureneuro.bsky.social · 22/09/2026
What a fantastic weekend at the @epilepsyireland.bsky.social National Conference! 💜 We heard from FutureNeuro researchers Prof Norman Delanty on the future of #Epilepsy care and Dr Cristina Ruedell Reschke on sleep & circadian rhythms. #CommunityEngagement
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Epilepsy Ireland @epilepsyireland.bsky.social · 11/08/2026
Do you know how to correctly respond to a seizure? If the answer is no, visit our website now to learn more about TIME, SAFE, STAY!
epilepsy.ie
Seizure First Aid
Visiting our site for key information on what to do in the event of a person having a seizure? Find what you're looking for in this section.
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Epilepsy Ireland @epilepsyireland.bsky.social · 04/08/2026
Want to join us in Cork on September for our National Conference? Of course you do! More details below 👇
epilepsy.ie
Epilepsy Ireland National Conference 2026
Join on Saturday September 19th for our annual National Conference! Get your tickets for just €40 and find out more about who will be joining us!
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Epilepsy Ireland @epilepsyireland.bsky.social · 13/07/2026
Looking forward to working with colleagues on @futureneuro.bsky.social as part of the EPISLEEP study! Find out more below! 👇 www.epilepsy.ie/content/new-...
epilepsy.ie
New study to explore role of sleep technology in epilepsy management
We are looking forward to working with colleagues in FutureNeuro on the EPI-SLEEP study, which will evaluate the use of sleep technology in adults with epilepsy.
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FutureNeuro Centre @futureneuro.bsky.social · 08/07/2026
⭐ We're delighted that FutureNeuro Investigator Dr Cristina Reschke will be speaking at the @epilepsyireland.bsky.social National Conference 2026 on 19 September. We'll also be there with our engagement stand, sharing outcomes from #MyMovingBrain. 🔗 Find out more: www.epilepsy.ie/content/epil...
epilepsy.ie
Epilepsy Ireland National Conference 2026
This year our national conference will take place in Cork - with the Cork International Hotel hosting the annual event on Saturday, September 19th! Our conference is a fantastic opportunity to hear fr...
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Epilepsy Ireland @epilepsyireland.bsky.social · 09/06/2026
Looking forward to another collaboration with @futureneuro.bsky.social through this new study. Find out more below. ⬇️
neuro.bsky.social
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Epilepsy Ireland @epilepsyireland.bsky.social · 16/03/2026
Good to see one of our key advocacy priorities being supported in the Dáil recently! Find out more and learn about this ongoing campaign on our website below!
epilepsy.ie
Dáil Éireann Approves Motion Incorporating Key Epilepsy Ireland Advocacy Campaign
We were pleased to see a recent motion on improving access to GP care in Ireland was supported across all sides of the Oireachtas.
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Epilepsy Ireland @epilepsyireland.bsky.social · 23/02/2026
Step up to to make a difference and continue our journey towards a society where no person’s life is limited by epilepsy by taking on our March Walking challenge! Find out more👇👇
epilepsy.ie
March Walking Challenge
Step up to support our work by getting your steps in through our March Walking Challenge!
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Epilepsy Ireland @epilepsyireland.bsky.social · 17/02/2026
Delighted to be attending the official launch of Ireland’s first postgraduate diploma in Neurology Nursing in the @rcsi.bsky.social. An important development for the entire neurological community in Ireland which will benefit people with epilepsy in the future.
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Epilepsy Ireland @epilepsyireland.bsky.social · 16/02/2026
Step up to take on our March Walking Challenge and help us continue our journey towards a society where no person’s life is limited by epilepsy. Find out more on our website below. #fundraising #community #support
epilepsy.ie
March Walking Challenge
Step up to support our work by getting your steps in through our March Walking Challenge!
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Epilepsy Ireland @epilepsyireland.bsky.social · 12/02/2026
Brilliant piece with Zian’s comments on living with epilepsy undoubtedly resonating with so many others living with the condition. Well done to all involved.
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Ivana Bacik @ivanabacik.bsky.social · 09/02/2026
Today we support #InternationalEpilepsyDay #EpilepsyDay #TimeSafeStay Well done for the great awareness raising work! @epilepsyireland.bsky.social
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Roderic O’Gorman TD @rodericogorman.bsky.social · 09/02/2026
Happy to support International Epilepsy Day and the amazing work @epilepsyireland.bsky.social do. #TimeSafeStay
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Epilepsy Ireland @epilepsyireland.bsky.social · 09/02/2026
We have released a new song to help the public remember those very important words of TIME, SAFE, STAY! Listen now. Remember Later. Visit epilepsy.ie to learn more and listen to the full song. 𝑇ℎ𝑖𝑠 #𝐸𝑝𝑖𝑙𝑒𝑝𝑠𝑦𝐷𝑎𝑦 𝑐𝑎𝑚𝑝𝑎𝑖𝑔𝑛 ℎ𝑎𝑠 𝑏𝑒𝑒𝑛 𝑠𝑢𝑝𝑝𝑜𝑟𝑡𝑒𝑑 𝑏𝑦 𝑎𝑛 𝑢𝑛𝑟𝑒𝑠𝑡𝑟𝑖𝑐𝑡𝑒𝑑 𝑔𝑟𝑎𝑛𝑡 𝑓𝑟𝑜𝑚 𝐽𝑎𝑧𝑧 𝑃ℎ𝑎𝑟𝑚𝑎𝑐𝑒𝑢𝑡𝑖𝑐𝑎𝑙𝑠.
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Epilepsy Ireland @epilepsyireland.bsky.social · 04/02/2026
Join us on our journey towards a society where no person’s life is limited by epilepsy by becoming a member of EI today! #epilepsy
epilepsy.ie
Epilepsy Ireland launches new membership structure
Join us as we continue our journey towards a society where no person's life is limited by epilepsy by becoming a member of Epilepsy Ireland today for just €10!
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Epilepsy Ireland @epilepsyireland.bsky.social · 28/01/2026
We need Seizure Safe Schools in Ireland. Find out how you can support our campaign below! #EpilepsyAwareness
epilepsy.ie
Sponsorship support received to amplify EI Seizure Safe Schools campaign
With thanks to support from UCB Pharma, we have provided key information on epilepsy to every school in the country. Read how we have used this exercise to amplify our Seizure Safe Schools campaign!
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Epilepsy Ireland @epilepsyireland.bsky.social · 12/01/2026
Fantastic story and message shared by Dylan in advance of #EpilepsyDay 2026. Well worth a few moments of your time this evening. 👇👇 #EpilepsyAwareness
epilepsy.ie
Dylan's Story - #EpilepsyDay 2026
Dylan Gavin reflects on his experience living with epilepsy and how that has affected his life as a professional footballer.
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Epilepsy Ireland @epilepsyireland.bsky.social · 18/11/2025
Didn’t get to join us at our National Conference in September? We have good news - recordings are now available on our website.
epilepsy.ie
Epilepsy Ireland National Conference 2025
Look back on the recordings from our 2025 National Conference - with talks featuring epilepsy experts and researchers.
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FutureNeuro Centre @futureneuro.bsky.social · 25/09/2025
🎉 A brilliant night at the @chambersireland.bsky.social Sustainable Business Impact Awards. No win this time, but a great chance to celebrate our #MyMovingBrain community connect series—and to recognise everyone who’s helped shape it so far. @epilepsyireland.bsky.social @researchireland.ie
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FutureNeuro Centre @futureneuro.bsky.social · 22/09/2025
Thank you to the FutureNeuro researchers who hosted our stand at the National @epilepsyireland.bsky.social Conference on Saturday! Great to connect with the #Epilepsy community and share updates on our current research and Centre activities 🙌 @researchireland.ie @chrisgreene.bsky.social
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FutureNeuro Centre @futureneuro.bsky.social · 05/09/2025
👏 Great to see so many FutureNeuro researchers at the recent International Epilepsy Congress! Thanks to the clinicians who support our work & to @epilepsyireland.bsky.social & Irish Epilepsy League for nominating our Director, @dchenshall.bsky.social, for the 2025 Ambassador for Epilepsy Award.
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Epilepsy Ireland @epilepsyireland.bsky.social · 02/09/2025
Attending a session on SUDEP communication at #IEC2025 - interesting to hear clinical attitudes from other countries which we can use in our ongoing campaign to introduce a national strategy to reduce SUDEP and epilepsy-related deaths in Ireland.
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Epilepsy Ireland @epilepsyireland.bsky.social · 01/09/2025
Congrats Professor Henshall! Delighted to see your incredible work recognised - and to be here in Lisbon to congratulate you in-person! #IEC2025
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Epilepsy Ireland @epilepsyireland.bsky.social · 25/08/2025
We have published our Annual Report for 2024! Read about how we continued our journey towards a society where no person's life is limited by epilepsy by visiting our website below!
epilepsy.ie
Epilepsy Ireland publish 2024 Annual Report
Look back on how we continued our journey towards a society where no person's life is limited by epilepsy in 2024.
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Epilepsy Ireland @epilepsyireland.bsky.social · 12/08/2025
Researchers and research institutions - this online event on our latest research call may be for you! Find out more on our website below. Delighted to have colleagues from the @hrci.bsky.social joining us as part of the session as well.
epilepsy.ie
Information Session for Researchers on Epilepsy Ireland Research Funding Call 28.8.25
Epilepsy Ireland were delighted to recently launch our 9th Research Funding Call, which is run in conjunction with the Health Research Board/Health Research Charities Ireland Joint Funding Scheme (HRB...
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FutureNeuro Centre @futureneuro.bsky.social · 30/07/2025
📢 @epilepsyireland.bsky.social has launched their 9th Research Funding Call, focusing on priority areas identified to drive innovation and improve the lives of people with epilepsy. 🔗 Learn more and submit your Expression of Interest by September 26: www.epilepsy.ie/content/appl...
epilepsy.ie
Apply for funding
Researchers and research institutions - we have launched our 9th Research Funding Call! Find out more about how to apply and the process involved.
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Health Research Charities Ireland @hrci.bsky.social · 28/07/2025
@epilepsyireland.bsky.social have launched a call for Expressions of Interest as part of the HRCI hrbireland.bsky.social‬ (HRB) Joint Funding Scheme. Find more information on the call by visiting the Open Calls page on our website hrci.ie/joint-funding-open-calls #HealthResearchMatters
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Epilepsy Ireland @epilepsyireland.bsky.social · 25/07/2025
Good news earlier this week with the official commencement of the Sodium Valproate Inquiry in Ireland. Find out more on our website below.
epilepsy.ie
Sodium Valproate Inquiry Officially Begins
The inquiry into the historical licensing and prescribing of Sodium Valproate (Epilim) in Ireland has officially begun its work.
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Epilepsy Ireland @epilepsyireland.bsky.social · 17/07/2025
Want to learn more about what Life with Epilepsy can be like? Check out the new section of our website, which features some incredible personal testimonies from our volunteers from all across Ireland. #EpilepsyAwareness
epilepsy.ie
Life with Epilepsy
Ever wondered what it is like to live with epilepsy? Read the perspectives from people across Ireland.
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Epilepsy Ireland @epilepsyireland.bsky.social · 25/06/2025
Looking forward to Saturday for the latest event of the #MyMovingBrain series! Fancy joining us? See below! 👇 👇
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Epilepsy Ireland @epilepsyireland.bsky.social · 17/06/2025
Really powerful story shared with us by Laura - charting her experience with epilepsy and the challenges that can come with the condition - and how she has overcome them! Well worth a few minutes of your day! #EpilepsyAwareness
epilepsy.ie
Laura's Story
To help raise awareness of epilepsy and support others living with the condition, Laura has shared her experiences of living with epilepsy…. When I was 13, I had an intense headache for 2 days. On the...
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FutureNeuro Centre @futureneuro.bsky.social · 17/06/2025
🏃‍♂️ Paralympian Michael McKillop MBE returns as host and keynote speaker for our #MyMovingBrain event in Maynooth on June 28! Hear his powerful story of navigating epilepsy, cerebral palsy, and elite sport. Don’t miss it—register now: www.eventbrite.ie/e/1374602566... @epilepsyireland.bsky.social
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Epilepsy Ireland @epilepsyireland.bsky.social · 10/06/2025
Looking forward to teaming up with @futureneuro.bsky.social once again for the third edition of the My Moving Brain series - this time from Co. Kildare. More details on our website below!
epilepsy.ie
My Moving Brain Community Event, Kildare 28.6.25
The My Moving Brain initiative is being led by our colleagues in FutureNeuro - Ireland’s Centre for Translational Brain Science, funded by Research Ireland. The initiative as whole aims to highlight w...
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Epilepsy Ireland @epilepsyireland.bsky.social · 20/05/2025
This week is #EpilepsyWeek and on our site, we have some fantastic stories on the lived experience of epilepsy - such as Grace's, linked below. Be sure to visit, learn more and raise awareness!
epilepsy.ie
#EpilepsyWeek - Grace's Story
"A week later I had multiple seizures in the space of a few minutes. That was a really heartbreaking time as I have wanted to drive for as long as I can remember. It was the closest I had ever gotten ...
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Epilepsy Ireland @epilepsyireland.bsky.social · 15/05/2025
If you witnessed a person having a seizure, would you know what to do? If the answer is no, visit our website below to learn all about Time, Safe, Stay. #epilepsyawareness
epilepsy.ie
Seizure First Aid
Visiting our site for key information on what to do in the event of a person having a seizure? Find what you're looking for in this section.
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Epilepsy Ireland @epilepsyireland.bsky.social · 29/04/2025
Looking forward to hosting this event next week in University College Cork - which will focus on one of our key advocacy campaigns around having epilepsy added to the Chronic Disease Management Programme. Fancy joining us? Visit our website to find out how.
epilepsy.ie
Epilepsy - Who Cares?
Join us for a special event in Cork on May 9th which will explore why epilepsy should be added to the Chronic Disease Management Programme.
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Epilepsy Ireland @epilepsyireland.bsky.social · 15/04/2025
We're excited to be recruiting for the new position of Research Officer in EI - would you like to enhance and expand our presence in the important world of epilepsy research? Find out more on our website below!
epilepsy.ie
We're Hiring - Research Officer
Title         Research Officer Location Epilepsy Ireland Head Office, Crumlin, Dublin 12. Hybrid working policy in place. Hours of Work   28 – 35 hours per week. Occasional evening/ weekend work requi...
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Sarah Delaney @sarahdelaney73.bsky.social · 11/04/2025
@epilepsyireland.bsky.social are recruiting a Research Officer! For more details, check out the info here: www.epilepsy.ie/content/were...
epilepsy.ie
We're Hiring - Research Officer
Title         Research Officer Location Epilepsy Ireland Head Office, Crumlin, Dublin 12. Hybrid working policy in place. Hours of Work   28 – 35 hours per week. Occasional evening/ weekend work requi...
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Gary Brennan @brennan-lab-ucd.bsky.social · 27/03/2025
Very proud of the lab who put together a bake sale for Epilepsy awareness Day yesterday. Together they raised over €1000 for @epilepsyireland.bsky.social
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Hesma Lomax @hesma-l.bsky.social · 26/03/2025
#PurpleDay 2025 Raising awareness of #Epilepsy
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Rick O'Shea @rickoshea.bsky.social · 26/03/2025
This is immensely important because charities still need money, and so few people have change on them that bucket shaking is going out of fashion. If you had anything to donate, and a share to give this post, I'd be hugely grateful.
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Epilepsy Ireland @epilepsyireland.bsky.social · 26/03/2025
Today is Purple Day® - our biggest fundraising day of the year. Can you help continue our vital services and supports in communities across Ireland? Learn about our work and make a donation via our website below. Together, we can achieve a society where no person's life is limited by epilepsy.
epilepsy.ie
Purple Day®
Can you help support our fundraising activities for Purple Day® on March 26th? Find out how you can get involved today!
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FutureNeuro Centre @futureneuro.bsky.social · 13/03/2025
✨Last night, with @epilepsyireland.bsky.social, we hosted an Epilepsy #ResearchMatters event for #BrainAwarenessWeek! Experts shared insights on seizure monitoring, genetics, women’s health & innovative therapies. Huge thanks to our speakers & host @rickoshea.bsky.social a for an inspiring evening!
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Rick O'Shea @rickoshea.bsky.social · 12/03/2025
And we are off here at the @rcsi.bsky.social for our @epilepsyireland.bsky.social @futureneuro.bsky.social event...
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FutureNeuro Centre @futureneuro.bsky.social · 10/03/2025
🧠 Brain Awareness Week 2025 starts today With 1 in 3 developing a neurological condition, research is more vital than ever. Join us & @epilepsyireland.bsky.social on March 12 at RCSI for Epilepsy #ResearchMatters, highlighting Ireland’s cutting-edge research. futureneurocentre.ie/epilepsy-res...
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Andrew Parle @socialforgood.bsky.social · 04/03/2025
Anyone fancy a 24 hour squat challenge in aid of @epilepsyireland.bsky.social Let's help support those Epilepsy.. fundraising.epilepsy.ie/event/squat-... #Epilepsy
fundraising.epilepsy.ie
Home
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Epilepsy Ireland @epilepsyireland.bsky.social · 28/02/2025
We’ve a big fundraising day coming up - will you lend us a hand? Oh great - more info below: www.epilepsy.ie/content/purp...
media.tenor.com
a cartoon character is holding a sign that says yes definitely and absolutely
ALT: a cartoon character is holding a sign that says yes definitely and absolutely
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Epilepsy Ireland @epilepsyireland.bsky.social · 18/02/2025
Wanna learn about epilepsy research? Wanna see @rickoshea.bsky.social expertly MC an event? Of course you do! Conveniently we have just the event for you….👇👇
epilepsy.ie
Brain Awareness Week 2025 – Epilepsy Research Matters 12.3.25
To celebrate Brain Awareness Week, we are delighted to be teaming up with our colleagues in FutureNeuro for the latest iteration of our Epilepsy Research Matters event!
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Epilepsy Ireland @epilepsyireland.bsky.social · 12/02/2025
Check out our review of some of the coverage from #EpilespyDay - every day is an awareness day and you can learn loads more about a condition which affects 45,000 people in Ireland by viewing any of these pieces! #TimeSafeStay
epilepsy.ie
#EpilepsyDay 2025 in the news!
Miss any of the coverage of #EpilepsyDay? This article has you covered so be sure to catch up now!
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