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The National Child Mortality Database

@ncmd.bsky.social
178 followers 84 following 111 posts

An NHS England-funded programme delivered by the University of Bristol to gather information on all children who die in England so we can save children’s lives in the future.

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The National Child Mortality Database @ncmd.bsky.social · 30/09/2026
Join us on 18 November for a free webinar on child death reviews in 2026. We'll catch you up on the latest developments, and talk youthrough the findings of our annual data release (to be published November 12). Read more and register: www.ncmd.info/events/child...
ncmd.info
Child death reviews in 2026
In this NCMD webinar participants will get an overview of the NCMD's recent work and key updates to the child death review process.
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The National Child Mortality Database @ncmd.bsky.social · 16/09/2026
Researchers at @bangoruniversity.bsky.social are exploring children's organ donation, and looking to chat with families who have had to discuss donation as part of their bereavement journey. Read more and get involved: kidneyresearchunit.wales/impact-case-...
kidneyresearchunit.wales
Impact Case Studies
research making a real difference to the lives of people living with kidney disease, families, carers, third sector and research in health and social care Wales
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The National Child Mortality Database @ncmd.bsky.social · 14/09/2026
NCMD Deputy Director @vsleap.bsky.social spoke at Sibling Support's network event in Warwickshire last week - thank you to Sibling Support for hosting such a productive discussion!
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The National Child Mortality Database @ncmd.bsky.social · 10/09/2026
Like many organisations working with colleagues in the suicide prevention and charity sectors, we were deeply saddened to hear of the closure of PAPYRUS, the UK charity dedicated to the prevention of young suicide after almost 30 years. Our full statement: www.ncmd.info/news/ncmd-pa...
ncmd.info
NCMD statement on the closure of PAPYRUS
The NCMD is deeply saddened to hear of the closure of PAPYRUS, the UK charity dedicated to the prevention of young suicide.
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The National Child Mortality Database @ncmd.bsky.social · 03/09/2026
In our latest research paper, published via @springernature.com, we explore the association between risk factors like non-lethal self injury and death by suicide among children in England. www.ncmd.info/publications...
ncmd.info
Self-injury and other predictors of suicide deaths among children
This research explores the association between risk factors like non-lethal self injury and death by suicide among children in England.
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Reposted by The National Child Mortality Database
Households in Temporary Accommodation APPG @ta-appg.bsky.social · 25/08/2026
From the 1st of September, councils will have to tell schools, GPs and health visiting teams when a child is placed in temporary accommodation. This new statutory duty is an important step towards better support and outcomes for families and children experiencing homelessness.
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Reposted by The National Child Mortality Database
Shared Health Foundation @sharedhealthgm.bsky.social · 25/08/2026
Children's health outcomes can be profoundly affected by housing instability. ❗️From 1st September, local authorities will be required to notify GPs when a child moves to temporary accommodation. GPs can then take practical steps to support children and families throughout their homeless journey.
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The National Child Mortality Database @ncmd.bsky.social · 02/09/2026
Coming up: don't miss next week's webinar from 2wish 'The Calls We Carry', a live online webinar for anyone affected by the death of a child or young person. 9 September at 0930, with free registration here: events.zoom.us/ev/ArrdnRl4k...
events.zoom.us
The Calls we Carry: Webinar Agenda
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The National Child Mortality Database @ncmd.bsky.social · 18/08/2026
⚠️ The Medicines and Healthcare products Regulatory Agency has issued a warning on all rectal catheters: do not use in infants, including for the treatment of colic, gas-related discomfort or constipation. Read more here, and please share to your networks: www.gov.uk/drug-device-...
gov.uk
All rectal catheters (gas and colic relievers): Do not use in infants, including for the treatment of colic, gas-related discomfort or constipation (DSI/2026/008)
Do not use rectal catheters in infants, including for colic, gas-related discomfort or constipation. Stop using these products immediately and dispose of any unused devices.
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The National Child Mortality Database @ncmd.bsky.social · 13/08/2026
In an excellent blog, @sandscharity.bsky.social explore why creating a Maternity and Neonatal Commissioner for England, while needful, is only the first step. We must ensure that that role has the independence, authority and resources needed to make a real difference www.sands.org.uk/maternity-an...
sands.org.uk
A Maternity and Neonatal Commissioner for England | Sands - Saving babies' lives. Supporting bereaved families.
A Maternity and
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The National Child Mortality Database @ncmd.bsky.social · 12/08/2026
What role can paediatricians play in assessing internet use and its effect on children? In a new paper via @bmj.com we use the NCMD's unique data to dig into this very question: www.ncmd.info/publications...
ncmd.info
Internet use in young people and its effect on mental health
This research explores the red flags of online interactions and intersectional risk factors, concerns often raised by paediatricians.
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The National Child Mortality Database @ncmd.bsky.social · 12/08/2026
In a new NCMD briefing we describe the characteristics of children who experienced sudden unexpected death in epilepsy, and unpack learning from the child death review process. Read it here: www.ncmd.info/publications...
ncmd.info
Sudden Unexpected Deaths in Epilepsy
This National Child Mortality Database briefing provides data on deaths of children due to sudden and unexpected deaths in epilepsy (SUDEP)
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The National Child Mortality Database @ncmd.bsky.social · 10/08/2026
New via @thelancet.com: a correspondence paper from @sstoianova.bsky.social, Naz Khan and others which highlights the findings of our recent thematic report Understanding consanguinity-related child deaths and situates them in the broader context. Read it here: www.ncmd.info/publications...
ncmd.info
Close relationship union and pregnancy outcomes
This correspondence article highlights key findings from an NCMD thematic report on children born to consanguineous parents..
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The National Child Mortality Database @ncmd.bsky.social · 29/07/2026
In a new editorial via @bmj.com, @karenluyt.bsky.social, @sstoianova.bsky.social and others highlight the dangers of not having dose counters on UK asthma inhalers. A great example of how alerts from CDOP can be escalated and amplified in NCMD reports. adc.bmj.com/content/earl...
adc.bmj.com
Counting down to disaster: the dangers of not having dose counters on UK asthma inhalers
Dose counters provide a simple yet critical safety feature on asthma inhalers. They indicate how many doses remain and alert users when a replacement inhaler is required. Many dry powder inhalers (DPI...
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The National Child Mortality Database @ncmd.bsky.social · 28/07/2026
In a new protocol paper via @bmj.com we explore how the NCMD’s unique data can be used to shine a light on the wider determinants of child #road fatalities, and what opportunities exist to prevent deaths of this kind. More: www.ncmd.info/publications... #roadsafety
ncmd.info
The determinants of child road fatalities
This study aims to understand the wider determinants of child road fatalities in England and find opportunities for prevention.
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The National Child Mortality Database @ncmd.bsky.social · 23/07/2026
Child death is one of the hardest things clinicians deal with. In this blog via @rcpch.bsky.social, @vsleap.bsky.social and @sstoianova.bsky.social outline the positive impacts of contributing to child death review: www.rcpch.ac.uk/news-events/...
rcpch.ac.uk
How the National Child Mortality Database in England (NCMD) can make learning from every child death count – patient safety spotlight
This blog explores how insights from child death reviews, brought together by the NCMD, can help clinicians turn difficult experiences into learning that improves care and prevents future deaths.
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The National Child Mortality Database @ncmd.bsky.social · 14/07/2026
We echo @rcpch.bsky.social's call for stronger quality, collection and sharing of child health data, published today in their State of Child Health report. It's fantastic to see our work cited, but more and better data is needed to address the issues highlighted. www.rcpch.ac.uk/work-we-do/s...
rcpch.ac.uk
State of Child Health
In 2026 children’s health is in decline. Across nearly all major measures, outcomes have worsened or stagnated across the UK, reversing years of progress, and the impact is felt most sharply in depriv...
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The National Child Mortality Database @ncmd.bsky.social · 09/07/2026
In a new paper in @bmj.com Open, Heard & partners bring together clinical expertise and narrative research to show how framing and language can help clinicians introduce children's palliative care earlier and with more confidence and compassion. Read here: bmjpaedsopen.bmj.com/content/bmjp...
bmjpaedsopen.bmj.com
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The National Child Mortality Database @ncmd.bsky.social · 03/07/2026
The theme of #NationalBereavedParentsDay2026 is #Thisismyplace, and in this excellent blog Dr Jon Griffiths reminds us of the relationship between grief and space. As he tells us, “To comfort me, you have to come close”. Read it here: www.ncmd.info/blog/jonatha... #AChildOfMine #NBPD26
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The National Child Mortality Database @ncmd.bsky.social · 30/06/2026
CDR professionals: Did you miss last week's webinar on the new modifiability guidance and how it should be applied? Catch up with the video and slides here: www.ncmd.info/videos/modif...
ncmd.info
Modifiable Factors Guidance for CDOPs: 2026 Update
In this session Vicky Sleap unpacks some of the common challenges professionals face when deciding whether a factor is truly modifiable.
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The National Child Mortality Database @ncmd.bsky.social · 23/06/2026
It’s going to be hot this week. It’s only natural for us to want to cool down swimming. Please remember water safety guidance, especially for children. If you work in public health nationally or locally get in touch with us to discuss your plans. Find our report here: www.ncmd.info/publications...
ncmd.info
Child drowning deaths 2019-2025
A brief summary of child drowning deaths from 1 April 2019 to 31 March 2025 by the National Child Mortality Database
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The National Child Mortality Database @ncmd.bsky.social · 17/06/2026
In our latest academic paper, published in @frontiersin.bsky.social, we look at changes in child #suicide rates and characteristics during the #COVID19 pandemic. More here: www.ncmd.info/publications...
ncmd.info
Changes in child suicide rates during the COVID-19 pandemic
This study reports on changes and characteristics of children dying by suicide in England before and during the COVID pandemic.
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The National Child Mortality Database @ncmd.bsky.social · 16/06/2026
It's #DrowningPreventionWeek, and today we attended Parliament alongside @rlssuk.bsky.social to present their new report (which follows on from our latest drowning data) to the All-Party Parliamentary Group for Water Safety Education. Read it in full here: www.rlss.org.uk/child-drowni...
rlss.org.uk
Child Drownings Report 2026
Patterns point to systemic failures in drowning prevention. RLSS UK is calling on the Government to take urgent, coordinated action to prevent drowning
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The National Child Mortality Database @ncmd.bsky.social · 16/06/2026
Thank you so much to everyone who attended our charity network meeting today and made it such an inspiring and impactful conversation. We hope to keep it going in the weeks and months to come!
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The National Child Mortality Database @ncmd.bsky.social · 16/06/2026
We're delighted to have so many of our charity collaborators with us for our charity network meeting (and to have @sharedhealthgm.bsky.social's Sam Pratt presenting!) It's always so valuable to get your input, and to find new opportunities to work together to improve and save children's lives.
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The National Child Mortality Database @ncmd.bsky.social · 16/06/2026
In a new blog, we share for the first time work that we are doing alongside experts from @bristoluni.bsky.social's @ebibristol.bsky.social to strengthen processes for real-time child mortality surveillance. Read more here: elizabethblackwellinstitute.blogs.bristol.ac.uk/2026/06/04/e...
elizabethblackwellinstitute.blogs.bristol.ac.uk
Explainable AI for early categorisation of child deaths: Real-time insights for prevention – Elizabeth Blackwell Institute News
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The National Child Mortality Database @ncmd.bsky.social · 11/06/2026
Along with UCLPartners we are pleased to share the new edits of our videos on safer sleep and reducing accidents, which are bite-sized and ideal for families and carers. Find them here: www.ncmd.info/videos/child...
ncmd.info
Safer sleep and reducing accidents: key messages for parents
In this video training Dr Carly Fertleman unpacks key points for families emerging from NCMD research into child deaths
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The National Child Mortality Database @ncmd.bsky.social · 08/06/2026
If you couldn't make it to Prague to see @sstoianova.bsky.social and @emilytammam.bsky.social address the 20th World Congress of the European Association for Palliative Care, don't worry - you can now watch the presentation on our website: www.ncmd.info/videos/co-pr...
ncmd.info
Bringing Humanity to Data
This webinar explores how co-production can ensure that data is presented in a way that is relevant to lived experience.
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The National Child Mortality Database @ncmd.bsky.social · 19/05/2026
We were absolutely overwhelmed to receive this standing ovation when @sstoianova.bsky.social and @emilytammam.bsky.social spoke at last week's #EAPC2026 in Prague. A testament to the important work of our programme in recent years, and how we are bringing it to new audiences around the world!
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The National Child Mortality Database @ncmd.bsky.social · 19/05/2026
Please check out Together for Short Lives' new palliative care toolkit. You can also register on their website for a free webinar for professionals who would like a practical induction to the updated categories and guidance. www.togetherforshortlives.org.uk/changing-liv...
togetherforshortlives.org.uk
Toolkit for Palliative Care Needs in Children | Together for Short Lives
A practical framework helping care professionals recognise, assess and support children with palliative care needs.
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The National Child Mortality Database @ncmd.bsky.social · 18/05/2026
Alongside UCL Partners we have developed a set of video resources for professionals that set out the key messages that need to be shared with parents to promote safer sleep and to reduce accidents. Please watch and share to your networks! www.ncmd.info/videos/child...
ncmd.info
Reducing the risk of child death: Key messages for parents
In this video training Dr Carly Fertleman unpacks key points for families emerging from NCMD research into child deaths
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The National Child Mortality Database @ncmd.bsky.social · 18/05/2026
In a new NCMD blog on the occasion of #KnifeCrimeAwarenessWeek, we hear from mum Terri Banks - who lost her son Ben to a knife attack. Please be aware that her story may be distressing for some readers. www.ncmd.info/blog/terri-b...
ncmd.info
Terri Banks - Ben
Mum Terri Banks writes about the experience of losing her son Ben, who died of his injuries following a stabbing attack.
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The National Child Mortality Database @ncmd.bsky.social · 13/05/2026
We are so grateful to everyone who chatted to us, pored over our publications and completed our stand experience at #rcpch26! We are already looking forward to next year - so if you have any feedback on our stand, please let us know below 👇 #ncmdatrcpch
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The National Child Mortality Database @ncmd.bsky.social · 13/05/2026
We are obliged to @asthmaandlung.org.uk for their useful leaflet, which you'll find in our asthma bags. Pick up yours at stand B6! #rcpch26 #ncmdatrcpch
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The National Child Mortality Database @ncmd.bsky.social · 13/05/2026
It's our final day at #rcpch and also @vsleap.bsky.social's birthday! Shout outs to the ACDRP and Jo Garstang - come by stand B6 and have a chat if you're here. #ncmdatrcpch
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The National Child Mortality Database @ncmd.bsky.social · 12/05/2026
We were pleased to meet Rohini Rattihalli at #rcpch26 this afternoon, where she'll be presenting work on epilepsy using the NCMD's unique data. #ncmdatrcpch
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The National Child Mortality Database @ncmd.bsky.social · 12/05/2026
Special thanks to NEA for the materials they shared with us and delegates at #rcpch26. If you'd like to hear more about helping children in fuel poverty, come to stand B6!
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The National Child Mortality Database @ncmd.bsky.social · 12/05/2026
A shout out to @autismaction.bsky.social in today's video update from #rcpch26 with @vsleap.bsky.social! We're so grateful to all of the charities who provided great materials for us to share. #ncmdatrcpch
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The National Child Mortality Database @ncmd.bsky.social · 12/05/2026
We are back at #rcpch26 this morning and looking forward to another day of conversations with paediatricians, CDR colleagues and everyone who comes to say hello at stand B6! #ncmdatrcpch
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The National Child Mortality Database @ncmd.bsky.social · 11/05/2026
The NCMD team were glad to catch up with @emmablake4.bsky.social, who so compellingly presented our data in this morning's plenary. #ncmdatrcpch #rcpch26 @sstoianova.bsky.social @karenluyt.bsky.social
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The National Child Mortality Database @ncmd.bsky.social · 11/05/2026
Great to see so much analysis based on NCMD's unique data presented at #rcpch26 - including this from Dr David Odd on our work concerning life limiting conditions. #ncmdatrcpch
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The National Child Mortality Database @ncmd.bsky.social · 11/05/2026
We have resources on unexplained deaths too! Shown here by @vsleap.bsky.social and SUDC UK's Nikki Speed. Visit us at B6 for more! #rcpch26 #ncmdatrcpch
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The National Child Mortality Database @ncmd.bsky.social · 11/05/2026
Supporting our consanguinity resources we have some great materials from Genetic Alliance UK, modelled here by @vsleap.bsky.social and Naz Khan. Come to our stand at the @rcpch.bsky.social conference to find out more. #NCMDatRCPCH #RCPCH2026
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The National Child Mortality Database @ncmd.bsky.social · 11/05/2026
This year at #rcpch26 we have a full stand experience and we're really making the most of our space - as @vsleap.bsky.social explains! #ncmdatrcpch
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The National Child Mortality Database @ncmd.bsky.social · 11/05/2026
If you're at #rcpch26 this week, don't forget to drop by and say hello! We're at stand B6. #ncmdatrcpch
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The National Child Mortality Database @ncmd.bsky.social · 07/05/2026
If you weren't able to join us this week for our spring update, never fear: you can catch up with the recorded version of the session here. Thanks to everyone who was able to join and contribute to such a lively and illuminating discussion! www.ncmd.info/videos/child...
ncmd.info
Child death reviews in 2026: Spring update
Vicky Sleap and Tom Williams provide a general update on work that the NCMD has done and key issues facing child death review professionals.
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The National Child Mortality Database @ncmd.bsky.social · 07/05/2026
The NCMD has signed this open letter from Mums for Lungs to call for a Clean Air Act. Please read and consider doing the same! www.mumsforlungs.org/news/sign-ou...
mumsforlungs.org
Sign our open letter for a Clean Air Act — Mums for Lungs
29th April 2026 We've written an open letter to the Prime Minister asking him to deliver a Clean Air Act - sign before 10th May to urge him to act.
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The National Child Mortality Database @ncmd.bsky.social · 06/05/2026
Later this month we'll be joined by Heard, who will present a webinar on how professionals can use framing to improve people’s understanding and decision-making around children’s palliative care. Read more and register: www.ncmd.info/events/shift...
ncmd.info
Palliative care in children
This webinar will draw on research and science to show how professionals can improve understanding of children's palliative care.
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The National Child Mortality Database @ncmd.bsky.social · 06/05/2026
Our new briefing on child drowning deaths, published in partnership with @rlssuk.bsky.social, shows that 196 children died by drowning between April 2019 and March 2025. These tragic deaths were preventable. Read the briefing here: www.ncmd.info/publications...
ncmd.info
Child drowning deaths 2019-2025
A brief summary of child drowning deaths from 1 April 2019 to 31 March 2025 by the National Child Mortality Database
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The National Child Mortality Database @ncmd.bsky.social · 30/04/2026
An excellent long read from @newstatesman1913.bsky.social on child deaths in temporary accommodation, including concerns raised on the provision of cots for infants. Read it here: www.newstatesman.com/politics/uk-...
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