iiinova — where your digital self keeps evolving

Emily Tammam @emilytammam.bsky.social · 20/09/2026

I will be running the Oxford Half in 3 weeks time. Please read, donate and/or share my fundraising. Thank you! helenanddouglas.enthuse.com/pf/emily-tam...

5 paintings of a small child running, getting closer in each one, with a smile on her face.

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The National Child Mortality Database @ncmd.bsky.social · 08/06/2026

If you couldn't make it to Prague to see @sstoianova.bsky.social and @emilytammam.bsky.social address the 20th World Congress of the European Association for Palliative Care, don't worry - you can now watch the presentation on our website: www.ncmd.info/videos/co-pr...

ncmd.info

Bringing Humanity to Data

This webinar explores how co-production can ensure that data is presented in a way that is relevant to lived experience.

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Emily Tammam @emilytammam.bsky.social · 19/05/2026

Recently, a dear friend had brain surgery. Unsure what to say, or not to say, I compiled a list of tips, inspired by Neve. emilytammam.substack.com/p/tips-on-ho...

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The National Child Mortality Database @ncmd.bsky.social · 19/05/2026

We were absolutely overwhelmed to receive this standing ovation when @sstoianova.bsky.social and @emilytammam.bsky.social spoke at last week's #EAPC2026 in Prague. A testament to the important work of our programme in recent years, and how we are bringing it to new audiences around the world!

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Ioana A. Cristea @ioanaacristea.bsky.social · 27/09/2025

Must, must-read. Just drop everything, take an hour and read this, as I have. I wish these two parents would know that strangers like me who read their writings about their Martha will think long and hard about what happened, not forget and not be the same.

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Emily Tammam @emilytammam.bsky.social · 05/10/2025

New writing, a short piece this time emilytammam.substack.com/p/this-daugh...

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Emily Tammam @emilytammam.bsky.social · 28/09/2025

Maternal Grief-Writing as Transformative Practice open.substack.com/pub/emilytam...

open.substack.com

Maternal Grief-Writing as Transformative Practice

An essay

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Emily Tammam @emilytammam.bsky.social · 26/09/2025

I am thrilled to share a new piece of writing. Sabina Dosani and I wrote about maternal grief-writing as a transformative practice. The whole experience has been incredible. Needless to say, I learnt a lot! www.tandfonline.com/doi/metrics/...

tandfonline.com

Maternal Grief-Writing as Transformative Practice: Life Writing: Vol 0, No 0

Browse all journals

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Emily Tammam @emilytammam.bsky.social · 21/08/2025

New writing and new painting emilytammam.substack.com/p/freckles

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Emily Tammam @emilytammam.bsky.social · 31/07/2025

New post emilytammam.substack.com/p/a-hot-july...

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Emily Tammam @emilytammam.bsky.social · 28/07/2025

This Wednesday, 30th July, the NCMD will launch a thematic report, about children with life-limiting conditions and palliative and end of life care needs. I was involved in the whole process, as a parent contributor and co-author. Including having my painting on the cover! See you on Wednesday!

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Dr Kathryn Mannix @drkathrynmannix.bsky.social · 18/06/2025

'Data for the head, Stories for the heart.' The @ncmd.bsky.social is collecting stories from families whose child died. They will be used to illustrate what children & families found challenging & what was helpful, in a report recommending service improvements. More info ⬇️ @emilytammam.bsky.social

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Emily Tammam @emilytammam.bsky.social · 17/06/2025

Please share this widely. We are inviting families to share their stories with us. See more details here.

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Lorna Fraser @paedpallcare.bsky.social · 30/04/2025

We are so lucky that @emilytammam.bsky.social is one of our parent PPI members. I was never fortunate enough to meet Neve but am very grateful to Emily for her generous sharing of her writing and painting. Please read. #pedpc

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Emily Tammam @emilytammam.bsky.social · 30/04/2025

Two years Reflections on a toddler Neve and a list of writing, speaking, events and more, in Neve's honour, to mark two years since her death emilytammam.substack.com/p/two-years-... emilytammam.substack.com/p/a-list-to-...

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Bedside Reading @bedsidereading.bsky.social · 12/04/2025

Sneak preview for Tuesday 15/4 when Sabina Dosani joins me to talk about Ilse Pedlar’s poem “Visit to the Vets”

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Emily Tammam @emilytammam.bsky.social · 08/04/2025

Bluebells And a radiant little Neve "I could feel traces of Neve all around me - on the grass and up the trees, in the warmth of the sunshine, echoed in the screams and the squawks of the peacocks." Continue reading emilytammam.substack.com/p/bluebells

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Emily Tammam @emilytammam.bsky.social · 23/03/2025

As elements of the brain fog of grief and my numbness start to dissipate, it is changing how I write. Wisdom from one of Neve's doctors helped me through the early months and years. Now I feel a pull towards a bit more structure and focus, in my writing.

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James Wright @jpwarchaeology.bsky.social · 13/03/2025

I talk a fair bit about the expectation that archaeologists will work for free. Even when we do get paid for appearing at events the reality can be grim. In this thread, I'm going to outline financial issues at play in giving a public lecture using a real world example...

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Emily Tammam @emilytammam.bsky.social · 06/03/2025

Painting Neve reading Musings on reading and painting, on World Book Day emilytammam.substack.com/p/painting-n...

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Journal of Art in Society @artinsociety.bsky.social · 04/03/2025

Here's Mark Draisey’s oil portrait ‘Kitty, the Teenage Baker’, a prize-winner in the BP Portrait Award 2020 markdraisey.com/portraits

Red-haired teenaged woman, in dungarees and tightly patterned shirt, wearing cap and blue sneakers, sits on stool, holding basket of fresh-baked bread, as she look off to the right

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Emily Tammam @emilytammam.bsky.social · 16/02/2025

A new piece of writing from me today emilytammam.substack.com/p/spring-flo...

Painting of young girl's face, looking forward

Painting of crocus and snowdrop flowers.

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Emily Tammam @emilytammam.bsky.social · 01/02/2025

Grief without tears A funeral New piece of writing on substack. To read... emilytammam.substack.com/p/grief-with...

Young girl with hair in a bun on head and with NG tube, painted.

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Emily Tammam @emilytammam.bsky.social · 19/01/2025

New paintings of Neve, to accompany emilytammam.substack.com/p/frozen-in-...

Painting of a toddler with her head down

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Emily Tammam @emilytammam.bsky.social · 18/01/2025

“Neve would love this, wouldn’t she?” My thoughts exactly, spoken aloud by my sister. We could both envisage her, bursting with joy and vitality, her cheeks rosy and warm. emilytammam.substack.com/p/frozen-in-...

Painting of a little child with her head down

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Amy G Dala, MD @amygdalamd.bsky.social · 24/12/2024

palliative care training has revolutionized how I communicate with families, how I deliver difficult news, how I assess family’s goals of care to guide/align management, how I doctor don’t need fellowship level training to practice primary pall care; lots of options to enhance skill set

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Emily Tammam @emilytammam.bsky.social · 10/12/2024

New paintings to share. All painted using watercolours from stonegroundpaint.com

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Emily Tammam @emilytammam.bsky.social · 10/12/2024

Before I faced my child’s possibly imminent death, I could not have imagined the nuances of hope in once unimaginable moments. To continue reading... emilytammam.substack.com/p/hope-at-th... (An updated and republished piece of writing with new paintings)

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Noami @noami428.bsky.social · 02/12/2024

Our culture most definitely has a profound lack of “death literacy” This beautiful & heartbreaking article highlights vital issues in how we communicate with patients and provide care. #palliativesky #medsky #oncsky www.nytimes.com/2024/11/25/o...

nytimes.com

Opinion | If My Dying Daughter Could Face Her Mortality, Why Couldn’t the Rest of Us?

A bereaved mother’s case against our grief-phobic culture.

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Tamarin Norwood @tamarinnorwood.bsky.social · 02/12/2024

Anyone else from #palliativecare #publichealth #stillbirth #childloss coming to @NES_Education #NESBereavement2024 Conference tomorrow? We’re presenting new findings on the impacts/limits of *literary* patient accounts in healthcare training, full programme here: www.sad.scot.nhs.uk/conference/

Banner showing the title of our conference paper: “Bereavement Education Conference 2024. Learning Kindness through Literature: prospects and limitations in the UK and Australia”

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brookecash.bsky.social @brookecash.bsky.social · 02/12/2024

Hospice nursing is the most interesting misunderstood field. Amazing things happen around here but NO one talks about it. Shoot me your hospice questions! At some point you will need to understand so you can possibly help someone through it. 🦋#hospicenurse #deathanddying

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Dr Natasha Mary Bradley @natashabradley.bsky.social · 03/12/2024

There used to be an assumption that research participation is burdensome to palliative care patients. This is changing now. Altruism, legacy, and being heard - these can all be meaningful, even at the very end of life (see quote!) Reflecting on lessons from hospice research nurses at #HospiceUKConf

"Sign me up to anything! If it makes a difference to someone else's life, I'm in!" - Hospice patient

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Claire Snyman @clairesnyman.bsky.social · 26/11/2024

Having had the honor of meeting Emily in person this year, and just reading her article, would recommend giving this a read #palliativecare

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Paul Tatum @doctatum.bsky.social · 26/11/2024

If you care about #hospice and #palliative care #hapc then this is a must read re how we need to improve. So well written. Peds focused but truth for all. Still thinking. (i tried to gift This so you can see it ) www.nytimes.com/2024/11/25/o...

nytimes.com

Opinion | If My Dying Daughter Could Face Her Mortality, Why Couldn’t the Rest of Us? (Gift Article)

A bereaved mother’s case against our grief-phobic culture.

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Miriam Gershow @miriamgershow.bsky.social · 25/11/2024

This Sarah Wildman essay is remarkable and important. I can't remember the last time something was physically painful to read. A weight on my chest all the way through. May Orli's memory be a blessing: www.nytimes.com/2024/11/25/o...

nytimes.com

Opinion | If My Dying Daughter Could Face Her Mortality, Why Couldn’t the Rest of Us? (Gift Article)

A bereaved mother’s case against our grief-phobic culture.

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Matt Sampson @kidneyomicsamps.bsky.social · 26/11/2024

An amazing piece by Sarah Wildman about her daughter Orli’s terminal illness, how the medical team related to their family & how we can do better. I can’t recommend this enough. I realize how lucky I’ve been to learn from those doing this so well at CHOP, UMICH, & BCH www.nytimes.com/2024/11/25/o...

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Caroline @carolinenewson.bsky.social · 12/11/2024

This wonderful girl is Flossie (Sunday name = Florence). She died by suicide in April last year, aged just 13. Very out of the blue. Completely devastating. Looking to connect with others in #grief #childloss #bereavement communities on here as I move from the bad place ❤️‍🩹

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Dr Neil Pender BM MSc FRCP 🏳️‍🌈 @drneilpender.bsky.social · 17/11/2024

Dear followers, If you can help... LIKE and REPOST. Many thanks! #PalliativeCare #HAPM #HPM #HAPC #Hospice

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Susie Dent @susiedentwords.bsky.social · 18/11/2024

Word of this morning is ‘procaffeinate’: to put everything on hold until you’ve had sufficient amounts of coffee.

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Ed Finch @edfinch.bsky.social · 18/11/2024

Morning! Lots of new followers over the weekend - welcome!! I'm Ed Finch, ex-headteacher, book lover, lino printmaker, storyteller, strummer, Dartmoor walker. I post about all of these things and also stupid jokes and things I find interesting. I live in the UK on the edge of Dartmoor - lucky me!

A picture of me, Ed Finch, on Dartmoor with gorse in flower behind me.

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Emily Tammam @emilytammam.bsky.social · 17/11/2024

Today is Neve's 12th birthday. I am marking it with two posts. The first contains a painting and some words. emilytammam.substack.com/p/marking-a-... The second is a list of links. Some are thought-provoking, some are resonant and others made me smile. emilytammam.substack.com/p/a-list ♥️

emilytammam.substack.com

Marking a 12th birthday

Today marks another birthday; another one without the proprietrix of the day.

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Liz Jestico @lizjestico.bsky.social · 04/09/2024

Yesterday was my PhD graduation at Oxford Brookes University. It’s been an utter privilege to study how friends & family support parents of children with cancer with decision-making, and a deeply transformational process. I am full of gratitude to so many people who’ve supported me along the way.

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Flo 🌷 @floavery.bsky.social · 15/11/2024

Wow, this is a stunning piece of writing. Thank you for writing it. I wish I had read this in grief 10 years ago, but it brings me comfort still now

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